#but it's so frustrating
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hotwaterandmilk · 3 months ago
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So my new medication and in fact all medications that can halt the symptoms of an attack of this condition are not subsidised in Australia by the PBS. Most have actually been discontinued in the Australian market due to low sales (my condition is rare so... yeah).
If I had a similar (but medically distinct and considerably less debilitating) condition these two injector pens would have cost me $14.99 thanks to the PBS. That's because these drugs are approved for this similar condition and not the one I actually have (which, as I noted above, has basically sweet FA drugs approved here let alone subsidised).
Outrageous medication prices are nothing new to my followers from the USA, where things are a hell of a lot worse than this but regardless of our locations, medication costs like this are fucking criminal.
Two injectors stops... two attacks. You can have 8+ attacks a day. 🙃
Chronic illness, huh?
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I guess it's time to become a streamer or sell feet pics or something.
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meownotgood · 3 months ago
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I'm still writing... unfortunately work has been really busy again so I definitely won't be able to finish chapter 4 by the end of the month like I planned.... 😭 but I'm nearly done, I'll keep working 🫡
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kerosene-saint · 2 months ago
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ughhhhhhh I hate that good things cost money
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jitteryfool · 8 months ago
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Something something about everyone always assuming i'm an international exchange student which by itself is nothing bad but it gets very Annoying because I KNOW that they often only assume that because I'm asian and then they get so surprised to hear that no, I am a regular full-time student who lives here and have been living here since my birth, thank you very much. It's the same when sometimes I go to a store, hear the cashier speak in french to the people in front of me but they then upon seeing me always switch to english. It's the assumption I am a Visitor in a country I grew up in and consider to be my home, the way people always assume I surely am not a native that just. Gets to me sometimes.
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queenofzan · 1 year ago
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so @centralkvetchmonolith drove me to a hardware store out in the suburbs yesterday so i could get the rest of my spinning wheel supplies (plus some tools that will make the spinning wheel build easier and also just improve my life to have, like chisels, sharpening stones, and a little mini bench vise that fits on my desk) and i was talking about how uhhh i'm going to end up foraging fiber plants from public spaces lmao and she asked, how do you prepare nettles to eat, anyway
which i didn't know but i looked up when i got home AND
most people eat only the leaves! preferring the newer growth bc after it's too old it tastes bitter! but the fiber part comes from the STALKS which obviously you can just let grow and grow until the end of the season and get some nice fiber from
so nettles are not only a fiber plant AND an edible plant, but they are a "use all parts of the plant" deal where you can nom those fresh leaves and let the stalks grow until they're as tall as you are before you stomp on them and turn them into thread or yarn
that's so cool why the heck do we use other plants in areas where nettles grow super well???
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izvmimi · 2 years ago
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i know this is unfair but i need everyone to have their first heartbreak before their mid-20s or get married to the first person they date cuz i can’t be listening to this kind of nonsense all the time
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xivu-arath · 1 year ago
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daily griping of still not feeling well enough to do more than run around in sky and zelda a bit...
one day! but it would be nice for it to happen sooner
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I hate being a better writer than everyone in my class because it means even when feedback on my class/teacher/classmates is anonymous, my teacher can still tell that it's me because of my writing style. If I say crappy stuff about my classmates, it's whatever. Like, I wrote this in one of my 1st peer review evaluations (non-anonymous), and my teacher didn't say shit.
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But now in my final evaluation (also non-anonymous) she's asking if we had any concerns about the class and I had to sugarcoat it bc the teacher is really nice and has provided me with a lot of great academic opportunities but I still don't think she was teaching my classmates properly.
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elbiotipo · 7 months ago
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I think one big reason why we don't consider the stars as important as before (not even pop-astrology anymore cares about the stars or the sky on itself, just the signs deprived of context) is because of light pollution.
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For most of human history the sky looked between 1-3, 4 at most. And then all of a sudden with electrification it was gone (I'm lucky if I get 6 in my small city). The first time I saw the Milky Way fully as a kid was a spiritual experience, I was almost scared on how BRIGHT it was, it felt like someone was looking back at me. You don't get that at all with modern light pollution.
When most people talk about stargazing nowadays they think about watching about a couple of bright dots. The stars are really, really not like that. The unpolluted night sky is a festival of fireworks. There is nothing like it.
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butchfalin · 1 year ago
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the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again
#yeehaw#1k#5k#10k#posts that got cursed. blasted. im making these tag updates after... 19 hours?#also i have been told it should say speech loss bc nonverbal specifically refers to the permanent state. did not know that!#unfortunately i fear it is so far past containment that even if i edited it now it would do very little. but noted for future reference#edit 2: nvm enough ppl have come to rb it from me directly that i changed the wording a bit. hopefully this makes sense#also. in case anyone is curious. though i doubt anyone who is commenting these things will check the original tags#1) my friend did not do this on purpose in any way. it was not intended to distract me or to hit on me. im a lesbian hes a gay man. cmon now#he felt very bad about it afterwards. i thought it was hilarious but it was very embarrassed and apologetic#2) “why didn't he use 🫵🏼?” didn't exist yet. “why didn't he use 🆗?” dunno! we'd been using a lot of hand emojis. 👌🏼 is an ok sign#like it makes sense. it was just a silly mixup. also No i did not invent 👉🏼👌🏼 as a gesture meaning sex. do you live under a rock#3) nonspeaking episodes are a recurring thing in my life and have been since i was born. this is not a quirky one-time thing#it is a pervasive issue that is very frustrating to both myself and the people i am trying to communicate with. in which trying to speak is#extremely distressing and causes very genuine anguish. this post is not me making light of it it's just a funny thing that happened once#it's no different than if i post about a funny thing that happened in conjunction w a physical disability. it's just me talking abt my life#i don't mind character tags tho. those can be entertaining. i don't know what any of you are talking about#Except the ppl who have said this is pego/ryu or wang/xian. those people i understand and respect#if you use it as a writing prompt that's fine but send it to me. i want to see it#aaaand i think that's it. everyday im tempted to turn off rbs on it. it hasn't even been a week
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kosmogrl · 4 months ago
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I have a severe case of wanting to do everything and ending up doing nothing
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crazybagelbitch · 17 days ago
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winning the outstanding employee award was admittedly nice but mostly i would like to be paid more
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aropride · 9 months ago
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it's so fucking frustrating to be in college and know everyone uses chatgpt and to be tempted by it constantly while also knowing intellectually that it doesn't work and it's a bad idea. like, i hang out in the library a lot, and i see people using chatgpt on assignments almost every day. and i know it isn't a good way to learn, because it's not really "artificial intelligence" so much as it is an auto text generator. and it gives you wrong information or badly worded sentences all the time. but every week i stare down assignments i don't want to do and i think man. if only i could type this prompt into a text generator and have it done in 10 minutes flat. and i know it wouldn't work. it wouldn't synthesize information from the text the way professors want, it wouldn't know how to answer questions, it just spits out vaguely related words for a couple paragraphs. but knowing my classmates get their work done in 10 minutes flat with it while i fight every ounce of attention deficit hyperactivity disorder in my body is infuriating.
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borrelia · 10 months ago
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if you donate one single us dollar to the unrwa, you will have donated more money than you would have by clicking that stupid arab.orb link every day for four and a half years. yes, they do actually donate money to the unrwa, but even with tens of thousands of clicks, most of that money is the baseline $90 they send every quarter. from 2023 quarter 4, half a million clicks turned into $380.57. maths out to six hundreths of one cent per click. just donate to unrwa.
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kuuhaiyu · 5 months ago
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i really can't emphasize how heartbreaking it is that the recent harassment campaign against @/90-ghost (among others; see: 1, 2, 3) has led to well-meaning people telling others not to listen to him. he is one of the most visible survivors of the genocide here on tumblr. his entire journey of escape is so well documented! and yet, it only took a few people confidently pointing fingers to create an entire witch hunt accusing him and other palestinians of being disreputable scammers and liars.
i can't help but feel like the reason why people were SO eager to believe those accusations, is because it was uncomfortable to see posts from palestinians every day asking for our time, attention, money, and support; so when someone presented the perfect excuse to ignore all those posts and asks while also taking the high ground, people just LEAPED onto it. they wanted to believe it, because it would be more comfortable.
honestly, i understand feeling overwhelmed by bad news, by the number of asks and messages in your inbox, and so on and so forth. i understand needing to set boundaries for yourself so you don't get burned out. i think this is really when you have to have a set of principles to fall back on, even when you're tired, uncomfortable, angry, and/or sad. so here's the one i suggest, which has been working for me best: don't make your discomfort with this situation into someone else's problem, and for god's sake don't make it a public problem.
if you hate seeing fundraiser posts or news about gaza, i can't emphasize this enough, JUST MOVE ON. KEEP YOUR MOUTH SHUT AND SCROLL PAST! all you have to do is absolutely nothing. which is what you were doing anyway, so it shouldn't be hard. if you don't have the heart to read, or reblog, or share, or donate, or support in other ways, at the very least, don't obstruct the efforts of people who ARE trying to make a difference. this is, quite literally, the least you can do.
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letmetellyouaboutmyfeels · 4 months ago
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I am incredibly serious right now when I beg you all, please, and if you have Twitter or Tiktok or whatever to please spread the word: click on an author's profile on Ao3.
You want to know if an author has written more? Want to know if they're still writing? Want to see more from them? Want to know if they've written a trope or kink or sex scenario you enjoy?
Click on their name. And look at their profile.
I cannot tell you how many times in the last six months someone has read a new or newer fic of mine and said they (a new reader who has read nothing else I've done) "can't wait to see what you do next!" I've written 50+ fics and over a million words already.
"I don't know if you're still writing..." click on my profile. I am. I literally wrote a 128k+ fic for that ship last month.
"Would you ever do X?" "Please do Y!" I already did. Click on my name and look at my works.
Archive of our Own is a library. It's an archive. Not social media. It is your responsibility to fight back against the laziness that corporate algorithms have trained into you.
Click my author name. Just click it. Just click it.
Before you demand more, or ask if a writer will do XYZ, or wonder if the author still writing, or anything - click on their profile. Click on the author's profile.
I'm not trying to be mean or condescending or anything like that. I'm just exhausted. It's disheartening and frustrating to repeat myself ad nauseam, because someone couldn't take thirty seconds to do the tiniest bit of work to see if I've written lately, if I've written more for their ship, or scan my works to see if I've written what they're asking for. Please. Please. I'm begging.
Click the author's name, and explore before you ask.
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