#autoimmune hives

[xerospaced]

So I get these autoimmune hives that are only present on my neck and when they come they burn like fire, itch like crazy and are soothed by nothing.

I've not had any this year that I can recall. Until a few weeks ago. It didn't surprise me too much coz I've had various symptoms over the past month which have indicated that I am experiencing an autoimmune flare up just relatively low key and slow manageable symptoms that have passed after a few days/a week.

But these hives are NOT leaving! Usually, two weeks, it passes. But it just keeps going. And last night I noticed it was spreading even further.

So I guess ima have to visit the GP on Monday and be like "yo, fucken, help me!" Coz antihistamines and salves are doing fuck all for it and I need it to END.

Tho I doubt they'll be able to do much for me since it's literally caused by my immune system attacking my skin which... how do you even stop that!?

[jamboreeartsupplies]

Spoon cheering me up at a doctor's appointment :)

[quietly-collecting-spoons]

Having a urticaria flair for the first time in years and I’m miserable. I’ve taken double doses of everything I can, taken Benadryl and nothing is touching it. Luckily it started just before my last appointment with the Dr I see about it so she’s aware, but this is so miserable. I’m working the next four days in a row too so I can’t even fall back on Benadryl.

I’ll be sending my Dr a message at the beginning of next week if it’s still going on, but I really don’t know what else to do. I used to be on a steroid prn because it was really good at shutting down hives, but that’s my last resort as I’m Diabetic too and it shoots my blood sugar up crazy high for 18 hrs afterwards.

[kavehpilled]

um. help

[snarltoothed]

i’ve also broken out in hives 3 times in the past 3 months… like all the other MCAS symptoms i have (which is most of them, excluding the anaphylaxis) i’ve had for years and they could easily be explained by my other syndromes but now i’m getting HIVES? HIVES? on MY BODY? frequently and without clear cause???

i’ve just spent like a year wondering if i have dandruff or scalp eczema or psoriasis that doesn’t show up literally anywhere else on my body. like maybe i should ask a doctor about that but i should probably also switch to head & shoulders :/

[desoax]

Papayajuan / Kevin assaulted me the first night I met him. I had communicated that I wanted to be treated gently the first night, but instead he took advantage of me under the guise that my communication was confusing, because I am into BDSM but decided that'd be negative to my psyche to do the first time meeting. He did it anyway. I cried myself to sleep and for months fell off the wagon drinking and smoking. I also had him meet up with Miles, they both seemed pretty pissed off, it was really funny. Miles also attempted to take advantage of me when I was black out drunk in his bed after being at the beach with him and his friends who attempted to get me to eat Japanese curry that could have caused me anaphylaxis. He kept kissing me etc.

Then, there is Tara who made up an elaborate story of YEARS of domestic violence. Coincidentally, some of it sounded an awful lot like MY OWN DOMESTIC VIOLENCE STORY and OTHER PEOPLES STORIES OF VIOLENCE THAT WERE PRIVATELY SHARED on the former social media known as Peach. I'm dating who she was with now, and I've actually grilled him significantly because I remember a lot of what Tara posted. The restrain bruises on her arms, that is real and was because she wouldn't stop attacking him–why shouldn't he be able to restrain her in the case of assault? He didn't punch her and drag her around her entire young adult life as she claimed, or else maybe she wouldn't have gotten back with him, or married him. Before she left him to live in some guys basement, she manipulated him to pay for the worthless Ikea furniture she had purchased in the past. Even as I was hanging out with him, she was sending him false nonsense about me, even attempting to frame my previous profession as "using people for money".

Why do I believe him strongly? Well, when he was 18 he had brain imaging done that displayed he effectively did not have a cerebellum. So if anything, Tara was taking advantage of him in an extremely psychotic manner, specifically if she opted to make up stories about him while using his large appearance to prove how menacing he is. He has lost 100lbs since he has been with me. His cognition has drastically improved, as has his coordination, his balance (not as much of a heavy step), and his lazy eye is gone most of the time now. His emotions have gradually been more able to regulate since going onto a gluten free diet, so I believe he has gluten ataxia as I do, which causes gluten to attack your cerebellum. We have also pinpointed that he shares triggers with me, such as soy and peanuts, he will instantly start getting hives upon entering a restaurant using soybean oil. Tara was addicted to all of the foods that hurt him while also slathering herself in body wash with soybean oil, so his state while with her was a state of perpetual delusion and emotional dysregulation. Her addiction to xanax and alcohol caused her to also lash out at him with psychotic delusions about him, often attacking him, and this woman is not weak, because I vividly recall the photos she would post flexing her biceps after working out at the gym.

I believe he has MCAS like millions of people unknowingly do, or know they do, but are unable to get a diagnosis due to the lack of education medical professional get regarding the functions of mast cells. These people are only 3 of the reasons I no longer regularly use Tumblr, as I do not have time to eat up peoples fictional lives when my only interest is helping others with debilitating chronic illnesses that are unrecognized not only by the US government, but is also a GLOBAL epidemic of autoimmune conditions that are being swept under the rug as "RARE".

Thank you for reading. You could choose to believe these people, or me, I don't care. In the end, I'm the one who isn't afraid to put my full name and face out on this website.

p.s I love my friends and I miss you all very much... even if we broke off on a bad note, I mean no malice. I've had to focus heavily on myself because my illness progressing living in San Antonio, and it became hard to ignore going back to where I grew up and lived, still struggling. On top of the complex trauma issues I'm still coping with, it was nice to see my Mom apologize for testifying against me in court 4 1/2 years after it happened. Even though I nearly died at their house, at least I got that apology.

[xerospaced]

So maybe I shouldn't be eating eggs or at least scrambled eggs when I have hives 😬

[tj-crochets]

Hey y'all! Weird question time, this time about hives. I have to get into some detail in my description of the hives, so it's going below a read more

So I used to get hives all the time. Like, a few every now and then through winter, gearing up to get bad mid-April, and then late June/early July they'd tip over into anaphylaxis, I'd go to urgent care for steroids, and then I'd a month or two of no hives before going into the slowly ramping up low level hives mode again until the next year. I'm pretty sure I have MCAS, I have like all the symptoms of severe allergies and have even been able to pin them down to specific foods but test negative for all IgE allergy testing (besides dust and cockroaches). Since I've been on higher-than-normal doses of daily antihistamines, I almost never get hives anymore My question: do I have the definition of hives right? Are these how hives go for you? My hives were: - raised, red/pink, and noticeably hotter to the touch than surrounding skin - most were about quarter sized, the smallest maybe the size of a pencil eraser, the biggest the size of a handprint - they had clearly visible edges - the ones on my fingers and toes were sometimes severe enough that the swelling of the hive prevented me from bending the joint - extremely itchy - each individual hive lasted about 24 hours, but I had a constant rotating cast of hives - larger hives turned into yellow bruises when the hive went down - they almost always formed on joints first and only spread to non-joints if I was having a bad flareup (hips and wrists first, then backs of knees, fingers, toes, elbows, and ankles, then eyes and ears, then everywhere else, but almost never my chest, back, or stomach) My endocrinologist seems convinced the joints-first hive pattern is indicative of an autoimmune issue, but I have zero issues with my joints* and test negative for RA like three different ways *well. I have mild scoliosis (maybe) and almost definitely dislocated a rib at least once, but those are not really autoimmune related? I also sometimes have joint pain but only when my muscles are so tight they are hauling on my bones and like...that's not the joint's fault pretty much every doc I've seen is just like "yeah you do electrolytes wrong muscles don't like that :/"

[darkmaga-returns]

Each month, ICAN analyzes the “free text” V-safe data released by CDC. In our latest analysis, we’ve found over 160,000 entries concerning skin issues that V-safe users developed after receiving a COVID-19 vaccine.

When the COVID-19 vaccines rolled out, CDC provided a V-safe app where people could record their symptoms. The attorneys who represent ICAN sued CDC to release this data. The V-safe data revealed over 124,000 reports of rashes; 22,000 reports of hives; 11,000 reports of blisters; 3,000 reports of eczema; 2,500 reports of psoriasis; and 1,500 reports of lesions. Some examples in the vaccine recipients’ own words:

“Severe hives. Started the morning of 1/11 went to urgent care 1/12 at 3am. Raised and red hives. Started on thighs and arms. Eventually covered 90% of my body.”

“Bullous lesions on hands. Slow healing process. Had a biopsy of one of the lesions.”

“6 silver dollar sized psoriasis like patches on my chest and ive [sic] never had any skin issues in my life”

“Had very unusual rapid growing lesion, biopsy done 1/15/21. Suspecting autoimmune process. Requires topical and systemic pain meds.”

“Painful blisters on my hands, feet, wrists and elbows as well as in my nostril.”

“Ulcers on roof of mouth and down throat (not something that has ever happened to me before)”

“Rash all over, hive like bumps on palms of feet and hands, back, stomach, legs, arms, its every where [sic] and very itchy.”

Scientific literature includes many reports of cutaneous (skin) reactions after COVID-19 vaccination. Most skin reactions to drugs are considered to be a hypersensitive immune response involving mast cells, and the preferred treatment is to discontinue the drug.

How does CDC treat these reactions? It blithely instructs people that even if they develop a “red, itchy, swollen, or painful rash” that they can “likely receive another dose” of the vaccine. The only rash it considers to be a concern is one that “required hospitalization.”

ICAN will continue our V-safe analysis and alert you to vaccine adverse reaction patterns that CDC would rather keep secret. We will not stop until all data is publicly available.

[pilebunkers]

Aside from the idea of food crops engineered to require certain proprietary proteins to survive, I keep thinking about the tightly-controlled environmental controls of stations and terraforming of planets leading to things like pollens or pathogens pumped through the climate systems to spark autoimmune disorders/allergic reactions in people not immunised by the corporation running the station/planet. It is difficult if not outright impossible to live anywhere unsanctioned because you're either 1) permanently covered in hives or 2) literally being killed by the air you breathe.

[yourgamemasterthewhiterabbit]

So I went out to the pharmacy, to restock on antihistamines, ibuprofen and get some fomatadine to try out.

Mostly I've been having thoughts about how the antihistamines helped specific symptoms but just didn't impact others at all, which was why I assumed those symptoms weren't allergies.

I still think this is a multi-system autoimmune attack stacking with weak organ function to cause things like gout and etc, and then mineral deficiencies caused by me trying to flush out the kidney problems, but it's the trigger or initial cause I am trying to nail down. It could have been corona exposure and the damage from that bladder test, and ALSO a new food allergy. Basically my body is very stupid about everything...

But none of my food allergies result in like acute anaphylaxis, they all act *mostly* like a non-ige mediated allergy. I say mostly because I get less digestive symptoms and more breathing symptoms and swelling than you would expect for that, and some really immediate vomiting for some, and migraines for most, but like, not a lot of actually life threatening breathing problems, and often very delayed full body reactions like hives.

I have noticed them being milder if I take antihistamines around the foods I react to, but not by much. Mostly it helps the breathing issues and scratchy throat.

I can't get google to say whether any type of anti-histamine has ANY effect at all on non-ige mediated allergies. They say adrenaline and antihistamines aren't -necessary- but they don't say whether it helps AT ALL. I'm just looking for a way to reduce the symptoms or confirm the cause. but all any source will tell me is that an elimination diet is the only strategy. Like okay, great but how do I make my body livable while I am waiting for the food reaction to pass? I don't have anyone to help me, I HAVE to be able to get up and feed myself.

Meanwhile, even before my pathetic hobble in the cold this morning I had started feeling baselessly optimistic about recovering again, and my pupils started dilating almost like a normal person's again, instead of being pinpoints 24/7 in the darkness of my apartment. The only thing I changed at that point was trying a single loratadine again to see if it calmed anything back down from the recent flare-up. I have no idea if it did, but it might actually be the loratadine that's been responsible for my weirdly improved mood and weirdly normal eye function at various points recently. Some kind of autoimmune effect on my nerves and neurology might be responsible for the perpetually tiny pupils and mild consistent depression [more frustrated mood than a low one]. It could all be coincidence, but it seems to be forming a pattern of repeatable results.

I haven't tried the fomatadine yet for pmdd or anything else, but I am starting to think some people have a seriously observable link between their histamine levels and mood.

It's a shame loratadine is so fucking bad for your kidneys, because I think for me it's functionally an anti-depressant, when actual anti-depressants did nothing and get metabolized too quickly causing weird symptoms.

It's also a shame that walk probably will make the swelling in my legs a billion times worse... But on the bright side, ibuprofen is the safest nsaid for your kidneys if you have to take one, and even judging by the drug information, I'm not sure it's hard on your kidneys so long as they are still at a stage where they are processing a normal amount of fluids at a normal or faster rate. I might just manage the swelling while I avoid high histamine foods, and cut out tilapia, and see if I recover from here. I'm peeing normally, the ph of everything is safe and close to neutral, and I think I have managed to get myself fully un-jaundiced already. I'd be glad to not be tempted with aspirin anymore though. I suspect neither my kidneys or my liver like it, but it was all I had, so I had pretty much stopped treating the swelling at all. And if my kidney problems are being caused in part by inflammation, that's maybe not a good thing.

So hopefully that means I can get back to some hard-core cleaning and organizing and get it all done BEFORE someone can even decide to have an issue with anything... Problem solve the city's most stupid, half-baked, apartment design. I think it would somehow actually help to build a fake wall [as a piece of furniture]??

In the meantime, my dishes and laundry, etc are fully caught up, and between yesterday's loratadine dose, the end of my period, the walk outside, and the fresh spring air and sun from my window, I'm feeling okay and mostly mentally well-adjusted and optimistic. Simply not nearly as anxious or frustrated as I would normally expect to feel under these circumstances. I have pie for breakfast and snacks in the fridge and chili and rice to eat.

I figured out how to get in and out of a sports bra without having to lift my arms over my head.

Anyway, if it's a delayed reaction to tilapia, it explains how I got so sick so fast and for so long, because I was eating platters of the stuff for like a month solid, and kept eating it after I got sick. I just kind of figured that if I tried it and didn't immediately feel anything, and didn't get a rash or migraine or digestive symptoms in the next 48 hours, it was probably fine.

It's so sad too because it tastes like all the seafood I couldn't enjoy before, and it's the one fish that's really practical to farm in Canada if ever managed to get a big enough pond. And it's cheap.

Also not 100% sure I am not allergic to milk or eggs, but now is not the time to test that. I still have 3.5 cheesecakes to eat. And I just had to give up rare steak due to bird flu, so I don't feel like losing cheesecake too.

[wilsonpussyindulgence]

a couple of years ago, i started having an allergic reaction. i broke out in hives on my legs, and i could not stop scratching. i would wake up in the middle of the night because i had drawn blood. i would sit on my couch and itch and itch and itch. now, i’ve never had this kind of reaction before; as far as i knew i wasn’t allergic to anything other than nickel, which i obviously didn’t have on or around me in any way. i knew whatever it was was in my apartment, because i didn’t itch at work or anywhere else, but i couldn’t figure it out. i hadn’t changed any soaps or fabrics or anything recently.

so i went to my GP, who shrugged and immediately sent me to a dermatologist. this was great to me, because i wanted an allergy test. from onset of itching to seeing this dermatologist, it was probably about four weeks, and while the itching waxed and waned, i was still covered in scabs when i finally saw someone who could help.

so i get my appointment, and i explain to the dermatologist what the problem is. less than a minute into the appointment, she interrupts me. that’s not a real thing i’m describing, she says. it’s not possible.

she takes my arm, and she runs a wooden…i don’t know, tongue depressor? down my arm. it immediately raises in an angry red line.

“you overproduce histamine. take a claritin”

i’ve never had a problem like this before, i say. i would like to get a general allergy test.

“it would be a waste of time. if you are still itching after the claritin, then maybe in another eight weeks.” and she leaves. i waited four weeks and she saw me for about five minutes.

i’m angry, but i take the claritin. it’s incredibly dehydrating on top of the other meds i take, so i take it for a few days and quit.

the itching…recedes. it’s on and off. it doesn’t get as bad as it was in those first few weeks again. i look up what she’s written in my chart. urticaria, common name hives. she diagnosed me with hives. no explanation for why i had a spontaneous outbreak of hives. i simply had hives.

there’s another thing, listed at the bottom, “dermatographic component.” i look up dermatographia. “dermatographia is harmless,” the mayo clinic says, “most people who have this condition do not need treatment. It tends to be more common in teens and young adults.” I am thirty, and I do need treatment. There’s one more thing in my chart: “Urticaria education provided and all questions answered.” Really. News to me.

I am SO frustrated, but the itching isn’t bad enough anymore to keep pursuing it. i am defeated. i still think about it, occasionally, on and off. She is right, about the dermatographia. It’s the cause of what they call “skin writing.” But if I redo that test, making a red line along my arm or even on my leg where the hives were, it doesn’t itch enough for me to scratch it to bloodiness. But I still don’t have any good answers about why, for about two months, I broke out in hives so bad I had to be fully clothed every second of my day.

unrelated to that, i just read about an autoimmune condition that causes you to have random allergic reactions apropos of nothing. it’s fine. no big deal!

[zackaran]

I've had POTS since 2019 and it's the one I have the most managed(Stanford neurology my beloved). Midodrine helps me the most, along with a fuck load of salt and electrolytes. It's still not enough and occasionally ruins my life and keeps me from doing what I love since I basically still can't walk up a hill on a good day. But fuck at least I can attempt things, and garden and, do mostly level hikes or walks. Or at least I could before whatever likely autoimmune thing started fucking up my shit about 2 years ago. <- That's what's preventing me from doing fucking anything. No idea what permanent damage it's causing and no doctor seems to care at all or listen to me.

Extreme fatigue, weird inconsistent allergies/chronic hives/MCAS? Stuff, bizarre extreme sunlight sensitivity that gives me like a fevery awful immune response, light sensitivity in general now with my eyes, joints more inflamed/painful/hypermobile than they've ever been, dental decay, shaking/feeling like low blood sugar or not enough protein, extreme painful gas and bloating when I eat, more migraines than ever. And I have 2 years worth of detailed documentation of these symptoms destroying what little bit of a life I'd started to build for myself but no one cares or will do anything.

[anon-e-miss]

The game: why do I have hives?

Yesterday's installment, most likely triggered by the gel glue I used on my nails. I don't think it fully cured and it's a common side effect.

Today's installment, I don't fucking know. I just know I have hives in my inner elbow and on my collarbone.

If anyone is new to this "game" of mine, the answer is, I will never know. I have chronic urticaria and chronic rhinitis. Neither is the the result of allergies, I have been thoroughly tested on that front, and this is an unknown autoimmune trigger. I have tested negative for MS and Lupus, the most common causes of this so while I am really fucking annoyed it keeps happening, thinks could be worse.

[crybabyhcro]

personally, i love the theory that overhaul's quirk was also given by garaki at some point; someone pointed out that both tenko and overhaul express similar reactions to their quirk--allergic or autoimmune itching, hives, etc. We've already learned through the series that being quirkless and then being given a quirk, or otherwise having a quirk that wasn't your own from the start, often leads to incompatibilities. aoyama's navel laser gives him stomachaches, we don't even need to get into izuku's whole deal. being given decay and waiting for it to manifest, leading to itching... it's very similar to how overhauls breaks out in hives at times.

if the quirk he was given is only one half of the original quirk it was stripped from, that means the reconstruction half of that quirk was still in garaki's possession. chisaki was also an orphan--and didn't we get insight that garaki split the decay portion from the reconstruction portion of said quirk? real coincidental considering orphan chisaki's quirk, overhaul, depended on reconstruction. and how chisaki was instrumental in creating quirk-reversal bullets... that all for one needed... in order to ensure that his body lasted during the war...

all im saying is that it's starting to track

[softest-epilogue]

I’m really just not doing well. I want to know what the fuck is going on with me. what’s the cause of my intense muscle and joint pain? why do I keep getting full body hives? why is my immune system shot when apparently I don’t have an autoimmune condition, despite my blood work being kinda sus (but never sus enough because oh no, why can anything be easy for me?)

the only answer I have that I fully believe in is my POTS (and my migraines but they don’t happen often enough). I was tentatively diagnosed with fibro but I don’t even know, dude. I feel like it’s not that. too many symptoms overlap with pots that it’s just too confusing. I just want answers. I want doctors who give a shit to find answers. I’m so tired