#anyway i don't think i really count as disabled because the medication that works for me works really well and i'm pretty pain free
Explore tagged Tumblr posts
Text
disability pride month aka pride month 2: ouchie boogaloo
#anyway i don't think i really count as disabled because the medication that works for me works really well and i'm pretty pain free#and i have been immensely privileged in my diagnostic and treatment process#ESPECIALLY as an overweight 18 year old girl. being white does help but my point is i am part of two groups that make a lot of doctors#say other things (ie maybe it's your period/have you considered losing weight)#i think however my terrible pain tolerance helped#granted. meds have side effects.#but i am a lot better off than a lot of other people with chronic diagnoses or specifically rheumatoid arthritis#and you know getting all this stuff in australia was somewhat expensive and it felt like it took forever. especially while i was waiting#but it would have been worse if i lived in the usa. if i started at a college that forced me to move out and live on campus#and you know general healthcare hell#buuuuuuuuuuut yeah!
5 notes
·
View notes
Text
The Process of Flawed Creation
or, making a character that's an allegory for disability
Hello my audience of small readers and big-time writers, this is the Secretary making another character that will appear within the story. This time, it's an Augment! If you haven't noticed one of the themes of Drink Your Villain Juice, it's that the superpowered characters (Flares, Genomes, Augments) can all be loosely tied to the struggle of disability (psychological, developmental, and physical respectively). Key word: loosely. But again, death of the author or whatever. I'm a communist so I support it - but I digress!
Let's make an Augment!
The background:
I need to make a character for a specific group with access to the biotechnology used to make superpowered individuals. Well, not Coven. They don't really count. Another group! They will appear in an upcoming chapter, and while they won't have any fun little things going on, we like to shape our one-off villains that may appear later with actual intent. If they appear again, we can showcase how it all ties together. If not, it just means they're swag.
Anyways, it's an Augment! Why? The group has money and access to disabled and maimed people, and they have little morals to inflict mutilations onto a group of desperate people.
Does that remind you of anything?
The base concept:
Since Augments can easily be tied to (physical) disability themes, and since we had a response on the form that made me think about it, it gave me a couple of ideas.
I was thinking maybe a blue-collar worker with a workplace injury. Maybe an electrician who got shocked because of the lack of workplace safety, or maybe a garbage trucker (term?) who found themselves trapped in the gear of a machine. For a little bit, I thought about it, and the electrician might be more interesting, and tie to an idea I had for a while. So there's a couple of things I want to have in this character:
Physical trauma turning external: I think the character needs to have some sort of physical trauma that they can use on others. The concept of electricity, receiving nerve damage, and having an augmentation that lets you do something similar seems to land on the correct line of thinking. The concept of reenacting their own trauma to avoid suffering from their own is also a swaggy theme!
Low-income wage worker: Even with the augments and with who they are working for, they aren't making that much money. They might have a uniform they have to wear, but they aren't in any sort of way part of the management class - which are not augments themselves.
Trading a disability for another one: If you are disabled, you probably know what I mean by this. Many disabled people, myself included, need to make this sort of trade. Do I take this medication that will give extreme fatigue to avoid these symptoms? In this case, it would be losing their nerve damage at the cost of having it entirely replaced with biomechanical wires within their own body, meaning they need to constantly upkeep it and if they ran out of money or contacts, they will not be able to continue to live.
With these three things in mind, I got a concept for an appearance, and a couple of things I could tie all together into a pretty character that might make someone interested in knowing more about them.
The physical manifestation of his psyche, and what it means to be him:
The Augment appears to be someone who used to be fit, but now struggles with standing upright without help of a cane. They walk in such of a way that is sturdy but also clearly controlled to avoid losing face in front of others. Their body has scars but also slits that are confused as scars for the untrained audience. They are around specific articulations: wrists, elbows, neck, and mostly likely underneath his suit that desperately needs to be dry cleaned. His face is covered with a domino mask with wiring dripping down on his chin and with more wires disappearing into his hair. Someone with a keen eye would realize that they are coming out of his neck where his head meets - but that probably means you got too close to him.
His shoes are the biggest tell that he isn't the richest. They are crusty and broken, with holes visible. The uniform was given to him - but everything else he had to supplies. With a closer look, his gloves are also run down by the way the leather seems to have been cracked over and over again from usage.
Tying it all together with a knot:
I don't think he has a Mask name. He might just be called something like Mr. White, which I guess in a way is a Mask name. But he is less a supervillain or a superhero, and more a henchman who is indebted through his power. Mr. White used to be an electrician, and through a workplace accident, burnt his nerves into numbness and lost of mobility. Someone somewhere with the knowledge that Mr. White didn't have any real healthcare, provided him with a solution: work for us and we fix your body. How can someone refuse that? He has children, a spouse, maybe even a mortgage (don't be silly, blue-collar workers don't get those! but imagine!) With his body twisted with his acquired disability, what other options does he have?
Damaged nerves are scooped out and replaced with a biomechanical system of wires, built on top of the healthy remaining nerves. In a roundabout way, this creates a trap: even if he were to stop working for them, who would upkeep his body? The wires might be rejected, leaving him in a worse state than before, and now who would really do anything to help his situation.
His Augments gave him mobility and sensations again, and while it's not perfect, Mr. White gained back a sense of normalcy. Though his Augments gave him a series of tricks: he can expel his nervous system to fry technology, give a nasty electroshock, or even move himself around in a pinch. It comes at the cost that every time he does so, he needs more upkeep, and every time he needs more upkeep, he starts to realize how deeply entrenched he is in this organization. He has lost some of his friends here, someone with a heart that could enlarge and give them more stamina (until it bursted and they bled out) and another that is now permanently bedbound with all of her limbs ran down until they were nubs with nobody really interested in fixing them.
At this point, the best he can do is make sure his loved ones are prepared to take care of him - or move on once it's too late.
His place as a henchman:
Obviously, he plays carefully. He has seen people like him be reckless or unlucky, and die from overusing their Augments. He doesn't want to be like that, but he has an organization that wants him to make these mistakes to trap him further into their maw. He plays carefully, makes himself useful in ways that don't use his Augments, and saves up money, and plans.
He doesn't need to be the best if someone else is, and if someone else is, who cares if he doesn't his nervous system to fry someone's eyes out.
Him being careful comes at a cost, though. People are noticing it. He needs to be a bit more reckless, a bit more proactive. He figures that if he uses his powers at least once per encounter or once, he loses some of that heat from his supervisors. And then, he chooses that if he throws someone else under the bus... then nobody bothers to look at him.
If someone on the field is saying that someone else is not doing their job, they are way more useful than a dead or useless body.
Final notes:
Class traitor much?
41 notes
·
View notes
Note
Details about OCs for Eliška please!
💭🩹💤🔶🐈🐉🤍🍛😥👨👩👧👦
Thank you!
💭 THOUGHT BALLOON �� what is your oc's MBTI, enneagram, and/or other personality aspects (if known/interested in)?
I actually haven't done any personality tests for her yet like I usually do... but I can at least say she's an introvert.
🩹 ADHESIVE BANDAGE — does your oc have any physical and/or mental disabilities?
Physical disabilities not that I can think of unless you count her powers/side effects of powers being similar to chronic pain. She is neurodivergent.
💤 SLEEPING SIGN — is your oc a light sleeper or a heavy sleeper? how are their sleeping habits?
Light sleeper for sure. She learned and adapted to being a light sleeper after everything she's gone through, so for survival reasons. I'd say the only time she's able to deeply sleep is either her body is so extremely exhausted she has no choice, or if she feels genuinely safe.
🔶 LARGE ORANGE DIAMOND — does your oc know cpr? do they have any other medical expertise?
Officially no, doesn't know CPR. She only knows stuff she's heard. She's good at wrapping and dressing wounds because of her hands.
🐈 CAT — does your oc prefer a wide circle of friends or a few close friends?
A few close friends.
🐉 DRAGON — what is your oc's favorite mythical creature?
I feel like it would be so cheesy to say Phoenix lol. Um... besides that, maybe Rusalka (a female water demon in Slavic mythology and folk culture. Basically siren)
🤍 WHITE HEART — what are three of your oc's neutral/questionable traits?
She thinks stealing is okay as long as it's something you can't live without, which... eh 👀 ¯\_(ツ)_/¯
Violence is sometimes necessary for revolutions.
You don't always have to forgive people.
I can't tell if these are questionable or just normal
🍛 CURRY AND RICE — what does your oc's typical dinner look like? do they usually eat dinner?
Side note, we don't really see the Guardians eating in the movies do we? But anyway I feel like she's mostly used to whatever they eat in space/not Earth, but every now and then she tries to get Earth food or stuff like it. She eats later after she's made sure her work is done for today.
😥 SAD BUT RELIEVED FACE — is your oc prone to getting stressed out, or is it easy for them to keep their cool?
Oh, absolutely! Who doesn't have anxiety? (Seriously who because what's your secret? /j) yeah she gets stressed easily which is difficult when you have unpredictable fire powers.
👨👩👧👦 FAMILY WITH MOTHER, FATHER, SON AND DAUGHTER — how many people are in your oc's immediate family? how many people are in your oc's extended family? do they have aunts, uncles, cousins, grandparents, etc? who in their family are they closest with? are they close with their birth family, or do they have a found family?
I think she has a mother, father, and younger sister... She has the two usual sets of grandparents, one aunt on both sides and one uncle on her mother's side. As for cousins she probably has a bunch. Before space and all that, she was close with her mother and slightly her sister. Because of the circumstances, she's closer to her found family, aka the Guardians.
details about ocs!
#eliška hašek#guardians of the galaxy oc#guardians of the galaxy#gotg oc#marvel oc#ocappreciation#allaboutocs#answered asks#pringle answers#practically an xman
6 notes
·
View notes
Text
in defence of autistic characters
Because apparently people are mad about this.
I've heard the phrase "you're making every single character autistic!" and similar phrases way too many times. Mostly from allistic people who don't understand how headcanons work, and are also scared shitless by the very idea that they might have something in common with an autistic person.
Oh gosh, the horror!
"You're making every single character autistic," said in a negative way, is basically a translation of: "That character can't possibly be autistic because I'm not autistic and I like them!"
Neurotypicals often seem to be under the impression that neurodivergent people are some kind of alien species, and that these two groups have nothing whatsoever in common with each other and therefore can't even have the same feelings towards one single fictional character. They've given us our "representation", the Sheldon Coopers and the Rain Mans, and essentially said, "Here you go, enjoy your seven (7) canonically autistic characters, and leave every other character in the world to us." And then have the gall to act surprised when we're not particularly happy with what we've been given. Sure, Sheldon Cooper and Rain Man may technically count as representation, but that doesn't mean they're good, and it doesn't mean that they're enough. We need more than that.
You can make the exact same argument about queer characters or characters of colour. Marginalised groups are often given the bare minimum of representation and told that they should be grateful for it, as if everyone else in the world is bending over backwards to cater to them.
Surprise! That's not what's happening.
Instead we are supplied with the most boring, clichéd, unlikeable, stereotypical characters with very little personality, who are treated with very little respect by the people who literally created them. Why should we be grateful for that? It shouldn't be surprising, really, that we find ourselves feeling better represented by and more connected to characters who may not be specifically written as autistic but who we can relate to anyway, and have been written with respect, nuance and creativity. Real autistic people aren't as one-dimensional as we are in fiction. We've got personalities, interests, relationships and emotional journeys that are just as complex as yours, and we'd like this complexity to be reflected in the characters that are supposed to be for us. So when we don't get that, we end up being drawn to characters that were made for a more general audience.
One argument that I see frequently used to protest against autistic fans' relationship with these characters is: "it'll make people think they're autistic!"
Wow. People use stories as a means of self-discovery and a way to connect with others. Shocking. Truly shocking.
I have numerous problems with this argument. Firstly, it's concerningly close to being anti self-diagnosis. I hate to go off on a rant but the situation calls for it. Self-diagnosis isn't a bad thing. Often what people mean when they say "self-diagnosis" is "faking". These things are very different, and saying that someone is faking is always a risk because unless you know them personally and are aware of their entire medical history, you cannot be certain about something like this. And accusing every other person of faking a disability just because they don't fit your idea of what that disability should look like is not only extremely presumptuous, but perpetuates stereotypes and misconceptions that can be potentially dangerous.
And issues around self-diagnosis are multitude. Sure, it's not exactly ideal that it exists, but it's reality. People can't always access an official diagnosis; the assessment process is often long and exhausting; an official diagnosis can stop people from immigrating to certain countries and can threaten their ability to get jobs and have children; doctors aren't always correct in their diagnoses anyway, especially if the person they're diagnosing is AFAB and/or a person of colour. And even if someone doesn't give themself exactly the correct label, personally I think it's better to be slightly off the mark and still know how to describe your experiences and what accommodations and support you need, than to have no idea what's going on in your head and not know how to cope with your struggles.
Also, self-diagnosis is much, much more than just seeing a person with the same traits as you and thinking, "they're autistic so I must be too". It involves loads and loads of research. Hell, even the build-up to an official diagnosis involves loads of research, especially if you can't access private healthcare and have to lurk at the bottom of a waiting list for months before you get to talk to a doctor. I did at least two years of research, and I have been both self-diagnosed and professionally diagnosed. The official diagnosis was basically just telling me things I already knew about myself.
It's unlikely that so many people are deciding they're autistic just because they relate to a fictional character that it's a world-wide epidemic that needs to be stopped. Finding people we can identify with is important and helps a lot with self-acceptance. And it's a completely natural thing for people who are discovering their own autistic traits to start noticing them in other people too. So why are we surprised when we see that actually happening? And why are we acting like it's some kind of terrible thing? Do I need to remind you about Abed Nadir? The character who so many autistic people loved and connected with that Dan Harmon realised he was autistic because he based the character on himself? Give me one example where a scenario like this has ended badly. Just one.
In conclusion: you're allowed to have things in common with autistic people. And autistic people are allowed to connect with fictional characters. We're not hurting anyone. It's not the end of the world. Keep your hair on. If you're so offended that we see ourselves in not-explicitly-autistic characters instead of the one-dimensional caricatures we've been told are "for us", give us better representation. But it's not like you have a claim over every character that isn't explicitly autistic. It's not a "this is mine so you can't have it" situation. If you're thinking like that, you belong in a preschool with the rest of the toddlers who haven't learnt how to share things.
#autism#the tism#long post#i got passive aggressive with this one#neurotypicals stop acting like neurodivergent people come from a different planet challenge! (impossible)
6 notes
·
View notes
Text
I just finished Husband Material by Alexis Hall and the ending has me in deep thought about marriage. A lot of the discussion centered around the emotional health of marriage but I was actually surprised that there was no mention of the economic health. And now I want to know if it's because I am from the USA (the book is set in London).
Is marriage not as powerful as an institution in other nations as it is in the USA? I know in some it is even more powerful and in my view in a negative way as marriage is used as power over women (Yeah, I know that's how it started out in most nations too. Not here to argue that). I am talking marriage here where two consenting adults go into it deciding they want to be with each other til death do them part.
Here are some benefits in the states for married couples:
Insurance-I could be added to my spouse's health insurance for an extra cost if I didn't have it or no cost (depends on how great your company is). This one I am sure is very US-centric as many other nations have universal healthcare. Anyway, you can imagine why this would be such a big bonus in our eyes.
Tax benefits- If my spouse were to die all estate, property, and assets given to me are tax-free. Joint filing is really helpful when there's a large income disparity (for example when I was in school and my spouse was working full time).
Benefits in general-Disability, social security income (income we receive after age 62 that we've paid over time while working), Veteran's benefits, Medicare (health insurance for the elderly). Basically, any money given to my spouse for a benefit they qualify for I could tap into.
Family leave- Don't get me wrong, I don't know of many companies that would deny you taking leave or calling out sick for a friend or boyfriend/girlfriend/partner. But that's sick hours. I get bereavement leave if it's my spouse (not much but hey it's a benefit).
Medical rights- I can visit my spouse in the hospital. I get say over their medical care if they're incapacitated. I can decide how they are buried.
Consumer stuff- there's a lot of discounted stuff for families
School- This isn't one many people think of but it's why my wedding was a small civil court marriage vs a grand wedding. I could not qualify for financial aid because my parents refused to provide tax documents for aid. Even if they had I think it would have been too high of income but my parents never wanted to help me with school financially (it's a very privileged person who has a family that will pay). To remove my dependent status we decided to get married and that is how I was finally able to obtain my dream of going to college in my twenties without taking out 50K+ in private loans.
Court- conversations between my spouse and I are confidential and I will not be charged with a crime for refusing to share it (exceptions apply)
These are just a few I know about. I am sure there is more but I think you get the gist. Marriage is extremely powerful in the USA and it's a big reason why the LGBTQ+ community fought so hard. I remember reading stories about gay couples adopting one another before it was legal as a workaround to get the inheritance and medical benefits married couples do
There are a lot of workarounds to some of these, especially with wills. However, I can't count how many times someone has been screwed over for not being married to someone and the person dies. So I am really curious to hear from people all over if it's similar or really different?
#of course i will research but that's a lot of countries#marriage#husband material#alexis hall#lgbtq marriage#gay marriage#lesbian marriage#love
6 notes
·
View notes
Text
fantasy including disability and mobility aids and other solutions for disabled characters is always a topic i welcome on this blog. I have several disabled characters myself. I've probably talked about this before, but I'll do it again anyway. here's some solutions I've written for disabled characters:
mobility aids. I just stick with normal ones. forearm crutches, canes, wheelchairs, leg and back braces, prosthetic feet/legs. made of materials accessible to their local areas. occasional use of magic to help more complicated prosthetics function. nothing terribly difficult about this. wheels already exist in most historical settings, so there's nothing wrong with saying that wheelchairs exist in a fantasy. if they have carts, they can have wheeled mobility aids. if straight poles exist, they can have crutches and canes. prosthetics are older than you might think, and not even just the peg leg type. you don't even need magic for that, just skilled craftspeople.
relief for chronic pain. I write these characters using special salves/ointments to help reduce pain. the exact materials you might write in for pain relieving medications depends on your worldbuilding, but I've gone with a diluted mixture of goblin mucus and pixie honey, two things that contain unusual toxins. taken without dilution, they could be dangerous, but skilled medical professionals know how to mix it right with the correct dilution so it's safe to use with a prescribed dosage.
general medical treatments. not only does my worldbuilding have regular ol tried and tested physical medicine and surgery and all, but they also have a form of magic healing. it requires the skills of practiced medical singers, who use their voices to direct magical energy through the patient's soul and body. they are limited by what the body can actually do though. they can't do anything that is too far outside of the natural bodily functions. they can accelerate healing a bit, reduce pain responses, and stabilize vitals. medical singing is a skill that can be learned by cultural tradition or through schooling. pretty much every medical center or small town doctor will have at least one singer, though medical centers prefer to have a full chorus of at least three for every major operation, since the magic only works so long as the singing continues. no changes made are reversed when the singing ends, but it really is a temporary thing. you can sing to help a cut heal, but it's not going to heal itself again later if it gets reopened, you know? in the case of amputation, perhaps a very skilled chorus alongside very skilled surgeons could reattach a severed body part, provided they were able to treat it in time. same as in real life. but don't count on it. they can stabilize someone long enough to prevent death if they're quick, and this has saved a lot of lives, but they can't overcome a truly fatal injury or bring anyone back from the dead. can't make a blind or deaf person stop being that way. even if it happened because of an injury, there's really a limit to how much they can heal someone.
Whgskl. Okay.
PSA to all you fantasy writers because I have just had a truly frustrating twenty minutes talking to someone about this: it’s okay to put mobility aids in your novel and have them just be ordinary.
Like. Super okay.
I don’t give a shit if it’s high fantasy, low fantasy or somewhere between the lovechild of Tolkein meets My Immortal. It’s okay to use mobility devices in your narrative. It’s okay to use the word “wheelchair”. You don’t have to remake the fucking wheel. It’s already been done for you.
And no, it doesn’t detract from the “realism” of your fictional universe in which you get to set the standard for realism. Please don’t try to use that as a reason for not using these things.
There is no reason to lock the disabled people in your narrative into towers because “that’s the way it was”, least of all in your novel about dragons and mermaids and other made up creatures. There is no historical realism here. You are in charge. You get to decide what that means.
Also:

“Depiction of Chinese philosopher Confucius in a wheelchair, dating to ca. 1680. The artist may have been thinking of methods of transport common in his own day.”
“The earliest records of wheeled furniture are an inscription found on a stone slate in China and a child’s bed depicted in a frieze on a Greek vase, both dating between the 6th and 5th century BCE.[2][3][4][5]The first records of wheeled seats being used for transporting disabled people date to three centuries later in China; the Chinese used early wheelbarrows to move people as well as heavy objects. A distinction between the two functions was not made for another several hundred years, around 525 CE, when images of wheeled chairs made specifically to carry people begin to occur in Chinese art.[5]”
“In 1655, Stephan Farffler, a 22 year old paraplegic watchmaker, built the world’s first self-propelling chair on a three-wheel chassis using a system of cranks and cogwheels.[6][3] However, the device had an appearance of a hand bike more than a wheelchair since the design included hand cranks mounted at the front wheel.[2]
The invalid carriage or Bath chair brought the technology into more common use from around 1760.[7]
In 1887, wheelchairs (“rolling chairs”) were introduced to Atlantic City so invalid tourists could rent them to enjoy the Boardwalk. Soon, many healthy tourists also rented the decorated “rolling chairs” and servants to push them as a show of decadence and treatment they could never experience at home.[8]
In 1933 Harry C. Jennings, Sr. and his disabled friend Herbert Everest, both mechanical engineers, invented the first lightweight, steel, folding, portable wheelchair.[9] Everest had previously broken his back in a mining accident. Everest and Jennings saw the business potential of the invention and went on to become the first mass-market manufacturers of wheelchairs. Their “X-brace” design is still in common use, albeit with updated materials and other improvements. The X-brace idea came to Harry from the men’s folding “camp chairs / stools”, rotated 90 degrees, that Harry and Herbert used in the outdoors and at the mines.[citation needed]
“But Joy, how do I describe this contraption in a fantasy setting that wont make it seem out of place?”
“It was a chair on wheels, which Prince FancyPants McElferson propelled forwards using his arms to direct the motion of the chair.”
“It was a chair on wheels, which Prince EvenFancierPants McElferson used to get about, pushed along by one of his companions or one of his many attending servants.”
“But it’s a high realm magical fantas—”
“It was a floating chair, the hum of magical energy keeping it off the ground casting a faint glow against the cobblestones as {CHARACTER} guided it round with expert ease, gliding back and forth.”
“But it’s a stempunk nov—”
“Unlike other wheelchairs he’d seen before, this one appeared to be self propelling, powered by the gasket of steam at the back, and directed by the use of a rudder like toggle in the front.”
Give. Disabled. Characters. In. Fantasy. Novels. Mobility. Aids.
If you can spend 60 pages telling me the history of your world in innate detail down to the formation of how magical rocks were formed, you can god damn write three lines in passing about a wheelchair.
Signed, your editor who doesn’t have time for this ableist fantasy realm shit.
68K notes
·
View notes
Text
212 of 2025
When you have a stuffy nose, what do you do to get rid of it?:
I blow it lol. Actually, I have a stuffy nose for 365 days a year and I kinda got used to it.
When were you last sick? And why?:
I got a mild viral infection from someone at work, last month.
Do you think you eat healthy? Why or why not?:
Well, I don't really have a healthy relationship with food in general.
Have you ever broken anything? What?:
Nope. My bones are ridiculously strong.
How many x-rays have you gotten? What for?:
I lost counts. Chest before surgeries, multiple brain scans, left knee before minor surgery.
Do you get sick easily? Or is your immune system excellent?:
My immune system is good enough.
Are there any diseases/health problems that run in your family? What are they?:
Yeah, Marfan syndrome. I got it from my dad.
Do you work out regularly?:
I have physiotherapy and I go to work by bike.
What do you work on most while exercising?:
Physical strength, but if I lose some weight, I won't be offended.
How often do you drink?:
Never. I quit for safety reasons.
And how often do you smoke?:
I've never even tried.
Do you have asthma? How bad is it?:
I don't.
When did you last go to the doctor’s? Why?:
Yesterday I had an ophthalmologist checkup. I got retina tomography, computer check, ophthalmoscopy and eyeball pressure checkup, I had to read from the screen and from a book. Just a standard yearly checkup for a nearsighted person.
Have you ever gotten surgery? What for?:
Yeah. Minor knee surgery at the age of 19 and major brain surgery when I was 31 because I suffered a stroke followed by brain haemorrhage. Lovely, isn't it.
Did you ever have the chicken pox? How bad were they?:
At the age of 6, all I remember is that I was soooooo itchy and the zinc cream smelled bad lol.
Have you ever gotten sick from being outside too long?:
No. Is it even possible? Not counting heat stroke and things like that, obviously.
What was the worst sickness you’ve gotten all year?:
Last year I got a stomach flu, overall I had a stroke, so yeah.
When you have a headache do you take advil or ibuprofen?:
I don't know what Advil is, and I don't take non-steroid anti-inflammatory meds because they might interact with my epilepsy medication.
Have you ever gotten sun poisoning?:
No. What is sun poisoning anyway?
Do you believe that ‘medicine never actually helps, it’s just all in your head’?:
Pff. Without my meds I would be probably dead long time ago, but yes, it's all in my head. I have a brain disorder, after all.
What was the last pill you took?:
My morning cocktail. Two epilepsy meds, one blood thinner, one antidepressant and one pill for stomach protection. In general, I take Keppra, Lamictal, aspirin, fluoxetine and pantoprazole.
Do you take daily vitamins?:
No. That's what fresh fruit and veggies are for. I don't take anything unless my doctors advise me.
When you’re feeling sick do you eat chicken soup? Does it actually help?:
I hate chicken soup. I'd rather drink milk with honey.
Do you bruise easily?:
Yeah, very much so. I have fragile veins, so I get bruised a lot, and since I take blood thinners, the bruises get bigger than before.
What was your last bruise from? How big was it?:
My left forearm, from hitting the door handle by accident. It's not really big and has already started absorbing.
What is your perfect meal? Is it healthy?:
Rice with veggies and homemade waterzooi, I believe it's a healthy food.
Do you care a lot about your health?:
I do, because what happened to me only made me realise the health (and life in general) is fragile and easy to lose, so I want to care for whatever remnants of health I have.
Honestly, how many times a day do you brush your teeth?:
Twice at least.
Have you had any serious problems with your body? What were they?:
Yeah. Genetic connective tissue disorder brings a lot of complications that affect the whole body.
Overall, do you think you’re pretty healthy?
Yea, with physical disability and neurological shit that has to be controlled by medication. Definitely so.
0 notes
Text
Matrix glitches
Growing up, the whole world tried to get me as close to normal as possible, because if you work very, very, very hard, people may see you as not quite disabled, and grant you a safe job and maybe even a relationship. Yes, I know you're so tired you're clinically depressed (the medical conclusion was: depression is caused by the stress of the disability compounded by sleep deprivation), but push through, it'll be worth it.
But right now I have spent several decades making slightly eccentric choices for the sake of practically that I'm starting to think: this normality you're so hyped about, isn't that a bit crazy?
Spend 45 hours a week at work because the half hour before and right after your shift and the lunch hour do not count, 10 hours a week commuting when it's only humanly possible to be productive for 30 of them? Getting up in the pitch dark to do it anyway? There are options. We have options! Letting our lives be destroyed by climate change even though there is a million renawable energy solutions already invented? Going on vacation in the height of summer which is the only time when it may be pleasant to stay at home? (This doesn't go for cities that get too hot to exist in, but, like, northern Germany? Far better to travel south in April?!) Why is it unsafe to attend a concert or club without ear protection? Why do we think it is OK to pay supermarkets a profit percentage of 70%? 70! None of that is going to anyone but the shareholders!!
Why do we aspire to any of this?
"Of course we don't, but it's the only way society can work!"
Says who?
"The alternatives are all worse!"
No, they're not. Everybody loves 6 hour shifts, 4 day work weeks and working from home. Productivity goes up.
I find it surprising how few people seriously consider alternatives to normal shitty situations. I'm not saying they never do. I'm saying that I'm baffled at how inconvenient normal things are that people seldom question.
Why can't you go clubbing at 9 PM? Really, 9 PM to 2 AM seems like a great time? Why is there an industry climbing Death Fucking Mountain, aka Everest? "Yes, you'll have to step over dead bodies but imagine the flex!"
Why do people pressure you into being in bad relationships with, for women, terrible sex? Why do women spend so much energy in maintaining these terrible relationships once they're in them? Raising unwanted kids who know they're unwanted until such a relationship inevitably breaks down?
It's one thing to be forced into terrible lives to satisfy corporate greed, which is often what it is, it's another thing to tell people to want that while you're in it.
1 note
·
View note
Note
Hello! List 5 things that make you happy, then put this in the ask box for the last 10 people who reblogged something from you! Learn to know your mutual and followers! :3 (don't need to do it if you don't want to)
1. Neurotransmitters working correctly. I can't make my own so I use store bought, it's fine.
2. Cats. My cats. All cats. Kittens. I need a box of kittens, stat.
3. Fanfiction. Ninja Turtles fanfiction. Mikey fanfiction. Mikey angst fanfiction that gives him ADHD and psychic empathy and real emotional intelligence with epic wisdom. I've been doing this for thirty years don't make me stop now, it's how I cope. I love my sunshine child.
4. Chocolate. Preferably just plain milk or dark. Do you have any?
5. Being loved and loving in return. Hugs, give me hugs. It's dopamine, I crave it. Yes, I'm one of those autistics who loves hugs, big tight hugs that can soothe my ADHD crow brain because I get to focus on the shiny that is you rather than the shiny that is oh shit is that the depression shadow monster lurking back there.
-
I don't know who to tag but they're probably other people in the TMNT fandom. I dunno.
This fandom makes me happy. It's not toxic like some people assume, it never was, not in the thirty years I've been involved. It just occasionally has some folks who get brought in by newer iterations who start bullying thus spreading toxicity a little, usually over headcanons where the characters represent marginalized identities, which doesn't make any sense because these characters aren't even human and are animal based mutants specifically turtles which let's face it will do all sorts of bizarre things and don't need to be compared to humans who naturally fuck up each other just because someone doesn't look or behave certain ways.
I prefer corvids. And felines. And vulpines. My first real online fanfic OC* was a mutated calico cat human with my own disabilities and orientations and I made her into Mikey's best friend and then surprise lover and then surprise polyamory, because my writerbrain is Like That a lot.
I have a new OC who is a fennec fox humanoid mutant again same hat as the other and I wish I could eat strawberries all day and bounce around and nibble a person's hand to show I love them. I nibble my own hand when I'm anxious, but I'm autistic ADHD and that's stimming and it's my hand though. Oh, and a human OC, same hat, for another AU. Which reminds me that AU fics are Alternate Universe headcanons and not canon thus why the heckity hells do people threaten each other anyway, it's fantasy and we don't own it, we just play pretend and share it with each other in the hopes that we're not alone in wanting to commiserate all these nifty ideas and theories and squee when we connect and curl up when we get scolded; and the very fact that we get threatened because we have shared fiction ideas that will never work out in the real world is a sad fact I still can't wrap my head around, you would think after my literal twenty years on internet platforms I would understand everything but nah. Even the various official creators and different creators coming from fandom into franchise had the same thoughts and I remember the conversations where they said how confused they were too at fans trying to hurt each other, nobody took it so seriously. So I guess what makes me happy is seeing fans open up to each other, make creative content that resonates, rising above bullying that comes from the bullies' own fear and revulsion and hatred and conflation of ideas that shouldn't be the same but they're probably sheltered and naive anyway so I don't hate back, I was sheltered too and I'm still naive. And it's funny and weird how I easily lose working memory yet random long term storage memories keep surfacing. What makes me happy is that I still have a whole mind, full of stuff, brain all wrinkly with knowledge which makes me think of Jason from The Good Place talking about how smooth brains don't have much knowledge or information, and there goes my crow brain again, I really think I want to nickname ADHD and change it to Cognitive Attentive Tempo Syndrome, I have CATS in my brain, my brain is a Kinetic Cognitive Style room full of cats and there's toys everywhere.
I'm happy my disabled body is still standing and moving after forty years since my birth at 26 weeks back when nobody knew anything, and in a couple of months it'll be 41, and there will be even more information and education and I want to be a test subject, an example, of living fairly well past the life expectancy that they used to assume for cerebral palsy and for autism and for ADHD all separate so imagine it all at once, and the neoteny that comes with each, plus now EDS, and wow I'm giving myself so much serotonin just thinking all this, because there's also major depressive disorder that hell might be cyclothymia I dunno I'll talk to my doctors, and then there's temporal lobe epilepsy that a lot of people just die from at all ages, and I've become such an advocate and activist and alive and forever pro choice and autonomy, and my parents still adore the hell out of each other and me, and I'm teaching them through my advocacy just as they taught me, and I don't think I could ever do public speaking but maybe in a nursing college, a disability advocate speaker? Because there is always everything to learn and relearn and discover and uncover and it's important to be able to change our minds and our thinking and our habits and our coping strategies and our understanding of how things work because nothing is static everything progresses, even cerebral palsy which is surprisingly a thing that while static and progressive still leads to changing neurobiological and neuromuscular updates via neuroplasticity, my physical therapist calls me unique among all his patients, a Variable when there shouldn't be, and it makes me happy that we are discovering things about my neuropsychology and musculoskeletal system that nobody ever considered, and I want to be around to see medical science make all sorts of conclusions that could help others like me.
What makes me happy is learning, connecting, passing on knowledge, being cautiously optimistic in this nihilistic sense of how everything matters in the nothingness where nothing matters intrinsically but each small thing matters on the surface, extrinsic, how it is seen and felt and considered. People forget what existential nihilism supposed to mean. I may not matter in the totality, but I matter in the little bits that count for others like me, and that makes me happy.
#anyway#fanfiction is creative writing#i write fanfiction as a coping mechanism#writing ninja turtles as imaginary coping mechanisms#writing ninja turtles as neurodivergent symbolism#neuropsychology of michelangelo#michelangelo is adhd and autistic like me#donatello is autistic obviously but so is michelangelo#the ninja turtles are autistic#thirty years with the ninja turtles#lifelong tmnt fan here#why i write disabled characters#being disabled means having a very dark sense of humor#why i write mikey with epilepsy#why i write mikey with fibromyalgia#my oc is studying my passion#my oc has my disabilities#angst fic#i have too many headcanons#tmnt mikey reminds me to be optimistic#tmnt mikey has always had adhd#tmnt mikey is naturally psychic#tmnt michelangelo is a very complex character and i love him#being a cryptid#yay dopamine#serotonin boost#projecting my issues onto fictional characters#my fictional characters are all autistic#i love this fandom#fandom grandma
2 notes
·
View notes
Text
Gonna use this acc/site to talk abt body stuff bc I don't rly feel as comfortable anywhere else and it's bothering me a lot, but like. I've gotten to the point where I have to be sitting pretty much my entire shift at work and this progression or whatever has kinda been stressing me out. I can't stand for v long in general w/o numbness, pain, pinching(?) (feels like my feet/ankles are covered in fire ants), swaying, nausea, exhaustion, shit like that. Standing is literally so fucking exhausting, and I can't even deny it or try to push through it at this point. A couple times lately I've tried to stand at the beginning of my shift but it's pretty much instant pain, and it all gets worse until I have to sit after like 10 minutes, usually even sooner and 30 minutes tops if I try to power through. I can still get up and walk around the store when I need to but my legs have been either numb/stiff or strained (something that's been happening in general w/ walking lately, it feels like I pulled the muscles in both my legs or something, and I can't stay balanced) when doing it lately? :') it's super not fun to come to the realization that this isn't just going away, and it seems like it's getting worse, along w/ my hip/knee/ankle pain being worse and more frequent
This all doubly sucks bc the only way I can sit at work is on the counter. I have to use our stepladder to get up to it and off of it, and even when I'm sitting the pain is genuinely excruciating. My back it totally fucked and the pain doesn't go away, it's been giving me headaches, and my legs continuously go numb or get tingly, especially bc I have to have them crossed somehow
This all just sucks rly fucking bad and its really confusing bc I don't know why this is happening? A friend tried to say it's bc I don't get up and move around a lot but that's incredibly untrue. I've been moving more lately than I have in a long time, I'm constantly going up and down stairs, I have to cross the mall I work at often, I'm out and about way more, I'm almost never in bed unless I'm sleeping. I'm so much more active and in some ways it's actually been helpful. I genuinely don't think it would make any sense for the explanation for this shit to be bc I'm "not moving around enough". I know myself and I know what I've been doing even if it doesn't look that way on the outside?? Like I'm fucking moving and doing things fucking constantly, and I'd sit/lay down more if I could. Its hard for me to wanna blame the pain and problems on being more active too tho
This shit is all just so frustrating, and there's not even rly anything I can do. My cane doesn't really help anymore, it hurts my wrist more than anything, and I have no other aid or medication or anything that helps. I fr don't know how to deal w/ this lol
And I'm still sitting here being like "I don't think my pain is enough to warrant calling myself disabled" and "because I'm not diagnosed w/ anything it doesn't count" which is honestly probably bullshit?
Anyways I have like 3 1/2 hours left of this shift and I feel like death lmao
0 notes