#and every time i said ‘hey mom and psychiatrist i don’t like the meds’ they’d fucking ramp them up

[sunflowersolace]

my mom wants to medicate me at all costs

[eponymous-rose]

This isn’t a post I really wanted to make, and I feel kind of shitty making it because parts of it aren’t my story to tell, but not talking about it isn’t working, so hey. Weirdly comforting internet void, please don’t reblog this. 

There’s discussion of mental illness below, but not (directly) firsthand. This is mainly discussion of the impact mental illness is having on my family. Please avoid this post if this is a topic that is likely to cause you pain or discomfort. I think I just need to have it out there.

About a year ago, my brother was diagnosed with Bipolar I. His seeking out a diagnosis was the direct result of the way his mental health was horrifically mismanaged when he lived in the US in his late teens: he was misdiagnosed as schizophrenic and, a few months later, a pharmacy error cut him off anti-psychotics cold turkey. It was absolutely horrible, and he wound up leaving school and moving back in with my parents for a time just to recover. That diagnosis was still on file for him almost a decade later, but recently his job finally had decent enough benefits that he could afford to go in for a barrage of psychiatric testing to rule things out. Bipolar I wound up being the diagnosis that fit.

And I think, for him, there was a sense of relief that came from that initial diagnosis, because a lot of things started to fit. Our immediate family is very close and very loving, but also almost comically controlled and disciplined and logical and isolated. As a kid, he would frequently spiral over something small (I clearly remember being baffled by the fact that my teenage brother would still have full-on tantrums), and my parents and I would just be staring wide-eyed in silence because strong emotion??? what do????? He was comforted and loved, and outright tells us all the time that he loves us and feels really lucky to have had such a supportive family, but I can’t help feeling like we were just... overwhelmed by inertia and kept thinking “this is probably healthier and more normal than the way we repress our emotions”.

I suspected depression was always there, and I’d reached out to him a little about that based on my own experiences, but mania hadn’t even occurred to me, even when he was sending us e-mails at 5 AM about the new opera he stayed up all night writing. It’s incredible what starts to feel like normal when you’re in denial like that.

Regardless, that’s where we were last year: he called us up when I was visiting my parents and we chatted for about an hour about what we all knew about this illness and how he’d be going forward. We all assured him that we loved him a lot and were here for him in whatever way he needed us.

And then, in typical us fashion, we repressed it. My dad yelled at a server out of nowhere for bringing the wrong drink that afternoon; this is the most empathetic man I know, who’s raised his voice maybe three times in my life that I can remember (he called the server over afterwards to apologize and tipped hugely for having to put up with him). My mom’s anxiety spiked. I stopped sleeping well. It took us a few months to realize we were all struggling because we were so worried.

My brother tried a few different meds, none of which had a really strong impact. We all got together for the holidays, and when he arrived, he was furious in a way that felt familiar, like back in high school when he’d be so angry it was like he wasn’t fully in control of his body, wasn’t hearing the things he was saying. It was weirdly a bit of a relief, because I realized then how much he must have been putting on an act before: after high school, he’d always been extremely quiet and positive every single time I talked to him (always for short visits with big chunks in between). He was finally comfortable not being perfect around us. 

The precipitating factor for this particular blow-up was one of his coworkers e-mailing him and asking for one more article even though he was on holidays: dick move, sure, but in no way deserving of flinging his luggage around and teary-voiced ranting at the restaurant we took him to for dinner. We made sure he knew he was being heard and understood, and we sympathized with him, and we set up an hour that evening so he could just sit quietly in his room and work out how he was going to reply to the e-mail. And then things were fine again. He told us stories about how great that same coworker was the next day.

My parents stayed at an airbnb, mainly because my place is a little small for four, and he and I stayed here and just had a wonderful time. I realized how much I’d built things up in my head in a worrying way: this was still my brother, who I love very much, who’s sensitive and feels things deeply and sometimes gets upset, but I knew how to talk to him and I hope I could help him feel better; he certainly helped me feel better. We watched old cartoons and played NBA on the Switch and got milkshakes and ordered in pad thai and had a fantastic time just chilling and talking about whatever crossed our minds. I never once felt nervous or weird around him in the three weeks we were here, and I very clearly remember thinking, “Hey, future self, remember how natural this felt next time you’re catastrophizing: this is one of the few people in the world you’d happily have as a roommate.” We get along so, so well, and some of the new initial tension between him and my parents (that awkward combination of “well-meaning” and “absolutely out of their depths” made for a couple of baffled moments before they hit their stride) just never bled through to our friendship.

It came out during that trip that he’d accrued some pretty hefty credit card debt (overspending being an extremely common thing when you’re in a manic phase... and also in your twenties living alone in a big city when a big chunk of your job involves socializing every night); my parents very calmly and supportively told him they’d help him pay it off on the condition that he cut up those cards and take a serious look at the gaps in his budget. He was more embarrassed than anything, but my mom’s no-nonsense, logical attitude broke through and soon they were happily sitting down and setting up a budget.

He went back home, and things started getting worse. His landlord was an asshole who wouldn’t let him and his roommate control the heating and insisted on controlling it from off-site, so he’d come home to a sweltering apartment every night and couldn’t sleep. He took a sleeping pill to help him get some rest, and that triggered a major depressive episode. Through a series of accidental events (mainly getting stuck on hold with a crisis line for 45 minutes and calling 911 out of desperation), he wound up getting picked up by the cops one night and brought to a mental hospital, which he said wasn’t his intention, but he was glad it happened in the long run (the hospital, not the cops, obvs).

He was only there for one night, after which point they set him up with a social worker and amazing outpatient care, including psychiatrist visits every week and a new set of mood stabilizing meds, and I cannot stress enough that this would have been a much shorter story if he’d lived in the US. With my parents’ help, he wrote a letter to his landlord threatening to go to the city if he didn’t fix the heating situation, and his landlord caved (thank goodness, because there’s no way he’d be able to pay rent anywhere else in that city). Things stabilized, a little.

Now, though, it looks like he may lose his job. He disclosed his illness right after the diagnosis, and after some initial missteps, they started putting in effort to work with him on it---in my brother’s e-mails to us, the HR person went from an obnoxious jerk to a determined ally, if only to avoid liability issues. But on his new meds, while he feels great in the mornings, he’s exhausted by the afternoon, and he often has minor depressive episodes in the evenings, so clearly the dose isn’t right yet. He’s up to missing a couple days of work a week, and they’re clearly trying to lean on him to switch to contract work so they can let him go without running afoul of legal protections. It doesn’t help that what started as a wide-open, exciting startup (he still says the first eight months were his dream job) has turned into an ad revenue-grabbing mechanism where all his colleagues are white homophobic tech bros who ignore him at best and resent his “special treatment” at worst.

A lot of his friends happened to move away around the time of his diagnosis as well, and now a lot of his remaining friends are distancing themselves. A common factor in his last few jobs toward the end was people telling him, “You just looked miserable all the time,” and it sounds like it’s starting to impact his personal relationships. His time online is spent in the deepest of “cancel culture” discussion, where being mostly good but fucking up once is almost more reprehensible than being wholly awful (he quit Facebook for a while, but wound up reopening his account to let people know about his hospitalization... and now he’s just back there again). He and his boyfriend broke up. His friend who initially suggested he apply for this job now ignores him at work.

It’s that awful combo of “people are being assholes about my illness” and “my illness makes it hard to believe that someone who initially reacts poorly will ever come around, so I’d better shove them away first”.

My parents are understandably so worried for him. They’re going out to visit him for three weeks starting tomorrow, staying at an airbnb nearby and occupying themselves with their own retirement pursuits so he can come visit if he likes, or ignore them if he needs space. They’ve told him that, if he’d like, he’s welcome to come stay with them for a few months (they live on the other side of the country); they’ll cover his half of the rent while he’s gone, and he’ll have a bit of an opportunity to just heal, considering he went straight back to work the day after his hospitalization. They’ll also help him strategize about whether he wants to switch to part-time on his current job and see about picking something else up. I suggested they bring up the possibility of going back for a master’s---I know it’s an absolute minefield for mental health, but in his particular case, a flexible schedule plus project-based creative work with specific deadlines has always been a pretty good fit, and he excels academically.

They’re also preparing for the possibility of moving him out to stay with them on a more permanent basis, but they obviously don’t want to disrupt his care (his current appointments are at the best mental health facilities in the country). They can’t afford to live in his city on their pension, but they’re also talking about giving up their retirement condo and buying out his roommate’s half of the rent, and just being there to help him out when he needs it. I don’t think he’d go for that unless things really deteriorated quickly, but a few months away from the city definitely sounds like what he needs.

And I’m just... so angry. I’m pissed off that so much of the stress weighing on him (and so many others!) right now comes from him being nearly 30, in debt, without a hint of a way to start saving for retirement, with these little one- or two-year gig jobs with two-hour commutes full of toxic people stretching out into eternity. I’m pissed off that this awful disease has made it so my parents probably aren’t in a place where they’re going to be able to do their big retirement trip, and they may be giving up their idyllic retired life for good. I’m angry with myself for that little burrowing resentment that, because my parents are older, I could wind up a financial, medical, and emotional caretaker for them and/or my brother at a moment’s notice, and I don’t feel ready to take all of that on. I’ll never feel ready.

(As a bonus, bipolar I has a genetic component, and now I’m thinking back to that one time I stayed up all night determined to save the world by learning all of biology in eight hours, or the time when as a grown-ass adult I started crying like a ten-year-old because I felt left out from an activity friends were doing, and I’m thinking, is this it? And then it’s not those extremes, it’s every normal human emotion that was previously muted by my own situational depression years ago. Is this it?)

I feel so, so entitled to the life we should have had as a family, and so frustrated at all these external factors that’ve brought it crashing down. More than anything, I’m scared for my little brother. I know bipolar isn’t something that magically disappears, and that things are likely to get worse, but I want those external stressors to go away and just leave him alone for half a minute so he can heal and find the right combination of meds and maybe, maybe get to think about thriving rather than just surviving. I’m so grateful to my parents for finding the right things to do and say to help him recover. And I know that, if something goes horribly wrong, I can try to fill those shoes.

I’m still losing sleep, but only every now and then. People at work occasionally comment that I don’t look so good, but that’s much rarer than a couple months ago, and the people I’ve confided in are very kind and check in on me even when things seem to be going well.

After the move this fall, I’m going to find someone to talk to professionally about this. In the meantime, just typing this all out makes me feel a bit better. I am finding better ways to cope; I had to mute him on social media because my overwhelming tendency to overthink his posts was very dangerous (turns out that famous self-deprecating millennial sense of humor is terrifying when you’re trying to work out if someone’s in danger). I have a generally positive attitude about this, and I can now usually catch myself when I’m starting to spiral. I send my brother goofy links, and he sends me funny stuff in return. I’m going for runs and eating better and playing video games and hanging out with friends... 

... and I’m genuinely very happy a majority of the time (not just content, but happy), which wasn’t true even a couple months ago.

I’m scared and angry and coming to grips with it being okay to be both of those things, as long as I’m also supportive and loving. This is my little brother. This is my family. They’re the best. 

And all we can do is take it one day at a time.