#Dialysis patient

[jj-lynn21]

I just saw a news report on Dialysis that made it look like death sentence. It is not. I am currently on Dialysis and have been on and off my entire life. I started Dialysis when I was 9. The biggest thing is to follow the special diet they put you on.

There is fluid restrictions, no dairy, you can not eat anything with high phosphorus or hight potassium. I cut out most processed foods. I drink about 25ozes a day. This is because your healthy kidneys get rid of all that & the Dialysis machine can only pull off a small amount without taxing your body.

I drive myself to & from dialysis 3 days a week. I am on the machine for 3 hours. I was on 6 hours when I started, but because I am good at my dialysis diet my time was lowered.

It is a long wait for a transplant. I received a kidney from my dad when I was 10 , so I was only on Dialysis a year the first time. I went to the dentist before Jr high high and he was going to fix my teeth. I have no enamel due to medications. I had a tiny abscess that went to kidney & killed it within 24 hours.

I was on Dialysis 10 years after that before getting another kidney that lasted 23 years. By the way I went to school after or before Dialysis during that time. I graduated high school & started college. I think of Dialysis as more of an inconvenience than anything else. I sit there & watch TV. I would probably be doing that at home.

Dialysis is not painful. I have a great fistula that they do stick needles in but the skin is numb so you don't really feel it. I just relax and let it clean my blood.

Now if you choose not to follow the special diet you could have issues with high potassium which gives you terrible charlie horse cramps. I have seen people get them bad so for me it is worth giving up French fries & cheese.

I still take my dog for walks even right when I get home from dialysis. I seem to get a burst of energy right after. I can go on vacations, & just set up appointments at a dialysis center closest to where I am vacationing. If done right it makes you feel better.

The end goal is eventually another kidney transplant, or if I am really lucky I can try out the artificial kidney they are working on. That's my dream. But until that time dialysis is not a death sentence. It is just a way of life. To stay slive.

[yorkshire-rockchick]

Things I can do myself on dialysis:

- weigh myself

- line the machine

- prep the lines so they are ready to use

- prep my needles

- do my blood pressure

- do the maths to work out how much fluid needs to be taken off

And today I got shown how to sort my heparin so I can start to do that myself soon

[the-hilda-librarians-wife]

I headcanon Kaisa as being just slightly hypotensive. I’m thinking normal blood pressure around 11/7. Most importantly, I headcanon that occasionally it may drop and she knows, but doesn’t do anything about it.

So sometimes she’ll be in the library, and will be on her feet for too long, or maybe it’ll be too hot and she hasn’t let go of her cape, or maybe she even has been so caught up in her job that she hasn’t eaten or drink water in three hours. And she’ll begin sweating, and ignore it. Then she’ll feel lightheaded, and think it’s fine. And then her eyesight will get hazy, and she’ll think ‘nah, I can take it’. Then her hearing will sizzle and her mind will spin and she’ll still do nothing. And if someone’s nearby they’ll begin noticing she’s pale and unresponsive, and that’s because she’s trying to not fall down and wondering why she’s seeing dark spots. But mostly, that probably happens when she’s alone, so when she refuses to sit down and drink water/eat/lie down, she’ll just faint for a bit (on the hardwood floor. Ouch.) and get back within a couple of seconds (and just go about her day like nothing happened)

Anyway the place I’m trying to get to is: imagine Kaisa is hanging out with the Hilda gang for some reason, and at some point they notice the blood draining from her face and her eyes going unfocused and then she just drops unconscious on the floor with no prior warning. Imagine the chaos. Imagine Hilda about to slap her and being held back by David while Frida tries to remember the cpr training they had in the Sparrow Scouts. Imagine Kaisa waking back up suddenly and scaring the living shit out of them

Kaisa already has such undead vampire vibes, I just think that’d be hilarious 😭😭

[nickmpreg]

Kari it's 3 AM and I just got pain meds and since I for some reason chickened out asking my actual nurse I'm curious: what made you decide to go into nursing?

if we’re being wholeheartedly honest the job security :pensive: but the longer and actual reason is that my dad is a nurse and healthcare ( but nursing especially ) is such a versatile field that you can go to just about anything in and still make a pretty good salary and with enough experience do travel nursing which pays more and allows for you to travel , all expenses paid , etc etc . it’s literally like the hardest thing ive ever done and i think going to nursing school is going to be worse ( i don’t think it i know it will ) but it’s a very rewarding field

[starfallkaz]

how am I meant to think about the pathology of chronic kidney disease when Ali Hazelwood has given me another stem girlie romance 😭 THIS IS NOT CONDUCIVE TO MY CAREER IN STEM HELPPPP

[ley-med]

Hit my head on the window panel hard enough to draw blood, then had an unfortunate meeting with the table's leg and slightly luxated my knee, and also annihilated a few glass ampules by scattering them on the floor, today's shift was just splendid

[yvmoveon]

.

[myriad--starlings]

feeling very my 'illnesses are not terminal but each individually gives me a worse quality of life than various terminal illnesses' today.

[iservehealthcare]

Home dialysis offers patients an array of benefits that significantly enhance comfort and convenience, making it an increasingly popular choice among individuals. By opting for home dialysis, patients can experience a better quality of life while receiving the care they need in a familiar environment. Here are the key benefits of choosing home dialysis:

[thedataproject]

Using Remote Patient Monitoring Software for Dialysis Patients

Remote Patient Monitoring (RPM) software can be a transformative tool for managing dialysis patients, offering real-time tracking of critical health data, and improving patient outcomes. Dialysis patients, who often face chronic kidney disease (CKD) or end-stage renal disease (ESRD), require frequent monitoring of vital parameters such as blood pressure, fluid levels, heart rate, and electrolyte balance. RPM software facilitates continuous, remote monitoring, allowing healthcare providers to intervene quickly when necessary.

Read for more info at: https://www.finddialysiscenters.com/article/rpm-software-dialysis

[blessedhealthcarellc]

Dialysis patients require consistent, reliable transportation to attend their regular treatments. Ensuring the highest safety standards during transit is crucial for their well-being. Ambulatory transport services play a vital role in this process, offering a safe and comfortable option for patients who can walk but need assistance.

[yorkshire-rockchick]

First night on night dialysis, 7 hours of doing absolutely nothing whilst pretending to sleep

[ana-bananya]

Some Resources for Sudan

On the ground efforts to support

‼️ indicates that a fundraiser has experienced a decrease in donations or has been without donations for some time. Last progress update done on Dec 8th 2024

Sudanese American physicians association

Sudanese American Medical Association

Doctors Without Borders (MSF)

Save the Children

Sudan Solidarity Collective

Sudan diaspora networks Sudan benefit fundraiser

Darfur Women Action Group

Fight Hunger in Sudan: The Khartoum Kitchen appeal

Nas Al Sudan

Twitter thread with actions that can be taken to support Sudan

Sadeia

Help Sudan- Sudan Relief Fund

Relief and Rehabilitation for Disabilities Support (HRRDS)

Sara's (Bsonblast) link tree for Sudan

One Million Sustainable Pads Campaign (€50,629/€200,000 - VERY low on funds) ‼️

Shelter and Supplies for Sudanese Women ($13,884/$15,000)

Period Care for Sudan ($870/$10,000)‼️

Sunduq Al Sudan - support grassroots organizations in Sudan

Save El Geneina initiative

Food Baskets in Sudan

Takaful

Action Against Hunger

Mutual Aim: All Safe Hands on Deck ($28,371/$220,000 - VERY low on funds)‼️

Feed Sudanese Refugees facing hunger in Uganda ($16,406/$25,000) ‼️

Relief for Al Jazirah Refugees ($7,455/$150,00 - VERY low on funds)‼️

Support South Sudanese Evacuation from Sudan ($12,690/$100,000 - VERY low on funds)‼️

Help dialysis patients in Sudan

Sudan Emergency Appeal

Medical and sanitary supplies to support women & children ($35/$3,000 CAD - VERY low on funds)

Sudan Children's Cancer Organization

Support for refugees in Cairo ($9,685/$25,000 - VERY low on funds)‼️

Famine Relief ($10,578/$15,000)‼️

Blankets and Supplies for Kordofan ($7,688/$16,000)‼️

Sudanese families that need your support

Majority of these campaigns have been shared by members of the Sudanese community who vouch for their legitimacy. Yousif's family is the only one I am currently unaware of, but please take the time to read his gfm and go over the evidence the organizer provided of their communication.

Help house a homeless disabled Sudani in London (£4,368/£4,500)‼️

Emergency Fund for Sudanese Family ($24,271 CAD/$25,000 CAD) ‼️

Help Sajida and her family evacuate from Sudan ($37,953 CAD/$50,000 CAD) ‼️

Help Eman and her family evacuate (CHF37,325/CHF50,000) ‼️

Help Randa's family evacuate Sudan (€29,994/€35,000) ‼️

Support Sakina's Family's Journey to Safety ($10,055/$10,000)

Help Aalaa evacuate and get treatment for her mother ($38,298/$50,000)‼️

Help Abeer's Family Evacuate ($4,210/$75,000 CAD - VERY low on funds)‼️

Save Omiama's eyesight (€5,412/€14,725) ‼️

Help Abudjana rebuild after war (£3,299/£5,000) ‼️

Help a family of 13 evacuate Sudan ($4,795/$20,000 - VERY low on funds) ‼️

Help Refugee’s escape Sudan Conflict ($15,448CAD/$31,000 CAD) ‼️

Safe Passage ممر آمن- Help a mom and her kids escape war ($6,405 CAD/$7,000 CAD) ‼️

Help Medical Students in Sudan (€1,993/€350,000 - VERY low on funds) ‼️

Help Mujtaba's Family Escape the war in Sudan ($6,696/$18,527 - VERY low on funds) ‼️

Help Yumna's Family Escape War in Sudan - $5,066/$5,000 raised

Help Mehad's Family Fly to Hope ($4,274/$5,000) ‼️

Help Sudanese Families escape from war (€23,827/€50,000 - VERY low on funds)

Help ThomaSerena recover from war (€2,430/€5,000 - VERY low on funds) ‼️

Help Asjad and her Family Escape War in Sudan ($31,076/$33,000)

Emergency aid for Ahmeds family to escape warzone in Sudan (£9,244 /£20,000 - VERY low on funds) ‼️

Help Rama's Family Flee Sudan’s War (£3,033/£10,000 - VERY low on funds) ‼️

Help Isra Continue her Education in Egypt ($3,669/$9,100 AUD - VERY low on funds) ‼️

Help Madarik and Tibyan continue their education ($11,844/$18,000 AUD)‼️

Support financial aid for Gezira medical students in Sudan (£1,352/£2,000) ‼️

Asala's family - evacuation and medical treatment ($5,313/$30,000 - VERY low on funds) ‼️

Help a Sudanese family flee war and afford medical funds (€3,341/€13,000 - VERY low on funds) ‼️

Help Salma's family evacuate (£3,760/£6,000) ‼️

Help Mohammad Esa reunite his family (£1,969/£3,700 - VERY low on funds) ‼️

Help two medical students evacuate Sudan with their family ($1,104/$45,000 - VERY low on funds) ‼️

Help Nour Rebuild Her Life and Career (£2,692/£7,000 - VERY low on funds) ‼️

Help a displaced family escape Sudan Genocide (£14,857/£30,000 - VERY low on funds) ‼️

Support Muhammad's Artistic Journey Amid Sudan's Turmoil ($3,494/$25,000 - VERY low on funds) ‼️

Support Alaa, her husband, and their children (£4,651/£5,000) ‼️

Help Yousif and his family evacuate ($235/$15,000 - VERY low on funds) ‼️*not officially vetted as far as I'm aware, but the organizer provided proof of her communications with Yousif you can find posted in the updates of the gfm. please go over the information for yourself

Hope for Mona & siblings to survive the Sudan war ($36,790/$45,000)‼️

Help An Artist Stuck in Sudanese War zone ($3,691/$15,000)‼️

Support Al Afya's Road to Recovery ($4,149/$60,000)‼️

Aid Marafi in Escaping War and Finding Hope ($155/$5,000)‼️

Evacuation from Khartoum to Cairo ($286/$15,500)‼️

Help Abdulrahman Reunite with his Family ($2,800/$5,000)‼️

Awab's Family ($2,380/$10,000)‼️

Zubeyda Adam and family (£1,929/£5,000)‼️

Help Hala evacuate and pursue her education (€9,245/33,000)‼️

Ahmed's family ($1,740/$5,000)‼️

Raghad's family ($19,244/$25,000 CAD)‼️

Help Roua and her children evacuate (€5,585/10,000)‼️

Habboba's family ($10,101/$11,000)

Accounts to follow

bsonblast (on twitter, insta, and tiktok)

Sudan.updates (insta)

Red_maat (insta)

tartola0123 (insta)

Sudan.updates (insta)

baobaboperation (insta)

Sdn.world (insta and twitter)

modathirzainalabdeen (insta and tiktok)

Londonforsudan (Twitter and insta. If you are in the London area, they also organize and post about protests you can attend)

If you feel uneducated about Sudan and are unsure where to start researching, @/red_maat' has put together a tool kit you can reference. The @/baobaboperation also has a brief starting guide.

Contact your government officials

Canada (scroll to find "CANADA email MP, Foreign Affairs and Development")

United States

UK

Sign and share the Hands Off Sudan petition to call on global leaders and agencies to hold the UAE accountable and protect Sudanese civilians

[safermedicaltransport]

Airport Transportation Service - Call Us 714-912-8300

[lbeth1950]

Can You Give Me Some Clothes?

I had the privilege of being an acute dialysis nurse for more than twenty years. I cared for many of them from the time they initiated care and saw them on follow up admissions. We exchanged stories about our lives, families, and even exchanged pet stories. I loved them, even if they were difficult, and many(but not all) loved me. One day, one of my favorites, Mrs. Smith, was in the hospital,…

[vascularhyd12]

Understanding Brain Stroke: Causes, Symptoms, and Treatment Options

Brain stroke, also known as a cerebrovascular accident (CVA), is a severe medical condition that occurs when the blood supply to part of the brain is interrupted or reduced, depriving brain tissue of oxygen and nutrients. Early intervention is crucial to minimize brain damage and improve recovery outcomes. This blog will explore the main causes of brain stroke, its warning signs, and available treatment options, with a focus on the Best Hospital for Brain Stroke Treatment in Hyderabad.