#CITR radio

[tumblinginthearchives]

This combination of wallpaper and death

to me

is the most beautiful

[mensesmixtape]

Rooms on Parts unknown! FINALLY 

[autopsiaband]

AutopsiA LIVE WGT, 22:30 MAY 20. 2024 KUPPELHALLE, LEIPZIG

[iammadelinepod]

While I have been on Tumblr for at least a decade as a nerd girl/nerdfighter I haven't been sharing what's been going on with me in a larger sense. I'm not sure if I'll connect up my personal Tumblr with this(so it won't look like I have followed you back but I probably have), I'll have to have a think about that as my personal Tumblr has been an oasis as I've been fighting to stay alive against ridiculous and seeming unsurmountable odds. I sum it up here in a article I wrote for the disability Alliance of British Columbia last fall

https://disabilityalliancebc.org/article-im-fighting-to-live-but/

Full story in the I am Madeline podcast

https://anchor.fm/i-am-madeline

As I did in the Twitter account in their pinned tweet I will include all of the media articles that have been done so far as well as the Reddit thread that included much kindness and a lot of stuff that made me want to bang my head against a wall. Also some articles about post viral syndrome and me particularly long covid as those are the new additions to the post viral syndrome community. I don't have a lot of energy probably because of my disease but because of the dyslexia textual communication can be quite difficult for me so I'm not going to try to edit the file that I kept the media links and the general medical articles and. So I hope you can make sense of it and that all of the links still work.

I think / hope that I should be able to pin this to the top of this tumblr

In no particular order here is the link dump

Gfm

https://gofund.me/cff39173

https://www.gofundme.com/f/MadelinesMiracle?utm_medium=copy_link&utm_source=customer&utm_campaign=p_lico+share-sheet

Citr ep April 6 2023

https://www.citr.ca/radio/all-access-pass/episode/20230406/

Petition

https://www.meaction.net/2022/03/01/you-can-still-help-madeline/

https://dir.gov.bc.ca/gtds.cgi?show=Branch&organizationCode=HLTH&organizationalUnitCode=MH

Dabc Nov 2022

Blog

https://disabilityalliancebc.org/article-im-fighting-to-live-but/

Pdf mag

https://disabilityalliancebc.org/transitionfallwinter22/

Tyee November 14 2022

https://thetyee.ca/News/2022/11/14/Chronically-Ill-Dying-Poverty/

Chatelaine

https://www.chatelaine.com/health/maid-assisted-death-poverty/

Podcast

https://anchor.fm/i-am-madeline/episodes/Ep--1---How-do-you-solve-a-problem-e110jks

https://anchor.fm/i-am-madeline

(https://www.iammadeline.com/)

City tv news Hana Mae change of by-line

https://vancouver.citynews.ca/2020/07/27/vancouver-woman-disabilities-medically-assisted-dying/

Media

News 11:30

https://www.citynews1130.com/2020/07/27/vancouver-woman-disabilities-medically-assisted-dying/

https://www.citynews1130.com/2020/11/24/vancouver-woman-me-covid-19/

Tyee article

https://thetyee.ca/News/2021/07/05/I-Should-Not-Have-To-Beg-For-My-Life/

Canada land podcast

https://www.canadaland.com/madeline-medical-assistance-in-dying-priced-out-of-life/

https://www.canadaland.com/podcast/723-the-high-cost-of-living/

Update

https://www.canadaland.com/podcast/741-updates-on-pretendians-porn-and-being-priced-out-of-life/

Millions missing simulcast

https://twitter.com/millionspod/status/1450838974864445440?t=tiE3pZtRLB9LiRVXIg4u8g&s=19

My Op-ed

https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/

https://ipolitics.ca/2021/11/15/the-disabled-are-choosing-to-die-because-they-cant-afford-to-live/

Reddit post about op-ed

https://www.reddit.com/r/onguardforthee/comments/qul8c3/the_disabled_are_choosing_to_die_because_they/

are live on QUOI Media’s website.

https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/

https://quoimedia.com/des-canadiennes-et-canadiens-en-situation-de-handicap-comme-moi-choisissent-de-mourir-parce-quils-nont-pas-les-moyens-de-vivre/

INFO

Gender bias in research

https://pubmed.ncbi.nlm.nih.gov/33232627/

Costs two to three times more to be disabled

https://pubmed.ncbi.nlm.nih.gov/31026771/ https://pubmed.ncbi.nlm.nih.gov/31026771/

Mayo

https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

Bateman Horne PDF

https://twitter.com/BatemanHorne/status/1462907081686540290?t=MzYkyjZ_-QYAH4_td5zUFA&s=19

NICE COMM

https://www.nice.org.uk/news/article/nice-me-cfs-guideline-outlines-steps-for-better-diagnosis-and-management

Twitter link to various ME studies

https://twitter.com/CPrudhommeAQEM/status/1500854349442002951?t=U-DZG-DLNUqYVkz-Ygoewg&s=19

Pdf of studies

https://www.me-international.org/published-me-icc-studies.html

CDC

https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/etiology-pathophysiology.html

Disprove cbt

https://journals.sagepub.com/doi/full/10.1177/2055102919838907

Blog reply to above

https://blogs.bmj.com/medical-humanities/2021/03/23/the-concept-of-illness-without-disease-impedes-understanding-of-chronic-fatigue-syndrome-a-response-to-sharpe-and-greco/

Physio

https://www.physio-pedia.com/Myalgic_Encephalomyelitis_or_Chronic_Fatigue_Syndrome

Me from covid

https://meassociation.org.uk/2020/05/me-awareness-columbia-university-will-there-be-a-post-covid-19-form-of-me-cfs-26-may-2020/

Australia me study small town

https://www.bmj.com/content/333/7568/575

Percentage of doctors you understand me

https://doctorswith.me/poor-knowledge-of-me-cfs-among-doctors-puts-patients-at-risk-of-harm/

https://doctorswith.me/poor-knowledge-of-me-cfs-among-doctors-puts-patients-at-risk-of-harm/

https://www.hsph.harvard.edu/news/press-releases/epstein-barr-virus-may-be-leading-cause-of-multiple-sclerosis/

https://pubmed.ncbi.nlm.nih.gov/33232627/ gender disparity in research money and allocation by NIH

https://onlinelibrary.wiley.com/doi/full/10.1111/1753-6405.13139

Wiley Online Library

Australian and New Zealand Journal of Public Health

Volume 45, Issue 5 p. 424-426

Commentary

Open Access

Sex and gender gaps in medicine and the androcentric history of medical research

Lea Merone, Komla Tsey, Darren Russell, Cate Nagle

First published: 28 June 2021

Interrelationship between myalgic encephalomyelitis and long covid

https://www.science.org/doi/10.1126/science.abo1261?utm_campaign=SciMag&utm_source=Social&utm_medium=Twitter

Brain fog https://www.theatlantic.com/health/archive/2022/09/long-covid-brain-fog-symptom-executive-function/671393/

https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/

Forbes

https://www.forbes.com/sites/roberthart/2021/07/15/long-covid-has-over-200-symptoms-and-leaves-1-in-5-unable-to-work-study-finds/?sh=1f11766e5eb2

herpes simplex including Epstein-Barr latency and damage to genome tissue study sample including autopsies

https://www.frontiersin.org/articles/10.3389/fmolb.2022.1044964/abstract

https://twitter.com/loscharlos/status/1612196453258256384?t=C1UGoqR72JjmBeVRreJ41A&s=09

What #LongCovid continues to experience is a social medical phenomena know as the **Semmelweis Reflex** —

“the metaphor for the reflex-like tendency to reject new evidence or new knowledge because it contradicts established norms, beliefs, or paradigms.” 🧵

I was introduced to this term while reading @meghanor excellent, essential book “Invisible Kingdom”

As she shared, it was named after the doctor who said physicians assisting with childbirth should wash their hands to reduce maternal mortality & was exiled from the profession

https://www.scientificamerican.com/article/a-tsunami-of-disability-is-coming-as-a-result-of-lsquo-long-covid-rsquo/

https://fortune.com/well/2023/05/23/covid-deaths-one-person-every-four-minutes-vaccination-rates/

Protect BC

https://protectbc.ca/public-healt-scandal-failure-to-warn/

[lhmprradio]

Zeros and Ones by Danny Echo #Pop #Rock

Taking the name from one of his many guitar fx pedals Danny Echo combines brit-pop melodies, classic rock vocals with the alt-pop excitement of a Spacex launch!!

With life spinning out of control on a U.K. tour with The Ryecatchers, Danny decided it was time for a change…

Returning to Vancouver, Danny realized the need to continue the rainy city’s musical heritage. After being awarded money from Vancouver’s PeakFM as part of the Peak Performance Project he and fellow Ryecatcher Mark Christopher headed to the iconic Mushroom studios.

They recorded their song “Tomorrow Today” with Jeff Dawson (Daniel Powter) and got it mixed by Mike Fraser (ACDC, Mother Mother) at another historic studio, Bryan Adams’ Warehouse. The song gained some notoriety getting spins on Vancouver radio stations The Peak-FM, 99.3 The Fox, CITR, CO-OP, CBC and Cariboo’s' GOAT FM, with the video and music streaming everywhere.

Learn more at www.lhmprradio.com

[kitchenlegrecords]

Happy Summer Solstice! #SaikoRyusui songs from her debut solo #lelarge has been played on #radioravioli WFMU and on #duncandonuts on CITR 101.9FM & Discorder Magazine !

https://www.citr.ca/radio/duncans-donuts/episode/20230615/

https://wfmu.org/playlists/shows/128486

[nariellamusic]

https://www.citr.ca/2023/01/14/24-hours-of-radio-art-2023-programming-schedule-podcasts-104085/

find - Le Midi

[djbmello]

Happy National DJ day! Jan 20th! I started off as a bedroom & then street DJ. Mixtapes were the original platform but then radio! Clubs, Sports Team, Tours, etc. Blessed to have had a long run as a DJ 😳🤯! #godj #djbmello #nationaldjday #kcmu #kexp #kugs #kgrg #kube #kxjm #kaos #citr #siriusxm #kpez #mixtapes #seahawks #huskies #storm #mariners https://www.instagram.com/p/CnpEbywrUYk/?igshid=NGJjMDIxMWI=

[chordelia]

I manage our charts in the music curation department of our radio station and we keep getting submissions from them, and these guys are off the wall. Go local bands

- the rolling playlist

[tumblinginthearchives]

One of the things I love about Discorder Magazine is the taglines, which are different for every issue (shoutout Discorder staff you are amazing). I believe this is the first issue that ever did that.

[mensesmixtape]

Live on Thunderbird Radio Hell Episode December 8, 2022. 

Rooms - new songs Don’t be yourself 

Host Ben Lai 

CITR - UBC 

[rocketfromrussia]

Episode #237

Hello Hello Hello!

The first block is really great! Some new killer garage pop punk tunes by Together Pangea (Newhall, CA, USA), Cheap Whine, New Swears (both Ottawa, ON, Canada) and Needles//Pins (Vancouver, BC, Canada).

Second block is partypartyafterparty! New tracks by Gogol Bordello (New York, NY, USA), Paddy And The Rats (Miskolc, Hungary), Dubioza Kolektiv (Zenica, Bosnia and Herzegovina), BRUTTO (Minsk, Belarus) and Ленинград (Saint Petersburg, Russia).

And then I played tracks by Worriers, Against Me! and Hunx And His Punx in preparation for the Pride weekend!

BAD RELIGION - Generator [Generator] TOGETHER PANGEA - Better Find Out [Bulls and Roosters] CHEAP WHINE - Fall [Cheap Whine] NEW SWEARS - Warm Bodies [And The Magic Of Horses] NEEDLES//PINS - Boil [Good Night, Tomorrow] GOGOL BORDELLO - Saboteur Blues [Seekers and Finders] PADDY AND THE RATS - Join The Riot [Riot City Outlaws] DUBIOZA KOLEKTIV - Himna Generacije [Himna Generacije] BRUTTO - Рокі [Рокі] ЛЕНИНГРАД - Экстаз [Экстаз] WORRIERS - They/Them/Theirs [Imaginary Life] AGAINST ME! - Black Me Out [Transgender Dysphoria Blues] HUNX AND HIS PUNX - Can We Get Together? [Too Young To Be In Love] THE FLATLINERS - Fireball [The Songs of Tony Sly: A Tribute]

download / listen online

[gayenerd]

Here, have a story from a member of Brent’s TV about Billie Joe’s first stalker lmao

John Quittner (Brents TV) : “We did one proper tour, in the winter of 1990-91, and Brian wouldn't come, which was a great shame because he embodied a lot of the spirit of that band. But he was a true counterculture kind of guy, who loved the pickup shows in Laundromats but couldn't see the point of playing clubs, or of playing with Green Day, who even in pre-stardom days were slightly slick and had Al on drums. We enlisted our buddy Morgan Hunt, a really superb punk drummer who played a full drum set, and it made our rinky-dink sound kind of beefy. It was really unlike the previous Brents TV thing, but in a way it was really great. We really did not know what we were doing. Six people in my 1978 Toyota Corolla liftback with a little fez on top that held what little equipment we could bring. Thank god Aaron Elliott came as our roadie. Green Day cancelled, but surprised us by showing up for the second half of the tour, screwing up most of the shows, but Aaron wheeled & dealed until we were playing somewhere every night anyway. By far the most memorable show of that tour had to be a party at a house at the Evergreen State College in Olympia, with the house packed and the floor bouncing up and down until you really thought it would give out, John being carried aloft by the crowd throughout the set, amps on fire. This was Green Day, Brents TV, Fitz of Depression, Giant Henry – who became Unwound later - and Witchy Poo. That was how I fell in love with Olympia. I moved there later and still live there. Kurt Cobain was there too, but as with Green Day it was pre-showbiz era and didn't seem especially noteworthy. That tour took place during my first attempt at vegetarianism. I was three weeks into that, but on the first night of the tour in Eugene, Oregon I got stoned with Virgil and we ate raw Spam out of the can with a spoon. It was also my first trip over the border into Canada. During an interview with Nardwuar on CITR radio in Vancouver, a female caller insisted upon a date with Billie and came to the show in Vancouver and the show in Victoria and somehow became ever-present. I remember her belief that she and Billie needed to record a duet of "Blackbird." She did find us a place to stay in Victoria, in a house where the residents hated and resented our presence. We referred to her as Snoko -- like, Yoko of the snow. Anyway I don't know if that was Billie's very first stalker but it was definitely one of them. Also in Vancouver, me and Virgil packed Green Day's car in ice and snow during their set. It froze overnight, and when they received a call at 6am insisting that they move it because it was in the hotel manager's parking spot, they received an impossible frozen surprise.”

[kitchenlegrecords]

“Heroine” from Mumbles all the way to Vancouver, on CiTR Radio!

[morethanhumanradioshow]

More Than Human 217

https://soundcloud.com/morethanhumanrecords/more-than-human-217

Over the next 60 minutes we're going to hear new tunes from Gas, Move D, Gaussian Curve, more from the Styles for Relaxation compilation, a Theo Parrish re-issue and lots of other electronic goodness to end the massive weekend you've just had...

Seello - Anthony Naples · Us Mix Wanderux - Elka · Deep Intervention Reverse Electra - Golden Donna · Styles for Relaxation Space Ghosts - Theo Parrish · Parallel Dimensions Breathe - Gaussian Curve · The Distance Pop 1 - Gas 1 · Pop Wastes 1 - Polypores · Wastes Forest Lore - Black Point · Split, Vol. 2 inner realms - CMD · osc.jamz Roll Split - Move D · Roll Split / 460 Melrose Ave

[vancouverautistics]

Our All Brains Are Beautiful workshop was partially recorded and presenters were interviewed by UBC CiTR Radio's All Access Pass!

The link is here, and the transcript should be coming in a few weeks. As soon as we get that link, we’ll share that one as well.