#... But do we? Could we?
Explore tagged Tumblr posts
Text
Accessibility takes too goddamn fucking long.
My brother was paralyzed in October 2023. We got him home from the hospital (in Texas, when we live in Iowa) in a clunky old hospital chair. He hated it. He was scared and angry and in pain and his life had just changed forever and he couldn’t do anything for himself in that wheelchair. His first goal (aside from learning how to transfer) was to get a wheelchair. My family was lucky enough to afford one so we thought it would be easy enough. Nope.
We couldn’t buy him a wheelchair. He needed a prescription. For a wheelchair. A doctor had to examine him and declare him in need of a wheelchair. It wasn’t good enough that he had scans and tests showing tumors cutting off his spinal cord. He needed his primary care doctor to examine him during a physical and write a prescription. He was making 2-4 transfers a day, tops. He had no energy to get to a doctor. Home health was in and out every day. He had no time to get to a doctor. He didn’t get a prescription for almost a month. Then it had to go through insurance.
We asked if we could skip insurance and just buy a wheelchair for him. Nope. They wouldn’t sell us one, not even at full sticker price. It needed to be approved by Medicare. We ordered a wheelchair, a nice one, a good shade of green, sporty, small. It would let him move around the house. He would be able to cook, to reach drawers and get stuff from the fridge and brush his teeth and put his contacts in at a sink. We were told it would take awhile, maybe two months. Silently we all hoped he would be around to see two more months.
He went on hospice care on a Saturday in March. On Monday, I was calling his friends to come see him before he died. I got a call on his phone. It was the wheelchair company. They were about to order his wheelchair, she said, but there was an issue with insurance— had he stopped being covered by Medicare? Well, yes. When he started hospice care, he got kicked off Medicare. The very nice woman I talked to told me to call her if he resumed Medicare coverage so she could order his wheelchair. He died less than 12 hours later.
We ordered that chair for him in early December. Medicare didn’t approve the order until March. He was dead before they got around to it. He wanted that fucking wheelchair so badly. The only reason he had any semblance of independence and any quality of life for the last five months of his life was because the wheelchair company lent him an old beater chair, a very used model of the chair he ordered. If I could go back and change one thing about his end-of-life, I would get him his dream wheelchair. He told me again and again he couldn’t wait to get it, so that he could feel like a person again. He made the best of what he had with that old beater chair, but it still makes me mad to this day. He was paralyzed. He needed a chair that afforded him dignity. We had the money for it. And yet, we were left waiting for five months, for a chair that wouldn’t even get ordered until the day he died.
#sparklepants#we would have done anything we could to get him that wheelchair#nudge#disability#accessibility#spoonie#ok to rb and honestly please do
23K notes
·
View notes
Text
i went to a tiny counterserve diner once and accidentally poured sugar instead of salt all over my hashbrowns and was eating them sadly anyways. the waitress took them away and started making me another one and I tried to protest, but she just snorted and said "we're not catholic here". now every time i'm doing something painful out of obligation i think about how that is not repenting, this body is not a catholic establishment, there is no nobility in suffering.
#edit: i know i did not invent the phrase no nobility in suffering#holy fuck this hit 50k are we all. doing okay.#please stop telling me about sweet latkes i knOW about them#this was a terrible horrible accident involving a sugar shaker with a very large opening that i mistook as being a salt shaker#there was a quarter cup of white granulated sugar on my hashbrown before i could even process my mistake
123K notes
·
View notes
Text
Hey now, Let her cook!
#dungeon meshi#chilchuck tims#senshi#laios touden#marcille donato#izutsumi#oyasumi punpun#<- In case you are wondering what the source for the little bird guy is.#Yeah that's right. I'm back to my extremely obscure crossover BS.#Punpun is one of those series that falls under the category of 'Good! but I cannot responsibly recommend this to anyone."#If Dungeon Meshi is like a friend asking you to go on a quick errand and you accidently go on a life changing roadtrip -#Punpun is your friend asking to go on a quick errand and they pull up to the vet and tell you your dog is being put down.#Then they explode into sludge. Melting your car. You hitchhike back but the person who picked you up is an axe murderer.#I could not finish it. My friends who did say it was good. But agree it was for the best I did not finish it.#Hey speaking of tone twists...We are one episode away from one of my favourite chapters being animated!#WHO'S READY FOR THE SENSHI BACKSTORY! WHO IS READY TO CRY!#ME! I AM! I spooked my flatmate with how energetic I was this morning. I'm vibrating with energy I was not designed to contain.#I should talk about today's episode here: It was very good. I love how they animated the familiars.#And!!! Anime only people now are in the loop on the Chilchuck lore. Part 1 of many. He still contains multitudes.#They all do to be honest! If this episode told us anything it was that we still don't know these characters as well as we think!#See you guys next week. I'll be inconsolable.
15K notes
·
View notes
Text
read the whole story> here by @clarionglass :)
#a whole month later from starting working on this....tis done....#im so stoked i could actually push myself to finish it and im so fucking proud of myself#i also hope we continue doing sam!master shit in the future#because this whole idea became so dear to me whilst throwing ideas back and forth with clari:)#reich!master#sam reich!master#game master#doctor who#dw#dr who#dw fanart#doctor who fanart#15th doctor#fifteenth doctor#ncuti!doctor#ncuti gatwa#sam reich#dropout tv#game changer#gamechanger#college humor#brennan lee mulligan#grant o'brien#the master#northernfire art
12K notes
·
View notes
Text
because sometimes there are invisible tests and invisible rules and you're just supposed to ... know the rule. someone you thought of as a friend asks you for book recommendations, so you give her a list of like 30 books, each with a brief blurb and why you like it. later, you find out she screenshotted the list and send it out to a group chat with the note: what an absolute freak can you believe this. you saw the responses: emojis where people are rolling over laughing. too much and obsessive and actually kind of creepy in the comments. you thought you'd been doing the right thing. she'd asked, right? an invisible rule: this is what happens when you get too excited.
you aren't supposed to laugh at your own jokes, so you don't, but then you're too serious. you're not supposed to be too loud, but then people say you're too quiet. you aren't supposed to get passionate about things, but then you're shy, boring. you aren't supposed to talk too much, but then people are mad when you're not good at replying.
you fold yourself into a prettier paper crane. since you never know what is "selfish" and what is "charity," you give yourself over, fully. you'd rather be empty and over-generous - you'd rather eat your own boundaries than have even one person believe that you're mean. since you don't know what the thing is that will make them hate you, you simply scrub yourself clean of any form of roughness. if you are perfect and smiling and funny, they can love you. if you are always there for them and never admit what's happening and never mention your past and never make them uncomfortable - you can make up for it. you can earn it.
don't fuck up. they're all testing you, always. they're tolerating you. whatever secret club happened, over a summer somewhere - during some activity you didn't get to attend - everyone else just... figured it out. like they got some kind of award or examination that allowed them to know how-to-be-normal. how to fit. and for the rest of your life, you've been playing catch-up. you've been trying to prove that - haha! you get it! that the joke they're telling, the people they are, the manual they got- yeah, you've totally read it.
if you can just divide yourself in two - the lovable one, and the one that is you - you can do this. you can walk the line. they can laugh and accept you. if you are always-balanced, never burdensome, a delight to have in class, champagne and glittering and never gawky or florescent or god-forbid cringe: you can get away with it.
you stare at your therapist, whom you can make jokes with, and who laughs at your jokes, because you are so fucking good at people-pleasing. you smile at her, and she asks you how you're doing, and you automatically say i'm good, thanks, how are you? while the answer swims somewhere in your little lizard brain:
how long have you been doing this now? mastering the art of your body and mind like you're piloting a puppet. has it worked? what do you mean that all you feel is... just exhausted. pick yourself up, the tightrope has no net. after all, you're cheating, somehow, but nobody seems to know you actually flunked the test. it's working!
aren't you happy yet?
#almost wrote the champagne line as ''effervescent'' but legit could not write it without saying ''effervescent like a snail''#ah tumblr...#writeblr#warm up#idk . having trouble writing rn#ps i don't like to talk about it . it is my medical information. but before you ask. yes this is about being on the spectrum#i really don't like when ppl make my writing about how im [whatever ID]. i want it to ring true for the people who it rings true for#i don't want it to be like ''awwwww look at this person!!! she's the EXCEPTION!!! :)" .....#no.... not really.....#idk something gross happens whenever i admit to certain conditions and i turn into like inspiration p*rnography#like yes they actually let us use keyboards these days#furthermore i just... dont feel comfortable talking about this part of me. i had too bad of a childhood. adhd is one thing...#this one im like. still coming to terms with. which is like. my own journey.#idk. just please be kind. some things are more private than others. this one feels private to me.#i do not know how to help others w/this . and i do not know how to help myself. i will talk about it if im ever ready. idk if that will#actually ever happen#ty in advance i love u im kissing you we are kissing somewhere on the spectrum
50K notes
·
View notes
Text
Interview with the Vampire | What We Do in the Shadows
#wwditsedit#iwtvedit#wwdits#wwdits spoilers#interview with the vampire#what we do in the shadows#lestat de lioncourt#nandor the relentless#sam reid#kayvan novak#nandor#6.05#gifs#mine#god the nandor gif is so. not it. but thats all i could manage#1k
7K notes
·
View notes
Text
more people gotta try this shit where bill has not improved and will not change but he's just chilling so its fine probably. its great
#gravity falls#billford#bill cipher#stanford pines#gf nevermind all that#is this really for that? no but if its post canon bill on earth then it may as well be. makes it nice and easy to find later too#reread tbob because we just got our own (nicely water damaged) copy and i was like. i dont draw him cute enough#i will continue trying to do better#anyways stanley you are a butch woman. stanley transition now you dont even have to do anything youre already perfect#its just about the intent#every time i drew him for the last one all i could think was oohhhhhh my god you are a dyke. to me. please#in other news are there any burned out pushing-30s out there who havent drawn in years? i gotta say. i really gotta say.#get mentally ill about something its great. preferably alongside a few other people that you can use to create a perpetual cycle of insanit#gets you drawing again in no time and it feels great
7K notes
·
View notes
Text
“Could L have stopped Walter White”
“Could Benoit Blanc have stopped Kira”
Blah blah blah ENOUGH. We have to ask the real questions—
Could Saul Goodman get Light off? And barring that how much would Light’s sentence be reduced?
#death note#better call saul#saul goodman#light yagami#this started a war in my friend circle so we need answers here#i think saul could do it ngl
30K notes
·
View notes
Text
if i had a nickel for every au spawned from twitter that i SWORE i was going to be normal about
#i'd have like. five. which isn't a lot but IT KEEPS HAPPENING#stranger things#platonic stobin#steddie#steve harrington#robin buckley#eddie munson#here we go again boys#i've had this floating in my head for a Minute and i was like#nah i'm not gonna do it#maybe i'll anonymously write a fic#but no we're mombin posting on main#i think on twt we agreed it's a 'what's the worst that could happen' situation#platonic co parents can be so so so personal#also i have One more stobin wip and then bg3 again i swear#when i have a baby i Will be putting my giant black wings on beforehand#they have to know what kind of family they're coming into#cw pregnancy
13K notes
·
View notes
Text
need to share an experience i had 30 minutes ago
(edit: thanks to @walks-the-ages for providing and reminding me to put alt text, sorry it slips my mind alot lol)
#my hands are still shaking to be quite honest i could not put a lot of effort into this.#but like. brain. why did you do that#literally i have been like hopelessly obsessed with de nonstop thinking abt it for the past couple of days it is Scaring me#it is terminal its soooo fucking chronic#disco elysium#kim kitsuragi#for anyone who wants to know i bumped into some guys car that was stopped for a school bus. i think my brain errored and thought#my foot was fully pressing down on the brake pedal but it wasnt.#i am like 99.99 percent sure neither of us had any major damage to our cars but we still filed a police report just in case#because insurance do be a bitch. dudes back bumper was scratched lightly and my front license plate has a dent now#also literally my first ever car accident that ive had ever yippee yay
30K notes
·
View notes
Text
Tunisian miku 🇹🇳👍
#hatsune miku#vocaloid#international miku#miku worldwide#habiba miku if you will#my art#fennec.art#ik im a little late but a while passed wuthout seeing anything for my culture#which is to be expected but i wanted to do smth#anyway this is very simple and extremely non exhausive we have soooo many different stuff and SO much jewellery that i could not be bothered#but i kept the most recognisable silhouette#this was fun !#this trend is rly nice i think
5K notes
·
View notes
Text
still ruminating over Lost In the Book With Spooky Skeletons Part 1, so here's a selection of some of my favorite little bits! (...some more loosely paraphrased than others) (I just feel like Idia has no room to criticize in general, okay)
anyway, I'm sure we're just going to have a fun time celebrating Halloween and nothing bad is going to happen whatsoever! :)
#art#twisted wonderland#twisted wonderland spoilers#lost in the book with nightmare before christmas#hajimari no halloween#calling dibs on skeleton kisses as the name of my band#man scully is just a delightful little weirdo and i'm enjoying him immensely#(i'm going with scully until we get something official just because it makes me think of x-files)#(スカリー is also how the agent's name is transliterated and i don't know if it was intentional but i love it as a bonus reference)#(i want to believe™)#gosh though#'no one at school likes me because i won't shut up about halloween and jack skellington' i'm feeling VERY attacked right now twst#look scully your people are out there#just get on the forums and -- oh wait you're probably from like the 1800s or something#(my theory is that he's from the past and there's just some Book Magic going on to bring us together)#(LOOK they made a point of saying that the book fair has been held annually for a super long time)#a hot topic goth born before hot topic was invented...so sad 😔#i dunno i could be wrong but that feels like a good working theory for now#if it wasn't for mal sensing twsty ~magic~ on him i would think he's like. a christmas elf who's going to kidnap jack in a reverse-nmbc#(not ruling that out though because it would be amazing)#god all the sprites in this event look AMAZING. loving the desaturated colors and the extra drawn-on lines 😍#i'm genuinely kinda sad that we aren't gonna get to see every character like this#who knows...maybe halloweentown will be imperiled again next year...#come back and destroy my keys again please#(that said i'm doing weirdly well so far?)#(i promised i'd save for sebek and just do cursory pulls to get the SRs and not hope for the SSRs)#(...but then leona jumpscared me four coffins in anyway. halloween magic is REAL)
7K notes
·
View notes
Text
do you guys ever think about how Wyll is introduced as an archetypal fantasy hero, but then it turns out he’s a warlock, who made a pact with a devil. Do you ever think about how Ansur is described as this fantastical dragon of myth, but then when you find him, he’s turned into an undead monstrosity. Do you think about how when Wyll does the right thing, he is punished to become more monstrous. Do you think about how as Wyll’s warlock powers grow, his spells get more horrific. Do you think about how Ansur was killed by his closest friend. Do think about how Wyll was cast out by the most important person in his life. do you guys ever think about Ansur and Wyll.
#tw mild gore#bg3#wyll ravengard#bg3 ansur#baldur's gate 3#bg3 spoilers#ask to tag#wahoo had a lot of fun with the colors in this#we could have had it alllllll wyll shouldve been able to bond with the dragon#like ough how do you think wyll feels about casting spells like eyebite and blight#the ending of his quest is so.... lackluster#i like the emperor i think hes really interesting but like... he does kinda swoop in and take over the end of wyll's personal quest...
9K notes
·
View notes
Text
you know what perhaps strange women lying in ponds distributing swords IS a pretty solid basis of government actually
#us politics#election 2024#monty python#like at this point we could do worse than sword-in-stone based leadership#we ARE doing worse#King Arthur girlie if you’re out there…think you’re gonna like this gal Chappell roan
3K notes
·
View notes
Text
obligatory beach divorce doodling
bonus rough cover redraw of x-men #41 (1995) But Beach Divorce below cut
#mcu#marvel cinematic universe#xmen#xmen movies#xmen first class#cherik#charles xavier#erik lehnsherr#professor x#magneto#snap sketches#'snap i thought you were drawing old cherik this weekend' so did i but i was inflicted with visions sorry </3#i have my lil 92 comic sketched so ill do that tomorrow. not finish it but ill work on it 💀#i wsa just gonna draw the first thing but then i figureed i might as well draw Most of the beach-divorce-related things i want to#just so i could put it all on one post. however this is a lie and i know ill wanna doodle more beach stuff#the first drawing Unsurprisingly was motivated BY the xmen 41 legion quest cover- at the very least the total blackout of erik's face#i wanna draw more of erik using his powers .. i wanna figure out how i wanna draw the effect etc etc#i was just gonna redraw the cover but i already liked the sketch i did of the first thing so. here we are#plus i figure someones already done a redraw of the cover but if anyone cares ill finish my version ig LOL#as for the comic ermmm it was just an excuse to draw erik with glowing eyes </3 and fading-glowing eyes </3#thats why i didnt draw the whole. Choking Moira bit. but i wouldve if i was redrawing the whole scene#kinda wish i did now that i think of it cause it coulda looked cooler prob but oh well maybe in like. three months when i redraw this#for exactly five cents ill redraw the whole beach divorce erlkjealkaje i can see it so clearly in my mind#what if first class was a comic drawn by a freak thatd be wild#but yeah thats why everything look rough as christ these were just supposed to be silly lil thangs#'silly things' and its beach divorce OK.#ok bye im gonna do my homework
4K notes
·
View notes
Text
Thank you to @sleepnoises for making the original poll & for giving us the idea to to this :)
Sorry if we couldn’t get your favorite on here, we were limited to only 12 options (11 if you don’t include the “other” option).
#polls#time loop#(do i dare tag every one of the fandoms here?)#(yes. i do.)#groundhog day#majora's mask#supernatural#madoka magica#edge of tomorrow#happy death day#russian doll#outer wilds#palm springs#chonnys charming chaos compendium#in stars and time#(…one of these is definitely on here because of personal bias rather than it being popular among the Time Loop Community)#(but how could we not put our favorite on here :)
7K notes
·
View notes