#[ without having dislocated it ]
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TDF DAY 2 (june 30)
Onto the fancy jacob lambswool. This wool is ridiculously soft and fine even for a non-jacob fleece, but for a jacob it's almost unbelievable. Were it not for the fact that it's clearly piebald I would be very suspicious that it is actually rambouillet or some other fine wool. But it's jacob and I'm even more fond of it for that.
Anyway, for my first attempt I wanted to see how distinct I could keep the colors while still combing it all at once. I did white on one side, gray in the middle, and brown on the other side. Definitely didn't homogenize but also didn't stay distinct at all, so if I want a nice barberpole through the colors I probably need to comb each color separately and then just spin them all together.
I spun most of this one on a drop spindle until I fully destroyed my right shoulder like an idiot (an idiot who now can't raise it's hand without its shoulder dislocating instantly), and switched to supported. Supported was definitely less painful, but I'm still having the issue of not being able to keep my arm upright for long enough to make a lot of progress. So, this will need to be spun on a wheel.
Will benefit from being plied on a wheel too I think.
Mostly because it's thin enough that I really cannot visually tell how much twist I'm adding (and nor can I feel it because it's so thin and soft you really can't feel a single ply.) At least with a wheel I have an easier time being consistent, so I think I could get a much much better yarn on my wheel. That'll probably have to wait for next weekend, idk.
Anyway, here's the finished skein, steam blocked and twisted up. It's 1/10th of an ounce and 23 yards (3 grams and 21 meters). Way denser than I was hoping for. I can probably go a bit thinner, but I did think my average with this fleece would be thinner right off the batt.
Not sure how I'm going to go about spinning the rest of tdf. Maybe I'll try waking up early (well... earlier. I already wake up at 5am for work) to spin before I leave. I don't seem to be able to use spindles anymore without extreme pain... problem is the same is also true to an extent of my wheel. My body is such a piece of buzz killing garbage, but whatever. I will figure something out as I am not yet emotionally ready to have to quit doing tdf. Probably next year I will not have a choice, but hey ! Not thinking about it.
Probably gonna spend the rest of the day knitting something with this laceweight to see how it works up.
#tour de fleece 2024#tdf 2024#have not had a good tdf the last couple years either due to disability#really want this year to be different but i was hoping better different not Extremely Fucked Up On Day 2 different :(#if i could find a way to sit in my powerchair and spin supported that would be great.. it has arm rests that are now at a helpful height#but i cant keep the bowl on my lap without holding my legs together and that dislocates my hips very quickly#so... need some sort of saddle to put it on but currently no ideas on how to make one given that my ability to find the perfect stick#is very limited in a powerchair. augh.#being disabled fucking sucks immensely. shocking. more at 12.#handspun yarn#jacob
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I’m chronically ill. I’m a figure skater. I use a cane when I’m not skating cause I have really severe chronic pain that gets especially flared up by any warmth. And this morning I had the bright idea of “guys, fall is coming, I’m gonna go on a run this morning. Just a quick 10 minute run.” I then went on said run (against all better judgement telling me “this is going to be bad for you later, you’re allowed to let your body rest, you’re already athletic, you don’t need to prove that to anyone, you need to stop ignoring your health.”).
For context I live in Texas. And I only get pain relief in very cold environments (such as the rink). It was 78° at 6am. And humid. I’m flared up to no tomorrow. I only ran for 10 minutes and when I got out of the shower I fell over immediately and sublexed my hip. I just don’t know what to say really. Why does taking care of myself hurt so bad?
#Kinda interanlized ableism?#Kinda just need some comfort and reassurance rn#Or just general advice and reason#I know I don’t need to prove to anyone I’m an athlete#I skate almost every day. And I’m damn good at it. But having these conditions makes me feel like I’m living two different lives#In one I’m an athlete and strong and can skate for hours becaus of the cold#And in the other (off ice) it hurts to walk without a cane. I dislocate things constantly. My symptoms progress daily.#And it makes me feel like I’m faking it because ‘Oh I can still skate’ even though I know I’m not faking#it’s just so frustrating#hypermobile ehlers danlos syndrome#fibromyalgia#cane user#Chronic pain#chronic illness#hEDS#Disabled#Disability#physically disabled#Disabled athlete#internalized ableism#heat sensitivity#Figure skater#Figure skating
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the universe can be so funny sometimes w coincidences bc i just realized classes start on the 3 year anniversary of me dislocating my kneecap which inadvertently led me to pick the college im going to. like theres something poetic abt that
#dislocated my kneecap committed to a college and ended up dropping out bc it wasnt accessible enough#went to community college for two years and then picked the one im starting at bc its very accessible#without dislocating my kneecap i never wouldve gone here i never wouldve lived at home this long. so many things wouldnt have happened that#did happen. butterfly effect or w/e i just think it’s interesting#esp bc 3 years later my knee is still fucked up 😍#txt
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my skeleton is held together with overstretched rubber bands and a whole lotta hope
#connective tissue disorder#hypermobility#If I hang upside down by my ankles I have to tighten my leg muscles to stop my ankles from stretching too far#I can slide/pull my ball-and-joint sockets apart without dislocating them#If i sit wrong my knee will subluxate until I unbend it all the way#and it hurts more and more until it pops back into place#I can stretch and pop my back just by bracing my elbows on my knees and relaxing my back muscles while breathing out#when I stretch my back and sternum pop#my sister says I sound like I'm made of legos
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man, there are days when I'm like "idk how much the ketamine treatments help" but then there are days like today where I woke up with a rib out of joint and I suffered for hours before giving in and taking my treatment a day early (which was okayed by my doctor) and I fell asleep during the treatment and woke up like. rib back in and only mildly sore.
like using this stuff is not perfect (the dehydration alone is hard to deal with) but there are days when it's such a lifesaver.
#just me#cw:#chronic illness#injury#(back) ribs are very genuinely the worst ;;#they hurt more than any other subluxation/dislocation in my experience#and cause a lot of damage to the surrounding systems#so on bad rib days I often have trouble breathing swallowing etc.#it is an all-over pain#neck down past my hips the whole area is fucked#like the first time I pushed it back in this morning#it kind of moved at an odd angle and ended up pushing my SHOULDER out of joint and the whole thing moved without my input#weirdest fucking sensation when you push on a bone in your back and your shoulder lurches a few inches and your arm is just hanging there#but it's all connected like idk what to tell you lmao
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internalized ableism that you didnt know was there will make you do things like reinvent being a ambulatory wheelchair user apparently
#comeing to terms with the fact that am not dramatic and even though am in WAY less pain then when i was in school#my bones still got torn apart very slowly by stress muscle tension for years#amd that will be with me for the rest of my life witch i was already fine with idk what it is about this#so even though i dont technically need a mobility aid i would probably be more comfortable with 1#as long as it has an option to fold it up to walk when i need to#(not moving doesnt hurt the way people use that word but it can feel just as bad as my hip deciding to tease dislocating itself)#ourghhgh#chirps#am so not sure of myself and my wife is going to make me cry is she keeps being this amazing#god of melody and making me feel supported and accsepted without turning it into a whole thing that singles me out#lala isnt awake yet but i didnt even think about maybe getting an aid until ey asked me what i use so this is team to me <33#<-ALOTT of things dont hurt to me in a way that people descibe pain but pain is the closest thing i have to tell anybody what am feeling so#maybe i just misunderstood what pain is???????#i dont have words for it but most of the times i would rather be in pain
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millie i cant get this out of my head but since we now know that leona can drive do hypu think he. He does THAT THING. when one hand is steering the wheel and the other is
HE DOES.
#LEANS HIS CHEEK ON HIS FIST TOO#and. AND.#DOES THAT#THAT THING WHERE HE#THAT FUCKING REVERSE THING#WHERE HE HAS AN ARM AROUND THE PASSENGER’S SEAT#LOOKS BACK#TURNS THE WHEEL#MY MAN PARALLEL PARKS WITHOUT BREAKING A SWEAR#SWEAT#no bc i bet when he’s on the highway he just has a finger on the bottom of the wheel to keep it steady#like it’s just. it’s just THAT casual for him.#WINNIE YOU HAVE NO IDEA HOW MUCH I COULD SCREAM ABT THIS#EVER SINCE I LEARNED HE COULD CANONICALLY DRIVE??????? DISLOCATED MY SHOULDER#STARING AT HIS VEINS AT HIS BICEPS AT HIS BIG HAND AND#hand on your thigh.#GOODNIGHT (it’s noon here)#moot.
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OOF it's been a while since I've had a nightmare visceral enough to wake me up from a dead sleep into straight terror... But I guess I shouldn't have underestimated how much my brain would pick up from a podcast Teirlisting Horror Games. .....
(I go on to describe the dream in the tags so watch out if you don't want to hear descriptions of the horrors my brain can cook up.. cw Body Horror mostly)
#monster noises#I thought it would be Fine because they weren't Playing the Games or Experiencing the Narrative#but i guess they were talking about Enough details and things my brain already knew that the Terror Machine that runs my sleep was like#OHOHOHO..... Ingredience#the Idea was i was playing a video game level but i was In the POV#and at first it was just a creepy apartment#but then weird ghost kids started showing up and i had to get them all#which was more annoying than scary until one of them dislocated several joints and started Yelling#and the quickly the lights were out and i had a flashlight and I had to hide from this monster called 'The Granny'#and it mechanically it was one of those things that can't see but Can hear but it also had like Seeking Tendrils#and I was attempting to hide under a table but i couldn t get under fast enough without making a bunch of noise#and the tendrils coming in way too close#and then it Screamed and started after me but i was stuck under the table and had to try and blindly back up to the door#while crouch-carrying the table#and the tension and fear of that experience was so high i shot awake in complete fear with my heart Pounding#and it's still not back to like.. level#but like truly this thing was Awful#very well could have been an official silent hill creature#the opposite of when you wake up in terror from a dream and the thing you were afraid of was actually pretty ridiculous#you wake up from seeing this thing and go 'alright yeah okay that's fair i'm Fully also afraid of that'#it's like#.. a desecated large human head#on the end of neck like a snake's body#but it's just bones and bits of driedout flesh#and it's body a jumbled mass of bones and sinews with long distinct skinless dried out limbs coming out of it#that it pawed along low to the ground with#the whole thing was drapped in a filthy shroud and coloured this dark dark tan#like Mummy Colour#i'm sure you know what I mean#but it was Awful
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Trying to explain how stupid my infirmities are like "well I sneezed too hard and it caused a rippling muscle spasm across my chest and partially dislocated one of my ribs"
#I can't do anything without injuring myself it's so fucking stupid#I almost dislocated my shoulder shaving my head this morning#No I don't have EDS stop asking#Well I might but not officially and I don't want to think about it because too many things are already wrong with me
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hate that medical care costs so fucking much and then insurance decides to pay a trivial amount like. ok yeah my emergency surgery definitely didnt need to be covered by insurance yeah i totally had it for fun fuck you
#i broke and dislocated my ankle it would not have healed properly without surgery#and yet theydont cover a LICK of it!!!! fuckkkk man#whatever
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Totally fucked up the order, so am now attempting to recreate it from the pictures that i took of each warp on the board, with the hopes that the 3rd warp will at least be well behaved. If it isnt im gonna need to do another round of towels (or maybe just a test warp) bc i cant be doing this on the blanket commission. Am very very aware of how tangled this warp will be. Only potential saving grace is that imo cotton doesnt tangle anywhere near as badly as wool, so hopefully it wont be too horribly bad.
It is going, though. About halfway done dressing the heddles. Next will be sleying the reed. Hoping to get all the warping done by tomorrow.
#plagued by my fucked up meatsuit as always#left hip is dislocated seemingly for the next long while bc when i dont use the crutches i have to walk with my right foot on tip toes#to avoid putting weight on the puncture wound#and my hip does not like this height difference very much#left knee all sorts of befucked bc when i do use the crutches its taking the weight of me essentially crashing from step to step#right foot is very swollen and painful. basically just cant move around w/o lots of pain#also have a migraine and the meds are making me so so sick as always#usually i pace to make myself feel better but of course i cannot#on top of this i also have a cold#no energy whole body is pain and nausea and cant go anywhere without blinding agony#definitely won some kind of shitty lottery#and yet i weave ! or at least i warp. badly#weaving#chronic illness#injury
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maybe i really actually "needed" testosterone, because for the first time in my exercising efforts, i'm discovering the mundane joys of joint stability
#my shoulders dont dislocate during reps anymore ! ! ! !#it didnt register as a problem before because it was my natural range of motion it was just a very weak motion in range#my hips were ok (still dislocatable) from natural walking exercise but my shoulders were flimsy sticks rattling around their sockets#and it didnt even enter my worldview that that wasn't normal or an expected difficulty to overcome as part of exercise#NOW im finally doing some reps without shoulders popping out of sockets and its so much easier than having to re-socket the joint#while in motion in a pushup of your body weight#GHHAHHGHhh#personal#obviously someone could fix this without going on HRT but HRT was needed for me to have a will to live and motivation to exercise#the accelerated muscle gain though is HUGE for making my joints work well right now
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this is a long shot but does anyone have tmj? are there any methods you use to help reduce the pain
#i do a few stretches i found online & i have a retainer#but every time i yawn my jaw fucking dislocates and it hurts dude#theres only so many times i can pop it back in without injury#chat
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One of my many talents is the ability to do things, but not know I can do things
#random post#I’m being silly for the most part lol#tho I’m always surprised when I draw smth nice or am able to do smth well#shocked like when a deer sheds their antlers lol. like ‘WHATHFUCK IS THAT?!?!’#every day I forget I draw and every day I remember that fact#I may always be thinking about my ocs. but I’m not always thinking about drawing if that makes sense. like it’s 2 separate things that mesh#sometimes. so if that isn’t coherent I’m experiencing the consequences of my actions (hunger and thirst)#anyways when I first played beatsaber I shocked everyone and myself when I was able to keep up the faster paces#I guess I’ve just had practice with quick things like that before? I play a game where it’s very ‘push button at right time’ and that one#also goes pretty fast. idk tho. anyways I learn things about myself and it’s fun (like when I realized my right shoulder may have the#ability to dislocate? not entirely sure there but it looks really fucked when I move certain ways)#I’ve also noticed my left eyebrow will subconsciously just raise on its own. not like the Rock style or anything lol but you can obviously#see it. also I can lift my right brow on its own without moving any other muscle on my face so that’s neat#I can also move my ears! it’s from all those years of trying to keep my glasses on my face lol#anyways I’m rambling and I need to eat now so <3
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i just got done with my third chiro appointment, and like. I've noticed a significant improvement in terms of how much pain I'm in but I'm also noticing i can't like. stay sitting up. I can sit, which isn't always the case, but the muscles in my back are so loosey goosey/ not responding/ spasming that I keep curling forward until my head is almost pressed to the bed in front of me while I'm sitting cross legged. Don't know what that's about but it's affecting productivity something awful.
#like#i have shockingly good muscle tone considering how little i can move so this isnt a strength issue.#Ish. Like. the thing with eds is that if you have it severe enough your muscles have to pick up the slack for your ligaments#which results in you building way more muscle than you would expect#I cant lift more than 25lbs in like a bag or something without dislocating my elbows/shoulders#but i can bench 180~ and barbell squat my own weight#its just a matter of not pulling on anything#Tbh i think this is just the level of Nonsense that happens when my muscles arnt constantly tense.#my ligament structure isnt sturdy enough to work without that extra reinforcement#Anyways ive needed a back brace since i was 12 but insurance wont pay for it and like fuck am i able to shell out the 20k myself.#Ive looked into corsets but my proportions are so weird that id need a custom pattern#which is Pricey to get from a reputable company. like 2-3k which is better than 20. but still out of reach.#Im not confident enough in my drafting ability to make one myself.#seeing ms.banner. a real and skilled seamstress who knows what shes doing. lay herself out with a bad corset pattern is kinda#a good sign that maybe i an idiot whos sewing experience is stuffed animals and quilts. should not fuck around with my spinal health#I think id be more comfortable doing it myself if there were more mens corset patterns and more examples of how non#lingerie mens corsets are like. meant to work#i dont exactly need bust support. and most women's corsets dont have the shoulder support mens do. and thats like.#the area im most scared about fucking up bc its already a nightmare#tbh when i get the sg shop open im putting all the profits into a savings account and just working hard to get the budget to pay#for a proper corset.
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Ever since i read this one fma fic about an alchemical natural phenomenon / disaster that happens once every few decades its been on my mind
#Listen to my problems#like every alchemist (person able to conduct alchemy) will start to act strange for a few weeks#then they all start to have strange thoughts and impulses. edward came up with the rubberband trick in order to snap himself out of those#trances. it worked for a while but the slight pain from snapping a rubber band against your wrist cant keep workinf#so mustang turns to straight up snorting cocaine which seems to keep the voices at bay but like i mean ed doesnt approve but if it works it#works ... eventually they all start to gather in an open field .. alchemists from all over the place forming a circle ..#edward handcuffs himself to mustang in an effort to keep him from walking off (at this point his wrist is a mess of red inflamed skin and#blood from using the rubberband so much) he fights mustang (walking steadily but mindlessly) so hard that it dislocates his shoulder and i#cant stop thinking of that description ... the joint of his shoulder sliding out of place with the consistent force .....#he keeps pulling and eventually ed is dragged along (he fights the whole time but the call is too strong ...)#they find the other alchemists all waiting for their missing leader (its mustang!!!!) theyre lined up in concentric circles and mustang#walks right into the middle of all those circles. edward pulls at his arm theyre still lovked together .. ed is trying to get to his place#but he doesnt make it in time before the ritual starts with mustang right at the centre of it all ...#i dont actually remember the purpose of the ritual but it might have been to channel excess alchemical energy (yeah i realise that that cant#be it) back to the. earth. and after the event ends everyone wakes up without any memory of what happened#mustang being the conduit for all that power comes away from it with periodic fits of epilepsy ... and to him hes always been like this#... nobody remembers what happened ... even the last time this happened all ed was able to find was ancient newspaper articles talking#about their alchemists acting strange .... nobody remembers ......... ....................
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