#@hdsa

[cahootings]

holding this one very close to me what the fuck. what the fuck.

[hdadvocate]

Huntington’s Disease Medications: What’s New, What’s Now, and What’s Next

Once again, I share about HOPE for a cure or therapy for Huntington’s disease.  At this time, there is so much HOPE for the many therapies being managed for Huntington’s disease (HD). I found a great article from the website GoodRxHealth, Huntington’s Disease Medications: What’s New, What’s Now, and What’s Next.  Please take time reading it because there are so many promising clinical trials,…

[rickyvalero]

Jason Ritter Talks 8th Annual Freeze HD Fundraiser

Jason Ritter Talks 8th Annual Freeze HD Fundraiser

Following two years of virtual programs, Freeze HD – an event which supports the Huntington’s Disease Society of America (HDSA) – is returning in-person on Saturday, October 22. This year, the event will honour Jason Ritter and the Ritter family for their incredible ongoing support in the fight against Huntington’s Disease. I had the pleasure of speaking with Jason about the importance of…

[tcr55]

Two approaches to architecture in Sydney.

At first light on a clear day, you can see Harry Seidler’s Horizon up the hill in Darlinghurst. And down by the harbour, the Wharf Terraces by the HDSA Group in Woolloomooloo.

If I could afford either, I’d be down by the water.

[huntingtonsimpact]

Resources

Bates, G., Tabrizi, S., & Jones, L. (Eds.). (2014). Huntington's disease (No. 64). Oxford University Press.

Broderick, P. C., & Blewitt, P. (2020). The Life Span: Human Development for Helping Professionals (5th ed.). Pearson Education.

Cleveland Clinic medical. (n.d.). How to do the heimlich maneuver. Cleveland Clinic. https://my.clevelandclinic.org/health/treatments/21675-heimlich-maneuver

Craig Hospital. Neurorehabilitation Center Colorado: Craig Hospital. (n.d.). https://craighospital.org/

HDSA: Huntington’s Disease Society of America. Huntington’s Disease Society of America - Family Is Everything. (n.d.). https://hdsa.org/

Huntington Physical Therapy, HPT - Huntington, WV & Barboursville, WV. HUNTINGTON PHYSICAL THERAPY. (n.d.). https://www.hptservices.com/

Physiotutors: Online learning for physiotherapists. Physiotutors. (2024, May 22). https://www.physiotutors.com/

[shamelessrabbithole]

Layla wasn't at Bill's Whiskey event nor at Kate's HDSA event thing (or so we think. She wasn't in the photo)

Oh, right. That outdoor walk. I forgot about that. It was from the start of November, so that's two events that normally she would've attended but didn't. 🤷🏻‍♀️

I usually say she may have been the one taking the picture, but I agree that these are the kinds of events she'd normally want to be seen at, since they're for charity and/or include the Shameless people she's most friendly with. 🤔 I guess we'll see if she reappears anytime soon...

[d0nutzgg]

Want to Support My Research and Get Some Cool Subscriber Only Content?

Hey everyone, so I know a lot of you really love my programming stuff. If you want step-by-step tutorials on how to make certain types of machine learning models, python projects, and other awesome subscriber only content, while supporting my research and helping me donate to a good cause (15% of earnings will be donated to the HDSA to improve Huntington's Disease patient's lives as well as fund life changing research being funded by them right now, I will include the donation receipt each time I donate!), you can now subscribe to my Post+ subscription! It would mean a lot to me and I will ALWAYS provide proof of donation as well! I want to make a change, and you can help. I will start posting stuff for my Post+ subscribers as soon as I get my first Subscriber (I want to make sure you're in this with me before I start creating a bunch of stuff!) I will be gone tomorrow because of my teeth issue but I will be home tomorrow night. Anyways, it would mean a lot and I promise to give you an inside look at what I do and how to do everything I do!

Love you all, you are super amazing people!

[guncelkal]

Power Cord Lanberg CA-HDSA-11CU-0015

If you’re passionate about IT and electronics, like being up to date on technology and don’t miss even the slightest details, buy Power Cord Lanberg CA-HDSA-11CU-0015 at an unbeatable price. Product with plug: Yes Type: Power Cord Male Plug/Male Plug Type of plug: Plug UE Colour: Multicolour Packaging: Polyester Approx. weight: 20 g Cable length: 15 cm Form factor: Straight Connections: Molex…

[petnews2day]

S.Rothwell & son - Young Bird 2023

New Post has been published on https://petn.ws/hDsa

S.Rothwell & son - Young Bird 2023

S.Rothwell & son kindly donate a 2023 Young bird We will offer a 3rd round young bird ( ready april approx ) this young bird will be a half bro/sis to our RPRA sprint award winner  Sire: New Limo  *** Direct Co Verbree*** SIRE OF 1st RPRA WR SPRINT AWARD  New Limo is a Top […]

See full article at https://petn.ws/hDsa #BirdNews

[wehaveaface-global-hubs]

WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!

[lillysilverus]

[hdadvocate]

The HDSA San Francisco Bay Area Chapter thanks Stanford Medicine, Gold Sponsor for the upcoming Huntington's disease fundraiser at Campbell Park on June 17, 2023. Please register and help in the fight against this incurable disease here: https://sanfrancisco.hdsa.org/events/2023-team-hope-walk-san-jose-ca

[tedturneriscrazy]

I may have placed a bid on this.

Can't wait to be outbid.

[iiasha-archived]

40/∞ gifsets of wen junhui | 201225 sbs music awards, my my

[transmascnepetaleijon]

aggie.io with @4lph4kidz and @insane-but-smart

some closeups under the cut

[huntingtonsimpact]

HD Care Facilities

As the disease progresses, it may get to the point where the family is unable to act as sole caregivers for the patient any longer. In these times, it may become necessary to seek a care facility in order to ensure that their loved one is safe and well cared-for.

Specialized HD clinics, like those recognized by the Huntington's Disease Society of America (HDSA) as Centers of Excellence, play a vital role. These clinics offer comprehensive care tailored specifically to HD patients, including expert medical management, therapies, and counseling aimed at enhancing quality of life and addressing specific symptoms of the disease. They serve as hubs where patients can receive specialized treatments and support from teams experienced in managing HD.

Home care services are another valuable option for HD patients. These services provide both medical assistance, such as administering medications and managing symptoms, and non-medical support, such as help with daily activities and emotional companionship. Home care allows patients to remain in familiar surroundings while receiving personalized care that meets their individual needs. It offers flexibility and can be adjusted as the disease progresses, ensuring comfort and continuity of care.

Long-term care facilities, such as nursing homes and residential care homes, provide round-the-clock support and skilled nursing staff trained in managing HD symptoms. These facilities offer a safe environment where patients can receive ongoing medical care, assistance with daily tasks, and social interaction with other residents and staff. They are equipped to handle the complex needs associated with HD and provide families with peace of mind knowing their loved ones are receiving comprehensive care in a supportive setting.

For patients in advanced stages of HD or those needing end-of-life care, hospice and palliative care programs offer specialized support. These programs focus on managing symptoms, enhancing comfort, and providing emotional and spiritual support to both patients and their families. They ensure that patients receive dignified care that aligns with their preferences and values, emphasizing quality of life during this sensitive time.

HDSA

Mestre, 2017