#thingsigetexcitedabout

[larissareinhart]

Mr R said the jalapeño and sausage kolache was “transcendent.” #thingsigetexcitedabout #newdonutshop #peachtreecity #peachtreecityga #donuts (at Peachtree City, Georgia) https://www.instagram.com/p/CGZ7Z8GAVBJ/?igshid=187cu2dh27jt2

[estabin]

Can't wait to share my playlist 💕

[swimmiey]

So I've got a call from the hospital that I will be having surgery next Monday to place my port back again. Last week when I've had my first appointment with my vascular surgeon they said it would probably be 14 weeks until they could do the surgery, but yesterday I've got a call it will be within the next week so I'm really happy about that. I'm not happy because it's another surgery but I'm happy because I don't have to worry anymore about getting blood work done or placing an IV when I really need it because it's getting harder and harder and last time they just couldn't get an IV in and they couldn't get the blood work done. Which can be dangerous when my potassium or phosphate levels suddenly drop, because if they do I really do need quickly IV access, because I can get paralyzes or muscle weakness but also my heart can stop beating if those levels are too low. So yeah, the things you can get excited about as a spoonie. Also my neurosurgeons office emailed me back, they've had a chance to talk to my neurosurgeon and the emailed me that my shunt revision will probably be in the second or third week of April. I just hope I will be able to go to a concert of Matt Simons I already have tickets for. Also im going to call my neurologist tomorrow to see if it's possible to schedule a lumbar puncture the Monday I will be having surgery, so it will be a bit easier to make it until shunt revision surgery. ************************************************* #surgery #spoonielife #shuntlife #chronicpain #chronicfatigue #bravedutchies #electrolyteimbalance #lumbarpuncture #shuntlife #shuntproblems #portacath #portacathsurgery #venousaccessport #invisibleillness #chronicillness #incurabledisease #intracranialhypertension #lowphosphate #lowpotassium #vascularsurgeon #thingsigetexcitedabout #chronichope #headachefromhell #hospitallife #spoonieproblems #spooniestrong #lifeofaspoonie #hypokalemia #lowpotassium #childhoodcancersurvivor