#theres a chance that i dont have to be permanently disabled?
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like-wuatafauq · 11 months ago
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Having a female doctor after having male doctors for so long is such a huge difference.
Me: my main concern is my injury from the military, I haven't had any treatments,physical therapy, help, or gotten it checked to see what we can do for it, sometimes I'm even bedridden.
My new doctor: I'm going to send you to a specialist in case your past doctors weren't thorough and diagnosed you wrong. Because unfortunately for what they say you have there is no cure, it's permanent. And then I'm also going to let you decide if you want to pursue physical therapy before or after they check you. In the case it is permanent, I can set you up with mental health in order to come to terms and cope.
Me internally: wait that's it you're not gonna make me wait a whole year or make me feel dramatic. There's a chance that I don't have to be permanently disabled? Theres a chance I can get treatment? You're not just going to dismiss me because i look young and healthy? You're just going to genuinely care? Just like that!?
My new doctor: I'm also going to get you checked for other things because even tho you look like a healthy young woman I want to make sure it is that way.
Me:
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and-i-uh · 5 years ago
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6? 22? Any other number you wanted to answer?
6- i dont have any stim toys, ive never really delved into that stuff, i was never really given the chance to explore stuff that would help me out with stimming and such. I also dont think i would like stim toys? Maybe i just have to try some but idk.
22- idk any specific songs i stim to. But ive stimmed while listening to mcr, and honestly i just stim to alot of the general songs i listen to. I really like singing along, i think thats a stim of mine, and some songs just listening to them is like stimming (anything with drums and/or guitars)
2- i like blankets a lot. Even if im hot and dont really need one, ill subconsciously grab the blanket on the couch and put it on my lap, and on my bed. There was one day i grabbed a pocket-sized beanie baby and put itin my hoodie pocket, and just knowing it was there made me happy. Also when i was with my friends one of them stuck their hands in my pocket and i panicked and like moved it out of their reach bc i was scared to get made fun of lol, it ended up being fine. I sleep with stuffed animals a lot. I think thats it
3- my school experiences were,,, not fun at all. Theres a lot to unpack there. My schools all had this thing called a “504 plan” or whatever. And it’s supposed to help people with certain disorders/disabilities. Mine only acknowledged my adhd as far as i know. Maybe my anxiety too. Some of the things that were supposed to ‘help’ were moving me to the front of the room, i got extended time to complete stuff (supposedly), extended time on certain tests (which i only saw on the act, literally i got no other extended time to do anything else. And after i got extended time on the act my scores shot up. Imagine the potential if i was given my actual extended time shit) and the meetings were hell. They started to have meetings with me in middle school, sixth grade i think. Having an administrator there, and my parents, and at least one teacher was terrifying to me. I think i cried every meeting. Honestly it felt like an interrogation to me, esp with all the damn eye contact and shit. My dad asked me if i wanted to continue it this year and i was immediately like fuck no nuh uh not happening. And whether or not I actually needed to be in the front of the room depended on the class, teacher, the people in there, but a lot of the time i would just be moved to the front and i would hate it. In eighth grade my math teacher moved me from the back of the room (a favorite seat in that class) to the front of the room in the middle of class for like a week. It was honestly humiliating and the only time i was eventually able to express my opinion on the 504 shit. Actually my freshman math teacher did that too. Ahaha moving on now before this gets too long.
4/5- three negative and positive things about being autistic.
Pros-
(1) i dont really have a chance to not have a hobby. Ive always got an interest to keep me entertained and i like that.
(2) stimming is nice, i like it, im not afraid to let myself stim. Makes me feel better.
(3) im unique and shit. I have a different pov than other people and that allows me to have different ways of thinking. I think outside the box ig. I also have this weird version of confidence and objectivity that I appreciate in myself
Cons-
(1) its hard to feel like i belong somewhere, bc im so different. Im getting better at it but im not good at getting close to people.
(2) i also like,, dont have certain permanence? Like object permanence? A lot of the time i dont really miss things/people unless im somewhere that reminds me of them. Idk if it’s negative really but its something,, even a spin, like bts, i dont really miss them that much until i do. Theyre still very important to me but yeah
(3) people dont really get me the same way other people get other people. And its hard for me to explain it to people. And theres certain people i get more than others. Its weird.
7- people need to give autistics a chance to be heard. Apply the accommodations you “give” them. Dont put them in the spotlight and give them space when needed. We are what you might call “picky” too. Eating, learning, socializing, we have our own things we need to be able to do shit. Learn them. Let us stim. Encourage us to learn about ourselves and remind us that youre there for us. But dont try to help us unless we ask or we actually need help. Dont trigger meltdowns on purpose, stop using the r word even in passing like its not a big deal. Be more than aware of us, accept us, appreciate us. Dont be a bystander.
8- i dont have much experience with meltdowns? I think? If i have i didnt have chances to recover. I had to go back to class or something. Idk how to recognize them in me either.
10- showering. Thats a big thing that even though i kinda need i forget to do. Except during school. I had a whole routine in the morning and i was super punctual. If i didnt shower i would be late, miss the bus, forget something.
12- meat. The way it feels. Disgusting. How do people eat it and not feel like dying? Same with lettuce. Spinach is fine but every time i try to eat lettuce I almost throw up. Bell peppers, pickles, vinegar, mayo, eggs usually, cheese sometimes. Just off the top of my head. One time i tried putting lettuce on my burger, was feeling adventurous, and after biting down i had to just take the lettuce off. Another time, my stepmom (newly married to my dad) made slads for us, and i was skeptical. There was white stuff all over the salad and she wouldnt tell me what it was. I tried eating a little carrot stick thing and almost vomited. Thats when she learned I cannot eat mayo. Even if idk that its mayo i still cant fuckin eat it. She forced me to eat bell peppers one time. Didnt go well at all. At all.
(Not gonna do the spin one bc ive already talked about them and if i do again itll be too long)
15- yes! I only do big stuff(?)(like yelling n shit) when im completely alone. Like if im home alone. Bc i get so loud. Sometimes ill hum in my room or sing to myself in my room though. Its so fun. As for phrases i repeat, ill repeat anything i find interesting. In a movie or song, or even something a friend said. One time my mom said the phrase “tough titty said the kitty but the milks still good” and i went around the kitchen repeating it until she got annoyed. Also sometimes something in the room will have a constant sound and ill like think a phrase to that sound repeatedly. Idk how to explain it lol. Idk if thats echolalia either
16- rocks. Typical i know, collecting rocks. But i just cant help it. I see a rock i like, i pick it up, take it home. I used to collect sticks. And when i was in elementary school, i used to pick shit up off the playground. Beer bottle caps was a favorite. Apparently the school called my mom about it bc they found my stash and thought it was from home and my parents were drinking excessively. 😬 oops
18- introverted?
19- kinda depends. Idk. I really cant tell wow. I would probably say hypersensitive. Just cause i have a ton of sensory issues and a lot of stuff bothers me. Like types of clothes. And how things are resting on my body. Yeah i guess i am hypersensitive.
20- i used to struggle with self love a lot. And sometimes i still kinda do. But in the past few years ive really started appreciating myself and trying to learn a lot about myself. Its going well id say.
21- empathy. Hmm. I think im very empathetic, actually. I can always tell when someone is feeling uncomfortable in a situation. And when i should tell people to back off of them if they wont say it themselves. And im very uncomfortable when theres secondhand embarrassment. And bullying, in something im watching or reading. Yknow, I actually cant watch mean girls. I just. I tried, i had to walk away bc I couldn’t take it. It also kinda triggers me so theres that. Bc of the bullying. But yeah im very empathetic. Otherwise socially im not good at that.
23- nope. Ive got like no support system other than tumblr and online friends. Apparently my dad refused to acknowledge im autistic and hes my favorite parent. Thats his big flaw though. And if i “came out” to him and said it myself he would probably come around. I know hes not completely nt either. My Opa has ocd, so nuerodiversity runs in the family ig.
While making this i got distracted and went on insta for like an hour oops lol
24- steampunk cosplay? Or college dorm tips? The steampunk one was freshman year, and the college dorm one was fifth grade. It lasted well into sixth grade and seventh grade.
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jkid4 · 5 years ago
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Affordable Housing No Longer Exists in Maryland.
I live in the state of Maryland. Particularly prince George's county, and for the past 5 years I've been trying to find affordable housing even low income housing (as I have a developmental disability and the fact that I only have SSDI left ) for either myself or my parents. Problem is that for the past 10 years since the 2008 great recession, low income housing is practically non-existent unless you're willing to sacrifice whatever things, friends, or things you know left and move to a isolated rural area or take your chances at craiglists.
You know how bad it is? It's that bad that even people at the department of social services are fucking oblivious to the fact that theres a housing crisis.
I came up there to check up on the disability advocate there (which they I found out after calling her repeatively) and inquired about low income housing and section 8 vouchers. They told me that they do not help there and passed me a flyer to the housing authority website and site. The same housing authority that if they take 5 minutes to get on their website they would found out that their waitlists have been closed and public housing is unavailable for years.
Then I inquired about rent assistance. Now rent assistance is technically available, but it does actually exist unless you have children or live in a specific area because the funding is spread out to three non-profit social services, two of them dont process the applications anymore because their programs havent been funded for YEARS.
The social services agent then told me to dial 211. I told them that I did yesterday and they only information they provide are for homeless shelters and they dont provide information for low income housing. Then they told me to dial a code on their phone to see if they can help. Surprise, they didnt because I dont have children.
Before then, I tried to speak to the supervisor to the disability advocate. What they did instead, was they directed me to the person responsible for processing Medicaid applications. He didnt knew why I was here, but I told him about my situation and the fact that social services and another nonprofit for developmental disabilities only gave me a list which is almost all of them are for homeownership!
He was utterly clueless, I told him that I've called these places before many times and non of them helped. He told to keep dialing those numbers anyway. He didnt knew how to help at all. For all intents and purposes, it sent me a message that "we have zero interest helping people who need low income housing".
And as for the shelters in PG county and the surrounding areas, they are all full, even the men shelters (which I do not want to go because I'll be vulnerable there)
As for the resources for low-income housing or places themselves. Its either they told me that theres no vacancies, or their waitlist is practically closed permanently. Maryland has a program for 811 site based housing, but you cant apply to them directly, you have to get a social worker to apply for them and the nonprofit agency responsible for them when I called them only leads to a voice mail. The agency itself has no sense of urgency and just told me to wait 48 hours. Personal experince taught me these days that nobody listens to voice mail anymore and you have to spoon feed the information repeatively to them when you finally reach them.
The housing crisis in Maryland and everywhere in the US for low-income housing has so bad, that due to a willful lack of action and assfarting by the politicians at Annapolis, that your only option is craiglist. And craigslist is crapshoot of scammers and flakes and since so many applicants can apply to one posting, you will rarely if any get a call or a email response back. Also as a person with autism, there are too many stories of crappy roommates and roommates finding an excuse to get rid of take advantage of people knowing if they stand up to them they will be on the streets.
Sadly my only option of "moving" is to pack all of my stuff in a storage bin, and living on the streets. Because a storage bin of 200 a month is cheaper than the time and money it takes to find a decent apartment or house to share or for a standard one bedroom apartment (where the average rent for even a small efficiency is 1500 a month!) because of the abundance of bullshit luxury housing. Worse, I have to stay in the Maryland area because of my threapists, and job coach service I have is trying to help me get a federal job position (which is near impossible even with Schedule A)
All of this could be prevented if Congress and State Governments increased section 8 voucher funding substantially after the 2008 recession. Instead we abdicated this role to craigslist and shady roommate sites.
No one whos in power or has any influence actually cares about the housing crisis or real issues anymore, or about the potential of growth of people with autism being homeless. Tombstones and crying over tombstones are much cheaper and forgetting about the homeless is much easier.
P.S. Please dont tell me "it will get better", it means nothing to me when I evientably have to leave and sleep rough for a long time...
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beanerbrujx · 7 years ago
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FAQ:
First things first, check this tag to see all the asks I've already answered that may not be covered here as frequently asked
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Are you open to IMs?
Always! I love conversations, even if it's with ppl I don't follow/don't follow me, I love talking to ppl
That being said, I have 70+ unanswered IMs, usually it's because I forget to reply and then too much time passes by the time I remember so I just.. don't continue the convo 😅
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Where are your scars from?
In Oct of 2014, a drunk driver hit me when I was on my way to work (I was walking, he drove onto the sidewalk)
Not gonna give graphic details but long story short: I'm permanently disabled with more than a handful of issues as a result of some asshole being a damn idiot (don't drink and drive kids)
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How are you disabled?
Again, I'm not gonna go into major detail, but I have a fucked up right hip/leg/knee, major stomach issues, and a weak heart as a result of the accident
I have chronic pain, fatigue, all that good shit
I also sustained brain damage which results in short term memory loss, and issues with word association/language, so if my sentences aren't making sense or if I forget something that happened, chances are that's the reason
My weak heart means when I say if get too stressed I can die, it's not an exaggeration lmao
You can check out my actuallydisabled tag where I bitch about it
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How do you track IP addresses?
Here's a posted tutorial
Here's the mobile version
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What are your gender/prefered pronouns? 
I'm both genderfluid and nonbinary, and my pronouns are they/them
Here's a more detailed post about my gender identity
I'm very uncomfortable with gendered language, this includes insults such as 'bitch' or 'cunt' because they're both misogynistic in nature and reserved for women in society, regardless of personal usage, I see it as a form of misgendering
This also includes words like “Sweetheart” “Sweetie”, they make me highly uncomfortable because I see them as gendered, however I’m not bothered by “Dude” or “Bro” but that’s just me
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Do you work/what's your job?
Unemployed at the moment due to my disability, I do commissions and sell things on both Etsy and Redbubble to make an income
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How long have you been married?
Got hitched in Jan of 2016 in Seoul 🇰🇷
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How old is your daughter?
She was born in Dec of 2016, you do the math
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Why do you hate X character/X ship?
If I hate something, I will have an anti tag of it, just look up 'anti x' and you'll find the answer
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What type of witch are you?
Mostly forging, as in, I practice with items I gather or grow, be it flowers, herbs, feathers, or stones
I also practice tea/herbal healing and gemstone healing, as well as make/bless charms (which I sell)
I follow the moon phases and due spells accordingly
I dont have a familiar yet, but plan to get one once I have my own home and can properly take care of one
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Why do you smoke weed?
Chronic pain, anxiety, insomnia.. theres like an endless list of reasons tbh?
I smoke maybe 2-3 times a day, depending on my flarups and stress levels
I'm very pro marijuana and highly recommend it as an alternative to prescription medication, however, I also recognize that its not for everyone and would never force it onto any other person
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Who's @artisticsnowfox?
My best friend irl, we met a few years back and now they're basically my daughter's uncle
They're also an amazing artist that does commissions that y'all should definitely check out
Also consider donating to their Top Surgery Fund
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How can you be married if you're aro?
Simple, while I don't feel romantic attraction (which idk if it's caused by childhood trauma, my aspd, or my brain damage ¯\_(ツ)_/¯), I have always (ALWAYS) wanted a family, I've always wanted a child, and marriage isn't just about romance, imo it's more about loyalty and compatibility, and my spouse and I vibe hella well, they're legit my person, and, I also fully disclosed the fact I was aro before marriage and my spouse was 100% okay with it so I don't think it's 'wrong' of me to have a friend that I happen to have matching wedding rings and a child with
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You can't call yourself gay if you're het married
Not an ask but I've gotten this hate message often enough so here's my reply: shove it up your ass
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baek--honey · 7 years ago
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1-50 bitch
well since u asked nicely how could i resist
1. If you didn’t have to sleep, what would you do with the extra time? paint/draw or the like, or knit maybe,
2. What’s your favorite piece of clothing you own/owned? MY HOT MOMS SHIRT THAT I LOST ;n; also the big grey hoodie i have & a pierce the veil shirt i borrowed from my gf that im never giving back :)
4. How often do you play sports? never
5. What fictional place would you most like to go to? The Digital World
6. What job would you be terrible at? probably anything involving extensive memorizing and maintaining information for long periods of time. so basically a lot of things…… or maybe like. working at starbucks cos i cant make coffee OR remember lots of drink recipes omg
7. If you could turn any activity into an Olympic sport, what would you have a good chance at winning a medal for? playing kingdom hearts 2 on easy mode. i would have a good chance at winning because all the people that are good at playing kingdom hearts are gaming elitists that think playing on easy is for losers and if you dont play on critical mode you arent a real gamer :)
8. What skill would you like to master? making an omelet OR knitting
10. What would be the most amazing adventure to go on? some out of town adventure with my girlfriend where money and time dont matter 
11. If you could change one thing about your life right now, what would you change and why? uh i’d like to be less haunted by my traumatic past maybe! or be a few inches taller that would be cool i feel like both of these are pretty self explanatory 
12. What’s your favorite drink? W A T E R or milk tea 
13. What do you consider to be your best find? my girlfriend 
14. Are you usually early or late? way too early. too mcuh time i dont know what to do with it
15. What pets did you have while growing up? hm lets see i had a couple turtles, some fish, i had a gerbil that i got from a friend, an african grey named solomon, boston terrier named Tiny, two white boxers named Floyd & Lloyd, a mix named Macy, 4 chihuhuas named Dude, Pooty, Flout & Chief, and now we have a cat named Schrödinger :~), oh and an amstaff/dalmation mix named EL
16. When people come to you for help, what do they usually want help with? anything and everything but never really asking for advice i guess? its more of them talking about a problem cos im easy to talk to and then me trying to help them come up to a solution if they need it
17. What takes up too much of your time? S L E E P I N G 
18. What do you wish you knew more about? cats!!!! also dogs cos i know a lot but i want to know more
19. What would be your first question after waking up from being cryogenically frozen for 100 years? why am i still alive?
21. Who’s your go-to band or artist when you can’t decide on something to listen to? seventeen or monsta x, exo’s LMR repackaged album
22. What shows are you into? the office, lost, honestly nothing thats still running on tv, i havent watched a show in forever, oh god wait does anime count cos i could write the longest list of anime i love: haikyuu, nge, digimon, noragami ,,,,,,
23. Who has impressed you most with what they’ve accomplished? Seventeen (Hangul: 세븐틴), also stylized as SEVENTEEN or SVT, is a South Korean boy group formed by Pledis Entertainment in 2015. The group consists of thirteen members divided into three sub-units, 
24. What age do you wish you could permanently be? a dog mom & i hope i can make that wish come true
25. What would be your ideal way to spend the weekend? napping on and off in bed with my girlfriend and then going to town for sushi & milk tea and then uhhhhhhhhhhh coming back home to nap some more and then go out for noodles for another date :} oh and a dog would be involved if possible because cuddling dogs is best
26. What’s something you like to do the old-fashioned way? physically writing and sending cards/letters in the mail i guess? i dont know if that really counts as doing something the old fashioned way but i definitely dont get as many cards or anything in the mail anymore. i also like to keep physical hand written to-do lists & schedules and stuff
27. What have you only recently formed an opinion on? how bad exo are at dancing  turtlenecks and scarves. they are good 
28. What’s the single best day on the calendar? october 10th my dogs birthday and also narutos birthday
29. What are you interested in that most people haven’t heard of? asmr??? 
30. What is the most annoying question that people ask you? “did u have a little lamb?” OR when my grandpa asks me anything about his iphone 
31. What could you give a 40-minute presentation on without absolutely no preparation? my dogs or seventeen. OR a half ass presentation about kingdom hearts, trying to explain it while getting around all the plot holes and not nailing down my arguments cos i dont really get it either and theres a lot i dont pay attention to but i could come up with 40 mins of info im sure
32. If you were a dictator of a small island nation, what crazy dictator stuff would you do? no waking until 10am. no crime or anything will be allowed ill figure out some way to make everything perfect so women can go out alone at night and not be afraid. no discrimination !! all the poc, lgbt, disabled, any minority  will be welcome and have safe spaces and any hate will be punished by law. also everyones allowed to have pets in their homes and no home goes without food or power. am i doing this right
33. What is something you think everyone should do at least once in their lives? travel out of your comfort zone. like physically travel somewhere and make the most of it but do it with someone cos the buddy system is important
34. What’s worth spending more on to get the best? jackets. i will pay up to 100$ for a good jacket and wear it forever cos itll be confirmed long-lasting and also most likely very comfortable!!!
35. What is something that a ton of people are obsessed with but you just don’t get the point of? i just want to point out that its not that i dont get the point of it because everyone has their likes and i have my own that other people dont i like that people are into whatever they want to be its just that i am Not into it. and that thing is yuri on ice
36. What are you most looking forward to in the next 10 years? being able to wake up every morning next to my girlfriend and out pets :~)
37. Where is the most interesting place you’ve been? corning museum of glass was super neat……. , dollywood, gatlinburg, chicago chinatown, idk i havent been to many interesting places 
38. What’s something you’ve been meaning to try but just haven’t gotten around to? i wana get a tattoo !!!!!!!!
39. What’s the best thing that happened to you last week? getting a job interview at barnes & noble because now i have a job there!!!
40. What piece of entertainment do you wish you could erase from your mind so that you could experience it for the first time again? diamond edge chicago
41. If all jobs had the same pay and hours, what job would you like to have? all i really want is that job where im paid to sleep 
42. How different was your life one year ago? tbh not that much different?? other than i was in school and now im not. i didnt have a job and now i do. i was a year further away from moving 
43. What’s the best way to start the day? talking to my girlfriend and also let me just say that first pee in the morning. perfect
44. What quirks do you have? what are quirks exactly i looked up examples to help me think of some but all im thinking of is…i cant have the volume on my tv or radio on an even number it has to be on an odd number??? i have to sleep with a fan on. idk dude
45. What would you rate 10/10? [MV] 몬스타엑스 (MONSTA X) _ 걸어 (ALL IN)
46. What kind of art do you enjoy most? abstract w lots of colors and shapes. geometric stuff 
47. What do you hope never changes? my ability to collect myself (unless it gets better which then i hope it does), my passion for art of any sort
48. What city would you most like to live in? anywhere except charleston and somewhere thats not extremely highly populated
49. What movie title best describes your life? Scooby Doo 2 - Monsters Unleashed
50. What’s the best way a person can spend their time? sleeping or hanging out with their pet
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lildeathbug · 4 years ago
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Bet lmao @piipstachio
So first off, I'm paying over 10 grand in tuition a year (it totals up to about 15000 a year, not counting books or housing or gas). And yet I'm still told "you only get two absences a semester! Any more and you'll automatically fail the class!". Excuse me? I'm paying 15 grand a year for classes that I dont even want to take for a degree I do want, only for your ass to tell me I can "only miss two days every five months"??? Even WITH the documentation on my various disabilities that prove that I'll miss classes, sometimes frequently? No.
Secondly, I've had professors outright IGNORE my medical needs and knock points off of my assignments for medical issues that I can't control, while the disability office offers empty platitudes going "we'll talk to him theres not much we can do". Which put me in the position of paying over $500 I didn't have to transfer out of a class that was failing me (illegally) for things out of my control. Literally failing me. My drawing class is separated into two midterms. The first one I failed because my "lines weren't straight enough". Sir I literally have permanent nerve damage causing my hands to shake. Its documented in my student files with the disability office and the Dean. I failed my second midterm for "relying too heavily on a ruler" in an attempt to solve the "your lines arent straight enough" issue. Failing the midterms were the final straw for that class and I transferred out.
A different issue. *none* of the "wheelchair accessible" spots on campus are actually wheelchair accessible. I have to be wheeled to class by a friend because all of the external sidewalks tilt into the road, which means I can't control my manual wheelchair enough to prevent myself from going into a busy fucking street. The ramps are too steep and don't fit ADA guidelines. If you dont have a power chair, you're fucked. The handicap bathroom stalls? Yeah right. They're not big enough for my chair (and I'm very small. My chair is maybe 30 inches wide). I have to leave my wheelchair by the sinks to use the bathroom, because the door opens inward. So I have to struggle to move into and out of the stall, or I have to piss with the door propped open. One of my classes last semester was on the fourth floor. To get there I needed to use the elevator. Which was locked. How do you unlock the elevator, you may ask? By going to the office on the second floor and asking for the key.
Next, I've been to two different colleges. A state funded, free two year college, and the one I'm currently attending which is a private University. BOTH colleges have made it blatantly clear that no exceptions for absences will be made under any circumstance. My current computer science teacher has it in his syllabus that he doesnt care if you go into a coma or get COVID, if you miss the due date you miss the due date. Theres no extra credit and no chance to make it up. This is an inherent issue for someone like me who's in and out of the hospital for various reasons.
Also at my Uni, it's required that you attend 50 credit hours on the campus, not online. An issue when you cant afford a power chair but can barely get around on campus to begin with. A bigger issue for someone like me during the winter semester, when you're autoimmune compromised. Sure, college students are a lot better than high school students about taking care of their health, but if one person in my class is even slightly sick I usually get it and worse. To the point I get strep three times a year like clockwork. But even with a doctors note explaining the strep issue and warning my professors ahead of time, they quite literally do not care.
College is inherently ableist and I'm always willing to rant about it lmao
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deadmantalking117 · 7 years ago
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ONE OF "THOSE" PEOPLE
I'm on Social Security Disability. S.S.I. Medicare. Have been a long time. I'm putting that right out front because what I've learned in the past 35 years is this... Most of Americans haven't got the first clue what that means or what's involved. The staggering amount of misinformation going around out there is truly impressive. So today my diseased maniacs we're going to cover some of that misinformation. Maybe clear up a couple things. This is going to a longer one. Everyone stay frosty! PEOPLE ON DISABILITY ARE SCAMMERS WHO ONLY WANT A FREE RIDE FROM US REAL TAXPAYERS! I've refered to the disability system as ThunderDome. There is nothing easy about it. It's an ordeal like no other. No job I've ever heard of can match the unbridled carnage of working through the disability system! To begin with... you don't just decide.. "I don't feel like working anymore!" Only a doctor can decide that.. several of them actually. Plus a bunch of government types. People hear about disability scammers and think that some lazy dude is sitting around.. drinking beer.. collecting his checks. The real scammers are anything but lazy.. they are usually doctors actually.. and they work their asses off! The people they use are usually ignorant dupes. Getting on disability is so daunting it discourages lazy people from getting it. Even when they really need it. I've known several people who were genuinely sick or injured. But they just gave up because it was too overwhelming. There was a really popular article going around facebook about these people who got disability so they could get free money from some other agency which got them more money from this place..which got them even more money from that place. It was like 10 different money grabs and they were living in a mansion raking in over a quarter million a year. Plus food stamps. These things dont exsist. While some of the programs might exsist. Having one cancels the possibility of getting some others.. there are different agencies that have their own programs.. but unless they were using multiple IDs.. I highly doubt it. And after i show you next, the ordeal to just get started.. you should doubt it too. But if they were able to pull this off.. they worked their butts off for it! I'm not saying it right.. but it's impressive. Years ago I worked for an electronics store. We had VCRs hooked together to copy tapes. A guy came in a couple times to make a copy of surveillance tapes he'd made. He was an investigator for the government.. he followed people who'd been "injured" and tape them. I personally watched 12 different cases of fraud. My favorite was the really hot girl he videoed hobbling out of the court house on crutches. With a neck brace. Cut to the very next day.. in a bikini.. doing actual cartwheels on the beach. He had a dozen more. My point is. Of course there are always going to be lazy people who want to take advantage. But its really not that simple. And not as many people get away with it as you might think. YOU'RE THINKING.. HEY, DISABILITY STILL SOUNDS LIKE THE BEST DEAL EVER! WHERE DO I SIGN UP? You get sick or injured You have to be permanently sick or injured.. Meaning you're never going to get better. If there's any chance you'll get better.. You're out Next you're doctor has to decide that you're not ever going to recover..that usually takes a few years.. hundreds of tests.. thousands of dollars. If he doesn't think you're disabled.. You're out Now the fun part. You apply for disability . Send off for your forms and applications. With your doctor's blessing you gather up all your medical records from all of your doctors. And oh yeah.. if you only need 1 or 2 doctors.. You're probably out. When I started applying.. I had 3 file boxes with records.. just the past 2 or 3 years. I imagine that's a bit different today.. computer records weren't around then. But if you do apply.. You'll still need lots of your medical information at your fingertips. You get your first official government envelopes. Actually big stuffed things with information pamphlets and more forms than you've ever seen. Massive amounts of new information that you have to learn. More about forms later... Be sure to read and fill out EVERY line.. every space. Write neatly. Spell check. If theres any confusion on any questions... Or any missing info. They can't read or understand what you're writting..You're out. Start over again. Somehow you've done it.. all your forms are filled out neatly and correctly.. you've provided tons of proof about your illness.. you've provided them with every single scrap of financial information about you since you were born. You have your doctors blessing.. all 3 of them in fact! They now know everything there is to know about you.. seriously.. EVERYTHING . Those forms are extremely comprehensive. No one disputes your claim.. everyone agrees.. you are disabled. You get your reply after maybe 90 days DISABILITY DECLINED Because of course! Everyone gets turned down the first time.. or two. It's kinda built into the system.. by turning down everyone at first.. it weeds out the scammers! Remember that lazy beer drinking scammer.. he's done with this shit. He just spent the past couple months working his butt off for NOTHING! But not you.. You're not faking it.. you are seriously sick. You can barely get out of bed some days. And you have a family to take care of. So.. You file an appeal.. and you have 90 days to start that.. so get to it! You send in your appeal application and sometime in the next 90 days or so. More giant envelopes arrive with more forms. And more information to absorb. But whats funny? A lot of these forms have the exact same information as the forms you've already filled out! They already have all this information.. remember that after the first round.. they know everything there is to know about you.. but ok fine.. we'll tell the tale again. And you submit your appeal.. this time it's a bit easier.. but still time consuming.. and don't forget how sick you still are. This is it! You get your official government envelope. APPEAL DENIED You look at your 3 boxes of files. Your two file folders for your copies of the applications and the appeal.. plus the separate file for all your current financial info. All your financial info has to be current. Every utility bill.. bank statements.. credit cards.. receipts.. you have to prove where every dime goes and it must be up to the minute. You just wanna go have a beer with lazy scammer guy now. But cant do that! You got a family to take care of.. and you've barely been able to work at all the past couple years. Besides.. now you're kinda pissed. No one disputes that you should be on disability.. except apparently uncle Sam. Time to get a T.V. lawyer! Disability lawyers serve a useful function to the system. Their job is to review all of your information and get it up to government specs. When you hire a disability lawyer they don't charge you to take your case. They'll only take you if they're sure you're actually disabled. That's because they only get paid if you win your new appeal. The good part about applying for disability is that everything starts from the date of your first application. Meaning, once you do get approved.. you usually have a couple years of back pay coming. The lawyers get a quarter or third of that first check. You get say ten thousand dollars.. they get three of that. It's actually a good deal for both of you. The lawyer doesn't have to do much. You've already done every bit of the work for them. They review it all. Make sure you dotted your T's and crossed your I's. Then pretty it up and file for round 3. It's a good deal for you.. because if a lawyer does take your case on contingency.. You're probably going to get approved (eventually) The hearing before a disability judge. You meet your lawyer again at whatever government building your hearing is being held in. And she leads you into a conference room. You chat for about a half hour or so before the hearing starts so she can review your testimony. You're going to have to to convince a judge that you're sick.. not just with your boxes of files.. show him what that means for you. My lawyer told me.. if you feel like you have to have a bowel movement. Or you get nauseous during the hearing.. be sure to ask the judge for a break. These hearings are stressful on people. Especially people with Crohns. So dont hesitate to ask for a break. ( ok.. I thought.. thats aweful considerate.. but I'm fine right now) The she took my hand and looked me in the eyes. Speaking very slowly and deliberately she says again...You need to be sure to ask for a break if you feel any need to go to the bathroom at all. Understand? ( aaahhh.. ok got it ! Wink,wink, nudge, nudge, say no more!) The hearing last less than an hour or so. The lawyer and the judge review some legalese. Most of what they're talking about is gibberish to me. After a half hour.. I asked to be excused to go to the bathroom. I actually did have pee a little. But afterwards while we're walking out she smiles at me and says.. that went well. Finally after almost 2 years I got approved! But thats only the start of the real work. Now I'm officially one of "those" people. A drain on society.. a sponge.. a parasite. At least now I can be sure that I have a few hundred bucks coming in each month. I still work part time.. You're allowed to make less than a thousand dollars per month in income when you go on disability.. so the very most I can bring in between my S.S.I. and whatever I can still earn is maybe 20,000 dollars per year. This is what they mean by living in a fixed income. We're livin large now baby! But the more important issue is.. I have some kind of insurance finally! But theres so much more in store for you. YOU'VE DONE IT.. YOU'RE ON DISABILITY. THE CASH IS ROLLING IN AND THE DOCTORS ARE GETTING PAID. IT'S MILLER TIME! RIGHT? Not quite. Over and over you'll get envelopes from good ole Baltimore Maryland. Home of the social security administration. They need this.. or they don't have their copy of that. Random letters with some new form. The thing about government forms is.. their meaning isnt always clear. They seem a little convoluted sometimes. "Add the total of lines 17b to lines 17c and 17h. But only if it is in direct opposition to the tertiary algorithm from form 3768-d. You may need to reference your proprietary issuance schedule to access the proper formula to make this claim. (U.S. Government Form 6009)." I don't know how they could make that any clearer.. I'm just saying.. I'm not really that smart. Which one was line 17b again? Regular updates on your income from the local offices. Gotta bring copies of all your newest bills.. and oh yeah.. that 3000 in stocks you saved from your last job? That's gotta go!. You can generate income from stock ownership.. You're not allowed too much income remember? And we need to double check every bank accout you have.. verify that you dont have a dime. The guy who checks under your mattresses will be out sometime on Tuesday. Then of course the reviews. Occasionally they'll want to have you checked out by their people to make sure you didn't accidentally get better. Now, because my disease has been well documented for 35 years and it's incurable. I've only had 2 reviews. The first one after a couple years. He just reviewed my charts. And signed off. No exam .. no tests. Barely said a word. My last one was about 3 years ago. He was awesome. We went into his office and just made fun of the system. He couldn't believe I was there. He gets paid by the government to check the patients the computer sends to him. He said.. "I get a few people in per week that have incurable diseases.. what do they think is going to happen? I'm going to say wow! His intestines grew back.. he's all better now!" He said he did get some questionable patients. They get completely retested for whatever they supposedly had. But the vast majority were legit. We had to spend a half hour together for the interview and records review.. we talked about movies for 25 of those minutes. One more thing. Never change your job. It confuses everything. "You mean.. You're working less hours at a more convenient job. And you still aren't making over $1000 .. right? We'll need to see all your financial info since 1954. " But I wasnt even born til 59! "Oh.. in that case.. we'll need your 6472-g25 Waiver issuance request. For amortization of residual issuances notwithstanding any prior findings of such issuances. (U.S. Government form 77684)" OOPS ! I DID IT AGAIN - I THINK I MIGHT HAVE SCREWED SOMETHING UP. usually with all the forms flying back and forth. The government is actually quite reasonable about you handing in your homework. On most forms and information requests. You get like 30 days for this or 90 days to reply to that. But always more than enough time. If you do screw up something, you get a warning shot.. but honestly I wouldn't push it.. Keep up with your paperwork.. be timely. Once there's a problem. It takes time to iron it out. You may not be getting paid while you do. Years ago.. we had moved to a new place in the same town. My checks have always been direct deposit. So I never thought to file with social security.. stuff got forwarded automatically anyway. But one month. My account is empty. And I call to ask why. They've temporarily suspended my check until they could investigate potential fraud. Right after we moved. The very next month actually. The street we used to live on got it's name changed! We had lived at 133 main st.. but now there was no such place. I could prove that I was in fact living now at 768 elm st. But the previous 5 years? How could you have been living at 133 main when there's no such place? So I had to go down to the local office and explain that 133 main st. Is still there... it's just called 133 terrace ave now. I offered to drive the guy over and show him the house. But he was familiar with the situation already and was actually able to get into the system and fix it. Next month I got 2 checks. A DEAD MAN'S REVIEW OF THE SYSTEM The Social Security system is actually as far as I've seen and in my vast experience . Not all that bad. It's kind of an unwieldy beast. And I'm sure there are many areas that could be improved upon.. but there's a lot to say good about it. After a couple years of grinding persistence. I got in. No one ever for a second denied that I was disabled.. like I said. It's just how it works. Once you're in.. there's still work to be done.. lots of it. But you can deal with that. For doing your homework on time. You get a check on the third of every month. Without fail. I have direct deposit. I cannot recommend it highly enough. Your check goes in promptly on the 3rd. And in months where the 3rd is a weekend or holiday, you get it earlier. In the bank. No waiting for the mailman. Medicare takes care of your doctors. So you don't have to stress over all that. They keep all your records. I just go to my appointments. Or the ER. Or hospital. The doctors know what Medicare covers. Medicare takes care of the bills. Better than any insurance.. I don't have to stay in network. No pre approvals. No deductibles. Usually no copays. Insurance companies are a horror to deal with. And they can say no anytime they want.. it's their job to deny coverage. I've never been denied treatment, ever. When I had heart issues out of the blue last year. I got wheeled through a battery of tests. Never saw a bill. I get statements from Baltimore that say on the envelopes NOT A BILL. I'm sure there are many things that require some discussion. But all the regular stuff is covered. Prescriptions are usually a dollar or two. Government employees.. contrary to popular belief.. are usually efficient and helpful. The vast majority of people that work for the administration are quite good at their jobs. There are people who suck at their jobs.. in every job. Even doctors! ( Dr Pencil Mustache) but the main issue with employees at social security offices is. There are so many claimants and so many rules.. and so much paperwork. Bring a book! Usually they're quick getting you in and out. Say.. better than the DMV. Not as quick as the post office. But then the post office doesnt have to deal with "form HG563-d/5 special dispensation for administrative assessment facilitates as they pertain to cost distribution for the amortizing schedules for the year 2018. (Reorder form 7887)" so they got it pretty easy over there. Being one of "THOSE" people used to bother me a lot. Being a welfare parasite, feeding off the teats of good hardworking folks... It's embarrassing for people to know. And the reaction from some people is scary. Most people understand that - I didn't do anything wrong. They're glad we live in a country where we try to look out for each other. And everyone agrees that things could certainly be improved upon. But some people are cruel. It would be better if I just threw myself onto a funeral pyre and saved the taxpayers some money. But the thing is.. I'm a taxpayer too.. for over 40 years.. and I really enjoy irritating assholes. So.... Dead Man Talking!
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mechanicalriddle · 8 years ago
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okay i just saw someone kind of confused on the difference between gene therapy and eugenics so lets just outline the separation between the two here
gene therapy:
-totally voluntary medical treatment
-potentially used to treat previously untreatable genetic conditions. this means things like cancer, autoimmune disorders, diabetes, cystic fibrosis, asthma, ect. ect. could also mean finding a permanent cure for things like AIDs and hep c
-would be used to significantly improve quality of life for people with chronic & debilitating conditions, specifically things they would much rather be living without
-enables chronically disabled people to significantly ease their financial burden by paying one time for a gene therapy treatment rather than throughout their entire life trying to mitigate the damage
-again, is completely medically consensual/voluntary
eugenics:
-involuntary, someone else is making your decisions for you
-systematic and unnecessary erasure of chronically disabled people who are human beings & deserve the best possible quality of life they can achieve whilst having their condition
-implies that certain human lives are intrinsically more or less valuable due to circumstances beyond their control
-advocates for things like forced sterilization & actual literal murder of human beings
-super fucked up for a lot of reasons
like, i have autism. if someone came up to me and was like “we have found the genes that control autism and we can cure you of your condition” i would be like “uhh, fuck no” and that would be the end of that. if a eugenicist said “you have autism & your genes are inferior so we are going to kill you to make the rest of humanity stronger” i would be like “a. thats very subjective and b. fuuuuuuck no” and then i would punch that person in the mouth
“but what if they try to use gene therapy to cure things like learning and intellectual disablities!?” wellll... is that disability causing undue pain and/or suffering to the person affected? would they rather live without it? if no then theres no fucking point of using gene therapy on them because their condition isn’t actually affecting their quality of life, they are perfectly happy, healthy & fine and dont need it!! it’s literally that simple
like im sure if you went up to someone with CF and said “hey so you have this thinbg that causes mucus to build up in your lungs and cause you horrible pain+slowly kill you. BUT. we have this new treatment that makes it so That Doesnt Happen” there’s a decent chance that person would say “hey, sign me the fuck up!”
that doesn’t mean that the person with CF does not, in the meantime, deserve access to medical care that makes their lives as happy and pain-free as possible. it just means that now they can live their lives without a painful and debilitating condition if they so choose. maybe some people wouldn’t want to do that, and that’s cool! there’s nothing wrong with that. again, the key piece in here is voluntary vs. involuntary. let people do whatever the hell they like with their bodies.
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askjennie · 8 years ago
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what should i do?
 i need advice. i’m in my late 20s/disabled depressed & unemployed. trying to get govt help but no luck im in this one program but they stopped calling me should I call back and bug them? I’m also considering college advisers but idk they’re my last resort i dont know where else to turn for help No other relatives care. I’m desperate and wish someone would give me a chance.. im running out of time. and I hate how my cousins family come here from overseas with 0 exp and get asked if they want to attend school or work and 3 months later they’re doing better then me in a year. my mom she’s mid 60s basically, and she wants to retire to her home country taking me with her permanently. thing is I don’t want to go and live there because why go from 1st world to 3rd world. i wanna go forward not backward there its no resources for disabled ppl and they’re treated like shit. also it’s hot I hate bugs no good shower gotta bathe outside no plumbing plus wifi over there its shit and how can i watch my tv shows, go on tumblr for escape.. and my cousins there got there own lives to live so I won’t see them much. I rather stay here in usa and be homeless with food stamps then in a shack box with incoming tsunami warnings . what should I do? find a way to stay here or suck it up and leave forever somewhere unknown while being forever depressed and suicidal. plus she says ill get more freedom.. like really? when i was there for “vacay” i didnt do shit got invited to the beach couldnt go, movies nope, library nope even walking across the street nope also kids there wont stop staring at me and calling me names and saying “go back to your country you filthy american we dont want you here and i get thrown rocks at :( plus feral dogs and cats with high risk of disease if i got bit which i almost did theres no good medical help and they show up late like i witnessed both from someone else. plus excuse my horrid grammar my writing skills arent proficient since its apart of my disorder. what should i do?! i got six months left to figure it out im also trying to apply for jobs even though i have no exp apply anyway? all i have is name and address thanks.
Jennie: It sounds like you really want to stay in the USA, and so that’s what you should work towards. Call up the program you’re in and bug them. Be persistent. Talk to college advisors. Look up charities related to disability, mental health or poverty in your area and see if they can offer you any support. Definitely apply for jobs. Even if you have no experience, you can write a resume based on your personal qualities and skills. You can talk to managers at places you want to work and let them see that you’re determined and enthusiastic about the position. It might not be easy to get a job. But if the alternative is moving somewhere you really don’t want to go, shouldn’t you try your best?
You’re in a tough situation. Use the next few months to find out what you can do to make it a little better, and how to make it possible for you to stay in the country you want to stay in. 
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2tsrwzsba-blog · 5 years ago
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Car insurance claim on injuring a previous injury?
Car insurance claim on injuring a previous injury?
I have been going to a chiropractor for a few weeks as he thinks I have a herniated disk in my lower back. His adjustments seemed to be helping a little bit, but I was recently in a car accident and have aggravated the disk once again. Having been the other driver s fault, will their insurance pay for my future back treatments?
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youregonnasurvivethis · 8 years ago
Text
help me
Anon writes:
i need advice. i’m in my late 20s/disabled depressed & unemployed. trying to get govt help but no luck im in this one program but they stopped calling me should I call back and bug them? I’m also considering college advisers but idk they’re my last resort i dont know where else to turn for help No other relatives care. I’m desperate and wish someone would give me a chance.. im running out of time. and I hate how my cousins family come here from overseas with 0 exp and get asked if they want to attend school or work and 3 months later they’re doing better then me in a year. my mom she’s mid 60s basically, and she wants to retire to her home country taking me with her permanently. thing is I don’t want to go and live there because why go from 1st world to 3rd world. there its no resources for disabled ppl and they’re treated like shit. also it’s hot I hate bugs no good shower gotta bathe outside no plumbing plus wifi over there its shit and how can i watch my tv shows, go on tumblr for escape.. and my Cousins there got there own lives to live so I won’t see them much. I rather stay here in usa and be homeless with food stamps then in a shack box with incoming tsunami warnings . what should I do? find a way to stay here or suck it up and leave forever somewhere unknown while being forever depressed and suicidal. plus she says ill get more freedom.. like really? when i was there for “vacay” i didnt do shit got invited to the beach couldnt go, movies nope, library nope even walking across the street nope also kids there wont stop staring at me and calling me names and saying “go backto your country you filthy american we dont want you here and i get thrown rock at :( plus feral dogs and cats with high risk of disease if i got bit which i almost did theres no good medical help and they show up late like i witnessed both from someone else. plus excuse my horrid grammar my writing skills arent proficient since its apart of my disorder. what should i do?! i got six months left to figure it out im also trying to apply for jobs even though i have no exp apply anyway all i have is name and address thanks.
••••••••••••••••••••••••••••••••••••••••••••• Anon, it sounds like you have a lot of things on your plate! I sympathize with you in more than one way and while I’m not an expert, hopefully I can help you make sense of some things! I’m unsure of what kind of disability you have. Can you go out and do things on your own? If yes, don’t be afraid to apply to all jobs you think you’ll do ok at, even if it is flipping burgers. No job is degrading if it’s paying for the roof above your head. That’s how you start getting experience. You say you’re in your late 20s so you’ll have an advantage as far as getting a job at places like that. In fact, you might be able to move up fast BECAUSE of your age. But don’t quote me on that. You seem to be into technology too. Why not apply at Best Buy? Or Gamestop? Or Target’s electronic section (?) or something that might interest you? Having goals, as small as they are, helps you get out of bed every morning and try your hardest. Go to the mall and walk around. See if there’s a store that’s hiring and consider if you would like to work at that store. It’s tempting to go after the jobs that offer the most money but if you have no experience, it’s a waste of time. For now. You’ll get there. It also sounds like going back to that other country with your mom is absolutely not an option for you. So that’s that. If you don’t want to go back, whether it is because it’s a third world country (it sounds like it) or because of racism (also sounds like it?) or because you plain don’t like that place, you should actively try your earnest to stay here in the US. How? Well, if your mom is leaving, you’ll need a place to stay. Again, I’m not sure about your type of disability, if it’s mental or physical, or how much it stops you for doing every day things. If you can start by getting a job, a simple job that doesn’t pressure you that much but pays enough, that would suffice. Unless you get a pretty good no-experience-required job, more than likely you won’t have enough to afford your own place by yourself (Don’t feel bad about this. We all start somewhere). Roommates might be something you’ll have to look into. You talked about College Advisors. I’ll assume you’re going to college. Is there a way you can live on campus? Work at the college? Even some community colleges will try and help you out. I’d definitely reach out to College advisors. It might feel weird to open up to them but you never know. It sounds like you need all the help you can get and you’ll be surprised by what they can do. I’d also keep bugging the government regarding the help you’re requesting. But be smart and polite about it. If you do get a hold of someone, get them to tell you how long you should wait, then go back and keep bugging them until you get answers. For example, I am fighting my own battle with the government. They told me to wait until the end of this month to hear back from them. If I don’t hear from them by then, I’ll be right and early at their offices, calling, emailing them, spamming their mail, whatever it is i have to do until I’ve exhausted my resources. I know it sounds simpler than what it is and I’m sorry you’ve reached that place where it feels like there’s nowhere else to go. This might not mean a lot right now but you’re not alone; we’ve all been there. An as cliched as it sounds, once you’ve reached the bottom, there’s nowhere else to go but up. So now that you’ve set the card on the table, develop a plan. -Family won’t help? Start trying to look for help somewhere else. Don’t spend more time wasting resources here. -Government won’t reply? Keep at it until you get answers. -No experience? No problem! Choose a simple job that requires no experience and that you can enjoy. -Third world country not an option? Good, look into all options that can keep you here where you feel comfortable. This is your life! Of course this is all up in the air. But even if things don’t go your way, at least you’ve tried. And that doesn’t mean that at that moment is when you’re allowed to give up. You HAVE to keep fighting for what you want and what makes you happy. The fight will never stop but it will be worth it. Things do get better from time to time. It’s worth being around for those moments when things pay off, even if it is in ways that you don’t expect. Hang in there, anon. I really hope this helped somewhat.
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