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The Reformation Hendrix Silk Dress
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By Jamie Coulson
A doctor from Leeds who developed long Covid and the debilitating effects of ME has said NHS patients like her have been “left to rot”.
Becky Williams, 34, first caught Covid in March 2020 and has been left house-bound ever since, with her symptoms including extreme fatigue, brain fog and pain.
Dr Williams, who said she had "lost my job, lost friends, lost my independence", has joined about 200 other healthcare workers who have signed a letter calling on the government to provide better support for patients with these conditions.
The Department of Health and Social Care said the government would “ensure patients receive the care they deserve”.
Dr Williams initially developed long Covid, but for the past two years has also met the criteria for ME (myalgic encephalomyelitis), also known as chronic fatigue syndrome (CFS).
Often developing after an acute viral or bacterial infection from which people are unable to fully recover, ME has many overlapping features with long Covid.
It is estimated at least 250,000 people in the UK have ME, which affects multiple systems within the body and which can lead to symptoms like fatigue and a flu-like malaise, though the ME Association believe that figure is likely to be "significantly" higher.
Dr Williams said: “I’ve lost my job, I’ve lost friends, I’ve lost my independence, my ability to drive and to look after myself. I can’t even wash my own hair."
'Safety concerns' Dr Williams said she had signed a letter organised by campaign group #ThereforME calling on Health Secretary Wes Streeting to improve care.
The letter asked Mr Streeting and the government to acknowledge that gaps in NHS care for ME patients were leading to "serious patient safety concerns".
According to the letter, "patients at the severe end of the disease spectrum are bedridden, sometimes tube-fed and confined to quiet, darkened rooms due to extreme light and sound sensitivity".
"In the most extreme cases, patients languish behind closed doors with little or no support," it added.
Dr Williams said: “I feel we’ve all been left to rot - which I know sounds dramatic - neglected and not being listened to."
She said the campaign would "give us all a voice", including those who are who are so severely affected they are "generally left unheard".
A Department of Health and Social Care spokesperson said: “This government will ensure patients receive the care they deserve.
“We are committed to improving the care and support for people with long Covid, myalgic encephalomyelitis and chronic fatigue syndrome.
“We recognise how devastating the symptoms can be, and the significant impact they can have on patients and their families."
The spokesperson said the government "welcomes applications for high-quality research to understand the causes, consequences and treatment of ME/CFS and long Covid".
"We are actively exploring next steps for research in this area," they said.
#long covid#covid#pandemic#mask up#covid 19#wear a mask#coronavirus#sars cov 2#public health#still coviding#wear a respirator#covid conscious#covid is not over#covid isn't over
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A good result with the top 2 & longest 2 letters in the Observer back in August by ME advocates [Karen Hargrave and Emma Gore-Lloyd, Founders of #ThereForME & Dr Charles Shepherd, ME Association] following Alistair Miller's rubbish.
I don't consider the effort of other people who wrote letters such as myself wasted as it could have helped encourage the letters' editor to post these letters
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Quo heat expired, and pain, I adore
I know’st what days unto higher so long thus shrank cloud. Close beauty’s love, in which all the savacious ill curious
mind! I wept, methinking old Khayyám and pleasures to my own and recall i’d to the contains hoary. A verse dreamt
I said, as yet your breast thine world; approximated, she drreams do reioyce. Little set its amazements of her to
dull and chirping wolde shadows of both with little road luckily I dote them fairest my guideth his Life to ape
the luminine: they are not, their place? Stella alone, o Annie, descent of his very prime. Full motionless the
found thrills. Any Muse antique, bought thy face come, I bade morning back in regret, condes on this silence would not do
show must beg in a monk made a stony glen the dust foe in country-folk acquires called is. Quo’ heat expired, and
pain, I adore? When thereform with the bed.—As the tongue with oath, can sat and revolt, and thine owners calm of Caitive
air weary of Shalott. Of new-made my soul of streams? With Earth in only thy ruffles are alike, evening rills.
#poetry#automatically generated text#Patrick Mooney#Markov chains#Markov chain length: 5#212 texts#ballad
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thereformation
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Nope. It is an intersexist slur that many intersex people reclaim. Unfortunately the radfem community has tried to steal it, but at it's core it is an intersexist slur, and thereform can be reclaimed by intersex individuals. Any other further meaning are misinderstandings or false information.
heads up since i saw you reblog from one as a source, "baeddel" is a word people are using to identify themselves as individuals who want transmascs out of the trans community, because they think they have access to the same oppressive power structure as cis men do, and are therefore dangerous. (and this is not correct because transmascs are, obviously, not cis men)
Uh. This is kind of confusing to me, since I’ve received misinformation campaigns as anons before. @midnight-soulless-system , have you heard of this?
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Little boy friend appreciation post goes out to @mylifeispainandmisery 💕 you make me so happy and make me smile all the time like an idiot😅. I love it 💕. You make me the happiest girl in the world baby. I love you happy almost 1 months feels like its been years "one and only" 💕.
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#MANYTIMESINMYLIFE #IFELTSOALLALONE #SEEMEDLIKENOONECARED #HADNOSHOULDERTOCRYON #THATSWHENYOUMADEIT #CLEARTOMETHAT #YOUWEREALWAYS #THEREFORME #YOUWEREALWAYSTHERE #YOUHAVEBEENRIGHTTHERE #FRIENDSCOMEAND #FRIENDSMAYGO #WITHHARSHWORDSAND #BROKENPROMISES #SAIDTHEYDNEVERLEAVE #SAIDTHEYLLBERIGHTTHERE #BUTYOUWEREWITHMEJESUS #THROUGHMYTHICKANDTHIN #YOUWEREALWAYSTHERE #YOUHAVEBEENRIGHTTHERE #OHJESUS #JESUS #YOUHAVEBEENRIGHTTHERE #PICKMEUPEACHTIMEIFALL #YOUVEBEENTHERE #WHEIDIDNTHAVENOBODY #TOCALLONJESUS #YOUVEBEENTHERE #WHENTHEYTURNEDTHEIRBACKSONME #ICALLEDONYOUJESUS #YOUVEBEENTHERE #THROUGHITALL #JESUS #YOUHAVEBEENRIGHTTHERE https://www.instagram.com/p/CSyWW_WrAOa/?utm_medium=tumblr
#manytimesinmylife#ifeltsoallalone#seemedlikenoonecared#hadnoshouldertocryon#thatswhenyoumadeit#cleartomethat#youwerealways#thereforme#youwerealwaysthere#youhavebeenrightthere#friendscomeand#friendsmaygo#withharshwordsand#brokenpromises#saidtheydneverleave#saidtheyllberightthere#butyouwerewithmejesus#throughmythickandthin#ohjesus#jesus#pickmeupeachtimeifall#youvebeenthere#wheididnthavenobody#tocallonjesus#whentheyturnedtheirbacksonme#icalledonyoujesus#throughitall
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My only friend and true lover 💙 You might kill my liver but you make me feel more alive then life itself. Plus, you've never let me down. Thank you, Aunt Vodka. For being the only one to stick by my side.
#vodka#alcohol#friendship#truelove#onlyone#thereforme#lonely#tired#drinking#havingfun#mypicoftheday#fuckeverything#amsterdam
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Lauryn said it! #laurynhill #careforme #thereforme #patient #kind #unselfish #withoutlovewearenothing #tell https://www.instagram.com/p/CMRBbV6lES6/?igshid=16qvqnnc5t96j
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🔴NEW RELEASE 📻🔥 Here Is A Taste Of What Is Coming In Just Few Weeks.. LISTEN and DOWNLOAD FREE🖍️ leave a comment🙏 MY SOUL DESIRE - Obus Zalee https://www.gospelnaija.com/music/my-soul-desire-obus-zalee . . . . . #mysouldesire #youaremysouldesire #albumtrack #project44 #jesus4life #thealtarfellowship #ocometothealtar #altardstate #altarsofinstagram #asiam #asyouare #powerbelongstogodalone #iknowiknow #godofmiracle #thereforme #christianmusicchallenge #gospelmusician #innerroom #secretplacehusbands #worshipathome #throneofworship #upperroom #parishouse #unusualpraise #unusualworship @johnnyena @mofedamijo @ablaze_dc @kunleayo @austin_ighobue (at Chevron,Lekki Peninsula) https://www.instagram.com/p/CBah35ihAa9/?igshid=6cpgupbwd7m9
#mysouldesire#youaremysouldesire#albumtrack#project44#jesus4life#thealtarfellowship#ocometothealtar#altardstate#altarsofinstagram#asiam#asyouare#powerbelongstogodalone#iknowiknow#godofmiracle#thereforme#christianmusicchallenge#gospelmusician#innerroom#secretplacehusbands#worshipathome#throneofworship#upperroom#parishouse#unusualpraise#unusualworship
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When your precious friend takes you to high tea and gives you a birthday present in your brand colors!! She was there for me during the thick and thin of my breast cancer-someone whom 10 years ago we were “newish” friends but that didn’t stop her from being a solid reliable person for me and my family to count on during that time! #thereforme #donitamambear #branding https://www.instagram.com/p/B4sX_OQgCBJ/?igshid=unxztbhkgmzd
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Great Diwali offer This Diwali bring home the most valuable book of the world " Way of Living "
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Saint Rampal Ji eradicated
● #castism
● dowrysystem
● intoxication
● gender based unequality
● corruption
● robbery
● Killinganimals
And Many malpractices that were curse to the society.
#social reform#reforms#reformer#saintrampalji#thereformer santrampalji#8thseptember avatarandiwas#dowry#robbery#intoxication
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Oh may join there strife
The Publick Plot he rise, oppose all out of farce! Most summon, and waved it. Scarce could not much sad, that heiress in lamps of the store, her feat oaths affiance’ of death were he doom and blythe wide quite not blinded under part wherein t: but wouldn’t move should keeper to sliding far: first those loads of the dead. In spite of lawless my Moscow, and silent mething
brevity. Who, like a change south. I hunt his Curse frowner’s jealous God’s own: that ape thousand hardly lurks the strings to ocean, like gold or either woe: thereformations knew by traint all, himself to speak; it harvest represt which man what’s some sworn that to entant as siluer settled love: they press’d; give to points, but, I find beauteously, indeed, then, must country
sky shooting Time rest Silvia, yet be a Worth has left. Two in the had left aching before accountries of Native courtesy not quickeries, and salue force from Power, fluid, and convulsions were lov’d a dole of they say,—for that necks to Don Juan stupid sobbing stormless: two boat an host, or some other taste my dearer than People whose
softest, and tall girdle save us: the appetites Hearts from please, and smooth Death any manhoods and they had sworn against the sky, and their average chains debarren Princes, groundelay’d by dainty theatres benched to rest. Not losing to me, I have for thee: the Day—so the time. He world? Whither rate; t was, no doubt, that some partings a breath’s perman,
or who first thy Name is digging Fevers boyish limbs; and love. My revenge, consequence: but Thanks of Lebanonian custom of the paper. White, bound die, had strike needs a good old Instinct in her with me though the sky save the Gold, until fair on the bird has ever looks like other, and ward; whilst the Sagan of these. Water, that white, his resident
still mock’d, the world drove in public lecture, you dost rich flow began is alphabet on which shown, since the heart of his gore which Eve had for wave a train in grace me swoln tongue in the bet and scarce-clad in other, as the gales of man, or lands leap, and watchestrain intervals of ease, cheerefull part: so, either’s in soothe accompaniel, spite of brother—
and the boulded, just in a gasp comes their Mothers; others, which make his isles, and in around in me thou will back down their own, there; such small resides away, maid, saying, taking there is for naughtening through cold far to take he man his peculate Queene. Full lie— Anthea, I am to my bosom and here impressing sense flows closets up and
was a falls. And to speak. The will back down thee, where surprize, and we’ll chance; or he too; if just a stand; till down upon the sweet, when, let us dies were such she captive succeeds th’ Indian-summed it round: the tips of rain, you could man. Lately changeable, rich. But others in me thou camst, fly twanging hour I to none, stella, which speak ill as bases
for those Janizaries, plants with seems, do handsome good their royal bloodless days, where laid her drew her father’s ocean, abjure thence? Than added; she with the Tenement, because than alderman when my manhood topple from death many, or Crown. Rain arts fulfil you as Cuddies and song neuer cause, that first have know. With themselves the Sage than make mended
with the oscillating hand all of these was she grow, to whatsoe’r desires: then they feelings, univers, love sometime afternoon I was Passion from the devil is nothings past. Soon enough man who was a smile on the craueth been capitulation hold fin indispossessionists were store, nor invent’s and flower the Love’s face. The grave, when
locks so the visit, was he grace. The invitation: follye is burn’d him, whose weird doth breezes sweet’ I like a victor, thus, here London’s Heart, smiles, and other dwells, the Pigmy Body which is fold upon that whom young bees, wi’ mischief, and me! By a Puff of heavens once to feede thou go well on a little who head, and fall: and name terms accurs but
mockeries of Woman for lose mine. But, which of my heart still but their Fortune stream’d full bowre these are but this is the captive contend; and might lies: or sat, with crabbed with devil are as happy house, because of wars a stump—stand; but Government ingloriously seats; but the was perfect so to that love, to least prime, so that being at a tree, and secret
infected that is, thy griefs to maken the world. Even soaring-dew of remembers such other tales, but by each serenest than going the leans, a brothers mayst the strange the glass shore; fair and around thus the moment heart that she though all the same; my scatter was beat apart, as we sat, with Descent’s won’t move? It fell,—rages but as a thicken
much men make the threes, tread, and down—will be, to have me—ever remove, horace and nail me lie, as he dawns, of Candia, Corah, the byrd, they conceits, am but at my pray’r. Me to a merely no more. State, for Laws, with a Pasty than the witelesse world in an absolute him wind bleat faults his a And strikes the but in the high to four.
#poetry#automatically generated text#Patrick Mooney#Markov chains#Markov chain length: 5#129 texts#ballad
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#mybed #thereforme #goodandbadtimes #inlife #tuesdayvibes https://www.instagram.com/p/BwBdzFPlySA/?utm_source=ig_tumblr_share&igshid=1ia7zky4ca6pb
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