#the good news is my fibromyalgia pain is almost gone cause everything else is worse now

[xxlelaxx]

The woman kept not understanding me ... I think I made her day harder. I feel so bad for it

[piasservicedogfund]

Dear Ellen,

I hope all is well with you!

I know you are busy but I wanted to take a moment to try and share my story with you - as I have said before on this blog, I know there are causes more worthy than mine but I think my story is important nonetheless because I’m sure there are many women other who have a similar story.  So here I go...just to give you a quick idea of who I am, my name is Pia and I am a 28 year old German / American citizen who lives in a tiny German village on my own (well not completely, I do have a 10 year old rescue pug named Benny & a 19 year old rescue persian named Emerald Anastasia von Cuddlesworth - aka Aunna or Aunna Banana). I grew up a military brat and don’t really have a home town, I was born in Lebanon, TN but didn’t stay there long -- in fact, I’ve never lived anywhere longer than four years so I don’t really have a ‘home town’. My family and friends are spread out around the world, with my closest relatives being an hour and a half away and my parents being at least two flights away in Gallup, NM.  I originally started this blog only as a fundraiser for a service dog to help me with my newly diagnosed auto immune disorder but as time has gone on I hope to have it serve a higher purpose as well; I want to raise awareness for a couple of things...

1. I want to help spread the word about the rare auto immune disorder that I was diagnosed with (more on that below) so that others who might be suffering with this disorder can get answers too. I also want to talk about life with an invisible disability / chronic pain or chronic illness. So many people suffer silently or face back lash when dealing with something that others can’t see. It’s time to end the stigma against invisible chronic illness / chronic pain. Just because you cannot see it doesn’t mean it isn’t there - we must all remember to be kind for “everyone we meet is fighting a hard battle”.  2. I am also a domestic abuse survivor and I want to let anyone else who is stuck in an abusive relationship (whether it is verbal abuse and manipulation, physical abuse, or both) know that no matter what life throws at you - you deserve to love yourself, to protect yourself and to fight for yourself... 3. I want to talk about Gender (and other) Bias in medicine because it is a VERY real issue that needs to be addressed! So here is a little more of my story... On June 5th 2020, after 2+ years of searching for an answer as to why I was sick and in pain all the time, I was finally diagnosed with a rare auto immune disorder called ANCA Vasculitis, or antineutrophil cytoplasmic antibody-associated vasculitis. ANCA Vasculitis is the name of a group of autoimmune conditions characterized by the inflammation of the blood vessels caused by the immune system mistakenly attacking them. There are several types of ANCA vasculitis and the exact cause (genetic / environmental / etc) is unknown, so patients diagnosed with ANCA vasculitis may display varied symptoms. The disease affects about 1 in 50,000 people. Due to the generic symptoms many of us have (chronic pain, sore throat, cough, cold and flu like symptoms, headaches, etc.) this disorder is often over looked. Many people don’t receive a diagnosis until something major has happened (organ failure for example). This disorder can be deadly if left untreated and too many women (and men) have symptoms like the above brushed off...especially if they have a history of mental illness or are dealing with a lot of stress as I was; 

I first started searching for answers to my growing health concerns in 2018. I had just moved from Germany to Scotland to start my life over - I was finally leaving my abusive spouse with the help of my amazing parents - I had my first “grown up” job with Hilton Corporate and was going to work and get my Masters Degree (I have a BA in Anthropology and was hoping to get my MSc in Animal Welfare Science, Ethics & Law at the University of Glasgow or at the University of Edinburgh). I was so excited to start over! So excited that I may have pushed the trauma and emotional scarring of my abusive marriage down for the first few months I was there and everything was peachy. Of course, those moments of bliss could not last forever. Still, I was settled in a new country (which BTW I had never even been to Glasgow prior to moving there) and I felt relatively safe for the first time in over a year - here my spouse could not find me or hurt me. I began seeing a therapist to help me unpack the trauma of my past. Of course, I was worried what people would think - as I’m sure you can imagine my spouse’s version of why we were getting a divorce was very different from mine so I tried to keep everything as quiet as possible. I didn’t want to deal with any backlash because, in his eyes, as always, everything was my fault. It wasn’t the fact that he had wanted to kill me at one point - nooo that certainly wasn’t why I was leaving (sarcasm) - In his eyes it was because I wanted an older man or because I just wasn’t willing to try to fix things...(even though I was the one who had suggested marriage counseling in the first place). It wasn’t the fact that he’d isolated me or cut me off from our finances. No, nothing was ever his fault... Even now, when I no longer have contact with him or his family I am afraid... This is the first time I have openly spoken about our marriage and divorce and as I have begun to tell my story I’m terrified that he’ll try to contact me or that I will receive backlash from him or his family (I am sure many of them would take his side and call me a liar...). I am speaking out now for two reasons - the first was because I only think it is fair and right to be completely honest about who I am and how I ended up where I am now if I’m going to be asking  my family and friends for financial assistance and two because I want to help others who are or were victims of abuse. When I finally came out with my story a friend contacted me and told me she had been through the same type of situation with her spouse and it was a really lovely moment - we’d both been suffering in silence for fear of back lash but had now found each other.  Anyway, back to the matter at hand... The first symptom I had was pain, chronic pain all over my body. My back, legs, arms, knees, ankles, feet, wrists, you name it - it hurt - and it kept getting worse and worse. I was having to take pain killers every day just to get to work and come home. I was extremely tired, no matter how many hours of sleep I got (6, 8, 10...) I was always tired. Then I started having headaches that would last for hours, then for days, then for weeks. I started to feel like I had a cold (on good days) or the flu (on bad days). My throat was sore, my voice was hoarse, I was congested and then I started having night sweats or trouble controlling my temperature (freezing even though the heat was on and the electric fire place was going). When I spoke to my doctors about my concerns it was written off as stress, depression, or anxiety. Whenever someone in the office I worked in got sick (you know how it goes around in an office environment) I would get sick too... my co workers would feel unwell for a few days, I would feel unwell for weeks. I then got strep throat but the doctors said I’d be fine with a few days rest. A few days went by and it turned into bacterial tonsillitis. I had to have multiple rounds of antibiotics. Then I had a stomach infection that lasted for over a month, a cough that lasted for months (November 2018 - March 2019). At one point I was coughing so hard I thought I would pass out. I coughed till I puked. I coughed till I pulled a muscle. My blood work kept showing elevated levels of inflammation / signs of an infection but since doctors didn’t know why they told me it was probably just fibromyalgia (something which shouldnt’ be diagnosed until all other possible causes have been ruled out). The rheumatologist in Scotland said there was no cure but I could do yoga, meditate, and maybe take an anti depressant... I felt like I was dying - I didn’t understand how I could feel so sick and no one seemed to take me seriously or care. A year and a half later (June 2019) I decided to move back to Germany - Brexit was looming and I just wasn’t happy in Glasgow anymore. Everyday was a struggle, my bus commute to and from work often took an hour and would leave me in so much pain I could barely get up off the couch at the end of the day. Plus work was not happy with all of the sick days I’d had to take. Keeping in mind that I felt sick everyday and I only took sick days when I had a high fever or wasn’t able to talk or walk.  My parents lived in Germany at the time so I found a job where I could work at home in Germany and moved back in hopes of finding answers.  A few months after moving back to Germany my parents sadly had to go to the US so I was once again alone in a new area. In November 2019 my cough returned and I was sick again with an unexplained “upper respiratory infection”. Once again I was put on multiple rounds of antibiotics which didn’t help - To make things worse I am allergic to almost all cough syrup and since I was working in a call center I was off work sick. The cough lasted till mid January this time and I lost my job. Work “understood” that I was going through a tough time and “felt horrible” for letting me go - they said I could reapply when I was “healthy”... and to top things off, my emotional support animal of 8 years, my baby girl Biene (a 11 year old Australian Cattle dog), my rock and constant companion, was then diagnosed with cancer and passed in December of 2019.  I have to admit that these have been some of the hardest moments of my life... I have felt like such a failure and disappointment. I was an adult, I was supposed to be married and adopting kids (I’ve never wanted biological children due to my health issues), I was supposed to be getting my masters degree and leading a successful career, I wanted to travel and I wanted to be a source of positivity and happiness in the world... but instead I was broke, alone, grieving, depressed, anxious, and continuously sick... I have had to rely on my parents financially and have felt like a burden...I wanted to give up...but I kept fighting. Life gives us new reasons to keep living. I had a few great moments, I was blessed with a few opportunities for travel and have enjoyed those moments. I have great friends and family who continued to support me and who told me I was not a burden on their lives, so I kept fighting. I felt like my new German doctor wasn’t taking me seriously and once again was chalking everything up to stress and then later to grief (over losing my dog). So I found a new doctor a little further away and she listened to me - for the first time in a long time I felt like I had seen a doctor who actually cared. She helped me get in with a rheumatologist and she advocated for me. She agreed that my blood work constantly showing elevated levels of inflammation / infection - for over a 2 year period - along with me constantly feeling unwell wasn’t something to just be ignored but was an important symptom. While she had no idea what was wrong with me she was determined to help me find answers.  In May I finally went and saw the rheumatologist - at first I thought all hope was lost, in our very first meeting she said to me “ I don’t think there is anything wrong with you”. She had barely looked at my paperwork and had barely listened to my symptoms. They sounded too generic for her...she didn’t think ti could be anything “rheumatic”... I was so young... It was probably stress... I’d heard it all before; but still she did her job, she ran the tests and a month later I was suddenly called back in for another appointment. My blood work showed what I had known all along - that I was sick - that I needed help and she admitted that she’d been wrong.  It’s only been 12 days since I was finally diagnosed but its been a roller coaster of emotions for me - relief and validation - fear and anger and sadness... my life has so not gone to plan. I have struggled with depression and anxiety since I was 12 and the added stresses of the instances above, and the near constant pain (both emotional and physical) have not helped, but I refuse to give up. I’ll be completely honest with you, some days I don’t even know why - some days I only fight because I love my dog and cat and friends and family and cannot leave them. Other days I fight because I have dreams not yet realized.  So, yeah, I started this blog because I hope to raise enough money to get a service dog (and this is still a major goal of mine) but I hope it will become something more. My friends and family have been so generous during this difficult time for all of us and have donated what they can. So far we have around 700.00 raised of the 10,000.00 euro goal. Reaching the 10,000 euro goal seems nearly impossible ... at least it seems impossible without help...but I have faith.   If you have taken the time to read all of this I want to say THANK YOU. I know your time is precious (as is everyones and I appreciate it). I was wondering if you could share my story? Help me raise awareness about ANCA Vasculitis and other Chronic Illness? Help me raise awareness about domestic / emotional abuse and how it may seem impossible to overcome, but it is not and help me raise awareness about Gender (and other) bias in Medicine? I have a few posts here on my blog that talk about bias in medicine and I could provide you with a 100 different stories from men and women who are constantly battling against this bias to try and get help... and maybe , just maybe you could help me save up enough money to get a service dog? Within my blog everyone can find information on how a service dog could help me, how to donate, and more information about ANCA Vasculitis / Gender Bias in Medicine & I will soon be posting information for victims domestic abuse. Thank you so much for your time. I know that was a lot.  Lots of love from Germany,  Pia

P.S. I promise to pay it forward someday when I am in a better place. In case you’d like to know what some of my dreams and goals for my life are:  To adopt / foster / rescue / help animals in need. To adopt or foster children one day (If I can).  To help further civil rights movements like BLM and to help LGBTQ+ youth. To help further clean living and reduce waste.  To be a light for others who are suffering.  To perhaps one day own a bed & breakfast or cat cafe. 

[kaylabliss]

Medical shit

My new rheumatologist, upon inspecting me at our first appointment this morning:

"Wow! You have tiny hands!"

"You've got a very small throat.... And your neck is really short."

Gee, anything else you want to point out? 😂

He was genuinely surprised by my hands, but he had a purpose for commenting on my throat and neck-- he feels almost positive that I have sleep apnea, even though it was previously ruled out with an at home sleep study. His opinion is that home sleep studies are "total crap." He said that if I don't have sleep apnea, then mild narcolepsy is a possibility. So he referred me for an in-house sleep study.

I haven't given any health updates in a long time because there frankly hasn't been anything to update on. After seeing the rheumatologist at Group Health and getting nowhere, not even given treatment for my symptoms, I got depressed and gave up. But now I'm getting a second opinion, and it sounds like he'll still follow me for fibromyalgia even if we still don't turn up anything autoimmune.

As a refresher, or for anyone curious who wasn't following me at the time, in 2015/2016 I had a positive ANA, which is the primary marker for autoimmune disorders. I had gone in because I started having severe unexplainable foot and hand/wrist pain. Follow up with a rheumatologist showed only mildly elevated markers for autoimmune disorder (sed rate and CRP, but all the primary markers were negative). (Also note: this is how I made the transition from Fitblr to shitposter, because I couldn't exercise anymore due to the increased severity of my symptoms.)

I was diagnosed with fibromyalgia when I was 22 by an ARNP who refused to do blood tests or refer me to anyone because I was uninsured (and being long before the ACA, I didn't qualify for any kind of insurance). She wasn't even familiar with fibromyalgia, but I told her that my mom was just diagnosed and she had the same symptoms as me, so she downloaded a trigger point chart from the internet and poked at me before saying "it looks like you do have fibromyalgia, but I don't believe that actually exists." She put it in my chart anyway. She ordered Savella and they had me start the paperwork to get it free from the manufacturer, but they lost my paperwork. I never did get any treatment, or even advice, and had to find my own way (fortunately my mom helped since she was getting proper care for her fibro... From the same doctor's office, oddly).

Because of the way I was diagnosed with fibromyalgia, plus the positive ANA (which would not be present in fibro alone), I was really questioning whether it was fibro to begin with. But my new doctor did confirm that I definitely have fibro, regardless of whether I also have an autoimmune disorder. It's comforting to have that diagnosis made official by a doctor who actually believes it's a legitimate syndrome. He even went over the new markers they've found in brain scans and spinal fluids.

So we're rechecking my ANA, CRP, ESR, TSH, plus new CBC and metabolic panels, plus a urine test (which is good because I've been having pain in my kidney area, and last time that happened it was because I had a kidney infection caused by a UTI). If anything other than the ANA comes up abnormal, we'll set up an immediate appointment. If everything comes up normal, I've got an appointment in November for follow-up.

If everything is negative and we do the November appointment, I'm going to request drug therapy at that time. I need something to control the pain. I was taking way too much ibuprofen and had to stop because it was making my reflux worse, so I switched to Tylenol but that does jack shit. I have a stash of morphine for when I get unbearable pain. I take magnesium and such. So if I could get Cymbalta or Lyrica, and maybe a stronger muscle relaxer (I have methocarbamol and it does nothing... Used to have cyclobenzaprine but it knocks me out for two solid days, so I need something in between), that would be great.

I really really love this rheumatologist, he seems amazing. I tend to have a lot of problems with doctors, many assume I'm a drug seeker because I'm young and complaining about pain, but he doesn't seem to have that bias. I'm looking forward to working with him.

[clamonnaturalhealth]

Multiple Sclerosis Major Improvement

this is from friend that has adult MS, she bought a bottle about 5 days ago…….. Oh and by the way… We got in them drops last week and we both been taking them twice a day now for about 5 days now… And it seems to be helping Heather… She was able to walk Walmart today better than she had been and she has been able to pretty much stop taking her moloxicam & neurotin…

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From Jennifer

I just burned the heck out of my hand with a flat-iron while doing my hair. I put one drop of Hempworx on it and it stopped the burning immediately, and this is the Peppermint! I thought the Peppermint may make it hurt worse, but nope! I totally recommend this for something as simple as burns. It works! Update: No blister today!  Read on the rest of these testimonials are truly amazing, too!!!!! For more information or to place an order go HERE.

Susan shares:

Long testimony! I have suffered for 20 years from fibromyalgia, horrible headaches, super tight painful muscles, stiff joints, depression and anxiety. Most recently March 2016 I suffered a hip injury, started limping which caused greater trochanter bursitis, tendinitis, and I have been limping ever since. This caused problems with my SI joint, muscle spasms in my legs, and plantar fasciitis. I have gotten injections every 4 months just so I could continue working. My quality of life sucked because I was in so much pain. This wonderful woman ordered some CBD oil for me and told me to take it. It took me 4 days to try it and the only reason I did was because My pain kept me from sleeping and I could barely get out of bed. I started out with half a dropper full of 500 mg and It started working immediately! I could feel my muscles instantly relaxing. I’ve been taking half a dropper 2x a day for 2 weeks and I feel like a well oiled machine! I don’t have any joint pain at all and I feel like my whole body moves so smooth. I am not limping anymore and my plantar fasciitis is better. I don’t even think about taking my anxiety medicine because I feel so calm. My headaches are almost non existent and I can go for days without ibuprofen or Tylenol. I am in such a good mood because I feel great! This stuff is a miracle and I wish I would’ve found it sooner. All this stuff didn’t happen overnight..it happened gradually so give it time to work and take it consistently. Thank you God! CBD Oil Is it Legal? What is it? Will it Help Me?

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From Kelli:

HERE IS MY PERSONAL EXPERIENCE::: Well, folks. Its been a week since i started giving Sierra the CBD OIL in place of her 20 mg Adderall 3X daily. I guess i should start this by telling you all that Sierra has ADD/ADHD/ & ODD. While the pills do work, they have horrible side effects, such as thoughts of suicide, depression, sleepiness,and not to mention the horrible mood swings, plus many more that i wont go into. Sierra isn’t quite 15 yet. She has always been on the Honers Roll and been a top student. However, she can sometimes be mean, both physically and emotionaly. I researched this product for months. After all, I was going to be giving it to my child. After seeing other parents sharing about the results that they were having i decided to give it a try. I absolutely HATE giving my child her prescribed medication almost as much as i hated the side affects it gave her. For the past week i have been giving Sierra 5 drops in the morning and 5 drops in the evening. I stopped the medication completely before doing this several days before hand. Her and i both noticed a difference on day 2!!! Not only did i not have to fight with her to take it, but she actually said, “Hey mom, do i take that calming oil again today?” That is NOT normal for her. Within just a cpl of days of taking this oil her mouthing and meaness has all but subsided. There is no more anxiety, her ADHD/ADD is non existant to those around her, and her ODD is nowhere in sight. I cannot tell you how happy I am that i gave this product a try. I am now taking it myself for my pain from my endometriosis and since i started taking it i haven’t taken any over the counter or prescribed meds for pain. I absolutely love this oil and i fell so very grateful that i was introduced to it. All You Need to Know About CBD and Anxiety (Infographic)

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Hey everybody!! I have something new to add….I started using hempworx for anxiety, depression and chronic pain. It has worked fabulously for all of those! I’ve been taking it for 2months and in that time it feels like my body has been refueled!! My pain, shaking, anxiety and depression have completely disappeared but never in a million years did I think it would do what it’s done for my skin!! Not only do I feel healthy but I look healthy too!! It has evened out my skin tone as well as diminish wrinkles!! Also, water is tasting exceptionally good and so is fruit!! It has revived cells that were inactive!!ive used all of the products now and my life as well as my outlook on life has completely changed!! Thank you to hempworx and all the helpful people involved!!! It’s truly amazing y’all!! I have started taking a dropper in the morning, half of a dropper in the middle of the day and a dropper in the evening! I feel wonderful!! I’ve been searching for this feeling for years and now I’ve found it!!

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From Christy: i have been taking the 500mg oil for just over 4 weeks. I have had great results with regaining my clarity, less anxiety, energy level is up, and fewer night sweats. I have also noticed how my finger nails have become harder and grow quicker AND my hair feels thicker and darker. Anyone else experiencing less gray?

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Hello. My name is Glenda. I’d like to share an experience that I haven’t seen here. Today is Tuesday. Sunday night I felt the manifestation of a cold sore, a fever blister, on my lip. I put a drop of HempWorx CBD oil on my lip before going to bed. Yesterday morning, the swelling had gone down and there was no pain. Another few drops throughout the day (maybe three total). Today, Tuesday, completely gone! I love this stuff! Thank you for being patient and showing me this marvelous product which I now share as well. Blessings to all.

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From Jenny .. “My personal testimony: In September of this year, I was about to marry the man of my dreams but my body was so uncooperative. I was on 14 different medications. I was chasing symptoms and side effects. I was miserable, stiff, and in pain all the time. I was about to get married and just barely even mobile. I did a lot of research on different brands. I finally decided to try Hempworx. I started with just 5 drops of 500mg 2x a day. I worked my way up to a full dropper 2x a day and decided to move up to the 750mg. It took some time to really feel a difference. It didn’t happen overnight. After about 3 weeks I started noticing that I was taking less pain medication so I cut down on the long-acting dose I was taking. Over that next week, I started cutting down on everything. Currently, I’m not on ANY extended release pain medication, no NSAIDS for inflammation, no sleep meds, no acid reflux meds. I take my Humira injection weekly and my 2 meds for diabetes and that is IT. From 14 meds down to 3 in a 3-month time frame. My advice to you? Be consistent. Give your body time to adjust to the changes. Don’t give up, you can and WILL feel better!” Fibromyalgia and Chronic Pain, explained, Including CBD Oil

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  Last week, I followed my gut and took Ryan off ridalin, with his doctors consent. He would come home agitated and filled with anxiety and just did not want to be anywhere. No appetite which I was told was normal and loss of sleeping. Headaches and imagining bugs and over moody started to appear after being on it for 6 months BUT he was getting amazing results at school which is what I wanted. Don’t we all want that for our kids.

Last week I decided that was enough, I miss my boy, doing good in school wasn’t worth it. So I reached out and got some ordered. I talked to her back in September but it was working so I wasn’t completely on board just yet….I did my research. I thought it was illegal…BUT ITS NOT!!!! Look you the farm act, CBD oil does NOT have THC which is why you can buy it in Minnesota

The first day of switching with his new meds that aren’t a controlled substance and the oil, his body was adjusting….he did not have a good day. But Tuesday no note was sent home, his school work was done and he was his normal energetic self! The third day was the day it hit me, he got off the bus just tired and Hungary. He’s only in kindergarten, that’s a long day…..I listened to him complain, I put the drops under his tounge because he likes how it makes him feel and five minutes if that complete 360….we were talking about his school day and what he drew and my plans for the night which he didn’t fight me, he was just happy and calm I’m sharing my story because I know alot of children are affected with these controlled substances and it doesn’t have to!!! #cbdoil #itworks #miracledrug

No more Xbox or screens to just make it through the day!!! He’s just happy to be alive and around us again.

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For more information or to place an order go HERE.

DISCLAIMER: The information here is NOT medical advice. Do not institute any changes in your current health programs without consulting your Medical provider. For medical advice please consult your private physician or preferred health service provider.

DISCLAIMER: So as per FTC Regulations I would like to let you know that I do have affiliate links throughout this blog. The links provide me with a small percentage of commission but do not cost you anything extra. I (Elizabeth) is also a participant in multiple Affiliate Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking.

DISCLAIMER: These statements have not been evaluated by the Food and Drug Administration. These products are not intended to diagnose, treat, cure or prevent any disease. The Food and Drug Administration (FDA) considers non-THC based hemp products to be “food based” and therefore legal without a medical marijuana license.

CBD Oil Testimonials (more from Hempworx amazing stories of healing) Multiple Sclerosis Major Improvement this is from friend that has adult MS, she bought a bottle about 5 days ago........