#steven johnsons syndrome

[metamatar]

apparently im lucky to be alive! ahh

[jameslongforjimshortforgabriel]

me and the bad bitch I pulled by being autistic (seducing her by singing the entirety of blackboxwarrior-okultra as if it was a flex)

[the-count-and-the-raven]

YALL WHAT I MISSED APRIL FOOLS ????

I FROGT TUMBLR EXISTED FOR ONE DAY

AND IT JUST HAD TO BE APRIL FIRST

Fuck

[lifblogs]

SJS GRWM/Information

[raffaellopalandri]

What Am I Most Proud Of in My Life

Daily writing promptWhat are you most proud of in your life?View all responses I am most proud of having become able to live an (almost normal) life despite my many life-threatening allergies. These allergies could have easily become barriers, preventing me from working, living freely, and helping others. SJS and TEN – Image taken from Internet However, I have managed to control and navigate…

[eggsistential-basket]

instead of listening to normal people music I've been listening to shitpost edits of will wood music

[neuroticboyfriend]

my grandma is staying with us and i was worried she'd react badly to me being disabled & a mobility aid user, but she's actually really understanding. she had sydenham's chorea as a child and stevens johnson syndrome around my age. so she understands what it's like to be disabled so young, and she's still affected by those conditions (and many other conditions) today. yay grandma <3

[heathenistic-moron]

Hyperspecific Poll time

[magentagalaxies]

ah yes the five members of kids in the hall

[a-star-that-fell]

seeing how many loops of blackboxwarrior i can complete before my psych calls

normal pastimes

[felixies]

hello so as you know i was in the hospital for a few days but what you don’t know is that when i got discharged i ended up being taken back the next day in an ambulance. i’ve been home now for a week and my body is still healing and recovering but i am doing a lot better!! i’m still very uncomfortable so being on my laptop is hard but i will be starting the @createskz queue again tomorrow, of course i will not be starting it from where i left off (i’d be queueing for days if i did that) but i will try to go back as far as i can. i’m sorry i missed so many posts and if this ever happens again i will make sure to ask for help!! thank you all for understanding 🥺

[lifblogs]

Symptoms From My Prednisone Being Mishandled

Fainting

Swollen face (had issues seeing the other day because of how much it swelled up)

Fluid retention in neck and shoulders (feels super stiff and makes it hard to eat, sometimes I feel like it’s choking me)

Migraines

Twitching muscles in face

Stomach upset (I am on three stomach meds to try and keep me comfortable)

Leg weakness (having so many problems with stairs)

Acne (worst acne I’ve ever had in my entire life)

Stretch marks (which look like they’re going to split open. One of them already did)

Insomnia

Weight gain

Muscle cramps (potentially, the pain could also easily be my fibro)

Lips—and occassionally my gums—taste salty (yeah, that is a super weird one)

[raffaellopalandri]

Stevens-Johnsons Syndrome (SJS) and Boiled White Rice

As someone with life-threatening allergies, my food options are extremely limited. So, while I don’t have a favourite recipe – I do not have a favourite anything – in the traditional sense, I do have a deep appreciation for the foods that I can safely enjoy. That being said, one of my most frequent meals is a simple bowl of boiled white rice. Photo by makafood on Pexels.com Its versatility,…

[bellyachez]

Not me skipping my meds so the appetite suppressant and nausea side effects kick in

[aro-bird]

Having had SJS before is still freaking me out. I get mini-panic attacks now whenever I have to drink new prescribed medication even if I had previously been fine with it before because any medicine that doesn't agree with me could probably kill me now haha

[conatic]

Elle reste 17 jours dans le coma après avoir pris de l’Ibuprofène : “Les médecins m’ont dit que c’était un miracle que j’aie survécu” - La DH/Les Sports+

Source: dhnet