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notmuchofarolemodel · 4 years ago

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music- sia’s movie

originally written on jan 24 2021

I can’t believe i’m writing about this. again.

So, if you didn’t already know, Sia directed a movie about an autistic girl, starring Maddie Ziegler. This is problematic for so many reasons, including the fact that Maddie is allistic (not autistic), Sia did next to no research on autism before directing the movie, and after announcing the movie, she took to twitter and attacked autistic people voicing their opinions. But she’s done so many more awful things since. So yay, article by me, the sequel. /s

Sia has done a few interviews over the last while about her movie and has responded to criticism about it. (very badly.)

Despite her claims, Sia was never going to cast an autistic actor in the first place. She said:

“I realized it wasn’t ableism [Casting Maddie]. I mean, it is ableism I guess as well, but it’s actually nepotism because I can’t do a project without her. I don’t want to. I wouldn’t make art if it didn’t include her.”

It was also found that Sia said had written a film for Maddie a long time ago- in 2015- which almost certainly means she never had any intentions of casting an autistic person.

The plot of the movie, and a clip have both been leaked since the release of the trailer in November.

‘Music’ falls back on harmful Hollywood sterotypes again, and again- but yet, after it was no longer fresh news, almost nobody but the autistic community was talking about it. It’s still set to be released soon this year, but stereotypes such as ‘autism = special/savant abilities’ as seen in Rain man, and ‘Autistic people don’t have feelings’ - are ones that lead to underdiagnosis, and biases in the professional world.

“We are particularly alarmed that Sia has said it would be ‘cruel’ to cast a nonspeaking autistic person as an actor. It suggests that she thinks that autistic people don’t understand our own lives and aren’t the people who should be telling our own stories. When people tell stories about autism that cut out an autistic point of view, when storytellers view us as objects to tell inspirational stories about, or when autism is treated as a narrative device rather than as a disability community full of real people, the stories that are told fall flat, don’t speak to our reality, and are often harmful to us.” -Zoe Gross, ASAN

Sia refused to refer to her main character as disabled, and only used the term ‘special abilities’ which just further proves how these sterotypes affect people’s view of autistic people. In today’s society, autism is a disability, and that’s not a bad thing. She also described the film as “Rainman, the musical- but with girls”

There are several meltdown scenes in the movie, and one of them has been leaked in a clip. In this, Music is having a meltdown in a park, and she is then held in prone restraint. Meaning she was jumped on top of and pinned to the ground. This was not only unnecessary, but potentially deadly. This film is going to be big, if it gets released, and it was very much made for a neurotypical audience’s enjoyment. People will likely see this movie, and think that restraining an autistic person is ok. It’s not. This is how people get killed. Recently a story came up about Eric Parsa, a 16 year old autistic boy who was killed at the hands of the police last year, after they used this ‘technique’ on him.

Regarding this scene Sia said, “If they [cinema-goers] watch the movie, it will allow them to touch into their compassion. That scene was so important to me, because of all the people staring. I felt compelled to put it in.”

This is why people need to listen and learn from actual autistic people. There’s so much dangerous misinformation out there, and it’s unacceptable. There is nothing ‘compassionate’ about harming people, and autistic people are people. i.e people who deserve the same rights and dignity as everyone else.

Sia continues to further dehumanize autistic people by constantly talking about ‘levels of functioning’. humans are impossibly complex, and there’s no one way to function. In an interview with Sia, nonspeaking autistic people are compared to ‘inanimate objects, like wigs’.

Sia also said “People functioning at Music’s level can’t get on Twitter and tell me I did a good job either.” This is untrue, firstly because, again- there’s no one way to function, and just because a person can’t speak, doen’t mean they don’t have a right to opinions, and feelings (and it definitely doesn’t mean they should be compared to ‘inanimate objects’), and secondly because many nonspeaking autistic people have taken to twitter and social media to tell her she’s done a bad job, she’s just chosen to ignore and insult them.

This whole thing is so infuriating, and it’s very obvious that Sia does not care about autistic people.

“Sia being ableist AF while claiming she meant well is some serious abled savior bullshit. I can’t believe so many people green-lit this project & the press team approved the ‘special abilities’ language. Disabled people clearly weren’t part of this production team.” -Kristen Parisi via twitter

She also claimed she decided to make the movie because she was inspired by a 16-year-old named Stevie that she met at an Alcoholics Anonymous meeting. “Stevie used to sit next to me in the front row at my AA meetings. He was low-functioning and on the spectrum with echolalia; he’s the reason I wanted to make this movie,” she said. Autistic people don’t exist simply to be inspiring or make you feel good about yourself. We’re people, who just want to go about our lives, the same as anyone else- we don’t need a cure and we don’t need to fit people’s idea of what autism is, just let us be, please.

Finally, I’m just going to touch on the question ‘Why isn’t any criticism being directed at Maddie?’ This is because she likely didn’t have much say in the film at all. Keep in mind that she was only 13/14 at the start of this project. Sia also said Maddie was worried that people would think she was mocking autistic people. The film is a mockery of autistic people, but Sia is at fault.

“She had researched her role for two years, we watched movies together, and I taught her the nuances and ticks I had observed from [a] friend [with autism],” Sia said. “We did this in the most sensitive and respectful way.”

I can confirm that that is very much not sensitive and respectful- not to mention that Maddie also watched autism meltdowns as a part of her reseach too (filming a meltdown is incredibly dehumanizing) , but the fact that she learned how to ‘act autistic’ from sterotypes, taught to her by a person who just, doesn’t know anything about autism is awful, but also quite absurd. It makes no sense.

No, I do not wish to watch an abled-bodied actor wear my stims like itchy clothes. A caricature of my being.

No, I do not want to see her dance around in skin not her own, profiting from a life not her own.

No, I do not wish to support yet another film that will profit off the lives of disabled bodies without one disabled body involved. -tiffany hammond

I recieved quite a bit of backlash when I posted the first time about why casting a nondisabled actor for a disabled role is bad- from allistic people, so if any of you are reading this as nondisabled people- I literally do not care if you disagree, you don’t get to dictate how autistic people feel. Try a little harder to get out of your own head and see things from another person’s perspective xx

Now, for the love of God, please don’t watch this movie if it comes out in February, and listen to Autistic voices. : Here is a thread of positive autistic representation instead :)

click here for thread!

Sign the Petition

Filming & posting videos of children's autism meltdowns on YouTube is a clear violation of YouTube's community…www.change.org

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#actuallyautistic #siadoesntspeakforus #siamusic #autism #neurodiversity #nothing about us without us #actually disabled #disabled representation

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