#pots possibly
Explore tagged Tumblr posts
Text
I can't talk right now, I'm doing hot girl shit*
*physiotherapy exercises to help prevent my disability from progressing
#chronic fatigue syndrome#pots possibly#pots community#pots#it seems to be working for me as I took my first walk in the park without my walker for the first time since my faint!#still not a fan of the physio exercises tho. my brain goes brrr
7 notes
Ā·
View notes
Text
Me: despite knowing that I will be in a lot of pain later if I don't do it for the five hours shift, I don't put my knee braces on.
Me five hours later with my entire lower body in enough pain to make me want to not walk around at all:
#heds#probably#hypermobility spectrum disorder#hypermobility#pots possibly#apparently i was around an 8ish on the pain scale when i asked my fiancee to see where#āpushing through it but having to sacrifice some things getting done tonight because i wont do a lot of it otherwise bc of the pain and#being tiredā was on the pain scale. apparently the way i said it described around an 8. i thought i was naybe at a 4/5? lmao#i apparently had gotten to the oint of out of it/derealizing/disassociating/something when i got to my car#took a half hour to just drive the mostly empty interstate and blast music at full volume#and then called my fiancee when i felt real/like a person/aware again#basically when i could turn the music down bc it began to be irritating and overloading instead of comforting.#usually that measn im more regulated. somehow. lol.#chronic pain#if i dont wear knee braces tommorow this only gets WORSE lmaok#also i think i might be developing allodynia or whatever its spelled when touch causes pain?#specifically on my legs. no knee braces means any contact on legs hurts. including clothes š
4 notes
Ā·
View notes
Text
sometimes autism food issues is like "everything except plain pasta tastes disgusting" and sometimes its like you eat a new food, and its delicious, and filling, and even pretty healthy, but then 4 hours later your body is 1000% sure you just ate a plate full of poison.
#dealing with this second one now because i had like. a tablespoon of fancy goat cheese earlier#its so bullshit#ive also had this reaction to: sushi and hot pot#neither of which had any ingredients that should make me sick#and YET#the cheese cant even possibly still be in my system my brain is just a baby
169 notes
Ā·
View notes
Text
If I don't paint for over a month I intuitively believe that I can't paint āĀ that learning how to paint was a weird hallucination, that if I try I'll find myself as clumsy as I was when I was 18, taking my first watercolor class.
I have a big, neither bad nor good, almost complete painting of an iceberg hanging in my room right now and I don't believe I made it. It looks obviously beyond me to have made, or to complete.
(And so of course I don't go into the garage to resume work ā who, me? Why would I do that?)
Not true of pencil drawing, incidentally ā that always seems intuitively accessible.
#rambl#I need to come up with a simple warmup piece and I'll get started again. it's like cooking#sometimes I fall out of it and think 'how could i possibly cook things it's so much effort'#but then i make ramen for myself two days in a row and on the third day I'll think 'I know how to touch a pot... tikka masala tonight'
70 notes
Ā·
View notes
Text
My instructor for my German class copied me on a communication with my academic advisor about my attendance issues and I get it, I get that I've missed a lot of class and that instructors are frustrated by that, but I genuinely don't know what I'm supposed to do when the problem is that I've been physically unable to wake up most mornings for the last several weeks.
Like I've had similar issues before, but it's so much worse this semester (my class isn't until 10:10am, and I live a 30-40 minute train ride from campus, but that's still not that early). I specifically took this class--at this time too--because I thought it was late enough that it wouldn't be an issue, and now I'm probably going to have to end up in a meeting with her and my advisor where I bawl my eyes out about how I really am trying, and that I know it sounds like the worst excuse ever but I swear I'm not just being lazy or skipping class on purpose.
And it makes me terrified for the future, where I might have jobs where I can't set my own schedule, and especially because when your partner ended up suddenly and mysteriously sick with tired-all-the-time-to-the-point-of-being-mostly-bedbound disease, having your own fatigue issues is incredibly scary and traumatizing. We're already in such a precarious situation, we cannot afford my health going south, too.
I don't know. I'm scared and stressed about this specific scenario, but also about, like, life in general, and feeling pretty miserable.
#i genuinely don't know what's wrong with me. like it's probably in part POTS-related but#that's unfortunately also the least helpful explanation ever because there isn't really a ton that i can do about it#and i need a real solution that makes it possible for me to actually go to school and work#because otherwise i am in so much trouble#i don't know. i really am getting worried that i'm going to hit a breaking point soon. this semester has been. not great#and i haven't even started in earnest on my grad school applications that need to be done in like. a month#but like. i am barely staying afloat. when am i going to have time#anyway. suspect i will be crying a lot this week
34 notes
Ā·
View notes
Text
POTS magic masterpost
(Postural Orthostatic Tachycardia Syndrome)
A collection of tips and suggestions from and for magic practitioners who have POTS!
*To be used in addition to proper medical care, medication and mundane efforts, not as a sole alternative.*
Salt + electrolytes:
As you take salt pills, say a spell or blessing.
Incorporate salt into general health, wellness, and energy spells.
Draw sigils on your salt shakers.
āI drink a lot of electrolytes, and Pedialyte to help with orthostatic issues, and I will cast over my drink much the same as I do for tea, coffee, water, etc. So any spellwork for drinks could easily apply to one's electrolytes or water.ā (x)
Tips and tricks:
Ask for specific strength to your blood vessels and brain.
Draw sigils on your medication bottles and mobility devices.
Carry around a resilience sigil or a sigil to keep your heart rate and blood pressure at a more average level.
Do little enchantments on your compression stockings and put them on a windowsill to charge with solar energy.
āKeeping all of my ingredients in easy to reach spots has also been a big help, specifically places that are low to the ground and don't require me to do much standing or walking around.ā (x)
āWhen using counter maneuvers for POTS, visualize yourself being grounded & connected to the earth.ā (x)
āI find time in nature also tends to ground me better, which can help if stress is a trigger for POTS.ā (x)
āPray to Apollon and Artemis for help at the start and end of the day. Again, this doesn't replace medical treatment, but it can certainly offer a lot of comfort, especially in the middle of a flare-up. For me, stress is a major trigger of my POTS, and I find that praying to my deities makes me calm down much faster, thereby allowing the flare-up to be a bit shorter.ā (x)
Correspondences:
āKeeping a lot of bloodstone and rose quartz around has been helpful to me.ā (x)
āAs far as wandwork correspondences go, I like to use my mangrove wand for POTS-related work, bc of its unique adaptations to a salty environment. (Mangrove has a lot of health correspondences for me, but POTS and menstruation related issues are the two biggest.) Aspen, bloodwood, ebony, lignum vitae, redheart, and willow also have various health-related meanings for me, so I sometimes use those too.ā (x)
Sigils:
Balance my blood pressure
My blood pressure is a healthy level
My heart rate stays average
Ease my dizziness
Ease my lightheadedness
I remain conscious
People respect my diagnosis
Other posts:
Suggestions from @khaire-traveler
The post asking for contributions
Spoonie witch masterpost
Bedridden witch series
Witchcraft for the chronically fatigued
Spoonie sigils (pain + symptoms) (energy + mental illness) (healing + other)
With contributions from:
@moonshoesmoonshoes, @zazathehousewitch, @khaire-traveler, @templemarker, and @the-witch-of-wands thank you!
#spoonie witch#POTS witch#POTS magic#POTS sigil#thank you so much to the folks who contributed! there were so few posts out there that this wouldnāt have been possible w/o you!!
512 notes
Ā·
View notes
Text
my No Problem sweater arriving the day after I get out of hospital, could not have been timed better
#nonsims#noise boys#make some noise#dropout#No Problem#Josh Ruben#soft launching my minor heart surgery news lmao#tldr had a procedure on my heart only to find out it was No Problem#aka my heart is actually perfectly healthy lmao#the Problem is my automatic nervous system but itās manageable#itās incurable but ~manageable~#(IST and possibly POTS on top for anyone reading is interested lol)
32 notes
Ā·
View notes
Text
when you might have a whole three physical chronic illnesses but still dont feel disabled enough :/
#disabled#chronic illness#chronic illnesses#chronic fatigue#chronically ill#POTS#potsie#fibromyalgia#possible#asthma#asthmatic#imposter syndrome
52 notes
Ā·
View notes
Text
Some polymer clay project ideas. Some more subtle, others a little more obvious
#i was thinking keychains / charms again but technically I could also make them little collectible figurines#or the flower pots could be actual flower pots!#since I am just trying out stuff and getting familiar with the materials come talk to me and let me know what you think :D#or if you have specific ideas!#i know next tinothing about polymer clay sculpting at the moment so everything is possible š#bluishfrog art#dteam fanart#dream fanart#georgenotfound fanart#sapnap fanart#polymer clay art
41 notes
Ā·
View notes
Text
Delinquent Basil
Made 4 versions (with/without cel shading and with/without the bg) (rest under cut)
I think I'm finally getting a grip on phone drawing (computer is still my go-to though)
#beginner artist#digital art#ibispaint art#omori#omori basil#omori fanart#tw blood#the crowbar is purely intimidation#I'd imagine his fighting style to be hand-to-hand combat with some reliance on general strength#which he could possibly have from gardening with lifting heavy pots or bags of soil#the sweater is from his grandmother#that's all I have to say for the design#for funsies#maybe it's not with or without cel shading maybe it's cel shading and slightly blurred cel shading#im shocked that this was finished over the course of two days instead of two weeks#yippee
41 notes
Ā·
View notes
Text
It's currently 38 degrees (100 for you usamericans) where I live.
Last week I tried to push through it and do my normal tasks and physiotherapy, but I don't think that's going to be a valid strategy for me the rest of the summer: I'll probably have to spend more time bed-bound than I'd like to (read: 5-10 of my waking hours each day).
I'm thinking of starting a summer challenge for POTSies and other people whose disabilities get worse in the heat, like NaClYoHo (national clean your home month) or NaNoWriMo (national novel writing month). Does something like this currently exist? Any ideas on what the challenge should be?
#pots possibly#pots#pots community#chronic illness#mental illness#myalgic encephalomyelitis#cfs/me#chronic pain#summer
1 note
Ā·
View note
Text
unleashing the same hellscape i did on my notes app here it's my nelvas thinking dump i wrote just for fun and to keep track of what i view them as up 2 this point. Might change my mind on it later on it has a lot of things written in brackets for no reason . it's like ~2500 words long which isn't much but i think i said everything i've had in my mind for now read it for fun if you like to have fun leik me :) And talvas :) And nelothxP
retyping what i said in the tags of those last text posts and rearranging those thoughts a bit: in my train of thought that's been going steady since early 2024 i'm almost certain that neloth might see talvas as the epitome of being morally Clean (before that changes because of neloth's influence over him) and generally pure as a person. pure not used in the Pervert way; neloth is just a veeery big fan of talvas having absolutely no backbone and being very docile when it comes to him. which is r expected traits 4 someone if they find themselves under neloth's thumb as an apprentice, but it being written that he isn't at all catty and defiant to his face is cute. all talvas manages to do is shit talk neloth to others and pray neloth doesn't find out he meant the things he said but also canāt help feeling bad about it, even though neloth doesn't and wouldn't care, if he found out. neloth is happy with being an obnoxious & disgusting person. truly.. him growing obsessed with talvas' docile and innocent nature doesn't necessarily have to add up to him wanting to Taint or Ruin him (and if it happens ((it does)) it's not done on purpose, neloth can't hold that much control and power of his actions in that specific department). he encounters difficulties when he realizes he actually wants that Elven Twink.. it's too far gone to fix anything after he's tampered with talvas' patience and stability, and even then he can't be honest with talvas about anything, because he still wants to hold a great deal of power over him (neloth essentials for survival).
Might be the type to just want talvas to magically(haha) think it's okay that his wizard master desires him and expect that energy right back without talvas actually acknowledging it because it'd make neloth feel insanely cringy and embarrassed.. humiliated.. EVEN. but that's just in a deep deep dark corner of his mind, he isn't stupid. when trying to gain 'access' to his apprentice ("*His* apprentice" is also kinda funny way of viewing his mind too. just cause talvas is working as an apprentice under him neloth probably already feels a concerning sense of ownership over him that makes him feel very good) he can't even make the signs of interest be apparent to talvas because he's insanely inept at being Soft and honest for obvious reasons. he can tell what possibly could make talvas warm up to him even after he treats him like shit for eons but there's no way he's bringing himself to do it (change is embarrassing, especially in their formal dynamic, and especially at his age). so it's a half-assed attempt (actually he's trying his hardestš) to try and make talvas be (at least) less afraid of him. not that talvas has any other place that we know of that he "Belongs" to, he just sticks with neloth regardless of anything. neloth watching him as he sleeps ensues . Guys what do i do to make my apprentice let me hit because all of the eye contact i do with him while gripping his arm or petting his knee isn't helping.Ā
if we were to go back to how that spark is ignited in neloth swamp of a heart, brainā¦ idk, it has to be when he realizes talvas' capability of forgiveness and 'Sucking it up' instead of lashing out at neloth after .. anything, but perhaps physical abuse in particular. neloth a 100% has absolutely no problem putting his hands on anyone, especially someone he sees so often, such as talvas. not that talvas really annoys him (his clear and voiced obedience pleases neloth as anyone can tell), but he just doesn't see it as too much of a big deal. the physical mistreatment that happens once in a blue moon isn't intense enough to scare off talvas for sure anyways. neloth is a bitch so all he can so is smack him at the back of the head (talvas finds it very normal) and slap him if he's feeling festive (something talvas finds kinda extreme but not that it happens often. he sometimes feels like he deserves it, or that neloth is warranted to do as he pleases. he tosses around it being justified or pitying himself, though). May be possible that neloth would realize he Like Likes talvas once he slaps him, mayhaps, for the first time, but talvas' immediate reaction to being treated like that is just sadness mixed with feeling shame for tearing up/crying in front of someone he respects *bishoujo sparkles sfx*. talvas is a delicate soul so he can't hold warranted emotions like that for long, and even tho it's expected of him to be making eye contact w/ neloth in a setting like that, he wouldn't be able 2 bring himself to do it because looking at neloth would make him wanna burst out in tears like a weeeee baby. Booo hooo.. talvas is the 19th century (4th era) damsel that runs out of the ball in tears after no young cavalier invited her to dance. watch this bleed into the most awkward and silent week of neloth's entire life because talvas doesn't even really feel like speaking to him or looking at him, but neloth doesn't wanna brute force the usual respectful etiquette out of him cus he thinks that's just gonna make talvas hurl himself down on some rough rocks at the seashore. Good thing talvas is very spineless and forgiving (especially in relation to nelothā¦ i mean.. who r YOU to not forgive him) so that might just last a day or two. the hurt always stays tho. neloth this is why talvas doesn't wanna smash you.. you might've made some conclusions about what elven twink you like but talvas is just even more scared of you now. was your Pervert awakening worth it. and even if we do backflips and jump thru the point where everything is too far gone for either of them to go back, dude is still too afraid to make out with his apprentice. Deserve. but why though because talvas wouldn't refuse. for what reason? we may never know
^^^ this makes me feel like i love seeing characters i reaaaalllly love (elenwen and talvas in this case) as enigmas in situations where they're confronted with something so ""Intimate"". elenwen's stance on this is final tho cause she's a grown ass woman and there's no way you could reshape her brain. ulfric left her mind plane in SHAMBLES. talvas has more right (in the literal sense) to be erratic or inconsistent with his actions. maybe he likes to be desired. Also i strongly believe that talvas has probably never been in love (for any reason rly but it's mostly him not having actual time for it + not seeing it as something that is important to him at that point in his life)ā¦ i want neloth to be his first experience with Love so that it ruin his view on it forever. can't get myself to say he'd be in love with neloth at any point though. From his standpoint it really should feel empowering and 'nice' that neloth wants him in many ways (ew).. cause that's a man with status.. power.. ability to do anything rly . talvas is in no condition to be playing mind games with him or anything tho so don't get that idea. he's not strong enough of a person to be Tricking anyone or to be Playing with anyone's feelings. neloth would be immune to that, too. neloth can just kinda tell talvas is too good and ā¦ UNTAINTED. talvas wants to see the best in everyone. too bad he genuinely detests you, neloth.. so: he doesn't actually love neloth but wouldn't be happy to see his tombstone either. SO (PART TWO): if you time it right he wouldn't be against getting Freakkkkyyyy with you okay?but no promises
even if @ some point talvas develops indistinct feelings towards neloth cause of neloth's own incessant weird-mild advances it wouldn't have to mean he just likes old men permanently now. actually it kinda does. i can sorta feel it rearranging his braincells and making him unable to normally interact with people in his age range. he probably already had a hard time talking to others in hopes of developing a friendship just cause he's timid but after neloth's nonstop abuse and Accidental romance mind games he morphs into a whole new type of guy. it's hard to notice at first but he'd probably just start to leech off of neloth's prissy and unbearable personality in a natural course of things + neloth is the only person he sees and talks to on the regular pretty much. < this can just be reworded as just the cycle of abuse and whatnot. if he notices an opening in the abilities and Smarts of another person, especially someone his age/younger, he will automatically see them as ummā¦stupid. and also insult your abilities to your face if he snaps. he strikes me as the type to be afraid to say what he really thinks (another consequence of being glued to neloth all the time when all talvas does is act like he totally respects anything he says) and gets scared if anything slips out his mouth but is proud in letting the "Truth" be known because he already figured out you're a lesser being than him. he's just cloning neloth's verbal abuse braincells though he would never put his hands on someone. his desire to be mean and see himself as superior stems from neloth always disparaging him obviously.. talvas 4 that reason is very self conscious of his abilities and doesn't rly think he's all that useful or talented. his self doubt then would play into how he doesn't know when to believe what others are saying to and about him..Ā i wanna imagine that talvas is very oblivious to neloth's weirdo status just cause he partly doesn't even want that thought to cross his mind. i bet everyone but him sees it and finds it grossš but nobody in the vicinity is strong enough to tell neloth that he should be ashamed LMFAO. if you would try and even hint to talvas that it's happening he'd never take you seriously and just get mad. he's protective of neloth's image more than neloth himself is; not that people knowing neloth has abnormal sodomistic inclinations toward his apprentice would make his public image worse than it already is (everyone already thinks he's weird so it's not shocking at all) but talvas still wouldn't wanna hear it cause he thinks it's just false. maybe he's just ashamed that he's being brought into the whole thing. also because he doesn't wanna face the reality EJI23JRIO32KJ Well talvas when neloth makes an actual move on you don't say that we didn't warn you.. we're all waiting till neloth's status as an obvious apprentice-pervert becomes obvious to you
even if he's willingly ignorant of the fact he still thinks of the 'accusations' a lot when he feels like it. and unknowingly begins feeling even more uncomfortable in neloth's presence. heart starts beating faster and everything. neloth could come up to him meters away and talvas would still cover his mouth in realization and be like "i knew itā¦ the DB told me but i didn't wanna believe it ā¦..š¦ so you really do like young men ā¦ and you're in love with me ..šØ" *Neloth wakes up from this fever dream drenched in sweat* < neloth doesn't want (obvi) talvas to react that way at any point because he himself would just get scared so they'd just be staring at each other wide eyed. but talvas jumping into his advances isn't what he wants either (that'll also scare him). neloth is still relying on talvas' politeness to let him do as he pleases. but it is impossible for talvas to let it slide without questioning anything regardless soš¤·āāļø take your few Ls and move on. neloth just wants talvas to sit on his lap. wants to spoonfeed him soup. he's so romantic. he also wants to(sniper on rooftop blows my head to bits). neloth is actually a pretty touchy feely person when he's feeling Frisky (=deranged about talvas). I'm certain his favorite part of talvas' body is his legs. talvas has beautiful young man skipping leg day legs. so nothing special at all but neloth wants to touch them lol.. let your master wizard squeeze your calves and he might just be occupied enough like a kid playing with a fidget toy to not abuse you verbally for 3 seconds. as i said befoar neloth is unpleasant with his touch because he doesn't know how to be soft + doesn't even want it to necessarily feel very 'rewarding' as to not pamper talvas. petting talvas kinda turns into a nervous habit for himself and an instrument of some sort of Reassurance 4 talvas when he wants him to know heās not mad, for example. non-vebal confirmation. talvas still finds it weird but thinks itās a charm point too. neloth wouldn't even be against touching him familiarly in front of others but only in a "older male figure" ways ex. touching his knee or putting his hand at the back of his neck (talvas sees it as some sort of disciplinary tactic though). physical touch that matches neloth's age and is enough for it to be seen as not necessarily romantic / overtly weird.Ā
there'ssssss no saving talvas after such a powerful person gets his hands on him. any will to leave would leave HIM either out of fear or out of attachment and neloth wouldn't just let him go (Alive at least) since he knows the things he knows. if talvas were to escape i'm a Truther of him not feeling in place and wanting to go back cause it's the stability that he's used to. but tbh if he encounters neloth on accident anywhere he's gonna start running. I was drinking tea while writing this and started choking on it i just nearly died writing this are youhappy. anyways, nelvas is a never-ending abusive relationship that doesnāt even have High highs, all it has is low lows. neloth always mistreats talvas for any reason but is never genuinely kind from the heart or out of remorse. .. hmmā¦ā¦yeah. I forgot to type this back out from my posts tags > talvas might just start viewing neloth as fuck crazy and demented after he Finally notices at least one molecular sign of gay attention from him . like āOh wow Master Neloth obviously doesnāt get any female attention or anything cus heās a sick fuck why does he have to search for it from me Can varona take the hit for me š„ŗ *sees her dead body being dragged by the DB* hmm i guess not well iāll figure something out i guessā (he doesnāt) also the dialogue talvas has with varona after he steals nelothās book trying to conjure some bs up will always be so cute to me heās so defensive and afraid of neloth finding out. Him trying to decipher nelothās handwriting is cute TOO ik their 19th century love letters to each other would go crazy and make sense to anyone but each other but iām not gonna talk about 19th century girl talvas x neloth rn itās too much . what ever. i think iām done thank you i should just go back to drawing them as grecian pottery red figures or smthj Fun stats for you 4 getting to the end: times the word āabuseā is used: 6
#text#i've been putting more meaning(?) into the nelvas-es i've been drawing lately so i wanted to see how it would reflect in words#the fact that dis will show up in tags will haunt me a little bit but if i add asteriks it will be incomprehensible LOL#i hope this isn't too hard to understand when reading bc i know i have an easier time reading stuff like this instead of 'snobby' writing -#- bc i like knowing how the thoughts were brewing as they were written down.#but it may not be the case for all people.#what do U think of it.#i think what i;ve always liked the most in being able to talk w/ people Online is getting to know their thoughts on the same thing#more than anything else#i literally sucked and spit out all of the skajrim lore factors out of their relationship pretty much (not that it had much in the first -#- place) so it's just a reading on a possible scenario with the characters i was given#i mean characters i put in the soup pot decorating the middle of my brain#this is december-may 2024 facts for now#just so i remember#abuse //#< OKAY#log#< is gonna be my tag for this type of thing if i end up saying more because i already started torturing my notes app with what i think of -#- civil war characters#tumblr is pussy so it made me reformat the paragraph breaks i made. they don't rly matter anyway but still
35 notes
Ā·
View notes
Text
you just made the scientific discovery of the century & you want to tell everyone & your kids are first on that list but you can't find them. you manage to get a hold of your daughter & she says everything is fine but her voice gets tight when you try to mention your work & she sucks in a breath & says she won't keep you from it any longer than she already has & doesn't say bye as she hangs up the phone. you have a sinking feeling in your gut & you really want to get back to what you were doing but. something's wrong. where are your kids. why was your daughter not surprised when you told her. why was she so quick to hang up on you. your husband has the same type of mind & that's probably why neither of you can ignore this odd turn of events & so you decide to track them down. the research can wait. after all, the spook got away somehow afterwards. it's not like you have anything to go through but data & recordings.
#i don't usually write like this#i just had to type out the thing that's been in my mindddd cuz fanfics take way too long to write#& PMVs take to long to drawww oouughhh#i think i'm getting sick cuz i'm up until dawn & i'm tired constantly but in a weird way like in a migraine kinda way#sure i'll tag this i guess#danny phantom#obsessed with the idea of Maddie & Jack vivisecting Phantom without knowing he's Danny#& there being a whole slowburn reveal & then they're horrified because their entire worldview just got changed in the worst way possible#i find a lot of current fics that use vivisection always make the reveal happen beforehand for some reason#when the original ye olde vivfics from 10+ years ago like PoT happened pre-reveal & that's why Maddie &/or Jack did it At All#because they didn't know it was their son. they didn't know Phantom was their boy#it's just odd to me that the Phandom has shifted towards Maddie & Jack being actively abusive instead of passively abusive/neglectful#like do not get me wrong. they aren't great parents. they're actually really bad parents#but they do genuinely love their kids & would change for them. because their abuse/neglect is passive. it's subconscious#people always view abuse as hitting your kids purposefully because you like it & shit like that & most of the time it's not#& because of that misunderstanding we have a lot of out of character Maddie & Jack in fics#they wouldn't hurt their son. so you have to make them not know or not believe it's him#let them show a little emotion about it too man c'mon
24 notes
Ā·
View notes
Text
honestly i've spent so long being chronically ill that it's become a large part of my identity and i don't know what i'd do if i got better, i don't enjoy it but i almost don't want to get better because of how ingrained it is in my life, like get better as in be cured not as in reducing symptoms, which i do want, being able to do more stuff would be great.
#chronic illness#chronically ill#disabled#disability#postural orthostatic tachycardia syndrome#pots#ehlers danlos syndrome#heds#me cfs#cfs#chronic fatigue syndrome#myalgic encephalomyelitis#i kinda wish i didn't feel this way tbh#because it's kinda stupid#like why do i not want to be cured#i could do so much if i wasn't chronically ill anymore#but i've spent so long like this that it scares me to be cured#and there isn't even a cure for any of my chronic illnesses rn#like my eds will never be cured as it's a genetic condition that effects the structure of my connective tissue#but it's probably possible for a cure to be made for my other conditions#or for me to just get better#and that makes me anxious because chronic illness has been a part of my life and who i am for so long
17 notes
Ā·
View notes
Text
me: iām totally fine. not physically disabled at all
also me: *fainted twice in the span of an hour and a half yesterday, cannot be barefoot ever bc i have joint flareups if my feet get even slightly too cold, has an elevator pass because walking up stairs makes me short of breath*
#actually disabled#disability#disability memes#chronic pain#chronic joint pain#maybe RA#idk itās something for sure#pots#postural orthostatic tachycardia syndrome#exercise induced asthma#possibly arthritic#arthritis#probably
30 notes
Ā·
View notes
Text
So, likeā¦ where are yāall in the US getting diagnosed with POTS/other types of dysautonomia since so few doctors treat it? Did you have to travel far? My doctor couldnāt find anyone near me who will diagnose it, but we highly suspect Iāve got some type of dysautonomia, and some days itās pretty bad and Iām worried that without a diagnosis I might not be able to get accommodations in school.
#possible dysautonomia#possible POTS#postural orthostatic tachycardia syndrome#dysautonomia#autonomic dysfunction#fietroās personal posts
13 notes
Ā·
View notes