#neurofibromas
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You know what sucks about having a rare ilness/genetic condition?
(aside from the obvious of course)
But...
Doctors visits..
You go to a regular doctor, and you're the first person with that condition they've ever seen.
Sure, they've heard about it, but it was only a side note during their medical studies...
And then you go to a specialist and you're just "one of many"
Last time the specialist said my case was "not that bad" and basically implied that I had no real reason to be there.
That really sucked.
Yes, It could be worse, but I still have my struggles, and I just want to talk about it.
To be understood.
I have never met another person with that condition.
Makes me feel like an alien.
Too much for a regular doctor.
Not enough for the specialist.
I hate it
#rare illness#genetic defect#neurofibromatosis#neurofibromatosis type 1#neurofibromas#my adhd#adhd#adhd brain#adhdlife#adult adhd
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Hi! Was just curious if there’s any dos/donts when it comes to making fictional conditions and diseases. I’m thinking something along the lines of inventing a fictional virus or an autoimmune condition for example.
Hi!
We answered a very similar ask before that you can check for the don'ts. I personally don't have much opinion on fictional autoimmune disorders, as long as you make sure you're not accidentally portraying a real life condition that actually Exists you should be fine. You don't want to look like you think that neuromyelitis optica or statin-associated autoimmune myopathy are things you made up.
For a fictional virus specifically, I'd stick to more fantasy symptoms. A lot of disabilities suffer from the perception that they're contagious, and could be a “plague”. There are people out there stalking strangers and posting their photos online because they think they have mpox because they have harmless tumors from genetic disabilities. So yeah, as mentioned in the linked post, don't make a virus that gives you neurofibromas or vitiligo or some other skin condition. My preferred option would be something that just doesn't happen in people (which is kinda what the vast majority of media do about it, think zombie virus movies) and you'd need to do research that your fantasy symptoms actually don't happen - there are so many existing conditions, some of them very rare and unique, that you would have to do your due diligence on this (unless you'd go straight for Actual Magical Things).
Things to do: think about the virus in a broader context. Is it rare? Common? Does everyone get it at some point, and only a small percent become disabled, or does everyone who get it experience it the same? Are the main symptoms chronic or acute? Long-term side effects? Social perception? Severity range?
If you have a more specific question, feel free to send another ask!
mod Sasza
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[image description: digital full body drawing of two characters. the one on the left is a fat Black person enthusiastically waving his hand above her head. they are holding a white cane in the other hand. he has many neurofibromas on her skin, mostly over the left side of his body. she is wearing a loose pink shirt and a skirt with a big belt. the character on the right is a pale androgynous person with many brown birthmarks. xe is smiling smugly while holding onto xyr rollator with one hand while making a peace sign with the other. xe is wearing a crop top and a loose skirt reaching xyr knees. on xyr stomach is an ostomy bag with a stoma guard covering the top of it. the background is a pink to dark blue gradient] finally finished a drawing : 3 and managed to draw a rollator semi-properly for the first time .. awesome
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May is Neurofibromatosis (NF) awareness month
NF is a set of 3 complex genetic condition that causes benign tumours to grow on the body.
NF 1 is the most common effecting around 1 in 2500 (AU). It causes benign tumours known as neurofibromas, café-au-lait marks. These benign tumours can appear anywhere from the spinal cord, optic nerve, neck, arms, stomach etc. It can also cause learning disability’s. NF 1 extremely variable condition with some being able to live their life unaffected and others it could debilitating and in some cases life threatening.
NF 2 affects approximately 1 in every 25,000-40,000 people (AU). It is characterised by d by the development of tumours called vestibular schwannomas on the 8th cranial nerve. It can also lead to begin tumours on the brain and spinal cord.
Schwannomatosis is the rarest form of neurofibromatosis and has only recently been identified as a separate condition. It affects less than 1 in every 40,000 people and causes the development of tumours called schwannomas to form on nerves on the spine and other peripheral nerves.
I have NF1.
Information from
#neurofibromatosis#nf#nf1#nf2#schwannomatosis#children’s tumor foundation#awereness#may is NF awerness month#neurofibromatosis type 1#neurofibromatosis type 2
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hey it’s anon again i’m very very self conscious about having nf1 and i really find it hard to reach out. hence why i’m on anon rn lol.
none of my friends apart from a very select few know and when my confidence is up i just wanna make friends with some nf1 ppl. i’m 24 and the last i spoke to anyone with nf was when i was 8. my parents took me to the NF society thing which i have some pretty happy memories off.
i just want to relate to people instead of having just myself. like nobody gets the anxiety of getting a neurofibroma or worrying when something isn’t totally 100% okay and i just wanna feel included in this very lonely club :( i’m the only one in my family that has it too.
i’m from the uk btw
Sorry if this response is a lot, anon. You are the first adult with NF1 I've been able to talk to about these things so I'm going to ramble. I'm 22.
I'm also the only one in my family that has it, and the only time I've met someone with the condition was in the waiting room at the neurologist. It can be really isolating because no one, even those closet to you, can understand what its like to have a body riddled with tumors. Sure, they're benign but it's still anxiety-inducing.
I remember when I learned that something made me different from all the other kids, I was nine and there's some sense of community that I haven't been able to access sense. These lumps on all over my body have always separated me from my peers, the way they ache, and the way I fear what could be growing somewhere inside me, without my knowledge is terrifying, and it's not a fear anyone can relate to unless they have the condition. Plus, when I talk about it, it sounds like I'm paranoid and my friends can't understand. Knowing you are different, and not having any who is that same type of different is a terrible feeling. I've been thinking about trying to make a discord server for people with NF, but I need to find enough people first.
Since I turned fourteen, my mom has been pushing for me to get surgery to get my fibromas removed. And while it would be great to be free of them, it often feels like she just wants me to be "normal." She's never asked if it's something I want to do with my body. Sometimes, I don't mind it, the being different, but then I look at myself in the mirror for a second too long or I imagine my body and all the ways my life would improve without these bumps and lumps all over.
Plus, there's another added element being trans and starting hrt, not knowing what can happen because there's no research on a body like mine or yours that is also a trans body. But, unless you're also queer, I don't want to get into that. There's so little information about NF that I considered studying neurology just to understand my own body. Sure, we're only one in three-thousand, but isn't that still a large enough amount for people to care?
But, there's gotta be humor in this somewhere. I don't have a fear of needles or MRIs because I never was able to, there's some humor in that, I think. I don't know what your experience was like growing up, especially as a teen, but I want to think there's something about having sat through a dozen MRIs before I was fifteen that made me stronger. There has to be something about all the blood work and exams that will make the rest of life easier, right?
Once again, sorry if this was a lot. It was very cathartic to be able to know someone else might understand what I feel
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Pato oral 1
1.-Hiperplasia papilar
2.-Queratoacantoma
3.-Fibroma irritativo
4.-Hiperplasia fibrosa inflam. asociada a protesis
5.-Granuloma piogenico
6.-Fop
7.-Granuloma perisferico de cel gigantes
8.-Hiperplasia gingival generalizada
9.-Papiloma
10.-Verrugar vulgar
11.-Condiloma acuminado
12.-Hiperplasia epitelial focal
13.-NICH
14.-S. Sturge weber
15.-THH (dx dif. Peutz jeger)
16.-Malformación linfática común
17.-Fibroma de células gigantes
18.-Mucocinosis oral(palatino conec. Mixomatoso)
19.-Lipoma
20.-Schwannoma (encapusado, fusadas)
21.-Neurofibroma S-100 (+)
22.-Tumor de células granulosas S-100 (+)
23.-Tumor cong. Cel granulosas.
24.-gingivoestomatisis herpetica primaria
25.-herpes recurrente
25.-herpes intraoral recurrente labial
26.- herpes recurrente intraoral (DOLOR)
27.-herpangina
28.- enf. Pie mano boca
29.- varicela zoster
30.-herpes zoster
31.- mononucleosis infecciosa (hemograma)
32.-Sifilis -primaria-secundaria-terciaria
33.-sifilis congenita
Candidiasis (F. Local-sist)
34.- candidisis psudomembranosa (ARDOR)
35.-candidiasis eritematosa
36.-estomatitis subprotesica
37.-quilitis angular
38.- Penfigo (IgG - C3 + ) prednisona/azatioprina/ciclosporina)
39.- Penfigoide
40.-Angina bulosa hemorragica
41.-Eritema multiforme
42.- Aftas : mayores, menores(no queratinizada) Uro
43.-estomatitis herpetiforme
44.- S. behcet
45.- Pigmentacion fisiológica
46.-Melanosis post-inflamatoria
47.-Melanosis del fumador (c - c)
48.- S. peutz jegherd (polipos)
49.- Enf. addison (insuf. Adrenocortical)
50.- S. laugier-hunziker (no otras manifestaciones)
51.-Neurofibromatosis 1
52.- Neurofibromatosis 2
53.- Tatuaje por amalgama
54.- Nevus (intramucoso- azul)
55.- macula melanotica
56.- Melanoma
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Went to a neurologist today regarding some long-time problems I've been having related to NF1, scoliosis, and other things. Mostly the first two. I don't really know how to explain it all without just babbling about medical stuff and throwing a lot of private information on the internet...
It's just really exhausting. I found out six months ago I essentially had a... sack of spinal fluid hanging off my spine. There's a lot of tissue and nerves growing through the surrounding area which makes it insanely difficult to operate on. Not to mention that, because part of it IS related to my NF due to the mass that the sack (for lack of better words) is essentially sitting on is a neurofibroma and... buh. I don't even know how to explain this in a way that makes sense.
Maybe I can dumb it down to the most basic issues:
I have scoliosis
I have neurofibromatosis
My hips are asymmetrical (due to the above)
This in turn makes one leg a little longer than the other, not because the legs themselves are different sizes. My hip raises one up a bit.
My right sight is very obviously weaker than the left.
Unrelated to the NF/Scoliosis stuff, I've been having really bad vertigo that won't go away. This caused nausea issues that won't go away, and all this is just stacked on top of the constant pain issues I'm already having. I can't jog or run. Even walking makes my back and neck hurt more than I can properly explain.
Everything combined together is just... exhausting. So exhausting. I can't even hold a job down because after a day or two I'm just so low energy and slumped and just... dead energy-wise and motivation-wise because of all the pain. It's just. Always pain.
Walking for more than a few minutes? Pain. And that pain just gets worse the more I move.
Jogging? Running? Straight up can't. The "sack" mentioned earlier essentially bounces up and down if I try and it sends shooting pain down my right leg. Bad enough that my leg will frequently give out if I push myself.
Sitting? Well, less painful than some things, but it also hurts if I'm not twisted into a weird position that makes my other muscles hurt if I sit for too long.
Lungs are fucked from Covid. Getting better. But still fucky. So breathing is hard too.
Vertigo is more or less known enough I don't have to explain that one, but... Even scrolling too fast on a screen triggers that sometimes.
I'm just. So. Tired... So tired. I want to be healthy.
Doctors and unemployment are all encouraging me to try for disability and work toward that so I have some kind of stable income and something to live off of while I try to get my health together. But... well. Anyone ON disability can tell you how much of a hurtle that is to get. Let alone keep it.
Still...
I want to. I'm going to try. But as it is... I have no income at all. I've got nothing to keep me together. Nothing to float with. I've got my Etsy, and I'm hopeful I'll be able to do a little more with that, but not having income makes it hard to get supplies to make things... but I'll do what I can.
The pandemic really made a lot of this so much harder because everything shut down and I couldn't get the help I needed for a while... though part of it was my own fault because I tried to power through for so long. I didn't think I deserved help. I tried so hard to climb out of one health hole, only to tumble right into another, and this one I can't really do anything about...
So that's where I'm standing for now.
It sucks... but I guess I'll try my best for now. Gotta find a way to pay bills and keep things going.
The biggest Suck about all this is, in order to apply for disability, I have to stop unemployment. Which I have to do anyway. if I *can't* work, unemployment doesn't want to help me anymore. All they care about is getting me employed again.
But if I go off unemployment and stop searching for work (mostly remote, it's all I can do that doesn't involve movement. spine problems and all) then I have *no* income to pay for basic insurance, medical bills, and basic life bills.
So. Hopefully I can build a decent buffer this month through Etsy and maybe I'll have some sort of luck with disability...
At least the doctors are on my side and willing to help and get me whatever letters I need. Here's hoping that's enough.
#Nao Rants#Life Stuff#Fun with Health#I've edited this like three times as I try to sort out my thoughts.
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THIS.
you can't get anxiety and PTSD and neurofibroma and a schwannoma and bad pap smears and blood clots and ehlers danlos and hernias and stomach ulcers and thyroid problems and three miscarriages...like at some point your writers need to check themselves, it's just unrealistic
i feel like every human should max out at one disability or chronic illness. like when i hit adolescence and my brain chemistry went “bipolar time now?” the response should have been an error message like sorry! this slot can only contain one (1) item and has been filled with childhood asthma. i would even allow the possibility that you can overwrite previous disorders like “you have equipped chronic migraines and so no will no longer display symptoms of bipolar disorder.” i just think it should work that way.
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New Cancer Drug Trial For Neurofibromatosis
Micdametinib is in investigation (Phase 3 clinical trials) as an oral allosteric treatment for neurofibromatosis. It is a small molecule MEK inhibitor. It is hypothesized to be used as a monotherapy treatment in people with neurofibromatosis that have plexiform neurofibromas and low-grade glioma. Also as a combined therapy in treating many subsets of biomarker-defined metastatic solid tumors.
Micdametinib has been developed to inhibit MEK1 and MEK2, these occupy substantial significant places within the MAPK pathway.
In DNA, the MAPK pathway triggers key networks which regulate both growth and longevity of cells. Playing an important role in many cancers in which MAPK dysregulates cell development.
In NF1, a genetic disorder that rarely occurs but happens when there are mutations within the NF1 gene. NF1 effects any or several systems within the body, existing from birth, lasts all throughout life. Effected persons have 30%-50% chance during their lifetime to develop plexiform neurofibromas (PN)
PN are nerve sheath tumors chronically leading to severe pain, lowered physical function, compression of major organs, poor quality of life and disfigurement. These are not malignant but have potential to mutate into malignant peripheral nerve sheath tumours. People with neurofibromatosis 1 that have this outcome can succumb to a shortened lifespan.
Phase 2 trials of Micdametinib in both adults and adolescents demonstrated good efficacy, well tolerated side effects. In inoperable NF1-PN patients phase 2b clinical trials is showing tolerability, tumor volume reductions and fast onset, sustained pain relief with higher quality of life in people of 2 years and older.
MEK inhibitors bring promise to the future treatment of lung cancer, melanoma, pancreatic cancer, endometrial cancer, ovarian cancer and colorectal cancer. Any cancers impacted by the MAPK pathway.
Sources:
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Practicing an interpretive dance to remind my boss I have da tumors (Neurofibromatosis Type 1) and standing that long is literally agony.
Curse you plexiform Neurofibroma in my leg the platypusssssss!
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Lipoma Treatment at SurgiKure in Visakhapatnam And Vijayawada
Lipoma Treatment - Diagnosis, Procedure and Recovery
Have you been dealing with a fatty lump that isn’t going away? It could be a benign tumor called lipoma. Lipomatosis are skin-colored lumps that can appear anywhere on your body and can cause cosmetic and medical concerns. At SurgiKure, we provide safe and effective lipoma treatment through traditional and modern, minimally invasive techniques. Book a consultation with our expert plastic and cosmetic surgeons to seek proper treatment and undergo lipoma surgery if necessary.
What is Lipomas & Their Removal
Lipomas are benign (non-cancerous) tumors that are made up of fat cells. These fatty lumps are located just below the skin and are usually soft, movable, and painless. A lipoma can occur anywhere on the body where fat cells are present, but they are most commonly found on the neck, shoulders, back, arms, and thighs. The exact cause of lipomas is still unknown, but they are thought to have a genetic component and may be more common in individuals with a family history of lipomas. They can also be associated with certain medical conditions such as adiposis dolorosa and Gardner’s syndrome. Most lipomas do not require treatment unless they are causing discomfort, interfering with movement, or affecting a person’s self-esteem. However, if necessary, lipomas can be removed through certain medications and surgical procedures, such as excision, liposuction, and minimally invasive techniques.
Lipoma Diagnosis
When diagnosing a lipoma, it’s important to consider other conditions that may have similar characteristics. While lipomas are usually easily recognizable due to their specific features, there are a few conditions that can mimic lipomas, such as epidermal exclusion cysts, sebaceous cysts, neurofibromas, dermatofibromas, liposarcomas, etc.The diagnosis of lipomas is typically made based on a physical examination and medical history, as they have distinct characteristic features that are usually recognizable. However, in certain cases, it may be difficult to distinguish lipomas from other conditions. If so, the following diagnostic tests will be performed to confirm lipomas:
Imaging Tests: Ultrasound, MRI (Magnetic Resonance Imaging), and CT (Computed Tomography) scans are commonly used imaging techniques to evaluate lipomas. These tests help to determine the size, location, depth, and consistency of the lipoma. They also help to assess the surrounding tissues and structures, such as the vascularity of the fatty lumps.Biopsy: In certain cases, a biopsy may be recommended if the surgeon suspects that it may be a malignant tumor (liposarcoma) resembling a lipoma. During a biopsy, a sample of the tissue is extracted and examined under a microscope to look for cancerous cells and differentiate between a benign lipoma and liposarcoma.These diagnostic tests may not be necessary for all cases. The need for further testing depends on the individual circumstances and the presence of worrisome symptoms.
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Neurofibromatosis Treatment Drugs Industry Growth
Neurofibromatosis (NF) is a genetic disorder that causes tumors to form on nerve tissues. There are two main types - NF1 and NF2. NF1, also known as von Recklinghausen disease, is the more common form affecting around 1 in 3000 people. The main symptoms include light brown spots on the skin, tumors on or under the skin (neurofibromas), and Lisch nodules on the iris. NF2 is rarer and causes bilateral vestibular schwannomas (tumors on the eighth cranial nerve), which can lead to hearing loss and balance problems if not treated. Other features may include meningiomas (tumors of the meninges) and ependymomas (tumors of the central nervous system). Medical Management of NF1 For NF1, the treatment approach depends on the symptoms. If neurofibromas are small and cause no problems, only monitoring is needed. However, larger or painful neurofibromas may require surgery to remove them. Magnetic resonance imaging (MRI) scans are useful to monitor the growth of tumors. Children with NF1 are closely followed to watch for the development of optic pathway gliomas, which can affect vision if not treated. Medical therapy focuses on managing complications like high blood pressure, learning disabilities, and bone abnormalities. Targeted Neurofibromatosis Treatment Drugs Therapies In recent years, research has led to the development of targeted drug therapies that interfere with molecular pathways driving tumor growth in NF. One such pathway involves the RAS family of oncogenes, which are mutated in a high percentage of NF1 tumors. Selumetinib (Koselugo) is a MEK inhibitor drug approved by the FDA to treat inoperable plexiform neurofibromas in patients with NF1. By blocking the MEK protein, it helps control tumor growth. Another RAS pathway drug, sotorasib (Lumakras), showed efficacy against KRAS G12C mutant solid tumors in a clinical trial and may offer an option for NF patients with specific mutations. Several other MEK and RAF inhibitors are under investigation for NF. Medical Management of NF2 For NF2, treatment goals are to halt tumor growth and preserve hearing and neurological function as long as possible. Surgery continues to play a major role by removing tumors causing symptoms. Stereotactic radiosurgery uses focused beams of radiation to control residual or growing tumors without the risks of open surgery. Monitoring with serial MRIs helps determine when intervention is needed. The multikinase inhibitor sorafenib was shown to slow tumor growth in an NF2 clinical trial and represents a potential medical option. However, effective drug therapies are still quite limited for systemic treatment of NF2. Research Directions Ongoing research aims to discover new drugs that more specifically target signaling pathways driving NF tumor formation and growth. Candidate pathways include PI3K-AKT-mTOR, Hedgehog, Notch, Wnt, and Hippo signaling. Therapies modulating these cascades are in preclinical testing. Immunotherapies are another area of investigation since NF tumors can express tumor antigens that may stimulate anti-tumor immune responses. Combining targeted drugs with immunotherapy is a strategy to make treatments more effective. Advances in gene therapy also offer hope that someday, mutations causing NF could be directly corrected. Progress is being made, but more work is still required to develop curative options for these currently incurable genetic tumor predisposition syndromes.
#Neurofibromatosis Treatment Drugs Analysis#Neurofibromatosis Treatment Drugs Demand#Neurofibromatosis Treatment Drugs Trend
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hi! i wanted to ask a question though because i understand its not rlly ur specialty im just asking if u know any other blogs that can help. I work with visual arts, and thats how i wanna do my stories, through something like comics, so i wanted to ask if you know of any resources to help me with properly representing things like scarring, especially facial scarring and facial differences.But anything on representing disability in visual mediums would help. Thank you regardless!
Hello,
I actually work with visual arts and draw a lot of characters with facial differences (FD) on the daily! I hope I'll be able to help.
I'm not aware of any resources for visual mediums specifically (especially if you mean something like a "how to draw [specific facial difference]" type thing. Despite comic book authors drawing facial differences for ages for their villains there really aren't any good tutorials that I know of) so I tried to combine a few points that maybe will be helpful to you;
Reference photos of real people with the condition your character has. Try to research the symptoms of it as well (especially if it's a syndrome) - maybe it will turn out that the symptoms your character has require a trach tube or a nasal cannula, or something completely different.
Don't overexaggerate their facial difference for the shock value...
...or downplay it for the cuteness/attractiveness factor.
What I mean is - whether your character is the adorable love interest or the morally gray criminal, their facial difference shouldn't reflect that. Don't make some kind of moral connection of "major craniofacial condition = bad person, teeny tiny scar = good person".
Don't draw your character with FD constantly covered in blood and running around with an axe. The portrayal of people with FD as violent/murderous is not only offensive and not helping the public perception of facial differences, but is also just incredibly boring and overdone. 99% of "representation" looks like this and has been looking like this since horror movies have been invented. I'm 100% serious when I say that drawing a person with a facial difference just having friends is a thousand times more groundbreaking than all these horror tropes combined.
Don't use the ancient "facial difference = joke" design trope. Authors love using strabismus, drooling, lacking teeth or skull conditions as shortcuts for "humor". These conditions are all real and real people have them (including me, hi). They don't exist as some kind of signifier that a character is "stupid" or "crazy". It is extremely prevalent and hard to unsee once you start noticing.
A lot of people in the FD community just want characters with FD that are normal, everyday people doing normal everyday things - having a family, hanging out with a friend, petting their cat... Not murderers hunting ablebodied teenagers through the woods. Maybe one of your character's family members has a burn scar without having it be A Big Deal, maybe one of their classmates has Goldenhar Syndrome that everyone just accepts, maybe the background character at the local supermarket has neurofibromas on their face... lots of options that don't involve tired villain tropes. With the advantage of a visual medium, you don't even need to explicitly mention that they have a facial difference - just draw it and let it be there. No dramatic reveal necessary.
Have a range of facial differences represented, even if it's just the side characters. Most people only ever draw scars, usually small and not affecting anything other than the skin, which isn't bad - a lot of people do have scars like that, and they deserve to be represented. However, there are literal thousands of different things that also count as a facial differences. Some of them like strabismus, Down Syndrome, tumors, or nerve palsies (most notably Bell's palsy, but there's 12 of them in total) are quite common, while conditions like Treacher Collins Syndrome, Pfeiffer Syndrome or Anophthalmia are usually considered rare - but a lot of people still have them. Having two or more characters with some kind of facial difference definitely isn't out of place.
This is more of a technical thing, but don't ever tag a visual medium as "gore" or "body horror" because someone has a facial difference. It's ableist and incredibly dehumanizing.
This page regarding facial differences in media (not only visual) is also worth giving a read. I hope any of this was useful. If you have more specific questions, feel free to send another ask
mod Sasza
#anonymous#mod sasza#face difference#art reference#writing advice#writing guide#writing resources#writing help#burn survivor representation
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Symptoms and Treatment of Spine Tumor | Spine Doctor in Dwarka, Delhi
The spine, a most essential component of the human skeletal system, supports the body and protects the spinal cord. Unfortunately, tumor also develop within the spine, causing health risks. In this article, neurosurgeon in Delhi explains spinal tumors, including their symptoms, causes, treatment options, and spine surgery in Dwarka
Types of Spinal Tumors
Spinal tumors are categorised into two types: primary tumors, originating within the spine, and secondary tumors, which metastasise from other parts of the body. Primary tumors are classified as benign or malignant. Benign tumors are non-cancerous and grow slowly, while malignant tumors are cancerous and invade surrounding tissues, spreading to other parts of the body.
Non Cancerous Spinal Tumors
Non-cancerous spinal tumors include osteoid osteomas, osteoblastomas, and hemangiomas. While these tumors are slow-growing and their location within the spine lead to dangerous symptoms and emergency complications.
Cancerous Spinal Tumors
Cancerous spinal tumors, such as osteosarcoma, chondrosarcoma, and Ewing’s sarcoma, are dangerous and life-threatening. These tumors require urgent treatment to start.
Symptoms of Spinal Tumors
The symptoms of spinal tumors may not be same for all patients depending on their location, size, and type. Common symptoms are as follows:
Back Pain: Consistent and continious pain in the back is a symptom of spinal tumors. The pain worsens at night and with physical activity.It can also be a symptom of sciatica or scoliosis if beding is visible
Neurological Symptoms: Tumors compress the spinal cord or nerve roots, causing neurological issues like numbness, weakness, or tingling sensations in the extremities.
Changes in Bowel or Bladder Function: Severe spinal cord compression results in bowel and bladder dysfunction, leading to incontinence or difficulty controlling these functions.
Difficulty Walking: Tumors affecting the spine difficulty walking or a lack of coordination in the body.
Radiating Pain: Pain radiates from the spine to other parts of the body, depending on the tumour’s location and its impact on surrounding nerves.
Causes of Spinal Tumors
The exact causes of spinal tumors are still not known, but risk factors and conditions increase the chances of these factors:
Age: Types of spinal tumors occur in some age groups. For instance:
Ependymomas: Youngsters under 20 years old.
Juvenile Pilocytic Astrocytomas: Common in children and young adults occur in the first 20 years.
Meningiomas: More common in adults, over 40 years old.
Nerve Sheath Tumors (Schwannomas, Neurofibromas): Can occur in young to middle-aged adults, in the 20s to 40s.
Meningiomas: In older adults, over 60 years old.
Schwannomas: 40s to 60s years of age.
Radiation Exposure: Exposure to radiation therapy, for cancer treatment or other diagnosis tests increases the chances of spinal tumors.
Metastasis: Secondary spinal tumors result from the spread of cancer from other parts of the body, such as the lungs, breast, or prostate.
Tests for Spinal Tumor in Delhi
Diagnosing spinal tumors includes the following tests:
Neurosurgeon will assess the patient’s medical history and go for a physical examination to identify symptoms.
X-rays, CT scans, MRI scans, and PET scans, to visualize the location, size, and details
A biopsy is taking a tissue sample from the tumor to determine its type, whether benign or malignant.
Spinal Tumor Treatment in Delhi
The spinal tumor treatment in Delhi as per a top spine specialist in Delhi includes a combined treatment course as follows:
Observation: In cases of slow-growing and asymptomatic benign tumors, spine doctors do regular monitoring with medicines.
Radiation therapy and chemotherapy are used to treat spinal tumor. They aim to shrink or eliminate cancerous cells.
Spine tumor surgery is necessary for both benign and malignant spinal tumor. The surgery removes tumor, decompresses the spinal cord or nerves, and stabilises the spine.
Chemotherapy uses drugs to kill or slow the growth of cancer cells. While not very common for spinal tumor
Immunotherapy works by improving the body’s immune system to recognise and attack cancer cells.
Spinal Tumor surgery in Delhi
Spine surgery procedures used in brain tumor can be as follows:
Tumor Resection: This involves removing as much of the tumour as possible while preserving the surrounding healthy tissue. In some cases, complete removal is not feasible due to the tumor’s location or invasiveness.
Decompression Surgery: Spinal decompression reduces pressure on the spinal cord or nerves by removing portions of the tumour or surrounding bone.
Spinal Fusion: Stabilising the spine requires spinal fusion, a procedure that involves fusing two or more vertebrae using bone grafts or hardware.
Minimum cut Surgery: Smaller incisions in the back to reduce muscle damage, and shorter recovery times.
Spinal tumor as explained by Dr. Nagesh Chandra, a neurosurgeon in Dwarka, Delhi, is a serious medical problem that can be caused by many reasons. So symptoms like frequent backpain should never be voided, so that any danger can be prevented and spine tumors get timely treatment
You can connect with Dr. Nagesh by dialing +919818776763 now
#SPINE DOCTOR IN DELHI#SPINE SURGERY IN DELHI#SCOLIOSIS TREATMENT IN DELHI#NEUROSURGEON IN DELHI#BEST NEUROSURGERY SPECIALIST IN DELHI
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Short Description on Plexiform Neurofibroma
Short Description on Plexiform Neurofibroma Plexiform neurofibroma is a rare type of tumor that affects the peripheral nerves. It is a benign tumor that can occur anywhere in the body, but it is most commonly found in the head, neck, and extremities. Plexiform neurofibroma is often associated with neurofibromatosis type 1 (NF1), a genetic disorder that affects the development and growth of nerve…
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As with surgery, there are now many newer and emerging radiation technologies, tools, and techniques, including radiosurgery (also called stereotactic radiosurgery) and proton beam therapy.
According to each patient’s unique demands, the treatment strategy may combine surgery, radiation therapy, chemotherapy, targeted therapy, and immunotherapy. There are now better brain tumour diagnostic tools, surgical methods, and treatment choices because to developments in medical technology and research.
Types of Brain Tumor
1. Primary– Our brain is where primary brain tumours start. They can arise from your nerve cells, brain cells, meninges, the membranes that surround your brain, and glands like the pituitary and pineal. Primary tumours can be malignant or benign. Gliomas and meningiomas are the most prevalent kinds of brain tumours in adults.
2. Gliomas– Gliomas are tumors that develop from glial cells. These cells normally support the structure of your central nervous system, provide nutrition to your central nervous system, clean cellular waste, break down dead neurons
3. Meningioma– Meningioma is the most common primary brain tumor, accounting for more than 30% of all brain tumors. Meningiomas originate in the meninges, the outer three layers of tissue that cover and protect the brain just under the skull. Women are diagnosed with meningiomas more often than men
4. Neurofibroma– Neurofibromas are benign tumours that can develop on any part of the body’s nerves and are often painless. These fleshy, soft growths can occasionally form on the spinal cord, cranial nerves, or the brain. Neurofibromatosis type 1 (NF1) is a hereditary condition characterised by many neurofibromas as one of its symptoms.
5. Giant Cell Tumor– Named for their extremely large cells, giant cell tumors are rare bone tumors that usually affect the leg and arm bones. They may also be found in the skull. Most giant cell tumors are benign and occur in patients between 20 and 40 years of age.
6. Osteoma– Osteomas are benign bone tumours that typically appear on the base of the skull and the bones of the face. These slowly expanding tumours typically don’t manifest any symptoms. Large osteomas, however, may result in issues with breathing, vision, or hearing if they develop in specific regions of the brain.
Medications After Brain Tumor Surgery in India
There are several medicines that are helpful for reducing the symptoms of brain tumors. There are some of the medications are clinically tested and recommended by several physicians. They are:
Conclusion
Brain tumors are increasing on a large scale worldwide. Malignant tumors can be life-threatening. Whether benign or malignant, treatment depends on the specifics of the tumor. There are several treatment initiatives that are to be considered for a brain tumor patient. Treatment such as different medications, targeted surgery, chemotherapy, immunotherapy and others are really helpful in treating these patients.
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