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You know what sucks about having a rare ilness/genetic condition?
(aside from the obvious of course)
But...
Doctors visits..
You go to a regular doctor, and you're the first person with that condition they've ever seen.
Sure, they've heard about it, but it was only a side note during their medical studies...
And then you go to a specialist and you're just "one of many"
Last time the specialist said my case was "not that bad" and basically implied that I had no real reason to be there.
That really sucked.
Yes, It could be worse, but I still have my struggles, and I just want to talk about it.
To be understood.
I have never met another person with that condition.
Makes me feel like an alien.
Too much for a regular doctor.
Not enough for the specialist.
I hate it
#rare illness#genetic defect#neurofibromatosis#neurofibromatosis type 1#neurofibromas#my adhd#adhd#adhd brain#adhdlife#adult adhd
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[image description: digital full body drawing of two characters. the one on the left is a fat Black person enthusiastically waving his hand above her head. they are holding a white cane in the other hand. he has many neurofibromas on her skin, mostly over the left side of his body. she is wearing a loose pink shirt and a skirt with a big belt. the character on the right is a pale androgynous person with many brown birthmarks. xe is smiling smugly while holding onto xyr rollator with one hand while making a peace sign with the other. xe is wearing a crop top and a loose skirt reaching xyr knees. on xyr stomach is an ostomy bag with a stoma guard covering the top of it. the background is a pink to dark blue gradient] finally finished a drawing : 3 and managed to draw a rollator semi-properly for the first time .. awesome
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May is Neurofibromatosis (NF) awareness month
NF is a set of 3 complex genetic condition that causes benign tumours to grow on the body.
NF 1 is the most common effecting around 1 in 2500 (AU). It causes benign tumours known as neurofibromas, café-au-lait marks. These benign tumours can appear anywhere from the spinal cord, optic nerve, neck, arms, stomach etc. It can also cause learning disability’s. NF 1 extremely variable condition with some being able to live their life unaffected and others it could debilitating and in some cases life threatening.
NF 2 affects approximately 1 in every 25,000-40,000 people (AU). It is characterised by d by the development of tumours called vestibular schwannomas on the 8th cranial nerve. It can also lead to begin tumours on the brain and spinal cord.
Schwannomatosis is the rarest form of neurofibromatosis and has only recently been identified as a separate condition. It affects less than 1 in every 40,000 people and causes the development of tumours called schwannomas to form on nerves on the spine and other peripheral nerves.
I have NF1.
Information from
#neurofibromatosis#nf#nf1#nf2#schwannomatosis#children’s tumor foundation#awereness#may is NF awerness month#neurofibromatosis type 1#neurofibromatosis type 2
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hey it’s anon again i’m very very self conscious about having nf1 and i really find it hard to reach out. hence why i’m on anon rn lol.
none of my friends apart from a very select few know and when my confidence is up i just wanna make friends with some nf1 ppl. i’m 24 and the last i spoke to anyone with nf was when i was 8. my parents took me to the NF society thing which i have some pretty happy memories off.
i just want to relate to people instead of having just myself. like nobody gets the anxiety of getting a neurofibroma or worrying when something isn’t totally 100% okay and i just wanna feel included in this very lonely club :( i’m the only one in my family that has it too.
i’m from the uk btw
Sorry if this response is a lot, anon. You are the first adult with NF1 I've been able to talk to about these things so I'm going to ramble. I'm 22.
I'm also the only one in my family that has it, and the only time I've met someone with the condition was in the waiting room at the neurologist. It can be really isolating because no one, even those closet to you, can understand what its like to have a body riddled with tumors. Sure, they're benign but it's still anxiety-inducing.
I remember when I learned that something made me different from all the other kids, I was nine and there's some sense of community that I haven't been able to access sense. These lumps on all over my body have always separated me from my peers, the way they ache, and the way I fear what could be growing somewhere inside me, without my knowledge is terrifying, and it's not a fear anyone can relate to unless they have the condition. Plus, when I talk about it, it sounds like I'm paranoid and my friends can't understand. Knowing you are different, and not having any who is that same type of different is a terrible feeling. I've been thinking about trying to make a discord server for people with NF, but I need to find enough people first.
Since I turned fourteen, my mom has been pushing for me to get surgery to get my fibromas removed. And while it would be great to be free of them, it often feels like she just wants me to be "normal." She's never asked if it's something I want to do with my body. Sometimes, I don't mind it, the being different, but then I look at myself in the mirror for a second too long or I imagine my body and all the ways my life would improve without these bumps and lumps all over.
Plus, there's another added element being trans and starting hrt, not knowing what can happen because there's no research on a body like mine or yours that is also a trans body. But, unless you're also queer, I don't want to get into that. There's so little information about NF that I considered studying neurology just to understand my own body. Sure, we're only one in three-thousand, but isn't that still a large enough amount for people to care?
But, there's gotta be humor in this somewhere. I don't have a fear of needles or MRIs because I never was able to, there's some humor in that, I think. I don't know what your experience was like growing up, especially as a teen, but I want to think there's something about having sat through a dozen MRIs before I was fifteen that made me stronger. There has to be something about all the blood work and exams that will make the rest of life easier, right?
Once again, sorry if this was a lot. It was very cathartic to be able to know someone else might understand what I feel
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Pato oral 1
1.-Hiperplasia papilar
2.-Queratoacantoma
3.-Fibroma irritativo
4.-Hiperplasia fibrosa inflam. asociada a protesis
5.-Granuloma piogenico
6.-Fop
7.-Granuloma perisferico de cel gigantes
8.-Hiperplasia gingival generalizada
9.-Papiloma
10.-Verrugar vulgar
11.-Condiloma acuminado
12.-Hiperplasia epitelial focal
13.-NICH
14.-S. Sturge weber
15.-THH (dx dif. Peutz jeger)
16.-Malformación linfática común
17.-Fibroma de células gigantes
18.-Mucocinosis oral(palatino conec. Mixomatoso)
19.-Lipoma
20.-Schwannoma (encapusado, fusadas)
21.-Neurofibroma S-100 (+)
22.-Tumor de células granulosas S-100 (+)
23.-Tumor cong. Cel granulosas.
24.-gingivoestomatisis herpetica primaria
25.-herpes recurrente
25.-herpes intraoral recurrente labial
26.- herpes recurrente intraoral (DOLOR)
27.-herpangina
28.- enf. Pie mano boca
29.- varicela zoster
30.-herpes zoster
31.- mononucleosis infecciosa (hemograma)
32.-Sifilis -primaria-secundaria-terciaria
33.-sifilis congenita
Candidiasis (F. Local-sist)
34.- candidisis psudomembranosa (ARDOR)
35.-candidiasis eritematosa
36.-estomatitis subprotesica
37.-quilitis angular
38.- Penfigo (IgG - C3 + ) prednisona/azatioprina/ciclosporina)
39.- Penfigoide
40.-Angina bulosa hemorragica
41.-Eritema multiforme
42.- Aftas : mayores, menores(no queratinizada) Uro
43.-estomatitis herpetiforme
44.- S. behcet
45.- Pigmentacion fisiológica
46.-Melanosis post-inflamatoria
47.-Melanosis del fumador (c - c)
48.- S. peutz jegherd (polipos)
49.- Enf. addison (insuf. Adrenocortical)
50.- S. laugier-hunziker (no otras manifestaciones)
51.-Neurofibromatosis 1
52.- Neurofibromatosis 2
53.- Tatuaje por amalgama
54.- Nevus (intramucoso- azul)
55.- macula melanotica
56.- Melanoma
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Went to a neurologist today regarding some long-time problems I've been having related to NF1, scoliosis, and other things. Mostly the first two. I don't really know how to explain it all without just babbling about medical stuff and throwing a lot of private information on the internet...
It's just really exhausting. I found out six months ago I essentially had a... sack of spinal fluid hanging off my spine. There's a lot of tissue and nerves growing through the surrounding area which makes it insanely difficult to operate on. Not to mention that, because part of it IS related to my NF due to the mass that the sack (for lack of better words) is essentially sitting on is a neurofibroma and... buh. I don't even know how to explain this in a way that makes sense.
Maybe I can dumb it down to the most basic issues:
I have scoliosis
I have neurofibromatosis
My hips are asymmetrical (due to the above)
This in turn makes one leg a little longer than the other, not because the legs themselves are different sizes. My hip raises one up a bit.
My right sight is very obviously weaker than the left.
Unrelated to the NF/Scoliosis stuff, I've been having really bad vertigo that won't go away. This caused nausea issues that won't go away, and all this is just stacked on top of the constant pain issues I'm already having. I can't jog or run. Even walking makes my back and neck hurt more than I can properly explain.
Everything combined together is just... exhausting. So exhausting. I can't even hold a job down because after a day or two I'm just so low energy and slumped and just... dead energy-wise and motivation-wise because of all the pain. It's just. Always pain.
Walking for more than a few minutes? Pain. And that pain just gets worse the more I move.
Jogging? Running? Straight up can't. The "sack" mentioned earlier essentially bounces up and down if I try and it sends shooting pain down my right leg. Bad enough that my leg will frequently give out if I push myself.
Sitting? Well, less painful than some things, but it also hurts if I'm not twisted into a weird position that makes my other muscles hurt if I sit for too long.
Lungs are fucked from Covid. Getting better. But still fucky. So breathing is hard too.
Vertigo is more or less known enough I don't have to explain that one, but... Even scrolling too fast on a screen triggers that sometimes.
I'm just. So. Tired... So tired. I want to be healthy.
Doctors and unemployment are all encouraging me to try for disability and work toward that so I have some kind of stable income and something to live off of while I try to get my health together. But... well. Anyone ON disability can tell you how much of a hurtle that is to get. Let alone keep it.
Still...
I want to. I'm going to try. But as it is... I have no income at all. I've got nothing to keep me together. Nothing to float with. I've got my Etsy, and I'm hopeful I'll be able to do a little more with that, but not having income makes it hard to get supplies to make things... but I'll do what I can.
The pandemic really made a lot of this so much harder because everything shut down and I couldn't get the help I needed for a while... though part of it was my own fault because I tried to power through for so long. I didn't think I deserved help. I tried so hard to climb out of one health hole, only to tumble right into another, and this one I can't really do anything about...
So that's where I'm standing for now.
It sucks... but I guess I'll try my best for now. Gotta find a way to pay bills and keep things going.
The biggest Suck about all this is, in order to apply for disability, I have to stop unemployment. Which I have to do anyway. if I *can't* work, unemployment doesn't want to help me anymore. All they care about is getting me employed again.
But if I go off unemployment and stop searching for work (mostly remote, it's all I can do that doesn't involve movement. spine problems and all) then I have *no* income to pay for basic insurance, medical bills, and basic life bills.
So. Hopefully I can build a decent buffer this month through Etsy and maybe I'll have some sort of luck with disability...
At least the doctors are on my side and willing to help and get me whatever letters I need. Here's hoping that's enough.
#Nao Rants#Life Stuff#Fun with Health#I've edited this like three times as I try to sort out my thoughts.
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THIS.
you can't get anxiety and PTSD and neurofibroma and a schwannoma and bad pap smears and blood clots and ehlers danlos and hernias and stomach ulcers and thyroid problems and three miscarriages...like at some point your writers need to check themselves, it's just unrealistic
i feel like every human should max out at one disability or chronic illness. like when i hit adolescence and my brain chemistry went “bipolar time now?” the response should have been an error message like sorry! this slot can only contain one (1) item and has been filled with childhood asthma. i would even allow the possibility that you can overwrite previous disorders like “you have equipped chronic migraines and so no will no longer display symptoms of bipolar disorder.” i just think it should work that way.
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Practicing an interpretive dance to remind my boss I have da tumors (Neurofibromatosis Type 1) and standing that long is literally agony.
Curse you plexiform Neurofibroma in my leg the platypusssssss!
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Lipoma Treatment at SurgiKure in Visakhapatnam And Vijayawada
Lipoma Treatment - Diagnosis, Procedure and Recovery
Have you been dealing with a fatty lump that isn’t going away? It could be a benign tumor called lipoma. Lipomatosis are skin-colored lumps that can appear anywhere on your body and can cause cosmetic and medical concerns. At SurgiKure, we provide safe and effective lipoma treatment through traditional and modern, minimally invasive techniques. Book a consultation with our expert plastic and cosmetic surgeons to seek proper treatment and undergo lipoma surgery if necessary.
What is Lipomas & Their Removal
Lipomas are benign (non-cancerous) tumors that are made up of fat cells. These fatty lumps are located just below the skin and are usually soft, movable, and painless. A lipoma can occur anywhere on the body where fat cells are present, but they are most commonly found on the neck, shoulders, back, arms, and thighs. The exact cause of lipomas is still unknown, but they are thought to have a genetic component and may be more common in individuals with a family history of lipomas. They can also be associated with certain medical conditions such as adiposis dolorosa and Gardner’s syndrome. Most lipomas do not require treatment unless they are causing discomfort, interfering with movement, or affecting a person’s self-esteem. However, if necessary, lipomas can be removed through certain medications and surgical procedures, such as excision, liposuction, and minimally invasive techniques.
Lipoma Diagnosis
When diagnosing a lipoma, it’s important to consider other conditions that may have similar characteristics. While lipomas are usually easily recognizable due to their specific features, there are a few conditions that can mimic lipomas, such as epidermal exclusion cysts, sebaceous cysts, neurofibromas, dermatofibromas, liposarcomas, etc.The diagnosis of lipomas is typically made based on a physical examination and medical history, as they have distinct characteristic features that are usually recognizable. However, in certain cases, it may be difficult to distinguish lipomas from other conditions. If so, the following diagnostic tests will be performed to confirm lipomas:
Imaging Tests: Ultrasound, MRI (Magnetic Resonance Imaging), and CT (Computed Tomography) scans are commonly used imaging techniques to evaluate lipomas. These tests help to determine the size, location, depth, and consistency of the lipoma. They also help to assess the surrounding tissues and structures, such as the vascularity of the fatty lumps.Biopsy: In certain cases, a biopsy may be recommended if the surgeon suspects that it may be a malignant tumor (liposarcoma) resembling a lipoma. During a biopsy, a sample of the tissue is extracted and examined under a microscope to look for cancerous cells and differentiate between a benign lipoma and liposarcoma.These diagnostic tests may not be necessary for all cases. The need for further testing depends on the individual circumstances and the presence of worrisome symptoms.
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Buy Koselugo 10mg Capsule 60's - From Milan Medicals Online - Free Delivery, Best Price
https://www.milanmedicals.com/?p=21919 https://www.milanmedicals.com/?p=21919 #koselugo #koseluto-10mg #nf1 #selumetinib #selumetinib-capsule Koselugo 10mg Capsule (Selumetinib) is a targeted therapy for neurofibromatosis type 1 (NF1), reducing the size of plexiform neurofibromas and alleviating associated symptoms. This MEK inhibitor is approved for managing NF1-related tumors in both adults and children.
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Neurofibromatosis Treatment Drugs Industry Growth
Neurofibromatosis (NF) is a genetic disorder that causes tumors to form on nerve tissues. There are two main types - NF1 and NF2. NF1, also known as von Recklinghausen disease, is the more common form affecting around 1 in 3000 people. The main symptoms include light brown spots on the skin, tumors on or under the skin (neurofibromas), and Lisch nodules on the iris. NF2 is rarer and causes bilateral vestibular schwannomas (tumors on the eighth cranial nerve), which can lead to hearing loss and balance problems if not treated. Other features may include meningiomas (tumors of the meninges) and ependymomas (tumors of the central nervous system). Medical Management of NF1 For NF1, the treatment approach depends on the symptoms. If neurofibromas are small and cause no problems, only monitoring is needed. However, larger or painful neurofibromas may require surgery to remove them. Magnetic resonance imaging (MRI) scans are useful to monitor the growth of tumors. Children with NF1 are closely followed to watch for the development of optic pathway gliomas, which can affect vision if not treated. Medical therapy focuses on managing complications like high blood pressure, learning disabilities, and bone abnormalities. Targeted Neurofibromatosis Treatment Drugs Therapies In recent years, research has led to the development of targeted drug therapies that interfere with molecular pathways driving tumor growth in NF. One such pathway involves the RAS family of oncogenes, which are mutated in a high percentage of NF1 tumors. Selumetinib (Koselugo) is a MEK inhibitor drug approved by the FDA to treat inoperable plexiform neurofibromas in patients with NF1. By blocking the MEK protein, it helps control tumor growth. Another RAS pathway drug, sotorasib (Lumakras), showed efficacy against KRAS G12C mutant solid tumors in a clinical trial and may offer an option for NF patients with specific mutations. Several other MEK and RAF inhibitors are under investigation for NF. Medical Management of NF2 For NF2, treatment goals are to halt tumor growth and preserve hearing and neurological function as long as possible. Surgery continues to play a major role by removing tumors causing symptoms. Stereotactic radiosurgery uses focused beams of radiation to control residual or growing tumors without the risks of open surgery. Monitoring with serial MRIs helps determine when intervention is needed. The multikinase inhibitor sorafenib was shown to slow tumor growth in an NF2 clinical trial and represents a potential medical option. However, effective drug therapies are still quite limited for systemic treatment of NF2. Research Directions Ongoing research aims to discover new drugs that more specifically target signaling pathways driving NF tumor formation and growth. Candidate pathways include PI3K-AKT-mTOR, Hedgehog, Notch, Wnt, and Hippo signaling. Therapies modulating these cascades are in preclinical testing. Immunotherapies are another area of investigation since NF tumors can express tumor antigens that may stimulate anti-tumor immune responses. Combining targeted drugs with immunotherapy is a strategy to make treatments more effective. Advances in gene therapy also offer hope that someday, mutations causing NF could be directly corrected. Progress is being made, but more work is still required to develop curative options for these currently incurable genetic tumor predisposition syndromes.
#Neurofibromatosis Treatment Drugs Analysis#Neurofibromatosis Treatment Drugs Demand#Neurofibromatosis Treatment Drugs Trend
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Symptoms and Treatment of Spine Tumor | Spine Doctor in Dwarka, Delhi
The spine, a most essential component of the human skeletal system, supports the body and protects the spinal cord. Unfortunately, tumor also develop within the spine, causing health risks. In this article, neurosurgeon in Delhi explains spinal tumors, including their symptoms, causes, treatment options, and spine surgery in Dwarka
Types of Spinal Tumors
Spinal tumors are categorised into two types: primary tumors, originating within the spine, and secondary tumors, which metastasise from other parts of the body. Primary tumors are classified as benign or malignant. Benign tumors are non-cancerous and grow slowly, while malignant tumors are cancerous and invade surrounding tissues, spreading to other parts of the body.
Non Cancerous Spinal Tumors
Non-cancerous spinal tumors include osteoid osteomas, osteoblastomas, and hemangiomas. While these tumors are slow-growing and their location within the spine lead to dangerous symptoms and emergency complications.
Cancerous Spinal Tumors
Cancerous spinal tumors, such as osteosarcoma, chondrosarcoma, and Ewing’s sarcoma, are dangerous and life-threatening. These tumors require urgent treatment to start.
Symptoms of Spinal Tumors
The symptoms of spinal tumors may not be same for all patients depending on their location, size, and type. Common symptoms are as follows:
Back Pain: Consistent and continious pain in the back is a symptom of spinal tumors. The pain worsens at night and with physical activity.It can also be a symptom of sciatica or scoliosis if beding is visible
Neurological Symptoms: Tumors compress the spinal cord or nerve roots, causing neurological issues like numbness, weakness, or tingling sensations in the extremities.
Changes in Bowel or Bladder Function: Severe spinal cord compression results in bowel and bladder dysfunction, leading to incontinence or difficulty controlling these functions.
Difficulty Walking: Tumors affecting the spine difficulty walking or a lack of coordination in the body.
Radiating Pain: Pain radiates from the spine to other parts of the body, depending on the tumour’s location and its impact on surrounding nerves.
Causes of Spinal Tumors
The exact causes of spinal tumors are still not known, but risk factors and conditions increase the chances of these factors:
Age: Types of spinal tumors occur in some age groups. For instance:
Ependymomas: Youngsters under 20 years old.
Juvenile Pilocytic Astrocytomas: Common in children and young adults occur in the first 20 years.
Meningiomas: More common in adults, over 40 years old.
Nerve Sheath Tumors (Schwannomas, Neurofibromas): Can occur in young to middle-aged adults, in the 20s to 40s.
Meningiomas: In older adults, over 60 years old.
Schwannomas: 40s to 60s years of age.
Radiation Exposure: Exposure to radiation therapy, for cancer treatment or other diagnosis tests increases the chances of spinal tumors.
Metastasis: Secondary spinal tumors result from the spread of cancer from other parts of the body, such as the lungs, breast, or prostate.
Tests for Spinal Tumor in Delhi
Diagnosing spinal tumors includes the following tests:
Neurosurgeon will assess the patient’s medical history and go for a physical examination to identify symptoms.
X-rays, CT scans, MRI scans, and PET scans, to visualize the location, size, and details
A biopsy is taking a tissue sample from the tumor to determine its type, whether benign or malignant.
Spinal Tumor Treatment in Delhi
The spinal tumor treatment in Delhi as per a top spine specialist in Delhi includes a combined treatment course as follows:
Observation: In cases of slow-growing and asymptomatic benign tumors, spine doctors do regular monitoring with medicines.
Radiation therapy and chemotherapy are used to treat spinal tumor. They aim to shrink or eliminate cancerous cells.
Spine tumor surgery is necessary for both benign and malignant spinal tumor. The surgery removes tumor, decompresses the spinal cord or nerves, and stabilises the spine.
Chemotherapy uses drugs to kill or slow the growth of cancer cells. While not very common for spinal tumor
Immunotherapy works by improving the body’s immune system to recognise and attack cancer cells.
Spinal Tumor surgery in Delhi
Spine surgery procedures used in brain tumor can be as follows:
Tumor Resection: This involves removing as much of the tumour as possible while preserving the surrounding healthy tissue. In some cases, complete removal is not feasible due to the tumor’s location or invasiveness.
Decompression Surgery: Spinal decompression reduces pressure on the spinal cord or nerves by removing portions of the tumour or surrounding bone.
Spinal Fusion: Stabilising the spine requires spinal fusion, a procedure that involves fusing two or more vertebrae using bone grafts or hardware.
Minimum cut Surgery: Smaller incisions in the back to reduce muscle damage, and shorter recovery times.
Spinal tumor as explained by Dr. Nagesh Chandra, a neurosurgeon in Dwarka, Delhi, is a serious medical problem that can be caused by many reasons. So symptoms like frequent backpain should never be voided, so that any danger can be prevented and spine tumors get timely treatment
You can connect with Dr. Nagesh by dialing +919818776763 now
#SPINE DOCTOR IN DELHI#SPINE SURGERY IN DELHI#SCOLIOSIS TREATMENT IN DELHI#NEUROSURGEON IN DELHI#BEST NEUROSURGERY SPECIALIST IN DELHI
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Short Description on Plexiform Neurofibroma
Short Description on Plexiform Neurofibroma Plexiform neurofibroma is a rare type of tumor that affects the peripheral nerves. It is a benign tumor that can occur anywhere in the body, but it is most commonly found in the head, neck, and extremities. Plexiform neurofibroma is often associated with neurofibromatosis type 1 (NF1), a genetic disorder that affects the development and growth of nerve…
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As with surgery, there are now many newer and emerging radiation technologies, tools, and techniques, including radiosurgery (also called stereotactic radiosurgery) and proton beam therapy.
According to each patient’s unique demands, the treatment strategy may combine surgery, radiation therapy, chemotherapy, targeted therapy, and immunotherapy. There are now better brain tumour diagnostic tools, surgical methods, and treatment choices because to developments in medical technology and research.
Types of Brain Tumor
1. Primary– Our brain is where primary brain tumours start. They can arise from your nerve cells, brain cells, meninges, the membranes that surround your brain, and glands like the pituitary and pineal. Primary tumours can be malignant or benign. Gliomas and meningiomas are the most prevalent kinds of brain tumours in adults.
2. Gliomas– Gliomas are tumors that develop from glial cells. These cells normally support the structure of your central nervous system, provide nutrition to your central nervous system, clean cellular waste, break down dead neurons
3. Meningioma– Meningioma is the most common primary brain tumor, accounting for more than 30% of all brain tumors. Meningiomas originate in the meninges, the outer three layers of tissue that cover and protect the brain just under the skull. Women are diagnosed with meningiomas more often than men
4. Neurofibroma– Neurofibromas are benign tumours that can develop on any part of the body’s nerves and are often painless. These fleshy, soft growths can occasionally form on the spinal cord, cranial nerves, or the brain. Neurofibromatosis type 1 (NF1) is a hereditary condition characterised by many neurofibromas as one of its symptoms.
5. Giant Cell Tumor– Named for their extremely large cells, giant cell tumors are rare bone tumors that usually affect the leg and arm bones. They may also be found in the skull. Most giant cell tumors are benign and occur in patients between 20 and 40 years of age.
6. Osteoma– Osteomas are benign bone tumours that typically appear on the base of the skull and the bones of the face. These slowly expanding tumours typically don’t manifest any symptoms. Large osteomas, however, may result in issues with breathing, vision, or hearing if they develop in specific regions of the brain.
Medications After Brain Tumor Surgery in India
There are several medicines that are helpful for reducing the symptoms of brain tumors. There are some of the medications are clinically tested and recommended by several physicians. They are:
Conclusion
Brain tumors are increasing on a large scale worldwide. Malignant tumors can be life-threatening. Whether benign or malignant, treatment depends on the specifics of the tumor. There are several treatment initiatives that are to be considered for a brain tumor patient. Treatment such as different medications, targeted surgery, chemotherapy, immunotherapy and others are really helpful in treating these patients.
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Brain Tumor Treatment in Meerut | Brain Tumor Treatment in Meerut at Low Cost
Brain Tumor Surgery and Brain Tumor Treatment In Meerut
Let us learn about treatment of brain tumor and recovery after brain tumor surgery from the best Neurosurgeon in Delhi, Meerut and western UP, Dr. Amit Bindal.
Seek immediate help for treatment for brain tumor, surgery for brain tumor, from the top Neurosurgeon in Meerut and Delhi, Dr. Amit Bindal at Bindal Brain and Spine Clinics, Meerut, who has more than 15 years of expertise in Brain surgery at affordable rates.
What is a brain tumor?
Tumor is a mass of tissue that develops abnormally when cells grow and divide more frequently than is normal.
The brain tumor is a collection of such abnormal cells in the brain.
The additional cell growth in our brain increases the pressure inside the restricted skull’s cavity, which causes brain damage, and can be life-threatening.
Brain tumors can be either:
Benign tumors: they are not cancerous and cannot spread to other parts of the brain or body like Meningioma or Pituitary Adenoma.
Malignant tumors: they are cancerous, they grow very fast and can regrow even after complete excision or radiotherapy.
These tumors have a very poor prognosis.
What are the symptoms of Brain tumor?
Most frequent symptom is Headache. Any new onset headache must be investigated with a CT scan or MRI brain.
Headache usually involves whole of head, mostly occurs during morning and is relieved by vomiting.
Other symptoms may include:
Fainting or dizziness
Seizures and tremors
Nausea and vomiting
Confusion
Loss of balance
Partial or complete paralysis
Defects in hearing and vision
Which doctor is ideal for the treatment of brain tumor?
A Neurosurgeon doctor is well trained to understand all the facets of brain tumor treatment along with its treatment with medicines or operation if required.
At which age the Brain Tumor usually occurs?
Brain tumors affect anyone at any age. Some tumors like ependymoma and medulloblastoma are more common in children. Other tumors like Meningima and Glioma can occur in adult to middle age.
Can a blood test detect brain tumor?
No, the best investigation to diagnose brain tumor is MRI
How fast do brain tumors grow?
Most of the benign brain tumors like neurofibroma and meningioma grow slowly (up to 1cm per year)
In contrast the metastatic or malignant tumors progress rapidly.
Are brain tumors serious?
Yes, they are serious and must be treated before they lead to paralysis of legs or problems in urine or stools. If not treated they may lead to death of patient.
Can brain tumor lead to death?
Yes, brain tumor is a serious condition and must not be taken lightly.
Benign tumors like neurofibroma and meningioma rarely cause death. They have a very good outcome after treatment.
Malignant tumors have a poorer prognosis.
Are brain tumors always cancerous?
No, some tumors are benign and grow slowly but some are malignant.
Is brain tumor curable?
Yes, why not. Most benign tumors are curable after surgery.
Many malignant tumors have long term control after full treatment.
Can you live with a brain tumor?
Yes, of course after treatment of benign brain tumor you can live a long life.
Few malignant and cancerous lesions grow fast and can lead to risk of life.
Early diagnosis will lead to a better treatment outcome!
Whom you should consult for the diagnosis and treatment of brain tumor?
A Neurosurgeon is the doctor who is most suitable to diagnose any brain related problems.
MRI scan of the brain is the most important investigation for the diagnosis of brain tumor.
Neurological examination: This includes checking your balance, vision, hearing, coordination, reflexes, and strength.
Imaging tests: Imaging tests that are used to diagnose brain tumors are: Magnetic Resonance Imaging (MRI), Computerized Tomography (CT) scan, and Positron Emission Tomography (PET) scan.
Analysis of CSF: Cerebrospinal fluid is tested to diagnose the brain tumor conditions.
Angiography: In this procedure, the fluorescent dye is made to travel to the brain to see details about the blood supply to the tumor which is helpful during surgical removal of the tumor.
Biopsy: A small piece of the tumor is examined to determine whether it is benign or malignant.
What is the treatment of Brain tumor?
Treatment of brain tumor with medicines
Few brain tumors which are not amenable for operation, which are deep seated, those tumors which are very risky to remove are treated by chemotherapy and radiotherapy.
Can brain tumor be cured with medicine?
No, medicines do not work in brain tumor. Some steroids can give relief momentarily by reducing tissue edema.
After surgery Chemotherapy is given to kill residual cells.
Brain Tumor treatment without surgery in India?
Only some tumor which are deep seated may be treated with radiosurgery. Most tumors require surgery to decrease the tumor mass so that chemotherapy and radiotherapy can work.
Can tumors on the brain be removed?
Yes, most of brain tumors are removed and excised by surgery. Some small and deep seated tumors are treated by radiosurgery or stereotactic biopsy.
Brain tumor surgery
Surgery: It is the most common treatment option for the brain tumors. The neurosurgeon attempts to eliminate as much cancerous cells as they can without harming the normal brain tissues.
Minimally invasive surgery: Neurosurgeon use this technique to remove the cancerous cells because it shortens your stay in the hospital, speeds up your recovery, and lowers the mortality rate.
Radiosurgery: Some small and deep seated tumors may require this modality of treatment. In this treatment procedure, many beams of radiation are focused onto the brain tumor to kill the tumor cells.
Radiation therapy: In this technique, X-rays or proton beams are used to kill tumor cells.
Chemotherapy: To kill the tumor cells, drugs are injected or taken orally.
Thanks to the advancement in brain tumor surgery techniques.
Modern technology has significantly increased the neurosurgeon’s capacity to operate safely and successfully on brain tumors. Bindal Brain and Spine Clinics at Meerut is equipped with latest state of the art gadgets and techniques for the treatment of difficult brain tumors.
These consist of:
The brand-new, cutting-edge operating microscope: It greatly facilitates brain tumor surgery through illumination and magnification.
High speed drill system: It is very helpful in making an opening in the skull to reach the brain tumor.
CUSA – Ultrasonic aspirator: The tumor is sucked after being emulsified, and this is very beneficial to neurosurgeons as it cuts down on both blood loss and operation time.
Neuro navigation: It is extremely beneficial because it reduces the risk of injury to the normal brain by locating surgical instruments inside the brain in real time.
How long is brain tumor surgery?
It about 2-3 hrs in a typical brain tumor operation. But it may take longer depending on the size of tumor and location of the tumor.
How much does brain tumors surgery cost in India?
Brain tumor surgery at affordable rates
We at Bindal Clinics believe in affordable health care for all.
Surgery for brain tumor at Bindal Clinics costs around 80,000 rupees to one lakh rupees.
In big corporate hospitals in India this type of surgery costs anywhere between 2.5 lakh rupees and go up to 5 lakh rupees.
We operate with all the latest state of art gadgets like surgical Microscope, Endoscopic system, CUSA (cavitron ultrasonic aspirator), High Speed Drill system, neuronavigation etc.
We believe in the best possible outcome of surgery for patients with brain tumors.
Can there be paralysis after brain tumor surgery?
No, usually up to 90% of patients recover fully after surgery for benign brain tumors.
Some patients who have extensive disease do not recover if they have severe pre existing paralysis before the surgery.
There are very minimum chances of aggravation of paralysis after surgery.
What is the recovery time after surgery for brain tumor?
If the patient is mobile before surgery, he/she will usually recover in 3-5 days post op
Patients with pre-existing weakness of legs take 2-3 months to recover fully.
However you doctor will examine the patient and available reports to guide you regarding the time to recovery.
Experience state-of-the-art treatment at Bindal Clinics, Meerut
We want the best for your brain and spine health here at the Bindal Clinics in Meerut.
Schedule a consultation to discuss more about the brain tumor treatment, surgery for brain tumor with the best Neurosurgeon in Delhi and Meerut, Dr. Amit Bindal, who has more than 15 years of expertise in Brain surgery and Spine surgery at affordable prices.
Dr. Amit Bindal, the best neurosurgeon in Delhi and Meerut
Dr. Amit Bindal, Best doctor for brain tumor treatment in Meerut and Delhi
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The differential diagnosis for posterior mediastinal masses is primarily neurogenic tumors (such as neurofibromas and schwannomas) and extramedullary hematopoiesis.
This is a case of a 25-year-old man with a history of thalassemia. Bilateral mediastinal masses demonstrate a hilum overlay sign at the right hilum (hilar vessels are visible) and silhouette the descending aorta. This localizes the masses to the posterior mediastinum. There is subtle widening of some posterior ribs. In addition, there is splenomegaly (which can be difficult to spot on CXR!). At CT, bilateral paraspinous masses are confirmed. This is an example of extramedullary hematopoiesis.
Case courtesy of Ian Bickle, Radiopaedia.org, rID: 39630
#TeachingRounds#FOAMEd#FOAMRad#Anatomy#mediastinum#radiology#chestradiology#chestrad#cardiothoracicradiology#chestxray#CTRad#hematology
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