#myastheniawarrior

[vaishhh07]

DAY 11

Yesterday night was bit tough one for me. I had extreme left arm weakness and mild breathlessness and severe diplopia. I applied eye drops prescribed to me for my eye infection as well as i had my medicines and steroid too. I managed to sleep yesterday night. I thought next morning i won't be able to wake up for my daily excersice. I woke up in the morning still had weakness in my left arm. It was a happy morning there was no breathlessness. I went cycling today but again no availability of cycles. Better luck next time. Me and my friend had a great time playing badminton. Being a sports lover and a player i love playing badminton. We played for 30 mins because it is hard for me to pull more than that. After that we sat there silently listening to chirping of birds looking at other people who were enthusiastically performing pranayam and excercises. We also did pranayam and meditated for 10 mins. I experienced a lot of peace and strength which boosted my energy level.

Hoping to find a cycle tomorrow!

Have a nice day :)

[pensierinattesa]

Lo stesso mese, la stessa #Amuchina, otto anni fa. #tantiauguriame #wereamask #mascherina #legamimilano #whatamask #miasteniagravis #myastheniagravis #myastheniawarrior #viterare #besta https://www.instagram.com/p/CHqeMl3Cg8P/?igshid=tf6jyg4r07m5

[vaishhh07]

Day 14

Like a normal day I woke up at 6:15. Got ready for my daily workout and was ready on time. Today i found cycles luckily but that cycle was totally making me mad! The lock of the cycle was not opening. I tried hard and it took me 15 mins to open that hard lock which gave me really hard time. After cycling for like half n hour i was drenched in sweat. Later today I started with my upperbody workout! Its painfull in beginning but i know it's all worth it! I did plank, arm rotation ,knee pushups and some mild exercises for 10 mins. My body is aching a lot. I even got muscle weakness in the evening making me unable to move my arm. But it also disappeared in sometime. Still mild weakness persist. But this mild weakness won't stop me from working on. Im not being hard on myself I work till my body permits me to do so! I hope tomorrow also I'm able to perform my upperbody work out! Starting off with 10 min workout will increase the time very slowly and as per my body permits me to do!

Knowing needs of my body and strength is really important factor for me as well as from any myasthenia gravis patient!

See you tomorrow with my next blog :)

Keep smiling;)

[vaishhh07]

Day 12

Today was cheat day for me. :p Today i get to eat whatever i want. So as my midsem was over today I had plans with my friends for lunch. We went to a cafe to hangout and to eat aswell. This was the best part of the day. Food and friends together makes the best combo in the world. We laughed we gossiped and ate some tasty dishes. It was one of my best day today. The weather was not at all favourable for excersice still managed to cycle in the morning. Increased my speed today by 10% and humidity made me all tired and sweaty. Even standing outside made me sweaty and sticky. God i hate this humidty :( I hope tomorrow it rains as a solution to this dirty humidity.

Food is love;)

Keep smiling:)

P.S:- Bunk Sunday tomorrow 🤭

[vaishhh07]

DAY 16

Today's day was a bad one for me. I was in a crisis situation. It all started from yesterday with facial weakness. In morning everything was ok but anyhow i was not able to perform my daily workout as I felt something was not right with me. I returned home without any workout. Later I experienced weakness in my arms and then legs. Weakness in my leg made me unable to walk. Then i rushed to the hospital in between i lost my file.. and was in search of it for like an hour. Finally after i found my file i rushed to hospital where dr was about to arrive after 2 hours. I was not in a situation to wait. Then i was shifted in emergency room. I waited there. After that dr came checked me and at that time my weakness was increasing and i was not able to open my eyes properly. So after veiwing my symptoms dr. Decided to admit me for a day and many tests are done. Based on reports i will get discharged tomorrow or may be after 2 3 days. It was a nightmare in the day today! But im fine now as its 5th day of Navratri festival Goddess Durga with me showering her blessings on me. All my friends and family are also constantly praying for me that helps a lot!

Lets hope for the best :)

Good night🙂

[vaishhh07]

So, being active after a really long time!

Just took a break from everything as certain things were really hard for me to digest!

1st thing was that my occular myasthenia just progressed to generalized myasthenia gravis within 2 months! And my blood counts are also abnormal. So i just got away from social media a bit. But now im back! Basically i started a new routine. That made me really happy. So my new routine is that my lab work has started. Lab work= fun. Its tiring though but its really worth my energy... I have to carefully utilize my energy because over exsertion may cause me weakness. This gave me a break from workout but lab work is no less than workout. Running here and there for materials readings and what not. Returning in evening im all drained out tired but still i have a smile on my face knowing that I have done something that i love!!

My health is great now. I didnt face any weakness till now hopefully wont face any crisis in future.

Keep smiling :)

[pensierinattesa]

Le vedo, ora, Per la prima estate In quattro anni. #haiku #scars #cicatrici #cortisonefree #cortisone #miastenia #miasteniagravis #myasthenia #myastheniawarrior #viterare #raredisease #malattierare #poetry (presso Glori, Liguria, Italy) https://www.instagram.com/p/CEHoSvECBXb/?igshid=1nzxkd8i6r09y

[pensierinattesa]

#VitaDaCavia, Manie di #precisione, Ed è #tombola! #miasteniagravis #myasthenia #myastheniagravis #antimusk #myastheniawarrior #tired #stanca #cavia #pills #drugs #stardust #piano #box #pillsbox #tiger #legami (presso Glori, Liguria, Italy) https://www.instagram.com/p/CDgsNPZi-vG/?igshid=15h299zqbq3e0

[pensierinattesa]

Altro giro, doppio regalo. Non pronta per il #collaudo. Looking for #GoodVibes... #myastheniagravis #myastheniawarrior #miasteniagravis #miastenia #viterare #esamidicontrollo #followup #vitadacavia https://www.instagram.com/p/CDPatVOo1BO/?igshid=1q1ixve8vfi8d

[pensierinattesa]

Ehi #Peter... I miei #PensieriFelici li hai tu, vero? #myastheniawarrior #stanca #neverland (presso Glori, Liguria, Italy) https://www.instagram.com/p/CBW99TMCpoe/?igshid=qsejlk8gzfep

[pensierinattesa]

68 di questi articoli! #wannabejournalist #vitadabliver #ilbullone #giornalistiveri #myastheniawarrior (presso Arlecchino Clandestino feat. Les Sans Papiers) https://www.instagram.com/p/CA-3IhPiqEA/?igshid=1wt8gpt0hgpti

[pensierinattesa]

Spedizioni pronte! Daje! #totilapillolachenoncè #telaio #handcrafted #delivery #chiamalacolsuonome #myastheniagravis #myastheniawarrior #malattierare #raredisease #miasteniagravis (presso Glori, Liguria, Italy) https://www.instagram.com/p/CADYwAgoLxL/?igshid=1v67fh2avkyxc

[pensierinattesa]

Ritrovamenti in #quarantena. E due. #amicibelli #compleanniimportanti #myastheniawarrior (presso Glori, Liguria, Italy) https://www.instagram.com/p/B_fDg0YiwHt/?igshid=rux4oqbch6z3

[pensierinattesa]

Eh. Ci si prova. #dontpanic #nientepanico #paceinteriore #myastheniawarrior (presso Glori, Liguria, Italy) https://www.instagram.com/p/B-0i2xaqLko/?igshid=18ilsvq9htik0

[pensierinattesa]

#Merenda profumata... 🍌🍨💊 #vitadacavia #miasteniagravis #myastheniagravis #myastheniawarrior #cannella #yogurt #food #cinnamonaddict (presso Glori, Liguria, Italy) https://www.instagram.com/p/B86jlROI1Fn/?igshid=awffzcemfp4x

[pensierinattesa]

#Giorno45 #MilleModiPer sopravvivere all'#influenza, al #freddo, alla #noia... #colouringbook #circus #sarahwalsh #vitadacavia #myastheniawarrior #miele #tachiflu https://www.instagram.com/p/BxKbdSPgoDe/?igshid=x5zhutg62m5w