#lupusawareness✋💜

[mistykj]

#Lupusawareness✋💜 #LupusWhy'sHow's #chronicillnesslife #Lupus #lupuswarrior💜 #lupusawareness✋💜#Bbloggerfightinlupus #Meds4Days #Steroids&Injections #lupusnephritis #LupusMytosis #lupusisreal #livingwithlupus #lupussisters #spooniestrong #MS #RaynaudsSyndrome #DoNotHideItEmbraceIt #MyLifeNow https://www.instagram.com/p/BopgGXlhZRD/?utm_source=ig_tumblr_share&igshid=1m9eug59cd6st

[mistykj]

My girl, my heart Daizie Maizie she's so tired but she's always by my side through it all. She knows when I'm sick,she comes into the bathroom and nuzzles me to just hold her as I cry, scream, and want it all to end. She waits for me to go down the stairs slowly and lays next to me or on my feet when we sleep. The last 2 days have been in bed and miserable. I have no money to spend or contribute to the family. because I cant work. This is killing me I lay in bed in pain and cry myself to sleep during the day or watch YouTube videos which doesn't help me because I wish I could buy the stuff they show just to feel normal ya know... but money always goes to my millions of meds, Injections, PainSpecialists, Physical Therapists Drs. Appointments, hospital stays etc. My sons who should be in college are here helping out because of the lack of income a 7 person family takes. My husband handles it all and I know it weighs on him, but he's there when I need someone to hold me and maybe even rock me and sing me too sleep. I am struggling with it all and I'm only getting worse and their isn't a thing to do about it. Life isn't Fair, and I know I may one day know why I struggled so hard and why this happened to me. But for right now, I am barely hanging on, let alone keeping the evil thoughts and monsters at bay. I just don't know how much longer I can take it all. #DepressionHurts #ItsReal #lupusawareness✋💜 #LupusWarrior #TheFightIsReal. #HeavenlyFatherAreYouReallyThere🎶🙏 #kNOwlupus #NOlupus #PainIsReal #lupuswarrior💜 #lupusawareness✋💜Bblogger #Meds4Days #Steroids&Injections #lupusnephritis #LupusMytosis #lupusisreal #livingwithlupus #lupussisters #spooniestrong #MS#RaynaudsSyndrome,#FibroymyalgiaLikeSymptoms #DoNotHideItEmbraceIt #MyLifeNow https://www.instagram.com/p/BncOaknBxNP/?utm_source=ig_tumblr_share&igshid=1emf769r2t34g

[mistykj]

So I just posted a blog post on the necklace I get asked about all the time. Go check it out at http://bbloggerfightinlupus.blogspot.com/2018/08/awarecauses-company-that-helps-support.html @awarecauses @pierson_williams #lupusawareness✋💜 #Lupus #lupuswarrior💜 #lupusawareness✋💜Bbloggerfightinlupus #Meds4Days #Steroids&Injections #lupusnephritis #LupusMytosis #lupusisreal #livingwithlupus #lupussisters #spooniestrong #MS #RaynaudsSyndrome #DoNotHideItEmbraceIt #MyLifeNow

[mistykj]

When I look and feel like this I want to hide myself from the world. The pain is so intense I am exhausted both mentally and physically. I am loosing my eyebrows and lashes Which makes me feel ugly. I am posting this picture in hopes of more awareness of this chronic disease called #Lupus I don't want to feel like I have no control but honestly I don't. I never asked for this and knowing there's NoCure and nothing can be done about it makes me feel very mad that my life has changed and very sad I have no control of the physical changes.. I am trying so hard to hold on and be strong. .......... #Lupus #lupuswarrior💜 #lupusawareness✋💜#Bbloggerfightinlupus #Meds4Days #Steroids&Injections #lupusnephritis #LupusMytosis #lupusisreal #livingwithlupus #lupussisters #spooniestrong #MS #RaynaudsSyndrome #DoNotHideItEmbraceIt #MyLifeNow #WeNeedACure #TryinToBePositive