#livingwithlupus

[primecashpro]

World Lupus Day!

On this special day, let's come together to fight lupus and improve the quality of life for those affected by it. Your strength and courage inspire us all. …

https://www.facebook.com/primecashofficial/

[lupusnews]

Death rates within 30 days of discharge were 65% higher in the absence of 30-day follow-up compared with older lupus patients who did receive it, according to Christie M. Bartels, MD, MS, of the University of Wisconsin in Madison, and colleagues.

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[yasibear1]

Living with Lupus, Rheumatoid Artheritis, Rheunaud’s Disease, and now nerve damage is something I could never wish on my worst enemy. No one should have to experience such pain in life.. every single night it’s praying the pain doesn’t wake me so I could get enough sleep for once. Every single night it’s praying I wake up with little to no pain to get ready in the morning. Always praying for enough spoons to just get me through the morning.

[mommingwithlupus]

I saw this picture and thought, wow this is about me! A fever for 3 weeks, body rash, headaches, and altered vision... but your labs are fine  #lupus #butterflywarrior #mommingwithlupus #livingwithlupus #autoimmunedisease #lupuslife

[lauralee47]

Lupus: Coping with Fatigue (new)

[itsmekayceee]

Feel like shit. So heres a pic of me. K bye.

[lupusmyinvisiblecompanion]

Lupus Myth: Headaches are a Manifestation of Neurologic Lupus by Johns Hopkins Rheumatology The old American College of Rheumatology criteria in the definition of what is considered to be brain lupus included headaches.

[thehungrykat1]

Living With Lupus: A Greater Purpose

When you reach the end of the road, what else can you hold on to? Everything in life has an ending, be it joy, pain, or even hope. But what can you do when life is filled with thunderstorms that don’t seem to end? This question has puzzled me for so long and right now I'm still seeking an answer. You see, I have been diagnosed with different health issues since I was 16 years old, but my life has never been the same ever since I was diagnosed with Lupus and more recently, Avascular Necrosis of the hips (Read: My Six Year Journey Living With Lupus). I have always struggled to be optimistic, but even so, the pain – both physical and emotional – has taken its toll on me.

I always try to look happy and normal as much as I can, but there are times when I do feel down and crushed. Life is definitely not as simple as it seems. I can’t help but question the purpose of all the pain I have felt since my childhood, including the death of my father when I was just five years old. Somehow, I understand why some people choose to end their lives abruptly. The pain can be extremely excruciating, so much so that you would rather not live another day. I myself experience some days when I just stare at the ceiling and don’t want to move at all. Their are times when I wish I never have to endure another moment with this sickly body...

But there are good days as well, and I try to hold on to those memories as much as I can. The past few years has shown me just how beautiful life can be. I am grateful for the opportunity to travel, whether it be to see the unspoilt natural wonders of our country, or to spend a day at the happiest place on Earth. I am grateful that I can indulge in my favorite pastime... eating, and nothing makes me smile more than a big juicy steak or a Black Tiger Prawn katsu set from Yabu. But most of all, I am extremely grateful when I feel the love of my family and closest friends, as it gives me the fuel I need to keep on going. Because at the end of the day, I personally choose to have faith in my Creator. I know that in the midst of it all, He has my life under control. It took me a while, but now I understand that I needed to be broken in order to be whole. Life is not meant to be just mere existence, there has to be something more, and it's important to find the Lord and cling to a greater purpose. I finally have the answer to my question. Maybe pain is necessary to get closer to God. It’s not some sort of punishment but a blessing. Maybe the purpose I was looking for is not found my own selfish pursuits, but in a greater calling that lies further ahead.

But in order to achieve that greater purpose, I have to keep myself healthy, which brings me to this very day that I have been dreading. When my Avascular Necrosis was diagnosed two years ago, my doctors already advised me to undergo a Total Hip Replacement Surgery because they were already in Stage 4 with no chance of recovery. I was hesitant to undergo surgery before because I was afraid of things beyond my control. So I elected to just bear the pain and try alternative medicine, simply asking God to heal my body and hoping for a chance that a miracle might occur. But now, I’m at a point where the pain is almost unbearable. Maybe I was just not trusting the Lord enough, and it’s finally time for me to take a leap of faith. His answer was there all along, and I simply had to believe in His methods and trust that He will take care of me through this procedure.

I finally understand that I need to fully surrender to Him before I can move forward. I want to be free from the pain and my physical limitations and be able to walk normally again. I want to live a full life to the best of my abilities and give glory to the one who created me. So today, I am finally facing my biggest fear for the past two years. At around 7:00am this morning, I will be undergoing my hip replacement surgery. Maybe my purpose is to write about my journey so I could share it with you. I know there are some who are having problems too, both physically and emotionally, but I hope that you will find the faith within you and embrace the beauty of the life you have. I’m about to embark on the next chapter of my life and I can’t wait to share my new adventures with all of you soon.

[mistykj]

So it's that time again! Y'all helped me win last time so let's do this again. All you have to do is Like, 💖 This post. if you're seeing this elsewhere jump on my Instagram and give a like please. Side Note- I wasn't trying to match my shoes we noticed after it was done.. 😂 #BadAssNailTech @nailsbystepf #Nailfie #Contest #LupusNailCare #MyOwnNails... #Lupus #SLE&Discoid #Peeling&breakingNails #lupuswarrior💜 #lupusawareness✋💜 #Meds4Days #Steroids&Injections #lupusnephritis #LupusMytosis #lupusisreal #livingwithlupus #lupussisters #spooniestrong #MS #RaynaudsSyndrome #EverythingHurts #PainIsReal #DoNotHideItEmbraceIt #MyLifeNow

[thelupusliar]

View this post on Instagram

A post shared by The Lupus Liar (@thelupusliar)

My #LUPUS Rant! I love 💜y’all but sometimes I just have to ‘flare-up’ about #self-care. This should always be considered when advocating! It’s not easy, but it’s worth it. #lupusadvocate #livingwithlupus #photosensitivity #believeinyourself #sunscreenforlife #learnaboutlupus

[lifewithswiftiekrystle]

This is life with Lupus right here! My bread box no longer hold bread. It’s a pharmacy now! I’m in so much pain tonight. If I try to lift my arms it feels like my arms are being ripped out of their sockets. My entire right leg is throbbing and both knees painful. My right knee is swelling up. My cold continues to linger on. Stomach cramps. On the plus side my jaw pain seems to finally be gone. So there’s that at least! 😏 #lupuswarrior #livingwithlupus #myreality

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[briebreezy]

Change of plans.. no kidney biopsy until they can control my high blood pressure. Another hospital stay during the holiday always puts me in a depressed mood. I miss my bed. I miss my dog. And I'm tired of needles. Blood transfusion currently happening, one more night in the ICU. #livingwithlupus #prednisonesucks #hospitalsuck #healing #briesbattle #battlingmybody #ittakestime https://www.instagram.com/p/CIWJd8rjecZ/?igshid=le7g20rpq90l

[holisticspiritualguide]

💪 #staystrong #strength #livingwithlupus #lupuswarrior #lupusfighter #lupusincolor #lupusandme #slelupus #chronicpain #chronicillness #lupusproblems #fibromyalgia #fibrowarrior #holisticspiritualguide (at Orlando, Florida) https://www.instagram.com/p/B3Ota1zH27B/?igshid=r30xjmly3mmo

[latasharjones]

How...why is it that every time I share with someone that I have #lupus they proceed to tell me a story about someone they know who died...from lupus? ¿Pero por qué? ☀✌💜🌼 ° ° ° #blackgirlmagic #microblog #kNOwlupus #chronicillness #invisibleillness #humanexperience #humanvariability #latasharjonesblog #livingwithlupus #lupus #lupusisreal #narrative #creativenonfiction #nonfiction  #pointofview #SLE #spoonie #systemiclupuserythematosus #thisislupus #growapairofovaries