#life with non epileptic siezures
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honeycombhank · 1 year ago
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3/10/24
3.10 miles in the the cold wind and rain out in the country today.
I thought I was going to have a siezure while playing games with my family and had to sneak away, a walk was actually just what I needed, it doesn’t always keep my episodes from coming on but today it did.
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honeycombhank · 1 year ago
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3/5/24
Just thinking of things I want to do more of or changes I would like to make..
I want to start going to the gym with my lil brother, I feel like we could make that work out if I had some headphones and his support if I had an episode.
I want to plan a big backpacking adventure
I want to go out every other weekend for a hike date, I don’t know if this will happen but it would be wonderful.
Reading before bed again
Hang up all my artwork
Be better about decorating and then taking things down and packing it away in a timely manner rather then letting it all haunt me over months and then it becomes so overwhelming I can hardly function around it.
Keeping the air purifiers clean
Make art and make sure to set aside more time for it
Go out to my grandpas for walk/ jogging time with and without nel.
Have more movie date nights and think of more creative date ideas.
Start playing music with my family again
Go to open mic again
Go dancing again
Do my best to let go of what I can’t control and focus more on myself and the things I do have control over.
Have a weekly day that I call a friend who I miss
Try to practice saying no to alcohol even more often, just because sometimes.
Keep a dream journal
Change out candles to spring scents
Organize clothes and fill dressers
I’ve been keeping my clothes in a huge box? Idk why? I get so easily overwhelmed and tired after doing chores and there is always so much to do
Set up rat free roaming room, I’m so excited about it I can’t even explain my excitement.
This year one of my main goals is to just be able to go around the block by myself.. my siezures keep me from doing that at this time and I want to change that and get to a place where I can go by myself around the block and be okay.
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honeycombhank · 1 year ago
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why is the spring candle the last thing you’ll be able to pick out for yourself for a long time? :(
Because of my siezures, I cannot work, it’s been such a struggle because of course disability is a mess to try and get and I have no idea how long it will take, I have spent all of my savings and suffer greatly from this, I am VERY lucky I am not homeless at this point.
I have a partner who is willing to pay the bills for the roof over my head and I have food stamps for for food.
I borrow money from my folks to get dog and rat food but I feel so much guilt right now because I have never been a pet owner with no money before and they deserve all of the things they were able to have before this. Sorry I went off topic for a minute there.
I count my blessings everyday I will say that.
The answer in short is that I have become disabled as an adult and do not have any income for the foreseeable future and not without trying my hardest.
Thank you.
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