#isaacazariah

[ohsweetjoy]

A cold season of winter with ups and downs and I’ve been often saying “it’s always winter and never Christmas.” But I have to remember that Aslan is here and coming. It’s always Advent despite the hard days. Sweet smiles, hugs, and kisses from Waverly & Isaac. Glimpses of our little adventures. (go to fb link in bio to see rest of photos) #winter2023 #aslan #advent #lent #narnia #isaacazariah #waverlyalana https://www.instagram.com/p/Cp9fGzyOTKX/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

Sent Isaac to school today. He has been wild at home for days after getting over the sickness. Pray he can stay at school and has a good day! #isaacazariah https://www.instagram.com/p/Cl1TZjdL7Cv/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

Feeling like a mom has been pretty elusive. For almost Isaacs first year I did not feel like his mom. I felt more like a caregiver. There were moments for sure and it’s a matter of perspective.. When Isaac was NICU, I didn’t feel like his mom, just someone who was there watching him and occasionally doing his cares. This feeling carried on home. It’s definitely been a struggle but I’m so blessed to call Isaac my son. He’s my sidekick and we go on adventures everyday. I am thankful for God making me his mom. #mothersday #eucharisteo #t21 #isaacazariah #nicugrad #upsyndrome #mom #feedingtube https://www.instagram.com/p/BxYrz1RJQTb/?igshid=l94bvavie1ch

[ohsweetjoy]

Isaac had a good week at therapies but is a bit unusual- we think his molars are coming in and his jaw and ears hurt. He still has a few smiles and laughs. Pray he rests and his pain subsides. #t21 #teething #upsyndrome #physicaltherapy #occupationaltherapy #abatherapy #hipster #hipsterbaby #isaacazariah https://www.instagram.com/p/BuNNzasBip6/?utm_source=ig_tumblr_share&igshid=1uyfg3sno264s

[ohsweetjoy]

Isaac’s first day of Kindergarten! #isaacazariah #upsyndrome #explorepage #t21 #kindergarten #firstdayofschool https://www.instagram.com/p/Ch7AfNULXZ7/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

Asking now for prayers for Isaac. I mean he always needs them and so do we but today he doesn’t seem to feel well. Maybe he’s picked up a stomach bug from school or maybe an ear ache. Or maybe he was just constipated. He has been not sleeping well off and on which has been attributed to his reflect integration therapy which is changing how his brain communicates to his body. We have seen good intentional communication which also results in some toddler like tantrums. He is not eating as well orally and today refused snack and school and fought lunch at home. We can tube in his food which usually he is fine but afterwards he ended up throwing it up. Might of just been a chain reaction as he’s pushing 💩 out, he threw up and then did it again. We stopped more from happening as we can “burp” him through his gtube or even take food out of his stomach too. We got him some bone broth and a blends tube food and gave some slowly. Gave some homeopathic remedies which hopefully helps any pain and signals his body to fight off whatever it is. He is now asleep in the car as scott drives around at 10:45… Please pray for Isaac. #isaacazariah #gtube #feedingtube #tylenolistoxic #homeopathic #upsyndrome #explorepage https://www.instagram.com/p/ChY9BRwuvSw/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

Beach trip, camping with one of my bible study groups. We went to lincoln city. Spent time at the beach and time at the lake. Waverly went on her first canoe ride. Isaac did really well despite some struggles with routine change and our car always visible- he loves car rides so it was hard. He LOVED the sand and the water near the beach that came from a small river. He sat in it and stuck himself in the sand. #isaacazariah #waverlyalana #explorepage #explorepage✨ #relatablemom #beachtrip #upsyndrome #siblings #1000hoursoutside https://www.instagram.com/p/Cga1cFwLuBa/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

Summer school starting for Isaac for 4 weeks. Back riding a bus after 7 months of commuting him to east Vancouver. Now summer school at Lakeshore with a new team. Pray he has a good time and that his teachers and paras get to know him well. #isaacazariah #explorepage #momlife #explorepage✨ #summertime #instadaily https://www.instagram.com/p/CgKJNtVLg1Z/?igshid=NGJjMDIxMWI=

[ohsweetjoy]

My sweet and mischievous boy who gave me lots of hugs today. He understands more than you realize. #worlddownsyndromeday #isaacazariah https://www.instagram.com/p/CbZQEHbO-6_/?utm_medium=tumblr

[ohsweetjoy]

#worlddownsyndromeday #t21 #321 #isaacazariah https://www.instagram.com/p/CbY1v6MrMC_/?utm_medium=tumblr

[ohsweetjoy]

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A post shared by Charvel Nelson (@charlie_can)

Isaac eating his snack, learning to self feed. With his ties revised we will begin doing more oral therapy like trying to drink some fluid (smoothie) with a straw. He has been getting better at self feeding and works on it everyday at most meals and snacks. #dsawarenessmonth #isaacazariah https://www.instagram.com/p/CUrR-Emjovp/?utm_medium=tumblr

[ohsweetjoy]

Flower adventures over the weekend. Also Isaacs haircut (which he really didn’t like getting so it’s short...summer ready ☀️😉) #lilacs #tulips #wisteria #isaacazariah #waverlyalana (at Hulda Klager Lilac Gardens) https://www.instagram.com/p/COzkQKipNAO/?igshid=vpptzmy10mvl

[ohsweetjoy]

these two littles make my heart full #isaacazariah #waverlyalana https://www.instagram.com/p/COrd0jFJTu7/?igshid=1kho82t15wbjz

[ohsweetjoy]

snow ❄️ day. a whole 20 minutes outside lol. babies get cold fast and Isaac was hungry. #snowapocalypse2021 #pnw #t21 #isaacazariah #waverlyalana https://www.instagram.com/p/CLQG5ekpYAy/?igshid=1d34a8eu4wpp3

[ohsweetjoy]

happy new year #topnine my picks versus the apps for likes. looking forward to many more moments where pictures only show a fraction of the wonderfilled moments. eucharisteo moments. happy ones and hard ones. this year was rough but also very good. Isaac walking unassisted and making communication connections. Waverly being born at home (home birth vbac). many walks in the parks with friends and play dates with new friends. scott continued working from home and being a wonderful dad and husband. we are blessed by all the love and support we were given throughout this year. #2021 #upsyndrome #vbac #homebirth #isaacazariah #waverlyalana #bethegift https://www.instagram.com/p/CJfb8NWJUVj/?igshid=jqrhoc8l76l0

[ohsweetjoy]

#worldprematurityday reminding me how far you’ve come #isaacazariah #t21 #upsyndrome #nicubaby #nicugraduate https://www.instagram.com/p/CHv4FoIpr80/?igshid=ihetiasderuk