#iamazebra

[sniiboo]

Ehlors-Danlos: Keeping life interesting since 1987. . . . . . #disabilityawareness #edsawareness #edsawarenessmonth #ehlorsdanlossyndrome #heds #sprainedankle #sprainedfoot #sprainednotbroken #disability #iamazebra #zebra #lookwhaticando #oopsididitagain (at Ottawa, Ontario) https://www.instagram.com/p/CAuFulvFo2e/?igshid=hs8p2f43uq21

[floofyfaceart]

This is a new piece Ive been working on for my Floofy Faced Friends series. This is my invisible illness zebra. It’s so hard some times to get out of bed and do anything and sometimes it is hard to stay positive. My husband is amazing when this kind of thing happens and always reminds me that i am a magical zebra and not a basic horse. Sounds weird but it helps. I am thinking of making a series of self love/spoonie pins like this. We will see 🤪💕 I have been slacking a little because of the open preorders and Kickstarter but wanted to showcase one of the things I’ve been working on. #zebra #mentalillness #chronicillness #ehlersdanlossyndrome #invisibleillness #iamazebra #spoonie #buildaladder #selflove #selfcare #selfcareisntselfish #loveyourself #daybyday #babysteps #kawaii #sparkle #cute #floofyfacedfriends https://www.instagram.com/p/B0Q783mFyUq/?igshid=v2illp6h5s56

[shaheidah-blog]

Zebra demoks sama mcm tuan yg lukis 😄Happy Sunday Gais🙋- . . #GoodMorning #KeepHanging #BeStrongGegurl #RareCancer #IamAZebra #ShidahOneInAMillionJourneyWithAdrenalCancer #Recuperating #PostSurgeryDay17 #DoodleBySHaHEiDaH ⚀191117⚀

[sniiboo]

Its not always easy, but tonight the side walks were bare and it wasnt too cold. I'm in a quite a wee bit of pain now.. but slowly I will beat this disease to submission! @valbo00 @mypeakchallenge @samheughan @raleigh_peakers . . . . . #raleighpeakers #ottawapeakers #mypeakchallenge2020 #ehlorsdanlossyndrome #iamazebra #zebra #fitnessmotivation #slowstart #itsnoteasy #613fit #613fitness #peaksandvalleys #chronicillness #chronicpain (at Ottawa, Ontario) https://www.instagram.com/p/B85BUoOlwuH/?igshid=3e142q62qirq

[sniiboo]

The reality of Ehlor-Danlos Syndrome is staggering, and suffocating. Oh days like today I see the financial, emotional, and physical consequences. I lose money as I do my tri-weekly rehabilitation and physiotherapy, not only to manage my pain, but to keep me from dislocating and damaging my joints, muscle or tendons. As I sit at physio getting custom fitted for a brace, or at the trainer who keeps me fit enough to keep me from a wheelchair or worse. Emotionally it drains me, robs me of experiences that I love and miss, new ones to try. It's emotionally draining on both of us for me I have to navigate personality and lifestyle changes. Gary has to watch me struggle with my changing body and worry I won't do something dumb and hurt myself. Physically I'm full of bruises and getting questioning looks from medical professionals, I am wearing tape or braces that people ask about. I'm chronically exhausted either from being unable to sleep or from side effects of meds. And just the sheer amount of pain it brings. Pain is my daily companion its become so constant that until it is removed by meds, I dont realize it is present until it spikes. I have to think and focus when asked if I am in pain because I genuinly don't know. . . . . . #eds #ehlersdanlossyndrome #differentisbeautiful #disabilityawareness #invisibleillness #chronicillness #chronicpain #zebra #iamazebra #zebrawarrior #jointpain #dislocatedshoulder #chronicdislocations #disabilityawareness (at Ottawa, Ontario) https://www.instagram.com/p/B6PZ_XMl79Q/?igshid=1wasv2rcy5y3q