#i worked on a blood donation app that never went anywhere
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yall. wanna tell me about your abandoned projects? please 🥺👉🏼👈🏼 not necessarily fandom related stuff
#i worked on a blood donation app that never went anywhere#i have multiple games that i started coding & making assets for them that are now just abandoned#vegan website i still have hope i will come back to you#i have a doc named 'the story' where i hallucinated the plot when i was v sick in like 2018. still have hope that i will retuen to it though#ghost game! started i have an outline but havent worked on anything past that
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21st Century Vampire
One-Shot
Description: Marvel AU where Steve is a vampire who works at a blood donation centre.
Warning: Just mentions of blood, nothing gore.
This one-shot is my entry for @caplanbuckybarnes writing challenge! There are some hilarious prompts on the list! Check it out now!
My Main Masterlist
I don’t consent to have any of my work published or featured on any third party app, website or translated. If you are seeing this fanfiction anywhere but Tumblr, it has been reposted without my permission. In that case, please do share the link and let me know.
…
Steve Rogers was probably the world's worst vampire. Even after being alive for more than a century now, he was broke. And where did he manage to find work? At a blood donation centre! Disgusting! He was lucky there were very few vampires in LA, or his reputation would have been shredded to bits. A vampire working at a blood donation centre? Humiliating! Dishonorable!
Steve hated working there. The stench of human blood was nauseating, the human beings more so. But unfortunately, the pay was decent and his colleagues were understanding. Nobody questioned his extremely pale skin, or found it weird that Steve never stepped out when the sun was still in the sky. Everybody quietly accepted that he was allergic to garlic without posing any further inquiries.
Working as a receptionist, he led quite a dull life work-wise. There wasn't really much for him to do except ask people to fill forms and sometimes calm down nervous first-time donors. He was generally patient with the humans, always biting back his wincing words, or trying his best to be as sympathetic as possible. Hey, after spending almost a 100 years on the planet, he could try to be a little more patient and a little less condescending.
But his calm and collected facade came crashing down the day you walked into the centre.
Flaunting a latest (and factually incorrect) vampire-teenager-love novel in your hand, you headed towards him and flashed a nervous smile. "Hi, do you guys take blood?"
Steve commended himself on the amount of self control it took not to roll his eyes. "You can donate blood here miss, if that's what you are talking about."
"Yes yes that's what I meant. I want to give blood. Where do I go?" you glanced towards the door beside the reception area.
"Kindly fill this form first ma'am," Steve pushed a familiar document towards you.
You filled it up pretty fast, leaving the space for your blood group blank. "I don't know what my blood group is. Is that okay?"
Calm down Steve, you can do this. "No ma'am that is not okay. When was the last time you took a blood test?"
You only bit your lower lip in response.
"We will have to get a blood report done first, then you can donate ma'am," Steve explained irritably.
You nodded, "Ummm yeah, sure, absolutely. It's not like I am scared of needles or blood or anything. I read vampire fics for a reason, people!" you told a semi-empty waiting room.
Steve squinted his eyes at you, "Are you scared, miss?"
You paused for a bit, then pointed at your book, "Yeah… But you know if I can handle the blood sucking scene in the book, I can surely handle a machine sucking my blood, right?" you tried laughing but only a dry sound escaped your throat.
Steve couldn't take it anymore. He hated novels that portrayed vampires as just human blood sucking creatures. He rolled his eyes at her, "That book is the worst kind of literature you can read. It is full of false information. Do yourself a favour and throw it in the bin."
A frown creased your forehead as you let his spiteful words sink in, "Who cares? It is still a great novel! And all the places that the author has mentioned exist in real life! So I don't know what you are talking about."
"Really? Just the real places are important to you? What about all the incorrect facts about vampires?" Steve replied hotly.
"What about it? The author has portrayed vampires in a completely different light!" you exclaimed.
Steve laughed an empty laugh, "Oohhh no! Vampires are NOT featured differently in that novel or in any other works throughout the world! They do not crave human blood. Infact, vampires hate human blood and everything to do with humans!"
"Oh yeah? And how do you know so much about vampires?"
On any other day, Steve would have backed down, claimed himself as a vampire enthusiast and accepted his defeat, but not today. Not on the full moon night he knew would turn Bucky into a tamed werewolf. He knew by the time he would reach home, Bucky would have eaten his carpets, bumped his head against himself in the mirror, ripped his stuffed toys and then cried over them. Today he had to deal with an emotional Bucky for the entire night.
Then there was you. So stubborn to accept the truth that you were willing to argue with a complete stranger about your cursed book.
The sheer stench of human blood added to the horrible cocktail of things that flipped off Steve.
Today would be the day Steve would lose his patience.
"BECAUSE I AM A VAMPIRE!" he screamed at the room.
His announcement was followed by pin-drop silence.
Unable to bear it anymore, he started his rant, "Do you think we vampires hunt humans? Of course not! There are so many of you guys in the world that it never was, is not and will never be considered as a sport! And no, our skin doesn't sparkle in the sunlight like freaking diamonds! Our sensitive skin gets burnt in the sunlight!"
His thin chest heaved as he struggled to maintain his breath, "No garlic and silver can kill us! We are all allergic to garlic. And silver gives us rashes on our skin. But do you know what is the worst part of being a vampire? The immortality! I am a 100-years-old vampire who is still somehow broke! And where did I finally manage to find work? At a freaking disgusting blood donation centre!"
You had moved away from his desk, afraid of his sudden outburst.
The door next to the reception area opened as a tall, dark man poked his head out. "Is everything okay out here?" Dr Sam Wilson asked, taking in the scene before him.
Steve was still panting as the others in the waiting room just looked at him in shock. A few had their phones out and seemed to be recording something.
"Dr. Wilson," somebody asked, "Is it true what this man said? Is he really a vampire?"
Sam looked at Steve, lines of exasperation evident on his face, "Ma'am, vampires, witches, wizards, werewolves etc do not exist in the real world."
He turned to Steve, "Steve, what's going on?"
"He just told us all that he was a vampire," you said, "Went on quite a detailed rant about it."
"Steve," Sam managed to say in a bitter tone.
"Why have you hired such wackos doc?" a man asked from the crowd.
"I am not a wacko!" Steve retaliated, "I am a vampire!"
"Then turn into a bat now!" the same guy challenged him.
"Huh! Vampires can't turn into bats. Some vampires liked to have bats as pets earlier," Steve defended his point.
"Steve, pack your things. You are fired," said a grim Sam.
"But I really am…"
"Steve, I have tolerated your outbursts in the past. I am not going to forgive you again. This is an highly unprofessional and unacceptable behaviour. You are fired effective immediately," Sam stood his ground.
Steve scoffed. So much for telling the truth.
He gathered his things and left, mad at himself, mad at the world, mad at Dr Erskine for turning him into a vampire just so that he could join the army.
Lost in his thoughts, he didn't notice as you caught up with him. "Hey," you softly said to get his attention.
Steve jumped. You quietly chuckled at his reaction. "Aren't vampires supposed to be aware of their surroundings?"
He threw you a disgusted look and kept on walking.
"Hey wait!" you called out after him. "Are you really a vampire?"
He looked at you at that moment. The sincerity in your eyes softened his. "Yeah," he muttered.
"Can you keep a secret?" you whispered.
Steve leaned in closer to you. "I am a witch."
He looked upwards, rolled his eyes and started walking again.
"Wait! Don't you believe me?"
"No I don't! And I really enjoyed the joke. So thank you!" he shouted back.
You saw his dark silhouette become a small dot on the horizon as a plan formed in your head. A vampire was maybe just the missing piece of the puzzle. You already had a speedster, a magician who practised the dark arts, a man with superhuman strength, another who could spin spider webs through his hands and lastly, a man who could fly.
You smiled at yourself. An army of some of the strongest men on Earth was just what you needed to start a revolution. An army of men, led by you, the Scarlet Witch.
Permanent tag: @donutloverxo
Taglists open!
#cappysforeverchallenge#Steve!vampire#Steve Rogers#steve rogers x you#steve rogers x y/n#steve rogers angst#Steve Rogers x Vampire au#avengers au#Steve Rogers x vampire
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okay so i have some New Kids.... they are all trash but some of them are trying their best which should honestly count for something imho... i’ll probably bring some more muses in at some point during this week bc i legit have 25 apps in my drafts right now and i just didn’t apply for all at once bc didn’t want to overwhelm myself... honestly tho? i want all the plots.... so like... pls like this and i’ll im you or come to me throwing ideas at my face so we plot and have some connections and threads ?? love my new trash sons pls ?? thanks !
JAMES WEST looks an awful lot like CHARLIE WEBER. HE is THIRTY NINE and while they’re LOGICAL, they have a tendency to get pretty CONTRARY. You’ve probably seen them around Kola listening to POLARIZE by TWENTYONEPILOTS.
inspired by ;; frank delfino from htgawm, walter white from breaking bad and jaime lannister from game of thrones.
a lawyer
has 2 daughters.
would probably start a war for both of them if they asked him to.
thinks his daughters are angels who can do no wrong. if he saw them murdering someone in front of him, he would probably come up with a reason why they were doing it and defend them which isn’t great bc they are both like wild kids who are not actual angels ( wc ?? anyone ?? i’m trash for families ngl )
sketchy morals at best? ? doesn’t think of himself as someone who would do anything wrong but if something wrong is being done for his benefit he is sure as hell not gonna stop it
got into an ivy league school because his father - criminal known for money laundering, corruption, and fraud - donated a huge sum of money to the college. will die pretending he got in on his own merit
the older brother of my character mark west bc i love families sue me
would probably google ‘how to know if i am a dilf’
says thing like ‘lit’ and ‘on fleek’ to relate to the youth
pretends everything is fine until it blows up in his face
wants to much ! a perfect life, a perfect house, a perfect family, a perfect wife, a perfect job ! pretty good ? nah. not good enough for james west. scratch that and start again. everything must be 10/10
wants to be everybody’s dad even tho he isn’t a great dad to his two kids
will make your life choices for you if you let him
will bail you out of jail but only if he is allowed to give you a 3 hour lecture on Responsibility
will logic his way out of moral conundrums
the kind of person that turns a blind eye to corruption if it benefits him in some way
tries his best, which really honestly can only be said about 5% of my characters, so i would give him some credit
if you ask him a question he doesn’t want to answer he will just straight up ignore the question and change the subject
feels guilty about the way his helps criminals and does wrong stuff for his benefit and the benefit of the people he loves but also doesn’t try to change
aesthetics — watching the sunset through the office window, loud alarms playing an hour later than it should, unrecognizable reflection in the mirror, child laughter and the heavy feeling of stress in your chest, hushed whispers of assertions amidst a crowd, old wedding rings saved away after the divorce, big houses and empty space, thousand dollar watches, the smell of jail permanently stuck to a three piece suit, painfully happy memories, ignoring the way guilt makes it hard to breath, arguing in a favor of a guilty party.
FRANK HAMILTON looks an awful lot like DAVID HARBOUR. HE is FORTY ONE and while they’re DEVOTED, they have a tendency to get pretty UNPRINCIPLED. You’ve probably seen them around Kola listening to SEDATED by HOZIER.
inspired by ;; hank from detroit become human and chief hopper from stranger things
tw: gambbling, alcoholism
a mess trying to pass for a functioning human being
he is a dirty cop that accepts bribes to let people off the hook and gets money from gangs to look the other way when he knows they will be doing something wrong somewhere bc he truly cannot bring himself to care
honestly i have no excuses for his behavior
has a huge problem with gambling.
born in kola. lived in kola for almost 30 years. moved out after his marriage fell apart, but has recently moved back
the kind of human being who thinks blood and gasoline are sexy
the kind of person that goes All Fucking Out for things and then when things don’t turn out exactly how he expected them to he makes a fuss about it and goes like “why did i even bother?”
will call you out on your bullshit and then act like people just throw shit at other’s face like that. stare you in the eye after exposing you and ask ‘what?’
says stuff like ‘i might be a shitty person but at least i’m upfront about it’ and ‘i prefer not to get involved in people’s lives.’
there is no such thing as a acquaintances. frank either loves you with all his heart and would kill a man for you OR he hates you and the fact that you are able to talk annoys him
you’ve heard of overachivers ?? well frank is here to present you A True Underachiever. he tries to do the bare minimum amount of work possible
the personification of /r/notmyjob
would probably go to an underground fighting ring for fun
channels his unhappiness into unhealthy habits. drinks too much, smokes too much. doesn’t do anything to change the fact that he is unhappy
gambled his marriage away by which i mean he gambled everything owned away and kept trying to find excuses for it until she was done and left . he still loves her but he feels like shit and he doesn’t wanna drag her back into his shitty life ( wc ? pls ? )
moved away from kola when his marriage ended and went to las vegas. lived there until he got in dept there too and he couldn’t find anywhere else to play then came back to kola
at some point was wide-eyed and hopeful and interested in helping people but slowly became unhappy with how he didn’t go anywhere, didn’t become better, greater, didn’t do more and then slowly things just went to shit
aesthetics — casual cruelty in the name of honesty, cigarette buds collecting on an old ashtray, crumbled dollar bills found between couch cushions, falling asleep at three o’clock and waking up the next day, bloody knuckles, handcuffs and police siren, the smell of alcohol in your breath at ten in the morning, unironed shirts and old cologne, knowing something is wrong but doing it anyway, ignored calls from concerned family members, remembering you have to do something just as it is too late to do it, the thrill in heartbeat when you land a punch in someone’s face, drunk steps stumbling out of the bar, begging people for one more chance.
SEBASTIAN “BASH” VANCOOP looks an awful lot like LIAM PAYNE. HE is TWENTY TWO and while they’re CHARMING, they have a tendency to get pretty SELFISH. You’ve probably seen them around Kola listening to PLAY ME LIKE A VIOLIN by JEREMY.
inspired by ;; hakeem lyon from empire and aaron burr from hamilton
that one sort of famous person that is always shirtless in other famous’ people instagram stories
treats people like things he can use and drop when he gets tired of
fake af. will say he likes you and then shit talk about you behind your back
that one person that goes ‘ooooooooooh you are gonna let them talk like that about you ?? ’ when other people are fighting
only wears prada chanel and gucci
can actually be really nice if you get to know him but how ? when there are three hundred walls up ??
thinks people are gonna take advantage of him or make fun of him so he just doesn’t trust anyone. can’t get betrayed if you never let anyone in right ??
doesn’t understand internet culture
was born in an insanely rich family. his father was a famous movie producer and his mother was a famous movie star. picture like spielberg as his dad and kate winslet as his mom
hates when people say like ‘Oh So You Are [ ]’s son?’
the first movie he was ever in was when he was about 5
he was in a bunch of movies from ages 5 to 12 but it was never really anything big. he was just the main character’s kid or that one kid that doesn’t get much screen time in movies like goonies
he never really liked acting but what else woUld he do ?? look at his family !! look at his legacy !! [ cue ‘wait for it’ from the hamilton soundtrack playing in the background ]
when he was 20 his father produced and directed a movie in which he stared. it was like his first Real role in hollywood action blockbuster. before the movie was out there was this whole hype about him and his dad working together and wow it’ll be awesome but it pretty much bombed. picture like After Earth bomb. everyone shit talking about him and the movie and how dumb it is on youtube bomb. the movie doesn’t get money to pay for itself bomb.
despite the fact that his parents said it didn’t matter. it was just a bad movie. everyone making fun of him and people shit talking about how he didn’t have his parents’ talent got to him real bad. he stopped acting all together.
his parents keep telling him to Do Something but he just doesn’t
is living in kola bc LA is a dumb of reminder of everything he thinks he did wrong
aesthetics — the blinding lights of camera flashes, the light feeling of being drunk, loud songs blaring through club speakers, interviews stopped halfway through, rude comments and anger, crowded parties in expensive summer homes, the overwhelming feeling in your chest when someone gets too close to fast, feigned charm and stranger’s company, running out of things to say after you have known someone for a while, wasted champagne dripping off a tilted bottle and loud laughter coming from the other room, the slow but continues pain in your heart that reminds you you are disappointment.
MATTHEW “MATTEO” DECKER looks an awful lot like JON BERNTHAL. HE is FORTY TWO and while they’re WILLFUL, they have a tendency to get pretty BLUNT. You’ve probably seen them around Kola listening to SEVEN NATION ARMY by THE WHITE STRIPES.
inspired by ;; frank castle from daredevil, frank castle from the punshiner, frank castle from the born comics series. ( they are three different people, fight me ) seeley booth from bones in season five
tw: alcoholism, ptsd, mention of army, and war
former us marine
mostly goes by decker. his family used to calls him matteo but when other people do it it’s like .. “no”
you have been heard of resting bitch face ? matteo is here to show you the resting i fucking hate you face
swears too much like Wayy too much
he can be honestly really fucking soft i’m ngl but then you gotta be that one person that breaks down walls and again ? who has the time for that ? in the twenty first century?
wants to take care of everyone but pretends he is not interested in people bc he “Knows” everyone is gonna die or leave so there is no fucking point
actually just pretends he isn’t The Absolute Softest for everyone and tries to keep them all at arm's length but then people say ‘hi’ and are nice to him and he is like ‘Fuck me now i like them’
can actually laugh and make jokes which is Impressive imo
but then goes back to being bitter and angry at life
too straight up about things : could heavenly benefit from learning how to read social cues
you have to Tell him things if you want him to understand it. you can’t go around dropping hints. he won’t get it.
drinks his coffee black and without sugar
enlisted when he was eighteen bc patriotism and american dream and red white and blue stars but then that slowly stopped being the point. then he was just doing it bc He had been doing that for years what else would he do ? and then at some point he just saw too much … and then when he was discharged he just Never came back
after he came back he couldn’t find a job and he didn’t know what else to do and he slowly started getting involved with shady stuff and now he sells drugs to pay the bills
disappointed in who he is right now.
he is honestly Trying his very best.
aesthetics — punching a wall until your hands stings and your chest doesn’t anymore, the pleasant light feeling of holding back laughter, completed tasks and unachievable peace of mind, low chatter in dive bars in dark parts of town, questioning your belief system, roadside motels and failing neon lights, moonlight coming through the bedroom window, leaving the morning after, combat boots, loud honking cars and shaky hands, fighting the urge to shove someone away when you feel their touch against your skin, quiet places and pleasant loneliness, old dusty books and rock music, waking up multiple times in the middle of the night, whiskey mixed with coffee
OCTAVIANUS BRUNO GENTILLE looks an awful lot like FRANCOIS ARNAUD. HE is THIRTY SIX and while they’re ROMANTIC, they have a tendency to get pretty UNREALISTIC. You’ve probably seen them around Kola listening to SOMEONE NEW by HOZIER.
inspired by ;; jay gatsby from the great gatsby, romeo from romeo and juliet, tom hansen from (500) days of summer, a slam poem i saw on youtube once
tw: bullying, mention of learning disabilities and stutter
romanticized every bad thing that happened in his life.
will romanticize every bad thing that ever happened in your life.
the kind of person that says “things happen for a reason…”
goes by his middle name. honestly thinks his first name is the Most Stupid Thing In The World if you call him octavianus he’ll be legit annoyed. kids used to make fun of him at school all that jazz. just call bruno
he is legit in love with italian culture and history. his father was italian and he just highkey Cannot Shut Up About It
art history professor in kola’s college
the kind of professor that just loves what he is doing… you know when the professor like kinda looks excited that he is talking or sharing knowledge or just talking about shit they truly like ? that is bruno
a nerd but pretends he isn’t
could not do a one night stand without catching feelings if his life depended on it
loves people too much too fast with all his heart
there is an argument to be made for him not actually falling in love with people and just with the idea of love that he made up in his mind but let’s get to that when we get to that
will spend the entire lesson arguing with one student about how inaction in our current political climate is just as harmful as supporting people who are doing harm when he was supposed to be talking about impressionism or something like that
thinks people have a soulmate and he is just trying to find his
100% not only Shows up to slam poetry sessions but Helps organize them
real political. the type of person that rallies when things are wrong and gets others to do it
has too many exes
posts pictures with his current girl/boyfriends on instagram and then doesn’t delete them when they break up bc ‘that’s who i was at that moment’
can recite poetry for you in italian but do not let him trick you. he’ll only be around for the honeymoon phase of the relationship then he’ll be like wow this isn’t perfect. time to end it
loves art !! all type of art !! is terrible at all of it : writing, panting, photography. but he loves it and he does it despite being bad and he tells people to do what they love !! and follow their dreams !!
his parents got a divorce when he was 7 and it was pretty bad. his dad was italian and moved back to italy shortly after. his mother was from kola and he stayed with her.
it was as if his world had fallen apart at that. bruno had never even seen his parents fight and then one day his father just moves out to Another Country he was pretty lost and confused
bruno moved back and forth between italy and the u.s. throughout most of his childhood and adolescence. never spending a lot of time in one place.
though his parents tried to remain friends after the divorce for his sake it never really worked out. his father wanted his mom back while his mother moved on and got married again.
growing up, he had a lot of trouble with accents and language. his father used to speak only italian at home. and his mother used to speak only english.
he developed a learning disability and a stutter after his parents got divorced
kids in school used to make fun of him. the way he talked and his name specially.
doesn’t stutter anymore but when he is talking about something that is hard to talk about, he talks really slowly to make sure the words come out properly
aesthetics — ukulele songs playing softly in a room with echo, piano recitals with ten people in the audience, walking around aimlessly, kissing greek statues, being happy that you are sad because it means that you are alive, cheering on others success, lacking ambition and living the present, old songs hummed in the shower, waking up early and staying in bed until 10am, cuddling under warm blankets, failing in love with a stranger, laughing loudly with new friends, white wine, beautiful paintings in an empty museum, admiring something for way too long,
ANTHONY MILLER looks an awful lot like JOSH DALLAS. HE is THIRTY NINE and while they’re PATIENT, they have a tendency to get pretty SELF-RIGHTEOUS. You’ve probably seen them around Kola listening to JACKIE AND WILSON by HOZIER.
inspired by ;; prince charming from once upon a time, ned stark from game of thrones, bob belcher from bob’s burgers
tw: cancer
cannot talk about his feelings . cannot accept his own mistakes . cannot show weakness . at any point. no matter the subject . cannot let anyone take care of him.
Must be the best at all times for everyone and take care of everyone
self-care is a myth anthony does not believe in
works too much
he needs glasses to read stuff but he pretends he doesn’t so he does that squinting and pulling things close to his face thing. at which point you would probably ask ‘anthony if you don’t want to wear glasses wouldn’t it be easier ? to just ? wear contact lenses ?’ and yes it would it definitely would but anthony likes to make things harder for himself
slow to anger but he has that temper that you literally cannot see coming. he looks serious and stoic and then wow thunderfucking storms breaking chairs and stuff
loves beers and american football
the type of person that says this generation is lost
might smoke too much but he doesn’t talk about that
he doesn’t talk about anything actually
although i love him with all my heart. i would not rec
there is a right way to do stuff and anthony as the holder of all the knowledge and morality Must tell you about it
rarely ever smiles bUT when he does ? smiles like a prince. if we had a royal verse he’d be the king of the entire universe honestly.
he was a oldest child in a family of 7. his parents were super wealthy and he was the One favorite child who both parents used to love and cherish and cheer on.
he got his high school sweetheart pregnant. his parents didn’t want him to marry her bc she was Poor and Not up to standards but he chose love over his family and got disowned for that. hasn’t talked to his family since
his dream life was always to have the perfect picket fence house and american dream type of family. it was supposed to be him, his wife, his son and maybe some day he would have a daughter and it would Be great
he and his wife had a son and they named him hendrix bc she loved rock and jimi hendrix and he loved the name even tho he never liked rock. but honestly ? he was so weak for her he would have loved the name lkgjdflajf if she suggested it
a few months after their first son was born tho she was diagnosed with cancer and a few months later she passed away
after that he raised his son by himself. he really threw himself into it. spent most of his life focused on it and work and now his son is going to college and he doesn’t know what to do with himself
the only person he ever Truly dated was his wife and then he just focused on his son and raising him so he never really allowed himself to date bc then he would have to introduce someone else to his son’s life and all that … sO anthony is usually all cool and fine and then you show romantic interest in him and there is like a visible shift ya know? like he goes from anthony to a truly profoundly awkward person trying to pretend it’s cool
aesthetics — organized work tables, color coded to-do lists, trying your very best at all times, mental exhaustion showing through physical symptoms, dad jokes and laughing by yourself, the smell of new books, comfort found in old libraries, forgetting your reading glasses at home, losing your temper and breaking something, old family photos lost somewhere in the attic, pushing someone else on a swing, sundays afternoons lost at the park, working extra hours instead of going home, cold breeze and hugging yourself to your jacket, trying to explain to someone why they are wrong when they don’t want to listen
#fckit:intro#okay i know some of those got really big but i have already played all of them somewhere else at some point so like#i had already developed them a bit
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Jessica Romero - phaware® interview 349
Baby Jessica Romero was born October 26, 1983 in Denver, Colorado. Jessica was born 3 months premature, weighing one pound, 7 ounces. The Rocky Mountain News crowned her the “Miracle Baby of Colorado."
Now, 37 years later Jessica discusses, her diagnosis, her outlook on a lung transplant and her commitment to pulmonary rehab.
Jessica Romero: My name is Jessica Romero. I'm from Modesto, California, and I have pulmonary hypertension. I was a preemie. I weighed one pound/seven ounces. I lived in the hospital for the first two years of my life. My parents had a life and death situation where we had to move from Denver to California in the Bay, because the air was too thin for me to live in Denver. So we moved to California. With that, I was diagnosed with PH in 2010, so 10 years ago. My parents, they did it for me, of course, just to move mountains. So, we moved to California to make ourselves better, and for my health, too. That was pretty much number one. It was heartbreaking to leave my family, but they did it for their daughter. They came with nothing, pretty much the stuff on their backs and just managed to live their life having a sick daughter. We just did what we could. First couple of years I know, I went to UCSF. This is not my first time around. Since I'm on the lung transplant list, I'm pretty familiar with UCSF, because I've been with them mostly half my life. I was three years old, I think, four years old when we moved. I could tell a difference, Denver's air to going to California. It was pretty much a good change. I could breathe better, considering I was on oxygen. I think we were there as a family since '86 to '95. In 1995, my parents and I moved to the Valley for a better change. Better neighborhoods. They ended up buying a house. They're all in a two story house, just a better change. I have this really funny nickname and the reason why they call me “Bones,” is because I was always underweight, since I was little. I have always been skinny, always a size two, weighing in the 80s to the 90s. So finally, I believe in 2007, 2008, I finally reached 100 pounds, and my family and I did the whole party thing, because I always been underweight for so long. So, finally when that did come, when I weighed 100 pounds, we were so happy. I grew a little bit. I ate more, eating meat and more vegetables and some meat and potatoes. Sandwiches, I love sandwiches. A year into when I was diagnosed with PH in 2010, about a year or two, after that, my primary doctor, which is a pulmonologist concerted that my PH was progressing pretty bad, and that I should consider to look into a lung transplant. I kind of was in denial, thinking okay, I can wait out my lungs just a little bit longer. We looked into it about, I would say 2011 to 2012. There was a lot of going back. I wasn't sure. Maybe I could keep these lungs as much as possible. I finally got on the list of 2016 of May. A lot of things go in the process, the blood work, what type of blood you have, the testing, seeing the doctors, just a whole lot of factors that go into it. When UCSF decided as a team, my whole team of doctors and surgeons and stuff, looked at my case and say, "Yeah, in the long run you will need a double lung transplant." So, when they decided, that year 2016, I was put on the transplant list. I was a little skeptical, kind of thrown back, like I don't know. In the long run, talking to people such as pre and post, now that I know, I think I'm a little bit more determined, because I am exercising and seeing them working as hard as they do, going what they're going through, makes me want to work a little bit harder. As soon as I got on the lung transplant list, I started exercising that year to build up my muscle. I've been wearing oxygen most of my life. There was a big gap for 10 years where I wasn't, because I was able to go to school, junior high and high school and some college. I wore oxygen till birth up until I would say 15-1/2. Then between 16 and I think my mid 20s is where I had that gap where I got to go to school and enjoy life and have friends and mostly enjoy life without oxygen. Then between, I would say the middle of my mid 20s is when I got diagnosed, at the age of what, 26 years old, is when I got put back on oxygen in 2010. COVID has kept me away from all the germs and the COVID stuff up there. I've mostly been indoors. I haven't gone anywhere since March, beginning of this year. So, I've mostly been indoors, painting and drawing and keeping myself busy, and exercising three times a week. That really keeps me going. So, I've been really indoors, keeping myself away from everything that's going on. If I do go out, which is only doctors' appointments, I wear gloves, I sanitize, I wear a mask. So that's what I've been doing. Back in 2000, I believe '13, when UCSF suggested to go to pulmonary rehab, I went there in between I think 2013 and 2014. I met this lady. Her name is Kelly Frederick. She's a home personal trainer. We met that year where I went to pulmonary rehab for two years. So, when I landed in the hospital three times in one year in 2016, I called her because I felt like I needed to do more to get myself better for the transplant. So, I called Kelly in January of 2016. She was just giving me tips of exercising, things you can do at home, the sit to stand, the bands work. But I was like, "I need your help. Can you come over and just teach me a couple things?" So, we took it from there and she was coming to my house at least once a week for only one hour. So, move forward to four years later, she's still with me. But of course, with the COVID, I haven't really seen her since March, but she gives me tips on a daily routine: what to do, what exercises and what workouts. I work out three times a week. She's been my trainer for the last four years. As a PH person, my goal is to spread awareness. If you could just do one little physical thing every day, it means a lot. In the beginning, the first year I can barely do 30 seconds and I was sitting down within 10 minutes. Now, four years later, I'm doing planks and pushups and more than I can ever do. But with ones that can't do it, you can never say I can't. There's always a will. You can. You just got to put your mind to it, physically and mentally. My name is Jessica Romero and I'm aware that I'm rare.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
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Bagginshield #14 - in a fairytale
Rating: M
Summary: for the 30 Day OTP Challenge. Detective Inspector Durin has been trying to put Smaug behind bars for years, but something almost...supernatural keeps getting in the way. Bilbo Baggins has been running since he was a kid, but no matter where he goes he can't escape his curse. Maybe they can help each other. Alternate Universe - Modern Setting/Magical Realism
Part II
Also on ao3
second note: ummm I think this was difficult for people to read cuz it's like 18k words and the app dies when you try to bring it up (/ω\) so im reposting this in two parts sorry for the technical problems~ this is part II!
It was tempting to simply besiege the warehouse right that very moment – to run out and recklessly challenge Smaug with their oh so intimidating team made up of one magical hipster, a sort-of-but-you-had-better-not-ask wizard, and a disgraced detective inspector. But food and rest could not wait, and took priority over even the destruction of a great evil.
Bilbo was more than happy to just sit back and eat, and Thorin couldn't help but goggle as he gorged himself on an entire loaf of bread, three thick chunks of cheese, and a whole sleeve of chocolate digestives.
"Don't stare," Bilbo said, swallowing his mouthful and giving Thorin a bashful look. "Doing magic makes me hungry!"
"Do you do a lot of magic then?" Thorin couldn't help but tease.
Bilbo's jaw dropped. "Are you calling me fat?!"
Thorin bit back a smile. "Plump," he said. "That's what I thought when I first saw you...that you were pleasantly plump."
"Yeah, sure," Bilbo said skeptically. He finished off his cup of tea and leaned back in his chair a bit despondently.
And now Thorin felt bad.
"It's true!" he said, before pausing to find the right words. "I...well, to be honest, I thought you were lovely. And I...was very disappointed that you were a suspect in a murder."
He made a face at his own awkwardness but Bilbo was extremely amused. "And now that I'm not a suspect?"
Thorin raised his eyebrows. "And now that I know that you're just a magic man with a guitar, you mean?"
Bilbo smiled. "Yeah," he said, motioning for Thorin to answer.
"I...." He blew out a breath, realizing that Bilbo was just teasing. "You're a menace."
Bilbo cracked up. "A pleasantly plump one, though!" he cackled. "Hey, I'm flattered. Sincerely flattered. Still, I don't think it's a good idea to start dating each other while people are trying to kill us."
Thorin nodded sardonically.
"But once this is over I think we should probably have lots of sex."
Thorin's eyes widened, which only set Bilbo off again. Thankfully Gandalf decided that they were all in need of quiet time and herded Bilbo into Radagast's room to sleep. The wizard came back a little later and joined Thorin at the table, pouring himself a cup of tea with a sigh.
"You should sleep too, you know," Gandalf told him, watching him intently over the rim of his teacup.
Thorin considered him for a moment. "You knew my father well," he said, after a short silence. "You know about our...ancestry. About this whole world I'm supposed to be apart of."
Gandalf hummed in agreement.
"Why did my father never tell me?"
The wizard shook his head. "That I cannot answer, Thorin. I don't know why he kept it a secret from you. Perhaps he sought to keep you away from the danger that comes with knowing. Perhaps he thought you wouldn't want to know. I can only guess."
Thorin stared at his hands. "Then can you tell me this," he said, looking up and into Gandalf's eyes. "Who really killed my father?"
"Ah." Gandalf rubbed a hand down his face tiredly. "I suspect you met him tonight."
"After you get me what I want, I will kill you slowly."
Thorin raised his gun.
"Like I did your father."
"His name is Azog. He is the leader of a Warg pack, one of the many that work for Smaug on occasion. Now be aware, I am not entirely sure what happened, but Azog's kin fought your grandfather at one point, and many of them were wiped out. Azog swore an oath that he would destroy the line of Durin, and avenge his fallen pack. That is why he hunts you now, and it is likely what killed your father, in the end."
"Azog," Thorin said, repeating his name like a curse.
"Don't let vengeance cloud your judgement," Gandalf warned him. "You will meet your father's killer in battle soon enough."
He took the advice to heart and nodded. Gandalf pulled out a pipe from his robes (the man looked absolutely ridiculous in them, and Thorin wondered what normal people would have to say about it if they could see him) and packed it with tobacco. He puffed until the leaves smoldered, looking tired but peaceful.
A bit like Bilbo, in that he was excellent at pretending to be unfazed. Which reminded him....
"Can I ask you something?" he said, breaking the silence.
Gandalf eyed him amusedly, chewing on the end of his pipe. "You want to know about Bilbo," he surmised.
Thorin dipped his head somewhat sheepishly.
"You would not be the first, nor will you be the last, to be fascinated by Bilbo Baggins." Thorin started, having not known Bilbo's last name. "He is truly a one of a kind creature that never fails to surprise me."
Thorin's mouth quirked. "I don't know him that well," he admitted. "But somehow I understand what you mean."
"Yes, I dare say you do." The old wizard winked at him.
Trying not to blush, Thorin shook his head and turned serious again. "What I want to know is what his connection to Smaug is...why does he want Bilbo?"
Gandalf, whose face had grown more and more resigned as Thorin spoke, let out heavy sigh. "It's rather a long story."
"Well, I'm not going anywhere," he said, accidentally sounding a lot like his bobby alter-ego. "I want to know."
"Alright. I suppose...I suppose it starts with his power."
Thorin leaned forward.
"Bilbo's power is quite singular," said Gandalf. "Words have weight, and with the right words, well – you've seen what he can do; call up storms, ward off enemies, cause terrible destruction – I have also seen his influence on the mind. He can...persuade people to do things. Sometimes without him even realizing it. The point is, Bilbo has an extremely useful gift. Useful...but dangerous if uncontrolled, and Bilbo struggles with restraint."
"What about that other minstrel in England?" Thorin asked. "Bilbo said there was two. How do they control their powers?"
The old wizard sighed again. His favorite thing to do tonight, it seemed. "There is no second minstrel," he revealed. "There's not another minstrel in all the world. I made it up, to convince our kind that Bilbo is not as special as he truly is. I thought the existence of another would lure Smaug into seeking this fictitious person out, but alas, I underestimated Smaug's obsession with the boy."
"What is that obsession? Why does he want Bilbo so much?"
"Partially for his power." Gandalf shrugged. "But also because of his mother."
He frowned. "His mother?"
"Yes," Gandalf paused and relit his pipe, his expression reluctant. "What happened was this: one day, Bilbo's father got very sick, and Belladonna, Bilbo's mother, could not cure him. They had only been married six months...and here was Bungo at death's door. She was heartbroken. Bella worked night and day to find a cure for him, but nothing helped. It wasn't until another apothecary told her of the healing power of dragon scales, that Bella considered approaching Smaug. Unwilling to lose Bungo, she took the risk and begged the dragon for his help. Most likely finding her amusing, Smaug gave her one of his scales and simply told her that all he asked for in repayment was the fulfillment of a request at a later date."
Thorin winced.
"Yes. Terrible mistake. Bella returned home, and of course the scale worked, and Bungo was back on his feet in no time at all. Three months later, Bella realized she was pregnant with Bilbo, and he was born a healthy baby in late September. As the years passed little Bilbo was a delight to his parents and his extended relations; a bright star in an otherwise murky sky, one might say. And then one day, when Bilbo was six years old, Smaug finally called upon Bella for his favor.
"I think that he probably meant to ask her to do something cruel and humiliating for him. Yes, he no doubt had some form of torment in mind. But then, of course, he met Bilbo, and immediately knew that the boy had immense power. So he asked Belladonna for repayment...in the form of her firstborn son.
"As you can imagine, this didn't go over well. So Smaug made her a deal (he likes his games, if you recall). He would give them three chances to find a better form of repayment than the little boy. Once a year, he would visit and ask what they had for him instead. Three chances. Three years.
"The first year they presented him with their wealth. They'd worked endless hours, and saved and scrounged for months, feeding only Bilbo, until they'd collected a good sized fortune. This they offered to Smaug, but the dragon only laughed, and kissed and hugged Bilbo, who did not know any better and showed Smaug open affection (and I must say, I have always wondered if that had ever affected him; there were many times the dragon could have simply killed the boy, and yet...) in any case, he did not accept their offering, and went away until the next year.
"When he returned the second time, Bella and Bungo offered him something far more precious: their blood. Magical blood is extremely potent, and with it other magicals can, for a time, harness the other's gift. It cannot be donated by the very powerful, I'm afraid (and Belladonna was indeed, quite strong) so it was Bungo who stepped forward in exchange for his son's freedom. Smaug claimed that he would first try a taste of the man's blood to see whether or not it suited him. But a taste was not what he had in mind. He killed Bungo; tore him limb from limb as his wife watched, and after it was over, he announced that the blood was not good enough, and warned Belladonna that she had but one more year before she lost her son forever."
"He killed Bilbo's father."
"Yes. Now it was in the third year that everything changed. I never learned what Bella had planned to offer Smaug, for in the end it didn't matter. Smaug had something he wanted this time. A request that would void out his earlier claim on Bilbo. He had heard from some other calamity – some evil whisper somewhere – of words that could bring him unimaginable power. Of words that would give him dominion over the entire world. All Smaug needed was a wordsmith, a minstrel – a creature whom, at the time, was considered only a myth. But Smaug had suspected for a while that Bilbo was of the Words, and so he came to the Bagginses with a plan...and a curse.
"What he had with him was unspeakable. They were Words that should never be said aloud; should never be read, or even written down. Words that only Bilbo could invoke. But what Smaug did not realize was that though the power was within the Words, it also came from the wordsmith. That is to say, unless Smaug himself possessed Bilbo's gift, it could not be transferred. And it could not be stolen."
"So Bilbo has this...unimaginable power?"
"Perhaps," Gandalf muttered noncommittally. "Perhaps not. All that is known is that after it was Said, Smaug went off believing that it had worked. By the time he realized that he had been given nothing, Bella and Bilbo had already fled. From then on they moved about the world, helped by me and other enemies of Smaug. Kept secret. Safe. Smaug took her defiance very personally, and part of the reason he has searched so obsessively for them was because he believed that he had been tricked. They were truly lucky to have lived undetected for so long. Then, when Belladonna fell ill and died, Bilbo wanted more than anything to return to his home. And well, you see how that turned out."
Thorin closed his eyes for a moment. "Then he is in great danger.”
"We all are," Gandalf agreed, and then gave him a pointed look. "But that's where you come in."
In the next room, in a dream that he would not remember come morning, Bilbo stood in front of a roaring bonfire on a white cliff that overlooked an endless black sea.
"Alright, little one, you know what to do."
Bilbo smiled up at the nice man and turned to face the fire. He inhaled, slow and deep, and with considerable power collected on his tongue, he said,
"One ring to rule them all...."
"Do we even have a plan?"
"Of course we do, weren't you paying attention?"
"Yes, but I thought you were joking."
"Quiet."
They fell silent as Gandalf glanced around the warehouse from their hiding place behind a shipping container, his eyes roving over the men that prowled around the yard. Bilbo fidgeted beside Thorin, his guitar on his back, and Thorin almost laughed aloud when he realized that, in this case, his gun was completely outclassed next to a acoustic guitar. Bilbo caught him staring and gave him a 'what?' look.
"There," Gandalf suddenly spoke. He pointed his staff at a large tower crane just as its engines fired up. Lorries beeped as they backed up out of its way, and a man in a hard hat suddenly shouted and made the universal sign for OK. The crane rose, and on the end of it was...a rock?
"What the hell is that?"
But it wasn't Gandalf that answered. Instead, Bilbo got a queer look in his eye, and whispered, "there hammer on the anvil smote, there chisel clove, and graver wrote. There forged was blade, and bound was hilt; the delver mined, the mason built."
"Durin's axe," said Gandalf.
Thorin frowned at the rock attached to the end of the crane, until suddenly, he caught sight of something glinting in the sunlight. He then realized what he was looking at: it was a hilt. The hilt of an axe – which was firmly lodged in stone.
"That belongs to you," Bilbo told him, turning to him with a smile.
Thorin smiled back fondly.
"Now is our only chance," Gandalf interrupted, getting to his feet rather nimbly for an old man. "Thorin, you must get to the axe. No matter what happens, this is your task. You cannot fail."
"What am I supposed to do after that?" Thorin demanded, rattled by Gandalf's intensity.
The wizard stared into his eyes gravely. "You will know," was all he said. "Bilbo, with me."
"What? Wait!"
Bilbo put a reassuring hand on Thorin's shoulder. "It'll be alright," he told him. "We're just going to cause a distraction. It'll be fun."
Thorin wasn't fooled for a moment.
"Be careful," he said worriedly. "I mean it, Bilbo."
"I will," Bilbo promised, and then flashed him a wicked grin. "After all, I'm looking forward to all that sex."
Thorin blushed, and Bilbo laughed into the back of his hand as he moved away and ran off after Gandalf.
He turned his attention back to the axe. The workers were slowly lowering it onto the back of a flatbed lorry, and it didn't look as though they were in any sort of a hurry. As he waited, he checked his magazine before clicking the safety off his gun.
He nearly jumped out of his skin as a cacophonous screeching sound suddenly split the air. Forgetting what he was doing for a moment, he looked about wildly until he spotted the source of the commotion. A stack of shipping containers had toppled over, hitting another stack and causing three more to fall like dominoes. And there...there was Gandalf standing on top of a high platform, his staff glowing white.
Thorin heard a deep and guttural growl, and saw that the workers had abandoned their human skins for fur. Wargs. At least thirty of them. They snarled at Gandalf, half-crouched like sprinters at the starting line, ready to tear the wizard apart.
But then something sweet whistled through the air – something soft like a slow breeze at dusk, whispering:
come and see come and see what's hidden underneath come and see come and see my great big teeth.
Bilbo. Thorin spotted him on another container, perched like Gandalf and glowing – a smile on his face.
Who's afraid of the big bad wolf?
The ground exploded. It cracked and rose like a rocky wave, striking out at the Wargs and knocking them off their feet. Thorin himself was unaffected, and he knew that it was now or never. He tore off toward the stone as fast as his feet could carry him.
Rock and dust flew up around him as the Wargs yelped. Another pulse of Bilbo's guitar ripped through the air, propelling a Warg away from Thorin. He managed to get a few shots off, taking out two men coming for him head on, and then he made it to the lorry and slid behind it for cover.
His breath caught as he looked up and saw the axe in the stone. His birthright.
He knew what to do.
With a grunt, Thorin climbed up the side of the lorry and onto the bed. Around him the fight carried on, but he paid it no mind. He could not tear his eyes away from the axe.
Thorin reached forward. He wrapped his fingers around the hilt. He lifted.
The axe slid out, and the world trembled.
For a time Thorin wasn't aware of where he was, of what he was doing, or even who he was. There was only light; the light of the axe in his hand which shown bright enough to blind him. But it wasn't only coming from the axe, for it also grew out of Thorin's own body – enveloping him in warmth, and in courage, and in strength. It was a feeling reminiscent of being reunited with a long lost love. Of becoming whole.
This light had been in him all along, and all that was needed to summon it was his ancestor's call. A call he could hear now. And this time, he didn't need Bilbo to craft the words for him.
Unwearied then were Durin's folk; Beneath the mountains music woke: The harpers harped, the minstrels sang, And at the gates the trumpets rang. 5
Thorin could see something above him, hovering in and out of his mind's eye, and real, if one chose to look. It was bright and big, and strangely familiar to his heart.
It was a crown of stars.
The image shattered, and in its place was a shining helm, slowly descending toward Thorin. When it came close enough, he instinctively straightened his neck, letting it fall onto his head with gentle finality. It was then that Thorin came back to himself. He looked at the axe in his hand and touched the helm on his head, and felt content for the first time in a long time.
There was a growl - too close - and a Warg pounced on him, throwing them both over the side of the lorry. Viciously it snapped in Thorin's face with its sharp teeth and putrid breath. He struggled to get the thing off of him, using both hands to push the hilt of the axe into the Warg's neck to keep it from biting him. Thorin managed to get a leg underneath him and he shoved as hard as he could.
The Warg fell, but another one came for him from the opposite direction. Thorin breathed hard, glancing down at his weapon. He brought it down to his side, took a deep breath, and sliced upward.
The ground rose with it, summoning hot rock and spitting magma. Black stone bloomed at his feet, cracked with crawling lava. He suddenly registered the screams – the Warg, blinded by Thorin's strike, was now writhing in the dirt. He turned to see the other gain its feet and charge him, and this time Thorin made contact. The axe cracked into the Warg's chest and sent it flying.
Before he could marvel at its strength, he was being attacked again, and this time he noticed that Bilbo and Gandalf were facing the Wargs too, and that their numbers had grown.
It was a veritable army that marched toward them now, all of them glaring with bright eyes full of malice. Thorin fought off the Wargs closest to him and stopped to think for a moment, breathing hard.
His wandering gaze found the tower crane.
It was risky, but there were too many for Thorin to take on by himself, and Bilbo and Gandalf had to be tiring.... He made his decision and sprinted over to its base, quickly judging where he should strike.
Please let this work, he thought, before using both hands to draw back the axe and chop at the base of the crane, almost as if it were a tree.
He'd figured it would take a couple of hits, but this was also one hell of an axe.
The base exploded as if Thorin had launched a rocket at it. There was an ungodly, groaning screech – one of the strangest and most frightening sounds he had ever heard – and then the crane was coming down. The Wargs in its path didn't stand a chance, for there was nowhere to really run. The steel rained from the sky and landed with a tremendous crash.
Thorin watched, wide-eyed, as the dust cleared. He caught a glimpse of Bilbo hopping up and down on his container, cheering, and couldn't help but smile.
They had won.
And then there was pain.
"Thorin!"
From far away he heard Bilbo call to him, but there was something wrong...his arm –
He opened his eyes just in time to dodge Azog's mace. Rolling to his feet with a pained moan, Thorin held his axe and his aching arm close to his chest. The pain was horrible, and he could feel warm blood trailing down his fingers.
Azog did not wait for Thorin to gain his bearings. He charged, swinging his mace toward Thorin's head. He let go of his arm and brought the axe up to parry, dragging the mace to the side. Thorin backed away swiftly as Azog moved to swipe at him again. He heard a frightened yelp coming from where Bilbo was, and he turned to see...he wasn't sure what he was seeing.
Giant...trolls?
The earth trembled as they moved toward Bilbo and Gandalf, the wizard raising his staff high into the air. But then Thorin had no time to watch his companions, because Azog was lumbering toward him with a cruel smile on his face.
"Durin," he growled, and there was amusement in his voice. "Durin the Deathless. King Under the Mountain."
Thorin frowned, keeping his axe up as Azog circled him.
"That right is mine," said Azog, pointing his mace at Thorin's helm. "That is my crown."
"This is the right of Durin's folk," he snapped, angry that Azog was even looking at the weapon of his ancestors. "Not filth like you!"
"Durin's folk," Azog laughed, his scarred face deforming grotesquely. "Dead folk. Unworthy. Not even Thrain's pride could inspire your ancestors to crown a new king."
Thorin went very still. "You killed him – " he said, shaking with fury. "It was you, wasn't it? You bastard – "
"I thought the old fool would pull the axe from the stone, and then I would harness its power." Azog eyed the weapon and helm with envy. "But it seems your father was not good enough for the crown. It seems he wasn't a true king."
Thorin attacked, bringing up his axe and striking at Azog over and over. The Warg managed to block, but something else was happening – heat rose from the ground, blackening everywhere Thorin stepped, and embers rose from the hot blade of his axe, creating a burning gust as powerful as the strongest bellows in the largest forge.
Rage raised the fire higher, and rock and ash burst from the ground and pummeled Azog from every side. Still Thorin pressed him, roaring as the earth shook and flames leapt from the edge of his blade. Azog cried out and smashed to the dirt after a particularly hard strike, and Thorin stood over him panting.
Azog cackled, blood on his teeth.
Father, thought Thorin. He raised the axe....
There lies his crown in water deep, i> till Durin wakes again from sleep.
....and brought it down.
"Whoa, there," he said, catching Gandalf as he swayed from side to side. "Alright, old man?"
"Old!" Gandalf coughed, giving Thorin a one-eyed glare. "Old enough to take care of those!"
He waved his staff in the direction of the giant, ugly....
"What are these exactly?"
"Trolls!" said Gandalf, stretching his back with a pained groan. "Dimwitted creatures with terrible hygiene."
Thorin's mouth twitched. "Well done, then," he said. "Where's Bilbo gone?"
"He's around here somewhere." Gandalf waved a hand vaguely.
"I'll get him." Thorin moved off once he was sure the wizard wouldn't fall over, and walked toward Bilbo's container. He looked up as he came to it, but didn't see him.
"Bilbo?" Thorin called, but there was no answer.
Frowning, Thorin walked around to where he'd last seen the man, standing tall and invincible and laughing in the face of an army. But Bilbo wasn't there.
Thorin squinted, catching sight of a trail of blood. His eyes followed it from the top of the container to the bottom, where it pooled sickeningly. He quickly followed it around to the other side, and then gasped.
On the ground beside where Bilbo once stood – was his guitar.
Thorin plucked at a few strings listlessly, staring off into the distance. He heard Gandalf arguing with someone in the next room, but couldn't be bothered to listen. He kept seeing Bilbo's quirky little smile, and he swore he could hear his sweet, understated voice singing words filled with affection and good humor. It was strange how much Bilbo being gone affected him – Thorin not only felt paralyzed with guilt and worry, but his heart was hurting too.
" – matter of great importance! I would not ask otherwise!"
There was a low murmur as whoever it was they were talking to responded to Gandalf. Then there was silence. Thorin looked toward the door as Gandalf came thundering out of the room. He caught a glimpse of a glowing orb and a timid looking Radagast, before Gandalf's terrible temper demanded his attention.
"They refuse to help! Insufferable creatures!"
"Who?"
"Your subjects, that's who! Our fellows who are too scared of calamities to fight them, and much too stupid to understand that they haven't a choice! Evil such as this can never be left to its own devices!"
Thorin scoffed. "And they won't answer to me? To the king of...whatever?"
"They need proof first," explained Gandalf, his face stormy. "And they will get it, but not now. Now we must rescue Bilbo from Smaug. Do you remember what I told you, Thorin, of Bilbo's story?"
He met Gandalf's eyes, recalling the details now...realizing that things were a lot more dire than he thought. "Bilbo's power...."
"Yes," Gandalf confirmed gravely. "Which is why I must go with or without the help of my peers. Without you, even. I cannot leave Bilbo to this horrid fate, nor allow this world to suffer the spread of so great a darkness. Smaug must be stopped."
Thorin swung the guitar around his back and stood up. He faced the wizard determinedly, jamming the helm onto his head and holding onto his axe with both hands.
"Let's go," he said.
But Gandalf did not move, and instead looked down at Thorin gravely. "It is very dangerous," he warned. "We may very well die."
Thorin shook his head. "I don't care."
The wizard nodded. "Good, nor do I," he agreed, and they set off into the night.
Thorin had never technically been to Smaug's penthouse. He'd certainly staked out the outside of it, but he didn't think that counted. Getting a search warrant from the magistrates had always been like pulling teeth, but in Smaug's case it was nearly impossible. He was a man of means and shamelessly unethical, and approaching the courts with a blank cheque was not above him, nor would it be a surprise. All this meant was that storming the flat, as it were, was made doubly difficult by Thorin's not knowing the place he was walking into.
"What should we do? Is there a way in? Should we climb up the lift shaft?"
Gandalf stared at him dubiously. "Don't be ridiculous, we need only convince the security guards to let us pass. I don't imagine it will be very difficult. Though your appearance leaves much to be desired."
"My appearance?" Thorin said. "You're wearing a dress and a pointy hat."
Gandalf narrowed his eyes at him, but Thorin pressed on. "Can't you do a spell? Make us invisible? Bilbo mentioned that he could do something like that."
"Yes, but that is Bilbo," the wizard told him. "My magic is quite different from his, I'm afraid. Spells like invisibility are too subtle for me to do with any sort of precision, I would only blow you up if I were to attempt it."
Thorin did not want to be blown up.
"Right." He nodded. "I'll hide my axe and take the helm off if you'll at least give up the cap. I'm assuming the staff is staying?"
Gandalf scowled at him – so yes.
Without further delay, Thorin and the wizard made their way to Smaug's building. His flat was at the very top, and Thorin eyed the lifts behind the front desk determinedly. A security guard stood by, watching them.
"Can I help you?" said the concierge.
"Yes, I'm afraid I've locked myself out of my flat," Gandalf lied, and not very well. "I'll just be going – "
"I'm sorry, sir." The concierge frowned. "May I ask your name?"
Gandalf looked from side to side, as if thinking over his options. Thorin covered his eyes with his hand.
"Smaug...?" said Gandalf.
The concierge raised both eyebrows and looked the old man up and down. "Sorry?"
The security guard was stepping forward.
"No, no," the wizard said hastily. "I mean that Smaug is my nephew. Yes. My favorite nephew. Although perhaps not."
"I'll go ahead and phone Mr. Smaug, sir, and see if we can't clear this up," offered the concierge, his expression bemused.
"No!" Gandalf said. "There's no need for that, surely? Can I call you Shirley?"
Thorin groaned aloud this time.
"It's a surprise visit! Yes. For his...birthday."
The concierge hung up the phone. "Sir, I'm going to have to ask you to leave."
"Oh, but...." The security guard was coming over now, and there went their chances of remaining inconspicuous. The doors to the lobby suddenly crashed open, and Thorin and Gandalf turned to look.
Blocking their exit was a group of truly bizarre looking creatures. They were humpbacked and bald, their pallor a sickly grey and their eyes too big for their face. They snarled, showing off rotted, blackened teeth, and began to prowl closer.
"What are these things?" asked Thorin, slamming his helm on his head and taking the axe out from under his coat.
"Goblins," said Gandalf. "Very fast. Man-eaters. Quite unpleasant."
Thorin raised an eyebrow, and then prepared to defend himself as the daywalkers shot toward them. Thorin swung his axe and two of the creatures went flying. He saw the wizard point his staff, sending three into fits of pain. They screeched and drooled on the floor, but their fellows did not stop to help them. There were so many, coming from out of nowhere – Thorin struck out over and over but saw no end to them.
"Enough!" said Gandalf, clearing a space around himself. "Keep that helm on your head, Thorin Durin, or perish with them."
"What?" Thorin shouted, but Gandalf was already raising his staff.
He brought it down and a blinding light filled the room. Thorin slammed his eyes closed, listening as the snarls abruptly stopped and a car horn went off before there was a loud crash. Then everything went silent.
Oddly, it was difficult to reopen his eyes, but he managed with a great deal of willpower. He immediately saw that Gandalf was surrounded by collapsed goblins. Then he looked at the security guard and concierge, who were similarly knocked out.
"Have you killed them?" Thorin yelped.
"Of course not!" Gandalf denied defensively. "They are merely asleep."
Thorin saw now that people on the street had passed out as well, a few at the wheel but miraculously crashing without hurting themselves or others. Thorin gaped at Gandalf accusingly.
"How many people did you do this to?" he demanded. "And why wasn't I affected?"
Gandalf turned toward the lifts impatiently. "Your helm, of course. There is little that can penetrate it. I am unsure just how many people were put to sleep, but I wouldn't worry so. It's a relatively harmless spell, I assure you."
That didn't reassure Thorin at all, but there wasn't time for getting angry at Gandalf. "I doubt the spell managed to reach the upstairs," the wizard said. "We'd best hurry."
They quickly sprinted for the lifts and crammed in, awkwardly adjusting axe and staff so as to not hit each other. Then they pressed the button for the top floor. They had just made it past the sixth when they stopped and the doors popped open. Thorin quickly pressed for them to close again but nothing happened.
"Bugger," he said when a horde of Wargs appeared in the hallway.
"I suppose we'll take the stairs," said Gandalf, a bit sadly. He quickly left the lift, his staff held high, and bowled over the Wargs at the front of the pack. Thorin followed with his axe, striking down the second wave.
The last two were bigger than the others, and Thorin faced them warily as they stepped up and over the downed members of their pack. Then they transformed, and Thorin saw a true Warg for the first time.
They were massive, rather more the size of a bear than a wolf, and their jaws looked so powerful that Thorin was sure they could cut him in half with one bite. Their fur was a thick brown and a bit mangy, and their eyes were yellow-red.
As they prowled closer, Thorin raised his axe and wished he knew more about using it in combat, and just more about combat in general. So far he'd been holding his own, but these were also really big wolves.
He had no time for fear, however, because the Warg was coming for him, and he was suddenly using his axe to keep those teeth away from his throat.
The Warg snapped and spat, and then clawed down Thorin's side. He yelled out in pain, cursing as he used his upper body strength to shove the thing off of him. He felt something strain in his already injured arm when he did it, and seeing as the Warg had to be over three hundred pounds, it was no wonder his arm felt useless when he managed to get back on his feet. The Warg came for him again and he cried out in agony as he raised his axe and brought it down on its head.
There was no strength behind it, Thorin's arm was shot and his speed was dismal, but the moment it touched the Warg's head the axe seemed to sense its master's desperation and gathered its own power. It slammed into the Warg and drove its head straight into the ground, breaking apart the carpeted floor and leaving a Warg shaped hole. Its bum and legs stuck up a bit, and Thorin couldn't help but laugh a little.
He turned and helped Gandalf finish off the last one (nearly getting singed by one of the wizard's spells for his efforts) and by the time the pack had been defeated they were in pretty rough shape. Thorin panted, checking his bleeding side and moaning every time he moved his arm.
"Come, I can help with the pain," said Gandalf, motioning to him.
Thorin gazed at him skeptically, but handed over his arm for inspection anyway. It hurt too much not to. "You said you couldn't do subtle magics."
Gandalf sent him a disgruntled look. "You may be a bit giddy afterward, possibly even for a day or so, but you shan't be in so much pain. Now which is it? Yes or no?"
"Yes."
The wizard's spell did indeed make Thorin feel giddy, and also extremely refreshed. With a new energy he took his arm from Gandalf and hefted up his axe.
"Your arm is still injured, Thorin, so mind how you use it," Gandalf warned him, watching as Thorin tried the lift again. They made for the stairs when it refused to work.
They climbed as quickly as they could, the axe heavy and the miraculously unharmed guitar bumping against his back. He counted the seventh, eighth, and ninth floors before losing track. The penthouse was on the fifteenth, and to Thorin that seemed thousands of miles away.
It was on the thirteenth floor that something strange started to happen; there was an odd scraping and tapping noise, as if thousands of needles were falling onto metal. The unseen thing hissed like something slithering, and Thorin slowed in order to listen closer.
Then something came down the staircase. It was black and spindly, and made of what looked like tendrils of writhing vines that slowly inched toward Thorin and the wizard.
"Don't let them touch you!" cried Gandalf. "They are probably poisoned."
Thorin swallowed around a groan of frustration and began to hack away at the vines, but like a hydra, the more he cut the more they seemed to multiply.
"How exactly am I supposed to kill this thing?!" Thorin asked as the thorns continued to advance.
"I'm thinking, I'm thinking," Gandalf said unhelpfully.
Thorin continued to hack and slash, getting nowhere. "Can't you use light or something? Like from the movie?"
Gandalf's head shot up. "What movie?"
"Harry Potter!" Thorin yelled.
His expression grew thunderous. "That isn't real magic!" he snapped. "And I am not that Dumbledorf person!"
"Oh for god’s sake!" Thorin shouted in frustration.
He purposely recalled the sensation he had felt the first time he had used the axe – the moment when he'd called up the hot rock and flame – but this time he wished for searing light to accompany it.
The axe came down and flame spread out in a fan, electricity running ahead of it like foam on a wave. It crashed into the thorns and incinerated them, sending a strange sulfuric stink into the air.
Thorin coughed and looked around at Gandalf. "See?" he couldn't help but needle. "Are you a wizard or not?"
Gandalf scowled. "Yes, well, fire tends to work most of the time," the old man grumbled.
They ascended once more, climbing up to the fifteenth floor at long last, but wary of what they would meet there. The door to the stairwell swung open easy enough, and Thorin saw a long hallway before him. At the very end was a door made of textured glass.
Thorin and Gandalf walked toward it cautiously, the eerie silence of the hall a large difference to the chaotic noise of before. Thorin's ears were even ringing.
When he reached the end, he hesitated.
Despite his fear for Bilbo and the adrenaline coursing through him, he had to stop and take a deep breath before touching the handle. When he finally did it clicked open easily.
"This is absolutely a trap," Thorin hissed, looking around.
The room was painted a deep gold, with red neon lights lining the high ceiling. A large tube-like structure made of the same textured glass as the door sat in the middle of the otherwise empty room.
Thorin moved forward cautiously, peering around it. That's when he saw the opening, and that's when he saw Bilbo.
Thorin immediately ran to his side, calling his name. Bilbo was laid out on a gold colored bed, looking just the same as when Thorin had last seen him. His ugly yellow cardigan and maroon knit cap were slightly askew, but otherwise...he was completely unhurt.
And yet Bilbo would not wake.
"Bilbo? Bilbo?" Thorin shook him a little. "Bilbo, wake up."
"An enchanted sleep will not hold his power for long," Gandalf suddenly said. Thorin turned around quickly, spying the wizard looking at someone standing in the doorway.
"No, but it will keep him quiet," responded Smaug, and of course it was him.
Thorin stepped away from Bilbo, removing the guitar from his back and gently placing it on the floor beside the bed. He left the glass circle, creeping out until he caught sight of Smaug.
The dragon faced them calmly, his sharp gaze finding Thorin before flicking back to the wizard. He wore a fitted black suit, and his long, chiseled face, was as hard as stone. As usual, his full lips were turned up in a cruel smirk.
"You cannot take the power of the ring for yourself. It is lost to you now," Gandalf said, leaning on his staff.
"Then I'm sure I can...persuade him to work for me," Smaug replied, shrugging. "He's always been such a gullible little thing. So eager to please...."
Thorin's face grew hot with fury. "You'll have to kill us first," Thorin snarled. "He's a wizard, and I'm a king. How good do you think your chances are?"
Smaug raised his eyebrows in amusement.
"A king, are you?" he said silkily. "So quick to take up that honorable mantle, Detective Inspector! Could it be you enjoy the power that axe gives you? It feels good doesn't it? To destroy. To command. To be more than just human. What makes you so different from me?"
Thorin glared. "The biggest difference is that I don't do monologues," he replied, and raised the axe. To his satisfaction, he saw Smaug's eyes widen as the weapon came down, striking the floor with a boom.
The dragon was thrown off of his feet and into the door, which shattered on contact. Gandalf shot a bright, pulsing light from the end of his staff, and it slammed into Smaug, who screamed in pain. As Thorin advanced, he felt the hilt of the axe heat and looked down as sparks came off of its straight edge. It must have been hot enough to burn, but Thorin's hands remained unharmed.
Gandalf's spell ceased, the old man seeming to tire a bit, and Thorin stepped forward and slashed his axe across his body with one hand. The ground rumbled and turned to hot black stone, from which bright orange magma bubbled and hissed to the surface. He marveled for a moment at the magic it took to summon a veritable volcano in a penthouse flat, before he was distracted by the liquified floor. It had turned to lava, and Smaug was sinking into it with an ungodly screech.
And then those pained eyes focused on Thorin, and his porcelain skin began to change. Black vines, reminiscent of the thorny creature that had attacked them on the stairwell, crawled out of Smaug's eyes, which had turned the color of fire.
Then Gandalf stepped back. "Oh, dear," he said.
Thorin looked at him quizzically, not liking the sound of that, but he understood why the wizard was wary when the strange vines around Smaug's body began to pulse.
"You will burn," the dragon hissed, and then exploded into darkness.
Writhing clouds of pure black smoke flew up into the air, congealing to form a hulking, massive shape. The roof groaned and broke open, and Thorin tripped over his feet to get away from the falling debris.
Smaug the dragon, the actual dragon, came out of the smoke head first; his snake-like neck curving back as if he were stretching after a long time trapped somewhere small.
"Our little game ends here," Smaug rumbled, his voice was like thunder. "Now you die."
Thorin dove out of the way just in time as Smaug let loose a ball of fire. He moved quickly out of the dragon's reach, stumbling into the far wall, and too late realized that he was close to the sleeping Bilbo and probably putting him in terrible danger.
And yet Smaug did not attack. He eyed Bilbo as well, his head swaying from side to side in agitation, and Thorin understood that the dragon would not risk hurting the minstrel with his fire.
That did not stop his teeth, however, and then Thorin was moving again – this time away from the dragon's snapping jaws.
As he dodged and ducked, he heard Gandalf call out from above, and Thorin looked up and saw that the wizard had escaped up to the roof. He seemed to be chanting and slowly gathering light at the tip of his staff. Smaug narrowed his eyes at the wizard and slithered through the hole in the ceiling, completely distracted by the foreboding shine of the spell.
Thorin followed, nearly tripping over bits of plaster, and managed to pull himself up to the next floor with the help of some stacked debris. On the next level he immediately saw a stairwell to the roof, and he sprinted toward it and up to the outside. And just in time too – for Gandalf's spell had only made the dragon angrier.
The night was brisk and windy, and Thorin could see twinkling stars behind Smaug's red-scaled bulk. Gandalf glowed a bright white, and in solidarity the axe in Thorin's hand pulsed with heat. He watched as Smaug reared back, the scales on his chest beginning to ignite, and did something he had never done before. He held the axe securely by its hilt, reached back, and let it fly.
It was aimed straight for Smaug's chest, but the dragon had seen him prepare to throw it, and brought up his wing just in time. Miraculously, the axe did not bounce off of the armor-like scales, and instead sunk deep into his hide.
Smaug roared in pain and fury, clawing at the axe until it fell to the ground. Thorin watched it with despairing eyes, swallowing as the dragon angrily crouched and made ready to pounce.
Thorin had no choice but to run, but where to run to? He took off for the other side of the roof, listening as Gandalf shouted in some other language and the wind suddenly grew stronger. He had to find his weapon –
The floor cracked beneath his feet and collapsed, and Thorin's stomach dropped as he fell, his hands reaching out desperately for something to grab. He landed bum first on the next floor, which crumbled apart but thankfully slowed his fall, and before he knew it he was crashing back into Smaug's penthouse.
He groaned, feeling blood roll down his leg and side, and reached up to wipe the dust out of his nose. The ground shook as he crawled blindly toward the wall, frightened of falling again.
He heard the dragon roar and knew he should get up – he knew that the wizard needed his help – but his axe was gone and though his helm protected his head it didn't do much else. He took a second to catch his breath, riding out the pain from his injuries. He turned his head tiredly, looking around at the destruction, when his eyes caught sight of the large glass circle.
"Bilbo," he murmured, starting to panic. How had he forgotten about Bilbo? The room was trashed, the roof was falling down, and the dragon was crashing around and setting fire to everything and poor Bilbo was, was –
Completely fine.
"You lucky sod," he laughed, quickly moving to Bilbo's side. It must have been some magic spell that kept him from harm, for everything within the glass circle was relatively unscathed, though a bit dusty. Thorin put his hand over Bilbo's, feeling tired and sore. He needed to finish this, for Bilbo's sake.
And apparently Smaug agreed; the dragon crashed through what was left of the ceiling and braced his forelegs on the floor, the rest of his large body coiled on the roof.
"Thief!" rumbled Smaug. "You will take nothing from me! I laid low the warriors of old, and now you shall meet the same fate, o' Son of Durin!"
The dragon opened his jaws, showing off his terrible teeth, and Thorin looked around desperately for something, anything to use as a weapon.
His eyes found Bilbo's guitar.
He dove out of the way of Smaug's reach, wincing when he heard his huge jaw snap closed, and crawled quickly toward the instrument. Thorin picked the surprisingly heavy guitar up just in time, swinging it around to hold in front of him as Smaug thankfully bit into it instead of Thorin.
The guitar splintered and then broke apart, the wooden top separating from the whole, and Thorin felt bad for a second until he realized that there was nothing else to use to defend himself but the remains of the guitar. It wouldn't do much, but he grabbed the wooden top anyway and held onto it by the hole, using it to cover most of his arm and face as Smaug attacked, and this time with his skull.
And surprisingly, the top didn't break. Instead, the force of Smaug's head butt pushed Thorin back, his feet sliding along the ground until his heel caught on a chunk of concrete. He went down hard but forced himself to keep moving, to keep rolling away and to run, run, run to who knew where....
The axe.
He spotted it underneath a large piece of the fallen ceiling, and he ran full tilt for it. Smaug slithered after him, but Thorin was faster now, for there was at last an end in sight. He crashed into the wreckage and reached beneath it, feeling the hilt and wrapping his hand around it. Smaug took a breath.
The world was fire, but Thorin wasn't burning. He had thrust the guitar top and axe in front of him without thinking, and the flames crashed into the shield and axe and fanned out around him. Thorin knew then that this was his only chance; that his body simply could not take much more of this. So he closed his eyes and listened to the call.
The King beneath the mountains. 6
....began a voice not unlike Bilbo's. The dragon's deadly fire ran out, and Thorin brought his axe close to his lips. He said the next verse, this time.
The King of carven stone.
Smaug was preparing another strike, but Thorin knew what to do. Thorin was ready. He reached back with his axe in hand, feet staggered and spread apart.
The lord of silver fountains.
His whole body twisted forward, and with stunning accuracy, he threw the axe straight for Smaug's heart.
It met its mark.
...shall come into his own!
Smaug roared and writhed in pain, the axe lodged deep within his breast. From where the blade had punctured him, cracks soon appeared – Smaug's chest glowing as the axe worked its destructive magic. Then the great lizard bellowed one last time, and his body cracked like broken glass – and finally shattered.
Golden sparks burst from where the dragon once stood, and Thorin covered his eyes as they went every which way. When all was done and the room had fallen silent, he looked up cautiously...and saw that the dragon was gone. That Smaug had at last been defeated.
Out of breath and hurting worse than he ever had in his life, Thorin stood there in disbelief. A smile slowly spread across his face, and he couldn't help but laugh when he realized that the danger had passed, and that against all odds...he had survived.
Then he remembered Bilbo.
His breath caught and he spun around, seeing Bilbo there still fast asleep. Thorin stumbled over and leaned heavily against the bed, wondering if Bilbo should have woken by now. He heard grumbling and the sound of falling concrete as Gandalf jumped down from the floor above and back into the room.
"Why isn't he awake?" Thorin said, turning to glare at Gandalf.
Gandalf brushed off his robes and glared back. "How would I know? The enchantment should have ended. Perhaps if you give it a moment? So impatient!"
But Thorin was remembering something. It was a wild theory and unlikely to do much of anything, but all he could think of was leaning down and kissing Bilbo lightly on the lips. And so he did it.
It lasted only a few seconds, but it was the sweetest few seconds Thorin had ever known.
And then Bilbo's eyes fluttered open.
"Hmm?" he inquired, blinking the tiredness out of his eyes.
Thorin flinched backward, putting up empty hands in surrender should Bilbo be cross. But the man only yawned and peered at Thorin happily, looking for all the world like he had just woken from a rather pleasant siesta.
Then his smile vanished, and his eyes narrowed suspiciously. "Hold on," he said, pushing himself up into a sitting position. "Was that a kiss? Were you just kissing me right now?"
"No!" Thorin answered automatically, and then he winced again. "Yes. Sorry."
Bilbo stared at him for a moment before grinning slowly. "That's alright," he said cheerfully. "I'm just sorry I missed it. But where on earth am I? Was I asleep? Holy shit, what a mess! Ooh, wait – "
Bilbo leaned into Thorin's space excitedly. "Was that true love's first kiss?"
Gandalf, who had been shuffling around in the wreckage, threw them both an irritated look. "Of course not," he said crossly, kicking a piece of broken plasterboard away. "This isn't a fairytale!"
Bilbo made a face. "Spoilsport."
"Another gas leak! The world is just falling apart," said Bilbo, slapping down the front page of the newspaper. A picture of the ruins of Smaug's penthouse was on the cover, and Thorin couldn't help but shake his head. Had he truly been that oblivious once? How many gas leaks had really been gas leaks, anyway?
The morning after the battle with Smaug was horrid for both Gandalf and Thorin. Gandalf was still asleep, snoring away in Radagast's room, while Thorin had been up at the crack of dawn as always, unable to ignore his internal clock. His whole body protested any and all movement, but he'd made it to the loo and the kitchen well enough, and then couldn't find the energy to slouch back to bed after that.
Bilbo had taken the initiative and had made him some porridge and tea, and then happily hovered around him like a mother hen.
"At least no one was killed," Bilbo said thoughtfully, popping a piece of toast in his mouth. "You two got the worst of it. How's your arm by the way? Should I change your bandages?"
"In a bit," Thorin told him, smiling softly. "I'm glad you're alright, you know."
Bilbo nudged him with his shoulder playfully. "Me too! And thank you for saving me," he said. "I can't believe you defeated a dragon all by yourself! It's very cinematic!"
"Stupid more like," Thorin scoffed, taking a sip of his tea. "We nearly died multiple times. But it was worth it, in the end, to see you safe."
Bilbo looked at him for a moment, his expression terribly fond. Then he leaned over and kissed Thorin on the cheek.
"Finish your breakfast," he said, and got up to refill the kettle.
Thorin took a few more slow bites, his gritty eyes fixing on the axe and helm leaning casually against the wall. And next to it was the remains of Bilbo's guitar....
"Bilbo," he began, feeling positively wretched. "I'm so sorry about your guitar."
But Bilbo only smiled. "Oh that's alright!" He waved it off. "I can make another. I didn't much like using oak for it anyway. Too heavy...."
He cast a curious glance at the splintered pieces. "Made a great shield though," he added cheekily.
Thorin snorted. "That it did."
After he finished eating he let Bilbo pile gauze and sterile pads on the table, watching as the man bustled around the kitchen. He carried over a round bowl full of hot kettle water, and Thorin obligingly removed his shirt. Bilbo hissed in sympathy when he slowly removed the soiled bandages.
"Tell me if I hurt you," he said, and began to clean the wound.
Thorin's arm would need to be re-wrapped, as well as his leg, and he felt a bit guilty about enjoying Bilbo's ministrations, despite the pain it brought. He liked having Bilbo close, and he especially liked the coddling. Who knew Thorin was so fond of being fussed over? He couldn't help but gaze at the man affectionately as he worked.
"So, I don't mean to be that person," Bilbo began, his attention on Thorin's wound. "But someone has to say it: what now?"
Thorin frowned. "What do you mean?"
"I mean that Smaug is gone, and half the hunstman in England are dead. All that's left are people like us. And we still don't have a leader."
Thorin looked away.
"Once word gets around that Smaug isn't in charge anymore, someone or something is going to rush to fill that void. I'm not saying it should be you – "
"But shouldn't it be me?" he interrupted, meeting Bilbo's eyes. "Aren't I...king now?"
"Well, I didn't vote for you."
Thorin raised an eyebrow. "Really?" he said in amused disbelief.
Bilbo shrugged, a shit-eating grin on his face. "Couldn't help myself. But yeah. I guess you are king. King of...I don't know, a load of people with bizarre talents, probably. But hey, you know what? I think you'll make a splendid king for us. Best we've ever had."
"You haven't had any."
"Exactly!"
He shook his head at Bilbo, but he was smiling. "What about my life, Bilbo? I don't...want to leave it behind. I like my job. I worked hard to get where I am. But most of all I just still want to help people."
Bilbo bit his cheek and looked away thoughtfully. "Well, there's no reason you can't be a king and a cop."
"You're not serious," Thorin laughed, though he didn't find it funny.
"Why not? At least for now you can keep that part of your old life." Bilbo secured the gauze around his chest and sat back with a sigh. "We've got lots of work to do before you're even considered a real king anyway."
Thorin nodded at the table. "That's right, whose to say the magicals will ever acknowledge the crown? Might be a lost cause."
"Not at all!" Bilbo wrapped a gentle arm around his shoulders, hugging him. "People talk, you know, and they'll be talking about this battle for a long time. 'King Thorin' they'll say, 'wielder of axe and broken guitar! A most excellent detective and surprise kisser!'"
Thorin groaned. "I'm never going to live that down."
"Aww, but it was true love!" said Bilbo, giggling. "You woke me from an enchanted sleep and now we're obligated to give it a go! In fact, we can just skip the courting and get right to the se – "
He cut Bilbo off with a kiss. Thorin had to live up to the legend, after all.
"Got one for you, detective," said the desk sergeant, poking his head into Thorin's office.
"Yeah, I'm coming."
Thorin pushed aside his paperwork and slipped on his blazer, walking idly toward the interrogation room. "What's this?" he asked Bofur.
"Lady come in asking for you," Bofur shrugged. "Said she wanted to speak to you alone."
Thorin sighed and nodded, taking the case file Bofur handed to him. He opened the door and slipped inside.
"Heard you wanted to talk to me," said Thorin, cutting to the chase. "What seems to be the problem?"
The red headed woman sitting at the table had an earnest look about her, and her green eyes were bright as she solemnly said, "I'd like to report a crime."
Thorin frowned. "Alright...?"
"It's to do with...one of ours."
His stomach swooped nervously, and he titled his head at her in confusion. "One...one of ours?" he repeated.
"Yes," said the woman. Then she eyed him speculatively. "You...you are King Thorin Oakenshield, aren't you?"
Thorin inhaled, mouth moving but nothing coming out.
"The detective?" she pressed.
He let out a long breath. King Thorin Oakenshield, he thought with an laugh. That was Bilbo all over. And...she had called him a king and a detective. She knew of him. Bilbo was right...word was spreading.
And now it sounded like she needed his help.
He turned his attention back on the woman, who had been waiting very patiently.
"Yes..." Thorin said, smiling a little. "I suppose I am."
Notes:
(1) The Old Walking Song (original)
(2) derivative of “or so sworn, good or evil, an oath may not be broken, and it shall pursue oathkeeper and oathbreaker to the world’s end.”
(3) “Down the swift dark stream…” from The Hobbit
(4) literally what the legend says
(5) “Song of Durin” from The Fellowship of the Ring
(6) “The King Beneath the Mountain” from The Hobbit
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I am now into the third month of my clinical trial for poziotinib. After the first two months, I had to take two weeks off for recovery from the rash it gave me. I am, however, glad to be back on the drug for the very simple reason that it was effectively killing the cancer within me. That is not a claim I make lightly, or, sadly, have had reason to make much at all over the past year.
When I was first put on chemotherapy back at the end of 2014, it was because there were no targeted therapies or immunotherapies available, either on the market or through clinical trials, that were likely to work for me. Chemo seemed to be the only option and, in some ways, it felt like a last-ditch effort. My tumor was considered inoperable, the metastasis had spread too far and wide, and radiation was not even being presented as an option.
While I was primed for a limited response and the possibility that I might only get a few months extension from the process, it turned out that chemo kind of worked for me. It worked well enough, in fact, that I would stay on it for over two and a half years — most of that time, simply keeping the cancer growth in stasis. There was talk of the possibility of being on that drug for five or more years at one point, but not long after the two-year mark I began to notice small changes in my scans. Very small, but changes, nonetheless.
I had plenty of time to think about options. And I knew that chemo was never going to be a permanent part of my life. There had been the hope, however, that it would keep things more or less static for a much longer time. I’m not a fan of hope — it always lets you down in the end, sometimes viciously; I far prefer a simple, pragmatic approach to my future. But hope sneaks in, lodges itself where you weren’t looking, and waits to insinuate itself in your private thoughts while you aren’t paying attention. Then you have a scan that clearly shows a shift in the primary tumor, a dramatic enough change in shape that it would be silly to even consider prolonging the current treatment, and all bets are off as talk of new biopsies and possible drugs begin to swirl through the air. No matter how prepared I thought I had been for that moment, I failed to consider hope mucking up the works.
Still, there were options — and they all sounded good. Or at least passable. A liquid biopsy — essentially just a small blood sample sent off to a lab — offered up a newly targetable mutation. And we went for it. A couple of times. And had no real success. Then there was this clinical trial I am currently on, and there was clear improvement in my lungs. By “clear,” I actually mean “clear,” too: previous to this new drug, the cancer in my lungs had been branching out, cloaking the tissue in what almost looked like a black widow’s web. My latest CT scan was the clearest one I have seen since my diagnosis.
So when I say that it was effectively killing the cancer within me, I mean it, and the statement means something to me. Something very special. Something that has made me ready to dive right back into the acid bath that was my first eight week experience, though with the hope that I’ve built up some level of tolerance and that the acid might have been slightly neutralized by knocking a couple of milligrams off my dose.
Here I am on day seven, only one week, and the rash is clearly running the same basic course that it did before. My scalp hurts, albeit probably a little less. I’m glad that I had the foresight to chop off my hair and shave before the rash had a chance to return. Even so, my short little hairs on top of my head are already weirdly wiry and stiff, the texture that contributed to a lot of the pain I had before. Rubbing up against them, they poke right back into my scalp like little needles, which does not bode well for pleasant sleeping regardless of the supposed comfiness promised by my pillow. Still, having much less of that hair to contend with, and almost nothing left of my beard, has already paid off.
Being proactive with the creams and oils and gels and lotions and drops and sprays and whatever else I have amassed on my bathroom shelf is also helping… I think. It is a bit early to tell, but so far I am managing to maintain more of my actual skin color and I do not itch nearly as much as I feared I might. Time will tell, of course, and the rash is marching on.
It only took six days to really begin erupting. Last night I realized that I needed to cover my pillowcase with an old T-shirt again, just in case. And I woke up with spots of blood and pus all over where my scalp had pressed into it. Scabbing had begun in earnest, already crusty when I went in to wash the sleep from my face. And the warm water I splashed cut up against my skin like little razors doused in lemon juice. But it was a quick sensation, over by the time I blotted the moisture away with a clean towel. And that towel then quickly thrown in the next load of laundry.
Today, I am oozing. Tomorrow, I am likely to be dry and scaly, or oozing some more, or, if I am lucky, something in between. My skin is still soft, and I will try to keep it that way. But more than any of that I am simply holding out that old demon, hope, once again, that the scientific miracle I witnessed on those last two scans will be repeated again.
And now, my week in pictures:
The day before I restarted treatment. Look at that acne-free face!
The beginning of day four, signs of the rash.
Still the beginning of day four.
My 14mg dose of poziotinib, and 4mg of loperamide (to slow things down).
Day five, with glasses.
Day five, with a little sign.
My head on day five.
My head on day five.
My head on day five.
My head on day five.
Day six.
Day six.
Day six.
Good morning, day seven!
Good morning, day seven!
Source of the imprints on the pillow covering.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
Day seven.
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Week One: The Oozing Begins I am now into the third month of my clinical trial for poziotinib. After the first two months…
#adenocarcinoma#Cancer#chemo diaries#Chemotherapy#Health#Lung Cancer#positive approach#Positivity#Poziotinib#Targeted Therapy#wellness
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Monica A. Sanchez - phaware® interview 238
Pulmonary hypertension patient, Monica A. Sanchez discusses her PH diagnosis, Graves' disease and hypothyroidism and how she advocates for herself.
My name's Monica Sanchez. I'm from La Puenta, California, and my connection with PH is I am a PH patient.
Recently with PH, I developed Graves’ disease and hypothyroidism. Been dealing with that about five years. A year ago it got really bad. We did a radiation pill and we hoped that that would end that. Unfortunately, six months later it all came back at 100% all over again. I did another iodine radiation pill, doubled the dosage, and the side effects were pretty hard this time. [My] throat swelled up, voice went out. I'm hoping that means it's killed the Graves’ disease and lowered the hypothyroidism.
With the hyperthyroidism, I started getting a lot of heart palpitations. At one point, it lasted for two minutes of my heart just having bad palpitations. My daughter could see my chest where it would go up and then it would stop and then it would go and then it would stop. I immediately called UCLA, the hotline, and luckily that night, it was Dr. David Ross who answered my call.
He was really concerned. He put me on a heart monitor. A couple days later, [he] took blood work and he calls me and he said, "It's your thyroid. It has shot up massively. We thought we had it under control. It's not. I need you to come into the hospital and be admitted or I need you to see your specialist right away." So, I went to go see my thyroid specialist two days later. They put me back on medication and everything (because I had been good, so they had taken me off). I got put back on thyroid meds.
We checked every three months. I was going great, and then it all started again. I was losing my hair, fatigue. I'm 44 and I thought I was going through menopause, because I was having hot sweats. Nobody could talk to me. I would snap, and we realized the thyroid was acting up again. It's a gland in your neck that we need. It also was one of the reasons I was losing so much weight at the same time.
It's been 15 years this month when I was diagnosed in 2004. I was already diagnosed stage IV. My pressures were 125. I was put on two oral medications and a blood thinner, because I was also experiencing TIA, strokes in my brain, which was causing numbness. I was wondering what was going on with me. I was getting lightheaded. I was losing my vision. I was told I was overweight.
Then in 2004, I went in for a procedure. I was going to have a procedure done. I had a cyst on my ovary, and when they did all the exams, the EKG and the chest x-rays all came back abnormal, and that's when they told me I needed to see a cardiologist.
I saw the cardiologist in February of 2004. He turned around and he told me, "Oh," he goes, "you have a terminal illness. It's called pulmonary preliminary hypertension." And I was like, "Okay, what does that mean?" He goes, "You're going to die." He goes, "You got anywhere from three to five years, even with treatment, but I'm sending you to see a specialist at UCLA."
I didn't see Dr. David Ross until June of that year, so not knowing what this illness was, I tried to continue working. I was a preschool teacher. Unfortunately my doctor at the time, my primary doctor, told me I had to quit. There was just no way I could work. And then in June when I saw Dr. Ross and we did the tests, the right heart catheterization, it came back bad. It was idiopathic pulmonary hypertension. He started [me] on the medication, but he did tell me I had no expiration date. He kind of eased me on that. We've been dealing with that.
In 2008, he put me on Ventavis because my pressures were still not going down with the medications. Unfortunately, I didn't do very well on Ventavis. I was getting a lot of sore throats. It was just hard to deal with. My daughter, at the time she was dancing, so we had competitions, practices. To stop and take puffs of a medication, having people stare at you, it just wasn't for me either. I personally stopped, which I never recommend, and then three months later when I went to go see him, he asked me how I was doing. I told him I had stopped and my pressures had went up to 131.
I was put on the list for a transplant, heart and lung at the time. Then he had explained about the lovely Remodulin. He said, "I could put you on a subcutaneous Remodulin, because a pill's going to be coming out in a few months. And once the pill comes out, I'll take you off of that and we'll get you on the pill." And I was like, "Well, I don't know. I don't think so." He goes, "Either that or get your priorities in order and say your goodbyes to your family." He goes, "Because now I don't know how much longer you will have because of your pressures being so high," but at the same time I was feeling fine.
I was at dance competitions, Disneyland. I'm looking at him like, "What do you mean?” I could breathe. Yes, I get tired. And so, I got on subcu and nine years later I'm still on it. All the pills, unfortunately I was not able to get on because I was already in too high of a dosage on Remodulin. Right now, my goal is the implantable pump.
Some of my challenges I've had with PH was trying to deal with home life with the daughter, not working anymore. It was hard. In 2007, I had to move back with my parents. That was the challenging part for my daughter and I. I'm a very independent person and so I had to depend back on my parents, and that's where it was hard.
I had dizzy spells. I had breathing problems, making my bed, doing my laundry, so I understood how to go home, but I felt I'm going backwards instead of forwards with my illness. But then my dad told me, "Just go out there. Live. Don't let anything stop." I continued with my daughter dancing. My Sadie's my reason for living. She keeps me going. As soon as she sees me down, it's like, "Oh, Mom, we got to go shopping." And it's like, even though we don't buy anything, window shopping. Or I'm a big Disney fanatic. We have our passes. That's our getaway. That's a no sick zone. It's just get my walker and just go walk the park. Do a couple of rides and come home and deal with it.
I've learned in these last long years that we have the illness, but the illness doesn't have us. And if I'm going to sit at home thinking about it, then that's when it's going to eat me. But if I get up each day and say, "Hey, I'm breathing. I'm good. I'm going out," even if it's just to walk the dog or just to go in the living room and talk to my parents or meet up with my PH sisters and go out to lunch or to a movie, I know I have the support.
That's one of the main things with this illness is that you have the support of your family and your friends right behind you. Because if you don't, then it plays in your head, and all you're doing is sitting there thinking when's my day? Am I going to wake up tomorrow? It took me 15 years almost to actually accept having this illness. I used to wake up, "Why me? Why me?" Now I wake up and I say, "Why not me?" There's a reason and if I'm here for a reason, to find a cure, to be that test dummy with surveys or testing and all that, then I say bring it on, because I'd rather help somebody in the future know that you can get through this. Each and every day.
But step-by-step, listen to your body. Your body will tell you when you are tired. Your body will tell you when it's had enough. Don't ever push yourself. Because if you push yourself, you're only going to end up taking 10 steps back to try to get back to where you were in the beginning.
I really need to remember that what I'm telling somebody to assure them, to get them through the day is the same thing I live by each and every day, because I can't come and tell you, "Oh, you know what? Tomorrow's going to be a better day," and then I go in my room and I'm crying, saying, "Oh, my gosh, I don't want to see tomorrow."
I believe in when I say you could do this, it's because you can. With the whole thyroid, I learned how many people loved me actually, just my updates where I was getting personal messages of, "Oh, my gosh. You're my inspiration. I look up to you." I was like, "Whoa, me? Little me." And that really touched me that I could touch somebody else and let them know that yes, tomorrow is not guaranteed, but as long as you live your life each day like it is, then you have it. It's there. It's there for you.
You shouldn't give up. It's just another bump in the road. Like the thyroid, it's just another bump in the road. I joked with Sadie and I said, "Oh, it's just God saying I gave you 15 years with your PH. You're doing good, so let me throw a little boulder in the middle of the road and see if you could get around that one." And I'm doing it. It's just day-by-day, step-by-step, and not giving up on my faith.
You're your own advocate. When you go to your doctor's office, they say, "No, this isn't possible." Say, "You know what? It probably is." Because for me, I'm that one odd cookie in the cookie jar. They always say, "Oh, this isn't going to happen," and I'm the one to prove them wrong that it can happen or it can get better. I just say don't lose hope. There's hope out there. And eventually there'll be a cure. If not, just much, much better medications.
My name is Monica Sanchez, and I'm aware that I am rare.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
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Alleena Shiwdas - phaware® interview 227
In this episode, pulmonary hypertension patient, Alleena Shiwdas discusses the importance of a good peer support network and how psychological care as critical part of a PH treatment plan.
My name is Alleena Shiwdas, and I'm a pulmonary hypertension patient.
It was the day after I had my second son. I was in the hospital. I had a C-section and they told me I had to get up and walk. I said okay. Besides the fact that I was in a lot of pain, I was unable to breath. I couldn't walk five feet to the bathroom. I was completely out of breath. I said to them, I was like, "Something is wrong." They're like, "Um, well, everything looks fine," so I said okay. I thought I was having trouble with the medications they were giving me. I thought I had an allergic reaction, so I didn't make a big deal out of it.
After that happened, I went home and I just kept getting worst. My shortness of breath was escalating every single day. I would go to the ER. I went to multiple doctors and I said, "Something's wrong with me. I can't breathe." They're like, "Well, your stats look good. Everything's coming out good. Everything's fine. You look good. Go home." I did that for almost two years before I was finally diagnosed with primary pulmonary hypertension.
It was a week before my 24th birthday and they said, "You have less than a year to live. Your heart and lungs are in such bad shape. You're going to die of heart failure." It was definitely not a relief. I mean maybe it was, I don't know, but I was definitely in shock. I asked my sister, "Can you look up primary pulmonary hypertension on the computer for me?" I was still in the hospital. When she read the outcome, it was like everybody was dying within two years. I said to her, "That can't be right." I refused to believe it at the time. I went home and they told me I had to do a transplant. That's when they transferred me over to a different doctor and he decided, "Don't do a transplant yet. We're going to try you on therapy."
That was 11 years ago. I started therapy. I started oral therapy and within six months, I was not getting any better. The doctor put me in the best thing they had, which was IV therapy. IV therapy literally gave me my life back. I was able to breathe. I was able to live a pretty much normal life, except for swimming, and I can't really run yet. Other than that, I can do everything.
I would say learn everything from the medical terminologies to the simple things. Read everything you can. Educate yourself. Educate your family. Educate your friends. It's very important that everybody around you knows what's going on and create a network of support. Without support, you're not going anywhere. You're not going to make it. It's super important for everyone to have support.
Peer support is very important because a lot of people are diagnosed. I remember when I was diagnosed, I felt socially isolated because there was nobody in town that I thought had the same thing that I had. I am a part of every online group there is. Whenever newly diagnosed patients come on and they have questions of the same exact things that I've done in the past or experienced, I can go on there and say, "Hey, this is my experience or this is something that you can try and this is how it worked." A lot of times there are very grateful. They're like, "Oh, well, I didn't know." It's an eye opener. It's definitely helpful.
Besides being a support group leader, I think everywhere I go because I'm always red, everyone's saying to me, "Why are you always red?" I'm living on a pump, which my blood vessels are dilated 24/7. I think that's probably my biggest way of advocating for PH, yeah. When doctors see a patient who's not in good shape, the first thing that they jump to is that you're going to die, and I don't think anyone has the right to do that. I think with the right care, therapies, treatments, patients have the opportunity to lead a normal life and live many years. PH patients are now living 20-30 years and they all had I'm sure at one point death sentences.
A lot of times when patients are diagnosed, doctors, they're always pushing therapies, breathing therapies, physical therapy, all of that, but nobody ever pushes psychological therapies. I think that's something that we ought to start implementing in the PH community, psychological care, because that's a big thing that a lot of patients are dealing with that are not addressed properly. When I was first diagnosed and they gave me this short lifespan to live, I was like, "Okay. I can't do much." Then, meeting friends who were living with PH, Sean Wyman, who recently passed, he actually pushed me to go back to school. At the time, he was in college and he told me that there's no reason that I should not go back.
I said, "You know what? That's what I want to do too," so I can learn how to deal with not only my situation, but to help others overcome what they were dealing with as well, especially in the PH community.
My name is Alleena and I'm aware that I'm rare.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
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Crouched over the kitchen sink, I surged with a repressed groan, stifling the convulsive impulse as tears broke free; I cried, uncontained, momentarily unaware why. I was so used to keeping it in, I had become disconnected from what I was actually feeling — ironic, because what I was feeling right then was disconnected.
I did not recognize my body. This vessel in which I was contained made no sense to me at all. It responded to my thoughts and commands, but it felt completely foreign. Looking down at my arms, my hands, my fingers, I recognized nothing. They could hold the dishes I was washing, turn the knob on the faucet, even scrub with the brush. But there was a clumsiness about them, an awkwardness that was hard to explain or rationalize, except to know immediately that none of that was part of my body. None of it was Me.
Such is the effect of bodily changes that occur under cancer treatment. I was experiencing a slight case of dysmorphia, that feeling of certainty that you are not in the right body. It passed, but the emotional impact lingered.
Let It Bleed — My Skin Has Never Been Thinner
My t-shirts are all dotted with spots of dry blood. My fingertips are split and refuse to heal quickly. When I wash my face, it looks like I scrubbed with barbed wire. Three-plus years of cancer treatment has left me a bit raw.
I wrote those words several months ago, in what seems like another life. The drug I had been taking affected epidural cells and caused a rash that covered my body in acne. It was my first “targeted” therapy and the first treatment to follow my chemotherapy. At the time, I did not realize that treatment was not working — nor did I anticipate that the rash I was describing would be so totally eclipsed by the one I have now. The flip side now is that, while the rash I just endured for eight weeks has been far more viscerally gruesome and painful, the treatment has also offered clear benefits far exceeding any of the protocols used to this point.
Hindsight is always interesting. I recall thinking how horrible my afatinib rash was back in the waning months of last year. Now it seems quaint, the way it came in spots, slowly spreading, and offered its meager challenges in management and mitigation. My dermatologist did her best, offering a range of medicated salves, antibiotic ointments, and even an anti-fungal shampoo, all in an attempt at navigating uncharted territory. Some of it paid off, too; my afatinib-induced rash faded, became more manageable, and quickly vanished once we realized that treatment had failed and the pills were stopped.
By the time I had gone through a second failed targeted therapy and jumped through the hoops for my current clinical trial, my cancer had grown considerably. Not only had the primary tumor increased dramatically in size, but there had been substantial spread in my left lung (and presumably throughout the body). I was ready, determined even, to hit the cancer hard with my treatment. Agreeing to the maximum available dose appeared like the logical choice. After all, I was still relatively healthy and in good shape, in spite of my recent weight loss brought on by radiation and the stomach flu. I was ready and determined to take whatever they were able to give me. But I wasn’t really prepared for that rash.
What If?
I have already described how painful and hideous the first month was on my treatment of poziotinib. But this was balanced by the drug’s efficacy, offering me the first, unwelcome taste of that demon, Hope.
I began to think, what if I could stay on this drug? What if it can kill the cancer entirely, keep it away, maybe even… cure me? What if?
Then, of course, the second month of treatment was every bit as difficult as the first. In different ways, it took its toll. The rash slowly stabilized, at least insofar as it was less painful and more predictable, but it continued to spread. The itching was still crazy — I was going through a pound of skin cream every week in addition to various lotions, oils, and a steroid gel. It seemed borderline insane to spend an hour of my day moisturizing my body, but that was what I was doing.
My body was also fighting the rash consistently, burning all my excess calories, and I continued to lose weight. Touching my skin, it felt hot, but giving off all that heat made me chilly even on a hot, summer day. Every day, I would try to eat extra, but it seemed like I was dieting. Later, there would be nausea, too; vomiting from the combination of drugs I was taking, and adjustments to make everything work. But at first, the loss was strictly tied to the fact that the skin, being the body’s biggest organ, was just using up the most energy.
My hair and scalp no longer hurt so much, but the scabbing and itching was giving way to a heavy amount of fall-out. Even my beard was beginning to thin as the hairs would scrape away with the crystalized gunk accumulating around the follicles. And those “what-ifs” spurned by Hope were giving way to the “what-ifs” of failure to maintain the treatment. What if I could not continue doing this? What if I stop and the cancer grows back more quickly than ever? What if there is nothing that will ever be this effective again? These are nasty thoughts, but they haunt me when I look in the mirror. Even now, after two weeks of rest to reduce the rash.
Reassessed
When I went in for my eight-week checkup, it was clear that I was suffering too much from the rash. Even with the antibiotic, I was taking to mitigate its effects, it was covering me from head to toe, and I was in constant discomfort. My oncologist took one look at the extent of the spread and said I had suffered too much and needed a break.
I also had this unexpected development of frequent night cramping in my legs. I have had this on occasion as long as I can remember, waking in the night every so often with a cramp in my arch or my calf, massaging it out and going back to sleep. And I have had restless legs for years, too. But suddenly, I was waking in excruciating pain, one or both legs cramping up at the same time, both the calf and shin, the ankle, the arch of my foot, even my toes.
The joints would twist, the muscles would seize, and I would hold back tears or a scream and try to wait it out. Five minutes. Ten minutes. Two or three times a night. Four, five, even six nights a week. I was put on ropinirole, a drug for Parkinson’s disease and restless leg syndrome; it took a couple of nights to kick in, but it made it possible to sleep again. It also made me nauseous, even more so when combined with the antibiotic I took to fend off the acne. But most of that would be dealt with over the course of my break. Two weeks.
During that time, the rash did begin to clear up. It went from a “stage 3” (really, really bad) to a “stage 1” (not so bad). But I also developed a persistent and increasing cough that was leaving me short of breath and even more tired than before. It has been determined, at least for now, that it is caused by sinusitis — my consistently dripping nose — and is being treated accordingly, with new antibiotics. And while I do that, back into the breach I go.
At least we are doing it with a dose reduction. The dosing in this trial is being done in increments, and I’m knocking down from the maximum of 16mg to the next tier of 14mg, hoping that the small difference in dose translates to a large difference in the persistence of the rash. And then we are back into a monthly routine, taking my daily pills and getting reassessed as we go.
And the lesson of this tale is…
But I skipped the best part of the story, the reason that I am continuing after my two-week break. After the first four weeks, there had been a marked reduction in tumor size, easily on par with or exceeding the initial three-month blast of chemotherapy I completed back in 2015 before going into my long maintenance run on Alimta.
The second four weeks of poziotinib, enduring the rash and all, resulted in an even more amazing continuation of that reduction. While I don’t have a picture of it this time, the tumor was dramatically smaller and had begun to peel away from the chest wall where it had been previously attached. Now, it is a fraction of the size from the last scan — still present, but greatly diminished. And the rest of the lungs look more clear than I have seen them in years.
It’s ironic, I suppose, that the majority of my hair-loss has occurred during the two-week hiatus I took from treatment to clear out the rash. I expect that I’ll continue losing more now that I am re-starting the program, even at the reduced dose. But it feels strangely right, maybe because of the summer heat, maybe because I’ve just been getting used to the feel of my scalp, and it certainly is a small concession to make for such promise.
Enjoy the gallery of images from my second month of treatment!
This was when my toes still looked good… But I did have to stop wearing closed-toe shoes.
It seemed like it was healing.
The typical result of combing my hair.
Scalp!
This is what my lap and desk look like when I scratch my chin.
The chin after being scratched.
Near empty one pound tub of skin cream.
Oh, bloody scalp!
The mustache becomes patchier and patchier.
Where is all the hair going?
Ahhh, the hair was going down the sink.
This is mostly my skin and hair from under my desk.
And this is mostly my hair and skin from the bathroom floor.
Combing again…
The hair continues to thin.
But it is growing back slowly on my hand.
And growing back slowly on my fingers.
Time to just get a trim.
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This Is Not My Body Crouched over the kitchen sink, I surged with a repressed groan, stifling the convulsive impulse as tears broke free; I cried, uncontained, momentarily unaware why.
#adenocarcinoma#Blogs#Cancer#chemo diaries#Health#Lung Cancer#positive approach#Positivity#Poziotinib#Rash#Targeted Therapy#wellness
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