#i wanted to be more creative but couldnt think of anything tune in next time for when i make one with reigen (hopefully)
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Good morning
Start your day off with cafelutsa from the only Boy ever
#im sure its morning SOMEHWERE in the world#mp100#mob psycho 100#shigeo kageyama#mob#romanian stuff#romanisme#uh i think those are all of my tags k cool#last time i posted a ro meme i added context so heres some context:#the pic literally says hes offering u a cup of coffee and asking if u accept#its supposed to parody the kind of memes moms on facebook post. theyre weirdly popular rn i think theyre fun tbh#i wanted to be more creative but couldnt think of anything tune in next time for when i make one with reigen (hopefully)#my stuff#my memes#i swear i had tags i just forgot them i dont post og content like fking ever#this thing wasnt even supposed to see the light of day its like 1am and i felt like rambling in the tags of a post thats the real reason-#- this exists rn#hm should i also explain Shigeuț? nah im lazy k gnite#cine te a intrebat
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How It Sounds Is The Only Thing Important
I LOOOVE bad music, or at least more specifically music that should be bad but isn't. Theres something about finding new music, especially when it comes from forming new connections with people that put you on to things you wouldn't otherwise have found by yourself. Weird eclectic music holds a special place in my heart, theres a local university radio station that my friends put me on to that will play almost anything which makes tuning in such a mixed bag. You can tell within seconds whether the DJ is playing something skippable, something you would only listen to by yourself, or something you'd feel comfortable playing around your friends. Bird noises at 2am while youre smoking in a parking lot, songs in foreign languages, grating metal (the material), old classics, and experimental music all come over the airwaves to give you something new each time you listen. Songs that hit the sweet spot where they SHOULD sound bad but don't, take all that you are familiar with and flip it on its head like an abstract painting in a art museum. They take everything that should be conventional wisdom of how to make a song and push that a little bit further. A good singer or vocalist? Dont need that. Instruments? If you're creative enough you can make new sounds that other people who are only comfortable sticking within the confines of “traditional” instruments would never dream of and could never achieve. Below isnt the song Im reviewing, its an orchestra that plays with vegetables that I think is relevant enough to link it.
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https://www.bbc.co.uk/music/articles/c127c7d1-a459-4f82-8c2d-38e27b940b72
If you think only think about music as something you can “recognize” instead of something that just sound that sounds good you’ll be limiting yourself creatively. If you’ve ever listened to a song in a foreign language that you dont know you might not have any context for the lyrics but they still can sound good. Regardless of whether or not it could mean something if you did learn the language if you dont, the listener can only comprehend it as something audibly interesting. You dont need to know music theory to create something that sounds good.
Alright with all that out the way lets get to the song, Debbie Debbie by Gary Wilson.
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Gary Wilson looks like someone who’d randomly offer to give me shrooms to which I’d know with a certainty he couldnt be an undercover cop but would still be someone you’d be initially weary of. Despite this his catalogue is mostly about kissing girls and going to the pool but it takes a lot of genres that are familiar to you and expands on them in an experimental way that only someone weird could come up with. Everything about this seems almost off key or should be. A weird vocalist that you can tell isn’t renowned for their ability to shift between ranges with their voice is coupled with instruments that keep your interest by hitting a flow that begins to overshadow the vocal shortcomings only to change it all up with notes that almost sound like the musician is randomly banging away at their instrument. All this comes together with lyrics that don’t really have to make sense to make a song that still has moments that shine so brightly its amazing and could inspire the next musician who wants to stretch their comprehension of what sounds good. Thats what I like most about weird music, it can make you annoyed for most of a song only to hit a stride that solely manufactured chaos can bring out that makes everything worth it. And if someone more talented than myself found that they could take that and sample it to form something new and beautiful. All these factors contribute to music that make your ears feel emotions that flow between bliss and aural offensiveness. Those are the moments you cant get just by thinking about making everything perfect.
#weird#weird aesthetic#gary#wilson#gary wilson#music#music review#review#eclectic#experimental#new#vegetables#vegetable#weirdo#disheveled#shrooms#opinion#opinion piece#genius#mushrooms#weird music
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yeah for real when you’ve got a Scene in your head that would make more sense as a comic, you do get the whole advantages of using that format....like the dialogue of course & being able to show the changes between one panel & another to show movement & actions & things & time passage in general. and getting creative w panels is another tool you have to affect pacing and even tone, & unlike stuff like tv/movies, you get to change the shape & size of panels, which is useful imo for not only mood/pacing but also u can zoom in on exactly what u want viewers to look at. like having a lil panel just of some Detail like a hand or piece of paper or whatever. comix can jump around different shots without adding tension the way it might w film...idk i personally find it pretty fun to work with & it comes somewhat naturally to me to picture something as a comic in my head, though i’ll picture things like A Film just as much lol umm anyways yeah i think its great just to mess around w ideas in comic format & it can be rly good for making a scene with feeling, even in a short one... and i like to show emotion in movement and expressions and all, so that works out. like you can show a bunch of different facial expressions & show the slight changes & all....& show how ppl react to someone else in the space & move around each other.....its neat b/c imo emoting is generally a lot more in the subtleties of things. like you could show someone’s feelings exclusively through direct shots of their face but, realistically, ppls feelings are in things beyond their expression at any one point in time—its like, if the expression is subdued or exaggerated vs the essential content of the expression alone, their posture and how they move, what they look at, what they say, subtle shifts in their face or body as they react to something new—all these little sorts of behaviors ykno? not to downplay facial expression coz thats p much always key, and like i said its my fave...but when it comes to trying to portray stuff w emotional impact, i like to think of a lot of other details that imo can lend a lot of visual and emotional information alike....plus just the more stuff you’re drawing the more you’re giving a scene to work with... bgs and everything can set the mood & also just give context to a scene & even i’m getting better about like, making even simple bgs sometimes. anyways not like im an expert in anything at all related to anything but i have been Drawing W Feelings In Mind for a while i guess lol and yeah about characters who are usually carrying some form of tension (symbolic like displayed persona vs their actual internal, &/or more actually feeling tense like irritable and all lol) still having tension be relatable even when they’re happier or more relaxed, & thinking about that in a drawing—for me anyways i just think of that as part of trying to show their personality in every drawing. like i was saying w the example of when i nobly set out to give ppl another pic of kip fucking, even if he’s totally chill w the situation, it’s relevant to me when drawing it to think of the fact that he’s usually Not getting to be chill with Any situation, and have that affect how i portray the state of finally getting to purely enjoy himself in a major way. like i suppose thinking abt this just now, i always make a point of drawing him actually physically tensed in at least some small way, i think as part of imagining how the like usual constant presence of internal conflict plays into the reaction to its absence. like how it’s not an on/off switch where a person who has to live w that all the time has some version of themself that gets to Be Normal and suddenly not have to think abt how that feels. like even tho he’s presumably getting a break & a good distraction from that stuff, i think of how he wouldn’t suddenly have a new set of behaviors to access & isnt like, suddenly a completely different person, & how there could actually be a pressure in enjoying urself b/c of the knowledge of just how special that is & how much u should savor the moment. like, even in relief there’s a tension. sidenote especially if you think you might not get such a great experience again—feeling fantastic can have a painful edge in that case & can even be really heartbreaking if you don’t know when you’ll next get to feel that way again. anyways Back To Fucking lol like i said i think in that relief i’m drawing in a little bit of desperation in the knowledge that his moments of relief from feeling all hyperaware and self conscious and conflicted and what have you etc are rare, that i show by giving him a little edge of intensity in some way or another. me drawing kip as sexually desperate lmao owned... but truly that’s just a little piece of always trying to show a chars personality no matter the emotion or action or situation or whatever!! like back in the day i said something about how two people will show the same emotion differently in their facial expressions even if most ppl have the same “basic format” to it...the difference in how ppl emote & react to things shows their personality (so does other stuff obv but relevant to emotion specifically...) & so say if i draw the same expression for one character as i did another at one point, it would have a different meaning for each of them in the context of their differences in personality...one person’s smile has a different meaning from another person smiling the same way, and all. obv thats most relevant in characters who r dramatically contrasted in their outward behavior. like i talk about all this like its a science or i plot a whole chart before ever making a drawing but mostly i come up w some image or scene in my head that seems good to me & then sometimes barely even plan how to put it down. or other times i do think abt it a lot, but even then i’ll usually do last minute tweaks. it’s really mostly instinct imo, i don’t know if it’s true that i’m a bit overly tuned in to other ppls emotions & good at reading even really subtle shifts, that might be part of it, but even if it wasnt true, emotions are usually a p instinctive thing. but ppl can communicate the same feeling in totally different ways, including ways that AREN’T instinctive to you, so imo its also good to like, also treat it like something to consciously think about. and like also just yeah in media you already like that already seems emotionally impactful, its cool to pay attention to that & keep it in mind & try to imitate & stuff. and like i said about it not being a science, i talk abt putting emotion & a characters personality into everything, but its not like i think of anything i do as being overly complex & i expect anyone to look at any random drawing of mine & be able to fully reverse-engineer a characters entire personality from one pic lmao....i don’t pretend anything i make is some work of genius that contains Everything. but it at least contains something. & maybe if u had a few pix to compare, it wouldnt be hard to deduce personality from it. like, even when someone’s acting different from their usual personality, it’s still the same person, & how they usually are changes how their behavior reads. like for lars to be relaxed and casual around other ppl suggests a higher level of comfort & trust than average, specifically because of the fact that u know his usual behavior is to be more stressed & in one way or another defensive around others. also i like to try to draw personality in e v e r y t h i n g b/c all of this is propaganda of “my fave & if you don’t like it get out” lol......like each pic is its own lil love letter what with how if i didnt have a certain level of fondness for a character, then i couldnt be effed to draw them in the first place. so i want to be like, look at the way this character is, which is why i love & cherish them.....and like you said, with a basic ability to draw a recognizable form & an interest in making fanart with that ability, you’ve got everything you need to make the content you wish somebody else had already made for you to look at. and with choosing a lot of suffering characters to be fond of you have plenty of motivation to want to draw them having a nice time. or at least feel loved and appreciated or something. all that stuff hmm i can’t remember if i had anything else i meant to get at but yeah lol....Feelings
#took me a minute to finally get around to this just coz its been times of having words in my mind but not as good at putting them down#plus the usual terrible focus + distractions + naps
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a quick sum-up of che’s future career plans, bc reasons
im halfway through the dive!! anime show that came out this summer season, and i’m having a lot of thoughts, and plus i finished going through all the footage i missed today of skate america while i was at a bball game, and it’s made me realize different things i guess?
it might be mid-long length so its going under a cut, but to gain intereststart off, this is all about my desire to be an athletic trainer for the usa olympic center at colorado springs, co !
ive been an at(now when you see that abb. you know what it means hah!! not assistant teacher hmm) student since my freshman year of high school, and i’ve loved it a whole bunch. back then i was set on going to columbia U for their writing program, and i wanted to major in graphic design afterwards/during/it wasnt super planned out i was a fr. i didnt know what bfa or mfa stood for yet. it wasnt until end of sophomore year than i thought about being an at for realsies.
but i also still loved gd. so there was a confliction there.
junior year i took a break from working volleyball in the fall and did my one and only year of football and it was terrible primarily bc the team i worked with didnt know how to function as a group and half the group were selfless bitch whores but like thats another storyyy, secondly bc i jus really discovered i didnt care abt football at all. it was mostly for the experience and i gained it and i liked it bc i hung out w a lot of people from helping out w varsity (i was one of two our of the five juniors that had been there since my fr year and was only on jv bc it was my first year w football, but one of the seniors had to work a bunch so when they needed an extra person i was the one w the most experience so i was w them a lot,) point was it was fun!!! and you have fun w ppl you like that you dont work w all the time and i shouldnt say fun bc lots of times it was awful,
basically! it was fun being w the varsity trainers which were the seniors and the other junior that had been around since fr year. volleyball was fun but it had always been a one-at-student-per-team sport , so it was different jus being w other ats that shared the same team and not the same sport(which in the us is made up of at least three different teams, a fr,jv,and varsity). it was a more open environment and so it inspired a lot of talk with the at grad students we had that semester (we got 3-4 every semester in a partnership w the D1 uni in town, it was always cool to hear stories from them!) and anyway i remember talking w a couple of the grads one practice and we were discussing all the different occupations athletic trainers could have, and what they wanted to work with in the future, and the topic veered towards professional sports and the olympics.
i thought it was really cool when we were talking about it, and then we got busy and it flew out of my mind. i dont remember when it came back and became a focus, but sometime before my senior year, i had decided i wanted to work at the olympic level.
real quick i mentioned gd and the struggle, so to bring that into focus, my junior year i took a whole bunch of different tech classes (gd&i, compsci, webtech) and in one of those, i had the opportunity to go to a ... i cant remember what the term was for it, but it was kinda an event for gd students and it had a little competition and stuff, and it was really fun! nd you got a lot of info abt the community college hosting it and i learned their program was really good, so the gd versus at internal struggle continued, and i remember talking to my sponsor teacher (she actually taught all three of my tech classes that year aaa i loved her) about how i didnt know what to do and shit and i dunno what she told me but like, i think she was trying to be encouraging but she basically said it was up to me, like she didnt try and nod me into a direction, that i can recall.
so SOMEHOW bc i honestly cannot remember, by senior year i’ve decided that im gonna jus fuck it and pick BOTH and double major in gd and athletic training. AND i had it all planned out, where i was gonna get a degree in gd and open up an online business, and then go into a masters program for at and then enter into the olympic field.
by this point creative writing is still cool and a great hobby but i couldnt possibly double major AND have a minor that’d be too much. id still love to take a cw course tho one day.
basically a buncha crazy stuff happened that first semester but by winter break i had an acceptance letter to a uni a couple hours north of home with a good accredited undergrad program (accredited basically means you graduate w a masters in four years so its fasttracked which woulda been great but uh..) and by the time i found out that next semester that they were doing away with the accredited program i was already too emotionally invested to consider panic-switching(panic bc it was february and id already been admitted hah...) but i decided it’d be okay. basically if you dont remember/werent around one of my school’s head ats died in a car crash died around early october ‘16. she went to undergrad where i go now, and i’d talked to her about it september that semester wondering if she knew anything abt their program and uh surprise, she’d done the same program small world. after the funeral in november and a ton of thought i applied there. (november was.. crazy in general last year. rly crazy)
may was when i started adding on sports to the future olympics job, bc i started thinking about it and after finally getting a friend to watch yuri on ice, he started making his was through all of sochi’s figure skating stuff, and then the 2010 vancouver olympics, and i decided i wanted to recap a bit on that too.
the 2010 olympics was really my first experience with figure skating. i’m a west texas gal and so theres not a lot out here to get exposed to, so seeing these best-of-the-best class sports was fun, and the earliest experience i can remember of such. i was in fifth grade so i dont remember a ton, but i do remember being captivated by korea’s yuna kim, who won gold that year in fs. shes an fs legend at this point, so if you’re into figure skating and don’t know who she is, go look her up. you wont be disappointed.
in 2012 was the london olympics. i remember a lot from it, like watching the opening ceremony with my parents and seeing the queen jump out of a helicoptor(which is like,, still cool to this day wow) and being fascinated my michael phelps and all the swimming he did so grandly. it was also my first real exposure to diving. the oldest i could recall anything abt the sport was at a pizza hut somewhere.. in town i think, and i was w my best friend at the time and my mom was there so i think maybe we were on the way back from the lake??? sounds right, i think. and we were talking abt how i always held my nose when i went underwater bc i didnt know how to not get water all up my nostrils and be underwter(and i still dont to this day aha) and she mentioned like, joining a diving team would be cool! would help me get over it and all! and i like recalling it dunno what she was talking abt bc we lived in dirt city nothing so i highly doubt there was or is any sort of diving sport happening. swimming, yeah maybe, there were lessons at pools and bodyworks areas around town, competitive teams im not sure tho, but not diving like at all so??? dunno.
so my next and technically first real experience with it was watching the london olympics. and i thought, wow, this is so neat!! i watched from that one day like the opening events, and i think i was old enough to search online like yea i had a laptop by then so i looked up the schedule for the things i wanted to see most of, and i ended up watching i think most of the diving events (i missed a couple for.. archery, i think? maybe?) and absolutely loving it. iunno what it was, maybe something i never thought i could do?(bc not hold my nose?? while i dove???????? scaryy) but i enjoyed it a bunch.
i was older when sochi was a thing, my 8th grade year. i was able to appreciate things a lot more. when i tuned into events, tony hawk and snowboarding were the main focus, but figure skating was on a lot as well. i had a tv in my room by that point, so if i didnt like what was playing on the main tv, i could go watch another event. i learned a lot of names and faces through that, and so while my bff was watching it our senior year if i was with him id point out skaters and their nationalities and stuff, like yuzuru hanyus always been a modern day household name w figure skating, but i leanred abt him BECAUSE of the sochi olympics, and he was one of the ones i’ve never forgotten. i really really liked it, so much that i watched worlds after, and around the same time my fr year, i tuned in to just the worlds championship again. i didn’t pick up trying to watch grand prix(which is their regular season, for those unaware) season until my junior year, and most of it was day-or-two-late videos from youtube, since the ice channel i think it a paid-for thing (i still dont know much abt it hah) and nothing was on tv otherwise, aside from the skate america event. but since that first time after sochi, ive always been around watching worlds fs near the beg of each year. i’d familiarized myself by senior year with the fs world, and actually,
early (i think march?) of my junior year, i searched up trying to find a figure skating anime at the time. and what did i find?? ginban, the only figure skating anime at the time. i watched like maybe all of one episode, it was abt a girl who shared her body w the ghost of a former figure skater while she was competing in events, and it was.. okay? lackluster, in the animation dept, but it was a 2005 show so.. yeah.
so after that i was like kk that wasnt good lets find another. and i didnt. not yet, anyway. instead, i found an announcement for violet evergarden’s animated adaptation, and yuri on ice, a realistic adaptation of the sport of figure skating. thats bolded bc its important. i found that shit abt yoi before it even had a promo poster, certainly before the pv came around that got everyone hyped up. i found it bc i was looking for figure skating in the first place. in fact, i think when the pv came out and got popular, i didnt even relate it to the upcoming fs anime i’d read about previously. it took me a bit to connect the dots.
watching yuri on ice at the same time as the gp 2016 season was surreal, but really interesting. i got my bff into it before the second to last episode came out, and i only remember that bc he finally showed any interest when he found something on twitter abt it being gay (newsflash/// hes gay, and before yoi his fav show was no6 bc that was as close as it got. he still rly likes it, we both do, but his solid favc is now definitely yoi. representation matters and all) and was like well now i HAVE to watch it and i was all yes it ends soon so pls. and he watched it twice in a weekend, and thrice before the finale came out, and then a few more times after that, iunno how many times but certainly more thn i have(i went back after the .. maybe ep 10? w/e ending had the after party reveal that changed everything, so i went back to analyze everything before the next ep) and between the week of 11 and finale 12, he started watching the sochi fs competition, and then the 2010 after the show ended w ep 12.
seeing this great fs show and getting a friend into the world of figure skating really renewed my love for it all. before the semester went out i went back and watched the reruns of the sochi fs stuff. and by may i’d decided i wanted to cosider that to be the sport i worked with.
with diving, it took a similar twist. in the form of the rio 16 olympics. i was all over that shit, i downloaded an nbc app on my phone so i could watch events live while i traveled with volleyball to a tournament in dallas and while i was at practice w them at home and generally jus away from the house and a tv. i planned that shit out had a schedule and everything for what i was watching live, and a lot of it was swimming, but a whoooole lot of live stuff was the diving.
in the hotel room in dallas the tv would always be on to w/e olympics events were airing at the time, either track or diving tho, one or the other, or recaps. quite a few girls ended up in the room in the evening and we’d all do stuff and watch in passing at the same time, and it was suuuuuper fun. watching the chinese women perform flawlessly and walk away w all the gold was fun, but finding a good commentator to actually say such was a disheartening challenge( one of the most memorable moments w live commentary that year was hearing a woman say of one of the chinese ladies that she’d done better before, after they revealed her personal best score ever like rly cmon be unbiased and jus passionate abt the sport youre covering pls.
ive always been super fond of the diving scene. it may not be as much as fs, but honestly, i wish i grew up in an area w a diving team now, or wish i could try it out now, bc thats how much fun it seems. i still wanna go up to the big city like 30min away from uni and learn to ice skate in the civic center there, but hands down if i had to pick a sport to join tomorrow or die i’d pick diving.
so also by may, and throughout the culmination of senior year, diving was the second sport on the olympic to-train-for list. you get a five-year contract w the olympics, now i think it’s usa as a whole and i think its by center so say, if i get a job in colorado springs i cant apply in another five years to chula vista or even like lake placid, but iunno for sure. the five-year thing is involved somehow bc i’ve heard it from a physical therapist and trainer-that-works-in-a-sports-med-clinic duo in one body named sarah, who’s been contracted out from the clinic by my high school since junior year also, bc she knows people who’ve worked w the olympics, and then another from church that worked w olympics that knows my family uh iunno how well but i know of him, i think he also works in the clinic as some sort of on-hand surgeon but a diff person than who sarah knew. so its five years somehow and then i’ll take my bfa in gd and open my online business and do that from a studio at home and look after my owl/cat pet combo.
since may, it had been ‘olympics, with either figure skating or diving’. and it stayed that for a long time. now, since a couple weeks ago, and this is again while gp season is happening for fs, its diving. i wanna work w the usa olympic diving team as their team athletic trainer, and i cant do it this summer bc i have to have completed two years of uni, instead of a certain standing, like be a junior, but so NEXT summer, before my senior year of uni, (i came in a sopho so 6 sem only ah) i’m applying for an internship at the center in colorado springs, and that’s the team i hope i work with.
now i tell people, diving, but if i get offered figure skating, i’ll take it, but diving is the goal now. if i love it and wanna continue professionally, great, i can do that and have an online gd shop. and if i decide i want something different? i’ll work olympics and then join w a professional-level figure skating i actually dunno how it works. coach, and their skater in turn. coach, with multiple skaters under them. a culmination of diff usa skaters. w/e, something in the professional fs world.
and thats uh, thats it! dive has been so much fun to watch, and i realize i talk a lot on here about working w basketball and being an at student in general and the vast majority have no idea what i mean, so hopefully this clarifies. thank you!!
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A Winter CSF Leak Update
I’ve received many very similar emails and DMs during the last few days.
“Jodi…?” the messages start out. “I don’t want to bother you but it has been a long time since you posted, and I’m really starting to worry.”
“Jodi: blink twice if you’re ok?”
“Jodi, here is a llama walking into an optometrist’s office in France. I thought of you! Also, ARE YOU OK?”
In a world of easy access to people’s inboxes, readers have only been a pleasure, a virtual cloud of warmth and never a burden. And when so many of you ping at once, I know I am due for an update. In this slow bedrest state, life feels like a woozy Groundhog Day. I love the filaments that connect me to so many of you, reminding me not to lose track of time entirely. I am so humbled by your care.
***
When I was a kid, my mother said my first word was a word. Instead of continuing along those lines, apparently the next thing I started said was a sentence, “see car go by.”
“And then,” my family jokes, “she never stopped talking!”
Being at a loss for words is not a problem I normally have. But yes, I have been very lax at updating because it’s been hard to find words for what I’m feeling.
A Leaky Anniversary
January 26 was the one year anniversary of the patch that sealed me last year. I had a really rough and heart-wrenching time reckoning with where I am on this anniversary. Instead of scaffolding off the slow and arduous recovery that followed the anaphylaxis and procedure, I am in bed.
Again.
For many months.
If you’re just tuning in, the CSF leak that sealed up and was healing reopened because I sat on the ground. Gingerly. Not even enthusiastically. I went from 4-5km walks a day, to no walking in record time.
At first, I was in extreme denial that something so small, so inhibited could blow out the scar tissue that had months to form. But one by one, each symptom I had in 2017 came back. I keep detailed daily logs of every symptom, supplement or mediation, and food. I couldn’t deny what I was experiencing.
Then, the grief. The anger. The deep sadness, the kind that suffocates all hope.
We learn about the “stages of grief” in popular culture, but what happens when they just cycle over and over? When you think you’ve come out the other side and can breathe again, when you tilt your face up at a brighter-than-you-remembered sun, only to find that you’re back in the dark?
***
My body, when I releaked, was in far better shape than the initial leak in 2017. Labs last summer showed improvements and lower inflammatory markers. I tried to stay positive. My friends and family came to visit. My inbox overflowed with llama photos.
As fall turned to winter, I saw some wonderful improvements. I stopped having the “brain sag” of my brain smushing into my spine due to low pressure. I moved into “high pressure” again, which is usually a symptom of the leak starting to seal over — the extra CSF produced while leaking backs up against the hole now tentatively closed. I started on the meds to lower intracranial pressure to prevent the fragile seal from bursting due to pressure. I felt cautiously optimistic.
And then a few weeks later in mid-December, I had an awful nightmare in my sleep. I remember it perfectly. And I also remember what woke me up: the excruciating pain in my back.
After an epidural blood patch to seal a CSF leak, the discharge instructions note that there’s to be no bending, lifting, or twisting for many weeks, but also that coughing or sneezing can blow out the patch due to intrathecal pressure. Many fellow leakers have blown out their patches — a clot or glue covering the leak temporarily while your own body can heal with scar tissue underneath — from constipation (pushing), sneezing, coughing, laughing.
Suspend your humanness while you can, the unsaid instructions whisper. Don’t do anything that can compromise this seal.
In my case, this nightmare I had blew out the seal and I was back to square one.
The Roller-Coaster of Ups and Downs
It is difficult for me to express the crazy-making nature of this condition.
No imaging sensitive enough to show a leak in many cases, including where it is located in the spine. Many people are chronically misdiagnosed because their imaging is normal. Normal imaging, the leak experts have learned, does not exclude a leak.
So the best way to know if you are leaking is via your symptoms, which only exacerbates your anxiety about what may or may not be happening in your body. It is a very tough, very exhausting dance to undertake. I have struggled the most with this balance of attempting to stay in touch with my body while also uncurling my clenched hands from the eventual outcome. Science tells us that focusing ad nauseum on our pain can magnify it in our minds, hence the usefulness of mindfulness and other meditation.
When your condition requires a focus on pain, and you also know you need to stay equanimous to heal effectively? That is a total mindfuck.
***
In mid-December, a close family member took a turn for the very worse. The funeral was around Christmas. I was too unwell to attend. Combined with the Re-Re-leak, I spiralled pretty solidly into a very bleak place.
If I’ve learned anything in this madness, it’s that staying in the black hole of despair is not how you heal. With the crutches of visits and calls from close friends, someone to talk with who specializes in grief, and the tools I’ve drawn on at the worst of times, I was able to wrench myself to a better place.
But still, I am not sealed and healed.
***
I put off Duke when I re-leaked because of what happened during the last round of patching. There is a lesson about anxiety in that procedure too: in my most creative of nightmares, I never imagined anaphylaxis as part of what could go wrong.
But it did, and while they will not use fibrin glue again (suspecting that was the cause for anaphylaxis), I’ve written about how my body seems to be stuck in that very reactive, anaphylax-y place. My mast cells degranulated all over the place and LOVED it. They seem to enjoy doing so again and again since, not only to foods but also smells – and even hot showers.
Given how pear-shaped things went last time, I wanted to give my body a long chance to seal before committing to another procedure. When I did seemingly seal up in November, I was so thrilled. It didn’t (and doesn’t) matter to me if it takes a long time, though my parents have the patience of saints. If slow and steady was the way, I was ok with that as long as I sealed up.
I will be honest: my turbulent December and January have tested the limits of my capacity for grace and patience and hope. I have been on bedrest for quite a few months. While I’m not bored, the pain levels are pretty unconscionable and keeping my spirit up has been a mighty challenge.
From my own calculus: if I do need to go back to Duke, I want to know I gave my body a full shot.
That way, if – IF – things go awry again during a procedure, I won’t be able to look back and say, “should have given it a bit more time.”
***
So where are we now? It’s February, and almost at my favourite holiday in the world: Vietnamese lunar new year or Tet. An amazing reader named Wendy just sent me a pic of lamp in my name from her family’s temple in Malaysia, a New Year wish of health and prosperity. Lunar new year was a time for reflection and cleaning and cleansing for my years in Asia, and I’ve kept that spirit during my return to Mexico and Canada. New Year starts in a few days, and with it I hope a better climate for healing.
I have seen such progress since the re-leak, progress I didn’t see when first in bed in 2017. I keep flipping into high pressure as it starts to seal, then unsealing. It may be that I need intervention after all, but I still have hope that the JodiDura-that-could comes through this winter. I’m eating a strict and healthy diet, meditating, visualizing, consistently working to bring my mind into a better space.
If I can’t seal during the winter, it certainly won’t be because I didn’t try.
Learning to be the Tortoise
There once was a speedy hare who bragged about how fast he could run. Tired of hearing him boast, Slow and Steady, the tortoise, challenged him to a race. All the animals in the forest gathered to watch. Hare ran down the road for a while and then and paused to rest. He looked back at Slow and Steady and cried out, “How do you expect to win this race when you are walking along at your slow, slow pace?” Hare stretched himself out alongside the road and fell asleep, thinking, “There is plenty of time to relax.” Slow and Steady walked and walked. He never, ever stopped until he came to the finish line. The animals who were watching cheered so loudly for Tortoise, they woke up Hare. Hare stretched and yawned and began to run again, but it was too late. Tortoise was over the line. After that, Hare always reminded himself, “Don’t brag about your lightning pace, for Slow and Steady won the race!”
The moral lesson of the Aesop’s “Tortoise and the Hare” fable is that sometimes you can be more successful by doing things slowly and steadily than by rash action. The race (of life) isn’t necessarily won by the fastest or strongest animal, but by those who persist in the face of obstacles – including the obstacle of time.
I undertook my life in the stubborn spirit of the hare.
I went to law school straight from grade 13 (CEGEP, in Quebec) because someone bet me I couldn’t get in. I took a job in NYC because on my first day of law school, someone said, “you don’t deserve to be here. Go back to high school where you belong. And don’t bother getting a job in New York City – you’ll never succeed.” When I quit my law job, it wasn’t for a two month trip, it was for an open jaw adventure to Siberia that unfurled into a glorious and food-filled new career.
My identity for years was the lawyer who quit her job to eat soup. As I’ve laid in bed on and off since 2017, I’ve watched the travel industry and my fellow writers move on with their lives. Mine feels very stuck. I am very unused to not being able to solve problems by DOING, and it is a monumental shift in my mindset. Above and beyond the leak, my health will require a different way of approaching work.
Apparently it’s time to be the tortoise.
Tortoise pic from one of the first adventures in my round-the-world trip: the Galapagos Islands in Ecuador
I’m still feeling around the edges of what that means for me. Sealing and healing will require me to change a lot about how I approach work and achievement, because excessive doing is a surefire way to undo my progress. There’s a lot here I hope to write about in the future, about learning to get under your mind and into your heart.
About listening to your body before it’s too late.
About not necessarily taking every bet that comes your way as a life challenge.
For now, though, I don’t know what I will redefine life “as.” I trust that it will unfold in its own way. While mourning the life I had, I also feel curious about what comes next.
But first: this leak in my spine needs to be firmly sealed for me to get walking again.
***
Thank you all as always for the caring notes, the questions, and the overwhelming support and love. I am extraordinarily lucky to have such a robust army of cheerleaders around the world.
Many of you have dedicated your meditation practices to my health, and for that I am grateful. I do plan to restart the group meditations next week, on Sunday February 10th. If you are interested in joining, the first 7 weeks are here, and you can enjoy any of the meditations as the tracks are all on that post.
I have been meditating alone here, but with all that unfolded I couldn’t manage the group ones during the holidays. I appreciate how many emails I’ve received asking when they’ll restart, and I am so glad many of you find them helpful and a source of light.
I haven’t written publicly in a long time, but typing this post out with my thumbs felt very good. I missed it. And though I would still be writing if no one was reading, I’m glad to go through this very tough journey with a community like you to help make things better along the way.
Jodi
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Clinton Naik
Argh, Im so angry today.
I dont know where this anger came from, but Ive just been cranky all day. I woke up and I just felt bored, and angry because of it, and so complacent and dissatisfied. My whole life, those who are in my life, my body, my bank account, where I stay…just, e v e r y t h i n g made/makes me unhappy. I want it to be better than it is right now. I just wanted some fun activity to wake up and do this Saturday. I wanted a partner to get up with me and motivate me. I wanted a house to myself to wake up and dawdle around in whilst I still woke up. I dont want a dog but I cant let him go. I do everything I can to make sure he is well taken care of still, but at the expense of my own happiness. He is a handful. He is too active and eats anything for any reason. Hes a bulldog but looks like a pitbull, so people judge him by his breed and I can tell they look at us like we are a part of a gang or something and it really pisses me off. It hadnt even reached midday yet and the downward spiral was beginning. I dont have that much money in the bank thanks to my obsessive need to pay back things and not be in debt. Even though Ive set it aside, as in most of what I earned this payday, I still feel snowed under and I will have to use my credit card and thus in turn, pay that back in the future. Earlier I was shown a bit of attitude from Beau about sending him some money to pay back for the times hed paid on my behalf. I thought I sent enough, I cant be sure because I didnt keep track of all the times and what that added up to in the end. Just know this, I have spent well enough on behalf of him too and havent seen compensation for that - it just set me right off to notice this ungrateful trait. I gave what I had left to him. He is the one that quit his job to pursue his passions and cannot control his impulsive preference for fresh cooked food (i.e. take out). This is a personal rant that probably wont make sense. Im not writing it to make sense to anyone. Im just letting whatever needs to come out, come out. Im still pissed off. I dont feel like this relationship works anymore. I dont want to take care of anyone else except myself, maybe I should re home the dog for my well-being. I try my best with him but its just getting too much. It does not help that we live in a small place unsuitable for dogs and we make do with the space we have but its just, no backyard equals poop stops out on the roadside. Anyone reading this would probably judge me, people tend to do that, and I totally get it. I kind of walk the same line as well sometimes. But argh, I just need to complain, pettiness and all. Because Im feeling better as I do it. I had a long phone call today with my Dad. I hadnt spoken to him in ages and it was nice to catch up. I got mad though, he has a knack for not listening. Or you say something and hell say something different as if he wasnt listening. Or hell retell a story hes told a thousand times. I need to be easier on the people who retell me stuff, I just have a big ego and that ego doesnt want to be seen as stupid. Im still mad, but better. I just want to get out of here, I want to drive a thousand miles in one direction and not have to worry about anyone else or any responsibilities. I caught my reflection in the mirror, I exhaled and relaxed my stomach and it spilled out. I look like Im pregnant and my back hurts because of all this weight. Does anyone ever get caught in that pit of despair where they just cant talk. I dont want to cry for help because Im angry at every single person I think Id meet, but I most definitely need some kind of help, or something, I dont know. Conflict is the worst. I need to hold on to hope, and cut this rage in half. Sit down with it for a bit and let it tell me what it needs to. Im not mad at anyone, I truly am not. Im disappointed, maybe, that people cant read my mind, or they arent empaths so they cant understand what I feel and give me what I need. So in turn, I need myself. This is just a slump. A rough patch on the windy road to happiness. They say happiness is a choice, and okay, I choose to be happy now. I have identified my anger, I have identified my dissatisfaction with my current relationship. I have identified that what I am doing now makes me feel somewhat better. I go back and forth still, angry and okay, angry and okay. An annoying song always played on the radio echoes in my head and it only serves to irk me. Is it wrong of me to want the hurricane to come down here and devastate. If it were only me, I would be all for it. No one else would have to get hurt. Im weird like that. I feel like I have such a mundane life that anything like fire drills, floods, tremors, anything that will rip me out of everyday life, those things will liberate me and I will have something else to live for. My basic needs will be more important than my need to go to work and pay bills and expenses. That I will have to survive and experience the thrill of survival rather than crawl through this oppressive corporate world. When I had a freak out like this, mid-January some time, or February. I remember just collapsing in on myself. I couldnt speak, I couldnt feel anything good. I lay down, I wasnt even sleepy, I cried and cried and every emotion was just desolate and I couldnt get up or eat. Beau was there however he could be, but its never quite what I think I need? I appreciate what he does, in all his limited knowledge, but theres something thats missing, compared to someone who has had years in this world and lived an involved and rich life, does that make sense? I need someone, who knows what its like to suffer and have come to terms with their torment, not someone who has known anxiety all his life and not fully reflected upon it. Its not his fault though. Nothing that happens to me is anyones fault, I must remember that. I choose who is in my life, and because of how I have chosen to go about things, I have no one close to me anymore. They are overseas, and available by message but I cant bear to be askedHow are you? How are things? Because I have so little going on right now and I am just not in a mentally healthy space to hear about all the great things others are doing. Does that make me horrible? If it does, Im quite used to being horrible.
POSITIVE. Got to remain positive. Things that are getting me down is: EVERYTHING. BUT, what can I do to fix it?
I am okay for funds. I need to buy me food for the week but I can try and make that a total cost of $50. In that case, I will only have to repay the credit card $100 and that is doable for when the time comes. I will have to pay for gas soon, $60, $160. That is okay. Im taking Beaus rainy day fund for a ticket he racked up using my car and I will also use that for board and pay it back slowly because Im still mad he even dared call my contributionlittle given our circumstances. I will check out the gym tomorrow, have a look around, and when I have the funds, I shall join asap and proceed to go to group fitness classes after work. By the looks of it, the best classes start from Wednesday through to Sunday. Four days of seven is okay! Monday and Tuesday can be swims or dog walks. I need to get my Fitbit charged so I can monitor my calories burned. That being said, before even going food shopping, I need me a caloric diet plan and I will stick to that like no other. Its funny, my biggest personal growths are always from moments between Beau and I that further separate us. I dont know if thats actually good or not but personally I feel motivated to get myself sorted the more he makes me regret wanting to be associated together. That does actually sound really toxic, well see how we are by the years end. I should do a weight loss progress report after this. I need my weight and measurements, do some calculations for calories and then think about what I like eating and fit that into my caloric diet. What I learnt when I was having fun with this last year was that even though 1700 calories is pretty hard to stay at or under, if you go and burn a few 100 at the gym, youre all sorted! You can eat more, you dont feel like youre starving and you get to ride the wave of endorphins because of the exercise - win win!
I feel like theres something missing.
I could tidy the room a bit. I need to buy more tights - they are usually $6 a pair. I think I could get three. $178.
Oh my gosh. I owe a friend a banner designed on photoshop, and because I take a long time to do things, especially creative things since Im not bursting with ideas, that is low key stressing me out because I dont want to let him down. Oh wow, maybe thats why I have such salty feelings :o
I have to set aside some time to do that tomorrow.
On an consistency achievement note, I have been diligently salt water soaking my piercing that was giving me trouble and it looks like its settling down :)
I already feel better. You know what would make it even better, a nice hot shower. Oh yes, I feel way better. Oh hey, and why not stop there, Im going to make me a perfectly tempered hot cup of tea and tune in to a Netflix movie before I say goodnight to my subscription. I feel like rewarding my eyes and brain with the talents of Heath Ledger and his amazing portrayal of the Joker.
So, tonight:
caloric diet to be made
weight and measurements to be taken
tidy room a bit
shower
watch The Dark Knight after cup of tea is made
Tomorrow:
design banner for friend
scope out gym (maybe sign up if they offer something beneficial for me in my circumstance)
check out this yoga/pilates place near house
laundry! clothes, sheets and blankets
give $200 board to landlord
Next three days:
pay off $150 ticket
cancel Netflix
pay car rego $13
Letting out the bad unfiltered helps to clear way for the good. And planning how to get the good gets your mind thinking of how to be productive.
Thank you, blog <3
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