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submalevolentgrace · 2 years

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Hi! I'm very interested in attempting to write a disabled character (not for this blog, I assure, for an book I'm writing) in which the story doesn't fetishize/objectify her prosthetic limb. I'm in many writing circles and have been for a long while, but I've never seen this issue brought to light which I realise is a very important one. I have much to change in my thought process, and thank you for bringing this issue to attention.

I'm curious, and I apologise if this has been asked before, but what sort of design could you see for a functional prosthetic that doesn't go for a plainly aesthetic appearance, or is soully to please others? I do note that you said prosthetics are generally... not that helpful. So is there a way that it could be? Or do you think it would always generally be better to not use a prosthetic, as its mostly for aesthetic purposes, as you said?

I apologise if this ask is too outright or anything, and I don't mean to intrude. Thank you for your time and have a beautiful day!

okay, i want to answer this as in depth as possible, because whenever i talk about having a prosthesis, someone will always tag some variation of "#writing reference" and i do wonder what message they're taking away, and i want to get as much of my experience out as possible to maybe help shape how this is all portrayed in the future. and yeah… this is gonna be one of those rambly smg posts that the expand feature was invented for, so i'll start with the very abridged TL;DR:

if you're writing a character with an upper limb prosthesis; don't. arm amputees are unicorn level rare even compared to leg amputees, and i've never interacted with or even heard of an upper limb amputee that regularly uses a prosthesis, let alone relies on one. fiction has lied to you for the sake of cool aesthetics, don't repeat the cycle. more in depth writing advice including nuance and "but i waaaant to" will follow.

that said, grab your donning parachute and let's get started...

context for everyone involved: i am an upper limb amputee that rants a lot about how prostheses suck, i lost my right hand roughly five years ago at roughly the age of 30 after a very rough decline in health… it was pretty rough. this question is being asked in the context of a previous rant post of mine, and i checked that the ask is about an upper limb prosthesis in particular.

the situation regarding the usefulness of lower limb prostheses is totally different; i am definitely no expert, but by all accounts, prosthetic legs are incredibly useful for many people. getting a good leg can be absolutely life changing and more or less necessary for day to day life for some; mostly because infrastructure and society is just so fucking hostile to wheelchair users. being able to walk - at the cost of pressure sores and rashes and increased residual limb pain - is a preferable option to many people than being unable to fit through a doorway or in a bathroom stall or find out that the key to unlock the only elevator is in the admin office up three flights of stairs (true story).

but upper limb prostheses… see, the thing is, hands are incredibly complex organs that rely on a lot of immediate haptic feedback to work at all. hand dexterity is all about control, you need fine granular movements of the digits yes, but you also need the subtle sensations of pressure and proprioception in order to adjust your movements on the fly. i speak from experience, in the years leading up to the full loss of my hand, i was slowly losing function of it, usually swinging between numbness that made it clumsy at best, or screaming overstimulation from moving it at all resulting in unpredictable spasms… and let me tell you, a half working hand is infuriating to try and deal with. you can never know if you have a good grip on something or if it's slipping because of the wrong amount of pressure, and there's only so many smashed bottles of pickles on the floor before you give up using it all together… so amputation wasn't a great loss there, i had time to adapt.

a prosthetic hand of any kind has all of those issues and more. they're heavy and bulky, the cosmetic faux fingers or gripping claw have crude movement at best, and there's zero feedback (put a pin in this). 100% of the time you're using a prosthetic hand you have to keep your eyes on the grip and visually guesstimate whether or not the thing you're carrying is held tight enough but not too tight, that is if your "heavy duty" prosthesis can even support the weight without the servos disengaging or the wrist attachment socket just busting loose. i dropped a whippersnipper on my foot last week when my socket couldn't take the weight and i think that was the final straw in me desperately trying to prove to myself that there is a single task my prosthesis actually helps with.

this is usually where fully two handed people start talking about bleeding edge DARPA tech, and how we just need to invest more,research more, develop more. better tech, more tech, neural integration, more more more. okay i promise the writing advice is coming! for starters on tech, my experience is already with a mid-to-high end ottobock terminal device: i've got a myoelectric nerve-signal operated proportional control heavy duty greifer; about the only upgrade left for me to get would be a rotating wrist joint if i could coflex. it's not military, it's not "rockclimber that owns a prosthetic company", but it's quality tech. it still fucking sucks. secondly, that high level military tech exists primary for PR purposes so they can say they treat their discarded casualties well, "we can rebuild him, we have the technology" style. every war vet i've read about or heard from that's been gifted that high level tech also abandons it for the same reasons; it's imprecise, there's no feedback (or the haptic interface has to be fully recalibrated every time they put it on), but mostly they're more capable without one.

okay, the transhumanist ableds say (i should know, i used to be one), what if we did more ~research and development~ and got that neural feedback working? then we could have fireproof superhumanly strong robot arms to fix up everyone! here's where i take out that pin we put up before and i tell you that a class of prosthetic arms/hands already exists that has perfect proportional control, fine motor control, and physics perfect pressure feedback piped directly into the patients' existing sensory systems! they're called body-powered prostheses, and they were invented in like the 1600s. you strap a whole bunch of stuff to your arm and shoulders shoulders, and control the operation of the terminal device and elbow through cable tension by flexing your shoulders. they do take a considerable amount of training to operate - though hell i spent 18 months training to use my myo - but based on everything i've read, body-powered prostheses are the best option if you're an upper limb amputee and absolutely need a second hand for some reason.

but they don't look cool and futuristic, and according to my prosthetist, most people give up on using them too. we all give up on our prostheses, no matter the type. my rehab OT was impressed i lasted the 18 months of my training. towards the end, they even asked if the clinic director could drop in to one of my sessions to see my progress; he expressed genuine amazement at me casually using my bulky robot claw to use a brush and dustpan, and made an offhanded (hah) comment about what someone can achieve "if they stick it out to the end", implying it was somewhat of a rarity for me to have done so. several years on, and yesterday i wedged the dustpan between my ankles to sweep up into it, awkward but exponentially less effort than putting my dusty robot arm on. which, by the way, is a whole thing. look up some videos, they're all awful to don. i don't actually know the official technical name of what my clinic calls a "parachute" but it's a bitch to use! have you ever tried to pull back with your arm whilst also pushing it forwards at the same time, and simultaneously lean in to and away from an external force pulling on you? that's how you get a myo socket on.

bare with me, i promise writing advice is coming, and i promise it's more than the tl;dr. but. remember when i said a half working hand is infuriating to deal with? any prosthesis, from fancy myo tech to pirate-era body powered, will only ever be half as good as a working hand, and being juuuust within capability to do something but not quite able to is maddening! but you know what works way better than a half working hand? no hand at all. using whatever residual/vestigial limb you have - whatever "stump" you have, i hate that word - is pretty much always better than trying to use a prosthesis. i can use the inside of my elbow to grip and carry things, i can use the nub of my arm to apply pressure to hold things, open doors, use a computer mouse, turn on taps and lights, if i put a glove over it i can use it to prep for cooking. i have full proprioception and pressure feedback with skin contact, i don't think i've ever dropped and broken anything from my elbow, unlike countless things slipped from my greifer - which, by the way, absolutely will start clenching as tight as it can if i get even slightly too sweaty around the electrodes, which has both broken things i'm holding and also injured me, because surprise surprise but servo operated robot claws have pinch points on them right near the "emergency disengage" lever for some reason!

but i am exponentially more capable without it on than with it. no, i'm not fully independent, i rely on housemates and loved ones to help me out with some tasks that simply just need two handed dexterity, but none of those tasks are things a prosthesis makes me able to do anyway. i used to imagine my prosthesis would be like a bra; a bit awkward and uncomfortable, but i'd wear it throughout the day because it's helpful and take it off in the evening to decompress. in reality it's actually exactly like a bra: an absolute bitch to put on one handed, unbearably uncomfortable because it never sits right, ugly af unless you're a millionaire, and absolutely useless except for the fact that i get gawked at and judged by strangers if i leave the house without it on.

and if you really want to discover how far "no hand is better than a half working hand" goes, brace yourself, and look up the patient's stories (not medical system stories) of people that have had hand transplants. the first man to receive one hated it, he was promised a return to normal function, and what he got was a nightmare worse than being one handed; he wanted it removed again but the doctors refused because it would undermine their grand achievement of the first hand transplant. the doctors and society wanted him to be fixed, they wanted him to be normal, they wanted him to be abled. they failed. they made him less able to do things, denied his autonomy, and left him with someone else's hand slowly rotting on him, prioritising the idea of "scientific progress" and "two hands good" over the physical health, mental health, and ability to function of this man.

he's not alone; every story from the patients' perspective about hand transplants that i've read goes this way, including a woman who was born quad limb different and was promised hands would improve her life, pressured into a double hand transplant, only to find herself after the surgery essentially experiencing disability for the first time ever, because she had lived her whole life getting by just fine with her 'underdeveloped' limbs, but half working hands are worse than useless. you can try to find these stories yourself, but i'm not going looking for sources on any of these cases, because if you look back through enough of my posts you'll get a glimpse of the horrors and abuses that i too was put through by doctors who prioritised trying to "fix" me at any cost, rather than providing me the best quality of life, and in turn traumatised me and left me more broken than any loss of limb on its own could. dear goddess, i promise the writing advice is coming.

so. why do upper limb prostheses exist at all? if they're so terrible and useless, what is their function? i want to borrow something someone else left in the tags of a previous rant here, from someone who i believe works in prosthetics and/or rehab, cleaned up and anonymised at their request:

"upper limb functions are wildly more complex than: 1) bear weight static, and 2) bear weight moving. but every single upper limb amputee i know has a fancy expensive prosthetic just gathering dust in the closet because there is literally nothing it can do like a few years of adjustment and if needed non-dominant hand retraining can't do. the existence of forquarter prosthetics to begin with is just kind of silly and useless and entirely to make OTHER people feel comfortable, especially considering they universally are UNcomfortable for the amputee. i hate the notion that as soon as you get the amputation the prosthetic is The Thing That Will Fix You And Make You Feel Normal again because it universally isn't! but every forequarter person i know had like this ideal of Being Fixed By Magic Prosthetic that they were then obviously wildly disappointed by and had to do yet another grieving process with, versus if the dominant narrative were just one of: yeah. it'll take time, there is no magic fix."

and i think that really nails down what the actual purpose of upper limb prostheses is: they're not for the user, they're for the sake of other people. and not just their comfort when looking at our bodies, although based on the pressure for both amputees and people born limb different to get functionless cosmetic plastic hands, there is a lot of that. but it's not just that.

i fully believe that the reason prosthetic hands exists is to comfort the fears of the two handed. "don't worry", they say, "we can fix you again. you don't have to fear becoming Disabled, you don't have to worry about adapting or your life changing. we can make you Normal™ again."

you would not believe the number of people that have approached me to shower me with pity, to tell me how horrific my life is, how they can't imagine it. people have told me, apropos of nothing, that they'd kill themselves if they lost a hand. indirectly, that my life isn't worth living. unless, of course, i happen to be wearing my cool as fuck looking robot prosthesis! then they tell me how wonderful it is, how lucky i am, how glad they are that we have the technology to fix me. that's what a prosthetic hand says, what all the happy fishing photos on limbs4life posters at the rehab clinic say: don't worry, we can fix you. that's what the bleeding edge DARPA flexi-whatever fully articulated neuro-feedback hands say: don't worry if you get IED'd while hunting civilians for us to drone bomb, if you get hurt, we will fix you, we will fix the fuck out of you, we will motherfucking adam jensen you into a cool as fuck cyborg that your son will idolise; come on boys, don't you wanna enlist just for the chance at being as cool as this? join the bomb squad for a ticket to the upgrade lottery.

and so we arrive at fiction. as much as his dialogue options protest, adam jensen loves his robot arms, they punch through walls, turn into fucking swords! they make him the most special man in the world. what would he do without them? learn to cope? grieve? practice acceptance? take up poetry? just, be disabled? there's no power fantasy for ableds in that.

in fact, can you think of a single fictional character that's an upper limb amputee that's, well, just an amputee? they all have robot arms. not realistic prostheses, not medical devices; robot arms. sleek or bulky, top of the line or broken down self built, steampunk or nanomachines or magitech automail; they're never without them. never just an amputee. never born limb different either! there's always that element of tragedy to overcome, always suffering and misery porn, always focus on the pain and the helplessness without the absolutely vital robot arm that makes them Normal and Whole. the closest amputee example i can think of is furiosa from mad max, who iirc fucking punches max in the face with her residual limb like a motherfucking badass! i can barely lean on mine wrong and she punches a guy! but she still apparently needs a dieselpunk robot hand to drive a truck, something you can do one handed so easily most drivers don't even notice they're doing it! please don't, by the way

and so many disabled fans love to point to robot armed characters as disability representation; the winter soldier, luke skywalker, edward elric, misty knight, that genderswapped furry girl from ratchet and clank, jet cowboybebop, finn the human, and yes, adam jensen…. these are all characters that someone disabled i know has told me they love because they "represent disabled bodies"…. and i know nobody wants to hear this, because i've been screamed at for saying it before, but… they do not. they are not disabled, functionally or within fiction. they are either perfectly able bodied Normal people with chrome paint on an arm, or tortured misery porn we are supposed to pity and feel lucky we're not them. sometimes both!

also you ever notice how it's basically always arms? lower limb amputations are orders of magnitude more common than upper, my prosthetist said i was probably only the 4th or 5th upper limb she'd worked with in her career, with literally hundreds of lower limb fits. but fiction doesn't seem to reflect that, huh? or any other part of the reality of disability. it's always cool as fuck robot arms, never cool as fuck wheelchairs or crutches or dialysis machines or colostomy bags. a fair few "i was blind but now i can see with Robot Eyes and also infrared and xray" around, which again, plays into that "we can fix you and make you cooler" propaganda.

by the way, up above when i was describing body powered arms, if you wondered to yourself why i went with a myoelectric one instead when i clearly believe body powered is better… yeah. i am not immune to propaganda! i too wanted to be cool as fuck. i spent years with deteriorating function in my hand for reasons that are still unknown, was misdiagnosed and medically neglected to the point that removing my hand seemed to be the only option left to offer some relief, and even that was a clusterfuck that left me worse than ever… of course i wanted to believe in the power and prestige of a cool robot arm that fiction promised me.

but fiction promises fantastical lies. and so.

we get to the writing advice portion of the novella that is this post. you asked for advice on how to write a disabled character with an upper limb prosthesis. you've read the tl;dr, you've read everything above i assume, you know i don't want you to do it. the obvious twist is that it's been writing advice all along, me trying to share my perspective on what it's like being an amp with a robot arm and how shitty it is, implying how almost any fully realised and realistic character that's missing an upper limb would give up on a prosthesis at all. you can already tell that every value judgement in me says "don't give her a prosthesis, no matter how functional or cool you make it. don't try to make the tech better to justify it, just let her be one armed, one handed. just let her be disabled, but not helpless. let her show off her elbow or underarm carry strength. let her love interest appreciate how soft and squishy her residual limb is in a moment of tenderness. let her natural disabled body be respected and valued."

but that's a personal value judgement from me, and you are the author of your own work. i know it's trite to say, but you are! even the act of deferring to someone with lived experience in the hope of doing a better job at representation is a value judgement, a good choice in my opinion, but one you needn't necessarily take. maybe you do want to write a character that has a cool as fuck unrealistic robot arm as a power fantasy, or a comfort blanket… i did.

i've been slowly writing my own probably terrible scifi epic for over a decade now, and when my arm was giving me hell back then, i'd take great comfort in this fantasy of my protagonist with her chunky robot arm, the terrible traumatic suffering of her loss, overcoming, the power and ability her advanced prosthesis gives her over others, that she alone has access to, because others are not willing to make the sacrifices required. inspiration porn. awful stuff to me now, but empowering to me then. as i grew and gained direct experience, i slowly reimagined her, rewrote her, ship of theseus'd her into an entirely new character; a reflection of me now, bitter at the whole thing, spiteful that her natural flesh arm evokes fear and distrust, but unwilling to suffer the pain and frustration of her unnatural prosthesis just to make others comfortable and respect her as "whole", however artificial that whole is. and as with the ship of theseus being two ships, once i realised the transformation, i re-added the old protagonist back in whole cloth as a separate character; proud of her robot arm and its power, but in new context, as a foil and antagonist, an in-universe military prosthesis propaganda figure to reflect how i now feel characters like her exist to us, the readers.

i'm not just sharing that as egotistical self promotion, but to highlight that, even if i sit here begging you all up and down not to write characters with robot arms for how bad and unrealistic they are; there's still something genuine and true that their inclusion can say. the great thing about the story that you're writing is that only you can write it, as they say. but i whole heartedly believe that to write to your best, you have to be aware of what you're writing and why. as tempting as it is to feel these characters form naturally in us and therefore we're averse to changing traits about them that feel organic and self evident; as authors we have omnipotent control over the text, every trait and detail is a reflection on us, so we'd sure as hell better understand why we're choosing to write a character with this trait. because anything you write without being aware of intent will take on its own meaning in the space between.

and on that note, if i don't say this, i'm leaving it to be inferred: i definitely don't want to appear to come down on the side of saying "you cannot write an amputee unless you are one", because we are rarer than single young bisexual unicorns! and it would be a tragedy if anyone read through all this and then turned away in fear, deciding to never write an amputee character (with or without robot arm) because they feel they can't do it justice… believe me, no matter what anyone says, some hack writer somewhere is going to keep writing adam jensens and winter soldiers. don't let them be the only voices in fiction! just try to do your best.

so my ultimate advice on the topic of writing a character with a prosthetic limb is to ask yourself one question in two different frameworks, and meditate on what you feel the answer is:

why does she have a prosthesis?

from a doylelist perspective as the kids say, as an author with omnipotent control, why are you choosing to write about this topic? why are you choosing to give this trait to this character? what does it say about how you view ability and disability, what makes a person normal, and what our society values? will you let her be in her natural body? or will you give her a prosthesis, force her to wear it by authorial fiat, or author her a meaningful reason to choose to? if yes, be sure you know; why did you give her a prosthesis?

and from a wastonian perspective, diegetically, inside the story, why does she choose to wear a prosthesis? what does it say about her inner character, and how she interacts with the world? how does she feel about doing it, is she prideful and loves the attention she gets, or does she resent whatever necessitates its use? how do people in this world view ability and disability, what does this society value? and above all, whatever the answer to these questions, whether or not she uses a prosthesis or is badass without one, how does she deal with the eternal freezing cold that every amputee ever feels constantly in their residual limb and why does nobody make a heat pack that fits over a nub without drafty gaps???

i can't outright tell you how to write a good upper limb amputee, but if you at least know why you're writing one and for what purpose, you're on track to write the best character that you can. that's the best advice i can give… other than, like, this whole rambly mess.

and, as a reward for reading this far, please have a very blurry cryptid photo of my cat doing his old man sit:

#prosthesis #prosthetic #disability #ableism

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wheelie-sick · 5 days

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I don't know how to express this quite right but I'm going to try

in an ideal world everyone who uses a wheelchair with regularity would have access to an adequate custom wheelchair but it is very frustrating when people who are much more ambulatory than I am call me lucky for having insurance approve mine. they aren't recognizing the difference in circumstances between us, they aren't recognizing the position I was in when I got my wheelchair approved.

I know it's frustrating to get an insurance denial, and denial does not mean you don't need a custom wheelchair, but when people do get approved it is usually because they have incredibly significant limitations on their mobility. a lot of people hear about ambulatory wheelchair users being approved for a custom wheelchair and think of an occasional wheelchair user (using occasional here to mean not for a significant portion of every day) I think they don't think about the fact that 10 steps is still ambulatory. I rarely hear of occasional wheelchair users getting approval for a custom wheelchair because being able to walk for a significant portion of every day is actually quite a lot of mobility in the grand scheme of things!

I have pretty consistently had people ask me how I got approved for a custom wheelchair while ambulatory, how I convinced insurance to let me have one, and it's hard to answer because I just unequivocally needed one? when I was approved for my custom wheelchair I was walking under 150 steps a day. I remember this because I wore a Fitbit for a while. that is approximately 4 trips to the bathroom and none to the kitchen. I had to have my family bring me meals because my mobility was so limited. the people who ask me this most often are people on my university campus, people capable of walking to and from their classes a significant portion of the time. ambulatory wheelchair user is a huge gradient of experiences, the ambulatory wheelchair users who get approval for custom wheelchairs are on the side of the spectrum much closer to being entirely unable to walk.

I am often used comparatively by people who have substantially more mobility than me. people will hold up my wheelchair approval and say "look! he got a wheelchair! why can't I get a wheelchair?" statements like this diminish the circumstances I was in when I got that approval. when people hold me up as "the ambulatory wheelchair user who got a custom wheelchair approved" but they're attending school and going to the grocery store they are dismissing a substantial portion of my life where I was a near full time wheelchair user. it shows they don't understand my experience. no, it isn't okay that so many ambulatory wheelchair users are denied custom wheelchairs that they need, but I am not an example of inconsistency unless you too are taking under 150 steps a day. it just makes me feel so used and misunderstood.

truly the most frustrating experience is being told I am "lucky" for having insurance approve my wheelchair. I did not get an approval through luck. it was not chance, it was significant mobility disability. it completely erases the difference in the experience of being an occasional wheelchair user and being a wheelchair user who can only take 25 steps at a time. back when I was less ambulatory I regularly heard (and still hear) people talk to me about how they wish they were me because they don't have a custom wheelchair but if they did they'd use it every time they left the house. they gloss over the fact that I don't get a choice. if I don't leave the house in my wheelchair I am not leaving the house.

it's all just exhausting to deal with. I wish people realized the difference in our circumstances better.

-> this is a post about people with insurance being denied, not about people without access to insurance <-

#physical disability #physically disabled #cripple punk #cripplepunk #wheelchair user

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librarycards · 2 months

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Hello! I am trying to read “the right to maim” by jasbir k puar and I am getting almost nothing out of it, bc of the depth + breadth of academic concepts :( I’m particularly frustrated by it bc it seems to talk about subjects I think about, talk about and do daily, like disability, transness, and (anti)colonialism. I’m most of the way through the intro and it’s gone almost entirely over my head except for a couple isolated paragraphs that are meaningful.

Do you have any advice for how I can get the most out of this book? My main limiter is time, bc I got it out from the library and it is highly requested so I can’t have it for very long

Hi anon! First of all, in terms of time, I recommend piracy. I recommend it in general. I'm not going to post links here in order to protect the places I use, but dm me if you want them.

If you're having difficulty with the concepts (which makes sense - right to maim is a challenging book!) I recommend going back to basics with some background reading. You can get some of Puar's rec'd background reading from the bibliography, and from the keywords she uses in the preface of the text. a few that I see (i'm looking at the PDF now) include debility, rhizome/rhizomatic, soverignty, biopolitics, homonationalism, impairment [in the disability studies sense], precarity, and neoliberalism. if i was teaching this preface, i'd have students break down each of these terms (and probably others, this is just from a skim) using outside readings. it's totally normal to feel overwhelmed when jumping into a scholarly text w/o any context, and most people who use and cite this book have past experience reading Puar's interlocutors and existing familiarity with this language.

you can get up-to-date while reading using resources in tandem with this text. For example, you can read Puar's discussion of debility at that link to get a sense of the context. You can read a decent summary of Foucault (the coiner of the term "biopower") and his thought at Brittanica. I recommend using Google Scholar for terms you're not familiar with, and taking quick notes so that you don't have to google them all over again each time. if you think you have enough context with a new word but aren't 100%, keep reading and use other clues. think about academic reading like learning a new language. the strategies are very similar! because it basically is.

I recommend using the annotation strategies i just mentioned in this post (and/or developing your own). i also recommend looking up Puar's talks on youtube - she's a well-known scholar who does a lot of events, and has spoken extensively about this book and its genealogy (especially in relation to praxis / Palestinian liberation). You can also read her talk with the hosts of Death Panel, my absolute favorite podcast.

Below, I'm going to give you an example of how I close-read, annotate, and analyze a paragraph from Right to Maim (and, by extension, other academic texts. This strategy may not work for you 100%, but hopefully it gives you some solid suggestions. Overall, remember that learning to read scholarly work takes time. A long ass time. Even when it's about things you've experienced yourself! Academia has its own conventions, verbiage, knowledge base, etc, and it's a learning curve for everyone. Don't expect yourself to read as fast or get as much as someone more familiar with the conventions of academic writing - anticipate reading all of these works many, many times, and getting more with each reading. Progress is more important than perfection, and improvement, even if slow, *will* happen, as long as you don't give up. <3

Below is a quote from the preface to Right to Maim, where Puar lays out her argument. I recommend everyone highlight/remember paragraphs like these (pretty much every ac text will have something like this in the beginning as a roadmap) to anchor their reading practice and help them get the most from a book (emphasis mine):

In The Right to Maim, I focus less on an important project of disability rights and disability studies, which is to refute disability as lack, as inherently undesirable, and as the sign, evidence, or fetish of injustice and victimhood. I am not sidestepping this issue. Rather, I centralize the quest for justice to situate what material conditions of possibility are necessary for such positive reenvisionings of disability to flourish, and what happens when those conditions are not available. My goal here is to examine how disability is produced, how certain bodies and populations come into biopolitical being through having greater risk to become disabled than others. The difference between disability and debility that I schematize is not derived from expounding upon and contrasting phenomenological experiences of corporeality, but from evaluating the violences of biopolitical risk and metrics of health, fertility, longevity, education, and geography.

In the bolded part, Puar outlines what she's not doing: she's not taking a mainstream (white, colonial) disability studies approach, which is, in her words, to refute disability as "lack." She's stating that her goal isn't simply to prove disabled people as equal to able-bodied people, or to claim that disability can be good and liberating (though it is/can be!). Her point is to look at the conditions in which people become disabled, and stay disabled. Often, these conditions are violent and unjust. Acknowledging this injustice kinda throws a wrench into western models of disability pride.

So, if she's not interested in just arguing that disability ≠ badness, what is she arguing? she's looking, in the latter half of the paragraph, to how people become disabled in multiple ways. One, using the verbiage in the book, she's interested in how people become debilitated - physically incapacitated in a way that may not line up with the social category of "disability"). She's also interested in how "disability" as a social identity is constructed - that is, why do disability rights groups look at Palestinians maimed by the IOF and see an injured civilian, but not a disabled comrade? words and context matter immensely. she's looking at why, and what are the implications.

that last sentence sums up the distinction she's making: "The difference between disability and debility that I schematize is not derived from expounding upon and contrasting phenomenological experiences of corporeality, but from evaluating the violences of biopolitical risk and metrics of health, fertility, longevity, education, and geography."

the difference, she argues, between disability as western disability studies sees it and debility as experienced by people under colonial occupation isn't because we experience our bodyminds differently, or because Palestinians (for example) magically aren't as hurt by occupation as their white/western counterparts would be. rather, the reason she's using debility over disability is because the category of disability isn't objective: it's informed by biopolitical forces such as the ones she listed. her meta-argument is that what we call "disability" can't be divorced from its settler colonial context, not because colonized peoples are immune to disabling violence, but because the category of disability (and health, and violence) is itself affected by settler colonialism.

in "right to maim," Puar is offering a major shift in the way we collectively discuss disability, because the category is not applied equally across sociopolitical, geographical context. it means Palestinians and others living under occupation are either left out entirely, or unsuccessfully co-opted into western-/colonizer-centric disability discourse that doesn't acknowledge the different conditions under which they live. ultimately, "right to maim" means to make that difference, and its implications, visible.

Let me know if this makes sense! it's wordy and tedious, but lots of academic texts are. i hope that breakdown helps you make some more sense of Puar's main argument/the architecture of the text, and maybe serves as a model for future engagement. :)

#palestine #reading #academia #ask #anonymous #do not be ashamed of having a hard time. we have ALL been there. everyone has been new to this language/these conventions before.#keep trying and you will get better. i promise!

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lycheeloving · 8 months

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a non-platonic yandere!Bruce thought this time, with some multiverse stuff, because that's all I could think about today.

I imagine this is at a point where you've been with him for some time & have mostly gotten used to your situation (having been kidnapped and forced into a relationship with a billionaire who happens to be Batman)

a small allusion to nsfw stuff, minors dni

You're bored, sitting in the bedroom you share with Bruce (who's currently patrolling, so you can't even annoy him for entertainment), so you decide that you at least want a change of scenery, and what better place for that than the batcave? So you take a book, a drink and a blanket with you as you venture down into the cave.

Bruce doesn't like it when you're down there, especially not while he's out, but it doesn't concern him enough to install anything that would keep you from going down there. If you're lucky, this will piss him off just enough to make the inevitable post-patrol sex with him more interesting tonight, so a win-win situation, really! You sit down in his comfy chair in front of his bat-computer, snuggle into your blanket so you don't freeze to death and start reading.

After some time you stand up to stretch and notice Bruce in the reflection on the computer. Weird, you didn't hear the batmobile returning! Well, you must have just been really immersed in the book.

"Bruce? You're back early, I thought you said you'd take longer today because of some Arkham emergency?"

No response.

"Ok, look, I know you don't like it when I'm down here, but I was getting sick of the manor!"

Still no response.

You turn around to look at him more closely, his expression might look like his usual stony facade, but you've spent enough time with him by now to be able to read him a bit and you're pretty sure he looks... confused?

"Hello? Are you ok? Did you hit your head? Did you drive with a head injury?? Wait, no, of course not, the batmobile can drive home all by itself-"

As you say that, you look at where the batmobile should be. should be, because it's not there. You look back at Bruce. Did his batsuit always look like that? You could swear that the ears are usually a bit smaller, and the color is wrong. Huh. You take a step back. "You're.. not Bruce, are you?"

He finally opens up his mouth to explain that he's from a parallel universe, that he and the Bruce from your universe have been helping each other with cases for a while now, he just came here to see if your Bruce was available, but if he's not here right now he's going to leave again. He gestures to a portal in the wall that you missed because from your angle it just looks like the wall of the cave, but when you take a step forward you can see into what looks like the batcave you're in right now but slightly to the left. A bit uncanny.

"You looked confused earlier, did Bruce not tell you about me? Or did you just not expect to see me down here?"

"...I was not aware that he is in a relationship."

"I mean, yeah, I guess if I was him I wouldn't go around telling people I kidnapped someone and keep them locked in my mansion, either. Even if they looked exactly like me, I mean, you never know if they think exactly like you as well. Um. Anyways, it was nice to meet you?" You wave awkwardly while he looks shocked (in his stoic way).

"...Why didn't you try to escape through the portal, then, if you're kept here against your will?"

"Oh, um, my bracelet is designed to shock me as soon as I leave. Like, really painful electric shocks. I'm not trying that again." More shock and guilt on other-Bruce's face.

"I'm sure I could disable it. Come with me."

"...And then what? Bruce will come after me. He'll attack you and be really, really mad at me for running away. Really mad. He said he'd break my legs if I ever tried to run again, I'm not risking that. And he'll keep me chained up in the bedroom for months." You shudder. "I like my walking around the house privileges, thank you very much."

You feel uncomfortable when he doesn't react and instead keeps staring at you. "I think you should leave. Now. ...Please."

He takes a step towards you. "I can keep you safe. I wouldn't feel right, knowing I left you here. Come with me."

You take a step back. "Look, thank you for offering, but I don't think this will end well for either of us. I'm gonna go now."

You turn to leave, but he's faster than you. He grabs your wrist, stopping you from getting away. You squirm in his hold while he inspects your bracelet. He then pulls something out of his utility belt with which he's able to remove the bracelet without it shocking you, throws you over his shoulder and carries you through the portal, not at all bothered by your kicking and scratching. He puts you down and closes the portal behind him. It all happened faster than you could wrap your head around.

"...I think it would be best if you stayed in the manor until I figure out how to resolve this.", he says, an unnerving glint in his eyes.

Did you just get kidnapped by a second Batman? Will he really let you go? You doubt that, somehow. You think you would have preferred to stay with your Batman, at least with him you knew what to expect...

#idk if any of this makes sense but I can't proofread this again or I'll scream #yandere batman #yandere bruce wayne #batman x reader #bruce wayne x reader #x reader #reader insert #yandere!batman #yandere!bruce wayne #yandere dc #yandere #lycheewritings #dark!bruce wayne #dark!batman #dark bruce wayne #dark batman #yandere batfam

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barrenclan · 2 months

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I don't want to overly challenge the anon who criticized the decision to blind Ranger and damage Hacksaws wing, but I think reading it has me wondering: What would the alternatives be?

Before I go super into this, I want to acknowledge that while I am disabled, my disabilities aren't connected to visual impairment or losing a limb, so I want to make it clear that I'm not trying to speak on behalf of that experience. That's not really my place, yeah?

But I think something about Warrior Cats, especially when extended to something like this, is also a story about exploring pain. Death and disability are as synonymous with this story as they are with most warrior cats fiction, for the better or worse, because the themes of the story revolve around what it means to suffer. The main distinction between the living and dead of this story is that the living get to see another day, as physically or emotionally damaged as they are. Barrenclan and the Defiance are ruled by this concept, even though the defiance perverts the idea into something grander than it actually is. Hacksaw and Rangers fate is kind of just an inevitably of the lives of all defiance members: They fight, and they either die or live to suffer another day. I don't really see it as a moral to their lives so much as just a consequence. The defiance can hurt and kill and maim, but it can't escape the fact these things can and will happen to them. The defiance is just a way for characters to trick themselves into thinking they're above that fate.

As for a writing perspective... If you have things you want to do with the characters after this, then yeah, I understand the decision. Otherwise they kinda have to die, since they wouldn't leave Barrenclan alone. It's always good to keep in mind things to avoid for the future, but it's also okay to tell complicated stories that leave messages that are hard to digest. Art isn't going to resonate with people all the time, and it shouldn't. I respect that you've responded to the criticism with humility and openness though!

I'm not gonna post any more about this after now, but I wanted to share this ask both because it's very well written and I think it does bring up some big themes in the story that I didn't mention but think are important!

And a general thank you to everyone for keeping a Warriors fancomic about incredibly intense topics on Tumblr so vastly chill and normal. My inbox and my brain appreciates it.

#ask #anon #analysis #ranger #hacksaw

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mademoiselle-cookie · 1 year

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It was at this moment that she decided to assassinate Ambrosius.

She could have continued to protest Ballister's words, she could have tried to make an excuse or even sent Ambrosius back to his post. But no. She gives up extremely quickly and almost jumps straight to murder.

Is it only me who’s shocked that it’s happening so quickly?

She who does all this in the name of Gloreth has absolutely no problem killing her (as far as we know) only descendant. Which means if he dies, Gloreth's lineage is over.

Ambrosius is a Goldenloin, a noble, a knight, the very example of a knight! He's exactly what she's trying to "protect." And she kills him with her own hands. (If that's not a metaphor, I don't know what is)

But concretely, there are several reasons for this sudden choice:

She has no good excuse at her disposal, either because she had overestimated her influence on Ambrosius, or underestimated his trust in Ballister;

She realized that Ambrosius is too attached to Ballister, which means that not only will he try not to hurt him and will not accept him being killed or treated unfairly, but also that the first chance he gets, he'll take Ballister's side and not hers;

As Ballister's (only) friend, he is one of the only obstacles in making him out to be a heartless assassin;

If someone as important and influential as him were to get in her way, she will have great difficulty doing what she wants and may even risk losing her position and power;

She knows she will never be able to convince him of the "merits" of her quest;

She has a great alibi: Ballister.

This last point is very important. She can get rid of a nuisance as she wishes with complete impunity. No one is there and Ballister has already managed to sneak into the Institute without anyone noticing before then (it's not like anyone is going to accuse her instead of the 'Queen's Killer'). So she also has a golden opportunity to silence any doubt about Ballister's guilt. I mean, others could be like Ambrosius and question her again, and Ballister managed to obtain evidence that she had killed the Queen while he didn't know before that it was her, so someone else provided them to him, so the idea of him being innocent can spread. By accusing him of killing the most popular knight in the Kingdom, she ensures that no one questions his position as a monster and criminal.

It's the Institute, where knights are trained to defend the Kingdom, there's no chance that the Director didn't have access to another weapon than Ballister's. But she chose to use his sword.

But Ballister's sword was destroyed, no one will wonder about the appearance of a second?

No one asks questions about a man who decides to assassinate for no reason the person who allowed him to rise from his social condition, in public, surrounded by knights, right next to an armed man, and visibly without any plan to escape?

The more I think about it, the less sense this supposed assassination makes. It only worked because of media manipulation and because Ballister was the culprit. If the roles had been reversed with Ambrosius - in the event that they had exchanged swords (and the Director didn't notice the exchange and/or couldn't disable the attack) - it certainly wouldn't have gone that far because:

Ambrosius is loved by all and known for being trustworthy/kind/insert knightly quality. Ballister is a commoner, who, even after several years of working hard and being miles better than others, is not seen as trustworthy. People will be much more likely to make excuses for Ambrosius than for Ballister.

The Director has no interest in using the media to blame him. On the contrary, she will try to defend him and claim that he was framed.

Ballister had no excuse for having a deadly laser sword, he has no one to blame for him. Ambrosius yes. There's Ballister. Not only because it is the untrustworthy newcomer dirty commoner that his fellow knights despise, but above all it is HIS sword that was trapped. The Director and the population will accuse him of framing Ambrosius.

People will WANT him to be the culprit instead of their lovely and respected knight. They don't want the literal descendant of their hero to be an awful person who did something this horrible. They don't want the representation of the Institute, of their society to be shaken. (I'm a pro jedi fan. I know that when people want to defend their blorbos, they can go veeeeeery far, including putting responsabilities on other people, even complete innocents or victims)

In fact, this situation will be even more credible than the original one. Why he didn't plan his escape? Bc he didn't need to. Why he did that? Obviously to take revenge on better people in better situation than him, and on society itself, by targetting the Queen, leader of the Kingdom, and a Goldenloin, who's also the Kingdom's most prestigious knight and the descendant of the founder of the Institute.

#I got completely sidetracked #I just wanted to talk about the Director's murder tendencies #the question about Ballister twin swords was mine #I really thought about the logic of this dumpster fire situation #nimona 2023 #nimona #nimona movie #ambrosius goldenloin #director #ballister boldheart #ballister x ambrosius #goldenheart

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mommypieck · 7 months

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hi guys, ive been thinking a lot about making this announcement.

i have no interest in posting on this account anymore. i am just really disappointed in the community we created here.

as much as i love my supporters and i appreciate the one's that show me support, I can't overlook the other kinds of people. i disabled my asks for that reason.

i am being bombarded with hate messeges on my person every single day. and it's not just a normal hate messege that people leave from time to time. people just attack me for simply existing. i get hate comments about my age, my hobbies and fuck literally my name. i know these are small things for some people, but not when you see it every single day. and now it's not about just disabling asks or comments so i don't see them.

and these people just made me not want to post anymore. because no matter what i do, i know i will wake up to see more of the negative responses than the positive ones.

i know some people will say "you should write because you love writing not because you want to get positive feedback." let's be real here. even the most passionate person is not gonna continue if they don't have the support.

with this, im taking a break. i still have stuff scheduled, but I won't be active here for a while. i still will be interacting with my followers in dms tho.

bye. see you hopefully soon.

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cripplecharacters · 6 months

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The Mask Trope, and Disfiguremisia in Media

[large text: The Mask Trope, and Disfiguremisia in Media]

If you followed this blog for more than like a week, you're probably familiar with “the mask trope” or at least with me complaining about it over and over in perpetuity. But why is it bad and why can't this dude shut up about it?

Let's start with who this trope applies to: characters with facial differences. There is some overlap with blind characters as well; think of the blindfold that is forced on a blind character for no reason. Here is a great explanation of it in this context by blindbeta. It's an excellent post in general, even if your character isn't blind or low vision you should read at least the last few paragraphs.

Here's a good ol’ tired link to what a facial difference is, but to put it simply:

If you have a character, who is a burn survivor or has scars, who wears a mask, this is exactly this trope.

The concept applies to other facial differences as well, but scars and burns are 99% of the representation and “representation” we get, so I'll be using these somewhat interchangeably here.

The mask can be exactly what you think, but it refers to any facial covering that doesn't have a medical purpose. So for example, a CPAP mask doesn't count for this trope, but a Magic Porcelain Mask absolutely does. Bandages do as well. If it covers the part of the face that is “different”, it can be a mask in the context used here.

Eye patches are on thin ice because while they do serve a medical purpose in real life, in 99.9% of media they are used for the same purpose as a mask. It's purely aesthetic.

With that out of the way, let's get into why this trope sucks and find its roots. Because every trope is just a symptom of something, really.

Roughly in order of the least to most important reasons...

Why It Sucks

[large text: Why It Sucks]

It's overdone. As in — boring. You made your character visibly different, and now they're no longer that. What is the point? Just don't give them the damn scar if you're going to hide it.

Zero connection with reality. No one does this. I don't even know how to elaborate on this. This doesn't represent anyone because no one does this.

Disability erasure. For the majority of characters with facial differences, their scars or burns somehow don't disable them physically, so the only thing left is the visible part… aaand the mask takes care of it too. Again, what's the point? If you want to make your disabled character abled, then just have them be abled. What is the point of "curing" them other than to make it completely pointless?

Making your readers with facial differences feel straight up bad. I'm gonna be honest! This hurts to see when it's all you get, over and over. Imagine there's this thing that everyone bullied you about, everyone still stares at, that is with you 24/7. Imagine you wanted to see something where people like you aren't treated like a freakshow. Somewhat unrealistic, but imagine that. That kind of world would only exist in fiction, right? So let's look into fiction- oh, none of the positive (or at least not "child-murderer evil") characters look like me. I mean they do, but they don't. They're forced to hide the one thing that connects us. I don't want to hide myself. I don't want to be told over and over that this is what people like me should do. That this is what other people expect so much that it's basically the default way a person with a facial difference can exist. I don't want this.

Perpetuating disfiguremisia.

"Quick" Disfiguremisia Talk

[large text: "Quick" Disfiguremisia Talk]

It's quick when compared to my average facial difference discussion post, bear with me please.

Disfiguremisia; portmanteau of disfigure from “disfigurement” and -misia, Greek for hatred.

Also known as discrimination of those mythical horrifically deformed people.

It shows up in fiction all the time; in-universe and in-narrative. Mask trope is one of the most common* representations of it, and it's also a trope that is gaining traction more and more, both in visual art and writing. This is a trope I particularly hate, because it's a blatant symptom of disfiguremisia. It's not hidden and it doesn't try to be. It's a painful remainder that I do not want nor need.

*most common is easily “evil disfigured villain”, just look at any horror media. But that's for another post, if ever.

When you put your character in a mask, it sends a clear message: in your story, facial differences aren't welcome. The world is hostile. Other characters are hostile. The author is, quite possibly, hostile. Maybe consciously, but almost always not, they just don't think that disfiguremisia means anything because it's the default setting. No one wants to see you because your face makes you gross and unsightly. If you have a burn; good luck, but we think you're too ugly to have a face. Have a scar? Too bad, now you don't. Get hidden.

Everything here is a decision that was made by the author. You are the one who makes the world. You are the person who decides if being disabled is acceptable or not there. The story doesn't have a mind of its own, you chose to make it disfiguremisic.

It doesn't have to be.

Questions to Ask Yourself

[large text: Questions to Ask Yourself]

Since I started talking about facial differences on this blog, I have noticed a very specific trend in how facial differences are treated when compared to other disabilities. A lot of writers and artists are interested in worldbuilding where accessibility is considered, where disabled people are accepted, where neurodivergence is seen as an important part of the human experience, not something “other”. This is amazing, genuinely.

Yet, absolutely no one seems to be interested in a world that is anything but cruel to facial differences. There's no escapist fantasies for us.

You see this over and over, at some point it feels like the same story with different names attached.

The only way a character with a facial difference can exist is to hide it. Otherwise, they are shamed by society. Seen as something gross. I noticed that it really doesn't matter who the character is, facial difference is this great equalizer. Both ancient deities and talking forest cats get treated as the same brand of disgusting thing as long as they're scarred, as long as they had something explode in their face, as long as they've been cursed. They can be accomplished, they can be a badass, they can be the leader of the world, they can kill a dragon, but they cannot, under any circumstances, be allowed to peacefully exist with a facial difference. They have to hide it in the literal sense, or be made to feel that they should. Constantly ashamed, embarrassed that they dare to have a face.

Question one to ask yourself: why is disfiguremisia a part of your story?

I'm part of a few minority groups. I'm an immigrant, I'm disabled, I'm queer. I get enough shit in real life for this so I like to take a break once in a while. I love stories where transphobia isn't a thing. Where xenophobia doesn't come up. But my whole life, I can't seem to find stories that don't spew out disfiguremisia in one way or the other at the first possible opportunity.

Why is disfiguremisia a default part of your worldbuilding? Why can't it be left out? Why in societies with scarred saviors and warriors is there such intense disgust for them? Why can't anyone even just question why this is the state of the world?

Why is disfiguremisia normal in your story?

Question two: do you know enough about disfiguremisia to write about it?

Ask yourself, really. Do you? Writers sometimes ask if or how to portray ableism when they themselves aren't disabled, but no one bothers to wonder if maybe they aren't knowledgeable enough to make half their story about their POV character experiencing disfiguremisia. How much do you know, and from where? Have you read Mikaela Moody or any other advocates’ work around disfiguremisia? Do you understand the way it intersects; with being a trans woman, with being Black? What is your education on this topic?

And for USAmericans... do you know what "Ugly Laws" are, and when they ended?

Question three: what does your story associate with facial difference — and why?

If I had to guess; “shame”, “embarrassment”, “violence”, "disgust", “intimidation”, “trauma”, “guilt”, “evil”, “curse”, “discomfort”, “fear”, or similar would show up.

Why doesn't it associate it with positive concepts? Why not “hope” or “love” or “pride” or “community”? Why not “soft” or “delicate”? Dare I say, “beauty” or “innocence”? Why not “blessing”? “Acceptance”?

Why not “normal”?

Question four: why did you make the character the way they are?

Have you considered that there are other things than “horrifically burned for some moral failing” or “most traumatic scenario put to paper”? Why is it always “a tough character with a history of violence” and never “a Disfigured princess”? Why not “a loving parent” or “a fashionable girl”, instead of “the most unkind person you ever met” and “total badass who doesn’t care about anything - other than how scary their facial difference is to these poor ableds”? Don’t endlessly associate us with brutality and suffering. We aren’t violent or manipulative or physically strong or brash or bloodthirsty by default. We can be soft, and frail and gentle and kind - and we can still be proud and unashamed.

Question five: why is your character just… fine with all this?

Can’t they make a community with other people with facial differences and do something about this? Demand the right to exist as disabled and not have to hide their literal face? Why are they cool with being dehumanized and treated with such hatred? Especially if they fall into the "not so soft and kind" category that I just talked about, it seems obvious to me that they would be incredibly and loudly pissed off about being discriminated against over and over... Why can't your character, who is a subject of disfiguremisia, realize that maybe it's disfiguremisia that's the problem, and try to fix it?

Question six: why is your character wearing a mask?

Usually, there's no reason. Most of the time the author hasn't considered that there even should be one, the character just wears a mask because that's what people with facial differences do in their mind. Most writers aren't interested in this kind of research or even considering it as a thing they should do. The community is unimportant to them, it's not like we are real people who read books. They think they understand, because to them it's not complex, it's not nuanced. It's ugly = bad. Why would you need a reason?

For cases where the reason is stated, I promise, I have heard of every single one. To quote, "to spare others from looking at them". I have read, "content warning: he has burn scars under the mask, he absolutely hates taking it off!", emphasis not mine. Because "he hates the way his skin looks", because "they care for their appearance a lot" (facial differences make you ugly, remember?). My favorite: "only has scars and the mask when he's a villain, not as a hero", just to subtly drive the point home. This isn't the extreme end of the spectrum. Now, imagine being a reader with a facial difference. This is your representation, sitting next to Freddy Krueger and Voldemort.

How do you feel?

F.A.Q. [frequently asked questions]

[large text: F.A.Q. [frequently asked questions]]

As in, answers and “answers” to common arguments or concerns.

“Actually they want to hide their facial difference” - your character doesn’t have free will. You want them to hide it. Again; why.

“They are hiding it to be more inconspicuous!” - I get that there are elves in their world, but there’s no universe where wearing a mask with eye cutouts on the street is less noticeable than having a scar. Facial differences aren’t open wounds sprinkling with blood, in case that's not clear.

“It’s for other people's comfort” - why are other characters disfiguremisic to this extent? Are they forcing all minorities to stay hidden and out of sight too? That’s a horrible society to exist in.

“They are wearing it for Actual Practical Reason” - cool! I hope that this means you have other characters with facial differences that don’t wear it for any reason.

"It's the character's artistic expression" - I sure hope that there are abled characters with the same kind of expression then.

“They’re ashamed of their face” - and they never have any character development that would make that go away? That's just bad writing. Why are they ashamed in the first place? Why is shame the default stance to have about your own face in your story? I get that you think we should be ashamed and do these ridiculous things, but in real life we just live with it.

"Now that you say that it is kinda messed up but I'm too far into the story please help" - here you go.

“[some variation of My Character is evil so it's fine/a killer so it fits/just too disgusting to show their disability” - this is the one of the only cases where I’m fine with disability erasure, actually. Please don’t make them have a facial difference. This is the type of harm that real life activists spend years and decades undoing. Disfiguremisia from horror movies released in the 70s is still relevant. It still affects people today.

"But [in-universe explanation why disfiguremisia is cool and fine actually]" - this changes nothing.

Closing Remarks

[large text: Closing Remarks]

I hope that this post explains my thoughts on facial difference representation better. It's a complicated topic, I get it. I'm also aware that this post might come off as harsh (?) but disfiguremisia shouldn't be treated lightly, it shouldn't be a prop. It's real world discrimination with a big chunk of its origins coming out of popular media.

With the asks that have been sent regarding facial differences, I realized that I probably haven't explained what the actual problems are well enough. It's not about some technical definition, or about weird in-universe explanations. It's about categorizing us as some apparently fundamentally different entity that can't possibly be kind and happy, about disfiguremisia so ingrained into our culture that it's apparently impossible to make a world without it; discrimination so deep that it can't be excised, only worked around. But you can get rid of it. You can just not have it there in the first place. Disfiguremisia isn't a fundamental part of how the world works; getting rid of it won't cause it to collapse. Don't portray discrimination as an integral, unquestionable part of the world that has to stay no matter what; whether it's ableism, transphobia, or Islamophobia or anything else. A world without discrimination can exist. If you can't imagine a world without disfiguremisia in fiction... that's bad. Sad, mostly. To me, at least.

Remember, that your readers aren't going to look at Character with a Scar #14673 and think "now I'm going to research how real life people with facial differences live." They won't, there's no inclination for them to do so. If you don't give them a reason, they won't magically start thinking critically about facial differences and disfiguremisia. People like their biases and they like to think that they understand.

And, even if you're explaining it over and over ;-) (winky face) there will still be people who are going to be actively resistant to giving a shit. To try and get the ones who are capable of caring about us, you, as the author, need to first understand disfiguremisia, study Face Equality, think of me as a human being with human emotions who doesn't want to see people like me treated like garbage in every piece of media I look at. There's a place and time for that media, and if you don't actually understand disfiguremisia, you will only perpetuate it; not "subvert" it, not "comment" on it.

I hope this helps :-) (smile emoji. for good measure)

Mod Sasza

#mod sasza #disfiguremisia #face difference #mask trope #writing trope #writing resource #writing reference #writing resources #writing advice #writeblr #writing tips #long post #burn survivor representation

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hypnoneghoul · 22 days

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here we gooo let's try to make some money (/hj, but I am a broke disabled student, so...)

I honestly don't know if this will be a big fail or big success so I'm starting out with 4 masks this month and 4 more masks next month (because I can't sell more than 4 masks per month due to some stupid taxation rules in my country), only to pay off the money that went into me making all this shit. If it turns out to be a success I'll probably be dropping more batches of better quality later on

Prices in EUR/prices in USD/shipping times:

It's quite cheap for a prequelle mask replica for one main reason; I'm no professional. This is my first time doing something like this and while I'm very proud of how the first mask came out and am confident in the ones I’m gonna be selling, they do reflect my lack of professionalism. Feel free to ask me for more detailed pictures if you're worried about how they look up close

I will not be doing any business with minors, tho, so please don't even try, MDNI always stands here

FC45 resin, acrylic primer, hydroalcoholic chrome paint and a waterbased polyurethane varnish. There's also foam padding and an elastic strap

Current availability of the masks is going to be updated in my pinned post. There’s going to be two steps to ordering, first is to fill out this form. You’ll have to leave your email there (optionally Tumblr username, too) for me to be able to contact you, and then when it’s your turn and everything is calculated, I'll contact you. If everything's agreed on and alright I’ll make an individual Ko-fi listing just for you to use. The form will help me keep track of the “wishlist” (if there's gonna be such interest, of course, because as I said I have no idea how it will go). First 4 people from the list will get a message from me and we'll proceed from there

I can ship anywhere you want; you as a buyer cover all expenses of the shipping, as well as customer protection fees on PayPal. For cost cutting reasons (and also because I'm not a registered company) the mask will be described as a gift on the customs declaration

The moment I have the first 4 people pay, I order the supplies and begin casting the masks as soon as they get to me (2-3 days). The entire process, between the waitlist filling and the masks being shipped, may take up to two weeks

I think that's it, feel free to message me/send me an ask in general if you have any questions!

#hypnone's masks #the band ghost #nameless ghouls #prequelle era

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blaacknoir · 29 days

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Hi, you recently reblogged a post about how Nanowrimo is not disallowing or disavowing AI because doing so is classist and ablist and in your tags suggested that you consider this "yikes."

Honestly, it kind of hurt my feelings as a person with a disability who occasionally uses AI as a disability aid. Let me explain.

I use AI frequently for word recall. I have ADHD- a lot of people do. Many people with ADHD, including myself, struggle with word recall. It can be extremely bad, but how bad it is day to day is variable, and not all people with ADHD struggle with this to the same degree. When my word recall is really bad, NLP's (Natural Language Processors) are practically tailor-made to find that exact word I need. As an example, I used AI to remind me just now about the term "Natural Language Processor," which, along with the term "machine learning," is frankly just a better description than AI for these tools. But I will continue using the term AI for convenience.

The fact that people do not imagine this sort of use in conjunction with AI IS a form of ablism. They immediately assume all use is infringing. If they actually talked to people with disabilities (who do use AI), they would discover these other uses, and perhaps the conversation could be elevated to a more constructive state instead of trying to make everyone who uses a tool feel "yikes" for using it. Many of us are extremely conscientious and well informed of the issues involved.

Consider that if someone has said something is ablist (or classist or any other -ist,) they just might have a point and that you should try to discover what that point is before assuming that it's fake. Don't take everything at face value, but don't dismiss it out of hand either. Listen to people who have differing opinions and try to get the nuances of the conversation.

When people think about AI being used in conjunction with writing and visual art, they only consider the egregious uses - which makes sense, as that is how AI is advertised; as a magic technology that solves ALL problems. But those egregious uses are not the only use of these tools. AI does not have to be a magic wand that replaces the creative process of an artist. I have given one example of such a use above, but I could list many more.

If your "yikes" is in regard to the ecological impact - I hope that the overzealous implementation of AI into everything takes the ecological facts into account and that is ammealorated, but please do not throw people with disabilities under the bus while trying to make buses less polluting.

//The only use of AI in this post was to help me remember the word Natural Language Processor - I know my tone is pretty formal and sometimes comes across as AI, but it's not.

Jeezly fucking crow, dude. It was a single-word comment. I hope you sent this to literally everyone else who commented in a similar manner.

I also have ADHD. I also struggle with word recall. You know what I do? I google things. I use dictionary and thesaurus websites. I use OneLook, which suggests associated words, similar words, and similar concepts.

Not everyone who uses AI is stealing from artists, no, but it's well known that AI does scan people's art--almost always without their consent--to generate pieces. It's also been seen around places like AO3, scraping fics from unlocked accounts.

Personally, I dislike the implication that disabled (or poor--that's what "classist" means here) people are incapable of writing without an AI generating something for them. I've written 100k+ words on AO3, and all of them are mine. I've talked to friends, I've written parallel fics, I've rewritten my own stories, but those words are mine. I wrote them. A disabled person. To imply that I need AI to do that pisses me off.

And believe it or not, my primary dislike of AI isn't ableist or classsist or whatever. (I'm not even against all forms of AI! I understand that in some fields, analyitical AI is quite helpful--I've read that it's great at finding breast cancer, for example.) My primary beef with AI, especially generative AI like ChatGPT is the fact that:

It will just lie to you. It will just make up things. There are people who have used it in court cases (it didn't work), and there are people using it to write books--everything from cookbooks to mushroom identification guides. (Guess what amateurs need expert help with when they're starting out? You know, so they don't die?) It's also happened with animal care guides. AI doesn't need to be used in a generative context at all.

There is also a massive environmental impact that I rarely, if ever, see talked about.

#bots and ai #don't come at me with this ableism bullshit kiddo #i'm the same flavor of disabled as you #and i've written my fair share of words #nanowrimo #can go fuck itself #feel free to reblog this if you want to

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room-surprise · 8 months

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Hey! Fun question, how do you think an in-canon kabumisu confession would go? People keep portraying mithrun as blunt and straightforward about their relationship, but would he be scared to tell kabru in the chance that he'd say no and leave? Is the desire to just be in a relationship with kabru, or is the desire of not wanting to scare him off greater than that? I'm so starved on the lack of post-canon kabumisu content, they make me go crazy

As usual, I'll try not to go into TOO much detail because then I won't be motivated to write fic about it... and I AM planning to write a post-canon Kabumisu fic anon, so don't worry. I'll get there eventually :3

They make me go crazy too 😔

I think Mithrun's a complicated guy with complicated emotions. Even when he was "empty" in the dungeon he actually showed a lot of feelings - smug satisfaction, annoyance, anger, even a little bit of subtle happiness.

So while I DO think he will still be blunt in general, I also think it's a mistake to assume that means he doesn't feel things and won't have anxieties and insecurities just like any other person.

Mithrun used to be WILDLY insecure, and jealous, and paranoid. He just stopped caring about anything, but if, like the end of the manga suggests, he is going to try to START caring again, he will then start to have feelings, too.

I think Mithrun is intensely aware of his own "undesirability", that's one of the reasons he's BEEN so depressed. Most of his self-worth before the dungeon hinged on being "better" than his brother, and better than other people. Then he looses that (or maybe he was never actually better at all!), so what does he have left? And now his youth is gone too, he's middle-aged and lost his "best years" to depression. He's disabled, he's scarred, he's a bastard that nobody wants.

It's a pretty huge fall from "most eligible bachelor in the empire"!

So I think no, he won't just bluntly tell Kabru that he likes him. It will take Mithrun awhile to realize how he feels, and once he does, he'll be afraid to reach out, so he's going to do what I call "playing silly little elf games". He's going to try and flirt via writing letters and sending gifts, to hint that he likes Kabru.

Luckily for Mithrun, Kabru also knows how to play Silly Little Elf Games (he's an Olympic champion), so he picks up the signals and starts reciprocating, though he's also uncertain and worried that he's misunderstanding. Captain Mithrun couldn't be flirting with him, could he? But... what if he is?

(I will go into Kabru's feelings at a later date anon i promise.)

I think the thing that will ultimately push Mithrun to act is the fear that he'll miss his chance. Mithrun realizes Kabru is a limited time deal that he can only enjoy for the next 60-something years, and he wants every minute of that time for himself, no matter how much it will someday hurt to lose Kabru.

And he also knows that Kabru is very handsome and charming, and he can't expect Kabru to wait for Mithrun to get himself figured out. Someone else will swoop in and snatch that man up, so Mithrun has to hurry.

ALL OF THAT SAID... I think their confession is a lot less of a confession, and much more "we have both been picking up these signals of interest for months/years, and finally one of us pushes it a little bit further than we've ever pushed it before and we acknowledge the unspoken thing that has been growing between us."

Maybe it's a hand resting on someone's leg, or a gentle touch on the arm. Maybe it's leaning in so their shoulders touch. Maybe it's looking into each other's eyes a little bit longer than normal.

Probably it involves both of them admitting "Spending time with you makes me happier than anything else in the world. Whenever we're apart all I think about is when I'm going to see you again. I spend hours composing letters to you in my mind. I want us to spend our days together, no matter what shape that takes."

It's very vulnerable and scary for both of them, and I think they're both DEEPLY relieved after they finally get it out, and they don't get rejected. They know each other so well, and they're so good at reading people - they both thought that the other might feel the same way, but it's so scary to take that leap of faith and hope that they're right.

And just for the record, I think that Kabru worries about if Mithrun will be interested in sex or not, because sex is something that matters to Kabru, but what if Mithrun just doesn't have any desire for it?

And so before they get into a relationship Kabru has a long hard think about it, and decides that even if they never have sex, he wants to be in a romantic relationship with Mithrun anyway, because just being around him makes him feel happy, and understood, and like he isn't alone anymore. There's someone who sees him as he is, all the good and the bad, and says "I love you anyway."

And Kabru decides that he's willing to just jerk off for the rest of his life if that's the price of this relationship that he wants.

Luckily for Kabru, I think Mithrun does want to have sex with him, but I like to think that Kabru thinks through all the possibilities and decides that no matter what they end up doing together, being with Mithrun is worth it.

#dungeon meshi #delicious in dungeon #dunmeshi #kabru #mithrun #kabumisu #my stuff #kabrun #analysis #headcanon

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