#i can see myself engaging more in cohost: )
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WELL good a time as any to mention I'm over at Cohost & Bluesky catching up w my backlog:,) I wanted to take my time but... uwahhgh
#not art#so far im liking cohost more#bsky is ehh#i can see myself engaging more in cohost: )#bsky will likely be more barebones keeping up but not keepin an eye
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i can't really afford to leave here. twitter used to be my main haunt — it's slowed down to a terrifying degree, to the point where i've felt immensely relieved that i never abandoned tumblr. despite mostly equal follower counts (though who knows how many are bots, on both sites), my stuff now gets like... easily 2-4x the traction on here as on twitter. and when i talk abt traction/engagement, please know i'm not talking about "my feelings get hurt if i don't get likes :(" i'm talking about like. ppl seeing my art, and especially seeing announcements about projects i'm working on etc, is how i get jobs and make enough money to support myself. including people who ALREADY FOLLOW ME and WANT to see the art, which is what has specifically been scuttled on twitter
but now, uh, lol. are we just going to keep getting kind of juggled back and forth between two slowly dying sites
i have a cohost that i haven't set up yet. i have a bluesky that i'm struggling to remember to use. it's already hard to keep up social media and realistically i don't think i can seamlessly just add two more on top, and like i said above i can't afford to abandon the existing audiences i've built up on tumblr and twitter, where all my work comes from, and Hope that enough ppl are going to follow me to new sites for me to keep going
i want to make a personal website. i want to make a mailing list/monthly newsletter. i should have been working harder on those things, we've been seeing the writing on the wall for years. but i am at the limits of my energy and ability just doing enough to make a living every day no matter how casual i am about it and the fact that all of this hard work can be destroyed just by websites deciding to blow themselves up is extremely exhausting
idk. i don't want to end this on a totally miserable note. thank you for being here and for supporting the artists you follow as everyone repeatedly tries to destroy our livelihoods, genuinely
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"why not just make your own website?"
with the announcement of cohost's death and amidst all the other tumultuous shit currently going on with social media as a concept (i am AMAZED twitter has survived this long given the circumstances), one suggestion that i've been hearing a lot is "we should just go back to the good old days of personal websites. let's all just make neocities pages!!"
(this is gonna be a long one sorry)
and like. idk! it's certainly something i've considered, i think it would be a fun thing to have, but it also feels like the equivalent of "capitalism sucks so let's all just run off into the woods and live in a cabin outside of society" to me. like it would be nice, it would be fun, but it doesn't ultimately solve the actual problems that are present with the modern internet, it just evades them. more importantly in my case and many others, it does not really help people who rely on the modern internet and the connections they're able to make there for their income. sure i can make a website and host my art and blog posts there, but who's going to see it? i can't build a consistent audience and make a living off of random passersby who peek at my website once, say "huh, neat!" and MAYBE add it to an RSS feed or whatever if they really like it. there's minimal potential for meeting and impressing new people outside my existing circles if i don't ALSO still have some manner of social media platform to promote the website on.
a lot of the "solutions" i see people proposing for the slow, painful decline of social media as a user experience keep coming back to old-fashioned, more isolated/insular systems. we miss forums, we miss personal webpages, we miss newsletters, etc etc. but like... those things were ideal in the "old web" because the old web was more about sharing hobbies and interests with whoever happened to pass by and check them out, and even just USING the internet was a niche hobby in and of itself for a lot of people. if you wanna be kinda cynical about it (and not unjustifiably so), web 2.0 is much more blatantly business-oriented, and its algorithms and carefully crafted UX's are primarily meant to funnel you towards viewing ads and spending money on products. looking at it that way, it sure does suck and Everything Was Better Before! but the modern web is ALSO more powerful than anything before it for just like. connecting people. spreading information and news. showing your art/music/writing/thoughts/etc to strangers who never knew you existed an hour ago. putting the tools to reach out to someone and tell them you think they're cool right there on the same website where their art is hosted, just a comment or a message away.
if you're able to avoid patterns of engagement-bait and obsessing over follower counts as a measure of self-worth (a big "if", i realize, but i view it like installing an adblocker - it's just kind of a basic prerequisite for modern internet safety and survival), a lot of these systems can genuinely be really positive and life-changing in ways that were simply not possible 20 years ago! almost all of my current closest friends are people I met through sharing our art on platforms like Twitter who were complete strangers at the time. all of the art clients that regularly pay my bills and support my work came from places like that too! the "social" part of "social media" is really what makes it ultimately worth keeping around in any form, and makes the pursuit of a Good social media platform still valuable.
there's a lot to love about the old web - its aesthetics, simplicity and freedom for personal expression - but every time someone says "just delete your socials and make a personal website" i am forced to confront the fact that i could never do what i currently do or be the person i am on the old web. if i was stuck hanging out in my own little space and only ever interacting with people who openly and loudly share my interests, i couldn't support myself with art full-time, i probably would never have met the kind and quiet strangers who are now my best friends and have made me who i am, and i'd just generally get a lot less insight into the vast range of experiences and perspectives that exist outside of my own. my life would be on a fundamentally different trajectory in countless ways without the advent of web 2.0.
and that's not to say "well twitter and facebook and tumblr all suck but you kinda still have to hand it to them" cuz you don't, obviously. they're corporations, and their job is to take the personalities and thoughts and art of the people who use their products and try to scrunch it all into something uninform and marketable that generates profit and pleases their shareholders. but like, you CAN still make a good thing out of them! these websites are tools just as much as geocities or myspace or IRC used to be. and the one thing these newer tools are pretty much all REALLY good at is discoverability. if you're just a hobbyist at the things you wanna share on the internet, then you likely don't have a lot of use for those tools, and perhaps you WOULD genuinely be happier just keeping a personal blog site or hanging out in private groupchats or sticking to specialized federated Mastodon instances or whatever. it just isn't feasible for me, and there are a LOT of people in my same situation. my entire industry of online freelance artists barely existed 20 years ago, and the web culture of that era is largely incompatible with my continued survival in the mid-2020s. i would LOVE to run off and live in the woods in concept, but all my survival skills are adapted for city living and i would just eat the wrong berry and die out there. i want- i NEED people to try and improve the spaces we're in, and support better forms of social media (like what cohost was trying and largely succeeding to do!) instead of just complaining that it all sucks, everything was better when we were kids, and digging ourselves little holes to hide in. much like all the other problems and frustrations and systemic issues of the world we live in, the modern web isn't going to go away if you just ignore it, so we may as well try to make it better for everyone.
anyways tl;dr i probably WILL make a neocities at some point. it could be fun, even if it doesn't help my career stability or whatever. but i do also need ALL THE SOCIAL PLATFORMS I USE FOR MY JOB TO STOP EXPLODING PRETTY PLEASE, and failing that, some actual half-decent alternatives that aren't going to fizzle out in a month would also be great thanks ✌
#buny text#webbed site#long post#sorry this one got embarrassingly long and i probably repeated myself a lot#i've just essentially had this same conversation like 8 times in the past 24 hours and wanted to actually put my thoughts somewhere public#i hope it doesn't come off like i'm snapping at anyone either. i know this suggestion is always made out of a desire to be helpful#and i do appreciate it and have given it no shortage of thought#i just needed to explain why it isn't a viable solution for everyone and why actual good usable social platforms are still important
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If you do leave tumblr where can we find you?
For now I'm not going anywhere but as for the future?
I don't know yet, honestly I may just limit myself to hanging out with my friends on Discord. It seems like it's pretty unavoidable that if art or writing is posted anywhere on the internet it's going to be used to train AI, if not today then likely in the future, and there's not much we can do about it. I also know that a lot of the anger I feel about it is pretty irrational and comes from a petty place. There's a tendency for people online and IRL to like my work but ultimately treat it like disposable content because that's the current culture around any kind of media sharing, the consumerist attitude towards art, film and writing these days has made me pretty weary. Knowing that what I make could be used to train an unfeeling machine to pump out content that is more technically impressive but meaningless and there will be people out there who think that's a good thing just leaves me feeling bitter about the whole landscape of social media. I've heard so many defenses of AI "oh it's a tool for people who can't draw to make art!" and "Everyone should be able to get art! Especially those of us who are poor and can't afford commissions" The art I make isn't really valuable to anyone by myself, and never will be, but something about knowing being an artist is no longer valuable to masses of people and possibly never really was is such a bleak feeling. Especially seeing how much AI is winning and how there are AI blogs and Instagram accounts with thousands of followers who don't want anything out of art except "cool imagery" Tumblr was already the last place where I felt like I got actual engagement with people who were curious about my characters and who actually seemed to enjoy the things I created. I felt like I was sharing something, but increasingly that feeling has begun to fade. Tumblr keeps trying to be like other sites like twitter and instagram and this latest development might not drive me off just yet but I feel like it's only a matter of time before I do break up with this hellsite. I've made a cohost here but so far it's pretty dead -> X I have a pillowfort here -> X
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I'm changing my blog
I've been slowly becoming more and more happy with my feed and the way I engage with tumblr. It was meant to be a casual escape for me where I could cultivate cute pics and nice art for myself as I recover and wind down from my bad time using twitter and mastodon. Though over the years, since Elon has bought out Twitter and now with the closing of Cohost, I'm seeing more vitriol on tumblr than I ever have and realizing I need to mass unfollow a bunch of things to where it's all practically wordless art and aesthetic posts again. I've also deleted tumblr from my phone and want to prioritize more creative habits, and when I can I want to go back to sharing more of the art I make online. On this account here ideally and not really a side thing. But it's a slow moving process because of rl things. In any case, I'm just sick and tired of how crushing its felt lately and I shouldn't continue to do something that makes me feel unhappy if I can help it.
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psDntyw or Pesdjentiu; one moon, many names
originally posted on cohost and on my neocities!
I've returned to the subject of calendars once again with a new question. I am moving away from a solar calendar and the holidays of Pharaonic Egypt to a lunar calendar with personal, intuitive holidays. I'm sure this won't the the end of my relationship to the ancient calendar - but another journey of discovery that will culminate in a mix of both.
I started feeling out of sync with the Kemetic Orthodox calendar even before I left the House of Netjer*. It was a great tool to use in community with others, but in solitary practice it left me feeling untethered. It didn't connect to the land I live on; it rarely related to the day to day devotional practices I was developing. So I floated away, bobbing down the river to the sea.
The gods steered my ship across the Mediterranean: toward druidry, towards animism, towards Hellenism. I found things to learn - and still have things to learn - from these practices. Among them: a focus on the seasons here in Boston, along with re-tethering myself to the Moon. In 2020, my spirit work lead me to a relationship with a new entity. As a lunar spirit, she stirred the pot, urging me to be more mindful and open to change. Nothing stays the same, she reminded me, yet everything returns to where it began.
I have recently gotten to know a new group of Egyptian polytheists, many of whom are Egyptians themselves. Through their encouragement, I've started exploring how living Egyptians, regardless of their faith, engage in worship and mark their time. After all, my new peers remind me, Egyptian religion and polytheism did not end in the Pharaonic period.
The Islamic calendar (or Hijri) is a lunar calendar. Each month begins with the first observation of the waxing crescent (or Hilal). There is some debate on when precisely when the Hilal can be observed, though it is certainly after sunset.** Additionally, there is great debate over if one may use astronomical calculations to determine the presence of the new crescent or one must see it with their own two eyes. In the case of physical sightings, weather and geography can play a huge role in if the moon is visible at all on 29th day of a lunar cycle, resulting in different countries being on entirely different calendar dates than their neighbors!
Now what does that have to do with me, as a practitioner of Egyptian polytheism?
As someone seeking to reconnect my faith to the cycle of the moon and the seasons, I turned to what I know of the lunar calendar in the Pharaonic period. They too began their lunar months with the sighting of the first crescent; and in some places, this day was sacred to Ptah (see Dr. Siuda's The Ancient Egyptian Daybook). Now, these days I'm more of a Ptah-lytheist than a polytheist, but nothing feels more validating than seeing someone else's research point to what you're doing in neon signs saying "GO FOR IT"***.
Modern arguments on the topic of the sighting of the Hilal include asking if the process of looking for the moon is itself an act of worship. I take my cue from this argument. For myself, in adapting a modern practice to my ancient faith, observing the moon is absolutely an act of worship. It would be to have a convenient, set date like the new moon's zero percent visibility, or to even calculate when a single percentage of the crescent is theoretically visible. But it is much more in line with my animism, with my reverence of the place I live, with my desire to reconnect to the natural world, to take the time every night to step outside and admire the moon.
Tonight, I walked home from work and eagerly gazed the skies. Finally, after a few grey days, I spotted the crescent, rising just behind our local mosque. Happy first Pesdjentiu of 2024, Boston. May Ptah-Djehuty restore our light once again.
─── ⋅ ∙ ∘ ☽ ༓ ☾ ∘ ⋅ ⋅ ───
* I believe that Kemetic Orthodoxy / the House of Netjer is a cult. I witnessed so much emotional abuse and financial abuse in my ten years there. If you would like to discuss this privately, DM me. It is never too late to leave, no matter what they make you think.
** This is all very beyond my scope as a non-Muslim, but I would encourage interested parties to take the time to learn more on their own!
*** My relationship with Dr. Siuda is complicated (see note 1), but I won't deny she is an excellent source for information on both Pharaonic Egyptian religion as well as Coptic Christianity. I still use their Anglicization of psDntyw in English writing.
#kemetic polytheism#kemetic#kemetic fandom#kemetic pagan#kemetic paganism#kemeticism#egyptian paganism#egyptian polytheism#ptah#ptah-djehuty#lunar calendar#syncrectic paganism#moon worship#Pesdjentiu
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My first ever post on tumblr! I’m genuinely surprised it took us this long to download it. Hopefully our art gains some traction on here, I’d love more engagement with the art community!
I’ll properly introduce myself!
My name is Grillby, I’m the host of our D.I.D system and likely one of the main artists you’ll see on our page. I use he/him pronouns and I’ll usually sign off with my name or -❤️🔥
Here’s a self portrait I’ve made recently. (I’m on the right)
The second most likely artist you’ll see is our cohost G, who uses any pronouns and might use this platform often. He commonly signs off with -💛 but also uses -G.
(We’ve quickly come to realize we don’t have many SFW drawings of G… so. Here’s the best I could come up with (drawn by the previous host of the system, but edited to just show G.))
You may also see art from other alters, who will surely make themselves known when they must, but for know I’ll keep them anonymous out of respect.
We both try to draw often and our drawings range from self portraits (which I suppose doubles as “undertale fanart” though we try to distance ourselves from the game for personal ((and likely obvious)) reasons) and portraits of our partner, Shy🥹🫶🏻❤️🔥 (maybe we’ll try and get them on here too, one day).
We may also talk about our personal experiences with our dissociative identity disorder, as that’s something that affects us a lot in our life that I’m sure fellow systems will relate to. We’ll try to keep that on the low though, as I mostly want this page to be used for ART about our system/life and not the system itself. Of course I’m always okay with questions about anything, as long as it’s respectful.
I hope we can meet a lot of good friends on here, and meet a lot of artists who we can become mutuals with :)
I’m excited to see where tumblr takes us.
Enjoy our page!
-Grillby ❤️🔥
(Please only repost with credit and please do not trace or steal our art<3 Thank you.)
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cont. bc I just need this gone from my brain rn
this has just about been one of my top two crises this year, alongside my fear of joining the rat race. I mean, it's been happening for way longer, but after leaving school and quotev fell apart, I essentially have no social life. at least with q I could be in the same space and still be friends w people and it was easy. it was my little corner with a few people I liked. cohost was gonna be okay for me, then that failed too
school I had a rough time making friends my first year bc all my good friends moved to other schools or abandoned me for new groups. then I got new friends but I never really clicked with them ?? sure, I'm still mates with some of them now, but it's awful for me to know that I wouldn't (and actively don't) go out of my way to see them. they're all doing other things and they've changed way more than I ever have. it's hard to talk to them now especially that they're absolutely fine doing their thing and working for the man. I'm not, I refuse, and I'm ashamed that all year I've done nothing so I don't want to catch up, only to give the same update I did 6 months ago
I don't seem to truly connect anymore unless I feel safe enough to engage in deeper conversations. we might share values, but not interests or we have nothing in common at all. and it's not to say I don't like those people, bc I do. it's just that I miss that deeper link. I miss my irl best friend, I miss my former qpps. I miss having real people who understood me and I can talk to for more than a couple messages here and there
sometimes I don't know if I'm the problem or this is just the plight of trying to maintain/make friends as a new adult. it's hard, and no matter what I do to try and help myself, I don't feel like I'm getting anywhere. it's exhausting. I'm so tired of being alienated and lonely and idk what more I can do. I just feel like this being beyond time, meant to drift in this empty space. I'm trying so hard, but nothing pays off
I'm not unlikeable, not that I know of. I'm just incredibly hard to reach. getting to know me takes time and effort no one has and I fear it may go the other way too. idk, I'm missing that instantaneous spark and I have been for so long now
am I the problem ? I feel like I'm the reason why I'm so isolated all the time. I don't know what to do with myself anymore. do I just come to terms with the fact I may never have friends again and just,, suffer for the rest of my days ?? idk
I've been perfectly happy this year being by myself and doing my own thing, then every now and then, this hits and I can't get over it
oh,, okay (we back on the "I have no friends, everyone hates me, I can't click with anybody anymore, I only have casual friends and no real besties and nothing is ever enough for me, I can't just be happy with the disconnected assortment of people I already know. I'm an awful person" bullshit)
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a word of warning
well here’s a post i never thought i’d be making
it’s come to my attention that a Certain Someone is planning on making a comeback to WrA soon and it fills me with nothing short of dread. i spent the day yesterday warning people he terrorized and manipulated that this was happening. you know it’s bad when there’s a literal network of people who share an abuser that have remained in contact for years in the event this happened again.
i am not going to lie and say that making this post does not terrify me but i cannot in good conscience sit back and let him worm his way into the rp scene again and do what he did to me and at least half a dozen others all over again.
to summarize: tarcanus aka tarcanus frostborne is a manipulative, emotionally abusive and predatory individual that should be avoided at all costs.
i am the player behind lyrinel, a former officer of his and someone who was on the receiving end of nearly a years worth of abuse and manipulation. my experiences pale in comparison to those of others who dealt with him and came forward to me after i left his guild, and i cannot speak for anyone who does not feel comfortable coming forward. if you do want to let your voice be heard, feel free to reblog and add your own anecdotes.
my story below the cut.
tw: manipulation, emotional abuse, gaslighting, coercion, grooming
i first joined coram populo in early 2014 after my best friend and fellow survivor (i will refer to her by her character’s name of thradia from here on out) joined the raid team in december of the previous year. we were both just looking for a social place to park our characters and maybe start role playing again, as we hadn’t had a guild or dedicated rp group in a while. things were fine and friendly for the first couple of months, though it’s worth noting that a large part of the office corps had just left or was in the process of leaving when thradia and i joined. we were both 18 at the time.
i made the mistake of reaching out to tarc in the spring, when i noticed him posting to his tumblr about how busy he was. i offered to be an IC assistant of sorts to his character and he was more than happy to toss me into an absolute whirlwind. we still didn’t know much about each other, but in the span of a couple weeks we went from casual contact in guild chat to immensely long (sometimes between 10 and 12 hours) skype calls, constant DMing, and an almost uninterrupted stream of conversation. i was struggling to finish high school at this time (spoiler: i failed to graduate) and found myself suddenly caught in an all-consuming relationship with this man and his guild. from the moment i woke up to the moment i finally hung up and crawled into bed, my time was taken up by tarc and the guild and the game.
i was promoted to officer less than five months after joining the guild. this was overwhelming for a number of reasons, chief among them being the fact that i had never been an officer in a guild like this before and i was very quickly escalated to tarc’s “inner circle.” this was a circle that he evidently didn’t even include his most senior officers in, as he didn’t seem to communicate with them to the extent or abundance that he did with me - and later, when she was ALSO promoted to officer, thradia.
within a few weeks i found myself at the center of dozens of micro-confrontations and venting from tarc about other members of the guild, raid team, and even fellow officers. every time, i would tell him he needed to take it to his co-gm and talk it through with her. she, like him, was a grown woman with a lot more experience and better people skills than me, a teenager barely out of high school, but tarc insisted on beating me over the head with his frustrations and then proceeding to guilt me and tell me i was a terrible friend when i didn’t agree with him or expressed i was uncomfortable being in the center of a vent session that i felt was unwarranted.
tarc was never wrong. he did not apologize. the words “i’m sorry” did not exist in his vocabulary, and if they did, they were almost always followed up with the word “but.” constantly he would be sending multiple messages to me or thradia while we were running events and raids for the guild, ranting about a few particular members that he disliked at the time regardless of how we felt about said members. thradia and i would both be reduced to tears and/or anxiety attacks by his outbursts that all but demanded we take his side even if we didn’t. his feelings and circumstances were paramount. everyone else’s were just inconveniences.
tarc was always the victim. no matter what was going on, no matter who had instigated whatever vein of conversation we were on that had gone awry, he had a way of making you feel like utter shit until you grovelled for his forgiveness, which he rarely gave. instead he would move on without giving any closure or allowing you to discuss your feelings at length. if you tried, you were the insensitive one who he couldn’t go to with his “unfiltered emotions,” which was the entire purpose of his inner circle to hear him say it. i was not allowed to just be his friend or just be an officer, i had to be both and neither at the same time, and it still was not the right course of action. nothing ever was.
tarc was openly manipulative and antagonistic, always citing it as an “inside joke” when called on it. i opened up to him once about my father’s alcoholism and how i was uncomfortable with alcohol culture and being around drunk people. regardless, he would constantly call while drunk (or maybe he was pretending to be to get a rise out of me, i honestly do not know what was genuine and what was put on with him) and make me stay on the call with him for hours. when he was (allegedly) diagnosed with an inability to process certain alcohols that could be life threatening, he continued to drink (or claimed he was drinking) dangerous amounts, which lead to me begging him to stop as i feared for his life. one of the worst anxiety attacks i have ever had was over him endangering his health and me believing i was going to see a friend die. he knew how much this upset me and he did not stop. he held me as a captive audience to his self destruction (or the playacting of it) and let me cry and beg and plead with him to take care of himself.
tarc loves to promote a clean, “family friendly” persona online. he will go on and on about the positive atmosphere his guild provides and how progress and accepting he and his “safe spaces” are. as soon as you are inducted to his inner circle, however, you learn otherwise. he will gladly engage in sexually charged conversation with you, even if you are ten years younger than him as thradia and i were. we were both legal adults, yes, but just barely. i can’t count the inappropriate remarks and jokes made about us, our friends, and even minors all in the spirit of joking “what if” conversation. he has a history of making young LGBT+ people uncomfortable, making their sexualities and identities about him and how he can relate to them.
tarc was the most two-faced and divisive guild leader i’ve ever seen. he would rant to me mercilessly about wanting to kick one of the junior officers and raid team members in private while never saying a word to their face or bringing it up with the co-gm. he would start schisms between people, telling each what they wanted to hear and encouraging both parties not to confront each other about it, allowing the resentment and distrust to grow as he fanned the flames on both sides. he wanted people to stay in the guild and continue to basically work for him while also putting him above anyone else in their friend circles. he told straight up lies to thradia and i, claiming one of us had said things about the other that we never did, driving a wedge and distrust between us.
tarc treats his guild(s) like a business. he is entirely capitalist-minded even in an MMORPG that people play for fun, churning out “content” and keeping up appearances like a machine. he treats his officers and guild members like employees, not people. any time irl would demand attention away from the game, forcing someone to miss or cancel an event, he would subtly guilt them about it until they apologized, even if it was a dire situation or a family emergency.
when tarc wanted to start a wow roleplaying podcast, he approached me about cohosting. he wanted a female voice, and since i was out of school and had no job lined up due to not graduating i was the perfect candidate. i came on to narrate and research the lore segment of the looking for roleplay podcast, which was little more than me paraphrasing a wowwiki article, but i was held to a “professional” standard. i had to have my research done by a certain day, my recording done in advance, etc.
the podcast was a spot of contention for several reasons, one being the mysterious emails tarc would allegedly receive about it. the podcast had a shared email account that all three of us could access and look at, but tarc claimed that people sent emails directly to him since “everything’s under his email.” he would use these strawman emails as indirect criticism of turwinkle and i, reading them aloud or typing up what they supposedly said but NEVER producing a real screenshot or address to verify them. i’m convinced he only did this as a way to make turwinkle and i feel badly and work harder “for the listeners” to appease things tarc didn’t like about our segments. he also insinuated he got inappropriate emails about me specifically at this account but, again, i was never allowed to see them with my own eyes, just hear about them secondhand, which is why i believe they did not exist.
around this time, tarc began recording conversations without mine or thradias consent. he would start recording random sections of calls and taunt us, playing back out-of-context lines and joking that he would make “podcast commercials” out of them. they were often embarrassing, personal, or just wildly out of context lines that we didn’t want played to the public, and i heard only a fraction of what he possibly recorded of me. i have no idea what kind of material he has of me and thradia that was recorded without us knowing or consenting. it felt like blackmail. it still does.
i internalized all of this. i thought this was normal. i thought he was an excellent guild leader and a role model for leadership. i had begun to treat world of fucking warcraft like a goddamn job and i thought that was fine. my life revolved around coddling and entertaining him, socializing and promoting and recruiting for the guild, raiding, running pvp entirely on my own, keeping up IC connections and attending events, recording for the podcast, all of it. i ate, breathed, and slept wow and coram. it was insane. i had been talked into having no boundaries for myself and my time, and any time i tried to correct that and build a boundary i was attacked for it until i backed down. i have never felt worse about myself than i did while i was in this guild. i trusted no one. i was worn thin.
i finally had enough early 2015. at this point this man was trying to get me to come live with him hundreds of miles from my family so that i could attend a technical school in his area. i am still 18. he was 28. i had been trying to step down from my position as an officer, citing if i was going to be LIVING WITH HIM that it was going to give me an unfair bias in my standing in the guild. this set him all the way off. he was planning a trip to atlantic city for me, himself, and thradia, who i had a ticket to visit for my birthday. he was getting frantic because he had been pursuing thradia for months, and i was no longer cooperating.
when i threw this wrench in everything, our relationship devolved in the span of a few hours. within the day i left the guild on all of my characters and pulled myself out of all of his projects. within the month i had frantically faction changed several characters and eventually unsubscribed from the game for two years because i lived in fear of him. he had always alluded to “knowing people” who could hack and track IP addresses and kept tabs on everyone who visited his blogs and websites. i didn’t know what i thought he was going to do - all i knew was his thinly veiled brags and threats were at the forefront of my mind. i have played this game since 2006, but for the first time in my life i couldn’t enjoy it out of fear and exhaustion caused by him. he had ruined my favorite game in less than a year and made me paranoid about my entire online presence, to the point where this blog was abandoned for months before i turned it into what it is today.
and the thing is, tarc’s not a creepy or abrasive guy when you first meet him. he’s funny and charismatic and outgoing. he loves to tell you about his world travels and show you pictures of him petting baby tigers at rescues in southeast asia and go on about these crazy winnings he would have in vegas. he’s larger than life - at least online. he came to visit me twice in the year that we knew each other. the first time was also the first time i had ever met thradia in person, and we had been friends for six years at that point. he has met my family, and that of several other members (both my age and older). no one ever questions why he’s there. no one ever thought it was odd that for a week he hung out with three teenage girls exclusively.
this horrifies me to this day.
thradia and i are still best friends. we compared notes and were sickened at how we were played against each other. slowly, i returned to the game. i reached out to people who had left or been on their way out when i first joined the guild, curious to see if there was a common thread. there was. everyone i spoke with had similar stories: being made to feel like shit, nothing they ever did for the guild was enough, they weren’t allowed to miss events or raids no matter what the reason, they were questioned and joked about inappropriately and made to feel uncomfortable and preyed upon, etc. i was not the only one. thradia was not the only one. at least half a dozen other former members and/or officers had these stories, and tarc just kept getting away with it.
he cannot keep getting away with it.
i am being open with this for the first time in six years because i don’t want to see it happen again. because i don’t want to know that, had i said something sooner, more people could have been protected. i was 18 when this was going on. i had no real world experience. i had no standard for how i should be treated, much less by someone almost ten years my senior and who claimed to be my friend. but he knew better. he should have had boundaries and space and lines he refused to cross. he did not. he crippled my trust in people for a very long time. i have only become comfortable playing wow on horde side again in the past year or so. i finally stopped looking over my shoulder, /who’ing him and his guild, avoiding rp hubs. but now i feel like i can’t do that anymore. the safety i have worked so hard to achieve for myself is now threatened.
i understand my experiences are mild in comparison to what some offenders on this server have done. but at the end of the day, this year was the worst year of my life. to this day, the skype ringtone literally triggers me because i associated it with him and his endless calls that i never knew what to expect from or how to get out of. i can’t look at certain parts of the game without feeling fear. for months i held my breath going online or logging into wow because i was waiting for him to pop up and start accusing me of things or trying to guilt me into coming back.
tarc ran coram populo, a guild that, as far as i know, still staggers along with a few members who can’t be bothered to leave. whether or not he’s planning to return there, i don’t know. he organizes and runs (from what i can tell) the azerothian trade federation (whatever the fuck that is). i don’t know what his plans are. i don’t know what his online presence looks or will look like when he comes crawling back. but i beseech you, do not give him the time of day. do not give him a platform, no matter how nice and “woke” he makes himself out to be. he lures you in with humanist ideals and then sucks the absolute life out of you- and that’s if he doesn’t want to pressure you into a relationship on top of it.
to tarc: if somehow you’re reading this, stay away from me. keep my name out of your mouth. i do not want an apology and a string of half-assed, gaslighting excuses. i have records of past conversations. i have screenshots. i know what you fucking did to me and to my friends. i do not want you back. i do not want you here. i do not want to share space with you. i want you to go away and never come back.
you alone made it so hard to trust myself and other people. thradia and i both have had to seek therapy due to you. and now, you have the audacity to come riding back into the scene on a white horse, being self righteous about abuse and predatory behavior online, and have the utter gall to condemn behaviors you yourself emulated without apology or second thought. i know you think you’re a good guy. that’s what makes you so fucking dangerous. you genuinely don’t think you’ve done anything wrong, and if you do, you’ve buried it and squirreled it away and have covered it up to the point where you can turn any accusation back on the claimant.
do not attempt to contact me. do not try to threaten or appease me. go back where you were. i am finally at home again, and you will not take that from me. go. away.
#wrymrest accord#wra rp#wra community#okay to reblog#i am going to basically go dark on here now and not check on this#i have gotten ohysically ill from dredging this shit up#i will not be engaging past this point so whether you believe me or not i do not care#i know my truth and i know what happened to me even though i was gaslit to hell and back
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Black Woman Creator: Jamie Broadnax
Jamie Broadnax is a blogger and founder of Black Girl Nerds. She has written for Madame Noire and The Mary Sue. In 2014, Jamie was accredited by MSNBC The Grio.com’s Top 100 list for being an online community builder in the tech space and innovator for Black women to feel comfortable with embracing their nerdiness. In the September 2014 issue of Marie Claire magazine, Jamie was recognized by TV powerhouse Shonda Rhimes as one of her favorites to follow on Twitter and AT&T’s The Bridge as one of Four Black Techies To Follow On Twitter. Most recently, Jamie completed a successful Kickstarter campaign to create Universal Fan Con, a multi-fandom Con dedicated to inclusion highlighting women, LGBTQ, PoC & the Disabled and is a managing partner with the company The Black Geeks. On Feb. 1, 2017, she launched the podcast Misty Knight’s Uninformed Afro Podcast, the first podcast dedicated to giving Black superheroines their due. She also hosts Rewire Radio’s series “Get It Right” that fuses reproductive justice issues with social justice topics. In her spare time, she likes to write, read books, and live-tweet TV shows. Jamie spends a significant amount of time on Twitter connecting with the BGN online community, and when she’s not tweeting, she enjoys reading comic books and traveling to conventions to meet and greet fans. We spoke to Jamie about her work as a creator.
Black Girls Create: What do you create?
I create content for a website called Black Girl Nerds. I’m the Editor-in-Chief and in that role I write editorials, film critiques and TV recaps, and sometimes personal essays. But I also edit and assist with making sure our articles look good when they’re on the site, and that they’re SEO friendly. I also create podcasts. Every week we air a weekly podcast where we interview celebrities and special guests and talk about nerdy and geeky things. And then I am the executive producer and cohost of the podcast Misty Knight’s Uninformed Afro, where we talk about black superheroines in comic books. I’m also currently creating a book that’s going to be coming out next year, which is pretty awesome.
BGC: So you’re doing everything, basically. But all of this, for the most part, is under Black Girl Nerds. What made you start this platform?
I had always been interested in different websites that spoke to geek and nerd subculture, but when I looked on the internet I only saw white people, and never really saw any images of women that looked like me. So five years ago I just went on Google and typed in “black girl nerds” to see what would come up, and nothing came up, and I just thought that was crazy. I already had a blogger account at that time so I went ahead and launched a blog with that name just so I could see it pop up on Google. And then from there I slowly built it into this online community, where first it was just about me and my personal rants and raves about all things geek. Then other folks latched onto the site and saw what I was doing and wanted to be a part of it and it became what it is today.
BGC: How has that transition, that evolution of Black Girl Nerds gone?
I think the evolution and the transition was fairly easy because, though I didn’t know this at the time, I was definitely filling a need. So the minute someone saw that there was a website about Black women in geek culture, women everywhere who are a part of this subculture wanted to express themselves whether that was through writing, doing vlog posts, or doing podcasts, they just wanted to contribute to the space because it’s a space that was so rare at the time. Now it’s great, everybody else is doing content that’s about the subculture, which is good because mainstream is paying attention to that now. But back in 2012 there weren’t really any spaces doing what I was doing, so folks were easily wanting to get involved somehow, and that’s how it’s built up to where it is because I was able to get a lot of writers to contribute articles, I was able to get a lot of folks help create podcast episodes with and really have a staff of people behind the scenes to help keep this machine going. So the transition, believe it or not, was a fairly easy one over time.
BGC: Within that transition you’ve built up different relationships and networks. How have those connections helped to push Black Girl Nerds into the platform that it has now?
Social media has been a great conduit to connect with other brands and other content creators that are doing what I’m doing, like The Fan Bros, Black Nerd Problems, Geeks of Color, Graveyard Shift Sisters, and The Black Geeks (who I’m co-founding a convention with). I think it’s important to try to foster and connect with folks because you can build really great things out of those relationships. And I’m very grateful to Twitter. Twitter is where I’ve met everybody in this digital space. I live in Virginia Beach and a lot of the folks I connect with when I go to the cons are from really big cities, so most of them I haven’t met until I do go to New York Comic Con or San Diego Comic Con. So it’s great to be able to use the internet for good when many times when we hear about the internet we always hear about the negative things, but the internet can actually be very helpful in building a brand.
BGC: What have been your favorite moments in working on BGN?
Definitely meeting the people that I have followed and who follow me on Twitter has been fantastic. I know it sounds trite and cliche but I really love the fans. I really love meeting with people at cons and special events and seminars and talks. Going across the country and just meeting people face to face outside of the four corners of the internet is really great. And then you get to meet the occasional celebrity or two that is a fan of your work and that’s awesome. So to get praise from people like Shonda Rhimes in the past and having celebrities be familiar with your work and say that they read your work, that’s humbling and it’s pretty cool because starting out I didn’t know if anybody was going to read this or if anybody cared. I created it for selfish reasons, I wasn’t trying to appeal to a certain kind of person per say, or I wasn’t trying to get on someone’s radar, I just wanted to see myself. So I’m glad that it has a universal message that speaks to a lot of people.
BGC: And you’ve also launched Universal Fan Con. How did that come about?
I mentioned briefly The Black Geeks. We’d been following each other online, pretty much since I started the Twitter account. I had always wanted to do a con and even before connecting with The Black Geeks people within the BGN community were like “you should do a Black Girl Nerds Con,” because there’s such a large following, and we do all these live tweets, and there’s this level of engagement that happens on the Twitter account where a lot of the people I tweet with want to meet with the fellow followers. So that was something that was in the ether and then I finally connected with Robert Butler and Rob Gill and we decided to get together and put together a con and bring all of our brands and all of our audiences together and make it focus on diversity, inclusion, these things that we talk about all the time on our podcasts, on Twitter, that we write essays and articles about. Let’s actually do the damn thing and make it into a con, and that’s how Universal Fan Con happened.
BGC: Who or what continues to inspire you?
My mom inspires me often because being a single mom she’s never had anybody else to help her. So her independence and her strength is definitely what inspires me, and I always look to that to get me through the day. And Shonda Rhimes. I am huge fan and I’m excited about what she’s doing and her brand more and more each day, and so many Black women like her.
BGC: Who do you hope gets the most out of the work that you do?
Definitely Black women first and foremost because this is for them. But I mean I hope everybody really gets something out of it and I get feedback every now and then from people that reinforces that I’m kind of steering in the right direction. Even today this white guy was complimenting me about the work that I’m doing and that’s cool because probably 95% or more of the content that’s on BGN doesn’t necessarily speak to his demographic but he’s been reading it for over 2 years and he loves it. So that says a lot about the kind of work that we’re doing, that we do appeal to the masses, we are universal in our message but we do focus on telling stories through the lens of Black women, which is important. So yeah, I definitely hope to reach everybody, but this is for us.
BGC: Why is it important as a black person to create?
I think a lot more of us are in digital media than traditional forms of media because digital gives us more access. But I think that at the end of the day, the reason why I create the work that I do is because I want to see myself reflected. I want to see women like me talk about things that are in this geek subculture that several years ago people would be like “oh, you’re into that? You’re not a nerd.” Just because you didn’t see a Black girl LARPing you would assume that she’s not into it. So that’s why it’s important for all of us to be in these spaces where we’re talking about Harry Potter, where we’re talking about our favorite sci-fi fantasy genre fiction shows, where we’re talking about cosplay, because if we don’t see ourselves then people think that we’re not a part of that fandom and that’s just factually incorrect.
BGC: How do you balance creating with the rest of your life?
That’s a big question because that’s a hard thing that I am juggling with right now. A lot of people don’t know this but I work a daytime job and do BGN at the same time. So I don’t get a chance to devote all of the hours of my day to BGN like I would like to. Luckily, I do have a large team of people that are able to help assist with running certain parts of BGN during the day when I’m not available and then I’m able to do what I need to do at night. Sooner than later I would like to be in a position where I don’t have to worry about that day job and BGN could be that, but it’s definitely a challenge each day, more than a year ago because as it grows there’s a larger and higher demand for content.
BGC: How do you deal with burnout when doing something you love?
It’s weird I haven’t gotten to the point where I’m burned out yet, believe it or not. I really love what I do, I think that’s what adds fuel to the fire here. If I didn’t like this, or I felt mediocre about what I’m doing, then getting burnt out would be easy and it would’ve happened long before now. But for some reason the passion behind this just keeps me going even when I’m on two hours sleep. Whether I’m writing or editing, I just love being a part of this community. Or whether I’m suffering from jetlag after flying from one city to the next doing either speaking engagements or press at a con, the work that I’m doing is enough to keep me going.
BGC: Do you have a support system around your work?
Yeah, I have a team of writers, copy editors, and podcasters. We also have a Patreon so a lot of the fans in the community have been generous by supporting us financially which allows us to pay for travel, pay writers here and there -- not all of us get paid but some of the writers and copy editors get paid. It’s important that people get compensated for their work and I try to do the best I can with what I have. But that support system is there and I’m definitely grateful for that.
BGC: Any advice for young creators or ones just starting?
The advice that I always give people, young and old, that I think anybody can really receive is to just do your own thing and don’t focus on what everybody else is doing. Do something completely different. Sometimes we get caught up in the success of other people. We think oh well I can do that same thing exactly the way they’re doing it. And you replicate someone else’s success and it doesn’t always pan out the same way. So try to be unique and do something different, and try to fill a void. I didn’t realize I was doing that. I was trying to do something different and it definitely paid off. So yeah, fill a void, try to reach out and do something -- if there’s something you’re upset isn’t represented or it’s something you rarely see in media, go out there and create it.
BGC: Do you have any future projects that you’re working on?
I have a book that I’m currently working on that’s due to release next year, so that’s exciting. And I’m still working with the team at Universal Fan Con, which is happening April 27-29th in Baltimore, so definitely check us out there. And I just got an awesome opportunity with the SyFy network, I’m an advisor on their board, so I’m very excited for thing they have in store. They are celebrating their 25th anniversary and are really trying to be cognizant of the fans and focus on diversity and inclusion in their content so I’m honored that they would ask me to be a part of that celebration. And, of course, just managing BGN.
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Schizophrenia in Women
Often we don’t really consider gender dynamics in treatment or medication. A lot of medications are only tested on men because of the risk of pregnancy, etc. This means there are whole drugs that have made it to market that may not have ever been tested with women. Schizophrenia affects women in many different ways than men.
In this episode schizophrenic Rachel Star Withers and cohost Gabe Howard discuss differences in age, symptoms, treatments, lifestyle, parenthood in the genders as they experience schizophrenia.
Dr. Hayden Finch joins to explain the medical side.
Highlights in “Schizophrenia in Women” Episode
[02:00] Age of Onset
[04:45] Age of Onset in families with mental disorders
[05:00] Social Dynamics
[07:00] Symptom and Treatment differences in women
[11:30] Diagnosis differences
[13:30] Menstruation’s effect on schizophrenia
[19:00] Romantic relationship differences
[21:20] Pregnancy and schizophrenia
[31:45] Aging and the Second Peak of schizophrenia
[38:00] Interview with Dr. Hayden Finch
[48:00] Be Assertive
[54:00] Self Advocacy
About Our Guest
Hayden Finch, PhD in Clinical Psychology
Dr. Finch is passionate about serious mental illness and is an accomplished clinician and writer. In addition to developing outpatient and residential treatment programs for people with serious mental illnesses, she has been involved in mental health policy and legislation advocacy. After graduate school, she was fortunate to combine her commitment to Veterans and passion for mental health by training at the VA, where she was involved in developing an inpatient treatment program for Veterans with serious mental illnesses. A true lifelong learner and teacher, Dr. Finch is now applying her passion for education and serious mental illness to developing educational materials aimed at reducing stigma about serious mental illnesses and coaching people with serious mental illness, their providers, and their families to work toward recovery. Dr. Finch practices what she preaches regarding setting life goals and is most content when she’s traveling with her family or walking with her dogs.
www.haydenfinch.com/schizophreniabook
Dr. Finch’s new book on schizophrenia direct link to amazon: https://www.amazon.com/dp/B084F5YR14/ref=cm_sw_r_tw_dp_U_x_klWnEbTK50Y94
Computer Generated Transcript of “Schizophrenia in Women” Episode
Announcer: Welcome to Inside Schizophrenia, a look in to better understanding and living well with schizophrenia. Hosted by renowned advocate and influencer Rachel Star Withers and featuring Gabe Howard.
Sponsor: Listeners, could a change in your schizophrenia treatment plan make a difference? There are options out there you might not know about. Visit OnceMonthlyDifference.com to find out more about once monthly injections for adults with schizophrenia.
Rachel Star Withers: Welcome to Inside Schizophrenia. I’m Rachel Star Withers here with my wonderful co-host, Gabe Howard. This episode we are exploring schizophrenia in women. Next episode, we’re going to focus on the men. But this whole episode is for the ladies.
Gabe Howard: Often we don’t really consider gender dynamics in treatment or medication. And this is chronic across all health, not just schizophrenia. A lot of medications, et cetera, are only tested on men because of risk. They don’t want to impact, you know, a potential pregnancy, etc. And on one hand, this sounds good. We’re protecting pregnancy. But on the other hand, this means there’s whole drugs that have made it to market that may not have ever been tested with women. So I think that it’s exciting to consider how schizophrenia impacts the genders differently. Obviously, we want to state unequivocally that if you meet two people with schizophrenia, you’ve met two people with schizophrenia. You know, there tends to be this idea that all people with schizophrenia are exactly alike. And we hope that this show has done a lot to dispel that misinformation.
Rachel Star Withers: Just like if I meet two guys named Gabe, they’re probably both different,
Gabe Howard: Probably.
Rachel Star Withers: Probably. Repeatedly you hear the difference between men and women with schizophrenia, the biggest thing is the age of onset. Women are said to develop it later than men. On average, they say four to six years later than a man would be diagnosed, let’s go. Be diagnosed with schizophrenia. And that’s one of the things they’ve noticed repeatedly in research across the years, is that women get schizophrenia in life later. Sometimes, you know, late 20s, they’ll even say.
Gabe Howard: It’s interesting because as you said, it’s diagnosed with. We know from research that people are born with schizophrenia. So the question becomes, and we don’t know the answer to this because research is ongoing, do men and women become symptomatic at the same time, but men get the diagnosis faster? Or do women not develop the symptoms of schizophrenia until later? And it’s difficult to discover that. And some of it is social engineering. If a woman is behaving erratically, well, of course, she’s a woman. And this is the kind of thinking that we have to prevent and get over to make sure that everybody gets the best care. But it’s on one hand, it’s interesting to think about when we’re diagnosing people and how we’re diagnosing people. But on the other hand, it’s kind of sad if men and women are showing symptoms at the exact same age, but it takes women an extra four to six years to be diagnosed. That’s also scary.
Rachel Star Withers: Yes. And they do say, however, that it’s less detectable in women, which I could totally see because I grew up having hallucinations, but I didn’t even realize myself that that was weird until my late teens. Then I stopped talking about it. So I didn’t get a diagnosis either till my 20s so I could easily see, you know. Yeah. Women tend to be more social. They tend to be more active than men who have schizophrenia. So, yeah, it could probably fly under the radar much longer.
Gabe Howard: It’s interesting how you put that, Rachel. You said that as soon as you noticed that you were having these hallucinations and issues, that you hid them, but you remained social, you remained engaged and talking to the people around you. Whereas men, when they notice them, they tend to retreat. It’s that retreating that I think makes people realize that perhaps something is wrong. You know, why is this person staying in their room? Why does this person not have a job? Why is this person talking to themselves? Whereas because you remained social, people don’t say, well, hey, we like it when Rachel comes over. Rachel is funny. Rachel is nice. She must be hearing voices in her head and experiencing psychosis and hallucinations and all of the other symptoms of schizophrenia. I can see how it could mask it, especially to our friends and family who are not trained psychologists or psychiatrists.
Rachel Star Withers: And the flip side of that coin is families that schizophrenia tends to run in, there actually is no difference in the onset of age between men and women. So like brothers, sisters. And that’s because, yeah, if grandma had it, if mom had it, you know, so and so cousin has it, you tend to be looking for those symptoms and recognize them earlier, whether it’s a boy or girl growing up. You tend to notice that. They have acknowledged that if the family and friends are aware that there could be a potential problem on the horizon, they are noticing it much, much sooner.
Gabe Howard: There’s also a study out of India that has found no difference in the average age of onset between men and women. And I think that really does speak to the social dynamics between cultures, because if people in India are all having the onset of schizophrenia at the same time, it would really be unusual to think that there’s some sort of genetic difference between Americans and Indians. It sort of speaks to this being a social construct. And again, research is ongoing. We’re not 100 percent sure of any of these things.
Rachel Star Withers: In a lot of countries, having a mental disorder is looked down upon even more so than I would say in the Western world. They don’t have statistics on those kinds of things because, unfortunately, it will go no one is diagnosed until much later in life where they can’t function at all. So it is interesting. When we look like, you know, how people grow up. What’s expected of men and women? I do think women can fly under the radar longer sometimes just because you’re not like, well, a guy at 18, he needs to get out. He needs to get a job. He needs to. And yeah, I feel like just like my family, they’re gonna be a little softer on the girl in the family than the boy. So I can easily see like that flying under the radar.
Gabe Howard: To your point, Rachel, when we talk about the social differences between men and women, of which there’s a lot, I really think of people who have battled schizophrenia for a long time. And when I work with those people, they say, hey, look, I haven’t had a job in five years. And all of the men very much want to know what to do about their resume. They’ve got a five year gap, a five year gap, a five year gap. And many of the women are like, well, a five year gap is no problem. I was raising kids. I was a caretaker for family. It’s just nobody is questioning their five year gap, whereas people are questioning a male’s five year gap. And all of this is just to tie in that in some cases, the differences between the treatments and the symptoms of schizophrenia have considerably more to do with our society than it does with the actual disease. Now, all that said, there are disease processes and symptoms, processes that work differently in women vs. men.
Rachel Star Withers: As we get into the symptoms, if I’m saying this, and you know, you’re like, well, Rachel, I’m a woman and I don’t experience it that way or I’m a man and I totally have. No, no, no. Just saying across the board, which symptoms tend to flare up in different genders? Women actually, like we said, are more sociable. So different things like the flat affect pretty much where you don’t experience emotion. You have a very dull expression is not seen as often in women. Women tend to even have more emotions. And I know that’s like, oh, of course women are emotional. But with schizophrenia, a lot of times people have a blunted emotional response so they don’t really react the same way, quote unquote, normal people do. But women, we come off as still acting more emotional to those around us. Inside, we might not, but we’re able to kind of fake it much better. Our speech isn’t reduced. And I found this interesting, Gabe, women with schizophrenia are actually more physically active than men across the board. And also under that, they can be more hostile. You know, past episodes where we’ve talked about violence and schizophrenia, if you were to picture a violent schizophrenic, I don’t think anyone pictures a woman.
Gabe Howard: Not only do I not think that anybody pictures a woman, I think that the way that society responds to a male who is being aggressive and a female who is being aggressive is very different. And there’s a plethora of reasons for this. Listen, I weigh 275 pounds and I’m six foot three. If I am being extremely aggressive and loud, that’s going to look a lot scarier than if Rachel, who is considerably smaller than Gabe is yelling. Also, people tend to be more willing to de-escalate a female than a male. And again, a lot of these things fall under social constructs and our whole society is set up this way. Right? It’s not just in schizophrenia where this is important. We see this in policing. We see this in jobs. We see this in you know, I could never scream at a server in public. But, you know, there’s a whole Internet trend of calling women who scream at servers Karen, and everybody thinks that that’s funny. But sincerely, the humor comes from somebody yelling at somebody in public. And because that person’s a woman, it’s considered funny. You could never change the Karen memes to John. Well, you know, John just stands up and starts screaming at a server. People would think that’s not funny.
Rachel Star Withers: No, that’s like, yeah, everyone turns around and is like their about to call the police thinking he’s going to start swinging.
Gabe Howard: The perception is very, very different. And because schizophrenia is an illness that is based on self-reporting, based on observation, based on behavioral patterns. So obviously society’s perception of what they’re observing is going to determine the diagnosis that you receive. And to that end, because of the different ways that we perceive the genders, women are often mis diagnosed with schizophrenia more often than men are.
Rachel Star Withers: When it comes to health reporting, I feel that men and women would probably also report different symptoms more often. I don’t think I ever went in and was reporting, you know, oh, I just don’t want to go out with my friends. Oh, I just want to, like, stay inside. I talked about depression and that was the initial diagnosis I got repeatedly, was just that I had depression. And I was too scared to even bring up hallucinations and delusions. I kind of, you get used to just, oh, OK, you’re just overreacting. Oh, you’re just overthinking. So that never occurred to me that certain things I was having was a delusion. It was just, oh, yeah, I just, I’m overthinking things. So I think across the board it’s easy to see the women who would be diagnosed with different things. I do wonder if doctors are quicker to label men as schizophrenic than women.
Gabe Howard: It’s important to point out how difficult it is to research and study this when we exist in a culture that isn’t actively discussing it. And as we’ve been talking about this whole show, culture and society impacts our outlook. So when a male is looking at a female patient, some of those biases are bound to creep in. I do think that we have made great strides now that more women are in psychiatry, because while they have biases, too, they at least have interjected more understanding of women. And I think that’s very, very good. Now, one of the things that’s interesting to me is when we plotted out the show, Rachel, I was shocked at how much was just society. How did you feel about that? What were you thinking when you were researching the show?
Rachel Star Withers: It made me look back on my own life and kind of think huh? You know, how had I like self-reported, you know, certain things and didn’t like the way they were responded to. And I think back to the more physically active and hostile thing. I was very, very hostile towards my father specifically when I was in high school. And I don’t mean I was like trying to hurt him or anything, but I would have these breakdowns and he would try and restrain me, which just made it worse. You know, not necessarily doing what’s the best way to deal with someone having a psychotic breakdown. And he was still much bigger than me and able to kind of like grab me and control me. But I think now, had it been my brother who was bigger than my father, there wouldn’t have been any controlling. It definitely would have escalated to police or we can’t deal with this on our own situation much quicker than it did with me. And it just makes you think, though. Wow, like, yeah, if I’d been a guy, you know, or even just more physically different, my life could’ve played out, I don’t want to say worse, but it would have had a different impact.
Gabe Howard: Rachel, well, this is an awkward question. Do you think that a female menstrual cycle has anything to do with schizophrenia and why or why not?
Rachel Star Withers: Oh, I think it absolutely does. I’ve long thought that menstrual cycles and the women type stuff definitely affects my schizophrenia. It frustrates me to no end that at least once a month, I know for three days my schizophrenia is gonna get a lot worse. I’m going to lose touch with reality. I’m going to kind of get more spacey. I have to really be very careful. I get more delusional. I know my hallucinations get worse. I pretty much have to anticipate these days are coming. And during these days, I need to live in my room as much as possible to avoid potential issues. And it’s right before my period. And this has happened over and over. And I’ve brought it up to multiple doctors. And it’s not like you can just, okay, well, you know, up your medication for three days. It doesn’t work that way. You know, they’ll just be like, well, you know, make sure you track it and do your best. There’s never really been like a way to deal with this. And it’s been frustrating because talking to other women with schizophrenia and mental disorders, they agree that the exact same thing will happen to them. And yet no one really has an answer for us.
Gabe Howard: And to put it another way, half of the schizophrenia population is having this issue or has had this issue at some point and there doesn’t seem to be a big push to do anything about it or resolve it or to come up with a plan other than hunker down. This is just part of womanhood. I imagine that it is extraordinarily problematic because three days out of every month, that’s 10 percent of your life between the ages of 16 and 45 on average. That’s a lot of time.
Rachel Star Withers: Yeah, and I’m not saying that’s three days for all women with schizophrenia. It’s just me, I know there’s going to be three bad days. And it’s not just okay, women saying, hey, I think this is happening. No, it’s been observed that schizophrenia symptoms in women get much more severe during the low estrogen phase of their menstrual cycle that women go through once a month if they’re in those certain ages. That, yeah, it’s been observed. The symptoms are much more severe. It’s like, OK, we’re not going to deal with this, though. And I’m not trying to put down anything. But I’d say most of the times that I’ve been lucky enough to get to speak with researchers in that side of mental health, people who are like the scientists, it does tend to be predominately men. I could see this not being on their radar as much. Just kind of, yeah, if ninety percent of the guys are researchers, it doesn’t even occur to them to look into that.
Gabe Howard: Rachel, along those same lines, you’ve been a schizophrenia advocate for well over a decade, advocating for others. But of course, you’ve had to advocate for yourself. Really probably since the beginning. What advice do you have for women who are experiencing this so that they can advocate for themselves and have a chance to be heard?
Rachel Star Withers: I’ve said this so, so many times about so many different things on this podcast, but track your symptoms. Be able to actually prove, and this sounds bad, prove. I’ll have like my little app, it’s a menstrual app that tracks menstruation, all that, but it lets me put down symptoms. So you can actually like hand it to the doctor, be like, no, no, look. See this week right here? See this? Again, I’ve never gotten a good answer on how to deal with this particular situation. But it has helped to be able to be like, look, no. I can see that these are the main three days and I can usually pick out the week where those days are gonna hit. And just kind of, all right, let’s do my best to work as little as possible, you know, if that’s an option for me and that kind of thing.
Gabe Howard: Rachel, continuing the discussion of symptoms that only impact women. Women with schizophrenia are diagnosed much later in the process with breast cancer than women without schizophrenia.
Rachel Star Withers: Yes. And there’s a few different reasons why they think this is. One is that women with schizophrenia tend to ignore their physical health more so than the normal population of women. OK. And it could be partly because of psychosis, not actually realizing something is wrong. For me, I can easily see that a lot of times my physical health just takes a back seat to my mental health. It’s like I’m already doing so much trying to keep my brain on track. I can easily just not worry about physical stuff because I’m already on like six different medications from my brain. Do I really need to do other things? And I think I go to the psychiatrist so often, my therapist so often, and then I got to go to a normal doctor, too? When I was reading the different stats as far as what woman with schizophrenia tend to not get treated for until the later stages, osteoporosis, also thyroid conditions, diabetes. Yeah, I could see that. I totally could see that. Too busy worrying about your brain falling apart half the time to worry about your body also.
Gabe Howard: As we discussed in last month’s episode, people with schizophrenia are much more likely to have more comorbid issues of schizophrenia and something else. So in that line of thinking for a woman, it’s not too far of a stretch to consider that one of those co-morbid conditions, of course, would be breast cancer.
Rachel Star Withers: Yes, Gabe, that makes perfect sense.
Gabe Howard: Rachel, let’s move over to dating for a moment. Now, men and women culturally and societally date differently. So it’s not too much of a stretch to assume that women with schizophrenia and men with schizophrenia would also date differently. Now, what research did you find? Because I was really surprised that there was any research at all on how people living with schizophrenia date. But you found a wealth of it.
Rachel Star Withers: Oh, so much. And on that note, throughout my years of being open about schizophrenia, I have repeatedly got messages all the way down from teenage males to significantly older, all the way to like their 70s, 80s males. And one of the main things they always bring up to me is issues with the opposite sex romantically. And I’ve even had some very angry comments left on many of my videos. It’ll be like, well, it’s easy for you to say, you know, you’re not an overweight male. And I’m like, you know, and I get that.
Gabe Howard: Yeah. What do you say to that? Yeah.
Rachel Star Withers: Yeah. Yeah, I can see, yeah. There’s a How I Met Your Mother, if you ever watch that show, where Barney has like a little chart saying that, you know, women, their hotness and their crazy and this like can’t be off. So the hotter a woman is, the crazier she can be. But you don’t want to date a woman who’s like really, really crazy, but she’s not that hot. And it’s like a TV show and it’s a joke. But I do think women can get away with, yeah, guys will overlook a lot of things to still date certain women. Women could, you know, just be seen across the board like, oh, well, yeah, they’re a little bit crazy or wild, and it not be a bad thing. They’ll still be able to date and marry. Whereas a guy that’s more red flags. It’s also easier to hide your schizophrenia as a woman. If I’m on a dating app, and I talk to a 34 year old guy who lives at home with his parents in their basement.
Gabe Howard: That’s like a deal breaker
Rachel Star Withers: Yeah. Yeah.
Gabe Howard: For you. Even though you’re a 34 year old woman who lives at home in your parents basement.
Rachel Star Withers: Yeah, it’s more easy to be like, well, you know. Oh, OK. It’s OK for her, but yeah. A guy, I immediately I think it’s like, oh, no. That’s unfair. I agree. It is totally unfair.
Gabe Howard: Rachel, no show about women and schizophrenia can be complete if we don’t discuss pregnancy. What all did you learn about schizophrenic women who are pregnant or trying to get pregnant?
Rachel Star Withers: First, I feel like we should hit on that this is a touchy subject. Should women with schizophrenia even get pregnant? Should that actively seek out to be like, yes, I want to have my own children? I’ve had people just out of the blue come at me being like, so what are you going to do? And regardless of me having schizophrenia, kids are gross. Let me stress that. They’re just gross. Um, and I figure like.
Gabe Howard: But even that said, I think it’s important to point out as much as you don’t want to have children, Rachel, you still think that it would be wrong if somebody passed a law that said women with schizophrenia cannot be mothers.
Rachel Star Withers: Yes, I agree. My own personal beliefs and I think this is gonna be different for every woman with schizophrenia and different during parts of your schizophrenia. Mine has gotten incredibly bad at times where no me being pregnant would not have been an option. Nor holding down a job, nor like driving a car. That’s just being in certain psychotic episodes. Right now, if I were to get pregnant, it would not be the end of the world. Yeah, it wouldn’t be great, again. But I really don’t think that anything, you know, horrible. I’m not in a really bad mental place. Do I still have episodes? Yes, but I feel like I honestly could have a baby right now and be fine. Again, that’s a touchy subject across the board and.
Gabe Howard: It was shocking how touchy it was. I mean, with everybody weighing in. Men, women, mothers, even politicians weighed in. The research was frankly shocking as to the number of people that had an opinion about a woman being a mother. And, I’d like to point out, a woman that nobody knows, we’re not discussing whether or not Rachel. Just like a whole swath of women based on a medical diagnosis. And all of the sudden a large group of people decided that their opinion was strongly relevant.
Rachel Star Withers: And this is something that has happened repeatedly throughout history. I live in South Carolina and just north of me in North Carolina, there was a big issue where, not even that long ago, the 60s, 70s and 80s, women who had mental disorders were sterilized. If they were in different asylums and things like they were just forced sterilization across the board. Some of them who weren’t even diagnosed correctly. And that has just been kind of an ongoing thing that had happened. And it was also had a lot to do with ethnic groups were particularly pointed out also. So this is like a real thing. And I know I’ve gotten so many messages throughout the years that have been like, you need to be sterilized. And I’m like, OK. But it’s funny, though, because, yeah, you’ll have people who don’t know anything about you who feel very, very passionate about this subject. Probably and it doesn’t affect them in any way. And it’s going to be a very personal issue. Let’s talk, though, about some of the fears about a woman getting pregnant who has schizophrenia. One is that they might not realize or recognize that they’re pregnant.
Rachel Star Withers: It could be due to psychosis. It could be they’re in denial of the pregnancy. It could be that they’re misinterpreting. Think about like how many medications cause weight gain. I could easily see, you know, someone gaining weight and you’re starting a new medication. It never even occurs to you, oh, wait, this isn’t, it isn’t that type of weight gain. So there’s that is the worry about schizophrenic women not necessarily realizing quickly enough that they’re pregnant. And then there’s the whole medication side of it. Usually it is highly suggested that you stop anti-psychotics, and most antidepressants and whatnot if you’re pregnant due to the safety of the baby. And then there’s the withdrawal action. So while someone could have been stable before, having to go off their medications to be pregnant might cause other issues. It’s all just very interesting. And there is no cut and dry answer of, oh yeah, you should totally get pregnant or you shouldn’t. I do think it’s a personal decision and a situation that’s gonna be, yeah, different for every single human going through pregnancy.
Gabe Howard: We’ll be right back after this message from our sponsor.
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Rachel Star Withers: We’re back discussing how schizophrenia affects women.
Gabe Howard: Obviously, when we’re talking about pregnancy, Rachel, we have to talk about motherhood. So now you’re a woman with schizophrenia and you have children. There was a plethora of research on that. It was compelling.
Rachel Star Withers: Yes. And when we’re dealing mental disorders, you know, you have homelessness. You have a lot of I don’t want to say sad stories, but you do you have a lot of sad stories that are also factored in. You have a lot of sad stories dealing with rape and things like that. One third of women with schizophrenia lose custody of their children. And whether the children are going to other family members, ex-partners, the foster care system. And, the others, women with schizophrenia who have children, very few maintain sole custody. And that goes back to fear that they are unable to care for a child correctly, that they might not recognize problems, especially in infancy. What the baby might need, what the baby is going through. The mother might interpret it wrong. And again, it’s all this is a touchy subject because every situation is going to be different. And I can’t even imagine being in a situation like that. I said a few minutes ago, like, oh, I feel like if I got pregnant, that I, you know, for the most part, I would be fine. And I still stand by that. But I would need a lot of help. I would need a lot of help. Hopefully there would be a partner, but if there wasn’t, then with my parents, because my parents already have to step in with me a lot of times. And and I feel like I would even need more to make sure I was. I personally was seeing reality the correct way, if there was a little, another life in my hands.
Gabe Howard: One of the interesting things that I saw when I was reading this research is this idea that mothers with schizophrenia, they don’t have a lot of leeway. One of the things that you just said is that you would need a lot of help. I would really defy you to find a mother on this planet that doesn’t need a lot of help. Now, I understand that if you’re managing any illness, any illness,
Rachel Star Withers: Yes.
Gabe Howard: Not, not mental illness. If you have an illness, then obviously you are going to need more help. That is understood. But do you think that the bar is just significantly lower for women with schizophrenia? That if something happens, if a mistake occurs, if an illness symptom pops up, that it’s like, oh, well, you’re schizophrenic, we’ve got to take your baby? Whereas with other mothers like, oh, well, you just made a mistake. Mistakes are part of parenting. Everybody does. Do you think that that is a factor in some of these stats?
Rachel Star Withers: Absolutely. And I think if someone has some sort of even genetic disorder, very few people are like, oh, you shouldn’t have a child. You shouldn’t be over, you know, another person’s welfare. But when it comes to mental stuff, it’s like, oh, you have depression? Oh, you have bipolar? Oh, you have schizophrenia? Like, no, you shouldn’t be around children. And not even like you shouldn’t be a mother, you shouldn’t be around children. So there is definitely a double standard with that all where anything mental freaks people out.
Gabe Howard: There’s just so much stigma, discrimination and misinformation that it makes it very difficult. And it’s interesting because, you know, Rachel, I love you and I think the world of you, but I know what it’s like to be sick. And I can’t imagine having to care for a baby. And I can’t imagine you caring for a baby when you’re that sick. And part of me is like, oh, geez, I don’t know. Maybe that’s not a good idea. But my mom broke her wrist when she had three children. She was not doing well that six weeks. My father lost his job when we were younger. Well, that’s not a good idea either. I just I think of all of the adversity that my family faced growing up. But everybody was like, hey, band together, work it out. You can do it. Nobody said, oh, yeah, this is proof that people named Gary Howard shouldn’t be fathers. Oh, this is proof that people named Susan Howard just can’t hack motherhood. We just got through it as a family and a community. And I think that more often than not, women with schizophrenia, they just don’t get those benefits. And I think it’s worth pointing out, because it is another layer that makes it very difficult for women with schizophrenia to lead the lives that they would like.
Rachel Star Withers: And I did want to put a little note on this. Over and over, I could find so much info about women having children as far as schizophrenia, like pros, cons, mostly cons and just lots of people with opinions. And yet next to nothing about men with schizophrenia being fathers. Nothing. Really, there was nothing at all. Just that’s interesting, like how society, we view people with mental disorders having families. Like it was just kind of like women obviously, yeah, they’re gonna deal with this, but not men.
Gabe Howard: That is incredible and obviously something that we’ll discuss more next month on men with schizophrenia. Rachel, shifting gears from motherhood, we have to talk about the aging process. What’s the difference between men and women with schizophrenia as we get older?
Rachel Star Withers: This is fascinating. We talked about earlier age of onset, about women tend to get schizophrenia later. Another thing, though, is that women can have a second peak of schizophrenia is what they call it. And it’s usually women age 45 to 50 who have not been previously diagnosed with schizophrenia. It suddenly comes on and it has to do with the pre-menopausal stage hitting. And they think because the estrogen drops, there’s something about estrogen that keeps schizophrenia more in control. And harkening back to what we talked about earlier with periods and estrogen dropping. But men don’t have this. There is no second part of life where suddenly a man who hasn’t had schizophrenia will develop it in his 50s, 60s. It’s just not seen. In fact, men with schizophrenia as they age tend to get more of a handle on it. And women, it’s the opposite because you have for some women, suddenly schizophrenia develops. And there’s a lot about that. I was wondering when I looked at the different research, did these women already have schizophrenia? But maybe because they were so social, it just wasn’t recognizable? Or did it really just come on at that moment? And there is no answer for that. But I did think it was very interesting and something that if you’ve already been diagnosed with schizophrenia to look out for. That it could get a lot worse hitting around age forty five if you’re a woman. So, you know, I got a little over 10 years there. Clock’s ticking for the second round of fun.
Gabe Howard: And it’s something else that women have to be aware of that may or may not be as researched or as discussed. Oftentimes I think society does forget how much educated guesswork there is in a mental health diagnosis. Schizophrenia is diagnosed by observation. It’s treated by best case practices and research and then more observation. There’s a lot of self-reporting from the person living with schizophrenia. And all of that really allows our culture and our society and our bias to influence the end result. We have to be aware of it. While it does sound scary, and it is, I don’t like the idea that men and women get different treatment. Obviously, you don’t like the idea that men and women get different treatment because it kind of sounds like women are getting the short end of the stick. It is what we have now. And for the women listening to this show, this is where advocacy is just so important, along with education. And, Rachel, I’m going to ask you, would you have known any of this information about being a woman living with schizophrenia if it wasn’t for your job? Do you feel more educated and more empowered today than you did before the research for this show? And what advice do you have for women living with schizophrenia to make sure that they get the best care, taking into account the fact that they’re women?
Rachel Star Withers: I would not have known a lot of the things we’ve talked about today, but especially the way estrogen is thought to affect schizophrenia. None of that’s ever been brought up to me. No doctors ever said anything. Like I said, I’m in my mid 30s and you would think maybe, hey, just so you know, Rachel, you know, women with schizophrenia, it could get a lot worse here in the next few years. None of that’s ever been said to me. And it makes me realize how important it is to do your own research. And I’m not saying to diagnose yourself. I’m saying to really know and research what could be on the horizon, especially with the pregnancy and things like that. I’m like, okay, well, I don’t plan on having kids. So why would I ever like research or look into all that? But then that’s what led me to finding out about all of this, which led to the menopause thing. And again, it’s just not something you normally see on any of the little pamphlets in the doctor’s office or brought up at any therapist meeting.
Gabe Howard: Rachel, were you surprised to find out just how separated physical health and mental health is? Because it just seems to me like before we started the research for this show that it never occurred to really anybody that your physical health would drive your mental health outcomes. And while this is a chronic problem, just across the board in mental health advocacy, specifically for schizophrenia. The fact that what’s going on with your physical body has been so far removed from your schizophrenia treatment, how does that make you feel?
Rachel Star Withers: Last episode we talked about the, quote, co-morbidity and then to go in to seeing just how the hormones. They do, everything affects your schizophrenia. And it’s all connected. And yeah, having a hard time. Mental health affects your physical and vice versa. Something else that we as people with mental disorders do need to be aware of and to kind of not be so hard on ourselves. As I’ve done research and just kind of learned about different statistics, a lot of things are normal that I just didn’t realize were. It’s like, hey, it’s OK that I have this issue. It’s not that I’m being super unhealthy. A lot of women or a lot of people with schizophrenia also struggle with this. It’s good and bad. Let’s go with that. It’s good and bad, Gabe.
Gabe Howard: Rachel, thank you so much for your candor. Now, you had the opportunity to talk to Dr. Hayden Finch, who is a Ph.D. and a researcher and understands schizophrenia from the clinical perspective. And you got to ask her a lot of questions about, well, really the differences between men and women and specifically what it’s like to be a woman and getting treatment with schizophrenia. It’s a great interview. And we’re gonna go ahead and play that right now.
Rachel Star Withers: Our guest today is Dr. Hayden Finch, a psychologist from Iowa. Thank you so much for being with us today.
Dr. Hayden Finch: I’m so happy to be here. Thank you for the opportunity.
Rachel Star Withers: Our episode today, we’re focusing on women who have schizophrenia, specifically as a psychologist, what issues have you seen that women with schizophrenia tend to seek help with?
Dr. Hayden Finch: Well, women, interestingly, tend to have more emotional symptoms with their schizophrenia than men do, so often they’re coming to treatment for things like relieving anxiety and depression. We see that more in women than in men. And then they also have, you know, a lot of trauma. They tend to be victimized quite a lot in their lives. And so that’s often a focus of treatment. And then lots of things related to family planning and relationships.
Rachel Star Withers: Women with schizophrenia across the board tend to be more social than men who have schizophrenia. Why do you think that is?
Dr. Hayden Finch: So symptoms of schizophrenia are divided into positive symptoms and negative symptoms and positive symptoms don’t mean good, they just mean that something is there that shouldn’t be there. So, for example, hallucinations or delusions, whereas negative symptoms are things that aren’t, there should be a lack of motivation or lack of facial expressions. So, men tend to have more negative symptoms than women do. So they have a lack of social drive and a lack of social interest, whereas women don’t tend to have those symptoms as much, but also women, their onset of the illness tends to be a few years later than men. So they have a bit more opportunity to develop their personality and their social skills in their 20s, and that will protect their social skills through the rest of their lives.
Rachel Star Withers: Talking about the positive symptoms you just brought up. Do women tend to have a different type of hallucination than men experience?
Dr. Hayden Finch: Not necessarily. We see the same types of hallucinations and delusions. Sometimes with women, the content will be a little bit different and it will focus on their children a little bit more or safety a little bit more. But often they’re very similar in type, though just the content can vary a little bit.
Rachel Star Withers: What are the biggest challenges for a woman with schizophrenia who is pregnant?
Dr. Hayden Finch: The most obvious one has to do with medication. So a lot of women with or without schizophrenia will stop taking most medications while they’re pregnant just to air on the side of safety. And so when it comes to a woman with schizophrenia who gets pregnant, a lot of them will discontinue their medications for the same concerns about potential effects on the fetus. And sometimes those concerns are coming from the woman herself, sometimes from her family, sometimes even from her doctor. But stopping medications during pregnancy for women with schizophrenia increases the risk for relapse. So I think about sixty five percent of women with schizophrenia who don’t stay on their medication during pregnancy will relapse during their pregnancy. So then they have more problems with their mental health during pregnancy. So most women who don’t have schizophrenia don’t report major changes in their mental health during pregnancy. But women with schizophrenia do, in part, again, because of that medication thing. But then psychosis during pregnancy can affect seeking prenatal care, not recognizing signs of labor or problems during the pregnancy. They might not even recognize that they’re pregnant. There can be lots of negative consequences on the pregnancy and on the fetus when psychosis develops.
Rachel Star Withers: So I am a woman with schizophrenia.
Dr. Hayden Finch: Right.
Rachel Star Withers: Let’s say that I found out that I’m pregnant. What would you suggest being my next steps?
Dr. Hayden Finch: It’s a situation where you need to talk to your doctor, especially the psychiatrist, about what medications are safest during pregnancy. We do have some information about medications, antipsychotics even, that are relatively safe during pregnancy. But it’s a balance between protecting yourself and your mental health and the secondary effect that has on the baby. It’s a really difficult balance. It’s an individual decision. And it really depends on the particular woman, her health, her history, her symptoms and all of that. That’s a very difficult decision to make with respect to medications.
Rachel Star Withers: What are the biggest challenges when it comes to being a mother with schizophrenia?
Dr. Hayden Finch: All moms are overwhelmed, right? So you have that regular level of being overwhelmed with responsibilities. But then on top of that, you’re trying to manage your own mental health. So you’re trying to get organized with post-natal checkups and pediatrician appointments, plus your own medical appointments and mental health appointments. They often don’t have as much support as women without schizophrenia. So there aren’t as many family members to lean on for emergency child care. They don’t have those extra hands when they just need a break. They also symptomatically can have more difficulty reading the cues that the baby is giving them so they might misinterpret what the baby is needing or wanting. And that can interfere with the relationship that they develop with the baby. And a lot of women with schizophrenia during that postpartum phase will have a pretty significant exacerbation and symptoms. And a lot of women are at risk for postpartum depression. But women with schizophrenia, especially those women who weren’t taking their medication during pregnancy, are at especially high risk. And that can increase the need for hospitalization. But a lot of women then won’t seek hospitalization really truthfully because the majority of women with schizophrenia lose custody of their children.
Rachel Star Withers: In my research, I found that so many of the women who have children who have schizophrenia also are single mothers and do very often lose custody due to either not being able to afford to provide for that child because the mother herself is having a hard time working and being able to provide, or having to be hospitalized. What would you say like if you have someone coming to you who’s in that situation?
Dr. Hayden Finch: The biggest thing I think, is asking for help before there is a problem. So if you’re noticing that your symptoms are making it hard for you to care for the baby, if you’re getting extremely overwhelmed with caring for a baby or even a child, it’s important to ask for help before a problem comes up. Those are the women who have the greatest likelihood of being able to maintain custody versus waiting until there is a major problem, when the child has been neglected or even abused. Then it’s very difficult to make an argument to maintain custody. It’s a situation where we definitely want to prevent problems rather than try to correct problems.
Rachel Star Withers: And most women, if they have a family and they’re going through treatment, like you’re just trying to juggle everything. And
Dr. Hayden Finch: Oh, absoluttely.
Rachel Star Withers: Everybody who has kids and whatnot are just constantly trying to juggle their lives. With the schizophrenia added, what advice do you have for women?
Dr. Hayden Finch: The biggest thing we can all do, really, but especially women with schizophrenia or women who are involved in the mental health system, is to find out exactly what services are available in your area. So you can call 211, which is a public line where they’ll connect you with services in your area. That you can be looking for things like housing for mothers and their children, family Services support groups for parents with mental illness, respite care for when you really need a break. There are specialized clinical services for parents with mental illness. There are in-home services where a provider will come in your home and help you learn parenting skills or learn how to interpret what the children are needing. Even transportation services can be a big help for people who are trying to juggle it all. That’s one thing is is making sure that you know what services are available and you take advantage of them, but also to the extent you can, I think it’s helpful to integrate your family into the treatment. So look for providers who are willing to work with you and your child because there are a lot of opportunities for skill development there. Or invite your parents or your partner to therapy and work on communication. There are opportunities for integrating it so that you don’t have quite so much to juggle and you can actually build skills to make it easier to juggle all of it.
Rachel Star Withers: Something that surprised me, and it seems to me someone should have said it to me long before now, but with schizophrenia in women, a lot of women don’t tend to get schizophrenia until they hit menopause . O they already
Dr. Hayden Finch: Right.
Rachel Star Withers: Have it and it gets a whole lot worse come menopause time. I had no idea. But what advice do you have? I mean, if I’m, if I’ve already hit that age range and I haven’t had schizophrenia yet, that’s a lot to suddenly hit you. What is your advice for seeking help at that point?
Dr. Hayden Finch: You think that sort of in the back half of your life, you kind of figured it out, you’re kind of coasting for the rest of it. And things should be easy from here on out. And to get hit with something like schizophrenia around menopause is, yeah, that’s a blow. We’re still doing research on exactly what causes that in women and what causes, first of all, the later age of onset in the beginning, and then that second risk time around menopause. But we think it has something to do with maybe estrogen. So one thing you can do is talk to your doctor about any medical treatments that could be available to address it or protect it from getting worse. But certainly seeking mental health treatment is the most important thing to do. Go ahead and get involved in treatment, learn how to cope with the symptoms, medicate them if that’s something that is valuable to you and effective and fits with your personal ethic and then learn skills to protect the great life you’ve already built for yourself. The good thing, if there is a good thing about psychosis after menopause, is that those women have had their whole lives to develop good relationships, good social skills, good occupational skills, and that is helpful in going through the illness at that time in life. You’ve got a lot of good skills that are automatic and that keeps the illness from being quite as devastating as it can be earlier in life.
Rachel Star Withers: Some women have had issues with doctors not taking it seriously where they’re just kind of like, oh, okay, well, that’s just your hormones,
Dr. Hayden Finch: Mm-hmm.
Rachel Star Withers: That’s just this time of life. You know, kind of brushing off very serious symptoms. What would you tell someone who’s kind of having that issue? They’re worried it’s something more.
Dr. Hayden Finch: Definitely be assertive. Talk to your doctor. More than once if you feel like they’re not getting it. If you feel like they’re not really hearing you, go get a second opinion. If that’s needed. Be assertive in some ways. We need to sort of trust doctors and if they’re telling us it’s no big deal, we sort of need to listen to that. But also in your gut, if that’s not right to you, then be assertive. Seek a second opinion. Bring it up two or three times. If multiple doctors are giving you the same opinion, then that can be telling that you might sort of be making something out of nothing. But if your gut is telling you that there’s something missing that they’re not really listening to you, then be assertive or get another doctor.
Rachel Star Withers: Across the board, it’s always said that women get diagnosed for schizophrenia, usually many years later than men. Do you think that just something with, like you said, the estrogen or is it more that women tend to mature faster and it might not be as noticeable?
Dr. Hayden Finch: So women are diagnosed later in life than men are. So, men are diagnosed usually in late teens or early 20s, whereas women are diagnosed more mid to late twenties. And that is just part of how the illness develops differently across men and women. We think that might have something to do with estrogen protecting women from the symptoms a little bit more. Whereas men don’t have that. But that’s still being researched and we’re still trying to understand that. So women are diagnosed a little bit later than men. But like I said, that’s just a consequence of the illness. But when they’re diagnosed, they tend to be diagnosed more quickly, meaning that men will have untreated psychosis longer than women do. So once women start showing symptoms, they tend to get diagnosed more quickly than men do.
Rachel Star Withers: Well thank you so much for talking with us today. And you actually have a book coming out soon, don’t you, Dr. Finch?
Dr. Hayden Finch: I do. I just wrote a book in part because a lot of the information that we’re seeing on the Internet is either incorrect or it’s so complicated you can’t understand it. So I wrote a book giving you all the details, everything you need to know about schizophrenia. And I tried to write it in the plainest language possible. So it’s super understandable. But I talk about everything from what schizophrenia is, what the symptoms are, how it relates to schizoaffective disorder and all of the other similar disorders. We talk about violence. I’ll talk about brain stuff. What parts of the brain are affected and what’s different about a schizophrenia brain versus the average brain? And of course, talking about treatment, a lot of the things we talked about today were kind of downers, were about problems, but schizophrenia is treatable. And I do believe that people can recover from schizophrenia. So I talk about what recovery means, what that looks like and how to get there in the book as well. So it’s called The Beginner’s Guide to Understanding Schizophrenia. It will be available as an electronic book on Amazon. And so I will have the link to that in the show notes and also on my Web site at HaydenFinch.com/SchizophreniaBook.
Rachel Star Withers: Awesome, we’re definitely gonna have to check that out. That sounds exactly like the kind of stuff we talk about here on our podcast, Inside Schizophrenia.
Dr. Hayden Finch: Yeah, absolutely.
Rachel Star Withers: And as a schizophrenic, I guess I would love to read some of that and especially in the easier to understand language.
Dr. Hayden Finch: Yeah, it’s even the stuff that’s written for people with schizophrenia or their families, sometimes then they won’t give you all the technical details that you want. So I’ve tried to kind of strike that balance that you get all the details, you feel like you really know the science. But in a way that’s relatively easy to understand.
Rachel Star Withers: Awesome. Thank you so much for joining us here today and shedding some light on this topic.
Dr. Hayden Finch: Thanks for having me.
Gabe Howard: Rachel, that was incredible, what were your takeaways from that interview?
Rachel Star Withers: I love talking with her. I love how knowledgeable she was. I like that she stressed how important it was for women to speak up and to make sure the doctors are hearing them and taking them seriously about things. And she even mentioned, yeah, and if one is not listening, you may need to go talk to a different one.
Gabe Howard: I completely agree. Self-Advocacy is a thing in all of health care and it’s really a thing in mental health care. And I think a major takeaway from this episode really needs to be ask questions. Because it really seems like doctors aren’t bringing up some of the physical health components of schizophrenia. And I think that’s of vital importance.
Rachel Star Withers: And seriously, ladies, take this to heart, talk to your psychiatrist. Let them know, you know, if you are having any issues with hormonal type things with your periods. Talk to them if you’re planning on getting pregnant or even if that’s just something that you know, hey, I want to talk about like future. What does that mean? Will I have to go off my medication? Would I need to do it, let’s say, a few months before? Like speak up about these types of things. For me, it’s interesting because we talked about co-morbidities last time and how important the physical doctors are and we really didn’t even mention gynecologists. But yes, gynecologists are a major part of women’s health and making sure that psychiatrists and our gynecologist are on the same page. Next time, we’re gonna be exploring how schizophrenia affects men. So we’re gonna be hitting on how symptoms affect men differently. And also testosterone. So that will be happening. And we will have Dr. Hayden Finch returning to talk to us more about the clinical side of the gentlemen. So join us next month on Inside Schizophrenia. I’m your host, Rachel Star Withers here with Gabe Howard. And you’ve been listening to a Psych Central podcast. Please like, share, subscribe with all of your friends, family, loved ones, the women in your life with schizophrenia. Thank you so much.
Gabe Howard: And we will see you next month.
Announcer: Inside Schizophrenia is presented by PsychCentral.com, America’s largest and longest operating independent mental health website. Your host, Rachel Star Withers, can be found online at RachelStarLive.com. Co-host Gabe Howard can be found online at gabehoward.com. For questions, or to provide feedback, please e-mail [email protected]. The official website for Inside Schizophrenia is PsychCentral.com/IS. Thank you for listening, and please, share widely.
Schizophrenia in Women syndicated from
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Schizophrenia in Women
Often we don’t really consider gender dynamics in treatment or medication. A lot of medications are only tested on men because of the risk of pregnancy, etc. This means there are whole drugs that have made it to market that may not have ever been tested with women. Schizophrenia affects women in many different ways than men.
In this episode schizophrenic Rachel Star Withers and cohost Gabe Howard discuss differences in age, symptoms, treatments, lifestyle, parenthood in the genders as they experience schizophrenia.
Dr. Hayden Finch joins to explain the medical side.
Highlights in “Schizophrenia in Women” Episode
[02:00] Age of Onset
[04:45] Age of Onset in families with mental disorders
[05:00] Social Dynamics
[07:00] Symptom and Treatment differences in women
[11:30] Diagnosis differences
[13:30] Menstruation’s effect on schizophrenia
[19:00] Romantic relationship differences
[21:20] Pregnancy and schizophrenia
[31:45] Aging and the Second Peak of schizophrenia
[38:00] Interview with Dr. Hayden Finch
[48:00] Be Assertive
[54:00] Self Advocacy
About Our Guest
Hayden Finch, PhD in Clinical Psychology
Dr. Finch is passionate about serious mental illness and is an accomplished clinician and writer. In addition to developing outpatient and residential treatment programs for people with serious mental illnesses, she has been involved in mental health policy and legislation advocacy. After graduate school, she was fortunate to combine her commitment to Veterans and passion for mental health by training at the VA, where she was involved in developing an inpatient treatment program for Veterans with serious mental illnesses. A true lifelong learner and teacher, Dr. Finch is now applying her passion for education and serious mental illness to developing educational materials aimed at reducing stigma about serious mental illnesses and coaching people with serious mental illness, their providers, and their families to work toward recovery. Dr. Finch practices what she preaches regarding setting life goals and is most content when she’s traveling with her family or walking with her dogs.
www.haydenfinch.com/schizophreniabook
Dr. Finch’s new book on schizophrenia direct link to amazon: https://www.amazon.com/dp/B084F5YR14/ref=cm_sw_r_tw_dp_U_x_klWnEbTK50Y94
Computer Generated Transcript of “Schizophrenia in Women” Episode
Announcer: Welcome to Inside Schizophrenia, a look in to better understanding and living well with schizophrenia. Hosted by renowned advocate and influencer Rachel Star Withers and featuring Gabe Howard.
Sponsor: Listeners, could a change in your schizophrenia treatment plan make a difference? There are options out there you might not know about. Visit OnceMonthlyDifference.com to find out more about once monthly injections for adults with schizophrenia.
Rachel Star Withers: Welcome to Inside Schizophrenia. I’m Rachel Star Withers here with my wonderful co-host, Gabe Howard. This episode we are exploring schizophrenia in women. Next episode, we’re going to focus on the men. But this whole episode is for the ladies.
Gabe Howard: Often we don’t really consider gender dynamics in treatment or medication. And this is chronic across all health, not just schizophrenia. A lot of medications, et cetera, are only tested on men because of risk. They don’t want to impact, you know, a potential pregnancy, etc. And on one hand, this sounds good. We’re protecting pregnancy. But on the other hand, this means there’s whole drugs that have made it to market that may not have ever been tested with women. So I think that it’s exciting to consider how schizophrenia impacts the genders differently. Obviously, we want to state unequivocally that if you meet two people with schizophrenia, you’ve met two people with schizophrenia. You know, there tends to be this idea that all people with schizophrenia are exactly alike. And we hope that this show has done a lot to dispel that misinformation.
Rachel Star Withers: Just like if I meet two guys named Gabe, they’re probably both different,
Gabe Howard: Probably.
Rachel Star Withers: Probably. Repeatedly you hear the difference between men and women with schizophrenia, the biggest thing is the age of onset. Women are said to develop it later than men. On average, they say four to six years later than a man would be diagnosed, let’s go. Be diagnosed with schizophrenia. And that’s one of the things they’ve noticed repeatedly in research across the years, is that women get schizophrenia in life later. Sometimes, you know, late 20s, they’ll even say.
Gabe Howard: It’s interesting because as you said, it’s diagnosed with. We know from research that people are born with schizophrenia. So the question becomes, and we don’t know the answer to this because research is ongoing, do men and women become symptomatic at the same time, but men get the diagnosis faster? Or do women not develop the symptoms of schizophrenia until later? And it’s difficult to discover that. And some of it is social engineering. If a woman is behaving erratically, well, of course, she’s a woman. And this is the kind of thinking that we have to prevent and get over to make sure that everybody gets the best care. But it’s on one hand, it’s interesting to think about when we’re diagnosing people and how we’re diagnosing people. But on the other hand, it’s kind of sad if men and women are showing symptoms at the exact same age, but it takes women an extra four to six years to be diagnosed. That’s also scary.
Rachel Star Withers: Yes. And they do say, however, that it’s less detectable in women, which I could totally see because I grew up having hallucinations, but I didn’t even realize myself that that was weird until my late teens. Then I stopped talking about it. So I didn’t get a diagnosis either till my 20s so I could easily see, you know. Yeah. Women tend to be more social. They tend to be more active than men who have schizophrenia. So, yeah, it could probably fly under the radar much longer.
Gabe Howard: It’s interesting how you put that, Rachel. You said that as soon as you noticed that you were having these hallucinations and issues, that you hid them, but you remained social, you remained engaged and talking to the people around you. Whereas men, when they notice them, they tend to retreat. It’s that retreating that I think makes people realize that perhaps something is wrong. You know, why is this person staying in their room? Why does this person not have a job? Why is this person talking to themselves? Whereas because you remained social, people don’t say, well, hey, we like it when Rachel comes over. Rachel is funny. Rachel is nice. She must be hearing voices in her head and experiencing psychosis and hallucinations and all of the other symptoms of schizophrenia. I can see how it could mask it, especially to our friends and family who are not trained psychologists or psychiatrists.
Rachel Star Withers: And the flip side of that coin is families that schizophrenia tends to run in, there actually is no difference in the onset of age between men and women. So like brothers, sisters. And that’s because, yeah, if grandma had it, if mom had it, you know, so and so cousin has it, you tend to be looking for those symptoms and recognize them earlier, whether it’s a boy or girl growing up. You tend to notice that. They have acknowledged that if the family and friends are aware that there could be a potential problem on the horizon, they are noticing it much, much sooner.
Gabe Howard: There’s also a study out of India that has found no difference in the average age of onset between men and women. And I think that really does speak to the social dynamics between cultures, because if people in India are all having the onset of schizophrenia at the same time, it would really be unusual to think that there’s some sort of genetic difference between Americans and Indians. It sort of speaks to this being a social construct. And again, research is ongoing. We’re not 100 percent sure of any of these things.
Rachel Star Withers: In a lot of countries, having a mental disorder is looked down upon even more so than I would say in the Western world. They don’t have statistics on those kinds of things because, unfortunately, it will go no one is diagnosed until much later in life where they can’t function at all. So it is interesting. When we look like, you know, how people grow up. What’s expected of men and women? I do think women can fly under the radar longer sometimes just because you’re not like, well, a guy at 18, he needs to get out. He needs to get a job. He needs to. And yeah, I feel like just like my family, they’re gonna be a little softer on the girl in the family than the boy. So I can easily see like that flying under the radar.
Gabe Howard: To your point, Rachel, when we talk about the social differences between men and women, of which there’s a lot, I really think of people who have battled schizophrenia for a long time. And when I work with those people, they say, hey, look, I haven’t had a job in five years. And all of the men very much want to know what to do about their resume. They’ve got a five year gap, a five year gap, a five year gap. And many of the women are like, well, a five year gap is no problem. I was raising kids. I was a caretaker for family. It’s just nobody is questioning their five year gap, whereas people are questioning a male’s five year gap. And all of this is just to tie in that in some cases, the differences between the treatments and the symptoms of schizophrenia have considerably more to do with our society than it does with the actual disease. Now, all that said, there are disease processes and symptoms, processes that work differently in women vs. men.
Rachel Star Withers: As we get into the symptoms, if I’m saying this, and you know, you’re like, well, Rachel, I’m a woman and I don’t experience it that way or I’m a man and I totally have. No, no, no. Just saying across the board, which symptoms tend to flare up in different genders? Women actually, like we said, are more sociable. So different things like the flat affect pretty much where you don’t experience emotion. You have a very dull expression is not seen as often in women. Women tend to even have more emotions. And I know that’s like, oh, of course women are emotional. But with schizophrenia, a lot of times people have a blunted emotional response so they don’t really react the same way, quote unquote, normal people do. But women, we come off as still acting more emotional to those around us. Inside, we might not, but we’re able to kind of fake it much better. Our speech isn’t reduced. And I found this interesting, Gabe, women with schizophrenia are actually more physically active than men across the board. And also under that, they can be more hostile. You know, past episodes where we’ve talked about violence and schizophrenia, if you were to picture a violent schizophrenic, I don’t think anyone pictures a woman.
Gabe Howard: Not only do I not think that anybody pictures a woman, I think that the way that society responds to a male who is being aggressive and a female who is being aggressive is very different. And there’s a plethora of reasons for this. Listen, I weigh 275 pounds and I’m six foot three. If I am being extremely aggressive and loud, that’s going to look a lot scarier than if Rachel, who is considerably smaller than Gabe is yelling. Also, people tend to be more willing to de-escalate a female than a male. And again, a lot of these things fall under social constructs and our whole society is set up this way. Right? It’s not just in schizophrenia where this is important. We see this in policing. We see this in jobs. We see this in you know, I could never scream at a server in public. But, you know, there’s a whole Internet trend of calling women who scream at servers Karen, and everybody thinks that that’s funny. But sincerely, the humor comes from somebody yelling at somebody in public. And because that person’s a woman, it’s considered funny. You could never change the Karen memes to John. Well, you know, John just stands up and starts screaming at a server. People would think that’s not funny.
Rachel Star Withers: No, that’s like, yeah, everyone turns around and is like their about to call the police thinking he’s going to start swinging.
Gabe Howard: The perception is very, very different. And because schizophrenia is an illness that is based on self-reporting, based on observation, based on behavioral patterns. So obviously society’s perception of what they’re observing is going to determine the diagnosis that you receive. And to that end, because of the different ways that we perceive the genders, women are often mis diagnosed with schizophrenia more often than men are.
Rachel Star Withers: When it comes to health reporting, I feel that men and women would probably also report different symptoms more often. I don’t think I ever went in and was reporting, you know, oh, I just don’t want to go out with my friends. Oh, I just want to, like, stay inside. I talked about depression and that was the initial diagnosis I got repeatedly, was just that I had depression. And I was too scared to even bring up hallucinations and delusions. I kind of, you get used to just, oh, OK, you’re just overreacting. Oh, you’re just overthinking. So that never occurred to me that certain things I was having was a delusion. It was just, oh, yeah, I just, I’m overthinking things. So I think across the board it’s easy to see the women who would be diagnosed with different things. I do wonder if doctors are quicker to label men as schizophrenic than women.
Gabe Howard: It’s important to point out how difficult it is to research and study this when we exist in a culture that isn’t actively discussing it. And as we’ve been talking about this whole show, culture and society impacts our outlook. So when a male is looking at a female patient, some of those biases are bound to creep in. I do think that we have made great strides now that more women are in psychiatry, because while they have biases, too, they at least have interjected more understanding of women. And I think that’s very, very good. Now, one of the things that’s interesting to me is when we plotted out the show, Rachel, I was shocked at how much was just society. How did you feel about that? What were you thinking when you were researching the show?
Rachel Star Withers: It made me look back on my own life and kind of think huh? You know, how had I like self-reported, you know, certain things and didn’t like the way they were responded to. And I think back to the more physically active and hostile thing. I was very, very hostile towards my father specifically when I was in high school. And I don’t mean I was like trying to hurt him or anything, but I would have these breakdowns and he would try and restrain me, which just made it worse. You know, not necessarily doing what’s the best way to deal with someone having a psychotic breakdown. And he was still much bigger than me and able to kind of like grab me and control me. But I think now, had it been my brother who was bigger than my father, there wouldn’t have been any controlling. It definitely would have escalated to police or we can’t deal with this on our own situation much quicker than it did with me. And it just makes you think, though. Wow, like, yeah, if I’d been a guy, you know, or even just more physically different, my life could’ve played out, I don’t want to say worse, but it would have had a different impact.
Gabe Howard: Rachel, well, this is an awkward question. Do you think that a female menstrual cycle has anything to do with schizophrenia and why or why not?
Rachel Star Withers: Oh, I think it absolutely does. I’ve long thought that menstrual cycles and the women type stuff definitely affects my schizophrenia. It frustrates me to no end that at least once a month, I know for three days my schizophrenia is gonna get a lot worse. I’m going to lose touch with reality. I’m going to kind of get more spacey. I have to really be very careful. I get more delusional. I know my hallucinations get worse. I pretty much have to anticipate these days are coming. And during these days, I need to live in my room as much as possible to avoid potential issues. And it’s right before my period. And this has happened over and over. And I’ve brought it up to multiple doctors. And it’s not like you can just, okay, well, you know, up your medication for three days. It doesn’t work that way. You know, they’ll just be like, well, you know, make sure you track it and do your best. There’s never really been like a way to deal with this. And it’s been frustrating because talking to other women with schizophrenia and mental disorders, they agree that the exact same thing will happen to them. And yet no one really has an answer for us.
Gabe Howard: And to put it another way, half of the schizophrenia population is having this issue or has had this issue at some point and there doesn’t seem to be a big push to do anything about it or resolve it or to come up with a plan other than hunker down. This is just part of womanhood. I imagine that it is extraordinarily problematic because three days out of every month, that’s 10 percent of your life between the ages of 16 and 45 on average. That’s a lot of time.
Rachel Star Withers: Yeah, and I’m not saying that’s three days for all women with schizophrenia. It’s just me, I know there’s going to be three bad days. And it’s not just okay, women saying, hey, I think this is happening. No, it’s been observed that schizophrenia symptoms in women get much more severe during the low estrogen phase of their menstrual cycle that women go through once a month if they’re in those certain ages. That, yeah, it’s been observed. The symptoms are much more severe. It’s like, OK, we’re not going to deal with this, though. And I’m not trying to put down anything. But I’d say most of the times that I’ve been lucky enough to get to speak with researchers in that side of mental health, people who are like the scientists, it does tend to be predominately men. I could see this not being on their radar as much. Just kind of, yeah, if ninety percent of the guys are researchers, it doesn’t even occur to them to look into that.
Gabe Howard: Rachel, along those same lines, you’ve been a schizophrenia advocate for well over a decade, advocating for others. But of course, you’ve had to advocate for yourself. Really probably since the beginning. What advice do you have for women who are experiencing this so that they can advocate for themselves and have a chance to be heard?
Rachel Star Withers: I’ve said this so, so many times about so many different things on this podcast, but track your symptoms. Be able to actually prove, and this sounds bad, prove. I’ll have like my little app, it’s a menstrual app that tracks menstruation, all that, but it lets me put down symptoms. So you can actually like hand it to the doctor, be like, no, no, look. See this week right here? See this? Again, I’ve never gotten a good answer on how to deal with this particular situation. But it has helped to be able to be like, look, no. I can see that these are the main three days and I can usually pick out the week where those days are gonna hit. And just kind of, all right, let’s do my best to work as little as possible, you know, if that’s an option for me and that kind of thing.
Gabe Howard: Rachel, continuing the discussion of symptoms that only impact women. Women with schizophrenia are diagnosed much later in the process with breast cancer than women without schizophrenia.
Rachel Star Withers: Yes. And there’s a few different reasons why they think this is. One is that women with schizophrenia tend to ignore their physical health more so than the normal population of women. OK. And it could be partly because of psychosis, not actually realizing something is wrong. For me, I can easily see that a lot of times my physical health just takes a back seat to my mental health. It’s like I’m already doing so much trying to keep my brain on track. I can easily just not worry about physical stuff because I’m already on like six different medications from my brain. Do I really need to do other things? And I think I go to the psychiatrist so often, my therapist so often, and then I got to go to a normal doctor, too? When I was reading the different stats as far as what woman with schizophrenia tend to not get treated for until the later stages, osteoporosis, also thyroid conditions, diabetes. Yeah, I could see that. I totally could see that. Too busy worrying about your brain falling apart half the time to worry about your body also.
Gabe Howard: As we discussed in last month’s episode, people with schizophrenia are much more likely to have more comorbid issues of schizophrenia and something else. So in that line of thinking for a woman, it’s not too far of a stretch to consider that one of those co-morbid conditions, of course, would be breast cancer.
Rachel Star Withers: Yes, Gabe, that makes perfect sense.
Gabe Howard: Rachel, let’s move over to dating for a moment. Now, men and women culturally and societally date differently. So it’s not too much of a stretch to assume that women with schizophrenia and men with schizophrenia would also date differently. Now, what research did you find? Because I was really surprised that there was any research at all on how people living with schizophrenia date. But you found a wealth of it.
Rachel Star Withers: Oh, so much. And on that note, throughout my years of being open about schizophrenia, I have repeatedly got messages all the way down from teenage males to significantly older, all the way to like their 70s, 80s males. And one of the main things they always bring up to me is issues with the opposite sex romantically. And I’ve even had some very angry comments left on many of my videos. It’ll be like, well, it’s easy for you to say, you know, you’re not an overweight male. And I’m like, you know, and I get that.
Gabe Howard: Yeah. What do you say to that? Yeah.
Rachel Star Withers: Yeah. Yeah, I can see, yeah. There’s a How I Met Your Mother, if you ever watch that show, where Barney has like a little chart saying that, you know, women, their hotness and their crazy and this like can’t be off. So the hotter a woman is, the crazier she can be. But you don’t want to date a woman who’s like really, really crazy, but she’s not that hot. And it’s like a TV show and it’s a joke. But I do think women can get away with, yeah, guys will overlook a lot of things to still date certain women. Women could, you know, just be seen across the board like, oh, well, yeah, they’re a little bit crazy or wild, and it not be a bad thing. They’ll still be able to date and marry. Whereas a guy that’s more red flags. It’s also easier to hide your schizophrenia as a woman. If I’m on a dating app, and I talk to a 34 year old guy who lives at home with his parents in their basement.
Gabe Howard: That’s like a deal breaker
Rachel Star Withers: Yeah. Yeah.
Gabe Howard: For you. Even though you’re a 34 year old woman who lives at home in your parents basement.
Rachel Star Withers: Yeah, it’s more easy to be like, well, you know. Oh, OK. It’s OK for her, but yeah. A guy, I immediately I think it’s like, oh, no. That’s unfair. I agree. It is totally unfair.
Gabe Howard: Rachel, no show about women and schizophrenia can be complete if we don’t discuss pregnancy. What all did you learn about schizophrenic women who are pregnant or trying to get pregnant?
Rachel Star Withers: First, I feel like we should hit on that this is a touchy subject. Should women with schizophrenia even get pregnant? Should that actively seek out to be like, yes, I want to have my own children? I’ve had people just out of the blue come at me being like, so what are you going to do? And regardless of me having schizophrenia, kids are gross. Let me stress that. They’re just gross. Um, and I figure like.
Gabe Howard: But even that said, I think it’s important to point out as much as you don’t want to have children, Rachel, you still think that it would be wrong if somebody passed a law that said women with schizophrenia cannot be mothers.
Rachel Star Withers: Yes, I agree. My own personal beliefs and I think this is gonna be different for every woman with schizophrenia and different during parts of your schizophrenia. Mine has gotten incredibly bad at times where no me being pregnant would not have been an option. Nor holding down a job, nor like driving a car. That’s just being in certain psychotic episodes. Right now, if I were to get pregnant, it would not be the end of the world. Yeah, it wouldn’t be great, again. But I really don’t think that anything, you know, horrible. I’m not in a really bad mental place. Do I still have episodes? Yes, but I feel like I honestly could have a baby right now and be fine. Again, that’s a touchy subject across the board and.
Gabe Howard: It was shocking how touchy it was. I mean, with everybody weighing in. Men, women, mothers, even politicians weighed in. The research was frankly shocking as to the number of people that had an opinion about a woman being a mother. And, I’d like to point out, a woman that nobody knows, we’re not discussing whether or not Rachel. Just like a whole swath of women based on a medical diagnosis. And all of the sudden a large group of people decided that their opinion was strongly relevant.
Rachel Star Withers: And this is something that has happened repeatedly throughout history. I live in South Carolina and just north of me in North Carolina, there was a big issue where, not even that long ago, the 60s, 70s and 80s, women who had mental disorders were sterilized. If they were in different asylums and things like they were just forced sterilization across the board. Some of them who weren’t even diagnosed correctly. And that has just been kind of an ongoing thing that had happened. And it was also had a lot to do with ethnic groups were particularly pointed out also. So this is like a real thing. And I know I’ve gotten so many messages throughout the years that have been like, you need to be sterilized. And I’m like, OK. But it’s funny, though, because, yeah, you’ll have people who don’t know anything about you who feel very, very passionate about this subject. Probably and it doesn’t affect them in any way. And it’s going to be a very personal issue. Let’s talk, though, about some of the fears about a woman getting pregnant who has schizophrenia. One is that they might not realize or recognize that they’re pregnant.
Rachel Star Withers: It could be due to psychosis. It could be they’re in denial of the pregnancy. It could be that they’re misinterpreting. Think about like how many medications cause weight gain. I could easily see, you know, someone gaining weight and you’re starting a new medication. It never even occurs to you, oh, wait, this isn’t, it isn’t that type of weight gain. So there’s that is the worry about schizophrenic women not necessarily realizing quickly enough that they’re pregnant. And then there’s the whole medication side of it. Usually it is highly suggested that you stop anti-psychotics, and most antidepressants and whatnot if you’re pregnant due to the safety of the baby. And then there’s the withdrawal action. So while someone could have been stable before, having to go off their medications to be pregnant might cause other issues. It’s all just very interesting. And there is no cut and dry answer of, oh yeah, you should totally get pregnant or you shouldn’t. I do think it’s a personal decision and a situation that’s gonna be, yeah, different for every single human going through pregnancy.
Gabe Howard: We’ll be right back after this message from our sponsor.
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Rachel Star Withers: We’re back discussing how schizophrenia affects women.
Gabe Howard: Obviously, when we’re talking about pregnancy, Rachel, we have to talk about motherhood. So now you’re a woman with schizophrenia and you have children. There was a plethora of research on that. It was compelling.
Rachel Star Withers: Yes. And when we’re dealing mental disorders, you know, you have homelessness. You have a lot of I don’t want to say sad stories, but you do you have a lot of sad stories that are also factored in. You have a lot of sad stories dealing with rape and things like that. One third of women with schizophrenia lose custody of their children. And whether the children are going to other family members, ex-partners, the foster care system. And, the others, women with schizophrenia who have children, very few maintain sole custody. And that goes back to fear that they are unable to care for a child correctly, that they might not recognize problems, especially in infancy. What the baby might need, what the baby is going through. The mother might interpret it wrong. And again, it’s all this is a touchy subject because every situation is going to be different. And I can’t even imagine being in a situation like that. I said a few minutes ago, like, oh, I feel like if I got pregnant, that I, you know, for the most part, I would be fine. And I still stand by that. But I would need a lot of help. I would need a lot of help. Hopefully there would be a partner, but if there wasn’t, then with my parents, because my parents already have to step in with me a lot of times. And and I feel like I would even need more to make sure I was. I personally was seeing reality the correct way, if there was a little, another life in my hands.
Gabe Howard: One of the interesting things that I saw when I was reading this research is this idea that mothers with schizophrenia, they don’t have a lot of leeway. One of the things that you just said is that you would need a lot of help. I would really defy you to find a mother on this planet that doesn’t need a lot of help. Now, I understand that if you’re managing any illness, any illness,
Rachel Star Withers: Yes.
Gabe Howard: Not, not mental illness. If you have an illness, then obviously you are going to need more help. That is understood. But do you think that the bar is just significantly lower for women with schizophrenia? That if something happens, if a mistake occurs, if an illness symptom pops up, that it’s like, oh, well, you’re schizophrenic, we’ve got to take your baby? Whereas with other mothers like, oh, well, you just made a mistake. Mistakes are part of parenting. Everybody does. Do you think that that is a factor in some of these stats?
Rachel Star Withers: Absolutely. And I think if someone has some sort of even genetic disorder, very few people are like, oh, you shouldn’t have a child. You shouldn’t be over, you know, another person’s welfare. But when it comes to mental stuff, it’s like, oh, you have depression? Oh, you have bipolar? Oh, you have schizophrenia? Like, no, you shouldn’t be around children. And not even like you shouldn’t be a mother, you shouldn’t be around children. So there is definitely a double standard with that all where anything mental freaks people out.
Gabe Howard: There’s just so much stigma, discrimination and misinformation that it makes it very difficult. And it’s interesting because, you know, Rachel, I love you and I think the world of you, but I know what it’s like to be sick. And I can’t imagine having to care for a baby. And I can’t imagine you caring for a baby when you’re that sick. And part of me is like, oh, geez, I don’t know. Maybe that’s not a good idea. But my mom broke her wrist when she had three children. She was not doing well that six weeks. My father lost his job when we were younger. Well, that’s not a good idea either. I just I think of all of the adversity that my family faced growing up. But everybody was like, hey, band together, work it out. You can do it. Nobody said, oh, yeah, this is proof that people named Gary Howard shouldn’t be fathers. Oh, this is proof that people named Susan Howard just can’t hack motherhood. We just got through it as a family and a community. And I think that more often than not, women with schizophrenia, they just don’t get those benefits. And I think it’s worth pointing out, because it is another layer that makes it very difficult for women with schizophrenia to lead the lives that they would like.
Rachel Star Withers: And I did want to put a little note on this. Over and over, I could find so much info about women having children as far as schizophrenia, like pros, cons, mostly cons and just lots of people with opinions. And yet next to nothing about men with schizophrenia being fathers. Nothing. Really, there was nothing at all. Just that’s interesting, like how society, we view people with mental disorders having families. Like it was just kind of like women obviously, yeah, they’re gonna deal with this, but not men.
Gabe Howard: That is incredible and obviously something that we’ll discuss more next month on men with schizophrenia. Rachel, shifting gears from motherhood, we have to talk about the aging process. What’s the difference between men and women with schizophrenia as we get older?
Rachel Star Withers: This is fascinating. We talked about earlier age of onset, about women tend to get schizophrenia later. Another thing, though, is that women can have a second peak of schizophrenia is what they call it. And it’s usually women age 45 to 50 who have not been previously diagnosed with schizophrenia. It suddenly comes on and it has to do with the pre-menopausal stage hitting. And they think because the estrogen drops, there’s something about estrogen that keeps schizophrenia more in control. And harkening back to what we talked about earlier with periods and estrogen dropping. But men don’t have this. There is no second part of life where suddenly a man who hasn’t had schizophrenia will develop it in his 50s, 60s. It’s just not seen. In fact, men with schizophrenia as they age tend to get more of a handle on it. And women, it’s the opposite because you have for some women, suddenly schizophrenia develops. And there’s a lot about that. I was wondering when I looked at the different research, did these women already have schizophrenia? But maybe because they were so social, it just wasn’t recognizable? Or did it really just come on at that moment? And there is no answer for that. But I did think it was very interesting and something that if you’ve already been diagnosed with schizophrenia to look out for. That it could get a lot worse hitting around age forty five if you’re a woman. So, you know, I got a little over 10 years there. Clock’s ticking for the second round of fun.
Gabe Howard: And it’s something else that women have to be aware of that may or may not be as researched or as discussed. Oftentimes I think society does forget how much educated guesswork there is in a mental health diagnosis. Schizophrenia is diagnosed by observation. It’s treated by best case practices and research and then more observation. There’s a lot of self-reporting from the person living with schizophrenia. And all of that really allows our culture and our society and our bias to influence the end result. We have to be aware of it. While it does sound scary, and it is, I don’t like the idea that men and women get different treatment. Obviously, you don’t like the idea that men and women get different treatment because it kind of sounds like women are getting the short end of the stick. It is what we have now. And for the women listening to this show, this is where advocacy is just so important, along with education. And, Rachel, I’m going to ask you, would you have known any of this information about being a woman living with schizophrenia if it wasn’t for your job? Do you feel more educated and more empowered today than you did before the research for this show? And what advice do you have for women living with schizophrenia to make sure that they get the best care, taking into account the fact that they’re women?
Rachel Star Withers: I would not have known a lot of the things we’ve talked about today, but especially the way estrogen is thought to affect schizophrenia. None of that’s ever been brought up to me. No doctors ever said anything. Like I said, I’m in my mid 30s and you would think maybe, hey, just so you know, Rachel, you know, women with schizophrenia, it could get a lot worse here in the next few years. None of that’s ever been said to me. And it makes me realize how important it is to do your own research. And I’m not saying to diagnose yourself. I’m saying to really know and research what could be on the horizon, especially with the pregnancy and things like that. I’m like, okay, well, I don’t plan on having kids. So why would I ever like research or look into all that? But then that’s what led me to finding out about all of this, which led to the menopause thing. And again, it’s just not something you normally see on any of the little pamphlets in the doctor’s office or brought up at any therapist meeting.
Gabe Howard: Rachel, were you surprised to find out just how separated physical health and mental health is? Because it just seems to me like before we started the research for this show that it never occurred to really anybody that your physical health would drive your mental health outcomes. And while this is a chronic problem, just across the board in mental health advocacy, specifically for schizophrenia. The fact that what’s going on with your physical body has been so far removed from your schizophrenia treatment, how does that make you feel?
Rachel Star Withers: Last episode we talked about the, quote, co-morbidity and then to go in to seeing just how the hormones. They do, everything affects your schizophrenia. And it’s all connected. And yeah, having a hard time. Mental health affects your physical and vice versa. Something else that we as people with mental disorders do need to be aware of and to kind of not be so hard on ourselves. As I’ve done research and just kind of learned about different statistics, a lot of things are normal that I just didn’t realize were. It’s like, hey, it’s OK that I have this issue. It’s not that I’m being super unhealthy. A lot of women or a lot of people with schizophrenia also struggle with this. It’s good and bad. Let’s go with that. It’s good and bad, Gabe.
Gabe Howard: Rachel, thank you so much for your candor. Now, you had the opportunity to talk to Dr. Hayden Finch, who is a Ph.D. and a researcher and understands schizophrenia from the clinical perspective. And you got to ask her a lot of questions about, well, really the differences between men and women and specifically what it’s like to be a woman and getting treatment with schizophrenia. It’s a great interview. And we’re gonna go ahead and play that right now.
Rachel Star Withers: Our guest today is Dr. Hayden Finch, a psychologist from Iowa. Thank you so much for being with us today.
Dr. Hayden Finch: I’m so happy to be here. Thank you for the opportunity.
Rachel Star Withers: Our episode today, we’re focusing on women who have schizophrenia, specifically as a psychologist, what issues have you seen that women with schizophrenia tend to seek help with?
Dr. Hayden Finch: Well, women, interestingly, tend to have more emotional symptoms with their schizophrenia than men do, so often they’re coming to treatment for things like relieving anxiety and depression. We see that more in women than in men. And then they also have, you know, a lot of trauma. They tend to be victimized quite a lot in their lives. And so that’s often a focus of treatment. And then lots of things related to family planning and relationships.
Rachel Star Withers: Women with schizophrenia across the board tend to be more social than men who have schizophrenia. Why do you think that is?
Dr. Hayden Finch: So symptoms of schizophrenia are divided into positive symptoms and negative symptoms and positive symptoms don’t mean good, they just mean that something is there that shouldn’t be there. So, for example, hallucinations or delusions, whereas negative symptoms are things that aren’t, there should be a lack of motivation or lack of facial expressions. So, men tend to have more negative symptoms than women do. So they have a lack of social drive and a lack of social interest, whereas women don’t tend to have those symptoms as much, but also women, their onset of the illness tends to be a few years later than men. So they have a bit more opportunity to develop their personality and their social skills in their 20s, and that will protect their social skills through the rest of their lives.
Rachel Star Withers: Talking about the positive symptoms you just brought up. Do women tend to have a different type of hallucination than men experience?
Dr. Hayden Finch: Not necessarily. We see the same types of hallucinations and delusions. Sometimes with women, the content will be a little bit different and it will focus on their children a little bit more or safety a little bit more. But often they’re very similar in type, though just the content can vary a little bit.
Rachel Star Withers: What are the biggest challenges for a woman with schizophrenia who is pregnant?
Dr. Hayden Finch: The most obvious one has to do with medication. So a lot of women with or without schizophrenia will stop taking most medications while they’re pregnant just to air on the side of safety. And so when it comes to a woman with schizophrenia who gets pregnant, a lot of them will discontinue their medications for the same concerns about potential effects on the fetus. And sometimes those concerns are coming from the woman herself, sometimes from her family, sometimes even from her doctor. But stopping medications during pregnancy for women with schizophrenia increases the risk for relapse. So I think about sixty five percent of women with schizophrenia who don’t stay on their medication during pregnancy will relapse during their pregnancy. So then they have more problems with their mental health during pregnancy. So most women who don’t have schizophrenia don’t report major changes in their mental health during pregnancy. But women with schizophrenia do, in part, again, because of that medication thing. But then psychosis during pregnancy can affect seeking prenatal care, not recognizing signs of labor or problems during the pregnancy. They might not even recognize that they’re pregnant. There can be lots of negative consequences on the pregnancy and on the fetus when psychosis develops.
Rachel Star Withers: So I am a woman with schizophrenia.
Dr. Hayden Finch: Right.
Rachel Star Withers: Let’s say that I found out that I’m pregnant. What would you suggest being my next steps?
Dr. Hayden Finch: It’s a situation where you need to talk to your doctor, especially the psychiatrist, about what medications are safest during pregnancy. We do have some information about medications, antipsychotics even, that are relatively safe during pregnancy. But it’s a balance between protecting yourself and your mental health and the secondary effect that has on the baby. It’s a really difficult balance. It’s an individual decision. And it really depends on the particular woman, her health, her history, her symptoms and all of that. That’s a very difficult decision to make with respect to medications.
Rachel Star Withers: What are the biggest challenges when it comes to being a mother with schizophrenia?
Dr. Hayden Finch: All moms are overwhelmed, right? So you have that regular level of being overwhelmed with responsibilities. But then on top of that, you’re trying to manage your own mental health. So you’re trying to get organized with post-natal checkups and pediatrician appointments, plus your own medical appointments and mental health appointments. They often don’t have as much support as women without schizophrenia. So there aren’t as many family members to lean on for emergency child care. They don’t have those extra hands when they just need a break. They also symptomatically can have more difficulty reading the cues that the baby is giving them so they might misinterpret what the baby is needing or wanting. And that can interfere with the relationship that they develop with the baby. And a lot of women with schizophrenia during that postpartum phase will have a pretty significant exacerbation and symptoms. And a lot of women are at risk for postpartum depression. But women with schizophrenia, especially those women who weren’t taking their medication during pregnancy, are at especially high risk. And that can increase the need for hospitalization. But a lot of women then won’t seek hospitalization really truthfully because the majority of women with schizophrenia lose custody of their children.
Rachel Star Withers: In my research, I found that so many of the women who have children who have schizophrenia also are single mothers and do very often lose custody due to either not being able to afford to provide for that child because the mother herself is having a hard time working and being able to provide, or having to be hospitalized. What would you say like if you have someone coming to you who’s in that situation?
Dr. Hayden Finch: The biggest thing I think, is asking for help before there is a problem. So if you’re noticing that your symptoms are making it hard for you to care for the baby, if you’re getting extremely overwhelmed with caring for a baby or even a child, it’s important to ask for help before a problem comes up. Those are the women who have the greatest likelihood of being able to maintain custody versus waiting until there is a major problem, when the child has been neglected or even abused. Then it’s very difficult to make an argument to maintain custody. It’s a situation where we definitely want to prevent problems rather than try to correct problems.
Rachel Star Withers: And most women, if they have a family and they’re going through treatment, like you’re just trying to juggle everything. And
Dr. Hayden Finch: Oh, absoluttely.
Rachel Star Withers: Everybody who has kids and whatnot are just constantly trying to juggle their lives. With the schizophrenia added, what advice do you have for women?
Dr. Hayden Finch: The biggest thing we can all do, really, but especially women with schizophrenia or women who are involved in the mental health system, is to find out exactly what services are available in your area. So you can call 211, which is a public line where they’ll connect you with services in your area. That you can be looking for things like housing for mothers and their children, family Services support groups for parents with mental illness, respite care for when you really need a break. There are specialized clinical services for parents with mental illness. There are in-home services where a provider will come in your home and help you learn parenting skills or learn how to interpret what the children are needing. Even transportation services can be a big help for people who are trying to juggle it all. That’s one thing is is making sure that you know what services are available and you take advantage of them, but also to the extent you can, I think it’s helpful to integrate your family into the treatment. So look for providers who are willing to work with you and your child because there are a lot of opportunities for skill development there. Or invite your parents or your partner to therapy and work on communication. There are opportunities for integrating it so that you don’t have quite so much to juggle and you can actually build skills to make it easier to juggle all of it.
Rachel Star Withers: Something that surprised me, and it seems to me someone should have said it to me long before now, but with schizophrenia in women, a lot of women don’t tend to get schizophrenia until they hit menopause . O they already
Dr. Hayden Finch: Right.
Rachel Star Withers: Have it and it gets a whole lot worse come menopause time. I had no idea. But what advice do you have? I mean, if I’m, if I’ve already hit that age range and I haven’t had schizophrenia yet, that’s a lot to suddenly hit you. What is your advice for seeking help at that point?
Dr. Hayden Finch: You think that sort of in the back half of your life, you kind of figured it out, you’re kind of coasting for the rest of it. And things should be easy from here on out. And to get hit with something like schizophrenia around menopause is, yeah, that’s a blow. We’re still doing research on exactly what causes that in women and what causes, first of all, the later age of onset in the beginning, and then that second risk time around menopause. But we think it has something to do with maybe estrogen. So one thing you can do is talk to your doctor about any medical treatments that could be available to address it or protect it from getting worse. But certainly seeking mental health treatment is the most important thing to do. Go ahead and get involved in treatment, learn how to cope with the symptoms, medicate them if that’s something that is valuable to you and effective and fits with your personal ethic and then learn skills to protect the great life you’ve already built for yourself. The good thing, if there is a good thing about psychosis after menopause, is that those women have had their whole lives to develop good relationships, good social skills, good occupational skills, and that is helpful in going through the illness at that time in life. You’ve got a lot of good skills that are automatic and that keeps the illness from being quite as devastating as it can be earlier in life.
Rachel Star Withers: Some women have had issues with doctors not taking it seriously where they’re just kind of like, oh, okay, well, that’s just your hormones,
Dr. Hayden Finch: Mm-hmm.
Rachel Star Withers: That’s just this time of life. You know, kind of brushing off very serious symptoms. What would you tell someone who’s kind of having that issue? They’re worried it’s something more.
Dr. Hayden Finch: Definitely be assertive. Talk to your doctor. More than once if you feel like they’re not getting it. If you feel like they’re not really hearing you, go get a second opinion. If that’s needed. Be assertive in some ways. We need to sort of trust doctors and if they’re telling us it’s no big deal, we sort of need to listen to that. But also in your gut, if that’s not right to you, then be assertive. Seek a second opinion. Bring it up two or three times. If multiple doctors are giving you the same opinion, then that can be telling that you might sort of be making something out of nothing. But if your gut is telling you that there’s something missing that they’re not really listening to you, then be assertive or get another doctor.
Rachel Star Withers: Across the board, it’s always said that women get diagnosed for schizophrenia, usually many years later than men. Do you think that just something with, like you said, the estrogen or is it more that women tend to mature faster and it might not be as noticeable?
Dr. Hayden Finch: So women are diagnosed later in life than men are. So, men are diagnosed usually in late teens or early 20s, whereas women are diagnosed more mid to late twenties. And that is just part of how the illness develops differently across men and women. We think that might have something to do with estrogen protecting women from the symptoms a little bit more. Whereas men don’t have that. But that’s still being researched and we’re still trying to understand that. So women are diagnosed a little bit later than men. But like I said, that’s just a consequence of the illness. But when they’re diagnosed, they tend to be diagnosed more quickly, meaning that men will have untreated psychosis longer than women do. So once women start showing symptoms, they tend to get diagnosed more quickly than men do.
Rachel Star Withers: Well thank you so much for talking with us today. And you actually have a book coming out soon, don’t you, Dr. Finch?
Dr. Hayden Finch: I do. I just wrote a book in part because a lot of the information that we’re seeing on the Internet is either incorrect or it’s so complicated you can’t understand it. So I wrote a book giving you all the details, everything you need to know about schizophrenia. And I tried to write it in the plainest language possible. So it’s super understandable. But I talk about everything from what schizophrenia is, what the symptoms are, how it relates to schizoaffective disorder and all of the other similar disorders. We talk about violence. I’ll talk about brain stuff. What parts of the brain are affected and what’s different about a schizophrenia brain versus the average brain? And of course, talking about treatment, a lot of the things we talked about today were kind of downers, were about problems, but schizophrenia is treatable. And I do believe that people can recover from schizophrenia. So I talk about what recovery means, what that looks like and how to get there in the book as well. So it’s called The Beginner’s Guide to Understanding Schizophrenia. It will be available as an electronic book on Amazon. And so I will have the link to that in the show notes and also on my Web site at HaydenFinch.com/SchizophreniaBook.
Rachel Star Withers: Awesome, we’re definitely gonna have to check that out. That sounds exactly like the kind of stuff we talk about here on our podcast, Inside Schizophrenia.
Dr. Hayden Finch: Yeah, absolutely.
Rachel Star Withers: And as a schizophrenic, I guess I would love to read some of that and especially in the easier to understand language.
Dr. Hayden Finch: Yeah, it’s even the stuff that’s written for people with schizophrenia or their families, sometimes then they won’t give you all the technical details that you want. So I’ve tried to kind of strike that balance that you get all the details, you feel like you really know the science. But in a way that’s relatively easy to understand.
Rachel Star Withers: Awesome. Thank you so much for joining us here today and shedding some light on this topic.
Dr. Hayden Finch: Thanks for having me.
Gabe Howard: Rachel, that was incredible, what were your takeaways from that interview?
Rachel Star Withers: I love talking with her. I love how knowledgeable she was. I like that she stressed how important it was for women to speak up and to make sure the doctors are hearing them and taking them seriously about things. And she even mentioned, yeah, and if one is not listening, you may need to go talk to a different one.
Gabe Howard: I completely agree. Self-Advocacy is a thing in all of health care and it’s really a thing in mental health care. And I think a major takeaway from this episode really needs to be ask questions. Because it really seems like doctors aren’t bringing up some of the physical health components of schizophrenia. And I think that’s of vital importance.
Rachel Star Withers: And seriously, ladies, take this to heart, talk to your psychiatrist. Let them know, you know, if you are having any issues with hormonal type things with your periods. Talk to them if you’re planning on getting pregnant or even if that’s just something that you know, hey, I want to talk about like future. What does that mean? Will I have to go off my medication? Would I need to do it, let’s say, a few months before? Like speak up about these types of things. For me, it’s interesting because we talked about co-morbidities last time and how important the physical doctors are and we really didn’t even mention gynecologists. But yes, gynecologists are a major part of women’s health and making sure that psychiatrists and our gynecologist are on the same page. Next time, we’re gonna be exploring how schizophrenia affects men. So we’re gonna be hitting on how symptoms affect men differently. And also testosterone. So that will be happening. And we will have Dr. Hayden Finch returning to talk to us more about the clinical side of the gentlemen. So join us next month on Inside Schizophrenia. I’m your host, Rachel Star Withers here with Gabe Howard. And you’ve been listening to a Psych Central podcast. Please like, share, subscribe with all of your friends, family, loved ones, the women in your life with schizophrenia. Thank you so much.
Gabe Howard: And we will see you next month.
Announcer: Inside Schizophrenia is presented by PsychCentral.com, America’s largest and longest operating independent mental health website. Your host, Rachel Star Withers, can be found online at RachelStarLive.com. Co-host Gabe Howard can be found online at gabehoward.com. For questions, or to provide feedback, please e-mail [email protected]. The official website for Inside Schizophrenia is PsychCentral.com/IS. Thank you for listening, and please, share widely.
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Meet the women of SB Nation’s NBA team brands and learn about the challenges they’ve faced
Welcome to a week-long series celebrating the women covering NBA teams for SB Nation’s team brands.
All of the women covering NBA teams for SB Nation’s team brands have had unique experiences covering the sport because they’re women. You can meet all of the women we’re featuring in this series in the first post, which you can find here. The second post details how each woman fell in love with basketball and the team they cover.
In this third installment of our series celebrating these women, here are some of the challenges they’ve faced covering the NBA for SB Nation sites and the advice they’d like to share with other women looking to break into the field.
Bailey: I imagine, as a trans woman, that my experiences are probably fairly unique. When I first started writing about the Mavs, it was pre-transition. Since I’ve transitioned, my experience has changed somewhat. The primary challenge is just that men are much more willing to say awful things about me or my writing. As I’m sure most of us know, this wears on you. I don’t cover the team in the locker room or at press conferences or anything, so I cannot speak to the challenges there.
The only advice I would have is to engage with the fans who appreciate your work and make strong use of the block option for those who are only looking to troll.
Sarah: I have faced a lot as woman in a male-dominated industry. I’ve been propositioned to sleep with men for jobs, sexually harassed, been told women have no place in sports and I was never going to amount to anything because I wasn’t good enough. My advice for women coming into this profession is to never deter. Yes, men will place roadblocks in your life, but you know yourself better than anyone else. You’ve relied on your talent all these years, so don’t ever stop doing you. Be known for your work and everything will fall into place.
Courtney: Intimidation and underestimation. My abilities, interest and understanding have been underestimated as a woman in a male-dominated industry. I frequently hear “Oh. I didn’t know you would understand or care about that.” Or “YOU know sports?” No. I know basketball. As for the intimidation … well, I think that is just a normal aspect of healthy competition, which I think most of us agree isn’t necessarily gender-specific. (I have had tiny little 4’10 ballerinas fluff up and try to intimidate me with the same effort as any man in a sports environment.) I don’t take any offense. I just smile at the expression of surprise on their faces when I follow along with their conversation, or when I give my own perspective about a game or strategy. I see the challenge of being a woman in a typically male industry as exactly that — a challenge. This is just a cultural norm that has begun to slowly change over time. Challenges make us grow and growth makes us strong. That is all good as far as I can tell.
Ashley: The only challenges I have faced are the challenges I have set up for myself. The team I write with at the Denver Stiffs is welcoming and encouraging, and even though I’m new to the roster they’ve made me feel very comfortable. I’m not as technical as some of the other writers, and I sometimes feel like I need to change my style, but then I remind myself that we all have a unique voice to bring to the site.
My best advice for another female trying to make her way in the sports blogging world is to not worry about the fact that you’re a woman in a male-dominated industry. Have confidence in your perspective, because if you try to write like someone else it typically hinders your quality from what it really can be. People want to know what you think. So tell them.
Kayla: I’m very lucky in the fact that I have not faced many challenges in this industry as of yet. For a couple of years, I was the only female on the Denver Stiffs staff, but I never felt out of place because of it. I think it helped that I had been active on Twitter for years and people knew that I was an avid fan of the team and because of that, I never really felt the need to prove my passion for the Nuggets. That being said, I’m all too aware that females that are far more active in the industry than I am are obviously way more subjected to those challenges. The few times I have had the opportunity to attend a Nuggets game as a member of the “media,”
I’m aware of the fact that females in this industry are outnumbered by males in a big way. I think the experience that a female has in this industry is entirely dependent on who they are surrounded by — I’m lucky enough that I am surrounded by great people that do not question the fact that I am a female writing about a basketball team.
Grace: Not only have I been pretty much the only consistent female writer for the site during my career there, but I also have been by far the youngest. Especially at first, it can be a little intimidating. I’ve never had anyone make fun of the fact that I was a girl to my face, but guys definitely didn’t try to include me in conversations about sports growing up. I interject myself into the conversation, and they begin to realize I know what I’m talking about. In the dating world, many guys shy away from career girls, especially ones that know about sports, so that was a little frustrating in high school that guys didn’t appreciate that about me. They seemed to find it intimidating.
Working for GBB, I’ve always felt really welcomed and respected by my peers and editors. I’ve been encouraged by those closest to me to pursue writing about sports. I’d advise other girls looking to get into this industry to just go for it. You have nothing to lose. Let the haters make their comments, but they’ll respect you as your work speaks for itself. You have to gain some credibility to be taken seriously, but that will come with time! Just work harder than everyone else. If you’re treated poorly, take your talents somewhere else. There are plenty of sports sites that are run by or greatly respect female writers.
Jannelle: My biggest challenge is being heard sometimes. I can say things on Twitter, for example, and for the most part, they are overlooked by some fans. My opinions are overlooked and dismissed until I’m proven right. Then I have no problem letting people know about it and telling them to put some respect on my name!
My advice is to stick to your convictions and beliefs no matter what. If you feel like you know your stuff regarding the NBA and sports as a whole, you keep talking, keep learning, and keep sharing. You may have to talk some trash, but eventually, you will be heard and respected.
Marilyn: I’d be lying if I said I had come across any such issues so far, at least at SB Nation. I will say back during the 2010-11 season, I was covering the Spurs for Bleacher Report (back when it was a fan-operated site), and there was always this one Lakers fan who would comment on my articles about how clueless I was and how women shouldn’t cover sports. He would get banned, then create a new account and be right back the next day with all his shenanigans, blaming me for being a wimp and getting him banned.
In reality, it was other commenters who were flagging him and coming to my defense, but my advice to others would be don’t be afraid to flag or report someone if they cross the line. That is a common issue women face in general these days, so don’t feel like it makes you any weaker. Also, don’t stoop to the level of those types of people. If you’re going to respond do it with class and dignity in an educational manner. Going low doesn’t help the cause.
Renee: The only issue, not really challenge, has been that people don’t believe that I understand or know as much as I do about basketball and that I can contribute to such a prestigious site like PTR. My only advice is to own your skills. Know and believe that you are just as knowledgeable and skilled as the next “guy.” It has taken me a while to get to the point of owning my skills and knowledge, and I’m grateful for the leadership and mentoring of my editor-in-chief.
Michelle: Personally, I’ve been lucky not to have experienced sexism in the industry, although I certainly know sexism exists. I’ve worked for two sports news websites in addition to SB Nation, and really enjoyed the people I’ve worked with and never felt like my opinions or writing were treated with less value. I’m based in Los Angeles, where the sports media market it is fairly diverse, with women involved meaningfully in broadcasting and reporting at various levels (high school, college and pro sports). I would encourage others to not shy away from the fact that the industry is still male-dominated, as the face of the industry is changing. If you have an interest in sports and want to make that a career — GO FOR IT!
Tara: It’s been a big responsibility and a huge challenge to step in as a cohost of the Blazer’s Edge podcast. I have a male cohost who is basically my polar opposite. I’m a little bit country, he’s a little bit rock and roll. I’m relentlessly optimistic, he’s in eternal pessimist. He is extremely knowledgeable about every aspect of the game and I’m still learning how to watch it critically. Despite our differences though, the biggest challenge hasn’t been working with a vocal alpha male, it has been overcoming my own self doubts. How could anyone possibly want to listen to what I have to say? I must sound like an idiot! I’m a total fraud. Again, I can’t emphasize enough how great my co-host has been to work with, but he doesn’t get it when I say, “if I say something wrong, I’m letting all females who host sports podcasts down.”
One thing I do to counteract those negative feelings is I keep any compliments I get. Tweets or emails or message that say anything positive go into a file on my desktop called “Atta girl.” Its a reminder that if people I like and admire say something nice, who am I to tell them that they are wrong? I’d say I 75% believe them.
The other challenge has been trying to fit into a culture that isn’t particularly encouraging. I can’t say how many times I’ve heard “You want to get into sports journalism? Don’t.” This pessimism is so far out of my normal experience. This isn’t true on my site, but outside of the group of writers I regularly interact with there is no collegiality if you are not already a part of the in-crowd. I have experienced that at Summer League. I sat on press row during a Blazers game one time and the only person who talked to me was the woman who brought me there and the one guy I knew from Blazers Edge. Its not like everyone is actively unfriendly, they just expect you to make all the effort.
Marissa: My advice for other women in any male-dominated industry is to find allies in other women, then help lift each other up. I have found that no one is more willing to elevate women’s voices than other women.
Caitlin: Looking back on it now, I’m confident that growing up as a coach’s daughter probably afforded me free and unlimited membership in the boys’ club of talking sports that I, and others like me, probably wouldn’t have enjoyed otherwise. That is, at least when I was surrounded by those who knew whose kid I was. All hands were on deck one summer when I jumped in to run the clock at some pick-up games my school was hosting. It wasn’t my first time doing the job, but the coach who happened to be filling in as an official from an opposing team wasn’t familiar with me. When there was only a handful of seconds left to play in the game and the player inbounding the ball rolled it onto the court, I was given animated instructions to wait to start the clock until a player on the floor touched it, almost like a crossing guard walking out to halt traffic for crossing children. I laughed it off, thinking it strangely funny that he assumed I didn’t understand the rules, until later in the day when I noticed that he didn’t find it necessary to patronizingly gesticulate in the same scenario when some of the much younger brothers of players had taken over for me.
That experience was eye-opening because it revealed to me for the first time that the way in which my understanding of the game had been perceived up until that point was linked, at least in part, to the fact my dad was my dad. It was always, “That’s the coach’s daughter; therefore, she knows sports.” Never just, “She knows sports.” My authority wasn’t my own, and apparently it mattered in the eyes of some that I was female.
I’ve posted 450+ articles at Indy Cornrows. By choice, my first name has been abbreviated on the byline of all of them. This was never done with the intention of purposely deceiving anyone. Rather, I made the conscious decision to create an environment where first-time readers would notice my writing and ideas before they made note of my gender. Now that most are aware of both, I’m extremely grateful for the support of our site manager Tom Lewis, the tolerance of our fan community, and the countless words of public encouragement from fellow bloggers and outlets like Jared Wade, Tim Donahue, Ben Gibson, the Miller Time Podcast, and Locked on Pacers — all of whom are men who have empowered me and my writing.
China: I may be a bad person to ask this because (knock on wood) without exception everyone I have ever worked with at Posting and Toasting and interacted with on Knicks Twitter has been incredibly cool and supportive. I know there are ugly corners of this world but they have been hidden from me thus far. I can’t say enough good things about Seth and Joe, and (most of) the commenters on the blog.
THAT SAID, I stay so entirely in my (non-technical, non-aggressive, mostly lighthearted) lane that I don’t think there’s much testosterone that would spill on to me in any event. And so the challenges I have faced are mostly internal — trusting that what I write is informative or entertaining, and that my voice might be valuable, maybe because it is different. And to trust that even though I might not be a basketball expert, I’m a pretty serious fan and that’s an important perspective. Hell, Bill Simmons made a fortune off it.
I’m afraid I have no specific advice other than 1. Figure out your voice (mine is slightly husky), and 2. As unbalanced as it is (and it is), there are a lot of people, many of them men, who might love to help you out and give you a platform, so don’t be afraid to try.
Kelsea: Honestly, just the comments so far. I haven’t been doing this long enough for someone to tell me to “get back in the kitchen,” but it seems like any time I write an article with even the tiniest example of a stat, there is always one guy who has to tell me I’m wrong. Thankfully, there are also usually some who defend me and tell said guy that he is wrong and I am right (duh).
Romy: Our industry is notoriously old school, but it’s started to break open. Personally, I’ve been lucky to have many women to look up to at UMass Amherst (where I did my masters in Sport Management), an incredible network I could tap into (which is one of the largest hurdles women have to overcome), and male bosses who also acted as sponsors.
Rachael: I could count on one hand the amount of basketball conversations I’ve had with a male that didn’t include some sort of ignorant or sexist comment. The thing is, a good chunk of guys don’t even realize they’re being offensive — so I’m quick to let them know. Between, “So, do you really watch basketball?” and constantly being quizzed and tested, it’s exhausting. I’ve dealt with ignorance regarding basketball knowledge endlessly in person, but nothing compares to how completely ugly and hateful the internet can get over a simple basketball opinion.
I’ve encountered a lot of discouragement on my journey, but I’ve found that succeeding has felt all the more sweeter after you have been doubted. My best advice is to maintain your confidence no matter how many times you get knocked down. Realize that you are just as knowledgeable — probably more so — as any man in this industry. Know your worth and don’t let anyone take away the love you have for the game of basketball.
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First post/Introduction
Hi, my name is Ben.
I’m 31 years old at the time of writing this, and I’m from the Detroit area. I’ve spent the past 10 years of my life toiling and wasting my time on mostly trivial pursuits. That’s not to say I’ve wasted every moment of the last 10 years (nor that I didn’t have good times despite such time-wasting), but I’ve spent a large portion of it not knowing what I wanted to do with my life, going down dead-end roads, and making myself miserable in the process. I recognize misery is a part of being human. It gives us something to reflect upon in order to better ourselves, and without bad days we couldn’t have good ones: a philosophy I use frequently to justify why I’m so miserable sometimes. This preamble is to tell you - and remind me - of where I was mentally and emotionally when I decided, finally, that I want to make games for the rest of my life.
I’ve been to many job interviews and taken many college courses where they’ve asked, “where do you see yourself in 5, 10 years?” “Fuck, I don’t know,” I’d think, often replying to the prompt with some contrived answer in the way of “I want to grow in _____ skills.”
One night (in June 2018) I was preparing to go to bed. I had just listened to a good chunk of a recent episode of Steve Gaynor’s Tone Control podcast, where he interviews game developers about how they got started in the industry; and it pushed me, hard, into knowing what I should (and want!) be doing. On its own this statement sounds silly. “Oh some guy whose work you admire inspired you to do what he does for a living.” But for me, it wasn’t about Steve Gaynor’s career choices nor those of the person he interviewed; all they did was give me more insight into something I’ve always loved: games and how they’re made. I had just started a new job more in line with my college degree and was starting to realize more and more that this new job didn’t make me happy; in fact, it was making me miserable all over again. A story for another time, I suppose, but serves as evidence that merely changing something big in one’s life doesn’t mean that positivity will soon follow.
For years I’ve wanted to work in video games, I just wasn’t sure what I wanted to do with them. I’ve dabbled in journalism/writing, I’ve cohosted a podcast and I’ve streamed games on Twitch - all with varying consistency. Or is it inconsistency? I don’t know. Hell, I even curated two art shows for my friends at Detroit Arcade Club focusing on characters from video games (something that lines up directly with my college degree). I enjoyed these things - the challenge, the subject matter, and the knowledge gained from them - but I knew even then that it wasn’t something I could see myself doing in 10 years. I’m not the most charismatic or social person these days, and a lot of these things require a certain self-confidence and leadership I lacked and didn’t attain through practicing them. Many people can and have - and good for them (not sarcastically speaking here)! I hope more people can find something they love and pursue it as a career, should that be their goal. Which, after an exhaustive few paragraphs, brings me back to my point: I want to make video games because I’ve always loved video games. They make me happy, and I want to make things that bring joy to the lives of others.
At some of the darkest points in my life, many over the last 10 years, video games have always left an immense impact. In the last year alone, I played Hollow Knight when my wife had to go to back home to Canada for a week to help her sick mother. This was the longest we’d been apart since getting married (I know, it’s only a week. I have dependency issues. I’ll get over it). I played Night in the Woods after my grandmother passed away, which happened to be the week the game came out, and it helped me understand and accept the changes life would force upon me, and the changes that I personally made, for better or worse, and taught me how to grow from/with them. These games taught me more about myself, in a way, and they brought me joy at very difficult times in my life. If you haven’t played them yet, please do.
My goal with this devlog/blog/whatever, is to show what I’m working on, share my learning processes and steps I’m taking to achieve my goals, and grow as a human and developer. I’m not always funny, I’m not always profound, and I’m not always making the best decisions, so if you happen to be reading something that you have a better solution for, that’s what comments and messages are for. I’m not planning to use this platform as a means for social engagement in the way that twitter and Instagram and shit are there for (I’ve spent too many hours of my life in these spaces as it is). But I am certainly hoping to make friends - be it people that like my work, people whose work I like, and people I feel comfortable sharing my thoughts and feelings with. For now, this is all I have to say. Just a bunch of loose thoughts on why I’m even here in the first place. The next thing I’ll post will be more game focused - though I should be honest - I’m very early in my game development learning. I’ll write more about my influences, my artwork and where I’m drawing suggestions and information from, but as of right now I’ve been focusing my attention on learning Pico-8 from Lexaloffle, learning how to make decent pixel art in Aseprite, and have been jotting down ideas to hopefully take into Game Maker once I have a basic understanding of the skeleton that makes a game function. Or is it the beating heart? Maybe the brain? Fuck it.
Thanks for listening/reading.
Love,
Ben (Junior Kaiju)
#junior kaiju#devlog#introduction#game development#video games#life change#self help#fresh start#gaming community
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Psychedelics vs sobriety, ego death vs depressive dissociation
In new age subcultures and especially within any community where psychedelic drugs are common place, the term ego death gets mentioned a lot. Often this term is spoken about totally incorrectly, where some might think it is, in the colloquial sense, “the death of the ego” or a newfound humility, a less selfish perspective, less of a focus on the material and status, with a greater emphasis on others. This is merely a byproduct of actual ego death, which is defined as a “complete loss of subjective self identity” or in Jungian psychology, it is the transformation of the psyche, or a “shift back to the existential position of the natural self”. It is thought that after one experiences the death of consciousness, the consciousness is then resurrected. Actual accounts of ego death describe the experience as anything from pure bliss to sheer terror. This should perhaps be taken with a grain of salt, as these are often drug-fueled accounts, even by the likes of writers such as Aldous Huxley and Timothy Leary. Their stories are, admittedly, ineffable, leaving the storyteller armed with only lines and dots of their language to try and communicate something that can’t really be communicated. It’s hard enough to describe a common emotion adequately, like happiness or jealousy. I’m pretty certain that almost everyone has felt these things, and we can identity similarities in experience, but ultimately, are we alone in our experience. Happiness for you might be so much better. Colours in your world might be more vibrant. Maybe the come up on acid feels a lot like oneness with the universe, makes it hard to put into words what you are feeling, what you are seeing, and how…different you feel. And maybe it’s a lot easier to feel less you and more everything else when you are madly tripping balls at a bush doof. My point is that I think drugs blur the picture, especially psychedelics. Attempting to describe an acid trip in any kind of way to someone, even someone who has indulged in lysergic good times of their own, is futile at best. Our experiences are so different, even when we are sober. There is no truth, the truth is merely our perspective or vantage point, it is the story we tell ourselves. Facts are what we all agree upon. They can, and often are, peer reviewed and revised. Our eyes can fail us, we are shackled to our own perspective, to our own biases and tastes, to our own morals and intelligence. Two people looking at a car accident can describe it completely differently. Maybe one person standing on the side of the road saw the driver skip the red light, thus assigning blame. Maybe the the person in the skyscraper above the street saw the traffic lights malfunction. Maybe only the passenger in the car saw the driver not paying attention to the lights at all. And if I was standing on a bridge over the road staring at the sky while tripping mad balls then heard a car accident, maybe I wouldn’t register the car accident at all. Any kind of ‘ego death’ felt under the influence of drugs, at least for me, can’t be described. I’ve attempted (and failed) on several occasions to get some kind of personal qualitative data during benders and all it really provides my sober self thereafter is comedic material. Drugs make shit unreliable, even to ourselves. That’s why they are fun. It’s like we get to narrate life a little differently for a few hours. Like we get a cohost, or guest speaker for a bit. But it’s inherently problematic to have highly personal revelations under the influence of psychedelics, mostly (to me anyway) because it’s hard to figure out what the hell is going on most of the time. What I can describe is a sober ego death, which certainly has its similarities with those felt by myself under the influence. I’ve experienced ego death during periods of great sadness in my life, where things get so bad I begin the dissociate from life. Nothing quite feels real, my thoughts, my body, people around me. There is a cessation in sense and feeling of complete loss of control and understanding of order. Thoughts feel ‘placed’ in my mind, I feel like life is as real as a computer game, but I’m not even a first person shooter. It’s more like I’m watching things happen to me. Many of the ideas that tie to me to 'reality’, like gender, race, home language, country of origin, my job title, my appearance…all feel somehow a lot more abstract. Less defining. Totally random. Extremely fluid. There is especially no truth in this dissociative state. Even your own perspective, you realize, shifts and is unreliable. And ultimately, I end up feeling a strange kind of calm, that meaning is just something you assign. That we are small, but nevertheless a part of something that is. And when the depressive, dissociative 'trip’ nears completion, when I can manage to get myself to care about taking a shower, going to work and engaging in the world and reality again, I realize that maybe we are all talking about the same thing when we say dissociation or ego death. And maybe that thing is personal experience so intense that you disengage from the story you normally tell yourself. And maybe that’s a good thing sometimes, even if it's born out of pain.
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