#folks with spirit magic are more likely to be chronically ill or disabled or get sick a lot

[madeofbees]

Me: I’m just gonna get a quick snack and then go back to bed.

Me: Oh and jot down some super quick ideas for Forest I don’t want to forget.

Me: Oh oh and that one plot bunny super quick.

Me, an hour later, hand aching, three full pages of handwritten first draft scrawl: what just happened

[artbyjessicajewett]

Hi everyone! I wanted to introduce myself. I'm Jessica and I was a previous user of Tumblr before it was bought. I decided to come back.

Today I'm not so much a fandom person (my first account was a Supernatural and Destiel vibe) as I am living my "real" life as an artist, author, historian, and disability rights activist. I'll be 42 in February and I live on the border of Ohio and West Virginia - like, literally on the border. I can almost throw a rock and hit West Virginia from my apartment building. Living here after spending over twenty years in Georgia has been a fresh change. Georgia is not a great place for people with complex disabilities like mine. I get much better medical care and access to state services here in Ohio, which is why I came here. My ancestry is Appalachian anyway, so this does feel like home in a strange way.

My art is what I do the most. This is me doing a commission order a few years ago.

You're immediately wondering about my disability and why I do everything with the tools in my mouth. I was born with a condition called Arthrogryposis and that just simply means my joints have very little range of motion. Much of my body is stiff. So I taught myself to play with my toys, markers, etc., with my mouth rather than my hands before I could even read or go to school. It was natural for me. I live a happy life and I'm not upset about being born with this disability. You don't have to feel sorry for me because I don't feel sorry for me.

At this stage in my life, I'm working on art commission number 91 with about 50 more on my wait list. My work specializes in black and white pencil portraits, mostly of different historical periods. Most of the art people order from me has to do with my ability to interpret their previous lifetimes (yes, reincarnation) as well as introducing them to their spirit guides. I do regular art with no spiritual complex as well, like family portraits, friends portraits, pet portraits, architecture, fan art, original characters, some fantasy, witchcraft, folk magic, paranormal, historical events, etc. I'm heavily trained in realistic very detailed portraits, so if you're looking for anime or cute illustrations, I'm probably not your woman.

This is the last commission I finished.

This is an interpretation of that customer's spirit guide as they appeared before they died. This is "my style" of art, as they say. I like to do color art too but I finish black and white orders much faster.

Besides art, I'm a lifelong student of 19th century history in America focusing on women's roles, families, social issues, disability history, and LGBTQIA+ history. I was in school to specifically become an antebellum and Civil War historian before chronic illnesses forced me to drop out. Higher education 20+ years ago was a casserole of nonsense when it came to helping disabled students succeed. Don't get me started.

I'm also a lifelong paranormal researcher focusing mostly on hauntings tied to antebellum and Civil War America including old folklore. My mother and grandmother were Missouri folk magic practitioners. I was raised in an understanding of the unseen world. I also collect reincarnation cases from the Civil War period sparked by my own case from that time. I'll talk about that elsewhere if you want.

Follow me here if you like. I'm just getting started. I have to relearn how to use this app.

-Jessica

Shop: etsy.com/shop/ArtByJessicaJewett

If you're not interested in art, I also accept tips if you enjoy my content. I'm at $ArtByJessicaJewett on CashApp, at Jessica-Jones-1002 on Venmo, and PayPal.me/ArtByJessicaJewett on PayPal.

[the-fae-folk]

Can the Fae truly adapt in our world? Won't they be ill of the carbon emissions and pollution? The toxicity of it? Besides, they can't very well eat our food, won't you?

Modern depictions of Faerie Folk conflate them with nature spirits and elementals. They aren’t always seen this way. A creature such an undine or another water spirit might find themselves ill if the water in which they live has been polluted or poisoned, but a wandering elf or a brownie aren’t likely to find themselves affected by such things as carbon emissions. In fact....the presence of the Fae Folk is more likely to cause slight changes in the environment they dwell in due to their magic, these could be good changes...or bad ones. The only thing that can and will affect them enough to cause them a problem is cold iron (meaning iron that’s been worked in some way) or steel. But that will only harm them if they touch it, so as long as they’re careful they should be fine. And in all my research on the Faerie Folk, I have never once come across any indication that they cannot eat our food. We have trouble with Faerie Food because of enchantments, glamours, different or addicting ingredients, implied bargains and favors, and all sorts of things. But even the addictive properties of their food might have an entirely different effect upon them, for they are not humans. So they might be able to eat our food quite well. In fact, there is quite a lot of evidence that they can and do. Think of the untold hordes of humans that leave gifts of food or drink in exchange for favors or continued benevolence from the Good Neighbors. If they could not eat of that food, what would be the point in leaving it for them? Finally, consider this. Even if a particular Fae is close enough to Nature that its slow poisoning will make them ill, it does not mean that they can’t simply endure it and exist among humanity anyway. There are people out there every single day who deal with illness, chronic pain, or other disabilities that make their lives quite difficult. But most of them still have lives, still find a way to go out and do things. School, work, social events. They take medication to alleviate symptoms and find coping mechanisms to get around complications. The Folk could easily slip right in among them and few would ever notice the difference. And never underestimate someone’s willingness to endure suffering in order to do the things they want to.

[cosplayernation]

10 Tips for the Chronically Ill Cosplayer

Part I of II | Let's Get Physical

Chronic Cosplay

    There's a reason I go by Chronic Cosplay. I'm chronically ill and I'm absolutely crazy - as in, actually mentally ill. Don't look at me like that, I can get you the paperwork. This is not a drill. This is, however, an article that's both close to my heart and absolutely imperitive for your survival. I write about it on my blog, I talk about it in interviews, I answer questions from friends and fans alike - how to cosplay with a chronic illness (or a laundry list of them). This how to survive a convention without sacrificing your health - phyical or mental. It is, in fact, possible.

    I learned how to do it the hard way. I spent entire Saturdays in hotel rooms in too much pain and far too tired to get anything done. I've passed out at conventions. I've collapsed and laid on concrete for hours, a circle of eleven people I didn't know sitting around me to keep me safe and cracking jokes to keep my spirits up. As much as the experience restored a significant amount of faith in humanity, it still entailed me laying on concrete for two or three hours in too much pain to do any more than crack a smile. I think you get the point. We'll cover some highlights from my extensive background of con crazy in Part II. For now, let's focus on ten of the most important lessons I've learned in my five years as a cosplayer with physical disabilities.

1. Make A Realistic Schedule

    Oh, sure, you would love to go to the JoJo's Bizarre Adventure group shoot at 10am, book it to the lolita fashion panel at 11:15, meet your friends for lunch at noon across the building, change your cosplay, get to the [insert sports anime here] group photoshoot at 12:45, do another cosplay change at 1:54, and make it to your private shoot as Miku Hatsune for 2:10. It sounds like a dream, everything scheduled right in a neat line so you can get everything done. Let me break this down for you right now, you will get one of these things done and I can't tell you which one it is. I can tell you that you're going to have a surprise fainting spell before noon and you're going to spend the rest of the day in your hotel upset and in agony. Space your events wisely. Cross reference room numbers and the convention center map. I guarantee there will be two [insert sports anime here] group shoots a day, there will be four JJBA group shoots every three hours, your friends won't mind picking a closer restaurant, and you'll get to sit down at the panel. See how that works? See how you are not dead? Let's keep it that way.

2. Keep Your Cosplay Line Up Simple

    Look, I get it. You have four sports anime, two Jo Jo's Bizarre Adventure per day, and you just made the perfect prop for your private shoot. I'm going to stop you right there. You cannot fit all of those in one day. You probably can't fit them all into one weekend. I brought nine cosplays to my third convention. I wore two. I wore two and I was still to exhausted to make a group shoot I planned. As much as you love every cosplay in your closet, please love yourself long enough to realize you will never have the energy to bring every single one of them. Pick your favorites, pick the ones with the group shoots you absolutely cannot miss. Pick a super comfy back up cosplay for when you realize you still brought way too many and you're about to pass out. At least pass out in a kigurumi or a swimsuit. Please don't pass out in the most complicated armored cosplay this world has ever seen. Do not impale yourself on your own EVA foam breastplate. Yes, it may be the sickest photo op all weekend, but you'll end up being the sickest con goer and not in a good way.

3. Swallow Your Pride

    You can pretend you're not ill all morning but halfway through that four hour pre-reg when you're dehydrated; dizzy; and your knees give out, you're going to wish you'd asked your doctor for that note about needing accomodation because you are not able to stand in four hour lines. See what I'm getting at here? Yeah. Just get the note. Thank me later.

4. Use Your Mobility Aid (if you have one)

     This could easily qualify for swallowing your pride. A lot of these will, I'm going to be honest with you. I know we, as folks with chronic illnesses, can feel a sense of shame or embarrassment for relying on mobility aids. I know this is especially hard when you're just starting to use mobility aids. There's a learning curve to them, it's not just you. But the fact of the matter is that your doctor would not sign off for you to get a mobility aid if you didn't need it. Don't jeopardize your health or ruin all your Saturday plans because you wanted to cartwheel through the halls on Friday in your Tai Li cosplay. If you want to set a mobility aid down or step out of one for a photo, fine. Do so wisely. Do so if you are capable of doing so. If you've paid $60 for a private photoshoot and you want to slide your cane or a crutch out of the way for a photo, have something to lean on. At least use your mobility aid for the rest of the weekend. If you're in a wheel chair or on a scooter, that does not take away from your cosplay no matter what anyone tells you or what you try to tell yourself. Between me; so many of my friends with mobility equipment; and Misa on Wheels, I promise there are plenty of people who believe in you. We believe in you and we don't want you to risk your health just because you don't think Princess Peach would rock a wheelchair. She totally would and so will you.

    Side note: When it comes to canes, props check does not always understand the concept that some cosplayers have canes for use as a mobility aid and not as a prop. When you consider the myriad of characters with walking sticks out there, Ciel Phantomhive and steampunk anything for example, it's understandable that they will occasionally stop you to try and give it a zip tie. In my experience, letting them know it's a cane used for medical purposes and not as a prop is quick and painless. While you should not expect any more hassle after a quick explanation, should any volunteer or staff member insist on giving you more trouble or trying to take your mobility equipment away, ask to speak to a higher up immediately. I wish I didn't have to tell you that props check will probably flag you down upon entering the convention center, it's better to give out a heads up for any newer cosplayers or cosplayers just starting to use mobility aids. Wheel chairs don't seem to raise questions, neither do crutches of any kind, I haven't used my walker to a convention but I would assume that wouldn't cause any questions either. To any case user, keep this in mind and don't be offended when a volunteer who has no idea who you're supposed to be cosplaying is only trying to play it safe.

5. Slow Down

    The one problem with convention schedules is how badly we all want to catch every single thing listed on one. The second you get your con schedule booklet, you start planning. You pull out your favorite pen and circling every single panel, event, and photoshoot you want to see or attend. We've been over this. Put the pen down. Let's fast forward to when you first step onto the con floor Friday morning. You're speed walking or speed wheeling your way down hallways, through exhibit halls, from friend to friend to that cosplayer you need to race after and flag down for a photo. There's so much space to cover and so little time in your three day weekend of nerdy revelry. Re-read that sentence. Three days is plenty of time. It's more than enough time. Save the power walking for your neighborhood PTA members and take it easy. Be the tortoise to your mind-racing idealistic hare imagination. Go slow. You're at this convention to have fun and relax. It's a vacation from normalcy, school, work, and the fifteen doctors appointments you have this month. If you rush your way through pre-reg, getting ready Friday morning, and rush from the hotel to the con center to keep up your speed oni level of exertion, take a guess on how much energy you're going to have for Saturday and Sunday. None. You will have no energy. You power walk your way to exhaustion and the rest of your weekend lay in shambles at your feet. Take a tip from Sub Zero and chill out. You'll get everywhere in your own time and still live to see tomorrow.

 6. Carry A List

Scratch that, carry several lists. Type these lists into your phone's memo section, have a hard copy on paper in your wallet, have a post-it tab for the pages in your date book; notebook; or sketchbook. Make sure that if anything happens, your lists are easily accessible and easy to read. List any medications you take along with the dosage, list when you last took your medication, write a list of instructions of what to do or what not to do if a health emergency occurs. Whether it's fainting; too low or too high blood sugar; a migraines; seizures; or the myriad of other magical things that could go wrong, write out the protocol for how to handle it. Hopefully it won't come up, but let's play it safe. Write down your blood type, too, if you know it. Write down any medications you have an allergy to, write down foods you have an allergy to, write down the numbers for your doctors. The con health center can only do so much and nobody in there is a psychic. Make sure they have the right information to help you if things go south.

7. Speak Up!

    There's a pretty big chance that your friend group isn't made up entirely of people with chronic illnesses.   There's a pretty big chance these friends don't live with someone who has one or more chronic illnesses. There's a pretty big chance these friends are all about that PTA mom power walk life and they're all about standing in the middle of a hallway for four hours to debate about whether or not the premise of Yu-Gi-Oh! 5Ds makes sense or not. First of all, the premise totally makes sense and I will defend it with my very life. Second of all, your able bodied friends are not psychic nor are they going to think about whether or not you can stand for that long or walk that quickly if you don't say something.

    What I'm trying to get at here is that you need to say something! "Guys, can find somewhere to sit down, please?" If they say no, they're not very good friends and you don't need that nonsense in your life. "Hey! Can we slow down a little? I can't walk this fast." If they say no, they are not very good friends and you don't need that in your life. Are you in the pre-reg line with your doctor's note waiting for a staff member to miraculously walk by until their disability radar goes off so you can ask about a more accomodating line? Nobody in the con staff has a disability radar and they aren't going to notice the piece of paper in your hand. Walk, limp, or wheel your way to the front of a pre-reg line and ask where to find the accomodating reg table. Someone will tell you and get you set up to avoid a lot of suffering.

    If you have trouble speaking up for any of these things, keep a very loud and very confident friend with you. Give your very loud and very confident friend the "please help me with your loudness" look and stutter out a few key words such as "chairs," "too fast," or "special needs line." Don't thank me on this one, thank you very loud and very confident friend. Then thank your very loud and very confident friend for me.

8. Set Phone Reminders

    Do you have any medication you need to take throughout the day? Probably. Are you going to remember when you took them with all the excitement going on? Probably not. Does your phone have a memo section, an alarm app, and a timer? Unless you're about that ironically oldschool Nokia brick life, your phone has all three. Type out the time in the memo section whenever you take your medication. Leave the memo app open and hit your "check all running apps" button for a quick look whenever you need to double check how much time you have before your next dose. You can also set an alarm for every dose you need to take that day. If you'll be in a panel, set your alarm to vibrate. Try using the timer on your phone instead of the alarm if you don't always take your medication at the exact same time every day. I can tell you that for me, it always depends on when I wake up.

    If you're accidentally running late on medication or you ignored number 5 and it's all hitting you harder than a super saiyan, take a tip from Celty and communicate by typing it out. Not only is this completely appropriate given your current surroundings, but it's something I've used in my day to day life. I've texted someone right next to me "yo, i need to take meds, can we sit for a sec?" Convention centers can be louder than a jet plane, but you can still bet your bottom dollar everyone there is still going to check their phone. I've even typed "can't speak, pain," and made a very weak attempt at handing my phone to a family member from bed when I hadn't the strength to sit up. You know what happened in those situations? My friend helped me to a chair and got me some water. My folks picked up the phone, nodded, made some tea, gave me my morning meds, popped in a Yu Yu Hakusho DVD, and told me to rest for the day or text them if I needed anything. Durarara! is surprisingly good at offering some choice life lessons when you least expect it.

9. HYDRATE. EAT.

If I honestly need to explain to you why dehydration and extremely low blood sugar are things you should avoid, I just don't know what to tell you. However, if it's a matter of "I can't really chew solid foods" or "my stomach isn't cooperating" or "my meds cause really bad nausea and I don't know what to do," then I have a few ideas. One happens to be pedialyte. It's a god send for keeping hydrated when everything seems a lot more like the ending of Free! Iwatobi Swim Club's first season. It's also fantastic for kicking con plague in the face. I recommend it over sports drinks because Pedialyte, and it's generic knock offs, are made with simple sugars that are easier for the body to break down than the complex sugars found in your Powerades, Gatorades, and Vitamin Waters. Ensure is great for when you can't do solid foods but need some kind of protein and sustenance, provided you have no dietary restrictions in terms of dairy. Naked and Odwalla both have great smoothie-esque drinks that are as ridiculously expensive as they are ridiculously delicious. At a convention, however, a $4 smoothie-esque beverage is worth not passing out from low blood sugar.

10. Stay Close or Call a Cab

Hotel costs are the most expensive part of most conventions provided we don't include all the things you shouldn't have bought in the dealer's room but still left the convention with anyway. Some classic methods for avoiding the high cost of hotels include the "Stuff Fifteen People into a Two Bed Hotel Room the Size of a Closet" and the equally fun "Let's Walk Fifteen Blocks Back and Forth Every Day in the Most Complicated Craft Foam Armor and Highest Heels We Own" tricks. The former involves sleeping on the floor, accidentally bringing home the wrong wig, and risking getting stepped on every second you spend in the building. The latter is something no one with a chronic illness should ever attempt when traveling by foot or chair. Even with a wheel chair or scooter, it's still traveling fifteen blocks and exerting more energy than you should. If you absolutely must stay in a hotel that isn't attached to the convention center, even if it's only two blocks away, do yourself a big favor. Save yourself and call a cab. Well, these days it's more common to call an Uber, so pick whichever works for you. Either way, you'll get to where you're going without using all your energy for the day or increasing you pain/fatigue levels.

    "But Chronic, won't it be expensive if I take a cab or an Uber back and forth three days in a row?" No, not really. If you've picked a hotel far enough from the convention center to require taking a cab or an Uber, you've likely saved enough money to cover some transportation for yourself. This also means the other people in your hotel room have saved money, which means you can all carpool via cab and/or Uber and split the cost between each other. For Otakon last year, a large group of friends and I chose to rent an apartment about an hour by foot from the convention center down in Baltimore. We used a regular cab company to get back and forth, a one way trip costing only $6. By using Air BnB to rent an apartment that fit eight people comfortably with a real bathroom and kitchen, we spent $45 dollars each on somewhere to sleep, then spent $36 on transportation for the weekend. Well, I spent about $36 on transportation given we didn't always carpool and I was the only person who relied entirely on cabs to my knowledge. My point here is that even if you have to sacrifice the convenience of a hotel adjacent to the convention you're attending, you don't need to sacrifice all your time and energy just to get to the convention.

 What I really want to drive home is that your illness does not have to define your convention experience provided you adequately prepare yourself and go at your own pace. I urge you to take these points into consideration. I spent four years assuring everyone I always collapsed at least once during a convention, it was completely normal, and not to think of it as a big deal. I don't want you to believe that's true. I don't want you to suffer because of your pride. I don't want you to make the same mistakes I did. I don't want you to learn the hard way like I did. I made those stupid decisions so you don't have to make them. Please, take care of yourself. Take care of your friends. Be safe. Have fun.

[maddiviner]

What's shaman sickness? How do you know if you have it? Is it just a gut feeling you get?

Hi, Nonny. Thanks for writing to me. This is a topic I really ought to have written about sooner! The term “shaman sickness” and related concepts do pop up often in occult circles, and while I hinted at the issue before, I believe I ought to address it at length. I’ll try to do so here, but do realize that this is simply my own take on the issue.

Note: Throughout this, I’ll be using the word “shaman” in the anthropological sense, not referring to New Age “shamans,�� nor the holy men of Tunguska tribes that use said title. It’s a general anthropological term and I’m at loss for a better one.

Historically “shaman sickness” referred to an illness or hardship of some sort that befell a person in a tribal (or similar) society and presaged a shamanic occupation. In other words, a person experienced the sickness, and soon after felt a calling to act as a shaman or similar figure. 

These illnesses could range from depression to long bouts of fever, and could even include things like recovering from a wild animal attack. This feature isn’t universal, but many societies did “choose” their shamans in this fashion.

Judika Illes writes of this:

Although some enlist, many more are drafted. Very frequently the individual has little choice in the matter. The spirits choose you, their call manifesting through dreams, visions (not necessarily your own), illness, bad luck, and/ or animal attack. Traditionally, in some places, surviving bear, snake, or jaguar attacks was interpreted as a shamanic call. 

Illes, Judika. Encyclopedia of Witchcraft: The Complete A-Z for the Entire Magical World (Kindle Locations 604-611). HarperCollins. Kindle Edition.

Nowadays, with the New Age movement having merged with a lot of anti-science/luddite folks, many people jump on this. They say that chronic illnesses (and, unfortunately), especially mental illnesses, are signs that a person must become a “shaman” or “healer.” 

Some go as far as to claim that simply becoming a shaman is a cure or treatment for the given illness. I’ve written about this here and why I find it infuriating. 

I don’t think ancient peoples really “cured” people of things like leopard attacks and psychosis through placing them in a shamanic role. Here’s what I think was actually happening.

In ancient tribal societies, there were no doctors, no a truly systemized way for people to get effective treatment for anything, be it a bout of fever or a jaguar attack. Most people were utterly unprepared to deal with such things, and had no idea what methods worked best. 

Except for those who’d been there and experienced it.

Basically, I think that, in ancient societies, those who’d suffered illness were considered healers because they, having survived, knew (at least some) methods for treating such things. This could mean knowing which plants and preparations healed a jaguar bite, or it could mean knowing techniques and copying mechanisms for lessening depression. 

In short, I think a sickness was only considered “shaman sickness” insofar as the person’s experience of it allowed them to help others. I’m not even sure the concept is useful in this day and age. 

It’s true that those who’ve successfully tangled with a nasty sickness might be able to help others through something similar, but the way the term is usually used in occult communities just causes problems. 

Often, it reeks of the “You’re such an inspiration!” nonsense. By that, I mean the half-baked idea that disabled, mentally ill and chronically ill people have an obligation to turn their life into some kind of glurge-tastic tale of triumph, when in reality? 

We just want to live our lives, and have no goddamn obligation to “inspire” anyone. It reminds me of those losers who want praise and adulation for going to prom with an autistic person or whatever. 

We don’t need condescending attitudes like that, and yes, the New Age “it’s actually a shamanic gift!” thing is condescending as hell. 

It’s even worse because half of these “you are an indigo rainbow shaman!” folks will try to dissuade people from doing things like entering therapy or taking medication. Those are things some (including myself) have actually found beneficial. Such things should not be stigmatized, especially by other magical practitioners. Magical folks really ought know better than that!

Is there a place for the concept of “shaman sickness” in the modern world? Perhaps if it is framed in the context of uncomfortable mystical/magical experiences (which can often be disturbing, but not pathological). 

Or, perhaps it could be understood first by understanding that the concept of “healer” has changed immensely over time. Those who do feel a calling to be such as a result of a traumatic illness or experience tend to approach it with this in mind. 

I think most of us who do deal with these things regularly understand the issue. Those who’ve never had such an experience (illness or trauma, etc.,) tend to be much more likely to assign supernatural causes to things like this. At least, I seem to have noticed that.

I hope this post wasn’t too controversial or anything. People are going to have differing views on such a volatile topic. I’ll admit I can be a bit touchy about it myself, mostly due to things that have happened to me in the past, but I hope I came across politely and that my perspective makes sense.