#everydayisdifferent
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What you see:
A girl and her dog on a hike through the mountains.
What you dont see:
Joints wrapped in KT tape.
The Tylenol for all the sore joints and muscles.
Heart rate spikes in the 200’s.
The walking stick that’s the only thing keeping me on my feet.
The dog pulling up hills so I can make it on inclines.
The muscle weakness and shortness of breath that force me to take frequent breaks.
The extreme fatigue after walking for an hour that has me unable to keep my eyes open past 8pm.
We see so many beautiful pictures on social media of our fellow spoonies and sometimes it’s hard to remember that frequently we see only the good moments and the best days. A week ago I never would have been able to make this trip even with all of the concessions and provisions worked in. A week ago I could barely walk for 5 minutes without being unable to breath and passing out.
It’s hard to not expect the maximum from yourself at all times and to remember that social media is often about the good and beautiful and happy. What you see isn’t always what you get and sometimes you’re forced to stop short and change plans and that’s okay.
Social media is carefully curated so that even on someones 50% day they can look 100%. Moments in photos are often far more than you see in a simple picture on a screen so before comparing yourself to other spoonies and pushing yourself past your limits, remember to work with your body and find ways to work with whatever day you’re having, 20% or 100%.
#everydayisdifferent#chronic illness#chronic pain#chronic#chronic illness community#chronic migraine#invisible illness#spoonie#chronic symptoms#postural orthostatic tachycardia syndrome#pots#potsie#dysautonomia#chronic muscle weakness#chronic health#chronic mystery#chronically ill#actually chronically ill#invisible illness community#invisible disease#chronic spoonie#spoonie life#spoonie community#spoonie strong
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Day 597 of writing !!! We change daily Never the same Counting the ways In which we change So different from the old days Habits of old now gone away We've grown through the decades Staying true to self always Straying, Honestly in some ways Elevating our minds above the haze We aren't who we use to be But yet we remain the same We've played our games We've taken our share of blames We are a little more worn than we claim We've begun our search for fortune/fame At such a late stage As Reinvention has no age We've created our new name for this phase DPoMLiVe is here to handle the craze It is us livin our best life Everyday... the best way As if they were all sunshine days without the rain without the pain No more tears Without feeLiN insane Without the cryin shame No more feelLiN ashamed Free of guilt or blame DPoMLIve...has kept us sane Throughout this journey Of writing for almost 600 days We have grown and changed Always for the better And things will never be the same DPoMLiVe is here for the long game Thanks PappaDios As we raise our voice in praise As we give thanks in HIS name always #ptsd #ptsdawareness #dpomlive #drummer #singer #goodtimes #badtimes #poetry #poetryworld #poetrywriting #writingtherapy #writing #therapy #givingthanks #noguilt #alllove #nothingstaysthesame #everydayisdifferent #inhisname (at Orlando, Florida) https://www.instagram.com/p/Chh5hKnsnUW/?igshid=NGJjMDIxMWI=
#ptsd#ptsdawareness#dpomlive#drummer#singer#goodtimes#badtimes#poetry#poetryworld#poetrywriting#writingtherapy#writing#therapy#givingthanks#noguilt#alllove#nothingstaysthesame#everydayisdifferent#inhisname
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#bipolar #bipolarawareness #bipolardisoder #everydayisdifferent #itry #itsexhausting #invisibleillness https://www.instagram.com/p/CNyu8Srli40/?igshid=ttqz503jx1ce
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#workflow #create #trains #imaginology2018 #ocfair #everydayisdifferent
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This Was Yesterday; @mobilecookingteacher came through with her people as I was serving @born2awesome. Besides being a chef she thinks she’s a comedian. Good times were had by all and I really do appreciate the Love. #everydayisdifferent #butthejerkisconsistant #theexperience (at Side of the Road Authentic Jamaican Jerk Chicken) https://www.instagram.com/p/CCuRObqnu89/?igshid=11xsvyn7nri0c
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Sample development designed @6ikstones Sleeveless max jacket made from 100% natural linen with incorporated black cotton blend Designer Caroline Torisheju #breakingout #onestepatatime #fashiondesign #detailing #workingprogress #studiowork #sampling #patterncutting #stitching #shilloutte #fabric #toilefitting #conceptualtoreality #designersworkshop #mannequin #unisexwear #everydayisdifferent #lovemywork #fashionismyworld #mysafeheaven #masteringskills https://www.instagram.com/p/B2s0fEqngW-/?igshid=51wcweojg3jq
#breakingout#onestepatatime#fashiondesign#detailing#workingprogress#studiowork#sampling#patterncutting#stitching#shilloutte#fabric#toilefitting#conceptualtoreality#designersworkshop#mannequin#unisexwear#everydayisdifferent#lovemywork#fashionismyworld#mysafeheaven#masteringskills
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I met a lovely couple yesterday to talk about rings, they weren't sure what metal suited his skin tone so he tried them all 😂 he went for silver. Then we spent another hour talking about life and random stuff, it was lovely. Really nice to get up from the bench and meet my lovely customers. I don't usually get to do that but managed it on Friday for another wonderful couple so this is a good week 😀 yay! #everydayisdifferent #selfemployedandlovingit #weddingrings #welshbride #madeinwales #welshweddings #handmadeweddingrings #goldrings https://www.instagram.com/p/BvL47orFA7L/?utm_source=ig_tumblr_share&igshid=1qgpymlyuf8f0
#everydayisdifferent#selfemployedandlovingit#weddingrings#welshbride#madeinwales#welshweddings#handmadeweddingrings#goldrings
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Today I shall mostly be Cleaning ancient oil paintings and watching modern digital painting techniques... extremes! 😂 #artistlife #artistsoninstagram #theoldandthenew #everydayisdifferent #oilpainting #oldmasters #abscnth (at Lye, West Midlands) https://www.instagram.com/p/Bsfm0K7hFMK/?utm_source=ig_tumblr_share&igshid=4emqdc5j657n
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Finding real people working hard is always rewarding. I loved shooting these many years ago for a great organization. #warehouse #advertising #advertisingagency #real #photoshoot #photographer #ncphotographer #ncphotography #everydayisdifferent #stockroom (at Charlotte, North Carolina) https://www.instagram.com/p/BsdihNNBbZi/?utm_source=ig_tumblr_share&igshid=3i9fljc4l7zj
#warehouse#advertising#advertisingagency#real#photoshoot#photographer#ncphotographer#ncphotography#everydayisdifferent#stockroom
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#crystaloftheday Tanzanite says: "An elevator operator does not get better at pushing buttons the longer they work their job. The doors always take the same amount of time to close, and they are unable to make the elevator reach the top floor faster over time. Yet they are growing and evolving, and gaining greater mastery of their life. How? By listening, by watching, and speaking to the passengers. Their wisdom and understanding grows through the interactions of their day, not the repetitions of their work." #violetflame #crystalwisdom #everydayisdifferent #listen #observe #share #tanzanite #fullspectrum #22teachings (at House of Intuition)
#share#violetflame#everydayisdifferent#fullspectrum#observe#crystalwisdom#22teachings#listen#tanzanite#crystaloftheday
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It looks the same, however, it's the methodical alignment of what will never be again. #everydayisdifferent #eventhoughitlooksthesame #embrace #writersofinstagram #work #sunset #evening #beautiful #neveragain #wewait #anew #love #alignment #startover and #hope that we can. ❤️ #picbyme
#sunset#startover#beautiful#writersofinstagram#evening#eventhoughitlooksthesame#neveragain#anew#love#everydayisdifferent#wewait#picbyme#alignment#embrace#work#hope
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Wise Words to live by everyone!!!! Each day has there own problem's & advantage's.. #NewDay #EveryDayIsDifferent #FindInspiration #InspireOthers #NeverGiveUp
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Psychosis
Psychosis, is what i think the doctor called it.A wave of emotion that i truly cant fix.First there were questions?like how has this come on and why do i deserve this,i truly feel i can not take much more.No one has told me whats wrong with me at the moment, life is just trying to stay happy and survive.Trying to not cross off the calendar another day of still being alive. Im not afraid of people knowing as i feel, to suffer in silence i would not be alive much longer.The silence hurts,its hurts to hear such vile and horrible things.A creation inside of myself build upon abuse and fake love.
im asking myself everyday what is happening and when will this stop.
but before i will keep my blog as diary through this.
any questions please dont be afraid to ask or relate stories feel free,i like to talk.
and i know im not the only one.
never suffer in silence.
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Everyday is a new day and she's doing better now. Received my breast pump and I must say Unimom forte is better than the Madela symphony which is provided by the hospital. Must comfortable for me and the price is the main reason I gave it a try. . . . . #hospitalvisit #newborn #journallife #bujo #babyrecording #journalmom #bujotracker #tn #tnpassport #midoritravelersnotebook #breastpump #everydayisdifferent #doodlewithjas #jasmineeeshewplan #bnotedsheets #手帳媽媽 #手帳#pa本 #passporttn #cameltn #loveforanalogue #unimomforte #kiwiplannerlove #prematurebaby
#cameltn#loveforanalogue#kiwiplannerlove#doodlewithjas#pa本#tnpassport#bnotedsheets#手帳媽媽#hospitalvisit#bujo#midoritravelersnotebook#tn#journallife#unimomforte#jasmineeeshewplan#everydayisdifferent#手帳#prematurebaby#babyrecording#bujotracker#breastpump#newborn#journalmom#passporttn
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#workflow #demolitiondays #gallerylife #metalpipes #waltdisneyconcerthall #puttykinfe #patch&paint #workgloves #nonstop #everydayisdifferent #iloveart work in different environments has taught me a lot. But doing demolition work come’s naturally https://www.instagram.com/p/Boav2qnH5xg/?utm_source=ig_tumblr_share&igshid=zw5pig7myldw
#workflow#demolitiondays#gallerylife#metalpipes#waltdisneyconcerthall#puttykinfe#patch#workgloves#nonstop#everydayisdifferent#iloveart
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#everydayisdifferent in the #mountains and today we met an 87 year old farmer and his #sheepdog rounding-up his #sheep on the #catsback hill on the edge of the #breconbeaconsnationalpark ... have you met anyone #inspirational recently?
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