#endstagerenaldisease

[addonhealthcare]

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[healthchat]

An AV fistula is a connection between an artery and a vein. For this procedure, an AV fistula is surgically created using an artery and a vein in your arm. When the artery and vein are joined, blood flow increases from the artery into the vein. As a result, the vein gets bigger over time. The enlarged vein provides easier access to the blood for a treatment for kidney failure (dialysis).

[erodediabetesfoundation]

Diabetes, when poorly managed, can lead to a condition known as diabetic nephropathy, which is a type of kidney disease. Here's how diabetes can contribute to kidney disease.

#erodediabetesfoundation #EDF #diabeteslife #diabetesawareness #diabetes #diabetescare #KidneyDisease #KidneyHealth #ChronicKidneyDisease #RenalHealth #KidneyFailure #DialysisLife #KidneyTransplant #PolycysticKidneyDisease

#Nephrology #RenalFailure #KidneyAwareness #EndStageRenalDisease #KidneyCare #LivingWithKidneyDisease #KidneyCommunity #OrganDonation #KidneyResearch #Hemodialysis #PeritonealDialysis #KidneySupport

[moonwitchluna0885]

Had to have a fistulagram done this week (and another next week) & this is what happens... #OhTheJoysOfDialysis #kidneyfailure #diabetic #endstagerenaldisease #itshurtlikeabitch #bruisedfordays https://www.instagram.com/p/BtADw0xgKKY/?utm_source=ig_tumblr_share&igshid=1i73crvkg45l2

[cjhippos]

I ended my last post with “There’s really life after a kidney transplant,” which is kind of funny because a majority of kidney failure patients hope and pray for a transplant so they can have a better quality of life. It’s funny to me because you really expect to have that great life after. And I am definitely enjoying my new life but it gives the impression that there is nothing left to worry about. But I feel like you have to be on your guard all the time, and make lifestyle changes to make your outcomes better. You can’t go back to living the life you had. You have to be better if you get this opportunity. 

Am I being a little cryptic? So while on dialysis I was always a bit cynical about life. Why was I on dialysis? Was I being punished by God? Why even pray? why would this happen to me? I was healthy and exercised prior to being diagnosed with kidney failure. Life just seemed really unfair. 

So I wasn’t really strict about following the guidelines that doctors encouraged me to follow while on dialysis. Especially the food restrictions. I would just eat what I wanted for the most part. My labs were out of range for the majority of the time but not wildly out of range. I was strict with the liquid restrictions because I definitely felt like crap and looked like a swollen cow when I didn’t limit myself. I did dialysis Monday, Wednesday, Friday. So although I enjoyed the weekends because it was a break from treatment. Mondays were always the toughest on my body. Anyways what was my point again? Oh yeah, I was very lax during my time on dialysis. My thinking was- Life sucks right now, why not enjoy the things you can?! It was mostly the food restrictions I didn’t/couldn’t stick to. It also didn’t help that I thought my dietitian was a moron. 

I think what really kept me healthier was my activeness. I continued to work full time. I went to yoga pretty regularly. Joel and I would go on walks, or hikes. I ignored the fatigue that goes along with dialysis. Well for the most part anyways. Somedays it was unbearable and I would call off and just stay in bed all day. Being on dialysis is a unique situation. For the most part you feel ok but there are somedays that just wipe you out. Many of the older patients feel the fatigue all the time. I’m grateful that I didn’t feel it too much. 

Now post transplant there were still food restrictions! At first my potassium and phosphorous were too low. So the doctors said eat bananas, eat cheese. Then my potassium was too high. Then they said lay off the bananas and vegetables. What are you eating?! Also other labs were coming out weird. Like red blood cell count was too low, tried epogen, and a blood transfusion. Then white blood cell count was too low, acids were high. Every week there has been an adjustment to meds, restrictions. 

But now I have a more positive attitude because now I know life can be better. So although i have more freedom I am following all the directions of the doctors, eating healthier, and going to yoga and exercising more and regularly. I have to do everything I can to avoid being on dialysis again. Life is so much better now. 

[healthchat]

An AV fistula is a connection between an artery and a vein. For this procedure, an AV fistula is surgically created using an artery and a vein in your arm. When the artery and vein are joined, blood flow increases from the artery into the vein. As a result, the vein gets bigger over time. The enlarged vein provides easier access to the blood for a treatment for kidney failure (dialysis). To Book an Appointment: +91 88665 49555 more info: https://www.hyderabadvascularcenter.com/av-fistula-treatment

[moonwitchluna0885]

My new #cycler #PDdialysis #PDcycler #KidneyDiseaseAwareness #EndStageRenalDisease

[cjhippos]

Three Days Left of Steroid Therapy

I was in the hospital for 5 days for steroid therapy. Steroid therapy was basically an infusion of high dose prednisone for 4 days, and a tapered I.V. push of prednisone on the 5th day. 

Nothing really happened during that stay. I just relaxed, got the meds, saw the doctors once a day. I seriously watched a lot of tv. I did some treadmill on the 4th day to pass the time. Elaine and my parents came to visit. 

All my labs came out great. Doctors did not seem worried at all. I did go home with more tapering of prednisone, in pill form. I am currently taking 10mg a day until my follow-up biopsy, which is this Thursday at 9am. 

My dad picked me up on the 5th day at around 1pm. 

[sinfullyjade]

I'm already in the hospital, why are they torturing and trying to kill me? 😢😢😭😭😭 #gritshardenoughtobuildabrickhousewith #fakeasspowderedeggs #smelllikesulfur #dryasstoast #food #hospital #hospitalfood #kidneys #kidneyproblems #kidneydisease #fsgs #endstagerenaldisease #esrd

[aus10m]

There is no cure for #ESRD. Either #kidneytransplant or #dialysis. So this is my new routine 3x a week until I receive another #transplant. #kidneyfailure #endstagerenaldisease (at Houston Methodist)

[healthchat]

An AV fistula is a connection between an artery and a vein. For this procedure, an AV fistula is surgically created using an artery and a vein in your arm. When the artery and vein are joined, blood flow increases from the artery into the vein. As a result, the vein gets bigger over time. The enlarged vein provides easier access to the blood for a treatment for kidney failure (dialysis).

[cjhippos]

I freaked out about baby shower food today.  I don’t know why my emotions get the best of me sometimes.  I don’t even know if it’s a kidney failure thing.  It’s probably just a crazy christa thing.  There are days when I can’t contain my emotions and it turns into some crazy blow up.  Over something so stupid.  I wish I knew what my triggers are.   

I can pinpoint it to maybe 3 different things.  Well for 1) my blood pressure was off the chain this weekend.  I even left dialysis on Monday at 183/123.  And that was after my treatment!  I don’t know why it’s not under control.  2) I asked my tech to do my needles on Monday and she said “Why?”  I kind of felt scolded but it’s her job!  I’m not doing home hemo.  It should be my choice whether or not I want to put the needles in or not.  3) I have been on the go for the last 3 weeks.  Hardly any rest.  I feel like I haven’t had a chance to catch my breath.  4)  I’ve gotten 2 kidney offers in the past couple of weeks that had to be declined.  

I guess the culmination of things have caused me to be a little emotional.  I haven’t been to any therapy lately either.  I’m trying to self-therapy.  it’s not really working this week.   

Number 4 has been the big one.  Probably the biggest trigger.  I’m usually fine when I get into my head there’s no hope.  But then when these calls come but then it doesn’t work out in my favor, it sucks.  Sometimes I feel like I shouldn’t have even gotten the call.  But then it also makes me feel like I’m getting close. This might be my year! I’m all over the place.  My mind is racing.  I’m going to try to go to yoga to calm myself.  

[cjhippos]

I received a kidney offer last Friday, September 30, 2016.  That was 408 days since the last offer I received.  It was a match but my cross match came out positive, which means my body would probably reject the kidney.  After those results my Dr. decided to decline the offer.  These calls come so infrequently.  It had been over a year since I received an offer for a kidney.  And on top of the scarcity, my offers always come with high risk.  

So when you get these calls, the nurse says we have a potential kidney offer for you.  Then she tells you a bit of background.  This time, she said, “This donor is high risk.  He’s younger than you but has been seen doing heroin and sharing needles.  We’ve tested his blood two weeks ago and his labs are negative for hiv or hepatitis.  Would you like to accept?”  

After a year of hearing nothing and the possibility of waiting a year or more for another offer, how do you say no?  With medicine, one could live an easier life with hiv or hepatitis right?  It would still be more manageable than having to go to dialysis 3 days a week... 

So I accepted.  A few hours later, the nurse calls and says,”Apparently, the donor is a directed donor.  So although you are the primary recipient on the list, due to their wishes you are now 5 on the list.  But we are not out of it yet.”

Reality once again sets in.  It’s not gonna happen for me.  And yup, a few hours later, “We did a cross match, and it came up positive.  Your body will probably reject the kidney.  Dr.  decided to decline the offer.”  

In a matter of hours, I went from being so hopeful, excited to being deflated and discouraged.  It’s really a hard process to wait and hope.  There are so many factors that are out of your hands.