#chronicallyillmom

[dmnsqrl]

Posted @withregram • @spoonful_of_stripes I said what I said. Don’t be ableist. #ableism #chronicpain #chronicillness #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #CCI #craniocervicalinstability #idiopathicintracranialhypertension #IIH #pseudotumorcerebri #tetheredcord #tetheredcordsyndrome #chronicallyawesome #chronicallyillmom #spoonie #chiari #chiarimalformation #chiariawareness #spoonfulofstripes #zebrastripesandeverydaylife #professionalpatient #VPshunt #brainsurgery #brainsurgerysurvivor #ehlersdanlosawareness #zebrastrong #donoharmbuttakenoshit #medicalanomaly https://www.instagram.com/p/CRZfemaj_grrLl4pgY2u8qaCwTBkMU4-7EteJU0/?utm_medium=tumblr

[whatasoutherngirlwants]

View this post on Instagram

A post shared by Angie Dyer (@shugchic)

#hairgrowth #biotin #ageisjustnumber #chronicallyillmom #chronicallyillwarrior #spoonie (at Florida) https://www.instagram.com/p/CEaLmQwA1kn/?igshid=1ldcjwznqg8rq

[chroniccarenurse]

#Repost @frontporchlearning ・・・ To the mom with chronic illness: You are wholly worthy to be loved and respected. You are fully accepted and cherished as a mother. You are allowed to grieve the mother you wanted to be but are unable to. You are allowed to feel sad that your body can’t do all the things you want to do for your children. You are allowed to celebrate your resiliency and strength as a mother, and accept praise from your kids. You have gifts and wisdom to give your children that others who do not have chronic illness do not have. You have empathy and a strong spirit to impart to your children. You model vulnerability and transparency. Your children know that it’s okay to ask for help, and they enjoy living in a community of people who support you. In this way, you are against the grain of the cultural norm of solitude, sadness, and isolation. You let others step in to help you and your children when you need it-and this is a gift to them. You understand your children’s pain and illnesses in ways others cannot, and you know how to minister to them in their times of need. You give of yourself sacrificially to them, even when you know it will cost you of your energy and health. You are not a failure. You are not failing at motherhood. You are just taking another path-on another journey that not all mothers have to take. To the mom with chronic illness, you are strong, you are loved, you are worthy of the beloved title of mother. Happy Mother’s Day. _____ #myedschallenge #chronicillness #chronicillnesswarrior #chronicfatigue #lymedisease #autoimmunedisease #autoimmune #chronicallyillmom #ehlersdanlossyndrome #mcas #thyroiditis #mecfs #longcovid #ppd #ppdawareness #momlife #momsupportingmoms — view on Instagram https://ift.tt/3hkoun7

[queenbeeofibd]

#Repost from @jpouchmomma with @regram.app ... IBD pregnancy: I carried him for 37 weeks and 5 days. Only one week of knowing I was pregnant and I became ill. At 19 weeks pregnant my doctor called me to let me know my biopsies from my unsedated scope test came back as Crohn's. I had been in so much pain and believed to have a partical blockage. Having an answer was so important but it was also hard to accept. I knew it meant drug trials the very reason I got my Jpouch for what they believed was UC. I was a tired teenager then who was done being a medical guinea pig. This surgery was to "cure" me so I could live a normal life. Unfortunately I still suffered from chronic pain and incontinence for 10 years. It had become my lifestyle and I was always told it was chronic pouchitus. So this news was bittersweet. My symptoms improved around 24 weeks until about 30 weeks when baby had grown to a size that pushed on my pouch. I started experiencing a lot of rectal bleeding, so much I almost needed a blood transfusion and had to go for iron infusions weekly. I couldn't sleep for more than a few hrs a day, in fact my husband slept on the couch for 3 weeks just to try and help me get any sleep possible. I was going the bathroom about 40 times a day and having accidents. My toddler would ask me why I was wearing diapers when there for babies. I was miserable and it made it so hard to be happy I was pregnant and bond with baby. I felt like I was letting my toddler down because I couldn't be the mommy I wanted to be. As my condition worsed my medical team and I decided I needed to deliver early. I went into the hospital to have him, I was hoping the bond would be instant. When my baby boy was lifted from my stomach and shown to me through a plastic screen at my C-section my eyes filled with tears. He made it, I made it. I loved him so much, he was worth every bit of discomfort. He was my reward for being so strong. He's my little warrior and together we survived pregnancy while chronically ill. #ibdmom #ibdsuperheroes #ibdawareness #ibd #ibdpregnancy #jpouch #jpoucher #jpouchpregnancy #jpouchmommy #chronicillness #chronicallyillmom #motherhood #csection — view on Instagram https://scontent.cdninstagram.com/vp/f554d9f9cfc8db45e2b879668b465285/5D73B6D3/t51.2885-15/sh0.08/e35/p640x640/57398946_294284764859820_964894956155129636_n.jpg?_nc_ht=scontent.cdninstagram.com