#chronicallyilladvocate

[kirasunshine]

This week has been filled with doctors. One thing my primary and my therapist says okay to is me smoking weed. It has helped me so much that I can stay out of the hospital. When I’m having a mental break down if I smoke a little with anxiety pills I can get myself under control. Tomorrow I talk with the lupus doctor to see where to go from here pain wise and I’m anxious as fuck. So send me some good vibes and weed leaves.

[kirasunshine]

This is so important. I’ve been sick since I was 18 and today I am 26. I have had 33 hospital stays. That’s an average of four times a year. As I’m writing this I’m contemplating letting my husband take me to the ER for day five of pain. Just because I’m young doesn’t mean I’m not in the same pain of a 65 year old woman.

[Image Description: An orange color block with text that reads “support young people with chronic pain”]

Support people in their teens, 20s, and 30s who deal with chronic pain and are constantly dismissed by being told that they’re “too young” to know what pain is.

Your experiences are real, the pain you go through is real, and you deserve support and care as much as anyone else.

[kirasunshine]

•Invisible Illness Post• -Skip to next post if I’m making you uncomfortable.- — Somedays it’s so hard to prove to someone I am sick. I know I shouldn’t care but when you aren’t fighting for your body, you’re not helping your body. With my diseases people don’t understand because on the outside I look fine. What you don’t see is the missing clump of hair that fell out, the nails that are thin and white, the scars from so many IV pokes, that my bladder is bleeding, that I cough up blood on a daily basis or the pain. Here it is, no filter. This is Lupus red burning skin. That I was up till 4AM pacing because the pain in my legs were so bad I couldn’t sleep. The fact I was on the bathroom floor at 7:30 trying to relieve the pain. The massive amount of tears between being mad at my body and trying to be tough and hold in the pain and being like anyone other 26 year old girl to be normal. Yes, this post is going to make you uncomfortable. No, I DO NOT want pity. I want people to see and understand sickness isn’t always on the outside. I hope this post reminds you to be kind to others because you don’t know what they are battling internally. I have some really amazing friends that get me through the rough nights, will go do errands with me because I’m not strong enough to do it alone and for those people that believe me, you will never know how much that single text to see if I’m okay means. I never imagined my life to turn out like this, but this is reality and I need to advocate for my body and others. Lastly, spoonie friends/sisters you don’t know how much you make me feel okay that I’m broken. Reminding me to fight when I want to give up. •Today I hope you say a little pray to whoever you believe in and thank them for your body and how strong and beautiful it is.• #everythinghurtsandimdying #everythingwasbeautifulandnothinghurt #spoonie #spooniesister #chronicillness #chronicpain #chronicallyill #chronicpainadvocate #chronicallyilladvocate #lupus #lupussle #ic #pots #fibro #fibromyalgia https://www.instagram.com/p/Bn34Y2pAQvG/?utm_source=ig_tumblr_share&igshid=3z4vn3a335q9

[kirasunshine]

Knowledge yourself