#cftrustuk

[uniquegifts152-blog]

So as promised.. Here I show you the most amazing surgical masks made for Esma by the incredibly talented @hattiesbears 😍 . . I know the photos are not great, I have no clue how you are supposed to photograph this stuff 🙈 Esma really loves the bright & pretty colours & actually leaves them on (which I'm surprised at). They are super easy to wash to, so one it has caught all the nasty germs that Esma no longer has to breathe in.. I pop it straight in the machine with the trusty dettol 💪🏻 . . So thank you Hattie, for the most precious gift of all, we cannot tell you how much these and your kindness mean to us 😘 . . #thebestgiftinlife #yourkindnessmatters #thankyou #thankyoufromthebottomofmyheart #youmadeussmiletoday #cysticfibrosislife #lifewithcysticfibrosis #invisibleillness #notalldisabilitiesarevisible #dontjudgeabookbyitscover #respiratorycare #cftrustuk #cysticfibrosisawareness #cysticfibrosisfighter #mydaughtermyworld #surgicalmask #distinctivedesigns152 #hattiesbears https://www.instagram.com/p/B412AyiFHTf/?igshid=khnpzw7goiee

[cottagelivingfrog]

Always makes me happy 🐾 Not been feeling great whilst on ivs! Haven’t had ivs in 3 months though, which is huge for me! #cysticfibrosis #cf #chronicillness #chronicpain #65roses #salty #minnie #minnietheshihtzu @cftrustuk https://www.instagram.com/p/BpvBXVIgqDF1pVhl_4ktIaXTxzHg3gOpX2CeRQ0/?utm_source=ig_tumblr_share&igshid=1kjmgc2jljihn

[anna-bellend]

View this post on Instagram

A post shared by Annabelle Brown (@fiercelyfibrosed)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)

[ethereal-evanna]

msevylynch Wearing yellow earrings with miss yellow eyes in honour of my friends who are affected by Cystic Fibrosis. Not too late to post your #CFyelfie and take a moment for CF awareness week. @cftrustuk (x)

[ellalondon]

Yello to all my British peeps! Today join me by wearing my favourite colour to help fight #cysticfibrosis ☀️ Text YELLOW to 70500 to donate £5 to the @cftrustuk #CFyelfie (at United Kingdom) https://www.instagram.com/p/By9eSRuAjv2/?igshid=1shhkyeai4t7r

[creepiescreations]

Smoggy approves of our new shiny tissue paper for our gift boxes ⭐️💖✨ Get Smoggy at WWW.CREEPIES.BIGCARTEL.COM (clickable link in our bio) Creepies are handmade from a strong polymer clay which is then baked to hold its shape. 5% of every sale is donated to @cftrustuk 💛 #creepies #creep #clay #handmade #dragon #smoggy #art #dragonart #toyart #arttoy #arttoyculture #cute #orange #shiny #spooky #halloween

[bradfrankel]

Pleased that’s over - that hurt. Last few weeks - please donate @cftrustuk @mwinehouse #donate #charity #fundraising #hydepark #run #10k #train #motivate #inspire #doit (at London, United Kingdom)

[lewisohn]

I forgot to post this one from my shoot for @cftrustuk with @sophiegraceholmes and @james_dunmore And that's @miriam.strong being a great assistant. #photoshoot #london

[simonwiffen-blog]

Team Wiffen in yellow for Cystic Fibrosis. Text 'YELLOW' to 70500 to donate £5 to the @cftrustuk . Ellis was diagnosed at 3 weeks and the CF Trust have been amazing. Every penny helps further research for a cure. #CFYelfie

[uniquegifts152-blog]

So.. Esma has cultured Staphylococcus aureus on her latest Spartum sample and I was just wondering what with the weather turning cold and lots of coughs & colds going around do you practice the Catch it, Bin it, Kill it!? . The thought of even touching a trolley let alone the food on a supermarket shop fills me with dread, as I wander around watching not just children but grown adults too just coughing and sneezing away without a second thought for those who are vulnerable.. Each time Esma grows bacteria in her lungs from breathing the air around her, it can leave potentially life threatening scars on her lungs (this scarring is irreversible) which results in a decline in lung function! . . Thankfully our friend @hattiesbears has very kindly and let me tell you they were VERY gratefully received made us some surgical masks, I promise to show you them this week, so as we sport our surgical masks on our Grocery shop tomorrow I'm hoping my anxiety will stay under control. However, I still refuse to touch or let Esma touch anything that is stacked on the shelves let alone those really yummy sweets down the confectionary aisle 😬 . . #cysticfibrosis #cysticfibrosislife #cftrustuk #invisibleillness #vunerablechildren #mydaughtermysuperhero #iloveher #myworld #cflifesucks https://www.instagram.com/p/B4nUQYBla4_/?igshid=mc94dmnteubw

[cottagelivingfrog]

Finally off IVs! It’s been a hard four weeks especially coming up to my holiday at Christmas, but hopefully I won’t have to go on them for a while! 😬 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisfighter #ivs #selfie @cftrustuk #diabetes #diabetespump #chronicillness #chronicpain #spoonie ❤️ https://www.instagram.com/p/Bq19XktAwjDxDWXVLbv2pgQX8KAxOAH_NKOKsk0/?utm_source=ig_tumblr_share&igshid=i9o700crj0dy

[anna-bellend]

View this post on Instagram

A post shared by Annabelle Brown (@fiercelyfibrosed)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)

[sportymamasemma]

We raised £810.49 for @cftrust at last weeks West Ham legends evening huge thanks go to the amazing @alvinmartin58 a great night! #charity #westham @cftrustuk @cflumps @cf_foundation

[cottagelivingfrog]

Hospital admission was a hard one, but I got to catch up with all my sugars! They are still high though 😬 #diabetes #diabetesawarenessmonth #cf #cysticfibrosisawareness #cysticfibrosis @cftrustuk @diabetescommunity (at Holmfirth) https://www.instagram.com/p/BqdDd21gbx3sudTy9uBjNeg3tARYOG-Nk4MxzE0/?utm_source=ig_tumblr_share&igshid=zjsb1esn1gu1

[anna-bellend]

View this post on Instagram

A post shared by Annabelle Brown (@fiercelyfibrosed)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)

[anna-bellend]

View this post on Instagram

A post shared by Annabelle Brown (@fiercelyfibrosed)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)