#cflifesucks

[uniquegifts152-blog]

So.. Esma has cultured Staphylococcus aureus on her latest Spartum sample and I was just wondering what with the weather turning cold and lots of coughs & colds going around do you practice the Catch it, Bin it, Kill it!? . The thought of even touching a trolley let alone the food on a supermarket shop fills me with dread, as I wander around watching not just children but grown adults too just coughing and sneezing away without a second thought for those who are vulnerable.. Each time Esma grows bacteria in her lungs from breathing the air around her, it can leave potentially life threatening scars on her lungs (this scarring is irreversible) which results in a decline in lung function! . . Thankfully our friend @hattiesbears has very kindly and let me tell you they were VERY gratefully received made us some surgical masks, I promise to show you them this week, so as we sport our surgical masks on our Grocery shop tomorrow I'm hoping my anxiety will stay under control. However, I still refuse to touch or let Esma touch anything that is stacked on the shelves let alone those really yummy sweets down the confectionary aisle 😬 . . #cysticfibrosis #cysticfibrosislife #cftrustuk #invisibleillness #vunerablechildren #mydaughtermysuperhero #iloveher #myworld #cflifesucks https://www.instagram.com/p/B4nUQYBla4_/?igshid=mc94dmnteubw