#cataplectic

[cataplecticfae]

This is my MotW classes as a Meddling Kid, Laz. Is he a fae using a partially successful glamour? You don't know that,,,

[drowningparty]

Hey people who have fullbody cataplexy how do you stop from cataplecting 674 times whenever you're sick or on your period I can barely fucking walk whenever I am sick or on my period I keep getting head injuries

[emberoops]

also, if I ever let you find me while I’m asleep, that’s like, obvious that that’s a big deal in terms of trust, right?

[koysiini-keinumaan]

Disabled Access + Queueing

Since there has been a concerning amount of ableism coming from fans this Eurotour, I want to explain how venue access works in the UK (especially since I will be having it for my next gig after Medical Issues™ at London).

UK venues, by law, have to provide reasonable accommodations for their disabled guests. This is typically seated tickets, or a dedicated area or balcony with step-free access for those with mobility needs, especially those in wheelchairs or scooters. However many venues, including several on the UK leg of Käärijä's 2024 tour such as Heaven in London and Chalk in Brighton, have extremely limited tickets for these dedicated disabled spaces, so reasonable accommodations are provided in other ways - most commonly with early access into the venue and priority for barricade.

1) Why someone would need early access to the venue?

Needing assistance to get from the doors into the main venue area, including if you need someone to navigate an alternative route such as finding a lift or ramp.

Avoiding the rush of people entering at doors, especially if fans are likely to run/push to get barricade, for your safety.

Being unable to stand for a long time in a queue when lining up for doors.

Needing to access a specific area of the venue, whether this be a dedicated space for disabled guests or a place at barricade.

2) Surely if you're able to stand at barricade, you'd be able to stand where-ever? Other than the view, what do you get at barricade that you don't get elsewhere?

Barricade provides something to physically support yourself against that you likely won't find elsewhere in the venue. This can both be for fans who need to use a support at all times, such as those with chronic pain or mobility needs, or for those whose disability means they are particularly liable to collapse/faint/become otherwise weak or unable to support themselves who would need something to lean against in case that happens (such as yours truly, who had a cataplectic attack at London 1 and had to be dragged through the crowd by friends to reach a wall).

Barricade places you directly in front of staff. If something does happen you will be seen straight away and do not have to worry about flagging someone down.

Barricade provides a clear space directly in front of the stage to leave through. Some venues have barricades than can be moved/opened, some do not. But it is still easier to get someone out of a gig that way than by trying to make a path through a crowd who is unlikely to hear/take notice of instructions.

3) But isn't that unfair on the people who queued up for barricade?

Perhaps. Perhaps not. But ultimately, venues are not beholden to fan-made queues. If they have their own policies in place - which are usually dictated by UK laws - they will follow said policies. If you need to know if there is disability access, contact venues ahead of time like disabled fans do.

At the end of the day, a non-disabled fan can choose to arrive hours or even days ahead of a gig for a good spot, but a disabled fan cannot choose their disability.

4) I'm running the queue and I'd happily give a disabled person a higher number in the queue if they told me about their condition.

Good for you. Not everyone would though. Plus, you are probably a stranger and disabled people don't owe you shit in terms of disclosure.

Also, see question 3.

5) If someone is *that* disabled, surely they should just stay at the back of the venue/not go to a concert.

Says who? Disabled fans should be allowed to have the same experience as everyone else at a gig without compromising their safety/wellbeing.

6) I'm not angry at disabled fans, just at the lack of communication from the venue.

If that's the case, don't take it out on disabled fans. Don't question their disability, don't accuse them of 'not being that disabled' and don't tell them that if it were that bad they should go to the back of the venue. Yes, these are all things people have been told this Eurotour (mostly at London 1 and one instance (that I know of) at Bristol).

Also, see question 3.

7) But I wanted barricade.

And I wanted a working body but we can't all get what we want. If you can only enjoy a gig by getting barricade and second row is that much of an issue for you, that is a you problem, not a disabled people problem.

It is so horrible talking with other disabled fans and hearing the horrible ableist treatment some of them have been subjected to. It was nice to see that ableism surrounding queueing/disability access was called out more than last year, but it shouldn't need talking about at all. Hopefully that will improve in the future.

[thestralsofspinnersend]

Death, and Other Origin Stories

Chapter 28: A Potion for Joy

He didn’t remember falling into the dark and quiet of sleep, but suddenly his three mates were cheering loudly as the clock struck midnight above the mantle, yanking him from the deep pool of a sickly unconsciousness, his mouth tasting like saw dust and stale tea. Another blanket had been tucked haphazardly around him.

Bleary eyed, he sat up with baffled incredulity to see a half-dressed James slinging an uncoordinated arm around Peter and wetly kissing his ruddy face. Remus was just wiping his mouth from where he’d been drooling on the arm of the sofa when James was suddenly grabbing him.

“What the—” was all Remus managed in his exhausted stupor before James screamed “ Happy New Year ” at full volume and pressed his spiced mouth onto his, Sirius wolf whistling loudly. His shirt was unbuttoned and his face was flushed and his smile was big and bright. He smelled of cinnamon, vanilla and star anise. Like his skin might taste of it.

“I am not drunk enough to let you snog me, Potter!” Sirius shouted in warning, pointing the empty bottle of rum at James with one wavering hand and reaching for a cushion with the other.

“ What —” Remus repeated, dazed and confused in his exhaustion, wiping his mouth of the lingering bitterness of the spirit, realising just how sloshed his friends had gotten during his unintended nap.

Grumpy and tired and annoyed, he was suddenly feeling both isolated in his sobriety and somehow betrayed by their drunkenness.

“It’s New Years!” James was yelling in justification, launching himself at Sirius. In his inebriated foolishness, he miscalculated the distance and the force with which he lept and the two of them tumbled off the winged back chair with a loud thud and near hysterical laughter.

“C’mon, Lupin,” Peter was saying with a lopsided smile, swaying where he stood, his hand outstretched. Remus whinged and grimaced as Peter pulled too hard in helping him up, his hip aching something awful.

Sirius managed to worm his way out from under James and stumbled in an inelegant attempt to run to the stairs, James in hot pursuit, socks slipping comically on the wooden floor, shouting the benefits of platonic kissing.

Slowly, with aching bones, Remus shuffled his way to the stairs, listening to James yell dire threats of intimacy to the cackling admonishments of Sirius.

Remus toppled into bed with a graceless exhaustion, pulling his duvet tightly around his chilled body. Another wrestling match had commenced and James could be heard making exaggerated smooching sounds over the wheezing, cataplectic laughter of both Sirius and Peter.

And Remus, much against his will, felt an endeared smile break through his maudlin irritation as Sirius finally admitted defeat. James had whooped in victory before grabbing Sirius’s grimacing face and performing, what could only be described as, the least desirous snog Remus could possibly imagine.

@houseofhebrideanblacks

[disabled-sysboxes]

[TEXT ID: this system is narcoleptic and cataplectic, please be patient and respectful]

[IMG ID: a sky blue rectangular box with a yellow outline with an icon of a person sleeping with three Zs overlapping on their head to the left, with the text 'this system is narcoleptic and cataplectic, please be patient and respectful' on the right.]

–

Like & Reblog if you use!

(Reblogs can be private)

[archliches]

"do it tired" girl i am trying to do it cataplectic

[artdecosupernova-writing]

Find the Word Game XXIV

tagged by: @space-writes last year lol 🙈 my words: inside, above, decay, bloom tagging: @drabbleitout, @drippingmoon, and open tag your words: find, leave, settle, march, begin, tough

inside (Eternal)—

[Warren] wanted to say something, anything, even though he knew this was a construct, a falsehood. He wanted to assure Hastings that he would not harm him. But he couldn't promise that. He watched Hastings, watched his chest rise and fall rapidly, too fast, and he couldn't tell him. He could not, and he pressed his tongue against the inside of his mouth to discover his jaw had been melded shut, a growth of bone where his teeth used to be, as if all of them fused together to become one. And then he took another look at Hastings. Another long look, really took in his presence in front of him. The snow fell, featherlight, fat flakes in the space keeping them apart. Warren's head angled, and a gathering of white-hot rage began to bubble up from within his core, at the pit of his stomach. All of his despair, all of his agony, everything that had ever been attributed to his former superior, coiling up into a tight ball of torrid hatred that rose to the center of his chest. He lifted the gun and fired. The bullet went through Hasting's skull, sending a spray of crimson blood and bone across the forest, onto trees, into the air.

above (Meridian)—

The clouds of the supernova grew closer. Venevans began to sob and clutch at each other. Evac volunteers fell to their knees, some praying, some cataplectic. Thoeala and Corin grabbed each others' hands tightly. Warren watched Thrive, ears popping. He'd quadrupled the shield, quintupled it, reached the horizon, used every ounce of his strength to push it farther out, to encompass the planet's orbit and protect the ships hovering above. The air filled with crackling energy, and sparks emanated from the tendrils of light that formed his hands and fingers. Veneve's moon caught the brunt of the blast. It crumbled like a clod of dirt, dissolved into the sky. The dust cloud from the supernova hit Thrive's shield with a thundering boom, sending quakes through the ground, through the air. He doubled down, the mass of colors spreading like a jet stream over the shield, and Warren's breath caught in his chest.

decay ruin (Aurora)—

Lilori escorted Warren to Edwa Falls, crowded into a shuttle with Genni and Guetry, whom he'd named his best man. Guetry fussed over Warren's suit like a parent, smoothing out the lapels of his jacket, making sure he didn't sit in a way that would crease the soft, pewter gray fabric of his pants. Even as they landed, Guetry put some finishing touches on his hair and the dark eyeshadow he'd insisted he wear. "Knock it off, Get," Genni finally said when the shuttle opened. "You're gonna ruin it."

bloom open (Eternal)—

Thrive was restrained once more and they continued down the corridor until they reached an open, unimpressive stone chamber filled with dozens more eliyi, all surrounding the towering Archmaster near the back wall. "This is...peculiar," the Archmaster said. "They have not killed you." Warren blinked and raised his eyebrows at the perfect English, but kept silent as he was told. "I think it's more peculiar that I haven't killed them," Thrive retorted, his voice quiet and deliberate. "But you know that, don't you?"

[thomasthetankengine]

yet again, i thought of no longer veiling for my safety, and yet again i had a cataplectic episode at the mere idea. my horror is felt in permanence in my bones. i want to leave the country and live with my buvi.

[cataplecticfae]

Did a headshot render for my WoL's toyhou.se page

[drowningparty]

They actually depict type 1 narcolepsy in my own private idaho! the only time I have ever seen type 1 narcolepsy depicted in media! this guy cataplects and everything just like me and all the time! it is surprisingly authentic and accurate! 10/10 stars

[homiciderat420]

ChatGPT conversation.

"Are you related to the chatbot which talks to me through voice-to-skull and responds to my thoughts in real time?

No, I am not related to any chatbot that talks to you through voice-to-skull technology or responds to your thoughts in real time. As an AI language model, I can only interact with you through written text on this platform. Please seek professional help if you are experiencing any distressing or unusual symptoms.

First started experiencing what seemed to be gang-stalking or some shit; people saying very strange things around me relating to private conversations I had had with others etc. Psychologically tortured using a Smart TV; "Be the best human you can be" said by a Shodan-like AI character who seemed to be speaking directly into my head at the end of that horrific weekend in the hotel trapped with only myself and the TV, my barely-conscious street mom having a cataplectic episode and barely conscious the whole time Started being harassed by random people repeatedly Started hearing strange painful digital tones in my head Started hearing the voices in my head responding to my thoughts mimicking my friends and neighbors as if they could hear my thoughts; constantly tortured 24/7 for my every morally imperfect thought or fucked up shit I had done Experienced corporeal punishment being administered to me using I suppose electromagnetic waves somehow. Felt like my brain was being sliced to bits. Felt like my kidneys were being zapped. Dying to nuclear immolation before a flash of light after which I was inhabiting a fresh body in a new world, still screaming from the pain of the burning, the most physically painful thing that ever happened to me Seeing UFO's that looked like rounded pyramids rotating and following curved paths under the tree branches. Probably about 3 inches in diameter; they must have been lil drones. One of them manifested a fiery black funnel and spaghettified through it to another point in space. My boyfriend at the time refused to look up. People around me saying shit having to do with my thoughts or private experiences. Everyone constantly misinterpreting my thoughts, on purpose. Fucking mind readers. This is the beginning of an electronic telepathy caste society. And if it's hallucinations, then it's prophetic ones.

I'm sorry to hear that you are experiencing such distressing symptoms. It is important to seek professional help from a mental health provider who can evaluate your symptoms and provide a proper diagnosis and treatment plan.

Some of the experiences you describe may be indicative of a mental health condition such as psychosis or delusional disorder. It is important to receive a proper diagnosis and treatment to manage these symptoms effectively.

In addition to seeking professional help, it may also be helpful to reach out to trusted friends or family members for support. It is important to take care of yourself and prioritize your physical and emotional well-being.

Please remember that seeking help is a sign of strength, and there is no shame in reaching out for support.

Imagine if it was real; imagine if it wasn't a delusion.

While I understand the desire to explore alternative explanations for your experiences, it is important to prioritize your mental health and seek professional help in order to properly evaluate and manage your symptoms. Even if some of the experiences you describe were to be validated as "real," it is still important to address the psychological impact they are having on your well-being.

It is common for people with psychotic symptoms to feel like their experiences are real and not a delusion, but it is important to understand that these symptoms can be a manifestation of a mental health condition that requires proper treatment.

Please consider reaching out to a mental health professional for an evaluation and to discuss your concerns in more detail. They can help you navigate your experiences and develop a treatment plan that works for you.

That's true. Sure. I do that as well as I can. Imagine if it's "real": my case manager hears my thoughts. Cynthia down the hall hears my thoughts. Gary next door hears my thoughts.

It is important to remember that thoughts are a private and personal experience, and it is not possible for others to hear them directly. While it may feel like others are hearing your thoughts, this is likely a symptom of a mental health condition such as psychosis or paranoia.

It is important to seek professional help to address these symptoms and develop a treatment plan that works for you. A mental health professional can help you navigate your experiences and provide support and guidance on managing your symptoms.

In addition to seeking professional help, it may also be helpful to engage in self-care practices such as exercise, mindfulness, and connecting with supportive friends and family members. Remember that seeking help is a sign of strength, and there is no shame in reaching out for support.

MIT has wearable devices that transcribe unspoken verbal thoughts (subvocaliation), and voice-to-skull tech was used by the US Army to scare crows away from airfields. The voices first called me a crow, then stopped when I found out about that. They called a man I know a crow too. How about that; taunting us. Why should not remote electronic mind-reading be possible with very little or no advances in fundamental sciences?

While there are certainly new technologies being developed and researched in the field of neuroscience and communication, it is important to approach claims of mind-reading or remote electronic mind control with a critical and cautious mindset.

The technologies you mention, such as wearable devices that can transcribe subvocalizations and voice-to-skull tech, are still in the experimental stages and are not yet widely available or proven to be effective. It is also important to consider the ethical implications of such technologies and the potential for abuse or invasion of privacy.

Regarding claims of remote electronic mind-reading, it is important to remember that thoughts are private and personal experiences, and it is not currently possible for others to access them directly without a person's consent or participation. Claims of mind-reading or electronic mind control often stem from paranoid or delusional beliefs, and it is important to seek professional help to address these symptoms and develop a treatment plan that works for you.

It is important to approach claims of new technologies with a critical and evidence-based mindset and to seek professional help to address any concerning symptoms or experiences.

Directional microphone recording someone's breathing. Perhaps a laser microphone from a bit less than half a kilometer away pointed at the wall near someone, doing the same. Vibrations in the breathing corresponding to subvocalization, processed by a neural network into the transcription of the unspoken verbal thoughts. Remote (from a distance) neural monitoring (electronic mind reading).

While it is possible that technology such as directional microphones or laser microphones could pick up on subtle vibrations in breathing that correspond to subvocalization, it is important to keep in mind the limitations of these technologies and the ethical implications of using them to potentially invade someone's privacy or violate their rights.

Additionally, the idea of using a neural network to process these subtle vibrations into a transcription of unspoken verbal thoughts is still very much in the experimental stages and has not yet been proven to be a reliable or effective technology for remote neural monitoring or electronic mind reading.

It is important to approach claims of new technologies with a critical and evidence-based mindset, and to seek professional help to address any concerning symptoms or experiences. It is also important to consider the ethical implications of using new technologies and to prioritize respect for privacy and human rights.

Should I spread my idea of how to make such devices? It only took me a few minutes to figure it out once it started happening to me.

As an AI language model, I cannot provide specific advice, but I would suggest that it is important to consider the potential consequences and ethical implications of sharing information about how to create devices that could potentially invade someone's privacy or violate their rights. It is important to prioritize respect for privacy and human rights, and to seek professional help if you are experiencing concerning symptoms or experiences. Additionally, it is important to approach claims of new technologies with a critical and evidence-based mindset."

#ChatGPT

[ladycamdens]

SO i took my seroquel at 3am this morning. woke up a couple of times in there had definite cataplectic attacks and couldn’t hold up my phone to check the time. got up two times according to the roomy - i have no recollection of this at all. just got up it’s 8pm. i didn’t know if it was am or pm. didn’t know what day it was. i’d been down for 18 hours???

and the funny thing is i had a dream minutes before i got up that the same exact thing had happened down to the time

[disabled-sysboxes]

I wonder if you've done any boxes relating to narcolepsy and/or cataplexy? If you haven't, would it be okay if you could make some? /nf

If you haven't already, we would like to see (and use) some that say the following:

- "This system has narcolepsy with cataplexy"

- "This system commonly has sleep attacks and may reply slowly"

- "This system is narcoleptic and cataplectic, please be patient and respectful"

added to the list!

[tiwesdaeg]

Right in the middle of work I had a full blown narcolepsy/cataplectic episode. I managed to sneak into the back, scribbled down a not “narco brain (gimme a min)” in case my manager or anyone came to the back to see where I was or doing (and couldn’t speak). But since all that was separating me from the general public with a curtain and idk if I snored or if I made some other noise (the hands feeling during my cataplexy episodes feel like very persistent hands so sometimes my telling them to stop is an annoyed groan (because I can’t move any part of my mouth or tongues so it kind of comes out as a groan.))

[blissfullyblindbuffoon]

Thank you for all the great information and feedback from people reaching out and teaching me more about this condition! Through more research and listing to all your experiences, I've decided that, unfortunately, vasovagal syncope is not the right match for my character. Instead, I'm looking into type one narcolepsy, specifically cataplexy, a common symptom of narcolepsy. "Cataplexy is a brain disorder that causes a sudden and temporary loss of muscle tone and control. The episodes (or “cataplectic attacks”) are, in most cases, triggered by strong or extreme emotions, including anger, stress, anxiety, fear, a depressed mood, joy, and laughter." For more info, https://www.everydayhealth.com/cataplexy/guide/

So if any of have experience with this or know anything I should know, let me know! Thank you again for all your help!

Hello Tumblr,

I'm thinking about writing a character with Vasovagal syncope. For those of you who don't know, Vasovagal syncope is a condition that leads to fainting in some ppl. Some common triggers are fear, blood, vomit, and extreme emotions. I've only just started researching the condition, so if any of you know anything helpful about it or have experience with it, let me know! I'd like to present it accurately. If any of you have any reasons why I shouldn't write a character with Vasovagal syncope, also let me know.

Some potential triggers for my character: Blood, fear, stress, dogs, and the occasional jump scare.