#but if we're tested and not diagnosed

[zombidog]

*runs away with a suspiciously flaglike shape in my mouth*

Hey there! Just found out I'm transHEDS and was wondering if u could maybe make a flag for it?

᲼᲼᲼᲼᲼᲼᲼᲼᲼᲼᲼᲼᲼Trans hEDs

᲼᲼᲼᲼᲼When someone identifies as having hEDs . ᲼᲼᲼᲼᲼For whatever specified / unspecified reasons .

‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‏‏‎ ‎‎‎‎If already coined consider as an alt . Req by anon . ‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‎‎‎No DNI . Just be nice / civil about it . Free for anyone .

[whydousernamesevenexist]

Okay so I thought a bit about this for a while, and I think I have a good metaphor (if I find out someone said this before I'm fr gonna cry)

So, as an autistic person, talking to people without autism, it's like talking to someone in English. It's not my first language, but I'm fluent. I can speak it, I can understand it, but you know, it's just not personal to me, and often it takes me a second or two to register and process what they're saying.

On the other hand, talking with another autistic person? It's like talking to them in my first language. Like fr. They say the first three words of a sentence and I understand immediately. It's like we have some sort of mental connection. We are twins. We are platonic soulmates. It's life-changing.

[itstimeforstarwars]

Last week I was like "I need to go to a doctor who can fix me" but after five days of pcp searching only for all of them to either not take my insurance or not take new patients or not have any availability for three to six months...I am going back to the clinic so that I can simply get a renewed prescription on the stuff that doesn't fix me but at least sort of makes it so I can survive a day at work.

[supercantaloupe]

i actually had a dr's appt this morning (regular checkup) and. man do you know how relieving it is to hear her say "weight's not important, just as long as you're active" when asked if i exercise

[cockandballsnurture]

lmao i sent this to my mom and she said she got a high score too autism house

[bukuoshin]

Okay, it's. It's probably safe to say I'm autistic, lol

[leopxld-fitz]

hey does anyone here have pots

and if yes

what helps you

[cocklessboy]

The biggest male privilege I have so far encountered is going to the doctor.

I lived as a woman for 35 years. I have a lifetime of chronic health issues including chronic pain, chronic fatigue, respiratory issues, and neurodivergence (autistic + ADHD). There's so much wrong with my body and brain that I have never dared to make a single list of it to show a doctor because I was so sure I would be sent directly to a psychologist specializing in hypochondria (sorry, "anxiety") without getting a single test done.

And I was right. Anytime I ever tried to bring up even one of my health issues, every doctor's initial reaction was, at best, to look at me with doubt. A raised eyebrow. A seemingly casual, offhand question about whether I'd ever been diagnosed with an anxiety disorder. Even female doctors!

We're not talking about super rare symptoms here either. Joint pain. Chronic joint pain since I was about 19 years old. Back pain. Trouble breathing. Allergy-like reactions to things that aren't typically allergens. Headaches. Brain fog. Severe insomnia. Sensitivity to cold and heat.

There's a lot more going on than that, but those were the things I thought I might be able to at least get some acknowledgement of. Some tests, at least. But 90% of the time I was told to go home, rest, take a few days off work, take some benzos (which they'd throw at me without hesitation), just chill out a bit, you'll be fine. Anxiety can cause all kinds of odd symptoms.

Anyone female-presenting reading this is surely nodding along. Yup, that's just how doctors are.

Except...

I started transitioning about 2.5 years ago. At this point I have a beard, male pattern baldness, a deep voice, and a flat chest. All of my doctors know that I'm trans because I still haven't managed to get all the paperwork legally changed, but when they look at me, even if they knew me as female at first, they see a man.

I knew men didn't face the same hurdles when it came to health care, but I had no idea it was this different.

The last time I saw my GP (a man, fairly young, 30s or so), I mentioned chronic pain, and he was concerned to see that it wasn't represented in my file. Previous doctors hadn't even bothered to write it down. He pushed his next appointment back to spend nearly an hour with me going through my entire body while I described every type of chronic pain I had, how long I'd had it, what causes I was aware of. He asked me if I had any theories as to why I had so much pain and looked at me with concerned expectation, hoping I might have a starting point for him. He immediately drew up referrals for pain specialists (a profession I didn't even know existed till that moment) and physical therapy. He said depending on how it goes, he may need to help me get on some degree of disability assistance from the government, since I obviously shouldn't be trying to work full-time under these circumstances.

Never a glimmer of doubt in his eye. Never did he so much as mention the word "anxiety".

There's also my psychiatrist. He diagnosed me with ADHD last year (meeting me as a man from the start, though he knew I was trans). He never doubted my symptoms or medical history. He also took my pain and sleep issues seriously from the start and has been trying to help me find medications to help both those things while I go through the long process of seeing other specialists. I've had bad reactions to almost everything I've tried, because that's what always happens. Sometimes it seems like I'm allergic to the whole world.

And then, just a few days ago, the most shocking thing happened. I'd been wondering for a while if I might have a mast cell condition like MCAS, having read a lot of informative posts by @thebibliosphere which sounded a little too relatable. Another friend suggested it might explain some of my problems, so I decided to mention it to the psychiatrist, fully prepared to laugh it off. Yeah, a friend thinks I might have it, I'm not convinced though.

His response? That's an interesting theory. It would be difficult to test for especially in this country, but that's no reason not to try treatments and see if they are helpful. He adjusted his medication recommendations immediately based on this suggestion. He's researching an elimination diet to diagnose my food sensitivities.

I casually mentioned MCAS, something routinely dismissed by doctors with female patients, and he instantly took the possibility seriously.

That's it. I've reached peak male privilege. There is nothing else that could happen that could be more insane than that.

I literally keep having to hold myself back from apologizing or hedging or trying to frame my theories as someone else's idea lest I be dismissed as a hypochondriac. I told the doctor I'd like to make a big list of every health issue I have, diagnosed and undiagnosed, every theory I've been given or come up with myself, and every medication I've tried and my reactions to it - something I've never done because I knew for a fact no doctor would take me seriously if they saw such a list all at once. He said it was a good idea and could be very helpful.

Female-presenting people are of course not going to be surprised by any of this, but in my experience, male-presenting people often are. When you've never had a doctor scoff at you, laugh at you, literally say "I won't consider that possibility until you've been cleared by a psychologist" for the most mundane of health problems, it might be hard to imagine just how demoralizing it is. How scary it becomes going to the doctor. How you can internalize the idea that you're just imagining things, making a big deal out of nothing.

Now that I'm visibly a man, all of my doctors are suddenly very concerned about the fact that I've been simply living like this for nearly four decades with no help. And I know how many women will have to go their whole lives never getting that help simply because of sexism in the medical field.

If you know a doctor, show them this story. Even if they are female. Even if they consider themselves leftists and feminists and allies. Ask them to really, truly, deep down, consider whether they really treat their male and female patients the same. Suggest that the next time they hear a valid complaint from a male patient, imagine they were a woman and consider whether you'd take it seriously. The next time they hear a frivolous-sounding complaint from a female patient, imagine they were a man and consider whether it would sound more credible.

It's hard to unlearn these biases. But it simply has to be done. I've lived both sides of this issue. And every doctor insists they treat their male and female patients the same. But some of the doctors astonished that I didn't get better care in the past are the same doctors who dismissed me before.

I'm glad I'm getting the care I need, even if it is several decades late. And I'm angry that it took so long. And I'm furious that most female-presenting people will never have this chance.

[thethingything]

it reaaaaly sounds like you have asthma. I suggest changing whatever you're using to wash your sheets to a scentless soap, and if you can, take a daily allergy medication because it helps prevent things before it starts

oh yeah we're diagnosed with asthma and already take daily medication to managed it (we actually got our refill for that a few days ago) and we changed our bedding two days ago but we haven't noticed any issues based on what the sheets are washed with (our stuff used to be washed with scentless stuff when we lived with someone else and the only difference we noticed was if they hung it outside to dry, which we now refuse to do for that reason).

the thing with us being out of breath and exhausted after changing our sheets was that we have ME/CFS and the exertion from that caused a flareup of our symptoms, so it was breathlessness from sitting up feeling like exercise, rather than te breathlessness our asthma causes.

I'm still probably gonna start taking allergy meds on a daily basis to help because apparently there's now evidence that they help both ME/CFS and long covid symptoms and since we have both and it does seem to work for us, it'd be great to have something we can take.

[lesbianwyllravengard]

People who don't have autism: you can't self diagnose yourself with autism no matter how much research you do! You have to take 3947493 tests and pay thousands of dollars before you can call yourself autistic!!

People who have autism: yeah you're autistic. We're diagnosing you.

[straykats]

.

[chronicbitchsyndrome]

speaking of professional dx, i think it's important to recognize that professionally dx'd disabled people are at a severe legal disadvantage compared to disabled people who purely self-id; one of the reasons i'm so intensely pro-self-dx and actively advocate for people to self-dx over professional dxing is because professional diagnosis comes with a cavalcade of systemic oppression and violence from the state, no matter what country you're in.

some things that professional diagnosis of a disability might do, depending on what disability and which country you live in:

bar you from adopting children

get your preexisting children removed from your care

bar you from immigration to most countries

open you up to conservatorship or other form of legal guardianship past the age of majority by your parents or other adults who care for your medical needs, without regard for your consent

remove your ability to consent to medical procedures or withhold consent for medical procedures

bar you from accessing gender care (if trans)

obviously, there's plenty of resources that are artificially gatekept behind professional diagnosis, like mobility aids that are only affordable through insurance, prescription medication, testing like blood tests and MRIs, AAC devices, and more. but i think it's important to remember that those of us who need these things aren't necessarily privileged by our professional diagnoses, insomuch as we're forced into a situation where we have to subject ourselves to endless state violence via professional diagnosis in order to have access to those necessary resources.

i think it's particularly important for those of us professionally diagnosed to remember that. there's a tendency in some circles to treat professional diagnosis like it makes us better or more "legitimately disabled" than self-id disabled folks; this isn't true and it's important to remember that we shouldn't feel the need to define ourselves by a thing that actively harms us. plus, just because someone doesn't have a professional diagnosis doesn't mean they don't need the resources that are kept behind it; often it means they can't afford to weather the state violence that comes with the dx, and so instead they have to suffer without medication or aids or testing and have a significantly worse and shorter life because of this. just because they have legal privilege over you doesn't mean they necessarily have social privilege over you or quality-of-life privilege.

[anesidore]

UPDATE 12/04: thank you so much for the support! i'll be closing donation channels now, as we have reached our goal. i really do appreciate the support!

i will be keeping the original post through a read more below for posterity.

hi everyone! i know i have a relatively small following but i wanted to take a chance to ask for help anyway.

my beloved cat alphinaud (alphy for short, alby if you're being cute) was a naughty boy and decided to go outside a few days ago (he's been an indoor cat all his life) and got into a fight with a stray, which led to a wound with an abscess above his right eye. on top of this, he has been struggling with urinary tract infection for the last year and the crystals in his bladder unfortunately flared up once more, so the vet recommended him to be confined at the clinic for the next few days as he undergoes testing.

so far our expenses has been PHP 23,600 (around USD 400) for all the tests he went through as well as the confinement fee, and i expect it to cost more as he stays in the vet for confinement. luckily i cobbled together enough money to pay for the 11.8k PHP downpayment for today, but i don't have any money left after that expense. i will be adding the receipt from the 50% downpayment under the read more below as proof of these expenses.

i hate to ask for help from strangers again, as i have already done so last year when his uti was first diagnosed. unfortunately i'm quite literally at the end of my rope here. i've recently lost my dad last month, which took quite a toll on me financially (and of course, emotionally) because of funeral expenses and the medical bill that we're still paying off.

my friends can attest that i don't really make a habit of asking for help even when i desperately need it, but i really can't lose another member of our family so soon after we lost my dad who i loved with all my heart. i hope whoever reads this finds it in their heart to understand where i'm coming from here, but thank you for reading up to this point despite how long it has gotten.

if you're willing to help, you can send donations at paypal.me/amunetis or if you are from the philippines like i am, you may send your donation through my gcash at 09175252352.

i will also be prepping a commissions post soon in case anyone is interested, if you need examples you can find it here in this link. i'll be updating this post when i'm done with preparations.

again, thank you so much for reading through this all. if you are unable to help financially, i would greatly appreciate sharing/spreading the word through reblogs or maybe even sharing this post through other sns like twitter or bsky.

^ 50% downpayment receipt that i paid today. i can also provide pictures of his test results and other things if needed as proof.

have another pic of alby as thanks for checking!

[doumadono]

Warnings: intermittent explosive disorder (IED), mentions of PTSD, a lot of angst, Bakugo dealing with impulsive anger outbursts, Bakugo being mean, aged-up Bakugo, pro hero Dynamight

A/N: yesterday, while chatting with my partner about Bakugo, a thought struck me (though it's just a personal theory, subject to disagreement) - Bakugo might exhibit signs of intermittent explosive disorder. His frequent bouts of anger, his brusque and often unkind demeanor, and occasional lack of control over his temper could be indicative of this. These headcanons delves into Bakugo's life as the second-ranked pro hero, Dynamight, as he grapples with the aftermath of the war

MY HERO ACADEMIA MASTERLIST

You meet Bakugo when he's the second-ranked pro hero, right after Deku. You're drawn to his charisma, confident personality, and the way he becomes protective of you.

Unfortunately, over time, you start to notice a lot of things that are just not right. His temper is extremely short, and he can explode with anger no matter what happens. It could be something he dislikes or someone doing something he doesn't approve of, and it immediately triggers a massive rage outburst. This can lead to him losing control of his own quirk, resulting in him destroying things.

After a routine checkup, the doctor suggests taking some tests, and the results are devastating: Bakugo is diagnosed with intermittent explosive disorder.

Naturally, this news infuriates him, and when he returns to your shared flat, he destroys his own little office in a fit of rage.

Bakugo's intermittent explosive disorder makes it difficult for him to control his anger, and he will often lash out in violent outbursts.

Bakugo's intermittent explosive disorder manifests in unpredictable outbursts of anger and aggression, often triggered by seemingly minor frustrations or perceived slights. His explosions can range from verbal tirades to physical violence, leaving destruction in their wake.

During his outbursts, Bakugo lashes out verbally and physically, unaware of the damage he inflicts on those around him.

Despite his efforts to control it, Bakugo's explosive temper often alienates him from his friends and loved ones.

His relationships with people he considered colleagues or sometimes friends become strained as they struggle to understand and cope with his unpredictable behavior anymore.

You're often the target of his outbursts but refuses to give up on him, believing that beneath his volatile exterior lies a wounded soul in need of understanding and support.

Even Mitsuki tries to intervene. "Honey, you need help. This isn't healthy for you or anyone around you! We're here for you, son. We want to help you get through this."

But of course Katsuki declines. "I don't need your help! I can handle this on my own!"

Bakugo's disorder takes a toll on your relationship, testing the limits of your love and patience. There are moments when you feel helpless and overwhelmed, questioning whether you can handle the emotional rollercoaster of being with him.

You learn to recognize the signs of an impending outburst and try to diffuse the situation before it escalates, using gentle words and gestures of affection to calm him down.

Bakugo's disorder has left him feeling like a monster, like a beast that's been unleashed upon the world with no hope of redemption. He's consumed by guilt and self-loathing, convinced that he's unworthy of love or forgiveness.

Deep down, Bakugo is aware of his condition and the pain he causes, but his overwhelming anger blinds him to the consequences of his actions.

Bakugo's disorder causes him to push you away frequently, convinced that he's too dangerous to be around. He believes that he's protecting you by keeping his distance, even though it breaks his heart to do so.

Bakugo's disorder becomes a constant source of tension between the two of you, with every interaction tinged with the fear of setting him off.

Finally, after months of suggesting and almost begging, Bakugo agrees to try something new and allows you to take him to a psychiatrist. The doctor prescribes him Fluoxetine, and after some time of taking the medication, his rage and anger outbursts become smaller and less frequent.

You don't just leave it there. You suggest he should think about therapy, and after some reluctance, he agrees.

After attending several sessions, you both discover that Bakugo's disorder is linked to PTSD he developed post-war and after being dead for a while. Suddenly, everything becomes clear, and you not only understand your boyfriend better but also know how to help him effectively. Hearing about his traumatic experiences brings tears to your eyes, and you cry a river upon realizing the extent of his suffering.

Over time, and with the combined efforts of you, his parents, and his friends, Katsuki starts to make progress in managing his disorders and becomes a bit calmer with his emotions. Of course, everyone remains super careful not to do anything that might set him off.

Being Dynamight's partner is tough, and you know it better than anyone. But despite the challenges, you're not about to leave him. He's the love of your life after all, with all his strengths and weaknesses.

[ms-demeanor]

IDK that I've ever put it in one post before, but here's the transplant speedrun.

1 - Valentines day 2021, he's admitted to the hospital. We take a pre-hospital selfie then I shave his head and he shaves his beard because he doesn't want to deal with hair at the hospital. Me and his mom drop him off; at that point you can only visit someone as they are actually dying and we're told that he's going to stay in the hospital until he gets a transplant or he dies, and if he's rejected as a transplant recipient he'll receive palliative care in this hospital.

2 - First week of March, they allow patients to have one screened visitor; this is our first visit - I take photos in the hospital to show his mom because at this point he has a pump in his shoulder and it is difficult for him to move his arms to use his phone. He has also been confined to a bed since the week he arrived because he's on the ECMO machine, so he can't walk or move around, though they stand him up every once in a while. At one point one of the ecmo tubes pulls out of his femoral artery, which is Not! Great! He also needed a blood transfusion about every two days at that point, which worried the doctors because it increased his likelihood of rejecting. But he had been approved for transplant at that point!

The first thing he said to me on this visit was "look, I have abs" and then he showed me his abs because it turns out when you're really really dying of heart failure your body begins to eat itself.

3 - Now That's What I Call Jaundice (cardiac cirrhosis is liver failure as a result of heart failure and it's pretty much the big giant neon flashing sign of heart failure that says "hey you're fucking dying" so if you've got heart failure and your bilirubin number is off or the whites of your eyes are yellow please kick up a gigantic stink until they check your liver; large bastard's GP, who is my doctor, who I hate, saw his bloodwork with a very high bilirubin number a month before he was diagnosed with cardiac cirrhosis and wrote it off as a testing fluke fuck that guy)

4 - Don't let the sad face fool you, he's acting pathetic so that his mom will stop yelling about the fact that I'm bringing him cookies. He's allowed to have cookies. At that point he weighed 98kg and was outsourcing his heartbeat, he was allowed to eat whatever he wanted. (have i mentioned that I was moving us from Vegas to LA at this time? I was bringing him cookies because I'd baked hundreds of peanut butter cookies and other cookies to use up the flour, sugar, and peanut butter in the vegas house)

5 - Mid-march, he's got a match! He called me when I was in Vegas filling up the truck with another load and I drove right back and to the hospital. Once he went in for surgery I drove to his mom's house and crashed, then woke up and drove to our storage unit and unpacked the truck while I waited to hear from the doctors. I was unloading a bookcase when I got the call. (There wasn't any point in waiting alone in the hospital for sixteen hours; either he was going to make it or he wasn't and someone was going to have to unload the truck at some point. People have been weird about this, like I should have been sitting at his side all the time, but there was a two-hour daily limit for most visits and look i have sat in a waiting room while this dude had a thirteen hour surgery i do not need a repeat of that experience without the soothing balm of nicotine getting me through it; so unloading a truck it was)

6 - Two days after surgery and kind of mad about it. His chest hurt a lot (obviously) but, like, a lot a lot because they'd had to open him up for the bypass just two years earlier.

7 - First walk outside of his room after transplant in early April; he needed a LOT of PT because of how much muscle he'd lost. He lost sixty pounds in the hospital before the surgery, and only gained back about twenty while he was in there.

8 - A visit from the tiny doggo

9 - I come to visit and I've got a new phone with a portrait mode so he steals it and takes stupid pictures for a few minutes. Dude is bored and restless; this is in late april and he's feeling well enough to be moody. ETA: There is a jar of pickles in front of him because he'd been fluid limited for a long time and his salt levels were off and when he got to the hospital they were like "you need electrolytes and a lot of salt" and he was like "sweetheart can you please please please bring me delicious salty things" so I was bringing him jars of pickled mushrooms and garlic stuffed olives and just a huge number of pickles that he kept trying to share with the nurses. "Alli brought the mushrooms again; would you like a pickled mushroom? I have fancy toothpicks to share them with!"

10 - He comes home for the first time in early May; he ends up getting readmitted two more times because of complications before finally being released in early July. ETA: The second time he got readmitted it was for something that he wasn't at all worried about but that they needed to monitor for a couple weeks so he was *SO BORED* and actually feeling pretty okay; so at one point when I was leaving the parking garage at 8pm my car wouldn't start, I did some troubleshooting with the manual and the internet and didn't figure it out, so I called him and he tried to troubleshoot over the phone and got frustrated and was begging his nurses to let him come out to the parking structure to work on my car (they refused) - I ended up getting a tow and fixing it when I replaced the battery terminals.

Photos are all posted with his permission.

Also I dyed my hair purple between photos one and two because it's his favorite color. I also bought a blue dress, red tights, and yellow shoes to wear to visit him because he always teases me for wearing so much black.

I just love him a lot. It was a hard couple years there, but things are getting better.

[bitchapalooza]

Something something I think the Vinsmokes should have adverse effects to show how their brains and genes were literally rewired to the point where they probably classify as a subspecies of human. Certain parts of their brains were suppressed and altered, their whole nervous systems probably altered too. Literal genome manipulation was done. And let's not forget about the drug Sora consumed while pregnant. If it made her sick, who's to say it didn't cause irreversible effects on the babies, too? God I bet Chopper has a field day when examining Sanji, especially after his mutations start to take effect. His tests might come back inconclusive or with unusual results in general. Any brain CT could look completely fucked, abnormal and concerning, when actually for him it's healthy and as it should be. The siblings are literally a doctor's/researcher's dream patient.

And idk how to fit this into the post exactly but Ichiji having this morbid obsession with the human brain to the point it HAS to be a sign of a mental disorder that cant be properly diagnosed due to the suppressed emotions and Yonji having pica due to some alterations done to his brain or perhaps a trauma response but because his emotions/ect. we're fucked with there's really no way to properly know being two hcs of mine. That also includes how Sanji responds to anything even vaguely explicit; his libido, and his brother's for that matter, all being altered in some way, from extreme levels (Sanji) to minor (Ichiji).