#but i CANNOT afford to have my PMDD get worse | Explore Tumblr posts and blogs

simmer-for-hire-blog · 6 years ago

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Why I haven’t been around.

Hoo boy, this is gonna be a Longpost™ so I’m probably gonna put it under a cut, just so you guys don’t have to look at the whole thing on your dash. But this is basically just gonna be me outlining why I haven’t been around on Tumblr, and more broadly just kinda everywhere. Also, there might be some darker themes and stuff, so I’ll make sure to put in the appropriate trigger warnings in the tags. And before any of you rush to judgments, no I’m not making this post to garner sympathy or for notes or anything like that. If anything I’m just trying to provide an explanation to those who follow me and are disappointed by my lack of posts, and potentially raise awareness for what I’m going through and provide some basic information. So hold on to your hats, because here we gooo! (There’s also gonna be some TMI in here about periods and stuff so if that kind of thing grosses you out then you probably shouldn’t read this tbh)

So I’ve had a few health problems - both physical and mental - that I’ve been trying to overcome over the past couple of years or so. Most of my problems concern the endocrine (hormone) system and reproductive organs, so if this is TMI, then it might be better for you to not continue reading as I will probably go into some detail.

For about a year or so, I’ve had the official diagnosis of Polycystic Ovarian Syndrome, or PCOS, but I’ve been suffering from it for a good five years or so idk? For those of you who aren’t familiar with it, it is a condition that is related to abnormal hormone production in the body, which results in characteristics such as excess hair growth, weight gain, irregular or no periods and - the main focal point - fluid-filled sacs growing in the ovaries, which can cause a lot of pain if they burst. I’d just like to make a note here that I am in no way an expert, so the information here may not be completely accurate, so I urge you to do your own research on this if you wish to find out more, rather than taking what I say as fact. My personal experience with this has been less severe than a lot of cases, I would say. I first started showing symptoms around 2014/2015, when my periods became irregular, and eventually stopped altogether over the period of about 4 months. Naturally, I went to see a doctor, and had maybe the worst experience I’ve ever had with a medical professional. It took him two years (still with no periods) to finally admit that something was wrong, and I ended up having to enter each medical appointment with the attitude that I would need to fight tooth and nail to get him to admit that I could have a problem. But eventually he agreed to send me for an ultrasound, and there it was found that I had a borderline amount of cysts (not enough for a certain diagnosis, but too many to say that there was nothing wrong), leading to a diagnosis being given, as I had a lot of other symptoms. There is no treatment for PCOS, as it cannot be cured, so all the doctors can do is suggest options to manage the symptoms. One such option is the contraceptive pill, which they put me on. I had such a terrible reaction to this that I stopped taking them because it was impossible for me to function as a human being while I was on them, as they worsened the disorder that I will tell you about next. However, when I came off the pill, I actually started getting periods again, which seemed like a miraculous recovery, until something worse happened...

So I was thinking that everything would be magically better when I started having periods again. Unfortunately for me this was not the case. After coming off the contraceptive pill, I had regular (yet very light) periods again. So this meant that the cycle of hormones was continuing normally. For the week or so leading up to my period until a couple of days into the period, where people would often experience PMS, it’s like I became a different person. I’d have episodes where I’d be so sad that I couldn’t get out of bed, and would sometimes barely be able to move. Obviously this caused me to miss a lot of school. I think my attendance at the end of this school year must have been like 50% or something. I’d also experience fits of violent rage, and overwhelming thoughts of self-harm and suicide. In February of this year, it all became too much for me, and I was admitted to the hospital after a suicide attempt. Luckily for me and everyone around me, I survived and was discharged a couple of days afterwards. My memory of the event is terrible due to the nature of the attempt so I couldn’t really tell you very much about my experience. It was a very strange period of time, because about halfway through each period, these symptoms would fade away, and I’d be left wondering why I’d ever had these thoughts and feelings, because they wouldn’t even cross my mind when these ‘episodes’ weren’t going on. It was during this time that a family member sent me a link to an article. This article was about a woman who, like me, suffered an almost complete personality change for a few weeks per month, in a seemingly cyclical nature. Like me, this started when she first got her periods and didn’t affect her all the time. The only difference is that her periods were always regular, whereas I had barely had any due to the PCOS. This woman was diagnosed with a disorder called Pre-Menstrual Dysphoric Disorder, or PMDD. A lot of the information is on the website that I have linked, but feel free to do your own research if you’re curious. To summarise, it is a disorder caused by sensitivity to normal hormone fluctuations that causes extreme mood swings, depression, anxiety, bursts of rage etc. between ovulation and bleeding (which basically means the week or two leading up to your period). For me, this disorder is crippling, and has destroyed any chance of a life I could have had. I cannot continue any form of education, I cannot work (I had a job for about an hour before I couldn’t take it but that’s another story), so there’s not much to do with my life. Lately I have been thinking long and hard about some information that I’ve recently come across. According to the Equality Act of 2010 (this applies to me because I live in the UK, but it’ll be different in other countries), a disability is defined as ‘having a physical or mental impairment that has a substantial and long term negative effect on your ability to do normal day to day activities’. According to this definition, my PMDD is a disability, but I haven’t fully read up on the legislation, so I couldn’t whether legally it would count or anything like that. I also don’t know how I feel about being defined as ‘disabled’, because mental disorders aren’t typically seen as being disabling in our society and there’s a stigma around people with disabilities being ‘helpless’ and I’m certainly not that, and I don’t want to undermine people who suffer from physical disabilities by calling myself ‘disabled’, so there’s a whole host of reasons why I don’t want to jump to that.

Contrary to what I’ve been saying here, there is actually hope for me. PMDD and PCOS are not completely curable per se, but there are ways to manage and educe symptoms, so I can live a normal life (PMDD is more curable than PCOS however, which has been touched upon in the article I linked earlier, and I will briefly discuss in a second). However, so far my GP has been of absolutely no help, and I fully intend to complain officially because the way they have treated me is appalling and has basically ruined the current state of my life. That is why I decided to see a private specialist. I am so lucky that my family have the financial security needed to be able to afford a private healthcare consultation, because I received so much more help from them in the half hour consultation than I ever received from my GP in the four years that I have been going to them for help on these matters. The private doctor listened to the timeline of events that I laid out for her, and the full extent of what is currently going on, and recommended that I take vitamin supplements, as they have been proven to slightly manage PMDD symptoms, and prescribed a five-day contraceptive which would hopefully get my periods kick-started again, as I have missed the last four months with no sign of them returning. I’m currently on the last day of this contraceptive, and I’ve been suffering with really bad PMDD (didn’t really help that I was out drinking on friday which usually makes my symptoms worse, but oh well, it was a good night), so hopefully these will yield results within a couple of days. The consultant is also following up with a colleague in London who is an expert on this kind of thing, and will shoot me an email if she finds anything else out. Treatment options for PMDD can include inducing menopause early or even a hysterectomy (removal of the female reproductive organ), but I have been told that hopefully it will not come to that.

So yeah, that’s been my journey so far. During this time, it’s been difficult, even impossible, to keep up with this blog. I hope that you understand why I haven’t been able to update regularly. If you have any questions, please ask me, and I’ll try to the best of my ability to answer all of them. If you’ve read this far, thank you for sticking with me, and by the way, thank you for 738 followers! I really don’t deserve that much love and support considering I haven’t made a post in months, but it means a lot. I hope this post informed you all about what I’ve been dealing with and all that, and I’ll try to make some sort of recovery in order to keep posting here. I love you guys xx

#non sims #mental illness tw #self-harm tw #suicide tw

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ongames · 8 years ago

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Trump Wants To Roll Back Birth Control Access. Women Aren't Having It.

The Trump administration is poised to roll back an Obamacare mandate that requires employers to cover birth control for female employees, according to a draft rule released this week.

Democratic leaders have called the move “sickening.” The American Civil Liberties Union said it would fight the rule in court. And women across the country who have come to count on being able to access a broad range of contraceptive options without a copay were outraged, taking to Twitter to share their personal stories.

Used to pay roughly $1200 a year for the pill. Now I pay nothing. Would love for it to remain the case. *smh* https://t.co/hwRWqPd4xH

— Hugh Madson (@sweet_epiphany) May 31, 2017

ACA meant I could afford my long term implanted bc (implanon!) and let my husband and I focus on paying off our debt before having kids. https://t.co/XVWwEXaRfe

— Meagan Lopez (@MeaganMCrowe) May 31, 2017

HuffPost Women spoke to 12 women about how the Affordable Care Act’s birth control mandate has affected their lives, and the many reasons why they rely on birth control. Here are their powerful stories.

Alexandra, 31, got an IUD after being raped:

“I wasn’t on birth control when I was raped at 19. It was the scariest six weeks of my life as I waited for my next cycle. I have an IUD now, which I got 10 years after my rape when I was a staff member at Planned Parenthood. I’m on medication to treat several autoimmune disorders and cannot get pregnant.

Birth control is more than a contraceptive to me; it helped me regain control of my body after someone robbed it from me. I was able to get my IUD covered through the mandate. In three years, when I need a new one put in, I know I will not be able to afford to pay out of pocket. It would be a financial burden, but my Mirena is part of my medical treatment—just like the other medications I take.” —Alexandra Dukat, 31, New York

Anonymous, 23, needs birth control to help manage her PCOS:

“I have Polycystic Ovarian Syndrome, which is an endocrine disorder that causes a host of problems, like painful cysts, weight gain, insulin resistance and diabetes, acne, exhaustion, brain fog, vitamin deficiencies, depression, anxiety, and trouble getting pregnant, just to name few. My birth control prescription not only helps keep all of those symptoms at bay, it allowed me to finish a bachelor’s degree in three years because I was able to actually function.

The day that the Obamacare birth control mandate went into effect, I cried at the pharmacy counter. I wasn’t really aware of what was happening ― I was in college, still on my mother’s insurance and was accustomed to forking over $20 of my $100 monthly grocery budget for the pill. It was such a huge relief to know I would be covered at no cost. I am worried now, knowing that as I search for jobs in the post-grad world, that I could wind up in a similar situation ― or worse. I hear people say, ‘Well, you shouldn’t go to work for a company that wouldn’t cover your birth control at 100 percent.’ As if every person in the country gets a million options for employment. As if this won’t turn into a slippery slope of non-religious employers opting out of the mandate just to cut costs.” —Anonymous, 23, Texas

Danielle, 26, needs birth control to get out of bed and function:

“I have been on birth control since age 16 due to incredibly painful heavy periods and ovarian cysts. The pain was so terrible that a couple days every month I would be bedridden. The paramedics even had to come to my home because I would often hyperventilate from the electrifying pain and pass out.

With birth control pills, my pain is almost entirely gone, and so are my cysts. I can participate in life. Birth control lets me rock my career, explore and try new activities and travel the world with my love—plus, I don’t want kids. Not now, not ever.”—Danielle Chandler, 26, California

Anne, 40, needs her birth control to be covered or she’ll have to have a hysterectomy:

“I was grateful for the coverage mandate when I began taking birth control pills while undergoing infertility treatment. Before two separate egg retrieval operations, I needed to take the pill to prevent natural egg release. Infertility treatment is extremely expensive, and we were desperate just for that little bit of financial relief. We were already extended, and it was just a bit more that we didn’t have to take out in a loan.

While our attempts to have a baby were ultimately unsuccessful, my doctor is currently considering birth control pills to help manage an issue with recurring uterine fibroids. Without coverage, I will likely have to resort to a hysterectomy as I cannot afford additional monthly medical expenses.” —Anne Hunter, 40, Illinois

Katrina, 35, takes birth control to lower her cancer risk:

“I’m a BRCA carrier, like Angelina Jolie, who lives in fear of ovarian cancer. If a pill means that I can lower the chances of meeting the fate of my family members, I want that pill. I took it for 10 years and have also used an IUD. I also recently had my tubes removed. All of my birth control choices, from the pill to surgery, were covered by my insurance.

The idea that my BRCA mutation, which I may have passed on to my three daughters, could already be considered a preexisting condition is stressful enough without knowing that the one thing that is non-invasive and can help reduce their risk can be taken away as well.” —Katrina, 35, New Jersey

Kelsey, 24, needs birth control to function and she can’t afford $100 a month:

“I’ve been on birth control since I was in 8th grade. When I got my period, I bled for almost two whole weeks every month and remember having constant spotting. Schools only were allowed to administer so much ibuprofen, Tylenol before I was turned away and was eventually sent home because I couldn’t sit upright in my desk chair.

I’m now 24 years old and have never stopped taking birth control. I have an active sex life with my long-term boyfriend. We are both college grads with crippling amounts of student debt and rely on my birth control being free every month. We don’t want to have to decide between $100 for a prescription or $100 for food for the month. I’m scared. I don’t want my coverage of birth control to disappear. Will I be able to continue working if the unbearable cramps return with the two-week periods? I don’t know—and I don’t want to find out.” —Kelsey, 24, Kansas

Lynnsey, 25, needs the NuvaRing to manage her endometriosis:

“I rely on contraceptives to manage my endometriosis. After complications and a surgery to remove an ovary, I’ve finally found a doctor who knows how to keep my symptoms at bay, and that includes taking birth control.

Without the coverage mandate, I wouldn’t be able to afford the medication that prevents my endometriosis from getting worse and damaging other organs. I currently use the NuvaRing, which would cost around $130. I would not be able to swing that much each month.” —Lynnsey, 25, Wisconsin

Devina, 23, uses birth control because she never wants kids:

“I’m 23 years old and have always known I never wanted kids. The free birth control my employer’s health insurance provides makes that happen. My mother, who was not so fortunate to have easily accessible birth control, had me at a young age and raised me on her own and went through struggles I will never know to ensure she could not only provide a promising future for me, but for herself as well (she got a Ph.D. in math).

With the current contraceptive mandate, I know my reproductive future will go exactly the way I want it to, and that I can stay as happy in life as I am right now. Before, I had to pay a $40 co-pay every month. I could afford that, but other women cannot.” —Devina Alvarado-Rodela, 23, Arizona

Nicole, 28, worries she won’t be able to afford another IUD:

“I started taking pills I believe when I was 13 to track my periods and make sure they didn’t interfere with swim meets. My periods meant horrible cramps, so knowing what meets had conflicting dates with my cycle was really, really helpful.

Eventually, I switched to an IUD, which was paid for in full by my insurance. I need to replace it next year, and I’ll admit I’m a little nervous—I’m not sure how much a replacement will run me. My fiance and I have talked about it and I’ve agreed to go back on the pill if that’s more within our price range. While I’m sure we can afford some form of birth control, I’m sad that price might mean limiting some of our options.” —Nicole, 28, Florida

Anonymous, 23, got better birth control through the ACA:

“I’m young. I work three jobs and can barely make ends meet. Having a baby now would ruin me financially, probably for the rest of my life—not to mention how it would impact that child. I rely on birth control because I don’t think I should have to take a vow of celibacy just because I’m not financially stable yet.

Before the ACA, I was on the cheapest generic birth control I could get—it cost me about $10 a month out of pocket. After the election, I scheduled an appointment to get an IUD and it’s looking more and more like I made the right decision.”—Anonymous, 27, Missouri

Mandie, 31, needs birth control to help with PMDD:

“I depend on birth control to help with my acne, to combat PMDD (which is an awful, super-sized version of PMS) and to curb cramps. I already pay about $30 a month out-of-pocket on other prescriptions, so it’s really nice that this has been free and available to me. The kind I take isn’t cheap—well over $50 a month without coverage. Without insurance, I’d never be able to afford it.” —Mandie, 31, Wisconsin

Sarah, 29, already has three kids and doesn’t want another:

“I choose to use an oral birth control pill because I currently do not want to have another baby (I recently had my third child) and I do not want to get an abortion, though I am pro-choice. I’m fortunate that the contraceptive coverage mandate doesn’t affect me, because my medications are fully covered under military health care. Unfortunately, that is not an option for everyone.” —Sarah Peachey, 29, currently based in Germany

Accounts have been edited and condensed.

-- This feed and its contents are the property of The Huffington Post, and use is subject to our terms. It may be used for personal consumption, but may not be distributed on a website.

Trump Wants To Roll Back Birth Control Access. Women Aren't Having It. published first on http://ift.tt/2lnpciY

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yes-dal456 · 8 years ago

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Trump Wants To Roll Back Birth Control Access. Women Aren't Having It.

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The Trump administration is poised to roll back an Obamacare mandate that requires employers to cover birth control for female employees, according to a draft rule released this week.

Used to pay roughly $1200 a year for the pill. Now I pay nothing. Would love for it to remain the case. *smh* https://t.co/hwRWqPd4xH

— Hugh Madson (@sweet_epiphany) May 31, 2017

ACA meant I could afford my long term implanted bc (implanon!) and let my husband and I focus on paying off our debt before having kids. https://t.co/XVWwEXaRfe

— Meagan Lopez (@MeaganMCrowe) May 31, 2017

Alexandra, 31, got an IUD after being raped:

Anonymous, 23, needs birth control to help manage her PCOS:

Danielle, 26, needs birth control to get out of bed and function:

Anne, 40, needs her birth control to be covered or she’ll have to have a hysterectomy:

Katrina, 35, takes birth control to lower her cancer risk:

“I’m a BRCA carrier, like Angelina Jolie, who lives in fear of ovarian cancer. If a pill means that I can lower the chances of meeting the fate of my family members, I want that pill. I took it for 10 years and have also used an IUD. I also recently had my tubes tied. All of my birth control choices, from the pill to surgery, were covered by my insurance.

Kelsey, 24, needs birth control to function and she can’t afford $100 a month:

I’m now 24 years old and have never stopped taking birth control. I have an active sex life with my long-term boyfriend. We are both college grads with crippling amounts of student debt and rely on my birth control being free every month. We don’t want to have to decide between $100 in a prescription or a $100 of food for the month. I’m scared. I don’t want my coverage of birth control to disappear. Will I be able to continue working if the unbearable cramps return with the two-week periods? I don’t know—and I don’t want to find out.” —Kelsey, 24, Kansas

Lynnsey, 25, needs the NuvaRing to manage her endometriosis:

Devina, 23, uses birth control because she never wants kids:

Nicole, 28, worries she won’t be able to afford another IUD:

Anonymous, 23, got better birth control through the ACA:

Mandie, 31, needs birth control to help with PMDD:

Sarah, 29, already has three kids and doesn’t want another:

-- This feed and its contents are the property of The Huffington Post, and use is subject to our terms. It may be used for personal consumption, but may not be distributed on a website.

from http://ift.tt/2rv1szV from Blogger http://ift.tt/2rZ5GAf

#http://www.happiness2arab.tk/2017/06/trump-wants-to-roll-back-birth-control.html

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imreviewblog · 8 years ago

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Trump Wants To Roll Back Birth Control Access. Women Aren't Having It.

The Trump administration is poised to roll back an Obamacare mandate that requires employers to cover birth control for female employees, according to a draft rule released this week.

Used to pay roughly $1200 a year for the pill. Now I pay nothing. Would love for it to remain the case. *smh* http://bit.ly/2rJB2v2

— Hugh Madson (@sweet_epiphany) May 31, 2017

ACA meant I could afford my long term implanted bc (implanon!) and let my husband and I focus on paying off our debt before having kids. http://bit.ly/2siX3ht

— Meagan Lopez (@MeaganMCrowe) May 31, 2017

Alexandra, 31, got an IUD after being raped:

Anonymous, 23, needs birth control to help manage her PCOS:

Danielle, 26, needs birth control to get out of bed and function:

Anne, 40, needs her birth control to be covered or she’ll have to have a hysterectomy:

Katrina, 35, takes birth control to lower her cancer risk:

“I’m a BRCA carrier, like Angelina Jolie, who lives in fear of ovarian cancer. If a pill means that I can lower the chances of meeting the fate of my family members, I want that pill. I took it for 10 years and have also used an IUD. I also recently had my tubes tied. All of my birth control choices, from the pill to surgery, were covered by my insurance.

Kelsey, 24, needs birth control to function and she can’t afford $100 a month:

I’m now 24 years old and have never stopped taking birth control. I have an active sex life with my long-term boyfriend. We are both college grads with crippling amounts of student debt and rely on my birth control being free every month. We don’t want to have to decide between $100 in a prescription or a $100 of food for the month. I’m scared. I don’t want my coverage of birth control to disappear. Will I be able to continue working if the unbearable cramps return with the two-week periods? I don’t know—and I don’t want to find out.” —Kelsey, 24, Kansas

Lynnsey, 25, needs the NuvaRing to manage her endometriosis:

Devina, 23, uses birth control because she never wants kids:

Nicole, 28, worries she won’t be able to afford another IUD:

Anonymous, 23, got better birth control through the ACA:

Mandie, 31, needs birth control to help with PMDD:

Sarah, 29, already has three kids and doesn’t want another:

-- This feed and its contents are the property of The Huffington Post, and use is subject to our terms. It may be used for personal consumption, but may not be distributed on a website.

from Healthy Living - The Huffington Post http://bit.ly/2rJWZKt

#Healthy Living - The Huffington Post

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