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Autism: Support needs, Spiky Profiles and my Experience
I wanted to take the chance to write about the levels of support and spiky profiles that are seen with being Autistic. It is a topic of importance to me as the growth of the Autistic community online increases, and it’s likely there is a percentage who are unaware of these terminologies. It also gives me a chance to share my experience as a medium support needs / Level 2 Autistic individual and to connect with other Autistic people and their experiences.
First, let's discuss support needs.
Autistic support needs refer to how much support, assistance and accommodations the individual requires in their day to day life. Currently many places will provide an indicated level of support to an Autistic person when they are diagnosed based on the information discussed in their assessment and Functional Capacity Report. This information will likely include, ability to perform self-care and home care tasks, ability in accessing the community, impacts from the need of routines, repetitive behaviours, sensory profile and special interests, and whether they require the assistance from other people (family, carers ect.)
There are Three Levels of Support, increasing in support needs:
Level 1 Needs Support, Level 2 Needs Substantial Support, Level 3 Needs Very Substantial Support. These are also often referred to Low, Medium, High Support Needs.
But in continuing this discussion further it is important to specify some myths and facts surrounding these levels.
Every level indicates a need for support. If someone is diagnosed with Level 1, this does not mean they require no support, assistance, accommodations throughout their day.
Every Autistic person is going to have their own set of support needs and accommodations that work for them and help them thrive as best they can. The aim of these support levels is not in line with the outdated language of functioning levels. There is no need to keep using “High-functioning” and “Low functioning” as they only get placed upon Autistic people based on the neurotypical standard of functioning, they are not indicative of the Autistic person's abilities and needs and no longer represent what we have learnt of the Autistic spectrum. Furthermore, an Autistic support needs are not set in stone, they are likely to change and shift throughout their life, even in a year, month, week depending on what is going on in their life, environment and other variables. Lastly, it's important to highlight the lives of all autistic people at different support levels and with different support needs. With the growing platform for autistic voices, higher support needs individuals may be overshadowed by lower support needs autistics. “Nothing about us, without us.” must include Medium/High support needs autistic people alongside Lower support needs autistic people.
This can lead into the understanding of ‘Spiky profiles’.
This term refers to the skills and abilities autistic individuals have that may not correlate cohesively or expand into all areas. This is not something that is used officially in diagnosis, in support resources ect. But it has been developed by autistic people to explain that they may have high and well developed skills in a handful of areas while lacking in skills in other areas. For example an Autistic person may be really good with language, writing and literacy but struggle with self-care and require a support worker to help them get ready for the day. This allows us to honour our skills; sharing what we love to do, understanding where we need support, and help feel more positively about our skill set. No matter the level of support an autistic person has, each person has a skills profile that is a representation of themself, and is not something to compare yourself to others with.
Now that I have discussed the topics of Support needs and Spiky Profiles, I'd like to share my honest and real experience and my profile of where I am in my life currently. As I mentioned in the introduction, I have level 2 / medium support needs which was indicated by my diagnosing psychologist. In my understanding, having level 2 support needs feels like being in a middle void between having independence and being dependent, leaving my skills profile very spiky. My support needs expand to a range of areas:
I need prompting to complete self-care and house care tasks, meaning that i shower only a couple times a week, i rarely brush my teeth, i can forget to brush my hair, it takes a lot of energy to perform these tasks especially if i were to try to do them everyday. Furthermore, I need to be prompted to complete house chores fully and there are some chores I cannot do. This is often because of sensory sensitivities and executive dysfunction as well as pathological demand avoidance.
I struggle with leaving the house by myself. There are instances where I have been physically able to, but it is dependent on different variables; is it somewhere I have been before with someone else? Do I know the route? Do I have sensory accommodations and comfort/safe items?
It also takes a huge amount of energy to do so and leads me to be exhausted, needing to rest or I can even become overwhelmed and meltdown / shutdown. Therefore it is in my best interest to have a support person when I leave the house.
This also expands into being unable to work in a standard job like my neurotypical peers. I have never been able to get a job as even an interview is too much for me. My psychologist indicated that even with support, I would only be able to work at most 10 hours a week. Because of this it is my goal to have a job that is not the standard 9-5 work; An Artist!
My support needs also include needing support and guidance in social interaction. I have deficits in my social abilities as Autistic people do, leaving me “failing” social situations. My partner will guide and direct conversations in my place when we are together and socialising with other people. Additionally, I have periods of verbal shutdowns where I am unable to speak. I make use of an e-writer to communicate, i also plan to make communication cards and have text to audio AAC app as options.
The last point i would like to share about my support needs is that i struggle with transitions and autistic inertia, i can often be driven to stay focused on one thing, stuck when it comes to changing or starting tasks, as well as having rigid thinking, being hyper focused on my special interests and overall finding it easier when i have a routine to follow. There are two things that help me when i'm stuck; a support person to guide me into the next task or if i'm alone; music, so there is something that is the same as i change tasks.
My support needs indicate the lower points of my Spiky profile; where my skills aren’t the strongest but I accept that, I accommodate that and then praise my high points.
I am a great learner! I can pick up skills pretty easily especially when they're on the creative side but overall I love learning. I was given the highest award at my high school graduation for Literary Studies, Psychology and Physic! I can draw traditionally, digitally, I can paint and craft, I'm learning to sew and I love to sing and write. I care about people, I'm good at listening and always want to show my love for people. I can cook a pretty good meal or bake yummy sweets most of the time.
Each person has a set of skills that makes them who they are, driven by their passions, interests and what's important to them. Autistic people will struggle in some skill areas, but they are able to balance out when they have the support, assistance and accommodations they need! Autistic people can thrive no matter the support they need. We are disabled but we have strengths too.
Thank you for reading!!
-Kittie
#actually autistic#autism#blog#writing#asd#autistic things#neurodivergent#autistic adult#neurodiversity#supportneeds#supportlevels#accomodations#autismadvocate#spikyprofiles#autistic#mediumsupoortneeds#autism spectrum disorder#autistic community#autistic experiences#autistic spectrum
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How to Explain the Fluidity of Needs Based on Energy Levels
Friday, March 15, 2024
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How to Explain the Fluidity of Needs Based on Energy Levels
Neurodivergent community, I have figured out a way to explain the fluidity of our needs based on our energy levels. Although, if one thinks about it, it applies to everyone. Imagine everyone has a Stamina/Energy Bar above their heads; we’ll use the color Yellow to represent the stamina available, and Grey to represent the stamina used. And every task, every action, has a set amount, a number, assigned to it. Now imagine every time someone picks up their bag, turns their head, moves in any way, speaks, does ANYTHING, the yellow area either steadily shrinks, or drops all at once to a specific point, while the rest of the bar it is greyed out. Now imagine when someone eats, drinks, sleeps, relaxes, RESTS, the yellow area of the bar steadily increases over time, shrinking the grey area. But what happens if we use all our energy during the day? Or go into the negative? If we don’t recoup stamina/energy throughout the day and while sleeping, then our Stamina Bar, going into the next day, is mostly greyed out. If there’s any yellow at all. We could have pushed the grey area past 0, into the negative. Now, because we’re either running on empty, or borrowing from tomorrow, tasks we could easily do yesterday cannot be done today, or they’re done “half-assed”, because we don’t have the Stamina to do them “properly”. We’d need more REST to replenish our stamina. We’d either need to INCREASE the size of the yellow area of the Stamina Bar and/or DECREASE the size of the grey area to bring us above 0. If we borrow too much of tomorrow, if we extend the grey area of the Stamina Bar too far past 0, it WILL cause burn out. AND irreparable damage if done too often and/or if we’re burnt out, in the negative, past 0, for too long.
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#ActuallyNeurodivergent#ADHD#ADHDAndAutism#ADtistic#Autism#BecomEmpowered#BecomeSmarterEveryday#BEmpowering#Canva#DesignedWithCanva#EnergyLevels#FluidityOfNeeds#HowTo#LearnSomethingNewEveryday#ManaBar#MonriaTitans#MT#Neurodivergence#Neurodivergent#Neurodiversity#Neurotypicals#OaT#ReferralLink#SpoonTheory#StaminaBar#SupportNeeds#TMA
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TAEMIN : METAMORPH Behind #3 | Concert Day 1 & 2 - With Minkey💕
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it's also so fucking telling when i talk about being AAC user or nonverbal (FULL TIME) or high support needs autism or level 3 autism, it's radio silence
but when a certain group of low support needs autistic: autism spectrum condition! autism is not a disorder! autism doesn't need intervention! just accept us as we are! (All) autistic women mask! we so oppressed MOST oppressed because we mask, autism only taken seriously when it's visible autistic nonverbal white boy!!! or actually no, autism is an invisible disability! (all) autistic women are later diagnosed!
other certain group lower supportneeds late dx autistic classmates: *cant shut up in agreement*
*only talking about certain group of low support needs autistic not all LSN autistic
**masking cause devastating negative affects & diagnosis rates differ based on gender (and race but no one likes to talk abt it lmao bc people dominating this convo are white women lmao) & autism research biased yes but can people get out their fucking asses and actually have nuance and not spread misinformation
i fucking hate changing ASD autism spectrum disorder to ASC autism spectrum condition
tell me you only interact with a specific group of autistic people without telling me it
#anger tw#rant#don't come nitpick this i;m fucking angry and i am leaving outnuances bc i am ranting
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Our latest meme explores a personal experience of Autistic burnout, and why mental health and wellbeing is important. [Text reads: Autism Actually. Autistic burnout is my body's way of restarting my system. It reminds me to unmask, and put my wellbieng and support needs at the forefront. Shadia Hancock. Copyright Autism Actually, 2020.] [Image description: Humanoid mesh figure sitting on a mountain with their head in their hands]. #Autism #Neurodiversity #ActuallyAutistic #Wellbeing #MentalHealth #Burnout #AutisticBurnout #Masking #SupportNeeds #AutismActually https://www.instagram.com/p/B_3bZbmB6N1/?igshid=11qotozzdeibd
#autism#neurodiversity#actuallyautistic#wellbeing#mentalhealth#burnout#autisticburnout#masking#supportneeds#autismactually
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minho saying he has no distinct future activities and kibum and jinki saying they want to hear about anything he so much as signed a contract with even if it’s just an ad 🥹
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It empowers you by reducing distance between your school and parents/students. In-built Yearbook SOA automatically generates printable yearbook based on selected criteria and can be accessed by parents, students and staffs Notifications & Alerts Pass important information to your students, staffs, parents, selected classes, etc, with the integrated internal messaging system. Class Attendance SOA Stock module helps you keep track of stocks, supplies, sales & issuance of items in your school. It also has an integrated POS module . Teachers SOA provides teachers with tools to manage class attendance, record exam and assessment marks, generate students exam report and much more School Owners As a school owner, SOA gives you required administration tools to take total control of your school, staffs, students, financial and much more Staffs With SOA, you can create and manage many other school staffs such as Accountants, Front-Desk staff, Librarians, Managers, each with defined roles. Library Manager SOA includes an easy to use Library management system to enable you issue-out as well as keep track of books and other items in your school library. Document Manager SOA includes a role-based document management system to enable your school distribute important documents to students, parents and staffs. Hostel Manager Create hostels and allocate different hostels to various students with SOA hostel module. You can easily search and view students based on allocated hostels School Schedules & Calendar Manage school schedules, class schedules, school activities, events, calendar and much more Class Time-Tables Create daily/weekly class schedules for each class. Teachers and students can view their class schedules. School Planner Create and manage school sessions, terms and classes. Setup active sessions and terms at the start of each term. Create & Manage Fees Create and collect different fees for different sessions, terms, classes or even group of students. View various fee reports Invoice & Receipts SOA automatically generates professional looking Invoices/Receipts for each fees. Parents can also view and print their invoices. Accept Part / Full Payments SOA provides you the flexibility of collecting part-payment or full payment for any fee. Payments can be made in multiple installments. Human Resource & Payroll From creating school staffs, role assignment, employee information, to employee payroll, SOA provides HRM tools to easily manage your school’s employee. School Financial Accounting SOA empower you with the ability to manage and control your school accounts more effectively. It supports double entry accounting system and generates automatic financial statements. /Online Payments SOA offers 6 Online. payment platforms; Quickteller, PayPal, GTPay, WebPay, 2Checkout, SimplePay and Cash/Bank payments, with tools to easily create custom payment gateways, giving parents multiple payment options. Browser Based SOA can be deployed Locally or on a Web-server. It is platform independent and can be accessed from multiple devices over a network using a Web Browser, even on mobile devices. Import Data from Excel Migrating your existing school records is as easy as clicking a few buttons. SOA provides tool to easily import existing records from any Excel or CSV file. HTTP API With SOA HTTP APIs, you can easily integrate your school management system/portal with your school website, social media or other 3rd-party platforms and web-applications. Manage Photos & Videos SOA comes integrated with multimedia gallery to keep a collection of photos and videos from your school’s event. The gallery can be accessed by school staffs, students and parents Sales, Stock & Inventory SOA stock module helps you keep track of stocks, supplies, sales & issuance of items in your school such as text-books, Uniforms and other saleable items. It also has an integrated POS module Server Requirements Unix or Windows OS. Apache or IIS (Apache Highly Recommended) PHP Version 5.2 or higher (7.x not supported) Curl Support PHP Cron Jobs JSON Enabled PHP Memory Limit: 1024 MB MySQL Version 4.1 or higher MySQL Strict Mode disabled PHP Short-tags enabled Live Demo Seeing is Believing! Take SOA on a spin with our fully functional Online. demo. School Portal Demo http://demo.ynetinteractive.com/soa Login as Student Username: 84367675, Password: 12345678 Login as Parent Username: 23913573, Password: 12345678 Staff Portal Demo http://demo.ynetinteractive.com/soa/administrator Login as Admin Username: superadmin, Password: 12345678
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2024 KEYLAND ON : AND ON Concert Behind | Taeminkey 💕
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Create Donation QR Codes & Fundraising Payment Links 0% Platform Fee – Let’s Get Started!
Create donation QR codes for your charity or fundraising campaign and generate fundraising payment links to easily share across all social media platforms. Start raising funds effortlessly and reach a wider audience instantly.
Donation QR Codes & Links
Share Donation Links Across Social MediaEasily share your payment request or donation link by clicking the social media icons, and spread the word to a large audience. Whether it’s on social platforms or your own website, you can quickly place a donation button that allows donors to contribute directly.
Learn more or jump straight into:
Twitch Donations
YouTube Donations
Stripe
1. Donation Payment Request Link
Make the donation process simple and fast by sharing a payment request link. Set a predefined amount for the donor, and once they click the link, they’re immediately taken to the payment page to choose their payment method. It only takes a few clicks to complete the donation!
How It Works
Go to your fundraiser page on WhyDonate.
Click the ‘Share’ button.
Select the third option: ‘Payment Request.’
Choose the donation amount.
Pick your sharing channel. You can also copy the link or generate a QR code.
2. Donation QR Code
A QR code is a quick and easy way for donors to access your fundraiser, donation form, or payment request. Since every phone has a QR code scanner built into the camera, there’s no need to type long URLs. You can use these QR codes on screens, printed materials, and during live events, providing an effortless way for people to donate.
How It Works
Visit your fundraising page.
Click on the ‘Share’ button.
Choose what part of your page you want to share: your fundraiser page, donation form, or payment request.
A QR code is generated and ready to download.
3. Collect Donations with QR Code
With a donation QR code, you can directly link to your fundraiser, donation form, or payment request. Thanks to built-in QR scanners on most smartphones, it’s easier than ever to make donations without the hassle of typing in long web addresses. Use these QR codes in:
Door-to-door collections
Events and fundraisers
Print campaigns, including billboards and flyers
Why Choose WhyDonate?
0% Platform FeeWhyDonate charges no commission—just the payment processing fees for methods like iDEAL, PayPal, Bancontact, or Credit Card.
Customer SupportNeed help? Our support team is available seven days a week, from 9 AM – 5 PM CET, through chat, email, or scheduled phone appointments.
Global ReachAccept donations worldwide with multiple currencies, languages, and payment methods.
Comprehensive DashboardMonitor your fundraiser’s data, donors, and payouts all in one place.
Extensive NetworkAccess over 850,000+ donors and 1,000,000+ visitors per month on WhyDonate.
Instant PayoutsWithdraw donations after a 3-day waiting period, with payouts available weekly, monthly, or on-demand.
Custom BrandingPersonalize your fundraising pages, donation forms, and emails with your own branding.
Security & PrivacyWhyDonate ensures secure donations and protects your data with encrypted storage and secure payment processing.
Start Fundraising in Minutes!Create your account today and begin raising money online immediately with WhyDonate!
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Text
0% Platform Fee – Let’s Get Started!
Create Donation QR Codes & Fundraising Payment Links
Create donation QR codes for your charity or fundraising campaign and generate fundraising payment links to easily share across all social media platforms. Start raising funds effortlessly and reach a wider audience instantly.
Donation QR Codes & Links
Share Donation Links Across Social MediaEasily share your payment request or donation link by clicking the social media icons, and spread the word to a large audience. Whether it’s on social platforms or your own website, you can quickly place a donation button that allows donors to contribute directly.
Learn more or jump straight into:
Twitch Donations
YouTube Donations
Stripe
1. Donation Payment Request Link
Make the donation process simple and fast by sharing a payment request link. Set a predefined amount for the donor, and once they click the link, they’re immediately taken to the payment page to choose their payment method. It only takes a few clicks to complete the donation!
How It Works
Go to your fundraiser page on WhyDonate.
Click the ‘Share’ button.
Select the third option: ‘Payment Request.’
Choose the donation amount.
Pick your sharing channel. You can also copy the link or generate a QR code.
2. Donation QR Code
A QR code is a quick and easy way for donors to access your fundraiser, donation form, or payment request. Since every phone has a QR code scanner built into the camera, there’s no need to type long URLs. You can use these QR codes on screens, printed materials, and during live events, providing an effortless way for people to donate.
How It Works
Visit your fundraising page.
Click on the ‘Share’ button.
Choose what part of your page you want to share: your fundraiser page, donation form, or payment request.
A QR code is generated and ready to download.
3. Collect Donations with QR Code
With a donation QR code, you can directly link to your fundraiser, donation form, or payment request. Thanks to built-in QR scanners on most smartphones, it’s easier than ever to make donations without the hassle of typing in long web addresses. Use these QR codes in:
Door-to-door collections
Events and fundraisers
Print campaigns, including billboards and flyers
Why Choose WhyDonate?
0% Platform FeeWhyDonate charges no commission—just the payment processing fees for methods like iDEAL, PayPal, Bancontact, or Credit Card.
Customer SupportNeed help? Our support team is available seven days a week, from 9 AM – 5 PM CET, through chat, email, or scheduled phone appointments.
Global ReachAccept donations worldwide with multiple currencies, languages, and payment methods.
Comprehensive DashboardMonitor your fundraiser’s data, donors, and payouts all in one place.
Extensive NetworkAccess over 850,000+ donors and 1,000,000+ visitors per month on WhyDonate.
Instant PayoutsWithdraw donations after a 3-day waiting period, with payouts available weekly, monthly, or on-demand.
Custom BrandingPersonalize your fundraising pages, donation forms, and emails with your own branding.
Security & PrivacyWhyDonate ensures secure donations and protects your data with encrypted storage and secure payment processing.
Start Fundraising in Minutes!Create your account today and begin raising money online immediately with WhyDonate!
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Join Shadia Hancock and Tim Chan for a presentation and Q&A on supporting Autistic individuals in accessing hospital settings. Please note that questions for the Q&A portion will need to be submitted prior to the session. 🦄🌈♾🧠 The session will cover topics relating to: • Helpful information for Autistic individuals prior to admission • How Autistic individuals and family members can prepare for hospital visits or stays • The role family members, carers, staff, and support workers play in supporting Autistic individuals in hospitals • Challenges Autistic patients may face during hospital stays • Environmental and communication supports during hospitalisation This session will be applicable for healthcare workers, carers and family members of Autistic individuals, Autistic individuals, and anyone who wishes to learn more about supporting Autistic individuals in accessing hospital settings. If you are on an NDIS plan, need to pay at a later date, or require a Certificate of Attendance, please email us at [email protected]. The presentation will be recorded and made available to participants who cannot make it live for 3 months. View our bio for information about purchasing tickets. We hope to see you then! #Autism #ActuallyAutistic #Neurodiversity #Disability #AccessNeeds #SupportNeeds #NonSpeaking #Hospitalisation #MentalHealth #Awareness #Inclusion #AutismActually #TimChan https://www.instagram.com/p/CZEAavQvvn8/?utm_medium=tumblr
#autism#actuallyautistic#neurodiversity#disability#accessneeds#supportneeds#nonspeaking#hospitalisation#mentalhealth#awareness#inclusion#autismactually#timchan
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