#Rate Your Pain

[tenrose]

I am now in my third week of period so if I commit any crime I can't be charged with anything 🤷

[stardustedknuckles]

I feel like people do not understand when I try to explain that August is hard for me. Which is fair because I don't know why it's hard for me, I don't know in exactly what way, but everything is Wrong and Bad and I'm just holding on by my fingertips usually until about mid September.

But now I have a fitbit! And though these things should always come with a grain of salt, I had to laugh a little when I looked at my average resting heart rate since I got the fitbit in earlyish July.

Visual representation of August absolutely fucking with me. The kicker is that I started having my very small amount of weed and cbd edible on August 4, according to my daily journal thing, and wouldn't you know - that shit started lowering right back down.

[hellyeahsickaf]

I know some of the disbelief from others with my disabilities is having GiRL iLLnEsSeS. Dudes don't get those things. Fibro and ME/CFS since you were a teenager? No that's something a 40 year old woman blogs about. Probably as a front to promote essential oils. You go to the doctors? What are you gay or something? (Yes but that is irrelevant)

I feel like the assumptions from others must be so different, as if the disorders I have aren't humiliating enough. Looks like someone's a little more intoxicated than he could handle. Looks like someone in the ER is drug seeking. Wow this guy is such a wimp, it can't be that bad

Doesn't help that I use weed and opioids for the symptoms- people will pin it on that especially because the reality of my disabilities is much more uncomfortable. I've had a family member dramatically sob because "oh my God if you weren't a pothead you could have a job and be productive. What has this substance turned you into?" Idk someone in a little less pain who can stomach a meal sometimes?

[aoitakumi8148]

...𝓘𝓯 𝓘𝓽 𝓘𝓼 𝓦𝓻𝓲𝓽𝓽𝓮𝓷 𝓣𝓱𝓪𝓽 𝓦𝓮 𝓜𝓾𝓼𝓽 𝓓𝓲𝓮, 𝓦𝓮 𝓢𝓱𝓪𝓵𝓵 𝓐𝓽 𝓛𝓮𝓪𝓼𝓽 𝓓𝓲𝓮 𝓣𝓸𝓰𝓮𝓽𝓱𝓮𝓻.

[epitomees]

The ‘Let’s Make Shinjiro’s Existence Even More Painful’ agenda.

Nothing is concrete as of yet, but the ideas are there~

[healingheartdogs]

Cardio said my echocardiogram ultrasound, exercise stress test, and week long heart monitor all showed no serious issues, my resting heart rate is fine, but that my heart rate does seem to rise very rapidly under even small amounts of stress (postural changes, taking stairs, casually walking around my house) and rises very high (160+ bpm according to the monitor) so now I get to be put on beta blockers to see if they work and if they do she said that is sufficient evidence to confirm for sure that it's POTS.

Obviously could confirm it as well with a tilt table test but those are TORTURE based off what I've heard from fellow POTSies so I am very thankful that she doesn't think that's necessary and will not be making me do one.

[silverselfshippingchaos]

oh right I haven't mentioned that I have a crush on him here

[lycankeyy]

Decided I didn't want to be awake at 7 am so i dozed for two hours while imagining scenarios involving me canonizing that Boyf has an insanely high pain tolerance like the kind and loving god that I am

[loumauve]

I was so excited to eat the Haribo Tropifrutti my dad bought for me today..

[asteria-argo]

one thing I've always known is that I am not built to work full time. I don't have the mental, physical or emotional capacity for it. These two weeks of a full time schedule for training I'm only about half way through are really just affirming that.

[cliveguy]

the notes on that ibuprofen post are kind of funny bc it's british people going "well if u can buy more than a single pill at a time ur going to kill yourself and destroy your stomach lining and become slaves to consumerism" and americans going "it's the only healthcare we have (unlike your perfect and functioning nhs) and ibuprofen has 0 health detriments i take it whenever i feel anything at all and im fine :)" maybe . there is a happy medium.

[minterim]

just had my dad admit to me that even though he's fully aware of how much his alcoholism hurts me and my mum and brother he refuses to quit drinking outright because he likes it. cool

[aellathedreamer]

im still alive and kicking, just buried under a pile of university design plates

[ferulacommunis]

I get it I guess but like the worst part about having to inject immunosuppressants is how many phone calls you have to make all the time and how many words you have to listen to other humans who also don't want to be on the phone with you say

[fragglerockopinions]

man I'm so sad I WISH I could dress like a pirate and wear frilly shirts and jabots and knickers and stupid long socks and pearl necklaces but I literally haven't changed out of my autism hoodie and sweatpants since 2017 :((