#Hypermobility and diet

[werewolfbarista]

no........could it be ....? new stretch marks above my hips..............?! quick, someone praise me‼️‼️

[autistic-shaiapouf]

Not having the most comforting time learning that my symptoms match up with that of a hiatial hernia, and that my father had been diagnosed with one, AND that I'm a strong contender for hEDS/HSD which is a massive contributor to digestive issues

[justaregularmum]

Weight loss, healthy, anti inflammatory breakfast. 🍳🥞

Fat Free Greek Yoghurt: 132 calories- Helps bone and gut health.

Granola: 170 calories: High fibre which helpsmyou feel full for longer.

Walnuts: 138 calories: Anti inflammatory.

Maple Syrup: 30 calories: Anti inflammatory.

Altogether 470 calories. I love a big breakfast but if you want lower calories you can have less granola as it's really calorific!

[affableramen]

Their chronic illness and health issues (headcanons only)

madman’s note: although i've been studying psychology for 5 years and do have some exp i'm not a professional please mind everything below is headcanon wise

Wriothesley

Gastritis and possibly a stomach ulcer since the time he was a prisoner and had a poor diet

Tartaglia

Physical: Chronic body pain Mental: high chance of PTSD

Baizhu

Hypermobility (Ehler Danlos)

Neuvillette

He should have a better physique because he is a dragon hopefully, but somehow I’m getting Anaemia vibes from him

Pantalone

Physical: diabetes( type 1), asthma (he still smokes though), possibly becoming blind slowly Mental: long-lasting depressive disorder; eating disorder (formerly)

Alhaitham

Problems with hearing, slowly becoming deaf Mental: autism? chronic depression might be as well

Dottore

Physical: arthritis; eczema Mental: ADHD; antisocial personality disorder

Capitano

Chronic fatigue, has to watch energy level (the spoon system)

[ms-demeanor]

My doctor, who knows I have Hypermobility and possible EDs, suggested I got to a chiropractor and I still haven't psychologically recovered. (I did not go)

My doctor, who treated my mom for hyperlipidemia and treated my sister for her high cholesterol, is the one who prescribed a Keto diet (contraindicated for people with a family history of high cholesterol).

As much as I do hate CAM (and i do!) it has to be said that doctors aren't much helping their case in terms of what is or is not science based.

It sucks because it all sucks! The medical industry sucks! The alternative medical industry sucks! GPs don't know what the hell is up with any zebras they come across and the zebra doctors are few and far between! Insurance pays for chiropractic sometimes when they won't pay for PT and the patient gets screwed!

People shouldn't have to know all of this shit to feel safe going to the doctor! People shouldn't have to do deep dives into every single thing their doctor brings up to figure out whether it's legit (not in the least because if you act like you know too much about something there's a good chance your doctor will act like you're faking or drug seeking!)

The medical system is catastrophically broken and that's awful because it's still better than everything else, which is a huge indictment of our society.

Bad! It's all extremely bad! And I hate it and i'm sorry that your doctor did that! (Though I'm very glad that you did not go).

[saturnniidae]

Rotbtd height and body headcanons

Rapunzel, 6': I see her as fairly tall, like imo she'd need to be so her hairs not dragging on the floor as much, also in my mind she's very willowy

Cass, 5'5: Raps' short, buff butch gf that can easily pick her up and throw her over her shoulder (though it'd be a bit awkward bc no matter how strong you are, if you're shorter than the person you're carrying balance is difficult. As if that'd stop her though)

Jack, 5'7: (I think this is actually pretty close to his canon height) not a complete stick, lean muscle from manual labor when he was alive, but still not as physically strong as say, Merida

Merida, 5'2: I see her as short and stocky since she like climbs cliffs and does archery (as well as sword fighting) , so really good core and back/shoulder muscles

Hiccup, 5'4: Short trans boy and tall trans girl solidarity with Astrid. He'll always be a scrawny little nerd to me, but I won't deny he's definitely built up some lean muscle from working in the forge + training with Astrid. I also think he's weirdly flexible, (like, probably in the hypermobility way) and it freaks people out he also still has like. Weirdly gangly limbs for his height

Astrid, 5'10: She's only a bit taller than in canon, but she's heavier and very muscular due to her constant training and diet. Buffstrid is REAL and she's beautiful

[rederiswrites]

So ME/CFS (myalgic encephalomyelitis/Chronic Fatigue Syndrome) and fibromyalgia are two syndromes (collections of symptoms often found together, with unknown causative mechanisms) with largely overlapping symptoms. They're currently classified as different diagnoses, but there are plenty of people who aren't convinced that they're actually different things. The biggest diagnostic difference seems to be whether the pain or the fatigue is the biggest problem.

I'm sure there are plenty of people who, like me, couldn't possibly say which of those is ruining my life more. I, like many, fulfill all the diagnostic criteria for both. I have the specific patterns of pain and inflammation characteristic of fibro, but I also have the postural orthostatic problems (Stand Up Feel Real Bad disorder) and extreme fatigue of ME/CFS. There's no test; diagnosis is an inherently subjective thing.

This is just gonna keep being about medical problems, so have a cut.

I also have problems that may be related or may be separate or may be part of the constellation of physical issues associated with ADHD, like loose tendons that lead to terrible core strength and janky joints. So while generally the pain spots for fibromyalgia are considered to have no actual material cause, I am pretty sure that my right hip and shoulder are in fact fucked up, and fibro is just making it experientially worse. I've also got a rib that spends more than half its time in just slightly the wrong goddamn place. I have multiple friends who have hypermobility problems that make mine look like a papercut, but combining them with fibro isn't a lot of fun.

A few months back, at my bestie's prompting and with his help, I started eating keto, which is essentially just restricting carbohydrates so harshly that they represent less than 20% (or less than 10%, this seems to be bioindividual) of your diet, at which point your body begins building energy transport molecules out of fat (ketones) instead of glucose. This has a history of treating several conditions (originally, seizures, but now also diabetes and inflammatory conditions), well before it became popular for weight loss.

It was an experiment. Believe me, I have mixed feelings about the fact that it worked. At first, it worked really, really well. I went from mostly bedbound to up and working full days outside. I've started to hit diminishing returns and having to nap more often, but it's still a radical improvement. I just forget how bad it was too fast. I hate how fast we forget how far we've come.

I haven't talking about it though, because I am so conflicted about restrictive diets as a thing. This started as an experiment, and as an experiment I could sell myself on no apples no potatoes no rice no crackers no no no no etc for a few weeks. After a few weeks I could decide whether it was worth it. And now here we are and it works.

But I've gone through So Much food restriction, starting when Phantom was two and we discovered that gluten fucks us both up. Then the Boy was sensitive to so many things as a baby that I cut out the entire Top Eight allergens (let's see, can I remember? Milk, eggs, peanuts, gluten, corn, soy, uhh....others...) for a year while he was nursing. Once you've cut wheat AND eggs AND corn out there is almost no commercial product you can eat and you have to prepare everything from scratch. With a toddler and a baby. I was literally starving. I used a calorie tracker for a while and found that I was nearly a thousand calories short per day, on average. I could barely think.

It's become a huge depression trigger for me. I tell people that my last major depressive episode was triggered by not being able to eat dairy, and I'm not kidding. I'm struggling with it now, too. Most of the time I'm good, but still, despite medication, I get very low and I just want to be able to fucking eat something tasty and comforting and EASY. I just want...cheese and crackers. A whole piece of fruit. A baked potato. Rice with my stir fry. But then I eat too much fucking watermelon and I can tell the difference in my wellbeing the next day.

Food becomes a minefield. Every meal becomes a struggle. You question every bite, every symptom. At least once a day the whole thing is just too annoying and I decide to just not eat, because fuck it. I dunno if it reaches eating disorder levels, but it's certainly maladaptive. I hate that I've gotten here because what you eat actually DOES matter. it's like the question of how you talk yourself out of anxiety when the world is objectively falling apart.

But I can do the things I love. I owe all this garden progress to not having had a glass of juice or a bowl of pasta in four months. Not to mention the abrupt cessation of all my dermatitis problems, frequent "silent" heartburn, a ton of digestive problems, migraines, most headaches, and more. "Nothing is worth risking depression" but is it though?

I'm holding on to the hope that these changes will allow me to heal. That I'll be able to make long-term progress, as many people say they have, and reintroduce restricted foods gradually. That I'll be able to cement the opportunity diet gave me with regular movement and conditioning and slowly claw my way up the spiral.

But on days when I feel like shit anyway, and I can't have some fucking chips about it....yeah. It's not great.

[clarafyer]

A bit of a different post

Okay so a website absolutely wasted my time just now by telling me I had to pay for my results about my god damn leg pain so I am desperate enough to turn to Tumblr (/lh) for some sort of idea at what the fuck is going on with me

I have intermittent (on/off) pain in my upper legs and hips. It's in the muscles, bones, AND the joints of the hip (primarily the right hip joint though). This has been going on for months now, but when I mentioned it to a friend it turns out this might not be so recent as I complained about similar pain over a year ago.

I'm not an active person at all, I only really exercise when PE is part of my school schedule, but I do remember to stretch some days of the week.

I am also hypermobile, but the thing is, yk that 9 point hypermobility system? Elbows over 10 degrees, fingers back at 90 degrees, thumbs to forearms, touching the floor with your knees straight, and knees forwards 10 degrees? Of all those points, the only ones not hypermobile are my knees, (and, whatever area touching the floor means)

So hypermobility would explain it if it wasn't for that.

I don't want to disclose my age, but I am a female teen. The pain also is amplified during periods

I'm asking the disabled, mobility aid, and healthcare communities for possible causes. If you do not experience similar pain or are not otherwise qualified to answer, then please don't.

Update: I have talked with my parents, some very possible causes are poor posture, narrow diet, puberty, and as I mentioned before: little exercise

[tg-headcanons]

i love your ghoul biology/culture stuff and I had a thought...

ghouls and humans look very similar, but they have a completely different diet, with humans being omnivores and pursuit predators and ghouls being carnivores and attack predators. what are your thoughts on that?

YES YES YES YES THEY DEFINITELY GOT SOME STUFF GOING ON

Ghouls in general have two different evolutionary routes, they can either blend in at the expense of predatory advantages, or they can gain better predatory advantages at the expense of blending in. The subspecies that fit the ladder are more uncommon now that they’re all being hunted, but even the blending subspecies have some traits that don’t quite fit with humans

In more detail here, their mouths tend to show their carnivorous diet. Sharp canines, ripping carnassials, larger openings to their mouths and sometimes teeth on their tongues. Ghouls from families that spend more time around humans tend to have it less obvious to blend, but really looking in any ghouls mouth will show oddities

Ghoul’s joints also tend to have stretchy ligaments. Hypermobility is a problem in humans as it can cause a lot of damage and dislocations, but ghouls, being able to regenerate, maintain these joints because it makes it easier for them to move through small spaces and have wider ranges of motion since they have little to no risk of permanent damage because of it

Longer limbs that aid in faster movements are common. Many ghouls appear taller or lankier because of it, and it’s often referred to by humans who get an uncanny sense from someone who turns out to be a ghoul. It’s subtle, but ghoul arms and legs average to be about 8-14% longer than a humans, which isn’t very noticeable at first glance, but if someone pays close attention to one, they can see that their fingers come down lower by their thighs when resting and a lot of shirt sleeves and pants don’t entirely reach their ankles and wrists

While hard to see, ghouls have very small, almost completely absent pores. They don’t sweat to regulate temperature like humans do because their bodies need to conserve whatever resources it has and they’re not built for persistence hunting, instead relying on panting and kagune to regulate heat. This causes ghouls to be very susceptible to heat stroke, have very low stamina for physical activity when their kagune isn’t out, and have skin that seems uncannily smooth. They are meant for short bursts of intense activity with their kagune out, so when active for a long time or with their kagune concealed, they quickly need to stop and pant or move to cooler locations. It can be surprisingly easy to spot a ghoul if they’re playing a sport or jogging with humans, they’re fast and strong for about five minutes and then are nearly blacking out from overheating

Because of their issues with temperature regulation, ghouls aren’t adapted to be active during the middle of the day. They get tired before noon to attempt to sleep through the hottest part of the day. They’re also very likely to be sunburned, even ghouls with dark skin lack resistance to UV rays and the light skinned ones try to avoid being outside and uncovered when the sun is bright entirely. This is partially the source of vampire myths

The further a ghoul is from dense cities, the more obvious the inhuman traits are. When surrounded by humans they need to look human, but ghouls that spent generations in rural towns or in settlements in woods and deserts will have longer limbs, larger teeth, stranger sleep cycles, and even develop new traits that aren’t seen in any other ghouls. High RC means high rates of mutations, so put any ghouls from anywhere in the world in a new environment where they don’t need to blend in with humans and in a few generations you’ll see new traits in their population

Ghoul subspecies that originated in parts of the world that were accepting of them and allowed for them to be part of society didn’t need to blend in to survive, so they developed very clear predatory traits. These ranged from spines on tongues for scraping bone marrow to digitigrade stances and talons that allowed for better maneuvering in their environments. With the invasion of these parts of the world, these ghouls were easily spotted and hunted, but some still remain in rural areas where humans are less likely to come after them

[writingfromasgard]

What is enlers danlos syndrome? Are you okay? I hope you're okay and please take care of yourself 🥺

EDS is a hypermobility issue with a few othets depending on the type you have. Im not dying or anything. Honestly, I'm just looking forward to having some explanation for the pain I have.

I was sent to an ortho because of a flare up of joint pain and she was like HMMM you've been complaining about this for a while..[16 years] You've got some bone density issues too. We're gonna do a test and this checklist.

I have a lot of joint pain in my knees, wrists, shoulders without any incident/accident happening. My scars that go in instead of being raised. I have to keep a strict diet or gain weight. Extra mobility in my joints - able to turn my feet backwards, touch my thumb to the underside of my wrist, double jointed knees/thumbs. A heart valve issue diagnosed a year ago.

Basically the pain my gp was ignoring as "growing pains" was actually pain due to hypermobility. In fairness.. none of my family were diagnosed with it and also I hate my gp so I avoid him as much as possible.

[obfuscated-abstract]

Title: The Postural Tachycardia Syndrome (PoTS) Bladder—Urodynamic Findings

Date: March 2021 Published in: Urology Publicly available: It is now.

Citation: Faure Walker, N., Gall, R., Gall, N., Feuer, J., Harvey, H., & Taylor, C. (2021). The postural tachycardia syndrome (pots) bladder—urodynamic findings. Urology, 153, 107–112. https://doi.org/10.1016/j.urology.2021.02.028

Full text

Abbreviations:

ANS: autonomic nervous system

DO: detrusor overactivity (involuntary detrusor contractions during the filling phase)

DU: detrusor underactivity

ISC: intermittent self-catheterisation

OAB: overactive bladder

POTS: postural [orthostatic] tachycardia syndrome

UDS: urodynamic studies

Article Summary

Abstract

Introduction

POTS is a chronic condition which involves a sustained an dexcessive increase in heart rate when moving from lying to standing. Criteria for diagnosis inclue and increase in heart rate on standing of 30-40 bpm or more depending on age.

The prevalence of POTS worldwide is not known (estimated 1/500 people or higher). It mainly affects females (5:1 ratio) between the ages of 12-40. Exact causes are not well known.

When standing, blood moves from the chest to lower areas of the body causing a drop in blood pressure which the autonomic nervous system (ANS) restores through vasoconstriction and only a small increase in heart rate. The ANS dysregulation in POTS is proposed to affect peripheral artery vasoconstriction, blood volume control, or heart rate control.

POTS has a wide range of cardiovascular-related symptoms including dizziness, blackouts, palpitations, chest pain, and breathlessness and a wide range of non-cardiovascular symptoms including migraines, gastrointestinal dysfunction, poor temperature control, muscle and joint pain, and fatigue due to widespread dysregulation of the ANS.

Management of cardiovascular symptoms usually involve increasing blood volume by drinking more fluid and adding salt to the diet, using compression clothing, and improving fitness. Medications including beta-blockers, fludrocortisone, midodrine, ivabradine, and pyridostigmine are also used.

This condition also causes symptoms in many organ systems. Assisting with respiratory dysregulation and optimising sleep has shown benefit. Urinary symptoms and bladder dysregulation appear common.

Only one published study (Kaufman et al., 2017)has investigated urinary symptoms in POTS patients finding that nocturia was the most bothersome symptoms followed by frequency and urgency. It also found 13/19 patients to have 'probable' OAB with OAB defined by the International Continence Society as 'urgency, with or without urgency urinary incontinence, usually with increased daytime frequency and nocturia'

Materials and Methods

Explains the method used for selection of patients, and collection and interpretation of data

Results

The population is characterised in this section (sex, hypermobility, age) and numerical data is provided in tables 1 through 4.

Discussion

The patients' sexes and mean age were similar to Kaufman, et al.'s study. Despite the prevalence of OAB in that study, only 14% in this study showed detrusor overactivity (DO) on their urodynamic studies (UDS). This study hypothesises that urinary urgency in some POTS patients results as their bladders fill to their maximum capacity without warning. Importantly, none of the patients demonstrated a 'dangerous bladded' that would put the upper tracts at risk.

Patients with POTS did show significant voiding abnormalities. Completed pressure-flow studies suggested a high prevalence of likely functional bladder outlet obstruction (BOO) and detrusor underactivity (DU)

DU is defined by the ICS as 'a contraction of reduced strength and/or duration resulting in prolonged bladder emptying and/or failure to achieve complete bladder emptying within a normal time span' and does not have a formal definition in females nor is the prevalence in younger and asymptomatic women known. This makes it difficult to ascertain whether the prevalence of BOO and DU is a specific feature of POTS.

The UDS findings display both storage and voiding abnormalities signifying autonomic dysfunction and possibly intrinsic muscle dysfunction. Given the similar findings of studies forcused on diabetes, similar autonomic neuropathy may be the cause of symptoms in POTS.

Patients are offered education and generally managed conservatively

High fluid and salt intake recommended to treat postural symptoms may aggravate OAB symptoms. It is also noted that the use of anticholinergic and beta 3 agonists likely to be of limited efficacy and may worse tachycardia

The study is limited by retrospective nature, small numbers (especially of male patients), lack of comparative group, and that not all patients underwent video UDS or urethral pressure profiling.

Conclusion

'The UDS of patients with “PoTS bladder” demonstrate a poorly sensate but stable and safe bladder with functional obstruction and impaired bladder contractility that may necessitate straining or ISC. Patient education and conservative management are currently the mainstay of treatment.'

[audhdnight]

I know that hypermobility disorders are degenerative and get worse over time but do you guys know if there’s things that like speed up or slow down the process? Because in the last three (maybe even two) years everything has gotten so much worse so quickly. Idk if it has something to do with being pregnant and how hard that was on me, or maybe I’m not getting enough protein or vitamins in my diet? Everything hurts so much more and everything causes me pain. I can’t even massage my own aching legs because it makes my fingers cramp and lock up. Literally just this week my left knee went to shit, I can barely stand because it overextends backwards and locks and is constantly giving out on me. Do I just need to get a knee brace and wear it all the time? Is it time to get some kind of mobility aid?

[consolecadet]

Half the people in my EDS FB groups are convinced that to get diagnosed they have to get on a waitlist to pay $1K out of pocket to see this father-son pair of geneticists in Boston I’ve variously heard described as racist, dismissive of fat people and women, having a cold and unpleasant bedside manner, and refusing to diagnose you unless they or you can confirm that one of your birth parents has EDS (yes even if you’re estranged or don’t know your bio family!)

Meanwhile, I waited a fleeting two weeks to see a lady at UMass Memorial who took my insurance, warmly and patiently answered my millions of anxious questions, did not seem phased that the Beighton score doesn’t match up to the joints I have the most hypermobility in, and was like “most current research shows that genetics and environmental factors affect your weight a lot more than individual choices, I’m not gonna harangue you about your diet as long as you eat enough vitamin C”. I feel very lucky and also like I need to convince a bunch of random sick, double-jointed strangers to visit Worcester’s big hospital.

[autistic-shaiapouf]

Realizing I also inadvertently gave pouf my hEDS via headcanon bc:

- I think he's cold-blooded and can't regulate body temperature as a result -> I can't do that myself bc of my POTS (which I have due to my hEDS)

- I think he also supplements salt into his diet bc butterflies, especially swallowtails like himself, exhibit a behavior called "puddling" where they collect and sip up salt, typically from puddles of mud -> salt supplements are one of the most common treatments for POTS

- I think he also struggles with solid food bc butterflies and adult ants actually subsist entirely on liquids -> digestive issues are common with EDS and a liquid diet can help offset some symptoms

- I'm not even headcanoning his hypermobility, his body just looks like that:

[treely-ruly]

I do not have a diagnosis of POTS but man... Having extra salt in my diet is making my life so much better. Like I still get dizzy when I exercise but it's not every time I stand up anymore!! And I have less general fatigue and malaise and despair. And I don't need to pee 10000 times per day, and can sleep ALL night???

I was chatting to my friend who has an actual POTS diagnosis and she said that since her diagnosis she'd been drinking a lot of water but she hadn't tried increasing her salt yet and I was like... Nooooo.... that might be making things worse in the long run!! Cause your cells have water + electrolytes in them, and drinking more water + electrolytes means your cells are happy and juicy, but if you just have water then osmosis happens (your cells try to make the ratio of water to electrolytes the same inside the cell and outside the cell, so the electrolytes leech out into the water) and you pee out all the electrolytes... And you need those!! And I don't understand how her doctor managed to fuck up explaining that so badly

I want to make a nice little infographic... I have so much info about hypermobility and POTS stored in my head right now and I feel compelled to share it but no one wants you talking about medical stuff (yours or theirs) unprompted lol

[mimzy-writing-online]

I’d really like to work the height and weight of my cast out, because the story I’m writing is about quite a physically diverse little group, and it would be really fun and cool to work out the little differences in the ways they all interact with the world (for instance, in a kitchen how many of them can’t reach the top shelf, how many shelves is the shortest off by, does the tallest have to worry about the doorframe?) Plus every character sheet has height and weight to fill in for some reason, and it would be really satisfying to complete a full one for once.

People keep talking about BMI charts, but I’m either too stupid to be able to use it properly, or it’s only helpful if a character has an average build. Some of my characters have a lot of muscle, some of them are fat, some have a fair amount of both and others have neither. One of the cast’s a teenaged late bloomer, and another stopped growing when she was 15 due to malnourishment but’s a healthy weight now as an adult. I’m not sure how helpful this information is to you, but I thought it might help you to understand where I need advice.

Anyway, do you have any tips or advice or tips for working out my characters height and weight?

I like that you're looking to make diverse body types!

So some reasons people might want to know the height and weight of their characters-

to accurately describe physical interactions like hugs between different heights.

for comedic purposes like you described

romantic shipping purposes, depending on if you prefer the big height difference trope or the no-height difference trope (the latter for me personally).

to determine if an action is physically possible for a character. Can they jump this far or climb that fast or throw someone off balance if they rammed into them like a football player.

For height, I like to think about my friend's heights relative to me and each other. I also think back to any short jokes or tall jokes I remember being made that landed well.

You can also look up average heights for different races and different countries and let that guide you. No group is a monolith so lots of people fall outside of 'average' but it does help to consider.

I wouldn't worry about exact weights if I were you. The weight number is so subjective to height and muscle to fat ratio. I'm also personally of the belief that BMI is useless, and 'obese' is a term made up by the diet industry to perpetually generate profit.

Also just because a character is fat, doesn't mean they can't be incredible athletes. There are fat ballerinas, gymnasts, and weight lifters who are incredible at the their sport.

(also for anyone made uncomfortable by my word choice- fat isn't an insult if you view fatness as a positive and/or neutral thing. It's something that just is and weight makes no impact on someone's worth.)

I love body diversity. Beyond height, weight, and athletic ability, may I suggest considering characters with

mobility aids

general joint pain or pain specific to an old injury

hypermobility

scarring

patches of different colored skin.

Did you know Vitiligo isn't the only condition that causes skin to change its pigment? Addison's Disease is a serious chronic illness with a trademark symptom of skin pigmentation increasing in hot spots like the face and joints the same way Vitiligo does. Skin grafts also look red and inflamed during the healing process

I hope this helps