#Daily Living Aid

[hygieiahomehealthandhospice]

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[remindertoclick]

Reminder to Click for Palestine today! 🇵🇸

[chronicallycouchbound]

I feel like people often don’t talk about the experiences of disabled people who have caretakers because so much of the conversation is about us—not including us.

I receive in home care for 30 hours a week (+ 4 hours/week for respite). This is paid for by Medicaid (state insurance). Outside of paid hours, my primary caretakers care for me unpaid and assist me most of the time. I’m very rarely left alone due to my high support needs. Often, when I am left alone, I am completely bedridden or at minimum housebound. I have frequent emergency life threatening health problems, falls, and serious injuries even with support in place, and these things significantly increase when I’m on my own.

I’m extremely lucky that my paid caretakers are my partner, my sister (the only family member I have regular contact with, I’m estranged from the rest of my immediate family and most of my extended family) and my best friend.

I used to have agency staffing which was horrible for me and borderline traumatic. At several points, before doing the self directed care option (which allows me to choose my own staff, hire and train them myself and dictate hours for them), I opted to not have any staffing. I was regularly in the emergency room. I can’t drive, so I was having to walk and if I was lucky enough to be able to take the bus on occasion or get a ride from a Facebook acquaintance, they were few and far in between. I don’t have family support, and even my sister who is supportive wasn’t living in the state at the time and doesn’t have a car most of the time.

And before I could even choose which staffing option, even though medically it had been deemed essential for me to have in home care, even though my insurance covered it, I had to wait several years (I was 18 when I was approved) until I was 21 to qualify to start. The reason why: I was legally an “adult disabled child” because of my high support needs (which is funny because I STILL don’t have SSI at age 24) and thus legally unable to consent to my own care plan. I needed a blood relative to consent, and that same blood relative (who had to have proof of such!) couldn’t care for me. At the time, my sister was the only person who could’ve been my caregiver and also she is the only verifiable blood relative I have contact with for safety reasons, and my only relative on this side of the USA.

The first business day after my 21st birthday I immediately got things set up to get in home care.

This is out of date, I get assistance with more than just these highlighted ADL (activities of daily living) tasks now.

In short: my day-to-day life is entirely dependent on others.

And there’s power imbalances that exist between me and my caregivers, even with my current caregivers being amazing and anti-ableist. They will always exist. We talk about the power dynamics of me being dependent on them for my survival, and how heavy that weight can be for each of us.

Having caregivers often means that accessibility is extra difficult— I’ve been told straight up multiple times that I can’t have assistance from my caregivers to help me change in a changing room when we’re out shopping. That they can’t go into the bathroom with me, that they can’t help me get un/dressed during appointments, that they can’t come into spaces with me.

I’ve been denied access to psychiatric care because I can’t do my daily living tasks (ADLs- the highlighted items) independently. And when I’m in a hospital or emergency room, I can’t have my in home workers be paid to care for me, there’s an expectation that the nursing staff at the hospital will do it. Even though my caregivers were specifically trained to learn my body and needs for weeks and have been working with me for years. I have severe cPTSD and showering in front of a stranger is something I cannot do. I would rather fall or faint or get injured or just not shower than deal with that. But I’m expected to just let anyone have access to my body just because I’m physically disabled and need support.

When I faint/fall/get injured/have life threatening health issues arise while I’m not clothed, or when I’m otherwise vulnerable, I’m supposed to let strangers just touch me however they want to. I have to show them my chest (for my cardiac care) and let them poke and examine me. I can’t object without losing access to vital care.

I have agency. I have rights. I have autonomy. I deserve to be able to exercise these things.

[kirby-the-gorb]

[rabbithaver]

every so often i will see a post from a leftist on this website that is so egregiously ableist that i remember that like. oh yeah the userbase of leftists on this website is violently anti-disabled people and will jump at any chance to demonize any of us for any reason. i just forget that fact because i'm extremely dedicated to curating my space

i'm paraphrasing here but i saw a post that said, "every time i see an American [disabled person] mention being scared about the election because they're afraid of losing their benefits i have to laugh. anybody who wants blood-soaked money from the US government deserves to starve" which. like. goodness that's a lot to unpack. i think we should burn the whole suitcase instead !

[gxlden-angels]

Do not stop talking about Palestine. Do not forget about Palestine. This is not a battle of religion and I do not think it should be treated as such. From the river to the sea, they will be free 🇵🇸

Disclaimer: I am not an expert. I am just some guy in the US. I am not a direct source of information. Please listen to Palestinians. Please help them directly. Please help with protests if your country is supplying Israel with weapons like the US.

[gregmarriage]

the thing about being chronically ill, is that i currently have a cold, and i’m in bed, playing smash, but it’s not really that different from any other day

[medpoints-blog]

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[themagichour]

Either the Daily Mail wrote under Bob Geldof’s name (Occam’s razor) or Bob Geldof wrote his own Bob Geldof/David Bowie fanfiction

[curekahealthcarestore]

Flamingo Classic Powered Wheelchair Basic Universal OC2281 

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[schoolhater]

answering a couple questions i got on this post since i realized ppl genuinely wanna know:

tl;dr:

israel lets very, very little aid get into gaza. even the UN can't get in as much as they want to. funding individual families, gazan led initiatives, and mutual aid collectives operating out of gaza ensures gazans can provide for themselves and pay for the extremely expensive aid that is available.

with all the civil infrastructure destroyed by israel, the situation on the ground has devolved into unrestricted capitalism, driving up the price of aid (that should be free!). this makes it more urgent for people to have funding for daily survival.

the post linked above has examples of how donating to individual families can help a lot. if you want to help more than one family at a time, there are many gazan-led initiatives focusing on rebuilding their infrastructure and distributing aid fairly that are worth donating to instead of large charities that already get the majority of donations.

as i mentioned in the last post: @/careforgaza on twitter is a nonprofit started by gazans, it's been endorsed by multiple palestinian journalists.

the sameer project is a collective organized by diaspora palestinians offering emergency shelter to gazans.

ele elna elak is a project aiming to bring water, food, shelter, etc. to gazans and has been promoted by bisan owda.

and the municipality of gaza itself is fundraising to rebuild water infrastructure.

all of these organizations are active inside gaza right now and are being run by gazans. if anyone knows of other gazan-led mutual aid projects, nonprofits or charities feel free to link them in the notes! hope this helped!

long answers under the cut!

if you wanna donate to a charity that's absolutely fine, but the thing is most charities (and even the UN!) are unable to make it into gaza in the first place, leaving aid rotting at the egyptian side of the border or subject to israeli settler attacks

not to mention, charities and nonprofits also maintain a paternalistic colonial relationship with the indigenous people they are trying to help, determining what aid they need for them instead of returning power to them and letting them make their own choices

i'm not here to say that one option is better than the other, just that they achieve different things and are equally legitimate. there's an attitude among people who question the legitimacy of these gofundme campaigns that somehow the people promoting them are telling them not to donate to charities. nobody is stopping you from donating to charities. we are just asking that you do not dehumanize the very real gazans in your inbox just because their method of asking for aid is more direct and risky.

unfortunately that's exactly what has happened. because israel destroyed all of gaza's more formalized infrastructure, it seems that organized crime and rampant inflation has taken its place. aid is supposed to be free, but in order to save for evacuation or the cost of living, people have started selling them at an inflated price. and aid that is truly free attracts intense, large crowds that are dangerous to navigate.

this was posted on abc a few days ago

it's pure, unrestrained capitalism. i've had multiple palestinians describe this situation to me confidence. that's why everything's so expensive now. why people have to rent out tiny plots of land for their tents to sit on, why my friend @siraj2024 still has to buy tarps to cover the broken windows of the overpriced bombed out apartment he rented, and why a bag of flour can cost a thousand bucks in the north.

even before israel closed and then bombed the rafah crossing, the egyptian hala travel agency was only allowing people to cross the border if they paid a hefty $5000 USD per adult / $2500 USD per child bribe. it denies doing this, but the hundreds of stories from palestinians say otherwise.

with regard to the economy, here in america we saw something similar happen in the wake of hurricane helene and milton. the podcaster margaret killjoy describes how she saw dual economies rise after asheville was fully cut off from the rest of the country - some people offered each other supplies for free in a sort of mutual aid honor system, and some people required payment when they lent supplies because they themselves needed to buy stuff for their families. these dual economies exist in gaza too. and this means they all still need money to survive.

[ghada-family]

@anneemay @sayruq @vampiricvenus @redbuddi @punkitt-is-here @tamamita @heritageposts @nabulsi @neechees

Please share the post, friends. ❤️🙏

Save Ghada's Family.

[greenflowerceo]

Here's how you can help Palestine!!

Educate yourself and spread awareness with the help of these sites:

Al Jazeera - This is a news site that gives constant updates and information on Palestine.

Decolonize Palestine - This is a website that informs you about the history of Palestine, debunk myths, and gives out a lot of resources to look into.

Visualizing Palestine - This site creates infographics that can help people visualize the statistics from data collected about Palestine. They are free to download and share around.

US Campaign for Palestinian Rights - This website includes numerous campaigns and resources you can look into and support.

The Palestinian Museum Digital Archive - This site features a collection of many things from Palestine that archives documents, letters, and other items that show the lives and experiences of Palestinians.

Ways you can donate to/support families in Palestine:

Arab.org - Just do your daily clicks and you get to donate for free. Please take the time to donate to all of the causes.

Gaza Funds - Every time you refresh the site, it leads you to a different GoFundMe page for the people who need help.

Care for Gaza - This is an organization that sends aid out to Palestine, you can find more in their Twitter/X account. They also have a PayPal.

eSims for Gaza - You can send an eSim to people in Palestine to help them connect and reach out.

Emergency Relief for Gaza - This is a campaign that gives food, medical supplies, and other humanitarian aid to families from donations.

Medical Aid for Palestinians (MAP) - They also give medical aid to the people in Palestine and you can also support by donating to them as well.

Palestine Children's Relief Fund (PCRF) - Donate here to give funds and support to the children in Palestine as they specialize in pediatric care.

Google Docs/Spreadsheets:

Make sure to look at the other tabs within the spreadsheets as they lead to more options/resources!

Help Gaza - This is a spreadsheet with a list of fundraisers for different families/causes that need support! Look through and donate when you can!

Operation Olive Branch - This is a spreadsheet with many links and ways to help in the project! There are campaigns, fundraisers, volunteer work for other parts of the causes and such! Make sure to check it out!

★RESOURCE LINKS AND INFO★ - A google document made from Twitter/X user: para_docx. This includes links, resources, and information for the other ongoing genocides as well.

Some of these documents intersect and have similar resources and links, but I'm adding them just to make sure as they may also have some that aren't listed in this post either.

Free Palestine.

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