#Crohn's Symptoms
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My mom: Yeah I think I have an intestinal infection I'm having [concerning symptoms]
me: Yeah those are my Crohn's flare symptoms you should go to a doctor
#its just funny to me that what are super concerning symptoms for my mom#are just 'ugh i should call my doctor to get prednisone' symptoms for me#crohn's disease#crohns disease#crohn's#crohns#agentxpoe
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One thing I hate is when people are supportive when you say that your doctor refuses to conduct further tests and claims it's psychosomatic until you say that you DO happen to have a diagnosis or two. Then suddenly your doctor is right for not sending you anywhere and actually it's because you be on that anxiety medication. I'll kill you.
#had someone sympathise with me until they found out i have an eating disorder. and at that point their talking point became#that it's all caused by that and that if i just stopped it would get better#notable facts: I'm more or less not restricting since June. my symptoms got way worse in August.#My symptoms started some 2 years ago. i didn't actively have an ed 2 years ago (basically i was in remission. then i relapsed but at the#time of the symptoms i was not restricting at all)#There is no known causality between EDs and IBS or Crohn's or anything of that severity#Even if there WAS; it wouldn't just go away afterwards. as you can see. because I don't restrict and I have the problems.#The pain actually makes me more prone to relapsing; not the other way around
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The problem with Crohn's is that it makes me into a huge flake but I can't actually explain to people Why I am being flaky because !!! It's TMI!!!!!!!!
#beeep#i just go with a vague symptoms but then people think i mean like contagion or dying#no i just have incredibly inconvenient shits that take hours and also are definitely somewhat stress induced#and theyre like painful too or whatever but#yeah#anyway all of a sudden the food i was eating Stopped Being Okay and now im scrambling to find anything that will let me attend my classes in#peace and i CANT and i need to die about it i think#i dont know what the issue IS i dont even know if it IS the crohns#and im dizzy and keep tipping over and i think thats ye olden malnutrition rearing its head but i am unsure of that tbh#maybe if i was actually dying id be less ashamed. like. at least then people would get it#the shame of repeatedly emailing teachers about absences repeatedly. yayyyy#meanwhile im still NAUSEOUS i wanna . have a coma. idk
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ooouhjghghg <- person who has definitely not eaten an entire batch of slowcooker cinnamon apples today
#food#it's officially getting into winter temps here so I made some and THEY'RE SO GOOD#and unfortunately I am but human and susceptible to temptations of the flesh 😔#on the bright side crohn's symptoms are doing better!!! I'm just making bad life decisions now#which is the good and proper way to have a stomachache
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Them: stop drinking so much Gatorade! You need W A T E R! Just water!
Me: *drinks mostly water for the last week*
Me: *constantly dizzy, nearly faints twice, blood hypotensive as fuck*
Them: ...
Me: well this fucking sucks
Them: ...it's all in your h–
Me: SHUT THE FUCK UP AND PASS ME THE ELECTROLYTES
#oh gee it's almost like people who have been chronically ill for 26 years know our bodies more than unqualified health freaks#gatorade#Pedialyte#just chronic illness things#vasovagal syncope#pots#maybe. I'm beginning to think my vvs is misdiagnosed pots. i know the symptoms are similar#including needing copious amounts of salt to not bust our heads open on the floor as we faint#Crohn's disease#need i go on??
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had an appointment with a different gastroenterologist today and she was very nice n seemed thorough. she was a nurse practicitoner and in my experience they are usually nicer. also gonna talk to my primary doctor about getting tested for autoimmune disorders cuz iv had a ton of health issues this entire year and everything is coming up normal and negative but i'm nauseas and dizzy all the time so :/ (plus i have every mental illness / neurodivergence under the sun and i have been in severe emotional distress for 29 years :)))))))) )
#metal speaks#my partner thinks i might have crohns but so far the tests are normal but my symptoms are sooooo inconsistent and iv read#that crohns can have inconsistent symptoms#im so frustrated and i want to stop being sick :(((((
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writing fever dreams is so fun because i have been sick for like. the past 3 months. i get to project my weird dreams onto characters and theres nothing they can do to prevent it
#ignore that said character is gortash 😬#look. im going to project symptoms of my chronic illness onto him#woe. joint pain be upon ye#rue gets my weird gender thoughts. gort gets everything else wrong with me#perfectly balanced#delete later t!!#(my illness isnt actually projected onto him. a really funny headcanon tho)#(hc gort to have crohns. he invents working toilets in the city. charges everyone to use them too)
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Ah yes, today the suffering begins.
#Having crohn's disease be like: whimper whimper grrrrrrr#the ghost breakdancing beside you#I may not sleep tonight but at least they'll take me out back tomorrow and put me out of my misery /j#minor operation it'll be fine. I have to do it every couple of years to make sure my body isn't attacking itself still#which it's been attacking itself in other ways#so I need to change my meds and that's why I'm going through this ordeal#make sure the INSIDES look alright so I can change medicine and hopefully make it so that my body stops attacking my skin#because that's also so painful#anyway if you take humira and you're developing psoriasis-like symptoms#check with your dermatologist because that's what I'm going through#it's on my eyelids and in my ears like it's not good!#talk with your doctor about switching meds#that's what I'm doing personally <3
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i haven't weighed myself in literal years but my mom got an electric weight thingie bc she needs to document it daily for health reasons so i thought i may as well check too bc doctors keep asking me and i never know what to say
anyway apparently i lost like 15 kg/33 lbs. what. how
#i wish i knew how i did that so i could keep going and reach a low enough weight to safely get top surgery 🥲#i mean. it might just be my stomach issues 😭😭😭 if it is indeed crohn's then i think that's one of the symptoms so.#anyway this is a weight i haven't been in since like 2018?? that's insane to me#weight //#medical //#kinda??? mentioned.#ask to tag
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I’ve been having severe gastrointestinal issues for over a year now, but my first calprotectin test came back negative. I was diagnosed with ibs but supposed to take another test soon
Anyway I just started a new biologic for my arthritis last month (one that’s specifically prescribed for crohns) and suddenly all of my gi symptoms are completely gone
#arthritis#disability stuff#actually disabled#crohns disease#I mean I guess yay I feel better????#seriously like a switch flipped though#five days after the third dose boom I’m fine after having consistant symptoms for a year and a half#I need to know if this has happened to anyone else though bc I definitely know people with two autoimmune diseases#but no one who learned they had an autoimmune disease because the meds for the other one started working for the unknown condition
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Me, suffering from sulfur burps because of a Crohn’s flare-up: i’m in my dragon era
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BREAKING NEWS WE HAVE REASON TO SUSPECT A MEDICATION IS ACTUALLY HELPING BYTEOFSOUP'S IBS. My life was a nightmare for a bit but then i got prescribed something and i noticed significant improvement??? I'm not cured or anything but it's only been two days
The one thing is that i don't have the usual marker for the disease this medication is treating... it very well could be just the upswing of a particularly bad week.
#also#if this is actually helping it#That's not good news for the functioning of my pancreas.#And people don't lose functioning of their pancreas just from a common cold or whatever#i don't have celiac or diabetes at least#could be crohn's but that's unlikely cuz I'd have other symptoms
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Fuck my period for coming on the first day it fucking rains in 3 months I'm in AGONY
#the devil speaks#crohns shit (haha)#bro im literally dying of cramps on TOP of a arthritis ON TOP OF EVEN WORSE GI SYMPTOMS#WHAT GOD DID I PISS OFF#LEAVE ME ALONE
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every so often i accidentally hit 'finish journal' or whatever on mfp and it goes 'YOU HAVE AN ED' no motherfucker it's 12pm
#i have been logging because otherwise i forget what i eat and it's very helpful...and also i'm working on eating better/losing weight/#exercising more and it helps me be more mindful....#but also bc i have never tracked my food wrt crohns symptoms before so i am. trying it. whatever#xyz.
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tumblr is just gonna become my thought dump now that i can't use quotev to update everyone abt my interests and how i'm doing: and can i just say, i'm not doing well. i'm gonna throw a FIT actually. my doctor's appointment went pretty poorly, and i'm not really on the road to recovery at all, i'm still at the beginning basically.
crohns fucking sucks and i'm angry about it. it actively effects my daily life and i'm just sick and tired constantly. i want to feel better for once. i swear to fucking god, crohns is making my MDD worse. and to top it off, on these antibiotics i'm taking for my current crohns related inflammation problem, i can't take my antidepressants. so like, i can't even begin to manage my depression alongside managing my physical symptoms. and of course, the steroids they have me on to manage the physical symptoms? yeah that causes insomnia. which also worsens the depression. because i sit up all night thinking about any and everything when i should be sleeping. which in turn worsens my already existing daily fatigue that just comes with the territory of being disabled.
it is pure misery right now boys and there is no sun on the horizon. my doctor basically said there's nothing she can do to help me at the current moment because my insurance won't cover the tests i need, and i can't afford that shit out of pocket either, so it's just a waiting game. waiting until i get so bad i have to go back to the ER and they HAVE to take care of me out of necessity OR waiting for this new insurance to accept me and help me cover the tests. whichever comes first. sigh.
#im being a downer i know#happy ram will be back i promise#just let me be in my feels for a while ok?#i am just distraught#it feels like everytime something improves for me#it immediately takes five steps back#i moved and am happy!#oop suddenly crohns decides to murk me and put me in the hospital for a week :(#its so fucking stupid#i cant win man#“youre in remission!”#what a joke#my doctor kept praising me for being in remission#even though i told him multiple times it didnt feel like i was#bc i was still experiencing symptoms#especially fatigue and bowel symptoms#not to mention the severe joint pain#and yet he kept saying “no no youre getting better!” just bc there was no visible inflammation#make it make sense#i mean theres visible inflammation NOW#thats why i was in the hospital obviously#but they shouldve known my current meds werent fixing it#its just fucking lame idk#and this low fiber diet they have me following is fucking lame too#i know I KNOW i know i need it#im following it to a fucking T#but that doesnt make it easy or simple#i basically cant eat anything healthy or good for me#UGHHHH
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do you ever start to vent something and then just delete the post? think we should all do that more often
#started to vent about my crohns and how people with ibs try to do omg samesies when it is not the same at all kindly stfu#oops rant still coming out but still when you have my symptoms and are stuck in the hospital with no discharge date in sight then we’ll talk#ugh I know people are trying to empathize but its very minimizing#you have a stomach ache and diarrhea I have intestinal bleeding and cannot keep solid foods down#among a myriad of other symptoms#need to sleep now I’m starting to get cranky lol#elizabeth rambles
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