#Complete Study material

[lilacerull0]

the initial appeal of lila to me was how in her childhood days, she was the brightest student, but managed to do it in the most unconventional way possible, a way that so closely mirrored my academic experience and that i was never able to find a description of until now. the prototype of the good at school kid is always somehow related to wanting to prove one's self to someone or living up to the expectations, be it your own or somebody else's, there is a level of obedience involved and a desire to be liked (sometimes hidden, sometimes quite outwardly) and it almost always ends in gifted kid burnout and being surrounded by this sort of portrayal has always felt kind of isolating to me who did and continues to get top marks, but fails to bow their head. as a child, lila is the best student in her school, but not because she has to be. it is simply the consequence of who she is, but her particular brand of intelligent fails to meet the parameters of how students are supposed to behave. and okay yeah, this is portrayed in fiction, but that kind of student usually doesn't get top marks in spite of being the smartest person in the room. lila does. because she is able to translate the awfully restricted, written according to some unwritten step by step guidebook, material (that is supposed to offer information, but unable free thinking or thinking at all) and give it her own spin that results in teachers being obligated to grade her accordingly because she understands what's being taught, but also resent her because her understanding of it is too out there to be acceptable. she takes the material out of context (the context being school) and tries to understand it for what it is simply because it interests her. it's the sentences that have been following me for as long as i can remember "you're incredible bright, but you wander off" or "your knowledge lacks structure" or "you're incredibly bright, but your way of thinking is incompatible with the world's mechanisms". (something that has been said about me in kindergarten because that's an okay thing to do to a child apparently) and i have mentioned this in relation to lila before, but i think she is able to keep this attitude alive because it isn't an attitude at all, it's a way of being. she isn't a rebel by choice, she's a rebel almost biologically. (which is an advantage, but the world isn't too into people who think, no restrictions attached) it's almost like her main trait is having too much individuality which was always how i felt about myself and what causes people to characterize you as unfeeling. i love her forever <3

[vitalvitriol]

people have got to start drawing mona weirder. or at least less "conventionally attractive white woman"-like. please

[calling-cthulhu]

George Martin himself descending from on high to deliver his verdict on Condal made for some stiff competition, I won't lie, but alas, this last episode managed to push the competition just a smidge ahead.

[theflyingfeeling]

still sick but alive, unfortunately 🤧

[idkhowtopickausername]

I really am going to fail my classes it looks like 😔

[lohstandfound]

Okay, so. My upcoming museum studies assignment is to create a mock exhibition proposal, right?

(I am still to decide on a theme and I only have a few days to settle on something. The urge to post a poll on here is strong but probably not smart)

Anyway

Very much considering writing what would essentially be a fanfic version of my assignment for the deities au

Jake's formal exhibition proposal with annotations/comments from both him and Brooke

[moe-broey]

NUTCRACKER WIPS..............,......

[opens-up-4-nobody]

...

[goldensunset]

cheers to this guest lecturer for nearly giving me a heart attack making me think there was a paper due tomorrow that i hadn’t even heard about so i couldn’t focus the rest of the lecture and like rushed home and opened the site to find there was nothing at all

[hussyknee]

17/12/23 this masterlist has been completely revamped with free access to all material. It will be updated and edited periodically so please click on my username and reblog the current version directly from me if you're able.

14/8/24 reboosting this post with How to Help Palestine updated. Please scroll to the bottom to donate or boost the links.

The Big Damn List Of Stuff They Said You Didn't Know

(Yes, it's a lot. Just choose your preferred medium and then pick one.)

Podcasts

Backgrounders and Quick Facts

Interactive Maps

Teach-Out Resources

Reading Material (free)

Films and Documentaries (free)

Non-Governmental Organizations

Social Media

How You Can Help <- URGENT!!!

Podcasts

Cocktails & Capitalism: The Story of Palestine Part 1, Part 3

It Could Happen Here: The Cheapest Land is Bought with Blood, Part 2, The Balfour Declaration

Citations Needed: Media narratives and consent manufacturing around Israel-Palestine and the Gaza Siege

The Deprogram: Free Palestine, ft. decolonizatepalestine.com.

Backgrounders and Quick Facts

The Palestine Academy: Palestine 101

Institute for Middle East Understanding: Explainers and Quick Facts

Interactive Maps

Visualizing Palestine

Teach-Out Resources

1) Cambridge UCU and Pal Society

Palestine 101

Intro to Palestine Film + Art + Literature

Resources for Organising and Facilitating)

2) The Jadaliya YouTube Channel of the Arab Studies Institute

Gaza in Context Teach-in series

War on Palestine podcast

Updates and Discussions of news with co-editors Noura Erakat and Mouin Rabbani.

3) The Palestine Directory

History (virtual tours, digital archives, The Palestine Oral History Project, Documenting Palestine, Queering Palestine)

Cultural History (Palestine Open Maps, Overdue Books Zine, Palestine Poster Project)

Contemporary Voices in the Arts

Get Involved: NGOs and campaigns to help and support.

3) PalQuest Interactive Encyclopedia of the Palestine Question.

4) The Palestine Remix by Al Jazeera

Books and Articles

Free reading material

My Gdrive of Palestine/Decolonization Literature (nearly all the books recommended below + books from other recommended lists)

Five free eBooks by Verso

Three Free eBooks on Palestine by Haymarket

LGBT Activist Scott Long's Google Drive of Palestine Freedom Struggle Resources

Recommended Reading List

Academic Books

Edward Said (1979) The Question of Palestine, Random House

Ilan Pappé (2002)(ed) The Israel/Palestine Question, Routledge

Ilan Pappé (2006) The Ethnic Cleansing of Palestine, OneWorld Publications

Ilan Pappé (2011) The Forgotten Palestinians: A History of the Palestinians in Israel, Yale University Press

Ilan Pappé (2015) The Idea of Israel: A History of Power and Knowledge, Verso Books

Ilan Pappé (2017) The Biggest Prison On Earth: A History Of The Occupied Territories, OneWorld Publications

Ilan Pappé (2022) A History of Modern Palestine, Cambridge University Press

Rosemary Sayigh (2007) The Palestinians: From Peasants to Revolutionaries, Bloomsbury

Andrew Ross (2019) Stone Men: the Palestinians who Built Israel, Verso Books

Rashid Khalidi (2020) The Hundred Years’ War on Palestine: A History of Settler Colonialism and Resistance 1917–2017

Ariella Azoulay (2011) From Palestine to Israel: A Photographic Record of Destruction and State Formation, 1947-1950, Pluto Press

Ariella Azoulay and Adi Ophir (2012) The One-State Condition: Occupation and Democracy in Israel/Palestine, Stanford University Press.

Jeff Halper (2010) An Israeli in Palestine: Resisting Dispossession, Redeeming Israel, Pluto Press

Jeff Halper (2015) War Against the People: Israel, the Palestinians and Global Pacification

Jeff Halper (2021) Decolonizing Israel, Liberating Palestine: Zionism, Settler Colonialism, and the Case for One Democratic State, Pluto Press

Anthony Loewenstein (2023) The Palestine Laboratory: How Israel exports the Technology of Occupation around the World

Noura Erakat (2019) Justice for Some: Law and the Question of Palestine, Stanford University Press

Neve Gordon (2008) Israel’s Occupation, University of California Press

Joseph Massad (2006) The Persistence of the Palestinian Question: Essays on Zionism and the Palestinians, Routledge

Memoirs

Edward Said (1986) After the Last Sky: Palestine Lives, Columbia University PEdward Saidress

Edward Said (2000) Out of Place; A Memoir, First Vintage Books

Mourid Barghouti (2005) I saw Ramallah, Bloomsbury

Hatim Kanaaneh (2008) A Doctor in Galilee: The Life and Struggle of a Palestinian in Israel, Pluto Press

Raja Shehadeh (2008) Palestinian Walks: Into a Vanishing Landscape, Profile Books

Ghada Karmi (2009) In Search of Fatima: A Palestinian Story, Verso Books

Vittorio Arrigoni (2010) Gaza Stay Human, Kube Publishing

Ramzy Baroud (2010) My Father Was a Freedom Fighter: Gaza's Untold Story, Pluto Press

Izzeldin Abuelaish (2011) I Shall Not Hate: A Gaza Doctor’s Journey on the Road to Peace and Human Dignity, Bloomsbury

Atef Abu Saif (2015) The Drone Eats with Me: A Gaza Diary, Beacon Press

Anthologies

Voices from Gaza - Insaniyyat (The Society of Palestinian Anthropologists)

Letters From Gaza • Protean Magazine

Salma Khadra Jayyusi (1992) Anthology of Modern Palestinian Literature, Columbia University Press

ASHTAR Theatre (2010) The Gaza Monologues

Refaat Alreer (ed) (2014) Gaza Writes Back, Just World Books

Refaat Alreer, Laila El-Haddad (eds) (2015) Gaza Unsilenced, Just World Books

Cate Malek and Mateo Hoke (eds)(2015) Palestine Speaks: Narrative of Life under Occupation, Verso Books

Jehad Abusalim, Jennifer Bing (eds) (2022) Light in Gaza: Writings Born of Fire, Haymarket Books

Short Story Collections

Ghassan Kanafani, Hilary Kilpatrick (trans) (1968) Men in the Sun and Other Palestinian Stories, Lynne Rienner Publishers

Ghassan Kanafani, Barbara Harlow, Karen E. Riley (trans) (2000) Palestine’s Children: Returning to Haifa and Other Stories, Lynne Rienner Publishers

Atef Abu Saif (2014) The Book of Gaza: A City in Short Fiction, Comma Press

Samira Azzam, Ranya Abdelrahman (trans) (2022) Out Of Time: The Collected Short Stories of Samira Azzam

Sonia Sulaiman (2023) Muneera and the Moon; Stories Inspired by Palestinian Folklore

Essay Collections

Edward W. Said (2000) Reflections on Exile and Other Essays, Harvard University Press

Salim Tamari (2008) Mountain against the Sea: Essays on Palestinian Society and Culture, University of California Press

Fatma Kassem (2011) Palestinian Women: Narratives, histories and gendered memory, Bloombsbury

Ramzy Baroud (2019) These Chains Will Be Broken: Palestinian Stories of Struggle and Defiance in Israeli Prisons, Clarity Press

Novels

Sahar Khalifeh (1976) Wild Thorns, Saqi Books

Liyana Badr (1993) A Balcony over the Fakihani, Interlink Books

Hala Alyan (2017) Salt Houses, Harper Books

Susan Abulhawa (2011) Mornings in Jenin, Bloomsbury

Susan Abulhawa (2020) Against the Loveless World, Bloomsbury

Graphic novels

Joe Sacco (2001) Palestine

Joe Sacco (2010) Footnotes in Gaza

Naji al-Ali (2009) A Child in Palestine, Verso Books

Mohammad Sabaaneh (2021) Power Born of Dreams: My Story is Palestine, Street Noise Book*

Poetry

Fady Joudah (2008) The Earth in the Attic, Sheridan Books,

Ghassan Zaqtan, Fady Joudah (trans) (2012) Like a Straw Bird It Follows Me and Other Poems, Yale University Press

Hala Alyan (2013) Atrium: Poems, Three Rooms Press*

Mohammed El-Kurd (2021) Rifqa, Haymarket Books

Mosab Abu Toha (2022) Things You May Find Hidden in My Ear: Poems from Gaza, City Lights Publishers

Tawfiq Zayyad (2023) We Are Here to Stay, Smokestack Books*

The Works of Mahmoud Darwish

Poems

Rafeef Ziadah (2011) We Teach Life, Sir

Nasser Rabah (2022) In the Endless War

Refaat Alareer (2011) If I Must Die

Hiba Abu Nada (2023) I Grant You Refuge/ Not Just Passing

[All books except the ones starred are available in my gdrive. I'm adding more each day. But please try and buy whatever you're able or borrow from the library. Most should be available in the discounted Free Palestine Reading List by Pluto Press, Verso and Haymarket Books.]

Human Rights Reports & Documents

Information on current International Court of Justice case on ‘Legal Consequences arising from the Policies and Practices of Israel in the Occupied Palestinian Territory, including East Jerusalem’

UN Commission of Inquiry Report 2022

UN Special Rapporteur Report on Apartheid 2022

Amnesty International Report on Apartheid 2022

Human Rights Watch Report on Apartheid 2021

Report of the United Nations Fact-Finding Mission on the Gaza Conflict’ 2009 (‘The Goldstone Report’)

Advisory Opinion on the Legal Consequences of the Construction of a Wall in the Occupied Palestinian Territory, International Court of Justice, 9 July 2004

Films

Documentaries

Jenin, Jenin (2003) dir. Mohammed Bakri

Massacre (2005) dir. Monica Borgmann, Lokman Slim, Hermann Theissen

Slingshot HipHop (2008) dir. Jackie Reem Salloum

Waltz with Bashir (2008) dir. Ari Folman † (also on Amazon Prime)

Tears of Gaza (2010) dir. Vibeke Løkkeberg (also on Amazon Prime)

5 Broken Cameras (2011) dir. Emad Burnat (also on Amazon Prime)

The Gatekeepers (2012) dir. Dror Moreh (also on Amazon Prime)

The Great Book Robbery (2012) | Al Jazeera English

Al Nakba (2013) | Al Jazeera (5-episode docu-series)

The Village Under the Forest (2013) dir. Mark J. Kaplan

Where Should The Birds Fly (2013) dir. Fida Qishta

Naila and the Uprising (2017) (also on Amazon Prime)

GAZA (2019) dir. Andrew McConnell and Garry Keane

Gaza Fights For Freedom (2019) dir. Abby Martin

Little Palestine: Diary Of A Siege (2021) dir. Abdallah Al Khatib 

Palestine 1920: The Other Side of the Palestinian Story (2021) | Al Jazeera World Documentary

Gaza Fights Back (2021) | MintPress News Original Documentary | dir. Dan Cohen

Innocence (2022) dir. Guy Davidi

Short Films

Fatenah (2009) dir. Ahmad Habash

Gaza-London (2009) dir. Dina Hamdan

Condom Lead (2013) dir. Tarzan Nasser, Arab Nasser

OBAIDA (2019) | Defence for Children Palestine

Theatrical Films

Divine Intervention (2002) | dir. Elia Suleiman (also on Netflix)

Paradise Now (2005) dir Hany Abu-Assad (also on Amazon Prime)

Lemon Tree (2008) (choose auto translate for English subs) (also on Amazon Prime)

It Must Be Heaven (2009) | dir. Elia Suleiman †

The Promise (2010) mini-series dir. Peter Kosminsky (Part 1, Part 2, Part 3, Part 4)

Habibi (2011)* dir. Susan Youssef

Omar (2013)* dir. Hany Abu-Assad †

3000 Nights (2015)* dir. Mai Masri

Foxtrot (2017) dir. Samuel Maoz (also on Amazon Prime)

The Time that Remains (2019) dir. Elia Suleiman †

Gaza Mon Amour (2020) dir. Tarzan Nasser, Arab Nasser †

The Viewing Booth (2020) dir. Ra'anan Alexandrowicz (on Amazon Prime and Apple TV)

Farha (2021)* | dir. Darin J. Sallam

Palestine Film Institute Archive

All links are for free viewing. The ones marked with a star (*) can be found on Netflix, while the ones marked † can be downloaded for free from my Mega account.

If you find Guy Davidi's Innocence anywhere please let me know, I can't find it for streaming or download even to rent or buy.

In 2018, BDS urged Netflix to dump Fauda, a series created by former members of IOF death squads that legitimizes and promotes racist violence and war crimes, to no avail. Please warn others to not give this series any views. BDS has not called for a boycott of Netflix. ]

NGOs

The Boycott, Divestment, Sanctions (BDS) Movement

Euro-Mediterranean Human Rights Monitor

UNRWA

Palestine Defence for Children International

Palestinian Feminist Collective

Al-Shabaka: The Palestinian Policy Network

Addameer Prisoner Support and Human Rights Association

Institute for Palestine Studies

Al Haq

Artists for Palestine

The Palestine Museum

Jewish Currents

B’Tselem

DAWN

Social Media

Palestnians on Tumblr

@el-shab-hussein

@killyfromblame

@apollos-olives

@fairuzfan

@palipunk

@sar-soor

@nabulsi

@wearenotjustnumbers2

@90-ghost

@tamarrud

@northgazaupdates

Allies and advocates (not Palestinian)

@bloglikeanegyptian beautiful posts that read like op-eds

@vyorei daily news roundups

@luthienne resistance through prose

@decolonize-the-left scoop on the US political plans and impacts

@feluka

@anneemay

(Please don't expect any of these blogs to be completely devoted to Palestine allyship; they do post regularly about it but they're still personal blogs and post whatever else they feel like. Do not harrass them.)

Gaza journalists

Motaz Azaiza IG: @motaz_azaiza | Twitter: @azaizamotaz9 | TikTok: _motaz.azaiza (left Gaza as of Jan 23)

Bisan Owda IG and TikTok: wizard_bisan1 | Twitter: @wizardbisan

Saleh Aljafarawi IG: @saleh_aljafarawi | Twitter: @S_Aljafarawi | TikTok: @saleh_aljafarawi97

Plestia Alaqad IG: @byplestia | TikTok: @plestiaaqad (left Gaza)

Wael Al-Dahdouh IG: @wael_eldahdouh | Twitter: @WaelDahdouh (left Gaza as of Jan 13)

Hind Khoudary IG: @hindkhoudary | Twitter: @Hind_Gaza

Ismail Jood IG and TikTok: @ismail.jood (announced end of coverage on Jan 25)

Yara Eid IG: @eid_yara | Twitter: @yaraeid_

Eye on Palestine IG: @eye.on.palestine | Twitter: @EyeonPalestine | TikTok: @eyes.on.palestine

Muhammad Shehada Twitter: @muhammadshehad2

(Edit: even though some journos have evacuated, the footage up to the end of their reporting is up on their social media, and they're also doing urgent fundraisers to get their families and friends to safety. Please donate or share their posts.)

News organisations

The Electronic Intifada Twitter: @intifada | IG: @electronicintifada

Quds News Network Twitter and Telegram: @QudsNen | IG: @qudsn (Arabic)

Times of Gaza IG: @timesofgaza | Twitter: @Timesofgaza | Telegram: @TIMESOFGAZA

The Palestine Chronicle Twitter: @PalestineChron | IG: @palestinechron | @palestinechronicle

Al-Jazeera Twitter: @AJEnglish | IG and TikTok: @aljazeeraenglish, @ajplus

Middle East Eye IG and TikTok: @middleeasteye | Twitter: @MiddleEastEye

Democracy Now Twitter and IG: @democracynow TikTok: @democracynow.org

Mondoweiss IG and TikTok: @mondoweiss | Twitter: @Mondoweiss

The Intercept Twitter and IG: @theintercept

MintPress Twitter: @MintPressNews | IG: mintpress

Novara Media Twitter and IG: @novaramedia

Truthout Twitter and IG: @truthout

Noura Erakat: Legal scholar, human rights attorney, specialising in Israeli–Palestinian conflict. Twitter: @4noura | IG: @nouraerakat | (http://www.nouraerakat.com/)

Palestnians on Other Social Media

Taleed El Sabawi: Assistant professor of law and researcher in public health. Twitter: @el_sabawi | IG

Hebh Jamal: Journalist in Germany. IG and Twitter: @hebh_jamal

Lexi Alexander: Filmmaker and activist. Twitter: @LexiAlex | IG: @lexialexander1

Mariam Barghouti: Writer, blogger, researcher, and journalist. Twitter: @MariamBarghouti | IG: @mariambarghouti

Rasha Abdulhadi: Queer poet, author and cultural organizer. Twitter: @rashaabdulhadi

Mohammed el-Kurd: Writer and activist from Jerusalem. IG: @mohammedelkurd | Twitter: @m7mdkurd

Ramy Abdu: Founder and Chairman of the Euro-Mediterranean Human Rights Monitor. Twitter: @RamyAbdu

‼️How You Can Help Palestine‼️

Subhi: Founder of The Palestine Academy website. IG: @sbeih.jpg |TikTok @iamsbeih | Twitter: @iamsbeih

Click for Palestine (Please reblog!!)

Masterlist of donation links by @sulfurcosmos (Please reblog!!)

Water for Gaza: Donate directly to the Gaza Municipality

Gazafunds (vetted and spotlighted GFMs)

The Butterfly Effect Project (spreadsheet of vetted GFMs)

Operation Olive Branch Linktree for vetted fundraisers, donations and political action resources. TikTok and Instagram: @operationolivebranch | Twitter: @OPOliveBranch

Spreadsheet of Gaza fundraisers vetted by @el-shab-hussein and @nabulsi

Political action to pressure the Harris campaign to stop arming Israel (for US citizens): Uncommitted Movement (TikTok: @uncommittedmvmt) (Please reblog!!)

If any links are broken let me know. Or pull up the current post to check whether it's fixed.

"Knowledge is Israel's worst enemy. Awareness is Israel's most hated and feared foe. That's why Israel bombs a university: it wants to kill openness and determination to refuse living under injustice and racism."

— Dr. Refaat Alareer, (martyred Dec 6, 2023)

From River To The Sea Palestine Will Be Free 🇵🇸🇵🇸🇵🇸

-----

Edit 1: took the first video down because turns out the animator is a terf and it links to her blog. Really sorry for any distress.

Edit 2: All recommended readings + Haymarket recommendations + essential decolonization texts have been uploaded to my linked gdrive. I will adding more periodically. Please do buy or check them out from the library if possible, but this post was made for and by poor and gatekept Global South bitches like me.

Some have complained about the memes being disrespectful. You're actually legally obligated to make fun of Israeli propaganda and Zionists. I don't make the rules.

Edit 3: "The river to the sea" does not mean the expulsion of Jews from Palestine. Believing that is genocide apologia.

Edit 4: Gazans have specifically asked us to put every effort into pushing for a ceasefire instead of donations. "Raising humanitarian aid" is a grift Western governments are pushing right now to deflect from the fact that they're sending billions to Israel to keep carpet bombing Gazans. As long as the blockades are still in place there will never be enough aid for two million people. (UPDATE: PLEASE DONATE to the Gazan's GoFundMe fundraisers to help them buy food and get out of Rafah into Egypt. E-SIMs, food and medical supplies are also essential. Please donate to the orgs linked in the How You Can Help. Go on the strikes. DO NOT STOP PROTESTING.)

Edit 5: Google drive link for academic books folder has been fixed. Also have added a ton of resources to all the other folders so please check them out.

Edit 6: Added interactive maps, Jadaliya channel, and masterlists of donation links and protest support and of factsheets.

The twitter accounts I reposted as it was given to me and I just now realized it had too many Israeli voices and almost none of the Palestinians I'm following, so it's being edited. (Update: done!) also removed sources like Jewish Voices of Peace and Breaking the Silence that do good work but have come under fair criticism from Palestinians.

Edit 7: Complete reformatting

Edit 8: Complete revamping of the social media section. It now reflects my own following list.

Edit 9: removed some more problematic people from the allies list. Remember that the 2SS is a grift that's used to normalize violence and occupation, kids. Supporting the one-state solution is lowest possible bar for allyship. It's "Free Palestine" not "Free half of Palestine and hope Israel doesn't go right back to killing them".

Edit 10: added The Palestine Directory + Al Jazeera documentary + Addameer. This "100 links per post" thing sucks.

Edit 11: more documentaries and films

Edit 12: reformatted reading list

Edit 13: had to remove @palipunk's masterlist to add another podcast. It's their pinned post and has more resources Palestinian culture and crafts if you want to check it out

Edit 14 6th May '24: I've stopped updating this masterlist so some things, like journalists still left in Gaza and how to support the student protests are missing. I've had to take a step back and am no longer able to track these things down on my own, and I've hit the '100 links per post' limit, but if you can leave suggestions for updates along with links in either the replies or my asks I will try and add them.

Edit 15 10th August: added to Palestinian allies list and reworked the Help for Palestine section. There's been a racist harrassment campaign against the Palestinian Tumblrs that vetted the Gaza fundraisers based off one mistake made by a Gazan who doesn't understand English. If you're an ally, shut that shit down. Even if you donate to a scam GFM, you're only out some coffee money; if everyone stops donating to all the GFMs in fear of scams, those families die.

[starieldraws]

Organising some home and class work onto my first planning board

[bardcopilotgeminillamametabetag]

ANALYZE AND PRODUCE CORRECTED INDIVIDUAL DNA TO BE INTRODUCED AND COMPLETELY REPLACE AGED DNA USING CRISPR AND RELATED SPECIES TRANSPLANT TECHNIQUES SCIENCE AND TECHNOLOGY

[reasonsforhope]

"The first modern attempt at transferring a uterus from one human to another occurred at the turn of the millennium. But surgeons had to remove the organ, which had become necrotic, 99 days later. The first successful transplant was performed in 2011 — but even then, the recipient wasn’t immediately able to get pregnant and deliver a baby. It took three more years for the first person in the world with a transplanted uterus to give birth. 

More than 70 such babies have been born globally in the decade since. “It’s a complete new world,” said Giuliano Testa, chief of abdominal transplant at Baylor University Medical Center.

Almost a third of those babies — 22 and counting — have been born in Dallas at Baylor. On Thursday, Testa and his team published a major cohort study in JAMA analyzing the results from the program’s first 20 patients. All women were of reproductive age and had no uterus (most having been born without one), but had at least one functioning ovary. Most of the uteri came from living donors, but two came from deceased donors.

Fourteen women had successful transplants, all of whom were able to have at least one baby.  

“That success rate is extraordinary, and I want that to get out there,” said Liza Johannesson, the medical director of uterus transplants at Baylor, who works with Testa and co-authored the study. “We want this to be an option for all women out there that need it.”

Six patients had transplant failures, all within two weeks of the procedure. Part of the problem may have been a learning curve: The study initially included only 10 patients, and five of the six with failed transplants were in that first group. These were “technical” failures, Testa said, involving aspects of the surgery such as how surgeons connected the organ’s blood vessels, what material was used for sutures, and selecting a uterus that would work well in a transplant. 

The team saw only one transplant fail in the second group of 10 people, the researchers said. All 20 transplants took place between September 2016 and August 2019.

Only one other cohort study has previously been published on uterus transplants, in 2022. A Swedish team, which included Johannesson before she moved to Baylor, performed seven successful transplants out of nine attempts. Six women, including the first transplant recipient to ever deliver a baby back in 2014, gave birth.

“It’s hard to extract data from that, because they were the first ones that did it,” Johannesson said. “This is the first time we can actually see the safety and efficacy of this procedure properly.”

So far, the signs are good: High success rates for transplants and live births, safe and healthy children so far, and early signs that immunosuppressants — typically given to transplant recipients so their bodies don’t reject the new organ — may not cause long-term harm, the researchers said. (The uterine transplants are removed after recipients no longer need them to deliver children.) And the Baylor team has figured out how to identify the right uterus for transfer: It should be from a donor who has had a baby before, is premenopausal, and, of course, who matches the blood type of the recipient, Testa said...

“They’ve really embraced the idea of practicing improvement as you go along, to understand how to make this safer or more effective. And that’s reflected in the results,” said Jessica Walter, an assistant professor of reproductive endocrinology and infertility at Northwestern University Feinberg School of Medicine, who co-authored an editorial on the research in JAMA...

Walter was a skeptic herself when she first learned about uterine transplants. The procedure seemed invasive and complicated. But she did her fellowship training at Penn Medicine, home to one of just four programs in the U.S. doing uterine transplants. 

“The firsts — the first time the patient received a transplant, the first time she got her period after the transplant, the positive pregnancy test,” Walter said. “Immersing myself in the science, the patients, the practitioners, and researchers — it really changed my opinion that this is science, and this is an innovation like anything else.” ...

Many transgender women are hopeful that uterine transplants might someday be available for them, but it’s likely a far-off possibility. Scientists need to rewind and do animal studies on how a uterus might fare in a different “hormonal milieu” before doing any clinical trials of the procedure with trans people, Wagner said.

Among cisgender women, more long-term research is still needed on the donors, recipients, and the children they have, experts said.

“We want other centers to start up,” Johannesson said. “Our main goal is to publish all of our data, as much as we can.”"

-via Stat, August 16, 2024

[musiquesduciel]

Worked the equivalent of an entire day this Sunday and I'm still not done with everything

[sophiamcdougall]

You're a reasonably informed person on the internet. You've experienced things like no longer being able to get files off an old storage device, media you've downloaded suddenly going poof, sites and forums with troves full of people's thoughts and ideas vanishing forever. You've heard of cybercrime. You've read articles about lost media. You have at least a basic understanding that digital data is vulnerable, is what I'm saying. I'm guessing that you're also aware that history is, you know... important? And that it's an ongoing study, requiring ... data about how people live? And that it's not just about stanning celebrities that happen to be dead? Congratulations, you are significantly better-informed than the British government! So they're currently like "Oh hai can we destroy all these historical documents pls? To save money? Because we'll digitise them first so it's fine! That'll be easy, cheap and reliable -- right? These wills from the 1850s will totally be fine for another 170 years as a PNG or whatever, yeah? We didn't need to do an impact assesment about this because it's clearly win-win! We'd keep the physical wills of Famous People™ though because Famous People™ actually matter, unlike you plebs. We don't think there are any equalities implications about this, either! Also the only examples of Famous People™ we can think of are all white and rich, only one is a woman and she got famous because of the guy she married. Kisses!"

Yes, this is the same Government that's like "Oh no removing a statue of slave trader is erasing history :(" You have, however, until 23 February 2024 to politely inquire of them what the fuck they are smoking. And they will have to publish a summary of the responses they receive. And it will look kind of bad if the feedback is well-argued, informative and overwhelmingly negative and they go ahead and do it anyway. I currently edit documents including responses to consultations like (but significantly less insane) than this one. Responses do actually matter. I would particularly encourage British people/people based in the UK to do this, but as far as I can see it doesn't say you have to be either. If you are, say, a historian or an archivist, or someone who specialises in digital data do say so and draw on your expertise in your answers. This isn't a question of filling out a form. You have to manually compose an email answering the 12 questions in the consultation paper at the link above. I'll put my own answers under the fold. Note -- I never know if I'm being too rude in these sorts of things. You probably shouldn't be ruder than I have been.

Please do not copy and paste any of this: that would defeat the purpose. This isn't a petition, they need to see a range of individual responses. But it may give you a jumping-off point.

Question 1: Should the current law providing for the inspection of wills be preserved?

Yes. Our ability to understand our shared past is a fundamental aspect of our heritage. It is not possible for any authority to know in advance what future insights they are supporting or impeding by their treatment of material evidence. Safeguarding the historical record for future generations should be considered an extremely important duty.

Question 2: Are there any reforms you would suggest to the current law enabling wills to be inspected?

No.

Question 3: Are there any reasons why the High Court should store original paper will documents on a permanent basis, as opposed to just retaining a digitised copy of that material?

Yes. I am amazed that the recent cyber attack on the British Library, which has effectively paralysed it completely, not been sufficient to answer this question for you.  I also refer you to the fate of the Domesday Project. Digital storage is useful and can help more people access information; however, it is also inherently fragile. Malice, accident, or eventual inevitable obsolescence not merely might occur, but absolutely should be expected. It is ludicrously naive and reflects a truly unpardonable ignorance to assume that information preserved only in digital form is somehow inviolable and safe, or that a physical document once digitised, never need be digitised again..At absolute minimum, it should be understood as certain that at least some of any digital-only archive will eventually be permanently lost. It is not remotely implausible that all of it would be. Preserving the physical documents provides a crucial failsafe. It also allows any errors in reproduction -- also inevitable-- to be, eventually, seen and corrected. Note that maintaining, upgrading and replacing digital infrastructure is not free, easy or reliable. Over the long term, risks to the data concerned can only accumulate.

"Unlike the methods for preserving analog documents that have been honed over millennia, there is no deep precedence to look to regarding the management of digital records. As such, the processing, long-term storage, and distribution potential of archival digital data are highly unresolved issues. [..] the more digital data is migrated, translated, and re-compressed into new formats, the more room there is for information to be lost, be it at the microbit-level of preservation. Any failure to contend with the instability of digital storage mediums, hardware obsolescence, and software obsolescence thus meets a terminal end—the definitive loss of information. The common belief that digital data is safe so long as it is backed up according to the 3-2-1 rule (3 copies on 2 different formats with 1 copy saved off site) belies the fact that it is fundamentally unclear how long digital information can or will remain intact. What is certain is that its unique vulnerabilities do become more pertinent with age."  -- James Boyda, On Loss in the 21st Century: Digital Decay and the Archive, Introduction.

Question 4: Do you agree that after a certain time original paper documents (from 1858 onwards) may be destroyed (other than for famous individuals)? Are there any alternatives, involving the public or private sector, you can suggest to their being destroyed?

Absolutely not. And I would have hoped we were past the "great man" theory of history. Firstly, you do not know which figures will still be considered "famous" in the future and which currently obscure individuals may deserve and eventually receive greater attention. I note that of the three figures you mention here as notable enough to have their wills preserved, all are white, the majority are male (the one woman having achieved fame through marriage) and all were wealthy at the time of their death. Any such approach will certainly cull evidence of the lives of women, people of colour and the poor from the historical record, and send a clear message about whose lives you consider worth remembering.

Secondly, the famous and successsful are only a small part of our history. Understanding the realities that shaped our past and continue to mould our present requires evidence of the lives of so-called "ordinary people"!

Did you even speak to any historians before coming up with this idea?

Entrusting the documents to the private sector would be similarly disastrous. What happens when a private company goes bust or decides that preserving this material is no longer profitable? What reasonable person, confronted with our crumbling privatised water infrastructure, would willingly consign any part of our heritage to a similar fate?

Question 5: Do you agree that there is equivalence between paper and digital copies of wills so that the ECA 2000 can be used?

No. And it raises serious questions about the skill and knowledge base within HMCTS and the government that the very basic concepts of data loss and the digital dark age appear to be unknown to you. I also refer you to the Domesday Project.

Question 6: Are there any other matters directly related to the retention of digital or paper wills that are not covered by the proposed exercise of the powers in the ECA 2000 that you consider are necessary?

Destroying the physical documents will always be an unforgivable dereliction of legal and moral duty.

Question 7: If the Government pursues preserving permanently only a digital copy of a will document, should it seek to reform the primary legislation by introducing a Bill or do so under the ECA 2000?

Destroying the physical documents will always be an unforgivable dereliction of legal and moral duty.

Question 8: If the Government moves to digital only copies of original will documents, what do you think the retention period for the original paper wills should be? Please give reasons and state what you believe the minimum retention period should be and whether you consider the Government’s suggestion of 25 years to be reasonable.

There is no good version of this plan. The physical documents should be preserved.

Question 9: Do you agree with the principle that wills of famous people should be preserved in the original paper form for historic interest?

This question betrays deep ignorance of what "historic interest" actually is. The study of history is not simply glorified celebrity gossip. If anything, the physical wills of currently famous people could be considered more expendable as it is likely that their contents are so widely diffused as to be relatively "safe", whereas the wills of so-called "ordinary people" will, especially in aggregate, provide insights that have not yet been explored.

Question 10: Do you have any initial suggestions on the criteria which should be adopted for identifying famous/historic figures whose original paper will document should be preserved permanently?

Abandon this entire lamentable plan. As previously discussed, you do not and cannot know who will be considered "famous" in the future, and fame is a profoundly flawed criterion of historical significance.

Question 11: Do you agree that the Probate Registries should only permanently retain wills and codicils from the documents submitted in support of a probate application? Please explain, if setting out the case for retention of any other documents.

No, all the documents should be preserved indefinitely.

Question 12: Do you agree that we have correctly identified the range and extent of the equalities impacts under each of these proposals set out in this consultation? Please give reasons and supply evidence of further equalities impacts as appropriate.

No. You appear to have neglected equalities impacts entirely. As discussed, in your drive to prioritise "famous people", your plan will certainly prioritise the white, wealthy and mostly the male, as your "Charles Dickens, Charles Darwin and Princess Diana" examples amply indicate. This plan will create a two-tier system where evidence of the lives of the privileged is carefully preserved while information regarding people of colour, women, the working class and other disadvantaged groups is disproportionately abandoned to digital decay and eventual loss. Current and future historians from, or specialising in the history of minority groups will be especially impoverished by this.  

[northwestofinsanity]

It’s me and my computer against the world through whatever the heck this week is…

(My sleep deprived, catastrophic clutz self, and my poor little Surface pro with fifteen slide decks and ten internet tabs open for studying while there may or may not still be a Trojan virus running around.)