#Atypical Trigeminal Neuralgia

[fansandtheic]

May the Chaotic Singer's Story

I know the likelihood of you actu Please bear with me, my skill lies in singing and artwork (drawing/painting) I'm a dreadful writer.

I wanted to thank you and explain just how big this book may be to other abused souls out there. This book hit me as hard as reading Eldest since my riding accident in 2009.

Your most recent book, Murtagh, hit home big time. Your portrayal of Murtagh and Thorn's struggle with PTSD and prior abuses really reached my heart and soul. How it took Murtagh starting to die for Thorn to push past his fear reminded me how my sister saved me then how I was ready to run with her to ensure she never got physically harmed. I thought I was about to die one day at the hands of egg-donor. My put her own well-being at risk and it snapped me out of my fear. I started planning on how to run away with my sis next time we were up there.... It's like an hour drive from where we lived with Dad and we didn't know the way well but I didn't care. The physical and other worse abuse I could handle for myself but not my younger sister. (I was 14 she was turning 12 that fall). We never went back because Dad found out and of course protected us. He's an amazing Dad, just abusers are very good at hiding what they do.

I was only able to break 14 years of utter fear of that monster for someone I loved and would give my life for. That whole part where Thorn breaks that barrier in his mind I cried, a lot. I wish this book had been out when I was still in HS (graduated in 07) because maybe it would have kick started my healing earlier... But even now at 34 this book will help my journey to continue healing. 

I'm still the black sheep, the most disliked in my family. I feel I'll never be truly loved by anyone by my Dad, my sister and her kids. I'll always be the outcast, especially thanks to being forced to do bad things due to pure terror of what IT would do to me. I still deal with people IT fooled into thinking she was some amazing person and mother.... I try to set the record straight but with people are so blinded.

Since I mentioned Eldest... That book didn't start hitting me as hard until after I developed Atypical Trigeminal Neuralgia on both sides after being thrown from my scared mare. - totally my fault for taking a skittish Arabian mare out on a windy day without locking the dogs up. The part where Eragon explains what it is like to fear moving wrong as the pain can trigger at anytime and for seemingly no reason.... I lived that every day since Oct of 09 to my 2 surgeries in 2021... And from July 2023 to current. The pain being called The Obliterator.... I shared a couple quotes with other TN sufferers and they had to know what author had such insight to chronic pain. A few said they'd be checking the books due to the insight that book showed. 

Thank you, this was absolutely the book I needed to read right now. Your writing again gave me inspiration again to draw, and that's been somewhat rare in years to feel inspired.

You are helping people with your books. I can't wait to see what else this series brings, what your amazing mind and writing brings.

Thank you

~ May the chaotic singer

[thethingything]

in an increasingly ridiculous turn of events, we have plantar fasciitis again (probably triggered by the amount of walking we've done from having to go to so many appointments lately) and like, luckily we know how to deal with that so we should be able to fix it quicker than last time, but our RLS has flared up along with it which fucking sucks

[girlish-in-pain]

It's so frustrating that my neurologist is so clearly in over his head. To my face he's denying that there's any uncertainty in the diagnosis he has given me and is blaming anything that doesn't fit on my mental health. But on paper he has gone back and forth between two diagnosises for months now. He is switching between the two every time he writes in my medical chart and when I ask him about it he denies that he's unsure. I can't fucking wait to start af the headache clinic

[earhartsease]

it's so weird that different countries do or don't accept the existence of the same medical conditions - we have what's called atypical trigeminal neuralgia (face pain from a set of three nerves running across the head) - it's atypical because it's typically short bursts of intense pain, but the atypical version is always-on but less intense

now if we were in the US that would be fine, but for some reason the UK medical system doesn't admit it exists, and so our neurologist is calling it "atypical facial pain" instead, which is a) an outdated diagnosis (it's known more internationally now as persistent idiopathic facial pain) and b) is a vague af diagnosis meaning "well it's persistent facial pain but it's not neuralgic *shrug*" when it's clearly neuralgic pain

anyway grumble

[furniturfusion]

Jaw Pain Specialist in Mumbai|Jaw Nerve Pain Treatment in Mumbai

Relief from Nerve Pain

Nerve disorders can significantly impact a person’s quality of life, causing debilitating pain and discomfort. At TMJ Sleep Clinic, we specialize in diagnosing and treating a wide range of nerve conditions, including trigeminal neuralgia, atypical facial pain, and other neurological disorders.

Our team of experienced neurologists and pain specialists is dedicated to providing effective relief and improving your overall well-being. We understand the challenges associated with nerve disorders and are committed to offering compassionate and personalized care.

Nerve disorders can cause pain in various parts of the body, depending on the affected nerve. Some common pain areas include face, hands and arms, legs and feet. 

If you are experiencing any of these symptoms, it is important to consult a doctor for proper diagnosis and treatment. Early intervention can help prevent further complications and improve your quality of life.

[tmjclinic]

Nerve Disorders in south Mumbai

Nerve disorders can significantly impact a person’s quality of life, causing debilitating pain and discomfort. At TMJ Clinic, we specialize in diagnosing and treating a wide range of nerve conditions, including trigeminal neuralgia, atypical facial pain, and other neurological disorders.

[painspecialistindelhisblog]

As the name signifies, Trigeminal neuralgia (TN) is a nerve pain condition affecting the main nerve of the face (trigeminal nerve) and causing repeated sudden attacks of severe pain generally on one side of the face.

There is one trigeminal nerve on each side. It carries touch and painsensations from your face and controls the muscles used in chewing.The nerve divides into three main branches

1st branch- V1 (ophthalmic branch)goes to the scalp, forehead and the region around the eye

2nd branch- V2 (maxillary branch) goes to the cheek area

3rd branch- V3 (mandibular branch) goes to the jaw area

TN more commonly affects the 2nd and 3rdbranches causing pain over the jaw and the cheek area. The patient generally experiences a severe, sudden, sharp, stabbing, burning or shock-like sensation lasting for a short duration with frequent episodes throughout the day.

What are the symptoms of Trigeminal Neuralgia?

TN pain is typically described as

Sudden, sharp, stabbing, piercing, burning or electric shock-like sensation over the face lasting for a short duration (few seconds to minutes)

Frequent episodes of severe pain can occur throughout the day. The episodes usually do not occur when one is asleep

Pain can be triggered by talking, chewing, washing the face, brushing, drinking, shaving, or cold. Trigger areas are sensitive areas which when touches can trigger episodes of pain and are commonly observed around the nose, mouth,chin and cheek close to the midline

Pain may be associated with spasms

After repeated attacks dull ache and tenderness in the affected area can persist

Usually one side of face in affected although rarely both sides (in approx. 3% of TN cases) can be involved

Episodes can last for days, weeks, or months at a time

There may be no symptoms between attacks and the pain can disappear for months or years

The pain can worsen over time with fewer and shorter pain-free periods

Such extreme pain can often trigger secondary problems such as

Low mood or anxiety

Poor oral hygiene

Weight loss

Reduced social withdrawal, impact on job, family life etc.

Why does it happen?

About 10 people in 100,000 develop TN each year. This condition is more common in women and is generally seen after the age of 50 years. There is some evidence that the disorder can run in families. Although sometimes debilitating, the disorder is not life-threatening.

Causes of TN include

Compression of the nerve by a blood vesselcan lead to damage of the covering of the nerve(demyelination)

TN may be a symptom of another condition like a tumour or multiple sclerosis

In some cases (approximately 10%), the underlying cause remains unknown

How is Trigeminal Neuralgia diagnosed?

The diagnosis is based on the typical symptoms and there is nodiagnostic test for trigeminal neuralgia.Physical examination in classic TN is generally normal and as facial pain can be caused by a large number of conditions, sometimes the diagnosis can be challenging. Branches of nerve can be damaged with facial trauma, dental procedures, or surgery causing similar symptoms.

MRI scan are considered especially when

The symptoms are atypical casting a shadow on diagnosis

If the presentation is in a younger adult

The response to treatment is not as expected

To assess if a blood vessel is pressing on the nerve as prior to surgery

What are the treatment options for Trigeminal Neuralgia?

There are many options available to control the pain in TN including medications, interventional pain procedures and surgery.

Medications. Common pain relief medications or simple painkillers like paracetamol or ibuprofen are not effective in controlling TN pain. Different type pain-relieving mediations which work on nerves by quietening nerve impulses are more effective. These medicines are started on low doses and gradually escalated depending on one’s response and the severity of the problem. Starting at high doses straight way can lead to more side effects and may sometimes be counterproductive. Some of the medicines need monitoring and regular blood tests. One medicine may not work for everyone and different options or combinations may need to be explored to get best pain control.

Interventional pain procedures. If medication fails to relieve pain or are poorly tolerated due to side effects, then interventional pain procedures can be are considered including

Local nerve blocks– this involves blocking the individual nerves or their branches affected and is a safe procedure with minimal risks/ side effects. The effects may sometimes be short lasting but can help to break the pain cycle and sometimes that is all that is required for one to go into remission.

Radiofrequency treatment– A number of treatment options involve damaging the trigeminal nerve cells to interrupt the transmission of pain signals to brain, thereby producing pain relief. These include – radiofrequency treatment (using controlled heat), glycerol injection (using chemicals), balloon compression (using mechanical pressure) and stereotactic radiosurgery (or Gamma Knife, which involves using a form of radiation therapy).

The radiofrequency treatment does not involve any cuts or incisions and is minimally invasive. In this treatment a needle to apply heat directly to the nerve cells. The resulting relief is of quick onset and can last for long duration.

For more information, visit- Trigeminal neuralgia treatment in Delhi

[honey-tree-evil-eye]

Me: Oh boy, done work for the day and just finished doing a thing I needed to do after work as well! Time to write and then relax and then--

Atypical trigeminal neuralgia: The fuck you are. C'mere--

[maryannwrites]

Monday Musings

Enjoy this story from Slim Randles about a most unusual gift to a church.

October is Facial Pain Awareness Month, sharing the time with Breast Cancer Awareness. While facial pain doesn’t carry the dire outcomes of some breast cancer diagnoses, it it most debilitating and often lasts years. For eight years now, atypical trigeminal neuralgia, TN-2, has been a daily problem for me, and my recent spine surgery exacerbated the symptoms big time. I won’t go into details,…

[bansalhospital]

Symptoms, Causes, And Treatments Of Atypical Trigeminal Neuralgia 

[toneoparticle13]

Symptoms, Causes, And Treatments Of Atypical Trigeminal Neuralgia

Symptoms, Causes, And Treatments Of Atypical Trigeminal Neuralgia 

Atypical trigeminal neuralgia is an uncommon disorder that has the potential to cause severe facial discomfort. Acute, piercing pain that radiates from the face or mandibular area to the frontal or temporal regions is a common symptom. 

Atypical trigeminal neuralgia may have a diverse range of aetiologies. However, brain damage or constriction is usually implicated in it. Depending on the severity of the problem, the range of therapies available for a specific medical issue can range from pharmacological interventions to surgical operations. 

Look no further than Bansal Hospital Bhopal for excellent therapy if you have symptoms of atypical trigeminal neuralgia. The top hospital in central India, Bansal Hospital, provides cutting-edge care for various illnesses, including atypical trigeminal neuralgia. 

Atypical Trigeminal Neuralgia: What It Is?

Trigeminal neuropathic pain, known as type 2 trigeminal neuralgia, is a neurological disorder typified by persistent facial discomfort. Although it is regarded as a subtype of classical trigeminal neuralgia (type 1), atypical trigeminal neuralgia pain is often more persistent and less episodic. 

Atypical trigeminal neuralgia sufferers frequently express throbbing, burning, or agonising facial pain. 

The pain may affect both sides of the face and can be felt in the lower jaw, cheekbones, temples, or forehead. Atypical trigeminal neuralgia frequently lacks recognisable triggers, unlike classical trigeminal neuralgia, which can cause acute shooting pain at specific trigger points. 

Symptoms of Atypical Trigeminal Neuralgia 

Atypical trigeminal neuralgia is characterised by chronic face pain that differs from the pain associated with classic trigeminal neuralgia. The following are some typical signs and symptoms of atypical trigeminal neuralgia:

1. Pain In The Face

Atypical trigeminal neuralgia patients frequently complain of aching, burning, or throbbing facial discomfort that lasts days or weeks. The pain is often more severe than in classical trigeminal neuralgia and may be continuous or intermittent.

2. Pain Distribution

The trigeminal nerve, which transmits feeling to various face regions, has many branches that might be affected by the pain associated with atypical trigeminal neuralgia. The lower jaw, cheeks, temples, forehead, or any combination of these locations may all experience pain. 

3. Triggered Events

Like classical trigeminal neuralgia, atypical trigeminal neuralgia may not have a set of trigger points, but certain activities or stimuli can worsen the pain. Talking, eating, chewing, brushing your teeth, or touching your face might start or exacerbate the pain.

Causes Of Atypical Trigeminal Neuralgia 

The following are the key elements that may contribute to atypical trigeminal neuralgia:

1. Damage To The Nerves

Trigeminal nerve irritation, compression, or trauma can cause atypical trigeminal neuralgia. This nerve damage might result in numerous conditions, including facial injuries, dental work, brain tumours, and blood artery anomalies.

2. Neuropathic Pain

Atypical trigeminal neuralgia may be brought on by inflammation of the trigeminal nerve or its supporting tissues. Nerve inflammation can be brought on by illnesses like multiple sclerosis, herpes zoster (shingles), or other viral infections.

3. Idiopathic Causes 

Atypical trigeminal neuralgia occasionally has an enigmatic cause. There is no known cause for this idiopathic, atypical trigeminal neuralgia.

Treatment For Atypical Trigeminal Neuralgia 

1. Drugs

To treat the pain brought on by atypical trigeminal neuralgia, physicians frequently prescribe anticonvulsant medications such as gabapentin, pregabalin, or carbamazepine. Amitriptyline is one example of a tricyclic antidepressant that can aid with pain management.

2. Nerve Blocks

Temporary pain relief may be obtained by injecting anaesthetic drugs or steroids close to the damaged trigeminal nerve branches. These nerve blocks can be used as a therapeutic intervention to help identify the affected nerve.

3. Surgical Procedures

Atypical trigeminal neuralgia surgery may be considered when conventional treatments fail to relieve symptoms. The trigeminal nerve may be released from pressure using microvascular decompression (MVD), radiofrequency ablation, nerve rhizotomy, or the pain signals may be stopped.

4. Complementary Therapies

Complementary and alternative therapies, such as acupuncture, biofeedback, or transcutaneous electrical nerve stimulation (TENS), may relieve some people.

5. Supportive Psychological

Individuals with atypical trigeminal neuralgia may benefit from psychological support, such as counselling or support groups, to cope with the emotional and psychological components of the condition. Living with persistent facial pain can be difficult.

The Final Say 

Atypical trigeminal neuralgia is a neurological disorder that differs from classical trigeminal neuralgia in that it is characterised by persistent facial discomfort. Although the precise origins are not entirely understood, a nerve malfunction or injury is thought to be the cause. 

A balanced diet that includes a variety of nutrient-rich and anti-inflammatory foods may improve general health and reduce symptoms, even if no specific diet treats atypical trigeminal neuralgia.

Furthermore, if you require any assistance with this disease, contact the neurology division at Bansal Hospital. Their medical professionals are always there to help you navigate illness.

About Bansal Hospital

Bansal Hospital is a multispeciality hospital and is one of the leading, reputable, and reliable healthcare providers trusted by patients and their families across the region. It has all the major departments, including cardiology, neurology, oncology, orthopaedics, gastroenterology, urology, liver transplant, bone marrow transplantation, nephrology, gynaecology and more. The hospital is equipped with state-of-the-art facilities and technology. It has a team of highly qualified and experienced doctors and medical staff who provide round-the-clock care to the patient.

Visit Our Website

[wheatondentist]

Barodontalgia

What is barodontalgia? Barodontalgia is pain that occurs as pressure changes. Other difficult conditions in dentistry that may be similar to barodontalgia. This is the 10th in a series of multiple post series about orofacial pain with difficult to diagnosis or unusual origin. Cracked tooth syndrome Trigeminal neuralgia Atypical odontalgia Neuralgia-inducing cavitational osteonecrosis or…

[furniturfusion]

https://www.tmjsleepclinic.com/

Jaw Pain Specialist in Mumbai|Jaw Nerve Pain Treatment in Mumbai

Nerve Disorders

Relief from Nerve Pain

Nerve disorders can significantly impact a person’s quality of life, causing debilitating pain and discomfort. At TMJ Sleep Clinic, we specialize in diagnosing and treating a wide range of nerve conditions, including trigeminal neuralgia, atypical facial pain, and other neurological disorders.

[bedbugbiting]

My neurologist’s office scared me with a new form that said that if Medicare refused to cover my nerve block that I would be billed “an estimated $900-$2000.” Um, no. Apparently, I’m already approved, though, and I can just...get nerve blocks when my doctor orders them. So I’m scheduled to get them every two weeks now and I might soon get them every week. 

So, that’s what’s going on there.

That’s a lot of money for a little tube stuck up your nose.

[digitalta]

Medical State Below

It's a lot of bullshit

Update (April 27 2023)

Remember all those weird health issues? Yeah.

So! I don’t have a brain tumor according to multiple MRI scans, but I’m currently being treated for Trigeminal Neuralgia as well as having multiple more scans ordered to check the vessels in my brain.

Running theory now, after an absurd number of doctors, Is that I have a cranial sinus thrombosis, meaning a blood clot in my brain. It isn’t serious since it’s chronic based on the (almost year long) rate of development and symptoms.

I’m doing well, life isn’t spicy until you can say you’ve had a baby stroke at 24 years old.

Update (February 28 2023)

I don’t have a tumor!!

I don’t have a blood clot! I just have a critically low amount of blood going to my posterior brain

Trigeminal neuralgia feels like a chronic toothache to your left canine tooth except you also recently got slapped by a plank of wood covered in jellyfish

Life is suffering

Update (March 5- 22)

I ended up going to the hospital ED and was stuck there

Yep

I posted one of my fancy problems on Reddit and GOT TO THE FRONT FUCKING PAGE (YES)

Got invited into this subreddit?? For top posters of all of Reddit?? And part of an exclusive gold club???

Reddit fucking DIAGNOSED ME ACCURATELY.

Current Diagnosis : Atypical Trigeminal Neuralgia, AND Trigeminal Autonomic Cephalalgia Unspecified (TACs)

Here is more info on TACs for those curious

Update: October 26, 2024

Surprised, I live.

For update on the ridiculous situation, I'm fine. On a lot of medications but it's cool.

In terms of neurology reports- below is my current medical documentation regarding all the nonsense, it's up to date. (some condensing)

She has been evaluated by multiple physicians including ear nose and throat (ENT), Ophthalmology,Neurosurgery and Dentistry. She reports a history of tinnitus dating back to childhood, as well as very limited sense of smell. She reports that in the fall of 2020 she noticed significant hyperacoustics in her left ear which was accompanied by a sudden onset of vertigo. She was seen by audiologist, and was found to have impaired vestibular reflex on the left. She was then referred to ENT who did not have a reason to explain this, and she then underwent internal auditory canal MRI. She does not have any issues on the right side and does not have any issues in her arms or legs. She continued to have further evaluation with MRI and MRA of her head which did not show any significant concerns for her symptoms or any vascular etiology. She more recently had an episode where she had a dilated pupil on the left side and presented to the hospital. She had vascular imaging of her head which showed no significant concern, and she was evaluated by Neurosurgery without any recommendations for any changes at that time. She has followed with Ophthalmology. Other than some photophobia at that time she was not having any significant symptoms. In addition to persistent, dull sensory symptoms in the left side of her face, she states she will have “flares” in which pain will significantly worsen and either radiate upwards towards her forehead or down towards her jaw bone. She states sensory changes and pain begin a the left tragus and never crosses the midline of her face. When she experiences these flares she will occasionally also experiencing photophobia. To manage the flares she will find a dark room and sit quietly. She states they generally do not last longer than 10 mins. She states that if she does not find a dark room, the flares progress into a trigeminal autonomic cephalalgia occurrence and last multiple days with increased pain.

I hope this is helpful to anyone who had been having pain with Trigeminal Neuralgia, Cluster headaches, or other cranial pain. The outcome is that this is unknown onset, and unknown when it will resolve. I type this currently with the odd sensation in my face as if I attempted to bite down incredibly hard on a ice cube, with my jaw throbbing and ear ringing a cool 750hz only on the left (here you go you curious animals)

Thanks for all your concern, live life to the fullest my friend

I have other ridiculous medical issues too. An autoimmune disease, some bone problems, I have a tendency to dislocate my left hip and left shoulder, oh and I went to the ER recently to find out I need to surgically remove my gallbladder, right after I had a consult with a sleep doctor who suspects I have narcolepsy, no joke. I have been cursed by fate because otherwise I would be too strong, clearly.

Be safe out there.

Update- 2025

Turns out my gallbladder got clogged. Ended up having to be raced to the ER at 4AM (after the pain starting at 2AM) and needing to get surgery.

I’ve got 4 nasty scars, a ton of GI and nutrient imbalances now. My inability to absorb Vitamin K has turned me into a pseudo- hemophiliac. My dude, they took my organ.

Oh, and now I have sleep apnea because my brain isn’t sending the signal to breathe (not obstructive- it’s central sleep apnea) which explains all of the exhaustion issues. They thought I may have legitimately had narcolepsy.

Lots of issues, but we are healing slowly.