#And if I get cured then extra yayyy!
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so hype in feb I’m going to get studied by a group of scientists bc of my apparently rare neuro disability. I hope they stick something in me.
#personal#i Spent all week going around without my crutches and noting my findings#I thought maybe walking more the way I used to (without any aid and trying not to limp if possible) would improve my gait#A week might not be long enough to find anything significant but so far- Nah! Made it worse actually which was surprising#So I’ll go back to walking with crutches and see if that changes anything#It’s really kind of mysterious bc no one tells me shit but I’m not worried about anything#My vibe is like idk whatever#If there turns out to be some bad shit like. Whatever. I’ve been thru worse and turned out fine.#And if it’s good then yay#And if I get cured then extra yayyy!#I am gonna try to go out without crutches more if I can. Is that smart? No. Will I anyways? Yes
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Finished Separate Ways!! Very fun and good, game play was so fun and I adore Ada so much did you know that?!?!! She was so fucking badass in every second. I love the extra costumes and accessories for Ada too, theyre so cute!! New Luis content was excellent. Just a couple of things to say, nothing bad tho!! Spoiler below the cut.
Why did we not fight Krauser as Ada?? That was one of my favorite parts of the og Separate Ways. I do like that we actually got to SEE that Wesker took Krauser off the island. Like see Krauser's body on a stretcher. Very inch resting. Sad we didn't get to fight him again tho.
How did Ada get cured of the plaga?? Like did she only get cured bc she puked up the worm and squished it?? That was all?? Weird that she could be cured like that. Also interesting twist to make her infected too.
Also just have to obsess over the opening cutscene with Luis's dancing and Ada's badass undercover nun beat down she gave the Zealots?!!! Like I was smiling so big the whole time that cutscene was incredible.
We got laser hallway!! Yayyy!!! And the new monster that gets decimated by the laser hallway was so fun. I like that Ada said it was excessive LMAOOOO
Collecting the ingredients for Luis and that whole bottle puzzle/knight section in the castle was very fun. I liked that a lot.
SUPER HAPPY this version did not have that part where you have to destroy the tankers bc in the og that part made me want to end my life. So glad they didn't use that.
The fact that the enemies steal Leon's jacket and Krauser's beret is the funniest shit to me..like they're just wearing it around 😭😭😭 and YOU CAN SELL THEM it's so funny to me.
Anyways I loved it so much and sort of want to start a new playthrough already!!
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I forgot to send on my voting story. Ok so my brother and I both got mail in ballots, and let me tell you how we both forgot to mail it in so we just thought to bring them to our voting location. The lady there kinda yelled at us? She was confused and didn't know how to go about it. And honestly I just took it because we were the idiots who didn't mail in our ballots. We had to rip them up and they just us new ones to fill out in person and submit. Not exciting, but a story for void snippet. 👀
Anonymous said: Hi!! I'm so excited for void! I voted today around 30 minutes before the polls closed in my neighborhood because I had to wait for my dad and brother to get home from work since they wanted to go all together hehe. It was a pretty fast process! We just pressed buttons on screens (compared to last election where we had to bubble in everything by hand) plus, I got to keep the stylus that they gave us and it works on phones too! 🥰🥰 Thank you! I love your writing so much 💜💜💜
Anonymous said: I did mine through mail me and my husband did and we went to the post office a little while back and then he took us on a nice little date afterward and we got ice cream! Also I love void💖 keep up the good work
Anonymous said: VOTES FOR VOID??? I love democracy and I love VOID! So since May I've (temporarily) moved back home from New York to Indiana RE: covid; I've voted absentee for the both the primaries and presidential election (I'm still in IN rn...blah). I voted early and mailed in my ballot for the presidential election (about 3 weeks ago). Made sure my family was voting (brother mailed it in, mom dropped off a ballot, and dad did early voting) and encourage them to put up a Biden sign in our yard <3
Anonymous said: HI BEE! I ALSO VOTED TODAY! IM 21 SO THIS IS MY FIRST TIME VOTING FOR THE PRESIDENTIAL ELECTION (my 18th bday didnt make the cutoff since im a december bday) im so happy to have done my part! I made sure to study up on the judges and policies and everything! Luckily the polling place didn't have a line so i was able to get in, get my ballot, and fill it in right away! I even dragged my mom and cousin to come with me. I made a joke on snapchat to encourage my friends to vote too. It was a pic of my "i voted" sticker with a caption saying "omg youre so sexy when you vote aHaha" -���
Anonymous said: this is my first time doing this so, so i hope i’m sending this correctly! i voted early in late september by mail! i live in a swing state, so it’s really important for me to vote and not waste time!! bc of my age, this is my first time voting so i’m really nervous 😅
Anonymous said: I voted by email! I'm overseas so I wasn't sure if my ballot would actually make it through in time, so I decided to go electronically. Had to sign a waiver saying I understand that my vote won't be anonymous but I haven't been given a reason to suspect voter suppression/fraud in my state, so I'm happy I think...!
Anonymous said: hi, i voted early on oct 24th. my absentee ballot didn't come in, so i had to travel back home to vote (~3 hour drive). when we got there, there was a ton of people outside the polling place, but no lines, so i was in and out pretty quick. it was my first time voting, so i had all the candidates i was voting for written down on a tiny receipt so i wouldn't forget 😅. my mom was with me, so she voted too. took a pic with my sticker (mask on for extra covid-ness) and went home. drove back the next afternoon!
whippedforkook said: Hi Bee. 💕 I voted in early October - nearly a month ago! 😱 It’s been really weird with all the lead up to the election because it felt like it should have been done once I cast my ballot! A lot of my friends have volunteered to get out the vote: writing postcards to voters, texting, phone banking, working the polls, curing ballots. I didn’t volunteer at all this year, but I hope that all of my friends’ hard work and everyone else’s is enough. I’m also hoping and praying that I will be in a better place mentally for 2022 so that I too can volunteer. Our work starts with 2020 not ends. 💕 Wishing you well. 💕
begineuphoria said: I went and voted last Friday as it was our last early voting day. No way was I going to wait until today with the crowds of people in my area that still act as if masks are somehow infringing on their rights. 🙄 It was a rather normal experience for the most part. Other than having to use a coffee stir stick to press the buttons on the machine to vote. In and out within five minutes.
Anonymous said: I voted down the street at this pretty park this morning. I got up at 5:30 and it was freezing. Luckily I wore like 30 layers and stood outside for 2 hours. Some nasty orange man supporters were rude but everyone else was pretty nice. A really cute older couple was playing soccer with pine cones and kicked it towards me to play too. Not the worst time tbh.
Anonymous said: Did mail-in voting in California! Extremely exhausting and took forever to research all the propositions - they are notoriously tricky in hiding their flaws and one side tends to outrageously outspend the other. But in the end I felt really good about my research and decisions! No need for you to post a snippet for this story - would like to save that to read sometime in the future ;) Thank you so much for doing this!
joonsgotthejuice said: Votes for void??? I am here! I went last Thursday and it was chaotic bc I kept going past the poll place but the line was soooo long so my mom called me and woke me up like "its pouring rain and the line is super short get up I'm gonna pick you up" so thats the story of how I got dressed in 5 minutes and dragged my ass to vote in the rain <3
Anonymous said: i voted early on thursday it was cold and rainy but i went in the late afternoon and thankfully the only waiting i did was a few minutes for an elevator i got very lucky and while waiting for the results is awful the relief that came from voting in general was just great
Anonymous said: Wheeew the polls just closed and I finally got to cast my ballot yayyy ( I was the one working the polls from earlier) it’s been a really really long day and we actually had surprisingly good turnout. I saw a woman try to vote for someone else who claimed to be “helping” and I saw a woman who I’m pretty sure was on some typa something 👀 Overall though I really I’m really thankful for people like you who encouraged people to get out and vote. I hope the odds are in our favor❤️🤞🏼
chelsea-chee said: Hello Bee! Today surprisingly my elderly father wanted to vote so I brought him out with me. He only cared about voting for Biden, which meant I got to help decide who he should vote for with the rest of the candidates and amendments! Say hello to baby bee for me as well! 💖
Anonymous said: Okay I gonna got a chance to vote today and the process wasn’t that bad actually. I went in just now and it wasn’t that busy( thankfully) so no lines. I’m from Texas and it’s gonna be almost impossible to turn this state blue, but every vote counts! I love that you are getting people to vote and also sharing your experiences as well!
owl-orgy said: Dropped off my mail in ballot at a polling location! I originally wanted to vote early in person because I was worried my signature wouldn’t match closely enough but ended up just turning it in and double checked today to make it said “ballot accepted and counted”!
Anonymous said: I voted in person this afternoon, better late than never I guess. I was gonna go last week but then I got cramps from hell. There was no one in line in front of me, I think my county early voted because it was packed everyday the last few weeks
Anonymous said: I voted early a couple weeks ago. Exciting thing though that did happen was I got both my parents to vote for their first time ever.
Anonymous said: I had a mail in vote. So, I filled it out and dropped it in at the ballot box at my library. (I also checked out books for the first time in years, so I had fun!)
bubblyjiminnie said: I literally just finished voting. Lucky for me, the line and wait wasn’t very long, and it was a nice enough day that the short amount of time I had to spend in line outside of the building wasn’t too bad. My social anxiety when it comes to stuff like this tends to be high but that’s what I get for waiting until Election Day instead of going the mail in route. This was only my second time voting, but I’m glad that I did 😊
Anonymous said: I turned my ballot in last week :)��I’m not a big fan of crowds and I hate make spur of the moment choices but despite that the first time I was able to vote back in 08 my Mom pressured me into voting in person because “you’d have to experience it at least once in our life”. And ever since then I comfortably vote by mail. I take my time, do all of my research, listen to music, and best of all don’t have to deal with people.
Anonymous said: here in Washington state it’s super easy to vote. I dropped my ballot off in mid-October and it’s already been accounted for! Mail in voting and drop box voting is fantastic and provides equal opportunity and access. Sad to see some people in red states misinforming Americans about it! We also have a referendum for implementing mandatory sex ed, including teaching respect, empathy and consent as part of the curriculum so I was happy to vote yes on that too!
unionrox006 said: I voted about 2 weeks ago by doing a mail in ballot. The other eligible to vote members of my household did the same. We chose to vote by absentee ballot because both my mom and I have an autoimmune disorder, so we have to be careful going out in the pandemic. Tbh, the ballot layout was a bit confusing at first as was all the paperwork and required IDs and documents. But my dad explained it to me and we got them filled out and mailed off. Kinda mad I didn't get a sticker for it though
bluetostone said: Love this and so excited for the next chp of void! I early voted a few weeks ago and because I live in a pretty rural county I was in and out of my polling place in a few minutes. No sticker though 😢. I live in a swing state so it could go either way in terms of delegates. Just praying everyone is safe tonight as the results roll in...though, won't we not know for sure for a couple of days or weeks?
Anonymous said: My mom, sister, and I received our early voting ballots a while ago and I took the longest to fill mine out because it was making me anxious :,( but I did return it before it was due. I checked our ballot statuses and mine and my moms were accepted but my sister’s said they hadn’t received hers back. Then she got another ballot so she filled that one out too and I took it yesterday 👍👍 I think she got two because she changed her address late so they sent two?
vixsynsblog said: Non-interesting voter story: I'm paranoid and live in a highly divided area, so I filed mail-in ASAP, mailed it a few days after cause neighbors are nosy and don't understand boundaries. Was able to track my ballot through my credit company, which was nice. Only thing I was missing was my sticker. Never got one✊😔. So I had to improvise and write it in pen on my disposable mask. I'm working all this week so if riots break out from either side, I'll be at work. Prayers for the safety of others🙏
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Waaah!!! Thank you all for voting!! You are all my heroes. I am so grateful and proud of you. I’m sorry I ran out of time to respond to you individually. I’m going to drop two big scenes from Chapter 7 in gratitude (one of which will be familiar to my patrons and one won’t). I’m hopeful I will have the whole next chapter out very soon. Love you all!
Void spoilers below the cut.
When you wake up in the morning, there are still no signed HR forms in your messages. Had you been a fool to think they were interested? How much time does it take to decide such a thing? Perhaps just by putting the idea out there explicitly, it had lost all of its taboo appeal.
There is a calendar reminder waiting for you: Today is chili pepper pollinating day. At least this gives you an excuse to talk to Hoseok.
You find the science officer in the lab as always, sitting with his knee up against his chest. Hoseok doesn’t look well. He’s got dark circles under his eyes.
“Hey, um…” You shuffle your feet. Want to fuck me? No wait…“You don’t look good. Were you here all night?” you ask.
He blinks at you, bleary-eyed. “Um, was I? Yeah.. I suppose. Lost track of time.” He rubs his eyes, before looking you up and down, then casting his gaze back to the floor.
All you want to do is ask about the forms. Or the meeting. Or what he thinks of you now. But you don’t. “I need to pollinate the chili peppers today.” Usually Hoseok is the person who assists with that. “But I can get one of the other guys to do it if you need the sleep.”
“No!” Hoseok lurches forward, standing up a bit to rapidly and needing to put his hand back on the bench to steady himself. “I mean, I’m fine.”
You should disgaree with him. He is exhausted. But you’d like more time to talk to him.
Pollinating the chili peppers is both time-sensitive and time-consuming, hence why it took two of you to get the job done. There were no insects on your ship to do the job for you and if they didn’t get pollinated, they wouldn’t bear any fruit. Your chili peppers were your favorite crop. Not only a vital source of Vitamin C, but all your food benefitted from having a bit of spice added to it.
You and Hoseok head for the greenhouse together. The intital set-up gives you something to talk about in the beginning. Hoseok gathers the pollen from one flower onto a paintbrush, then hands it over to you to paint onto the stigmas of each little flower on the next plant in the line.
Slowly the conversation dries up as you fall into a silent rhythm. Other than just enjoying the chili peppers, you must admit that this was one of your favorite tasks on the ship because of the high likelihood that the two of you would brush hands peridically. Always gave you butterflies. But today he seems extra intent on keeping his distance from you. Was he disgusted by you now? His hands are trembling.
“Are you sure you’re okay?”
His hand twitches so hard that a little rain of yellow pollen cascades onto the floor. He curses in frustration before turning to face you. “Are you sure you’re okay?”
“Um, yes, I’m fine. Why wouldn’t I be?”
���This, um, plan of yours…” he gestures to the vague tension in the air. “It doesn’t feel like you.”
“I’m trying to save the mission. That has always been my top priority.”
“Yeah, I’m still not clear on how this benefits the mission.”
“Yoongi said…” you start to say, but are cut off my Hoseok’s derisive snort.
“Look, if you’re in love with Yoongi, just go date him, okay? Don’t feel obligated to include the rest of us out of pity.”
You frown. “I’m not… I’m not in love with him. It’s just sex. Just biology.”
“This isn’t you!” Hoseok argues back. “You hated the idea of anyone of us ever treating you that way. And now you just want all of us to… to… use you like that?” He splutters out the end of the sentence.
“No one is using me! This is my plan! I’m in charge!”
He sighs. “Well, I can’t be a part of it. Excuse me.”
______
Taehyung finds you in the gym. It’s good to see him up and about, even if his arm is still in a sling.
“Hey, so I need to talk to you about this, um, ape sex thing.” He fishes awkwardly into his pockets and pulls out his tablet. Maybe Jimin was right. Is Taehyung going to be the first to take you up on your offer?
You pause your jog on the elliptical machine. You wish you weren’t so sweaty and gross for this conversation. Taehyung is such an intimidatingly attractive man with those strong eyebrows and that perfect skin.
Taehyung opens up the tablet and flips to the form. It’s happening. He’s going to sign the form. Shit. Then what will you do? It’s one thing to say you want to have sex with your whole crew, but what if he’s hoping to go right now? You need a shower.
Taehyung has really nice hands. Long strong fingers delicately navigating the touch screen. It seems totally improbable that a man this attractive would be into you, even if you were the only woman in the universe. It just adds to your suspicions that hormones are driving everyone crazy. Perhaps if you slept with him once, he’d lose all interest.
He finds the form and then turns his gaze up to you, staring you down with those eyes. It’s a good thing that Taehyung rarely turns his full gaze on you, because it is almost too much to bear. Shit, is he just going to sign it? Is he waiting for you to give him some sort of signal?
“You can’t do this to Jimin,” he says.
“What?” Not what you were expecting. “Do what to Jimin?”
“This.” He gestures over the HR form. “Signing these forms with everyone. Having sex with everyone. You’re going to destroy Jimin.”
“Jimin’s the one who suggested this whole thing in the first place.” It’s a lie. You know its a lie. Or at least a gross exaggeration. But Jimin was the one who first brought up the idea of sharing. All for the benefit of the man in front of you now.
“No way.” Taehyung scoffs, crossing his arms and raising an eyebrow. “No way was it Jimin’s idea that you sleep with the whole crew.”
“Well…” You can’t bear his gaze anymore and look down at the floor. “He wanted me to sleep with you.”
That surprises Taehyung. He puts down the tablet. “What? Why would he want that?”
This is awkward. “He, um, thinks you’re in love with me.”
“What?” There is only surprise on Taehyung’s face. It’s actually a relief to see that Taehyung is just as shocked by that idea as you were. “Why does he think that?”
“I don’t know…” You feel kind of dumb now. Of course, Taehyung doesn’t feel that way about you. Look at him. “Cause you told him you were jealous. Cause you can’t stand to be in the same room as us…”
Taehyung bites his lip. “Oh, um, shit, sorry, that’s not what I meant.”
If Taehyung isn’t jealous of Jimin...
“Taehyung…” He looks up, biting his lip. “What did you mean? Who are you jealous of?”
Taehyung’s eyes widen, but he doesn’t say anything. Instead he reaches for his microphone and mutes it. Out of respect, you mute yours as well. He glances toward the camera in the corner of the room, then stands up and begins unzipping his jumpsuit.
“Um…” You are distracted by the golden arms that peak from either side of the tank top as the zipper reaches his groin. “What are you doing?”
“Need something to block the camera.”
“We have towels,” you mutter. But he’s already stripping out of his shirt. The musculature of his back ripples. He hangs the shirt off of the camera to block the rest of the room from view.
“Yeah, but this way anyone watching will think we’re having sex.” His chest is just as attractive as his back and you flush at the sight of it. Mercifully, he zips back into his jumpsuit as he returns to his position in front of the exercise machine.
“You want them to think we’re having sex?”
“Don’t you? It plays right into your whole save the mission with bonobo sex plan.”
“I suppose.” Though the plan was also supposed to be that there would be no more secrets between the crew. “What plan of yours does it play into?”
“The one where Jimin doesn’t realize I’m in love with him.”
“You’ve never tried to tell him?”
Taehyung laughs wryly and shakes his head. “How would that conversation go? Hey man, I know we’ve known each other for years and I’ve already seen you naked and that you just think of me as a friend, but I’m in love with you. I know that’s awkward but now you have to spend the next twelve years with me, knowing that I’m attracted to you when you don’t feel the same way.” Taehyung sighs. “Doesn’t sound like a good plan to me. If he doesn’t feel the same way, I’ve just ruined the friendship for nothing and then I don’t even have that.”
“Yeah… I get that.” There’s something touching about realizing that Taehyung has been fighting the same battle as you for the last two years.
“I couldn’t tell anyone before launch because what if they wouldn’t let me go then? You know?”
“Yeah, the director wasn’t big on sending anyone who might ‘complicate’ the mission.” The two of you share a sad knowing smile.
“Yeah… And I thought it would be fine, you know? I like women too. I’d just date women until launch and no one would know. I wasn’t planning on falling in love with my roommate.”
“I don’t think any of us really knew what this would be like.”
“I knew it was going to be a problem. I should have pulled out…”
Your mind flashes back to that moment of doubt when Hoseok talked you into still coming on the mission.
“But I couldn’t just let him go off into space without me. Even if he’d never feel the same way, at least he’d still be in my life.”
The emotion in Taehyung’s words makes your eyes begin to mist. “You really do love him.”
“Yeah,” Taehyung sighs again. “But he’s in love with you.”
“Well, he thinks he is.”
“What does that mean?”
“He only feels like that about me cause he thinks I’m the only option.” You wonder if maybe he would feel differently if he knew about Taehyung’s feelings.
Taehyung frowns and shakes his head. “You don’t give him enough credit.”
“Oh come on, you know him. How many women did he date while we were in training?”
“A few…”
“And how many of them was he in love with before he found the next one?”
Taehyung bites his lip. He can’t really argue with that. “So why are you with him then, if you don’t think it’s real?”
You shrug, rubbing your arm. “He wants me. It’s nice to feel wanted, I guess.”
“You know you could have that with any man on this ship right?”
You scoff. “They’re all suffering the same delusion. It’s only-available-vagina syndrome. I just want us all to fuck and get it out in the open. Maybe if we could get it out of our system, they would see I’m nothing special. And then we can get back to the mission.”
Taehyung eyes you up and down. “You don’t give yourself enough credit either.”
You shrug. “You wait and see. Jimin will get bored of me. They all will.”
The two of you both slump backwards in your seats, mulling over your shared woes. Taehyung bends down and picks up the tablet again. “So what should I do with this?”
“Obivously, you don’t have to sign it. I should have realized that not everyone would be interested.”
“Jimin thinks I’m in love with you?”
“Yeah…”
“Is it okay if we let him think that for now? At least until I figure out how to tell him the truth?”
“Okay.”
Taehyung smiles and signs the bottom of the form, then sends it to you. Your phone lights up with a message. “Thank you,” he murmurs before he leaves.
#I'm not going to answer asks about the spoilers right now#because I want people to be able to avoid them until the chapter drops#but that should be sometime in the next week or so#votes for void
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Holy hell it has been a century and a half.
Yayyy. I'm alive and breathing. Now. For the lo and behold update.
I had about a 10 day hospital stay at the mayo clinic. I had two hospitalizations back to back. In between those hospital stays I had appointments and such. The verdict isn't the happiest.
But on one note we did find a feeding tube formula that works for me. For now at least. It's a pre-digested formula so that my small Intestine doesn't have to work as much as it did. It's not a perfect fit. As I have to stop feeds for a few hours 2-3 times every two weeks or so due to severe GI symptoms from it.
But after I stop the feeds for a few hours and give my GI system a break, all is well and I start them back up. I also never did get to my goal rate. (Which was 60 ml/hr.) But I'm ranging about 50-55 ml/hr. So it's fine. We are low on options so this is what we have to work with.
Now, what in the world is happening to my GI tract?
The simple answer is just Ehlers danlos syndrome complications.
The more detailed answer is as follows;
Basically because of my EDS and the particular type of EDS I have makes it manifest mainly in my GI tract. It's really screwing everything up. So, from my stomach all the way down to my large Intestine, the way that the muscles move, my parasympathetic nervous system (the nervous system that tells your GI tract to digest stuff), malabsorption, and motility have been affected from it. So everything that could go wrong in your GI tract is screwed up.
We don't know what the future will hold. This combination of conditions is quite rare and generally happens only to people with connective tissue disorders like Ehlers Danlos. There's no treatment, there's no cure.
But for now we are taking things one day at a time. We don't know if things will progress to the point I'll be in intestinal failure or if things will be stable like this forever. It's an extremely high doubt that things will ever improve for me. But that's okay.
Also due to my GI complications, we have decided to do weekly infusions to combat the dehydration and or vitamin deficiencies. For example if I need extra sugar, I'd get saline + dextrose, or of my potassium is low I would get potassium and the saline mixture. And generally just your normal saline infusions otherwise. I get these infusions two times a week. Whoo. And so far they've been helping quite a bit!
Now due to the last few months, my veins have taken a HUGE killing. And we've basically run out of IV access. RIP. (Minus one vein. Please last Mr. Vein. I believe in you!)
So we have officially decided to do a port-a-cath for my infusions, bloodwork, etc. Which means I'll be undergoing another surgery. But it's fine. We've talked about other central lines and this was our best bet for long term use.
I don't know when my surgery will be but hopefully I'll hear back from my surgeon either friday or this next week!
I'll try to keep you all updated on my port journey. Until then if you all have any advice/tips on ports please let me know!!
Eventually I'd like to do home infusions so that I'm not at the hospital so often. Sense I'm there about 3-4 days a week between infusions and Physical therapy. RIP.
But this is my update. Things are stable and we have added new therapies to help everything out!
#spoonie#chronic illness#ehlers danlos#chronically ill#spoonie life#eds#ehlers danlos syndrome#spoonie problems#ports#central line#port a cath#infusions
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