#(and obviously how much any of those scenarios hurts is a ymmv deal depending on your opinion of the characters so it hurts more for some

[queen-scribbles]

After finishing dailies, since the internet or whatever was still cooperating, I ran Animira through a bit more of the story(she’s up to KotET ch 5 now) and I gotta say, while on my first time through I really liked how cool they made Torian and Vette, I have very mixed feelings about it now. :|

On the one hand, it’s cool they get more content. On the other, BioWare’s just making sure everyone thinks they’re cool before making you pick which one gets to survive a few chapters later. Now, this is at least better than DA:I, when you had to pick between Hawke and Alistair/Stroud/Loghain bc at least they made sure everyone was emotionally invested in the characters involved, whether or not you’ve played a Hunter/Warrior. BUT it really feels like they only want you invested so it hurts more when one of them dies no matter what you do, which seems kinda :| to me. I like it when games make me care about the characters. It’s great. But this case, to me, feels like they’re just trying to cause more Emotional Pain. Stop trying to recreate Virmire BW, it’s not going to happen.

[thistangledbrain]

I think I’m going to add Day 28 a day early, because I just finished it. This one took me 3 days to write...I had to keep putting it down. I think because meltdowns are our strongest reminders that we are NOT like other people, and that can be hard to accept sometimes, especially when we’re trying so hard to blend in or go along. Also, meltdowns are when we are in a raw, illogical space - which is highly unsavory, to put it mildly. We are vulnerable. Naked. Stuck. Entirely in fight or flight mode - or both. For as baffling and upsetting as you find it to be - trust me, we aren’t having a good time, either.

*takes a deep breath*

Ok, here goes.

Day 28

“Dealing with meltdowns”

Well, this one’s fun. (sarcasm)

I’m glad I got a few days ahead, because this one is hard to think about, so I keep putting it down and then coming back to it. I asked my youngest some questions, but he didn’t want to talk about it, either.

We hate meltdowns. It feels like the whole world is ending/everything is crashing down at once. I don’t CARE if what triggered it was “small” - all the repressed stuff we’ve been trying to squash comes crashing in like the fuckin Kool-Aid Man through a half open door.

But, I’ll start with how you can help.

First and foremost: DO NOT TOUCH!!! NO! BAD NEUROTYPICAL!! NO TOUCH!! (One exception: if we’re trying to blindly bolt from our environment. STOP US.)

I know this is completely counterintuitive to typical human nature, especially with young children. You want to scoop them up and cuddle them and make them feel safe. Sorry, but you just did the opposite of that - you freaked us out even more, and your need to touch and comfort is entirely yours, in that moment. Let us come to you if we want physical comfort - when we do need that, we can be like clingy little monkeys (and if an Autie child clings to you during a meltdown, you *honor* that shit & throw all the loving calm energy you can out there for them - do not say anything or try and talk them out of it - just let them cling to you and cry. Literally - JUST be there). I will say, AFTER the meltdown, we will possibly need some reassurance and kindness, if you can manage it. We will sometimes allow holding when we don’t feel good, with our absolute closest humans, but generally we really want you to just be there but not touch, until we’re ready. Lots of us don’t really want you to leave altogether, at least not for long - even if it seems like we do.

If you want to help, start with keeping your energy (your “vibe”) as calm, gentle, and peaceful as possible. Try not to get frantic or frustrated. If we’re at home or in a familiar space, do things that make our space feel better - drop the blinds/make it dark, place our weighted blanket over us/find our stuffy if we have one, light a candle or burn sage/waft a favorite calming scent, like lavender. If you say anything, use a soft, gentle voice - try not to talk too much...but if you sing, that can be very soothing. Sing very softly - I don’t know why, but soft singing and rocking (if you can stay on key...sorry but it’s grating when the tune is off!) can go a long way towards calming. Things like this can head a total meltdown off or stop it in its tracks, sometimes. Or get us out into an environment that makes us happy (like a nature trail)...but if we’re past a 4 (I’ll explain in a moment), we might not be willing to.

If we’re in a school setting, get us out from under those GOD DAMNED FLUORESCENT LIGHTS...YOU might not pick up on their eye-and-head hurting flicker, but we can. They suck even when we’re in a GOOD mood. See if you can get us into a darker room, or at least one without those &$@!;!! lights. Small things like bright lights, or sounds that usually only cause mild annoyance can become HUGE - for example, my dogs. In my best moments, the sound of them licking themselves will set my teeth on edge - if I’m trying to come out of a meltdown, those sounds - or almost any sounds, really, except white noise stuff - are infuriating. I hate to say that, but 🤷🏻‍♀️ it’s just true. All your sensory shit is dialed to 11 and someone broke the knob off - there is NO “just deal with” whatever, at that point. We aren’t dealing with SHIT right then, so removal to a quiet spot is pretty damn important.

Try to distract or divert us before we’re over a 4 on a 1-10 scale, though, and absolutely before we start looping (the suggestions so far are for when the meltdown is in/almost in full swing - and I’m only speaking for older auties and into adulthood, here, though most of this stuff helps littles, too).

Let me explain “escalation scale” and “looping” - with the help of my husband, who recognizes patterns of escalation as well (in us, and in dogs ☺️). “Looping” is his word. It means no matter what you say, we keep looping back to what’s got us upset/how much we hate ourselves right then/all the bad feelings/past hurts that are piling on to the current problem. You’ll pull us out of it for a second, but then we loop right back to it. Ideally, you want to intervene before we get to the looping, which is about a 7+ on the escalation scale. Once we’re at a 7 and above....we’re consumed by it, and it gets much harder to diffuse. Think of the 1-10 scale like this: 1 is calm, 10 is completely nuclear - above a 7, almost nothing will distract us, almost nothing will divert us except bodily removal from the situation/environment & then leaving us the fuck alone (maybe figuratively but not literally - it depends on your Autie) for a while until we exhaust ourselves one way or another. If you can intervene and remove/distract right around a level 4 - which is right when you start to notice someone is getting quite agitated, you’ve got a good chance of heading the meltdown off at the pass. But if we’re already looping - repeating phrases over and over, looping back to our most upsetting feelings no matter what you say or do, sometimes while rocking or banging, you’re way too late. Now we have to ride it out together...as safely as we can manage. Now you need to make things dark, private, and as calming as you can, if possible. Or just get us the fuck out of the situation that set us off. That helps, too...obviously. I’ll tee up a possible scenario: you’re at an amusement park with your Autie. WHOA stimulation, right? You’re all having a fab time, but suddenly your Autie starts to cry or get angry or otherwise exhibit “I am SUPER OVERWHELMED” energy. 🤷🏻‍♀️ It’s just a lot to process, even when all the things are pretty fun. So, find a quiet place in a park like area to chill. Grab food from a stand - or go back out to your car and sit and eat a packed lunch or have some snacks. Don’t make a big fucking deal about it, either. Just “oh okay, I think now’s a good time for a quiet break”. Keep in mind all autistics are living in a sensory rich environment, and it can get mega overwhelming sometimes. It’s not always bad shit that sets us off.

I’ve mentioned in prior posts how it can feel like someone else is driving the car (controlling the emotions), while we sit in the back seat and scream and hit and try to get them to stop the fucking car and let us out...it’s in these moments that I TOTALLY understand how doctors got autism and schizophrenia mixed up, in years past. At least, that ripping in half is what my youngest son and I feel. YOU’RE frustrated with us right then? BRUH. WE are so fucking pissed and frustrated and upset that we can’t stop the car, too. You’re not helping if we know you are frustrated, either - that’s why I mention keeping your “vibe” as level and gentle and “no biggie” as possible.

I have some tips for head bangers and stuff, that I won’t include in this post but I’m happy to tell you what I’ve done/what can work.

Basically? “Dealing with” meltdowns is just....TRY SHIT. If you’re an Autie trying to manage your own, play around with what helps you calm down. It could be a brisk walk away from anything human, time under your weighted blanket, time in a dark warm shower or tub (idk about you, but in this house - water soothes nearly anything, most of the time), holding your pet, screaming all the cuss words you know into the void lol ....and the same methods might not work all the time (I was “feeling unsubstantiated feelings” the other day, and got into the shower before they overwhelmed me - a usual go to - but this time, the water felt disgusting, being wet just made it all worse. It surprised even me, but you gotta roll with it & try something else). But try as hard as you can to do something that will soothe you. Or find a safe place to let it all out, without hurting yourself. Pro tip, though: do not add alcohol. It not only takes away all the barriers you’ve probably put up to keep from going completely off the deep end, but it also magnifies all the bad feelings. I am, however, a big fan now of smoking a little green. I started trying that about 3 years ago and oh my god where has this been my whole adult life. I can’t take antidepressants or even most anxiety meds...but I can smoke. I use carefully chosen calming and pain relieving indica strains - sativa can sometimes make me feel more anxious. (YMMV)

If you’re the Emotional Support Human™️ of a melting down Autie, the same applies. Just try stuff. Trust me you will know if said Autie finds your efforts upsetting. It’s ok to want to talk to us about it afterwards, in a constructive way. Once we’ve calmed down, we know you’re trying to help. We’re raw and exhausted immediately after a meltdown though (meltdowns usually lead to shutdowns), so give us a little time, maybe. Or maybe not - maybe your Autie will be in a more communicative frame of mind, since it’s fresh. You won’t know unless you ask, maybe like “could we talk about this, or would you like some time to be quiet?” (Again - gentle tone and energy is important.)

Meltdowns are hard for me to write about because these days, they’re super rare, but when they happen, they’re ...well, brutal. Like really, really bad. I had one a few years ago that I think terrified my husband. We were in the car. I was getting so upset (screaming, beating my fists and probably thrashing a little) that he had to stop the car. Luckily we were in the boonies, but...not long after he stopped the car, I attempted to bolt. I felt trapped in between his efforts to soothe and the small confines of the car, and just wanted to bolt. Run. Far away. There was ZERO thought of personal safety at that point. His efforts to contain me were met with violence. I will be ashamed of that for the rest of my life - I don’t even have words for what an amazing human my husband is, and the LAST thing my non-melting-down brain wants, is to hurt him. But all I could think about was doing whatever needed to be done to escape this hell I was in. God. Just writing about it hurts, and I feel fresh shame. I’m telling you all this, so that you understand that *in that moment*, we are a cornered and overwhelmed animal, who wants to just bite bite bite or run away (fight/flight). The things we usually cling to - logic and reason - don’t exist right then. Nothing is logical - which actually adds to our upset.

There may be a time when your Autie feels like this too - and that’s one time where you DO need to intervene even if we don’t like it/hate it/get furious with you for it. If we are trying to hurt ourselves or run, do what you need to to not allow that. I truly believe this is how many young Autie kids get lost - we were upset and we just bolted blindly. We don’t react well to you stopping us....but it’s necessary.

There’s a moment in the Disney movie “Soul”, where 22 becomes a lost soul. Her little bright blue body is engulfed by swirling blackness, and inside that blackness is every bad or negative thing that’s ever been said to her. She starts looping - “I’m not good enough”, “I have no purpose”, over and over and over. This is what a meltdown feels like. In the movie, her mentor quietly hands her a small token reminder that starts to make the blackness melt away - it’s not the token that “society” thinks she should have, it’s a personal one. Shouting at her, blah blahblah talking, trying to reason with her makes her hiss and run away - but *quietly* handing her a tactile object that means something to her, brings her back to the present, and is what breaks the looping.

Here’s the clip of when he breaks through her meltdown. I hope it explains things in a way I’m struggling to. I’ll end with that...if the subtitles distract you, I apologize, I can’t find a “clean clip”.

https://m.youtube.com/watch?v=nmapZFDUkBk&t=41s