. Rare autoimmune disease. 馃Borderline personality disorder. ADHD.Started IVIG infusions 5/9/18.
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Guess who gets to spend Saturday night in the er?
Me, I do.
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2/20/25
Discomfort is kicking my butt today.
I鈥檓 doing my haus wife chores. Laundry, dishes, cat box.
But I鈥檓 in pain, and exhausted.
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2/18/25
Migraines suck.
I took an adderall, gabapentin, and migraine pill.
I鈥檓 starting to feel a little better.
Look at the beautiful roses my boyfriend got me for Valentine鈥檚 Day. 馃挆
Im gonna keep the petals in a jar. Maybe I will walk to goodwill tomorrow to get one for them. I鈥檝e never been given a bouquet of flowers before, so these are very special. I think my boyfriend was a little sad, I had never gotten flowers before, but was very glad to be the first to give me some.
I wasn鈥檛 expecting flowers cause they are $22 a dozen. They jacked the price up for Valentine鈥檚 Day, boy did he come through for me.
#chronic illness#chronic life#autoimmine disease#chronic migraines#spoonie#chronic pain#love#valentines day
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I just took a pregnancy test.
It was negative.
I鈥檓 heartbroken and relieved.
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Im starting to feel better.
I have a mark that is red and constantly has scaly skin on it. Now it鈥檚 starting to feel sore.
My appt is 2/17.
I wish it was sooner cause this makes me nervous. 馃槵
And the wait time to see a dermatologist. Then get done what I need done.
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I have an ear infection. It鈥檚 causing nasal drip and I sound like a frog that smokes 3 packs a day.
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12/31/24
This yr wasn鈥檛 a bad year. I was in the hospital once for low sodium levels.
I met my boyfriend who I鈥檓 madly in love with.
Yesterday my wife bought me a heated blanket; king sized.
I love it. I have it on my bed and it鈥檚 underneath me. Keeps me perfectly toasty. I can鈥檛 wait to take it to my boyfriend鈥檚 home. He keeps his bedroom at 60掳. So this will feel amazing at his place.
My boyfriend鈥檚 ex and daughter are visiting, they are staying with him. They don鈥檛 leave till after his birthday which is Saturday. I don鈥檛 get a new yrs kiss from him or get to spend his birthday with him. I鈥檓 bummed about that. I鈥檓 excited to see him again.
Health wise I鈥檓 no better or worse. I have my days. Right now my left hip is hurting, but my heated blankie helps with the pain.
Right now I鈥檓 writing in my journal and watching Lady Gaga on YouTube.
Have a happy and safe new yrs everyone. B
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12/30/24
Update I didn鈥檛 get Covid. I didn鈥檛 get sick and tested negative today for Covid.
Damn
I was with my dad and I he and my 2nd mom tested positive for COVID.
Masking up tomorrow for sure when I go to work.
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路
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Damn
I was with my dad and I he and my 2nd mom tested positive for COVID.
Masking up tomorrow for sure when I go to work.
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路
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Cleaning and listening to Christmas music.
It took me forever to get started this morning.
Last week I feel run down and out of it completely. My IVIG helped that as it usually does.
I worked 3 days (Friday, Saturday and Sunday.) in a row, 8 hr days.
I鈥檓 off work now till Saturday now.
I don鈥檛 get to see my boyfriend for like 3 weeks. I didn鈥檛 see him last week either. It鈥檚 cause his daughter and his ex are staying with him. He doesn鈥檛 want me to get to get mixed up with ex drama. They are also staying with him too. So I鈥檓 glad he gets to see his daughter, but I will sure miss him. I鈥檓 not looking forward to not seeing for that long, but I can鈥檛 do anything. Children come first.
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