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fllowerlove · 10 months
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i found out its entirely possible that my mom and i are going through the same musculoskeletal pain condition ( s ) and my moms just a veteran and old and when ur in chronic pain you dont have the option to just sit down and die you HAVE to push through and like
:3 very nice convo w my mom right now
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fllowerlove · 10 months
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shoutout to every person who deals with incontinence. i dealt with bedwetting up until my early teens, and now deal with stress and urge incontinence and for years never wanted to talk about it because of the shame and stigma other people place on not being able to control your bladder or bowel movements.
incontinence is a disability. it's not gross or wrong to talk about incontinence. incontinent people are not dirty or disgusting. if we could control these parts of our body, we would. we're not an inconvenience for being this way, and we don't have to be treated like a burden or like we need to be "fixed".
whether or not you use incontinent products like briefs, pads, diapers, plastic bed sheets, or whatever else, you are loved, important, and deserved to be seen when there are conversations about disability awareness and acceptance. we don't deserve to hide in shame when all we need is to be accommodated and accepted.
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fllowerlove · 10 months
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People have repeatedly asked me why I’m so scared of driving and quite frankly I think I hold a normal amount of fear towards driving. I think most people could stand to be a little more scared of driving tbh
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fllowerlove · 10 months
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too many ppl st school r calling me old and crippled … like … haha ur so funny stop calling me crippled tho lol !!
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fllowerlove · 10 months
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having issues sitting blows because after a nice long day at school my knees are on fire and i just want to sit down in my chair and play ipad and then i sit down and my hips shoot pain up and down my body …
and then i lay down and my neck hurts . this sucks balls .
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fllowerlove · 10 months
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i did in fact not see the doctor my mom yelled at me 💔💔
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fllowerlove · 10 months
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doctor in 2hrs . very scare …
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fllowerlove · 10 months
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thank you tumblr expert !! i havent been on this site since 6th grade and i didnt post i was just very mentally ill …
new to tumblr , can someone tell me why ( in reblogs ) people respond / continue in tags ?? / gq
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fllowerlove · 10 months
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i think when some of you say "neurodivergent" you just mean adhd and autism
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fllowerlove · 10 months
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new to tumblr , can someone tell me why ( in reblogs ) people respond / continue in tags ?? / gq
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fllowerlove · 10 months
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for anypony else who struggles with standing AND sitting ( and therefore needs / prefers ) to bathe , but also has chronic neck pain that worsens when laying down ( nichepost ik ) YOU NEED TO GET A BATH PILLOW !!
bath pillows personally saved me in terms of hygiene , and bathing helps my joints a lot . my one problem was that my neck hurt SO MUCH and i had nowhere to put my head !! my mom got a shower stool when she was pregnant and it came with a cushion and omga … ^__^ i love
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fllowerlove · 10 months
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THANK U SO MUCH !! a lot of my friends before i used a cane DID notice i walked with a limp and hung onto furniture for support , and it sucks that we have to exaggerate things for doctors :-(
ermm first post ,, but i gen need sum advice for this !! i believe im physically disabled to some degree , and dont know for certain how long my pain / fatigue / balance issues have been present , but i know that my pain has been unmanageable for almost a yr 1/2 now , and ive been using my cane for a year .
my mother does not let me use my cane , but i have a folding hurrycane that i saved up for quite some time in order to get . i use my cane at school and when i hang out with friends , but not at the grocery store / other stores with my mom .
my mother does not believe in doctors , as her veteranship has given her a " new socks + ibuprofen " attitude . the adults in my life believe i am being dramatic , but not that im faking . so after countless months of begging and reminding , i finally have a physical appointment this monday ( dec 11 , 23 ) . my need for advice is how do i get a doctor to take me seriously ??
i havent been to the doctor since i was ten , and that was because it was required , as i had moved into a new school district . that was my last physical , and the first time i ever remember going to the doctor ( that is not the dentist , optometrist , or psychiatrist ) .
below is a descriptive explanation of my pain , fatigue , and balance issues and how they ' ve affected my life , just in case theyre needed .
my pain may have been present all my life , and due to familial issues , i cannot fully understand my genetic history .
anypoo ,,, my pain is most present in my major joints ( ankles , knees , hips , and shoulders ) , but is also present in minor joints ( fingers and toes ) , back , neck , and the base of my skull . these areas always in pain , and i always notice it . my most sensitive areas are my knees , hips , and traps ( neck / base of skull ) , and my legs start to hurt ( worse ) / feel unstable without support . i cannot shower because my knees will give out , and i have completely switched over from using the stairs to using the elevator because i have often fallen down them .
my fatigue sets in before school lets out ( around noon ) , and often keeps me from working , walking for long periods of time , eating , and other activites . often when i get home , i have no energy left for anything else . i just sit in bed and fall asleep at 8 . i am failing nearly all my classes because i have not had my vyvanse in 9 months , and my brainfog is intense .
i am very unsteady without support , causing me to rely on my cane more than i should , resulting in more shoulder pain from putting too much weight into it . i have looked into rollators and forearm crutches , but none of those can be used around my mother without reasonable diagnosis . at home , i use the furniture to support me , and often crawl up the stairs ( townhome problems . ) and if im not , i rely on the handrails to practically pull me up , resulting in ... MORE SHOULDER PAIN .
i just want this to end . i told myself id be mad at my mom if what i have is curable , but id be even more mad if its chronic . i used to be in marching band , and i was cut from marching due to my pain genuinely affecting how i marched . i love walking , i walk everywhere . i love so many things ive had to give up , and i fear the doctor will just tell me to exercise more instead of giving me concrete answers .
any and all help would be appreciated :-(
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fllowerlove · 10 months
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i hate the city bus . its popular among students in my area , as its free with valid student ID and i live in a relatively nice area .
why do you hate the bus ?? its free and safe !! i hate getting on the bus with my peers . the bus is a common option , and the specific route i have to take floods with students two stops before mine . abled bodied students sit in the disabled seating , even the wheelchair seating , and upright refuse when i ask for someone to move so i can sit .
i hate getting on the bus after school too . the other students who wait for the bus at the same time i do are nice enough to let me get on first , and im glad , but i feel like a dick for it .
i cannot stand on the bus . i have been forced to lean on my partner while the bus was in motion because without him , i will fall . i have fallen before , and i still wasnt offered a seat .
i hate high schoolers .
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fllowerlove · 10 months
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ermm first post ,, but i gen need sum advice for this !! i believe im physically disabled to some degree , and dont know for certain how long my pain / fatigue / balance issues have been present , but i know that my pain has been unmanageable for almost a yr 1/2 now , and ive been using my cane for a year .
my mother does not let me use my cane , but i have a folding hurrycane that i saved up for quite some time in order to get . i use my cane at school and when i hang out with friends , but not at the grocery store / other stores with my mom .
my mother does not believe in doctors , as her veteranship has given her a " new socks + ibuprofen " attitude . the adults in my life believe i am being dramatic , but not that im faking . so after countless months of begging and reminding , i finally have a physical appointment this monday ( dec 11 , 23 ) . my need for advice is how do i get a doctor to take me seriously ??
i havent been to the doctor since i was ten , and that was because it was required , as i had moved into a new school district . that was my last physical , and the first time i ever remember going to the doctor ( that is not the dentist , optometrist , or psychiatrist ) .
below is a descriptive explanation of my pain , fatigue , and balance issues and how they ' ve affected my life , just in case theyre needed .
my pain may have been present all my life , and due to familial issues , i cannot fully understand my genetic history .
anypoo ,,, my pain is most present in my major joints ( ankles , knees , hips , and shoulders ) , but is also present in minor joints ( fingers and toes ) , back , neck , and the base of my skull . these areas always in pain , and i always notice it . my most sensitive areas are my knees , hips , and traps ( neck / base of skull ) , and my legs start to hurt ( worse ) / feel unstable without support . i cannot shower because my knees will give out , and i have completely switched over from using the stairs to using the elevator because i have often fallen down them .
my fatigue sets in before school lets out ( around noon ) , and often keeps me from working , walking for long periods of time , eating , and other activites . often when i get home , i have no energy left for anything else . i just sit in bed and fall asleep at 8 . i am failing nearly all my classes because i have not had my vyvanse in 9 months , and my brainfog is intense .
i am very unsteady without support , causing me to rely on my cane more than i should , resulting in more shoulder pain from putting too much weight into it . i have looked into rollators and forearm crutches , but none of those can be used around my mother without reasonable diagnosis . at home , i use the furniture to support me , and often crawl up the stairs ( townhome problems . ) and if im not , i rely on the handrails to practically pull me up , resulting in ... MORE SHOULDER PAIN .
i just want this to end . i told myself id be mad at my mom if what i have is curable , but id be even more mad if its chronic . i used to be in marching band , and i was cut from marching due to my pain genuinely affecting how i marched . i love walking , i walk everywhere . i love so many things ive had to give up , and i fear the doctor will just tell me to exercise more instead of giving me concrete answers .
any and all help would be appreciated :-(
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