disabled-disaster-king

[disabled-disaster-king]

bastille has done more for the queer community by just making all of their love songs about "you" instead of specifying a gender than taylor swift has in all of her discography. thanks for coming to my ted talk.

[disabled-disaster-king]

I think some of us ambulatory wheelchair users are getting pretty close to (or already are) throwing full time users and higher support needs disableds under the bus. And that shit needs to be shut down NOW.

It's the problem of: "how dare they treat us like those people!"

The problem with ableists isn't that they assume we can't walk The problem is they assume we don't need our wheelchairs if we can. That we don't need our handicapped placards or transport vehicles. That we are taking advantage of other "actually" disabled people, that the ableists also don't give a shit about unless they're using them as an excuse to be ableist.

The problem with ableists isn't that they assume we are intellectually and/or developmentally disabled. The problem is they assume that every intellectually/developmentally disabled person needs to be treated with baby talk, dismissal, and ignorance. That they don't see them as people and refuse to listen to intellectually and developmentally disabled voices without making fun of them.

Stop throwing people with higher support needs under the bus. Stop doing what the abled neurodivergent community did to all physically disabled people. Us cripples gotta stick together and fight for one another, not push one down to make ourselves somehow look better to ableist fucks.

[disabled-disaster-king]

being full time wheelchair user terrifying because. you’re totally dependent on this thing. this thing that often you don’t have control over. something breaking can be put it and you out of commission for weeks at best & usually months. can’t use it “carefully” & “sparingly” because you depend on it to go essential places. to perform “basic” life functions. its maintainance & repair & production quality, totally out of your control. “if production bad quality go downhill, boycott & hurt company profit to show consumer voice.” don’t really apply here. because you. can’t exactly go without it. n companies know.

[disabled-disaster-king]

Body positivity comes off as very aggravating to me and some other disabled people I know (not everyone obviously)

It's just annoying when there are signs and posters everywhere saying things like "love your body for everything it does for you!" Cause, like no? I'm sorry but I don't like my body, it's defective and causes me a lot of pain. But I also think part of what confuses other people when I talk about this is that to me, my body is not me, it's just the vessel I live in. I don't identify myself with it and quite honestly I do not like it.

But I also happen to think that it is very attractive, but like as an observation not a moral or value based thing. Even if I thought I was unattractive so what? That doesn't mean anything about me as a person doesn't make me less then those I find nice to look at.

Idk I just don't like when I try and talk about how I hate my body people dismiss that and tell me all the reasons I should love it, it feels very dismissive of my lived experience. That's not to say I think people shouldn't love their body power to them if it makes them happy but dont try and force me to love what limits and hurts me.

[disabled-disaster-king]

The spirit of Diogenes is alive and well

[disabled-disaster-king]

[disabled-disaster-king]

I know I and many others talk often about the negative and hard sides of disability so here are some good things that I've experienced that may help some other people find things to enjoy that aren't just ~think positive~ ~do yoga~

First thing! Sports I absolutely love sports and one of the hardest things about my mobility decreasing as I grew up was that I lost the ability to do a lot of what I loved. Para sports are amazing and it is always good to be active and exercise as well as just lots of fun, they are also the main way that I connected with other fellow disabled people and found community. Lots of city's and towns have free programs where you can try out different para sports and those are great ways to figure out if you want to pursue one in specific. I personally play competitive para hockey as well as other wheelchair sports like wheelchair basketball and tennis.

Get into crafts that are practical for your every day life, decorate your mobility aid, sew adaptive clothing take a cooking course so you can better accommodate your own dietary needs, do art therapy, crochet or knit bags and organizers to hold your things!

[disabled-disaster-king]

I feel like people misunderstand how finally being listened to and having a diagnosis, a "reason" for what's wrong.

Because, I my family was pretty sure they knew what was wrong with me, it was just a struggle to find someone who was able to test and confirm or deny what was going on. I would tell people that my family doctor suspected what I had based on my family's history and people would ignore that because it wasn't written in my chart so I must be doing it for attention. So yeah I was relived when I got diagnosed because it was confirmation of what I suspected but more so because it allowed me and my doctors to know what treatment to do and what to not do.

However being diagnosed with an incurable problem was devastating, I didn't want it to be true, I was desperately hoping that I did not have it because I knew what that would mean. I didn't want to be diagnosed I wanted to be told definitively that I did not have this and it was some other fixable thing. Not just dismissed I wanted the doctor who said it was in my head and all somatic to be right because that was somthing I knew could be treated and had the possibility of remission. I did not want it to be real.

I feel like that's an important thing to recognize that yes, I was happy to finally know what was wrong but having that confirmation was also incredibly devastating.

[disabled-disaster-king]

sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?

accessibility to wheelchairs is more than just a ramp.

[disabled-disaster-king]

Just went through my seating assessment for my new chair! Looking forward to it cause my current one has some faults definitely lol.

[disabled-disaster-king]

Ambulatory wheelchair used does not mean that they can just get up and stand or walk for a lot of people. Ambulatory just means that in some capacity you can stand or walk even if it is only with extensive support and only for a few seconds. Not all ambulatory wheelchair users have a choice to use a wheelchair or when encountering inaccessibility can just get out of their wheelchair to deal with it. Some ambulatory people are full time wheelchair users.

[disabled-disaster-king]

Pro decorating tip use vinyl to decorate your side gards

[disabled-disaster-king]

anyway i looked up the post about seeing your grandma's boobs and tumblr has deleted the screenshot of the story where the finnish dude says that americans are "like that" because they haven't seen their grandma's tits

good job tumblr 👍

[disabled-disaster-king]

Hey so no clue where you live but in canada there are two pathways to getting a custom wheelchair,for both: you just need a note from your doctor, physio, or occupational therapist stating that you need a wheelchair and why, and then give that to your insurance. You don't need to tell them your medical condition or diagnosis, and example would be (blank requires a wheelchair due to chronic pain, mobility issues, fall prevention ect.)

Method 1: Then you send that to your insurance, they will send back your approval or what additional information they need you will usually get 4000~ CAD for a wheelchair every three years. You then find a someone to assess you to determine what chair would work best, your measurements and order it. Then you give the quote to your insurance provider and they will cover their portion.

Method 2: If you require a wheelchair for over 80% of the time and require it regularly within your own house you can get them covered through the government aid program, this usually takes a bit longer and you will not own the wheelchair, this means that if you no longer need the chair, extensive damage occurs, or you get a new chair through private insurance so that you no longer require the chair it must be returned to the program so they can give it to someone else who needs it. Benefits of this is there is no budget, you will only have to pay either 50% of the cost or 500$ whichever is less.

Hope this kinda helps

disability tumblr i need your advice!

i’ve been a ambulatory wheelchair user for 2 years and my wheelchair is way too big for me, cheap and starting to break. i really want to get a power attachment and something more lightweight and compact so i have more independence, but definitely not a power wheelchair because they’re heavy

is it even worth it to try and get a custom wheelchair though? and how would i begin the process of getting one?

(hEDS, POTS and moderate-severe MECFS, been house or bedbound since getting sick and use wheelchair outside of house but at the point where even walking to the kitchen and back to get food a few times a day is worsening symptoms)

[disabled-disaster-king]

[disabled-disaster-king]

I lived in a flynin fly out community in northern canada that only had an ice road in the winter. The ice road on a good day took 8 hours to drive. We had no doctors in town they would come up for a week once every 3 months. nevermind any specialists. I know remote.

Why do more places not require a licence for service dogs? I feel like this would help a lot with how many people just stick a vest on an untrained dog. I live somewhere where service dogs are required to pass a test and get registered and carry ID and I don't encounter anywhere near as many 'fake' or poorly trained service dogs as people who live somewhere where it's not required. :/

[disabled-disaster-king]

There is no testing center

Why do more places not require a licence for service dogs? I feel like this would help a lot with how many people just stick a vest on an untrained dog. I live somewhere where service dogs are required to pass a test and get registered and carry ID and I don't encounter anywhere near as many 'fake' or poorly trained service dogs as people who live somewhere where it's not required. :/