Autism, ADHD, EDS, POTS, celiac and more pending I'm just trying to find people with similar expierences that i can relate to
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At the end of your life no one will give you a prize for enduring more pain than other people before taking measures (such as medication) to help manage your pain. It is okay to take meds when you need to before you've hit your absolute breaking point and need even more medication to reach your baseline. I know it can feel like weakness, but knowing yourself and when/how you need to manage your pain is an incredible strength.
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put me on "love on the spectrum" and ill single handedly ruin that show by talking about sexy power dynamics and bdsm for no other reason than that they wouldnt see it coming and itd be really funny
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
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able bodied people will freak out when they see an ambulatory mobility aid user not using their aids but won't question it when a hiker only uses a walking stick or trekking poles when they're hiking. they're the same thing.
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me: I'm done grieving, I already accepted my illness and all it brings with it, it's totally ok
also me on a random tuesday: my life is never going back to what it was, I'm never going to be able to do the things I loved the most the same, it's over and I gotta learn to live with that but it's kinda impossible because I'm so young and I had so many dreams and so many things I wanted to do that I can't anymore, at least not without all this pain and suffering
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Moment of silence for all the heat sensitive disabled ppl as the world actively tries to kill us this summer
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I'm switching between plugging in my fan and my heating blanket every five minutes because of temperature dysregulation like modern day chronically ill sisyphus
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ah yes, daydreaming of owning a good quality manual wheelchair so i dont have to worry about my legs giving out from under me. A normal, ablebodied daily activity
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Using my psychology degree to cheat tolerance by smoking in different places every day
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[Image ID
Two panel simpsons comic
First panel:
A yellow man in a white undershirt pushing a fork into a toaster labled "my body" saying "whats the matter with this thing"
Second panel
A lot of plugs stuck into one outlet with multiple chaotic wires, that are sparking labled "my brain"
End image ID]
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You ever have a good few months with your chronic illness and you wonder why you even thought it was a big deal before. And then you flare up and you're left bedridden
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[Image ID: image of text saying the following
"Chronic pain be like
Meh i'm used to it
Meh i'm used to it
Meh i'm used to it
I'm so tired of being in pain all the time i hate my body i hate being like this everything is agony please make it stop i'm exhausted please
Meh i'm used to it
Meh i'm used to it
End image ID]
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As a medium/lower support needs autistic who works with young higher support needs autistic:
We all matter. We all have the same diagnosis. We all deserve to be treated with dignity and respect.
But we are not the same.
I can mask and might be seen as 'odd' or 'weird' in public. The students I work with are seen as 'dangerous' and 'practically little kids'.
I can go to university and work with accommodations. The students I work with likely will never live independently and a few might find jobs that support them but still pay them less than an abled worker.
I have full control of my finances. The students I work with aren't allowed to make independent financial decisions, even if capable.
If I say 'no,' I'm making a choice. The students I work with can't say 'no' without being labeled as defiant and difficult.
I can feed myself, bathe myself, and take care of myself with extreme challenges. The students I work with are unable to take care of themselves without high levels of support/one on one support.
I had an IEP in high school but was mainstreamed in classes. The students I work with take separate classes and some rarely get to interact with their abled peers.
Our experiences are fundamentally different. Higher support needs autistics will experience a specific type of ableism I never will, and can never fully understand.
Lower support needs autistics need to stop saying we understand what higher support needs autistics are going through and then present autism as only being disabling because of society/lack of acceptance because that is dangerous. We need to stop saying every autistic person is capable of everything if given the right support because that leaves out huge parts of our community who will never be able to do certain things, regardless of support.
We are worthy of existence regardless of our abilities.
Autism is a spectrum. It is not the same for every autistic person. Autism acceptance and advocacy has to come with accepting, acknowledging, and listening to our higher support needs peers.
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Not enough heating pad for the ouchie so I’m just rolling around like a rotisserie chicken
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setting up disability accommodations at school is so weird with internalized ableism. hearing someone else say that I am disabled and that my disability is disabling????? out loud!!! bonkers
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It’s fun being both physically and mentally disabled because first you have to psych yourself up through the executive dysfunction to go out of the house and then once you’re out you have to psych yourself up to ignore the joint pain long enough to get through the errands
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